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9/11/17 11:42 P

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Welcome Jacqumay and Grace96

I haven't been here for awhile, but wanted to belatedly welcome you to our little corner of the world. Our team is quiet, but we like to visit as we are feeling up to it. You both sound like lovely people who are trying your best as we all are. It does get discouraging and frustrating, but we need each other to pray and encourage, don't we? Please join us on our chat thread as much as you can so we can continue to visit.

Jenni

Co-leader Christians with Fibromyalgia
Co-leader Chair Exercise Team


"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31

"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


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GRACE96's Photo GRACE96 Posts: 1
7/23/17 2:48 P

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Hi, new to this group, have had fibromyalgia and chronic fatigue many years.
I also love the Lord and want to honor him in my body as you all do, that's what brought us to this group.
Hoping we can lift each other up in prayer and have a better quality of life.
I admit my prayer life is an area of great struggle at times.
I'm embarrassed that I've allowed myself to be something I'm not proud of.
I feel I've let God, myself and family down.
One minute at a time, we'll be changed from glory to glory.
May the Joy of the Lord truly be our strength and comfort as He gives us the power to change whatever we need to so we can enjoy our journey.


Edited by: GRACE96 at: 7/23/2017 (14:49)
JACQUMAY's Photo JACQUMAY Posts: 45
7/13/17 3:34 P

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Hi, New to Spark. I have had fibromyalgia for 5 years now. Hashimotos for 35 years. I was thin in my younger years because I didn't eat. I knew if I even looked at a cookie I would gain weight. So, being very active and not eating much kept the weight off. But, when fibromyalgia hit it took me down. Its very hard to exercise when you are in pain , nauseated, and are chronically fatigued. Also, the drugs increase appetite and increase fatigue.
I like swimming so that helps but only a few days a week. I have a stationary bike I can go 5 minutes before my knee swells up. I have gained 120lbs in 5 years. I love the Lord. He has carried me so far. Can you really lose weight and be seditary with zero metabolism. The doctor to my husband and I that I could starve myself and still not loose weight because of the hashimotos. But, I'm here to prove him wrong. I want this weight off. Thank you and God Bless you all.

JENNIW70's Photo JENNIW70 SparkPoints: (73,146)
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6/7/17 12:11 A

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Welcome GamingGrandma,

I'm glad you found us. It sounds like you have had a rough journey to get to a diagnosis, but I LOVE your attitude. Please post in our chat thread as often as you can.

Blessings!

Co-leader Christians with Fibromyalgia
Co-leader Chair Exercise Team


"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31

"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


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GAMINGGRANDMA's Photo GAMINGGRANDMA SparkPoints: (1,483)
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6/6/17 5:13 P

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I have been struggling with fibro all my life but was only dx about 8 years ago. I was called a suck a lot as a kid so I learned to deal with pain silently. When I complained to the doc about sore hands and finding it hard to put the pins in the diapers (cloth diapers in the days of the dinosaurs). He x-rayed them but it came back nothing so again I learned not to complain. Finally, he tried the pressure test on me...only I didn't know why he was poking me so hard in all these different places. He didn't bother with all 18 pressure points because he could already tell it qualified big time. He was very understanding and compassionate and has prescribed meds to deal with the pain and suggested exercise. I have (for the most part) gone gluten free and that has helped immensely. God is so good to me in giving me the strength to deal with this as well as the understanding that all is for my benefit. Even if that benefit can't be seen today. My relationship with Him has strengthened and that is enough benefit for me.

Rejoice in the LORD always, again I say Rejoice. Let your gentleness be evident to all. Philippians 4:5,6


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5/30/17 5:58 P

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Hi Julie! emoticon

We can certainly understand what you are describing. I commend your attitude....that determination to persevere, but at the same time, we all know how sustaining that attitude with all the pain and misery you've already gone through is very difficult sometimes. That's why we are here, to encourage and pray for each other.

