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LILYPAD36's Photo LILYPAD36 Posts: 180
2/19/10 10:18 P

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I ended up having (emergency) colon resection surgery almost 5 weeks ago. I just had my final follow-up visit with the surgeon/specialist and although I should not have to worry about having diverticulitis now (although more could occur in the future if I'm not careful), she did give me some advise:

1. Aim to eat 30 grams of fibre daily.
2. Drink plenty of fluid.
3. Be active
4. ALWAYS CHEW YOUR FOOD TO A PASTE BEFORE SWALLOWING.

She feels that if you have enough fibre in your system, seeds and nuts should not cause diverticulitis because everything will stay together on the way through.

I am feeling pretty good! It's been a long haul thinking that I was getting better when I wasn't, but now that I've had the surgery, I feel pretty confident that I am truly on the mend.

Also, now that my diet isn't restricted and I have my appetite back, I have been a little indulgent and I can tell you that I feel so much better when I eat better! Good luck!

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NEUTRALHILLS's Photo NEUTRALHILLS SparkPoints: (20,093)
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2/18/10 11:31 P

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The seeds in the strawberries would not give you a rash. The likely culprit is the insecticide used on the berries for pest control, which likely remained on them as a residue. Pesticide residue is a real problem with fresh produce. You'd react every time you came in contact if it was a food allergy.

Speaking as a trained pastry chef, I can tell you for a fact that raspberry, blackberry, and blueberry seeds do NOT disappear or become soft in most normal cooking or baking processes. You'll need to strain them out if you don't want them when making a sauce or a preserve. Blueberry seeds are usually small and soft enough that you won't notice them. You'll get the odd berry where the seeds are "in your face".

The current medical stance vis-a-vis seeds and diverticulosis is that it's okay to eat food products with seeds, but since different people are set off by different foods, you need to keep a food diary so you can remove items from your diet that you've established are making you ill.

Best,

Sean M.

(Edited for typos, darn it!)

Edited by: NEUTRALHILLS at: 2/18/2010 (23:32)
Just another camera toting redneck!


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CALLY60's Photo CALLY60 Posts: 26
2/14/10 8:53 P

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I find that I have to avoid fruits and vegetables that have seeds.

I have had a rash handling strawberries and of course strawberries have seeds and so I do not eat strawberries. I have also heard that blueberries have seeds in them also.
I did learn that fruits that have seeds and you bake the fruit in a cake, the seeds do not bother me.
I ate a cake with real strawberries in and did not have any problems digesting after eating the cake.

Has anyone heard of this?

A relative told me if you bake an blueberry pie the seeds will disappear. Probaly blackberry seeds do the same thing in a cobbler.






NEUTRALHILLS's Photo NEUTRALHILLS SparkPoints: (20,093)
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10/8/09 10:20 P

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Cauliflower isn't a trigger for me, nor are spicy foods which many with diverticulosis find problematic. Here's an excerpt from a page from the NDDIC:

"Avoidance of nuts, popcorn, and sunflower, pumpkin, caraway, and sesame seeds has been recommended by physicians out of fear that food particles could enter, block, or irritate the diverticula. However, no scientific data support this treatment measure. Eating a high-fiber diet is the only requirement highly emphasized across the medical literature. Eliminating specific foods is not necessary. The seeds in tomatoes, zucchini, cucumbers, strawberries, and raspberries, as well as poppy seeds, are generally considered harmless. People differ in the amounts and types of foods they can eat. Decisions about diet should be made based on what works best for each person. Keeping a food diary may help identify what foods may cause symptoms."

digestive.niddk.nih.gov/ddiseases/pu
bs
/diverticulosis/#treatment


In a nutshell, what works for me won't necessarily work for thee. Keep a diary and make a note of what you ate and when you've gotten ill. Let's you see patterns emerging.

Oh, and happy turkey day from a fellow Canuck! (In Kirriemuir AB.)

Best,

Sean M.

Just another camera toting redneck!


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LILYPAD36's Photo LILYPAD36 Posts: 180
10/8/09 6:06 P

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Thanks for the advise. I'm feeling really good today. I didn't have any tenderness when I woke up this morning. I stuck with liquids all day and then tonight I had a piece of toast with my soup. I'm not going to go crazy, so that will be my only solid today. I'll do liquid again tomorrow and maybe something "soft" for supper tomorrow night. Our Thanksgiving is this weekend, so I want to be able to enjoy some turkey dinner on Monday without suffering. I'm amazed that I'm not starving. All that liquid is keeping me full. My morning drink is a protein drink, so that keeps me going. Food has never looked so good though. I'm dedicated to feeling better and hoping to keep in good health.

I'm kinda wondering if one of my problems was cauliflower. Has anyone had trouble with cauliflower? I don't eat it often, but I do remember that I had eaten a lot of it just before both flare up's (because both times my flare up's happened a week or two after I started eating healthier, and cauliflower is the one snack on that list).

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NEUTRALHILLS's Photo NEUTRALHILLS SparkPoints: (20,093)
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10/8/09 10:14 A

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Healthy eating and regular exercise are the two most important changes you can make. Putting the right food into your gut will stop it from picking fights with you. At least half an hour per day of walking, hiking, running, stepping, or just plain moving prevents traffic jams from developing in your intestines.

