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Sparks for Persons with Crohns and Colitis!

A Guide to Posting in Your SparkTeam Forum

  FORUM:   Introduce Yourself to Team Forum
TOPIC:   New to this board...have LC 


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AVAROSE12
AVAROSE12's Photo SparkPoints: (5,324)
Fitness Minutes: (5,165)
Posts: 151
3/15/13 4:29 P

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Hi

I have mc also have been diagnosed for just over a year now, i also have celiac, I am on a gluten free diet and I also do food combining which is keeping carbs away from proteins, and eating only raw fruit and juices till lunch time. It is working well for me, I have only been doing food combining for 3 months as I had a flare up due to some stress and this has settled everything down well my bowel is the best it has been for about 20 years I feel great.I am not on meds yet for mc but do take blood pressure meds for the past 15 years, I am going to look at the starch content of them also, as I am thinking I am intolerant to starches. I try to keep my diet as natural as possible, not processed foods, just good old fashioned homemade from scratch that includes all my dressings, pestos etc. Takes time but I think it is worth it for my health. Hope things are settling down for you. Feel free to contact me for any help or advise that I might be able to give you Cheers Jan.


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SUNSHINECOOKIE
SUNSHINECOOKIE's Photo Posts: 21
3/3/13 7:47 A

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Hi, don't give up, I too have suffered for years with this condition, I have IBS abs and Colitis,I also have the low thyroid and diabetes, mine started 5 years ago.

I take meds and yes, Spark is wonderful, it will give you the strenth to stay on track and logging makes such a big difference.

Foods also can cause flare ups, and yes it is embarassing but, we all have crosses and most people are understanding when you explain you have a medical condition that causes you to need the bathroom at a moments notice, I have had accidents, so I now carrry an extra set of clothes in the trunk of my car, I have had 6 surgeries.

I have recently lost 10 pouinds a long drawn out process that at times wanted to say forget it, but, logging keeps me focused and yeah!!!! I did it, more to go, it is a journey and I make the rules of what and how much I want to eat or control.

Hang in, it will get better, I go to a colon rectal doctor, he seems to have the knowledge to treat me better than any other I have been to.

You are young and have a lot of wonderful things to do yet, so think of it as a challenge and you are showing your children that we don't give up, we just get smarter in dealing with adversity.

Hugs,
Helen

May you always have Love to share, Health to spare, and Friends who care


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GREENEYESKIGIRL
Posts: 55
3/3/13 2:38 A

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I have been sick since May. It began with nausea only. I am only 45 and wondered if I was pregnant. Nope. Then I worried about diabetes. By October, I had nausea every day and began having liquid stool with every bathroom visit. My stools had been odd anyway, but never like this. I went through all kinds of testing. I have Hashimoto's and at first, the dr told me it was because I was hypo. I also tested low albumin. But neg for diabetes and all other blood work. I disagreed, but waited a month. I went back and saw my regular GP and he agreed that the other dr's idea didn't sound right. At that time, I tested normal thyroid. However, I also requested to have parasite and bacteria testing. He agreed. This time, everything was normal except for leukocytes in my stools. He sent me to a GI.

By Dec, I was soooooo tired. I homeschool 4 of my 6 kids...two have graduated, but are still at home. I was living a fairly active life with a co-op where I was teaching and helping. I could no longer really function anymore. I had been hiding how I was feeling because, well....you just don't share about your bowels with everyone you know. Nothing I ate seemed to matter.....except brown rice and salads. By this time, I was having pain. I could see lots of mucus in my stools.

I saw the GI and she scheduled a endoscopy/colonoscopy in Jan. Everything looked good, but I did have gastritis. She did a biopsy for Celiac which was negative. I also did not have H-Pylori. They called me and told me I had a lot of inflammation in my colon. I have been on Entocort since. I have Lymphocytic Colitis (MC) I will be on it until May and then we will hopefully taper and see what happens. She did not sound hopeful and suggested there might be need to change medications at some point or be on meds long term.

I am feeling better now, but I am feeling tightness in my clothes. I had already joined SP awhile back because I need to loose weight. I have some joint issues and before this mess had been exercising regularly, but developed bursitis in my hip. I am hoping to get back to exercise since I'm feeling a little better and I think I'm gaining weight. For the most part, I'm good with foods. Brown rice seems to be ok now. I am still wary of salads, but I'll try a little now and then.

Anyway, is there hope for someone on Entocort to lose weight? Is it only water? I do get really hungry, but I try to fight of overeating.


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