I'm proud of you for going ahead and getting baptized even though you struggled with being up in front of people. Something to be said for facing those fears and moving out of your comfort zone (said the woman who loves her comfort zone haha). Please join us in our chat thread so we can continue to get to know you and we can support each other.

Blessings, Jenni

Co-leader Christians with Fibromyalgia
Co-leader Chair Exercise Team


"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31

"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


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JRBMOMMY3's Photo JRBMOMMY3 SparkPoints: (13,970)
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5/25/17 8:38 A

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Hello. My name is Julie. I have had fibromyalgia since I was 14 years old but the doctors thought I might have sugar diabetes or be really stressed out. I have been through so much, and struggled with pain for so long. I raised three kids, and for the past few years could barely get out of bed to go to work. Now, I can hardly walk and it is so hard to make sense of all this. Since, the doctor finally diagnosed me with fibromyalgia, I have been going for aquatic therapy, and trying to eat all the food for fibromyalgia. I was baptized at my church this past mothers' day, as I have been going to church for many years but never had the courage to stand up in front of others. I am relieved to meet people that I can talk too, and get advice from because I am do not accept negativity, and I am not going to stop fighting until I can have nonstop normal days. Thank you so much for reading my introduction, and I wish you all many pleasantries.

Sincerely,

Julie

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4/25/17 7:05 P

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Welcome to all the rest of you, too, like thruthesport, Amy, Laura, Andrea, mommymonster, Jenna and Susan. All of the rest of you, too. I can't remember everyone who introduced yourself here. Please join us in the chat thread and let us know what's going on with you. It is a great place to fellowship and ask questions. emoticon

Edited by: HUMORPAM at: 4/25/2017 (19:11)
My God Shall Supply All My Needs!

A winner doesn't always finish first.
Sometimes a winner just finishes!


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4/25/17 7:00 P

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Hi Bekah. Welcome to our wonderful team! So glad to have you. I am so sorry to hear about your horrible pain. Fibro can be intense in one area of your body, but quite often it is throughout the whole body. If you haven't seen a pain specialist yet, they sometimes can tell you if it is fibro from the trigger points. As Jenni said, please use our team resources and see if they help you at all. And please go to the team page and click on the link for the chat thread and keep us posted on how and what you are doing. Again, welcome to our team. emoticon

My God Shall Supply All My Needs!

A winner doesn't always finish first.
Sometimes a winner just finishes!


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4/11/17 10:45 P

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Hi Bekah! And welcome! It sounds very much like you could be having the fibro pain; it tends to be very intense even with pain relievers. Also, I wouldn't be surprised that it is in only one area of your body. Unfortunately, I actually don't have fibro. Probably the only person on this team who doesn't. I have the sister illness chronic fatigue syndrome. But I know many of the people on this team struggle a lot with intense pain in certain areas and it can move around. Food for thought. See if you can find any help in any of our threads for fibro. Praying for relief and release from your pain!



Co-leader Christians with Fibromyalgia
Co-leader Chair Exercise Team


"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31

"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


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SEXYBEANS's Photo SEXYBEANS Posts: 1,963
4/7/17 3:05 A

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Hi! My name is Bekah. I was diagnosed with Fibromyalgia in 2009. However, I am wondering if that was just because they didn't know why I was having pain. It seems like Fibromyalgia occurs all over the body, whereas mine is localized to my left hip and left side of my lower back. I joined last night because I am getting desperate with the pain. I have almost been in tears for 3 days because I am in sooo much pain!!! I have had 23 physical therapy sessions since January. Tuesday was especially bad. I have been in a tremendous amount of pain since Tuesday. The doctor discharged me from PT on Tuesday because I only have 7 sessions left for the entire year. He wants to save those until I really need it. Last night was really bad. I took 750 mg of naproxen and it didn't even touch my pain. I then used a heating pad, which calmed my pain a little bit. I was finally able to sleep, but then the dog woke me up at 2:30 wanting to go outside. I generally average about 7k steps during the work week. I'm a little nervous about this weekend because I will be working for 10 hours at my parents yogurt shop Saturday and Sunday. But, I am going to take my muscle relaxers and pain pills with me to get through. When we are not busy I will be able to sit down.