Diet and exercise are my daily medicines now. I miss a dose or two and I *really* feel the difference.

Hope you get your flare up under control soon. Please drop us a line and let us know how you're doing?

Sean M.

Just another camera toting redneck!


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LILYPAD36's Photo LILYPAD36 Posts: 180
10/6/09 9:17 P

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Well, it's not a UTI. The diverticulitis didn't clear up completely with the Cipro. I made a trip back to emerg. on Saturday night after being in pain all day, and they prescribed Sulpha DS for 10 days. Today I can still feel a bit of tenderness. Although I still have a week on the meds, I got thinking tonight that if it doesn't clear up this time, I may end up needing IV treatment, which I DO NOT want. So, I am going to try a liquid diet for a bit to see if that helps. I'm now starting to get a bit scared. I am 38 years old and should not be dealing with this. I really need to get serious about eating healthy for the sake of my health!

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10/1/09 7:09 P

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So glad to hear that you are feeling better. And I know a UTI can also cause pain so that could just be it. I hope that passes quickly and that you continue to feel better.

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LILYPAD36's Photo LILYPAD36 Posts: 180
9/29/09 5:48 P

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Thanks for the advice. I saw the dr. today and I also tested positive for a UTI when I was at emerg. before. The pain is diminishing, so she wants me to wait until Friday and they'll retest for the UTI to see if that's what it is. Then we'll go from there. I am feeling lots better! Thanks for all your concern. I really appreciate "talking" to people who have been through this as well. It certainly helps.
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NEUTRALHILLS's Photo NEUTRALHILLS SparkPoints: (20,093)
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9/27/09 8:20 P

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Ditto on the re-visit advice. My pain disappeared promptly after starting the Cipro -- nothing lingering at all after the first week.

Best,

Sean M.

Just another camera toting redneck!


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9/27/09 11:00 A

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Personally, Lilly, I would recommend a revisit to the doctor, or a phone call. To me the lingering pain is a sign that the infection might not totally be healed. I would visit sooner than later too as the Cipro is in your blood stream and the doctor might want you to remain on it without interruption. I am so glad to hear that you are feeling better. Here's to continued good health!

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LILYPAD36's Photo LILYPAD36 Posts: 180
9/27/09 10:22 A

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NEEDING ADVISE!!

I am on my last day of Cipro, which I have taken for 10 days. I feel great except that when I lay down, or if I press hard into my side, I can still feel the pain in my left side. It's not bad, but it's definitely there. I am not eating high fibre yet (but am eating some fibre) and making sure to stay away from fatty foods. I'm trying to get lots of liquids. No fever. BM's seem good. My question is, is this lingering pain in the side normal? I don't remember how I felt last time. I am wondering if I should go back to the dr. or if I should just wait it out. I guess I'm worried because I don't want my recovery to go backwards. Any thoughts?

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APPLEBLOSSOM SparkPoints: (5,542)
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9/21/09 4:20 P

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Lilly

So sorry you are feeling bad. It took me the full 7 days of antibiotics to even start to feel a little bit better. I wasn't eating much, as you the thought of food-----. What I ate that made me feel better was a Duncan Hines Spice cake that I made with applesauce instead of oil. Maybe it was the sugar in it, but it helped. Don't know if something like that would help or not. At least I wasn't hungry anymore. I am now a big believer in having a sweet potato. Just enough fiber and still easy on the gut. Seems like if I am eating those 2 or 3 times a week, my gut feels good. Just a few suggestions, as when this started for me in April, I was just lost as to what to eat!! Hope you feel better. Give it some time. You can't rush it. Take it easy!

 
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9/21/09 1:09 A

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Lily,

If you're experiencing pain the diverticula are still inflamed and you're still in the midst of an episode. It is important to limit yourself to a clear liquid diet at this phase of the illness (this is the advice of my physician).

Here's hoping you're feeling better soon.

Sean M.

Just another camera toting redneck!


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9/20/09 7:13 P

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So far they have not figured out why my body is healthy for 3-4 weeks and then all of a sudden goes into dehydration and no appetite, no strength and seems my body doesn't absorb vitamins and nutrients. More test results are due back on Tuesday so perhaps I will have some answers soon. If I get answers, I will let everyone know.

