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EAPANFIL Posts: 12
5/19/14 11:08 A

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Hi I'm Liz. I was diagnosed with UC in early 2011. I was on Lialda but had stop because it made me extemely constipated and gave me stomach pain. Trying so go a more natural approach. I've had more problems on medication then off. Just joined sparkpeople to stay healthy and lose weight healthfully instead of the unhealthy weight loss from flare ups.

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MAMABECKTN59's Photo MAMABECKTN59 Posts: 248
3/22/14 12:22 P

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Hi my name is Linda and I and 54. I developed IBS after a colon polyp was removed when I was 26. I had a lot of issues with foods and bouts of cramps with either D or days of C and then pain. My question is, for the past year I have been going back and forth between diahrhea and ccnstipation. I passed a lot of blood last year each time but that has slowed down now. One Gastro I had for years kept telling me everything was normal but would add meds. The third time I went to see him and ask questions, he got mad, said all is normal and gave me three meds to take. My theory was if I was so normal why the meds? I went to a second Gastro and progress has been slow but he is checking. He is waiting on the one year time frame for insurance to repeat colonoscopy. I am still getting severe cramps after every meal, followed by multiple trips to our favorite room. I double up almost as soon as I take the last bite. Has anyone ever heard of IBS developing into IBD or Crohns? I have never reacted this way and this came on suddenly last June and has been with me daily. I must confess while I am enjoying the weight loss, I sure wish it was from a different method. If this has happened or sounds familiar, please respond. I am desperate and so tired of being confined to my house!

Linda B
Remember that what you put in your mouth is your responsibility. While others may tempt you, ultimately you’re in charge of your own life.

I never said it was going to be easy, but it’s going to be worth it”


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LOVELYLANA9 Posts: 1,921
1/3/14 7:33 P

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Hi, I'm 53 years old and I was diagnosed with lymphocytic microscopic colitis in September 2013. After 8 weeks of 2 Pepto Bismol tablets 3x a day I thought that it cleared it up, but the symptoms have returned several times. My gastro said not to change my diet (ha!) but after doing a lot of research I have eliminated the triggers of gluten & dairy. I will be seeing a naturopath doctor in a few weeks to see what supplements can help the inflammation. I will only go on medication as a last resort because I have read that medication helps for a short time with LC, but then the symptoms return. I appreciate all of the support & suggestions that are available on SP!

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BEESPARKLE's Photo BEESPARKLE Posts: 4,864
12/16/13 4:33 P

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I am new on here with Colitis.. I just been off fluid diet since over a week. Now Doc is trying me on G.free. So far so good. I was in emerg and my Colitis gave me pain and all that goes with it. Plus Diverticulitis was flared up also same time. So have had it rough. I am home for Christmas with hubby . Family understands fully.

So have only been introduced to two veggies, rice or baled potato and carrots baked like b.potato. Same as other veggie. I can have soya milk.

So here I am. A whole complete way of eating.



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KIAMUDDESS Posts: 10
9/30/13 11:07 A

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hi my name is Laurie, I may have introduced myself in years past when I was active on this site. I just wanted to share that I have had colitis since I was in my mid twenties and I am 34 now. The good news is I have found that I can generally control the symptoms with the food I eat. Anything greasy or spicy, like hamburgers, pizza, hot wings, indian food, jalapeno peppers, fries, are not going to agree with my stomach. Believe it or not, salad dressing is really awful. Any breads or cereals work great, so I just have to eat the healthy ones, my favorite is fiber one (the stringy kind) because it has so much fiber and has very little calories.

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CARADAWN's Photo CARADAWN Posts: 1,922
7/22/13 3:43 P

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Welcome Brittany! Glad you have joined the team although the reason for being part of this team may not be so fun.

I was also diagnosed as an adult while my sister was diagnosed as a pre-teen. I agree that I am happy it happened to me later in life as I am better able to deal with it and make my own decisions about doctors and medicine.

As a kid, my sister's voice in her treatment wasn't taken seriously. Although my parents are wonderful they didn't think a 12/13 year old could know what she wanted / deal with the issues of the disease. It's a hard disease to deal with at any age but at least you have siblings, like me, to talk about all the dirty details with and whom can really sympathize with you.

Good luck with treatment and I am here if you ever want to chat.

~ You are the only person that can make yourself happy ~

~I wake up every morning and CHOOSE to be HAPPY~

www.gottago-ibd.com


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BRSCHULER SparkPoints: (456)
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7/22/13 2:36 P

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Hi Everyone,

My name is Brittany and I am 26 years old. I was diagnosed with Crohn's 3 years ago, and my sisters were both diagnosed when they were about 14 (so have been juggling this a lot longer than I have). I think it's quite an interesting phenomenon to look at the differences is our disease courses. I feel good about being diagnosed as a young adult because I feel that I was able to take matters into my own hands from the beginning, rather than being forced to listen and accept any information that was given to me by doctors or other authority figures. I'm on a quest to treat my disease through food, herbs and vitamins. There have been ups and downs but I am committed to find wellness outside of conventional medicine.