Bekah

Haggai 1:5

"Now this is what the Lord Almighty says: Give careful thought to your ways"


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THRUTHESTORM's Photo THRUTHESTORM Posts: 182
4/3/17 9:12 A

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Thank you Jenni. I appreciate that!

I am loved by Jesus, and so are you. "Stop holding on and just be held." - Casting Crowns
https://youtu.be/tIZitK6_IMQ


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4/3/17 12:37 A

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emoticon !

Feel free to ask questions of us, whether about fibro or Sparkpeople. Hopefully, between those of us hanging around, we can come up with an answer. haha Also, feel free to look at our team threads. You'll find lots of info and tips on fibro here.

We all pop in when we are feeling up to it.

Blessings, Jenni

Co-leader Christians with Fibromyalgia
Co-leader Chair Exercise Team


"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31

"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


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THRUTHESTORM's Photo THRUTHESTORM Posts: 182
3/31/17 11:51 A

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Hello. New the team here. Fibro diagnosis about 2 years ago. Dealing with it much longer than that tho, of course. I've restarted SP yesterday and I'm trying to get it in gear. When I weigh less, I feel better. I just need to get with and stay with the program.

I am loved by Jesus, and so are you. "Stop holding on and just be held." - Casting Crowns
https://youtu.be/tIZitK6_IMQ


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7/11/16 12:47 A

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Welcome Susan! Boy, is that ever the truth! "Obedience is hard." I am not familiar with Sweet's Syndrome, but I know the other conditions you have certainly do present a challenge. I know of others here who also experienced what you described that losing weight did not ease their fibro symptoms and in fact, made them worse. (I don't have fibro myself). But, we still know that healthy living is for the best. I pray you can find some relief from your pain and challenges. Please feel free to join in our chat thread at the top of our page.

Co-leader Christians with Fibromyalgia
Co-leader Chair Exercise Team


"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31

"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


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SUSANPETUNIA's Photo SUSANPETUNIA Posts: 320
7/8/16 1:52 P

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Hi! I was diagnosed about 10 years ago. I also have Sweet's Syndrome and arthritis as well as lymphodema. I recently lost 100 pounds from gastric sleeve surgery. Was always told if I lost weight I'd feel better. Nope. I am actually in more pain. BUT, I'm still happy to be smaller. I have one more year I have to work or three more to get full retirement. My short-term goal is to make it one more year, then we'll see.

I believe God has healing for me, but I have not been obedient with my eating or exercising and I think that's key in all things. Obedience. It's hard.

I wish you all a pain-free day!!!

"So oftentimes it happens that we live our lives in chains, and we never even know we held the key." Eagles, Already Gone


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6/8/16 12:35 A

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Welcome Laura! I'm also trying to eat more whole, healthy foods and less processed, less sugar, etc. It's challenging, but I'm hoping it will give me more energy. So tired of the constant exhaustion of my CFS. I hope you find relief from your pain. Please feel free to chat, ask questions, ask for prayer, share praises, etc.

Co-leader Christians with Fibromyalgia
Co-leader Chair Exercise Team


"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31

"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


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HISTORYBUFFLS Posts: 1
6/5/16 9:28 P

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I am new to the team! As I approach 50 I recognize I need to get some of my health issues (joint pain, high blood pressure, migraines, kidney stones) under control. Hoping eating fresh and healthy will alleviate some pain and take off weight in the process. May God bless us all in our journey to better health. --Laura

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6/5/16 12:36 A

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Welcome to Amy, Andrea and MommaMonster! I'm sorry I've been negligent about checking on this thread. I hope you all find a comfortable and safe place here, to chat, ask questions, ask for prayer etc. You will find some of our threads our information all about fibro. You might find it especially helpful if you are new to the diagnosis. If any of you have any questions, feel free to ask, or you can pm me on my page.

