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SUNSHINECOOKIE's Photo SUNSHINECOOKIE Posts: 23
8/17/12 8:29 A

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Good Morning,
I would like to share with you a few things I have learned, to help make life more comfortable.

I have had several colon surgeries, and I have logged like crazy, I reviewed them last night,
and thought these may be of help to you.

Limit what you drink while eating, we need to stay hydrated, but, not while we eat, as
the colon has problems eliminating the liquid we consume while eating, so only take
sips, wait at leat 20 after eating to enjoy that cup of coffee and make it decaffinated.

Caffiene triggers the bathroom blues.

Also, be sure to drink during day, because we enjoy our bathroom settings so much we
can become de-hyrated.

But, remember while eating just small sips.

My husband loves going out to breakfast on Sunday morning, then shopping, that can
be a problem for me, if not careful.

I get up 1/2 an hour earlier, have a cup of decaf coffee, get dressed and wait, because I
know I am going to be enjoying the scenery of my bathroom.

At breakfast, I only have a small juice, which I sip very slowely, and take an imodium, in the
middle of my meal, I eat slowly so it gives the pill time to do its job.

I also make sure I know where all the powder rooms are everywhere I go just in case
I need to visit.

I also, carry a set of clothing in the backseat of my car, just in case I need them.

This can be a nusiance but, I have had to use them once in awhile, thats where
my friends have been supportive, in the beginning it was just awful learning on my
own with no one to share tricks of the disorder with.

So I wish you the best, and do what makes you comfortable, as I have learned, it
can be controled but, it is not going away, not for me, just a new way of tolerating
things that go bump in the day, night, parties, holidays, we adjust and learn to joke
about it, better than crying.

The best to you!!!

Helen

May you always have Love to share, Health to spare, and Friends who care


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SUNSHINECOOKIE's Photo SUNSHINECOOKIE Posts: 23
8/16/12 6:27 P

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I am happy to hear you are feeling more up beat, never, ever give up hope.

It is a frustrating disorder, but, each day is a good day when we wake in the morning
to see the sunshine and those we love, so hang in, log, track, and remember
when taking pain meds, tylenol is best, the ibuphens can make it worse.

There are a couple good site on the internet with info on this disorder, do some
research, and the more we learn the better we can cope.

Start slow with your working out, do a little to see how you feel, then increase in small
increments, take it slow as the saying goes, slow and steady wins the race.

I walk, dance while cleaning, volunteer at the hospital and work, first feel better and
remember when you have a flare up the first thing to do, is to put your health first,
exercise can come later after you start feeling better.

Wishing you well!!!

Helen

May you always have Love to share, Health to spare, and Friends who care


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TATERCAT's Photo TATERCAT Posts: 1,599
8/16/12 2:13 P

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Thank you for your support and advice. I do need to hear from other people because I am finding it hard to cope on my own.
I have decided to start working-out again, do a couple of minutes at a time, and then will increase in due time.
I have been keeping a log of what I eat to lose some weight, but now it will be even more helpful to determine which foods I can tolerate!
It is nice to know that the weight-gain from prednisone is temporary.

Once again, thank you so much for your help.

Janet

Janet


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SUNSHINECOOKIE's Photo SUNSHINECOOKIE Posts: 23
8/15/12 6:03 P

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Hi,
Sorry to hear you are feeling so bad, first you must listen to your doctor.

It is important to get well first, when you are feeling better and eveno tho right
now that seems like it will never happen, it will.

Then you can resume exercising and learn a new way of eating, you will find
that there are some foods you will not be able to tolerate, but, then a new door
opens introducing you to new foods that help you feel better.

The meds can induce weight gain, but, it is mostly water weight, and you will
lose it, just believe in yourself and find some support, it means a lot when you
having a flare-up.

Keep a log of what you eat and how you feel, you can always go back to it to see
what could have cause a flare up, Spark is great because you can track what you eat and
journal how you feel each day.

Be positive, you can do it, because you want to.




emoticon

May you always have Love to share, Health to spare, and Friends who care


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TATERCAT's Photo TATERCAT Posts: 1,599
8/15/12 2:24 P

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I was diagnosed with ulcerative colitis back in May, but haven't been treated for it until last week. I have had all the symptoms since then, but got much worse in the last two weeks. I ended up at the ER and later went to see a new GI doctor that is actually helping me! I have been in tremendous pain and discomfort (not news to some of you) and had to stop working-out because I couldn't tolerate sitting down let alone moving.
I am still new to this diagnosis so I am still a lost soul. My symptoms are still there, and it seems that my life revolves around them. So far, it has been very frustrating and I am looking for advice on how to deal with this, and get my life back on track.
Does anyone have any tips/advice on working-out? I was working-out 6 times a week (walk/run) but in the last two weeks, I have been finding it extremely hard due to the pain. In fact, I gained 5 pounds in one week even though I was extremely careful about my diet. My GI said that the prednisone makes you gain weight - is that true? I haven't been eating much because my appetite was low, so I am not sure how I managed to gain 5 pounds.
Is this common, will it ever get better? I sure hope so.

Janet


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