Glad to be a part of this team, filled with diverse interests and knowledge !

PATCHESOK's Photo PATCHESOK SparkPoints: (21,139)
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6/10/13 10:41 A

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Hello Everyone:

Back in February I was hospitalized for a little over a week for an inflammed small intestine, infection and severe pain. It was a really bad flare up. Just this past friday I had another flare up. I have had a colonoscopy in which they found that I do have diverticulitis. Currently being treated with antibiotics and pain meds. Still in pain.

I guess my question here is that back in february they believed the culprit to be Crohns but since having the colonoscopy they have leaned toward the diverticulitis but have not completely ruled out the Crohns. Has anyone had this type of experience?

I am kinda lost, not sure what direction I am actually going. Any advice or information would be greatly appreciated.

Thank you,


Millie-PatchesOK from Wetumka, OK

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TDICOIO's Photo TDICOIO SparkPoints: (7,157)
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5/13/13 6:05 P

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Hello everyone!

I'm 29, with two kids and married to a wonderful man who unfortunately has Crohns Disease. As I'm beginning my diet journey (AGAIN) I'm trying very hard to incorporate foods that my husband can eat also. He just went through a particularly bad flare up and has now dropped down to the lowest weight I've ever known him to be. He may even need to start taking nutrition shots because he's having such a hard time eating. I admit to a little jealousy that he's lost over 50 lbs, but I would never, ever want to be the one in that kind of pain. Plus I love food... And because it's something that can be transferred genetically I need to watch my kids too.

~TDiCoio


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ANGLGIRL66's Photo ANGLGIRL66 Posts: 13
1/24/13 10:33 P

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Hi Everyone!! My name is Kimberly! I am a mom of 3 (2 girls and 1 boy) ages 25-14. I have a wonderful husband. I also have a grandaughter (14 months). I am a nurse and work for a Bariatric doctor. I have Crohns. I was diagnosed in 1992 with this "lovely" disease. In 1996 I had 1 surgery for a colon resection. I lost approximately 1/2 of large intestines (starting at the ileocecal valve up to ascending colon and on to the transverse colon) and 6-8 inches of small intestines (lower part from the appendix to the ileocecal valve). I have been in remission ever since. I weighed 77 pounds the day they put me in the hospital and now I am over 200 pounds. emoticon I am really wanting to get to a healthier weight.
Feel free to contact me.

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MARCIAC10's Photo MARCIAC10 SparkPoints: (36,332)
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8/4/12 3:07 P

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Welcome, Caradawn! Hopefully you've got some answers by now from your doctor. If it's Crohns, there are medications that can help. When I'm in a flare, I tend to stick with bland, easy to digest food. When I'm better I can eat many things, but raw veggies and popcorn tend to be problems for me at all times. Everyone is different, so there is no one diet for Crohns.

Marcia


Ability is what you're capable of doing. Motivation determines what you do. Attitude determines how well you do it.
Lou Holtz

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CARADAWN's Photo CARADAWN Posts: 1,922
8/1/12 9:20 A

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Morning everyone :) I found blood in my stool when I was pregnant in 2010 but after taking canasa and having my daughter the symptoms went away. I had a flexible sigmoidoscopy (I was breastfeeding so I couldn't be put under to do a full colonoscopy) last May and the results were inconclusive. My doctor diagnosed me with ulcerative proctitis since he thought it was only in the bottom of my colon (that is all he was looking at and there was no inflamation there).

Remission lasted for about a year and a half and now I am having a full force flare up (going on 3 months). I had a Colonoscopy yesterday and am awaiting the biopsy results to get the official diagnosis. My doctor is 80-90% sure I have chrons. If it's not chrons then it's ulcerative colitis- what fun! My stomach is constantly in knots after pretty much every meal. I am uncomfortable and just plain tired of not knowing what I can and can't eat to keep my stomach from getting mad at me. When I was pregnant I didn't have any symptoms except for loose, bloody stools so all this pain and discomfort is new to me. I am taking this one day at a time and hoping to learn how to LIVE with it instead of letting it rule my life.

I look forward to meeting all of you and getting help/advice from some of the veterans!

p.s. My sister was diagnosed with ulcerative colitis about 20 years ago so I am not new to this disease. She is my go to for all questions but since she has been in remission for 10+ years I would still love advice from people that have been dealing with this more recently.