Blessings!

Co-leader Christians with Fibromyalgia
Co-leader Chair Exercise Team


"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31

"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


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MOMMAMONSTER's Photo MOMMAMONSTER Posts: 440
5/5/16 5:28 P

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Hello all. I'm new to the "team", so I hope I'm doing this right! :) I have four amazing kid (oldest son will be 21 next month, younger son 18, oldest daughter is 15, younger is 13), we will celebrate 23 years marriage in August. I am fairly new to fibromyalgia itself. Was officially diagnosed in December of last year. Have had aches and pains as long as I can remember...my mom used to tell me I had "more aches and pains than Granny Grunt" (and I have no idea what that means! LOL). I am not working outside of the home right now, my family is my full time job, and that includes helping manage my kids medical appointments, school, food, etc! I had joined SparkPeople years ago, but life just got in the way and I never got back to it. however, since I've been on my new meds, I've gained weight, so figured I'd take this opportunity to try and get back into it. Nice to meet you!

Faith is being sure of what we hope for and certain of what we can't see. -Hebrews 11:1
NANALYNN24's Photo NANALYNN24 SparkPoints: (6,878)
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4/26/16 10:23 A

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I had to learn a long time ago to set priorities because of having very limited energy. Housework is no longer a top priority for me. As the adage says..those who mind don't matter and those who matter don't mind.

Jesus said...with God all things are possible


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NANALYNN24's Photo NANALYNN24 SparkPoints: (6,878)
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4/26/16 10:20 A

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Hi I'm Andrea. I've had fibro for 18 yrs.

Jesus said...with God all things are possible


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SWEETPEA1399's Photo SWEETPEA1399 SparkPoints: (56,279)
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2/20/16 9:02 P

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My name is Amy and I am married with 3 beautiful children and I am new to this team. I want to learn as much as I can about Fibro and maybe be of assistance to others that struggle with it as well.

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JENNA3's Photo JENNA3 SparkPoints: (73,948)
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12/1/15 9:41 A

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Happy December, everyone! I am new to this team today. I am 43 and a mother of two boys who are 9 and 11. I still work full time right now, though it takes a lot out of me. I live in North Carolina and it's been cold and wet this week so far, though we had some lovely Thanksgiving weather. I hope you are all doing well-as much as we all can.

I tend to have more fatigue than pain, but when the pain comes up it really hits. Cold definitely makes things worse--particularly the brain fog. When I'm cold it's like all I can do is focus on how I feel and have a very hard time focusing on work.

I'm looking forward to getting to know everyone here.

-Jenna
Surgery date: 9/25/2015
Team Beachbody Coach
http://www.teambeachbody.com/jcpmoore


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11/24/15 12:00 A

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Thank you Joanne! I really, really appreciate others stepping up to help. It appears I am the only "official" leader here anymore these days. But I like to think of us all in that way. Hands out and giving a hand up to those who need it.

LibertyJoy, it's great to see you here!

Jane, bless your heart! I appreciate the prayers. I feel like I'm really stuck somewhere back in September. I have no idea where October and November even went, because I've been in a mean push/crash cycle for several months. I actually don't have fibro, but just the chronic fatigue syndrome that also plagues you apparently. And yes, cold weather really does a number on me, and I'm already not starting out the season very strong. But a thought has occured to me lately -- that I spend an awful lot of time and energy feeling guilty that I can't do more (and even frustration/anger). I never feel like I do enough for my husband, home, elderly parents, friends, and even for all of you here and my other spark team. It's like the Lord has brought to my attention that I need to work on this costly energy-sucker.

Jane, I pray for you. You are one of the older saints that I so respect and appreciate in the Body. You can be such an encouragement and lifter up in prayer for others. I hope you realize what a treasure you are!

