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KHUDSON631 SparkPoints: (42)
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7/24/12 8:33 P

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Thank you so much - I will keep you updated!!!

1STATEOFDENIAL's Photo 1STATEOFDENIAL SparkPoints: (126,220)
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7/24/12 5:50 P

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Anything is possible because every person is so different. As long as you're improving that's the most important thing. Every person's GP is caused by a slightly different reason and each person's body reacts differently to treatments and accepts different foods. When you find what works, stick with it! What works for some of us will not work for you and vice versa. That's why I always recommend for people to slowly build up their diets through the slow process - that way you'll learn what your body wants.

The nutritionists I've worked with weren't much help for me. The GP diet information they hand out was created by one of them who has GP and they are under the impression that it works for everyone. I've since had to explain to them that what works for her doesn't work for everyone, especially me (my causes of GP are more rare). Yet I also know how critical it is for us to figure out what our bodies will accept then get the nutritionists involved to ensure that we're getting proper nutrition.

Keep us informed of your progress! Best wishes!

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
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KHUDSON631 SparkPoints: (42)
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7/24/12 8:06 A

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Hello! Thanks so much for the message and guidance! I've actually heard it the other way around from different doctors .... celiac possibly causing the gastroparesis. I've never had it before in my life until this past May when my stomach just stopped. I do feel better with a gluten free diet at this point. I am working with an excellent nutritionist who was worked with gastroparesis many times. I am only eating this restricted diet for another few weeks to let my stomach heal before I start adding in more foods. I am eating a nutrient-dense diet with some fruits, applesauce, quinoa, sweet potato, and blended vegetable soups with coconut milk. I feel much better than I used to. I am positive I have a gluten problem for two reasons. 1 - I did genetic testing with the nutritionist through Enterolabs and I have both the gluten sensitivity gene and the Celiac gene. 2- I have struggled with bloat, constipation, GI pain, depression, pain, fatigue, blood sugar issues, and other related issues for years. I was stuck at the same weight for years, no matter how far I ran. All the weight and bloat and symptoms disappeared with the gluten free diet. I have lost 20lbs and I haven't even begun to exercise yet. I am following a medication regimen from my GI doctor and a nutrition regimn from my nutritionist that complement each other well. We will see where this leads! I will look through your forums for extra help!

1STATEOFDENIAL's Photo 1STATEOFDENIAL SparkPoints: (126,220)
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7/23/12 9:37 P

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Welcome Kate!

I'm wondering if you're getting better being GF or not. It is possible to have the appearance of celiac because of damage done from untreated GP. I mention it as one of my endoscopies showed the appearance of past damage that's usually related to celiac, but I eat LOTS of wheat and yet it was healing. If the GF diet is helping I'm sure it will definitely be noticeable and helpful! The most important part of the GP diet is going low fat and low fiber, which is why you had problems with the orange. Since you're also taking out gluten, dairy, and soy, I'm not sure what's left. That's something to talk to your nutritionist about. Fat and fiber are the 2 most difficult to digest macronutrients, while protein is easier and simple carbs can actually be absorbed through the mouth. Your sparkpage isn't clear if you're here to lose weight as well, or just to learn to live with your conditions, so I won't recommend the use of simple carbs to continue your caloric intake.

If you haven't done so, I have other threads on our team that will help you to learn what foods your body will allow. It means starting with a minimal diet and slowly adding foods every 2-3 days. That way when you have a negative reaction you'll know the newest food you've eaten is the definite cause. Once you figure out a base of foods you'll always know what you can go back to if you have a flare.

One good thing to hold on to is that just because you have these conditions doesn't prevent you from exercising - as long as they are kept in control. Thus, once you get your nutrition figured out about what your body will accept you'll be able to slowly build back up to running. In fact, I read a story awhile ago about a woman who is a bodybuilder while she's on alternate nutrition (I don't remember if it's a G/J tube or TPN). As long as you get proper nutrition you can do anything!

If you have any questions, please let us know. Some of us have been living with this condition for years and can direct you towards answers.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
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My sparkfriends are my greatest support and I'm grateful for it.
KHUDSON631 SparkPoints: (42)
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7/22/12 5:11 P

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Hello! My name is Kate and I am new to Sparkpeople and the Gastroparesis team. I am a 24 year old social worker. I was diagnosed with gastroparesis after a gastric emptying test in May 2012. My GI doctor and nutritionist believe that my new diagnosis of Celiac Disease contributed to the onset of my gastroparesis. I am taking Domperidone and Nexium to combat the symptoms, along with Zofran as needed. I am eating an easily digestible gluten free dairy free soy free diet. I had a bad flare last weekend when I tried to eat orange roughy. Not a great idea. When I have a flare, I go back to liquids and easier foods. I haven't run since May and I love distance running. Looking to get back into jogging in August. Any suggestions or ideas for managing this condition?

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