Hope everyone is having a "good stomach" day emoticon

~ You are the only person that can make yourself happy ~

~I wake up every morning and CHOOSE to be HAPPY~

www.gottago-ibd.com


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KSCOWGIRRRL's Photo KSCOWGIRRRL SparkPoints: (1,459)
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7/26/12 10:00 A

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Hi everyone, I've had crohns since I was about 14 years old, diagnosed when I was in my 20's. I've been mostly in remission for the past few years but I've had a full blown flare for the past month.

Right now I'm down to liquid diet only so started juicing a few days ago. Sometimes it sticks, sometimes not. I've only had one surgery for a stricture but otherwise have avoided surgeries.

Being a typical crohnie, I used to always be very thin. But when I had my son, my thyroid went hyper and burned itself out, then had to have an emergency hysterectomy right after he was born. Now I can smell food and gain weight!

Hope everyone is having a great day!!

Lisa in Kansas

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SUZECOOKS's Photo SUZECOOKS SparkPoints: (24,696)
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6/18/12 5:04 P

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Hi. I have been with SP for a week now. Minus my terrible weekend. I too have Crohns. I was diagnosed in 2000. I had emergency surgery and have now had 2 surgeries, losing 1/3 of my colon. I feel great most of the time. I'm in remission and I know low stress and exercise make a huge difference. Some days though, it's really nice to have the support of others who get it. Oh, thanks for sharing the bidet idea. Seems so obvious but I never thought of it.

Suzette or call me Suze
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SUNSHINECOOKIE's Photo SUNSHINECOOKIE Posts: 23
5/22/12 7:34 P

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Hi to all with this uncomfortable disorder.
I have had 6 surgeries in 4 years, and now I am finally getting a grip
on this dis order.
Seems like the bathroom becomes your best friend.
My doctor suggested a bidet, it sure helps with the bathroom issues and
how sore one can get, I am sure you all know what I mean.
Now it is pat dry and no more tears.
It is hard to find support or those who can share what will help with tolerating this.
I enjoy Sparkpeople, and even tho I go and go, I still have to watch my weight.
Hope I can offer some advice to anyone who may need it.

It is better to give a piece of your heart then a piece of your mind.
emoticon

May you always have Love to share, Health to spare, and Friends who care


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CANTERBERRIES Posts: 2
1/4/12 11:10 P

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Hey there all! My name is Andie and I am brand new to SparkPeople. I was just browsing the site and I am so super excited to see a team just for us people with Crohn's!! It is so hard to find support, even online, so WAY TO GO SP! Yay!
I was diagnosed with Crohn's in 2003, and I have had a major bowel resection already, three years ago. My biggest challenge is fighting the vicious circle of Crohn's, and being stuck in a Crohn's rut of not feeling well and not being able to exercise, then feeling depressed because of not exercising, and then eating poorly, and, well, the list goes on and on. I am married with two kids, and they are very supportive, but it helps to connect with people that know what you are going through. I hope to find the inspiration and motivation that I need to break this cycle and get in shape, and maybe someday pass that along to someone else! Thank you SparkPeople for dedicating a team to Crohn's! I am impressed!

TAWNIELUCAS's Photo TAWNIELUCAS SparkPoints: (0)
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5/29/11 6:22 P

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HI everyone. I have had crohns for 20 years almost. I have had 2 major surgeries emoticon . At one time i was in the bathroom all the time no matter what i ate and was down to 87 pounds at the age of 27 and 2 young children. My husband has been my rock and my strength for 18 years now. He use to joke and tell people i had my own office in the house....."the bathroom"
In 2002 was my last and scarest surgery. I had the choice....no it was not a choice..i needed to have the surgery if i wanted to be around my family and see my children grow.
I came out of the surgery well...but with a few changes...i no longer make the bathroom my office....I have an illiostomy.
Let me tell you tho going from 87 pounds to 169 was a huge shock. I have struggles with many health problems since then and would love anyone to contact me that would like to share battles. emoticon

Live Laugh Love it helps things go better!


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RMSPARKLES's Photo RMSPARKLES Posts: 537
4/18/11 1:16 P

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Welcome! Please tell us a little about you. We are here to support and encourage you!




~ Team Leader of Sparks for Persons with Crohns and Colitis
~ Team Leader of Team IBD (Inflammatory Bowel Disease)
emoticon emoticon

Believe & receive or doubt and do without!
Have a blessed day! ☺
~ Rachel


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Other Sparks for Persons with Crohns and Colitis! Introduce Yourself to Team Forum Posts

Topics: Last Post:
Hi! I'm new to the Team Forum 12/9/2013 8:30:14 PM
New member-Is anyone documenting symptoms here? 9/13/2013 6:55:35 PM
Hi! 2/27/2014 12:14:35 AM
REMICADE 11/5/2013 6:47:18 PM
Long road led to Crohns 9/11/2014 12:01:52 PM

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