Co-leader Christians with Fibromyalgia
Co-leader Chair Exercise Team


"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31

"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


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GRAMMAP1's Photo GRAMMAP1 Posts: 16,692
11/13/15 4:24 P

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I was going to ask if Fibro gets worse in the colder weather, but I just reread Jenni's comment and it does for her. I am hurting more, but I thought maybe it was from sitting at the computer too much. I also have the chronic fatigue and really don't want to do much. I do get out to the Care Center to see Hubby almost every day. But God still gets me to where I need to go, but my housekeeping suffers. I am praying for you other girls since you have more years to live in this phase. I am 80 and look forward to being with the Lord where there will be no more tears or pain! emoticon gentle ones of course.

Not that we are competent in ourselves to claim anything of ourselves, but our competence comes from God. JanefromWooster,Ohio


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CAZJOY1's Photo CAZJOY1 Posts: 1,995
11/5/15 11:30 P

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Thanks Joanne :-) glad you are doing better currently

Lib

Life is beautiful
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Taking one day at a time


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AJISUUN's Photo AJISUUN SparkPoints: (45,823)
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11/5/15 11:10 P

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Welcome! It is hard for us to keep up sometimes. I'm doing better right now and I know Jennifer is struggling so I am trying to jump in and respond to people.

Joanne

Whether you eat or drink, do all to the glory of God.

Ndanka, ndanka terewut nga egga fi nga jem. (Wolof proverb)
Slowly slowly doesn't prevent you from arriving at your destination.

Chronic Fatigue Syndrome won't stop me.


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CAZJOY1's Photo CAZJOY1 Posts: 1,995
11/5/15 9:14 P

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hi, I just joined this team recently ... love the Christian emphasis when it comes to our journey with fibro.

Reading the discussion in recent posts: I've been part of other fibro teams before (including leading one before getting caught up falling offline emoticon ). I think maybe the nature of fibro; and often the accompanying depression and other issues ... means that often with teams it can help to have co-leaders so that where one might be away and caught in struggles or bad health; you have someone else to cover ... of course even then you can get times when both (or more) leaders are out at the same time and then you have to hope the team continues to thrive and encourage each other.

Lib

Life is beautiful
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_____
Taking one day at a time


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10/25/15 11:01 P

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I agree Jane. Fibro Sisters was started by one of our former team members, but she has since left Sparkpeople I believe. Unfortunately, there are many teams on Spark, that start and then fizzle. It's especially hard when you have physical challenges to keep going on teams, right? So, the team is here whenever any of us need it. I try to get here as much as I can energy-wise. The past month, I've just been in survival mode. I tend to get worse physically as the fall and winter come.

I appreciate everyone sticking it out here and trying to make our team as active as it can be with all of our health challenges.

God bless you all!

Co-leader Christians with Fibromyalgia
Co-leader Chair Exercise Team


"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31

"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


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GRAMMAP1's Photo GRAMMAP1 Posts: 16,692
10/17/15 10:47 P

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Why do people drop Teams and START DIFFERENT ONES/ that is why there are too many on here. How many are dead?

Not that we are competent in ourselves to claim anything of ourselves, but our competence comes from God. JanefromWooster,Ohio


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8/26/15 12:23 A

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Welcome Jae and Maggy! I'm glad you joined us. Yes, unfortunately, our team is pretty quiet too. I wish it wasn't. I seem to be the lone team leader these days, and I can only pop in as able energy-wise, but I hope to see you both joining in our chats and conversations. The more people who are involve the more the team will stay active! So happy you both are here with us!

Co-leader Christians with Fibromyalgia
Co-leader Chair Exercise Team


"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31

"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


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8/9/15 9:35 A

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This team isn't active either, but maybe we can change that!

Joanne

Whether you eat or drink, do all to the glory of God.

Ndanka, ndanka terewut nga egga fi nga jem. (Wolof proverb)
Slowly slowly doesn't prevent you from arriving at your destination.

Chronic Fatigue Syndrome won't stop me.


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8/9/15 8:23 A

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Hello teammembers!