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LILYPAD36's Photo LILYPAD36 Posts: 180
9/20/09 7:06 P

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Thanks Sallie - so glad you are out of the hospital, and that you are feeling so well! Did they figure out what it is that is causing this? Fingers crossed that you stay healthy and that I get there soon!
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9/20/09 6:47 P

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So sorry to hear that you are still feeling crappy. I sure can identify! I know your symptoms well. Hopefully you will be feeling a bit better in a day or two. I was discharged yesterday from the hospital and I feel great today. I even hiked 2 miles with my doggies. That is the weird thing about what ever it is that I have. One day feeling terrific and then the next aweful. But I am thinking very positive right now that I will not have another episode!!! Sparks folks are so wonderful and thoughtful and so many have wished me well.
Here's hoping you feel terrific soon!
Sallie

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LILYPAD36's Photo LILYPAD36 Posts: 180
9/20/09 6:33 P

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Thanks for the advise. This is my third day taking Cipro and I still feel pretty crappy. I was thinking that since I got the meds early that I would feel better right away - silly me! I did a lot of laundry yesterday and felt horrible last night. Today I basically laid around the house and felt sorry for myself. Would I still be considered in a flare up since I'm still having pain? I feel a bit feverish too. I really haven't eaten any real food but am thinking about having some crackers with peanut butter and a little bit of salad tonight for supper. I feel so weak that I need to eat something. Funny thing though is that the thought of food is actually revolting to me. I cannot imagine eating a piece of chicken or potatoes or anything. Hubby went out and bought some juice and it tasted sooo good. I don't usually drink juice. One other question (sorry for the rambling), what's the deal with not drinking pop? Is it just dark pop that is a no-no? I would really enjoy some gingerale right now.

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NEUTRALHILLS's Photo NEUTRALHILLS SparkPoints: (20,093)
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9/20/09 12:07 P

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Hi Lily,

During a flare up you're supposed to stay on a clear liquid only diet (apple juice, broths, Jello, etc.).

Immediately after the flare-up you're supposed to eat a low-fibre diet that is easy on your digestive tract.

After a week or so you can ease back into a high-fibre diet. Here's some info for you:

www.jacksongi.com/Diets/Diverticulos
is
_Dietary_Therapy.aspx


www.dialadietitian.org/media/downloa
ds
/resources/handouts/diet-div.pdf


You may run into outdated advice that says you can not eat nuts, seeds, or popcorn. Recent research has proven that this is not the case. Just don't eat this stuff until your flare-up is well behind you.

Please visit this SparkTeam's Links section for more information on this disease:

www.sparkpeople.com/myspark/groups_l
in
ks.asp?gid=29205


Best,

Sean M.

Just another camera toting redneck!


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9/18/09 8:16 P

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Thank you Lilypad for posting your experience. Sorry you are in pain now with a flare up. I will say a little prayer for you that you heal quickly.
Sallie

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LILYPAD36's Photo LILYPAD36 Posts: 180
9/18/09 8:02 P

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I am currently having my second flare-up. It sucks. I have seen an emerg. dr. who told me nothing on how to eat, my dr. sent me to a dietician who really didn't know anything about it. The surgeon who did my colonoscopy, which confirmed that I have one diverticuli, said that high fibre, lower fat, lots of water and moderate exercise is the key. Apparently only 25% of people with a flare up have a chance of reoccurance. Then there's people like me who don't follow the advise of the surgeon and continue to eat junk constantly. You would think I must like to suffer. Of course right now I am determined to eat well; however, once the pain has subsided, I gradually go back to my old ways of eating, which are TERRIBLE. Best of luck to you!

One last thought - during a flare-up, the idea is to eat a diet that easily digested, so low fat and low fibre and lots of water. That's where I'm at right now. This is not the way I intended to lose weight.

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9/1/09 12:18 P

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Hi there. You'll definitely want to have a doctor do a manual colonoscopy, a radio colonoscopy, or perform a CT scan to be sure. Any of these procedures should definitively tell you whether or not you're suffering from diverticulosis.

Best of luck and plz let us know how things turn out.

Sean M.

Just another camera toting redneck!


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8/15/09 12:35 P

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Wow, your episode sounds scary. I was recently in the hospital for 4 days with colitis and diverticulitis. I have been newly diagnosed. My systems were diarrhea, chills, fever, total body aches, some discomfort in my abdomen, and total fatigue. I am now challenged with trying to figure out what to eat and not eat. I would like to find a registered dietitian/nutritionist but that will be a challenge since I live in Mexico and finding one who speaks English will be hard. So if you are diagnosed, please let me know what your GI says about food and or if there is anything safe to take for energy since coffee and caffeine are out. Good luck with your GI. Oh, and I had a body scan that showed my inflamed intestines and that is how they diagnosed me.

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MYLADY4's Photo MYLADY4 Posts: 1,185
8/14/09 8:39 P

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While I was out on a trail bike ride today I had such an incredible pain in my left side I just wanted to die, but did I turn around, no kept going. By the time I got home I could hardly stand and I look like I am 6 months pregnant.

This is the same way I felt before I was diagnosed with Celiac. I know that I am not getting glutened since I make all of my own food and when my blood was recently tested for the antibodies I was well within normal.

All week long, by the end of the day I was bloated and uncomfortable. If I have div. it would explain it.

What all symptoms and questions did any one ask your doctors. I am not fond of them but I think I need to see my GI again but I want to be prepared to talk to him about this.

I regularly exercise, eat lots of fiber and drink lots of water but I am not always regular as I should be for as much fiber as I eat.

Any insight would be appreciated cause this sucks!!!!!!! I want to try and manage it now to keep it from getting worse.

Thanks

Nicole

Edited by: MYLADY4 at: 8/14/2009 (20:40)
Make it a great day.

Nicole


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