I am a teammember of Fibro Sisters, but as that group has gone quite inactive I joined this group as you seem to be a nice group too.
I am a 20 year old girl from Austria suffering from Fibromyalgia since 7th grade (at least it was diagnosed at that time).

I look forward to exchange ideas, thoughts etc.

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8/6/15 2:28 P

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Welcome, Jae! Our journey definitely looks different from some, doesn't it? But we can succeed too!

Joanne

Whether you eat or drink, do all to the glory of God.

Ndanka, ndanka terewut nga egga fi nga jem. (Wolof proverb)
Slowly slowly doesn't prevent you from arriving at your destination.

Chronic Fatigue Syndrome won't stop me.


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SIMPLY_JAE's Photo SIMPLY_JAE Posts: 4,915
8/6/15 2:00 P

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Hi,I am Jae..I have fibro and CFS..Makes it difficult to exercise somedays. Look forward to being a part of the team

The pain passes..only the beauty remains.


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6/26/15 12:11 A

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Your exercise ideas are encouraging to me, Joanne. Thanks for sharing. I never thought of buying one of those cycle things. I may have to consider it.

Co-leader Christians with Fibromyalgia
Co-leader Chair Exercise Team


"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31

"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


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6/18/15 9:40 A

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I do mostly chair exercise. I bought a cycle machine that I just put in front of the couch. It makes it more like a recumbent bike. On good days I wrap a resistant band around the frame of the cycle and do some arm work along with the pedaling. I can only do about 10 minutes with the arm work. The pedaling I can do for 15 minutes even on not good days. On good days I can do 30 minutes with the first 10 minutes including arm work.

I also use the 10 minute warm up section of one of Leslie Sanborn's walking videos. It's hard for me so I only do that on really good days. I can't do any of the full speed stuff.

Joanne

Whether you eat or drink, do all to the glory of God.

Ndanka, ndanka terewut nga egga fi nga jem. (Wolof proverb)
Slowly slowly doesn't prevent you from arriving at your destination.

Chronic Fatigue Syndrome won't stop me.


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6/18/15 12:18 A

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Joanne, it's so nice to meet you! I'm so glad you found us here. I can't even imagine trying to live the missionary life while dealing with CFS! I think it's really exciting that you were able to lose just shy of 40 pounds so far! emoticon

I am curious what kind of exercises you are finding you can do. That is something I really struggle with. It seems no matter what I try, with my CFS, I crash. I am currently trying some chair exercise and very light swimming. I've tried swimming before but have ended up crashing because I try to do too much.

God bless you in your ministry. Would love to hear more about that, if you can share.

Co-leader Christians with Fibromyalgia
Co-leader Chair Exercise Team


"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31

"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


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6/17/15 10:49 A

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Hi, everyone. My name is Joanne. I was diagnosed with Chronic Fatigue Syndrome 9 years ago. I am a missionary in The Gambia, West Africa. It takes a lot to manage CFS when you are a missionary. I have always been overweight, but now I face a challenge to lose weight when I don't have the strength to do much in the way of exercise. The good news is...I have lost 39 pounds in 4 !/2 months. Even better news is that I have found a few ways to exercise that don't put me in bed for days.

Joanne

Whether you eat or drink, do all to the glory of God.

Ndanka, ndanka terewut nga egga fi nga jem. (Wolof proverb)
Slowly slowly doesn't prevent you from arriving at your destination.

Chronic Fatigue Syndrome won't stop me.


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5/28/15 11:30 P

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I am unable to work outside the home as well, Stephanie (although raising two kids is a lot of work!)
I haven't been able to have children because of Chronic Fatigue Syndrome (not enough energy). It's a struggle to keep going some days.

Glad we have the Lord and each other here to lean on.

Co-leader Christians with Fibromyalgia
Co-leader Chair Exercise Team


"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31

"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


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5/27/15 7:32 P

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Hi all. I am new here and look forward to getting to know everyone. My name is Stephanie. I am 47, happily married to a very supportive husband and have an 8 year old daughter and a 6 year old son. I got diagnosed finally in February of 2014 with Fibromyalgia although my symptoms started over 6 years ago, just took that long to get a diagnosis. I have carpal tunnel as well as trigeminal neuralgia and migraines. I am a stay at home mom so am blessed to not have to work outside the home. May god bless you all who have to work on top of dealing with this chronic pain. We have been through all the fibro meds and tried different combos but so far nothing has worked, or it starts to work and then just seems to stop after a couple of months. I am right now back on Gabapentin and trying it combined with Flexeril and take 800mg Ibuprofen when needed. So far my doctor hasn't given me anything strong for the pain. well enough of me now. I look forward to getting to know everyone. God bless emoticon

Psalm 139:23-24English Standard Version (ESV)

23 Search me, O God, and know my heart!
Try me and know my thoughts!
24 And see if there be any grievous way in me,
and lead me in the way everlasting!


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1/2/15 5:59 P

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Hello and thank you for the add to the team. I am a returning Sparker and haven't use the site in a few years. I have fibro, copd, osteoarthritis and most of all, I am a child of God! I am looking forward to being healthy and getting to know those of you in the team! I am a mother of four grown children and have 6 grandchildren. I work part time, have a few hobbies and live in northeast ohio.

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12/31/14 5:15 P

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HI, my name is Angela. I live in Northern Utah. I have been living with Fibromyalgia/Arthritis for the past 7 years. I am fortunate to not have to work outside the home but I do homeschool my 15 year old twin boys who have Autism and developmental delays, also my oldest boy who is turning 24 tomorrow has autism and mild CP (Cerebral Palsy) but he lives independently now in another state with a room mate.

It can be rough but my Father is always with me. Praise the Lord.

Angela

I love the Lord, King of all Kings who without, I would not be able to get through the day.


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7/22/14 7:14 P

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Hi, my name is Brooke. I am new here and feeling overwhelmed. I have looked at SparkPeople on and off, tracked a little, etc..., but never felt like I could change really. There was too much wrong with me; until I just discovered the boards. I was diagnosed with Hashimoto's Thyroiditis and have had immune issues for quite some time being first diagnosed with severe food allergies 20 years ago. Pain has been constant for so long and so many Drs. said it was this or that; always different diagnosis' for different parts of my body. Of course, they couldn't heal what they thought it was through numerous medications, etc.... I had a severe flare up a few months ago and was diagnosed with Fibro. I lost my job and my husband and I moved out of our house into a travel trailer, not only to save money but it is more manageable for me. We love it. However, now I need to look for a job and I am worried as I cannot get a fulltime position and I don't know how these harder days are going to effect my chances. My goal is to utilize SparkPeople for the first time through consistent tracking, learning, exercise and these boards. I am enjoying the hope in this board. We are "fearfully and wonderfully made" by our Father and Fibro or any other sickness does not change that fact. I need to keep that in mind. I am glad He led me to this board. It is inspiring reading what you all have written.

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COCOA99's Photo COCOA99 Posts: 466
7/19/14 2:10 P

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HI - I am new to the team. I've had fibro for about 15yrs. I also have some gut issues, and recovering from a leg injury on top of all of that for the past 2.5 years. I ended up with RSD with that injury, and nerve damage.

With the fibro - I have learned to manage it over a lot of trial and error, and a lot of money over the years.

I have a core group of people around me to help me manage and stay ahead of it as much as possible. Hope to get to know everyone here!

That is about it!
Deb

BE YOURSELF! BE YOU! You can do it!

Debbie
(Washington State)


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JOIZZZ's Photo JOIZZZ Posts: 458
2/25/14 9:13 P

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Hi I'm Jo. I have fibro and RSD. I also have asthma, arthritis and migraines. I suffer through doctors who don't understand any of where I am. I get more support from my Recovery group
than I do from doctors which is a real shame.

Real generosity toward the future consists in giving all to what is present.


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2/1/14 6:49 P

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Welcome, Jae!!! Come join us in the 2014 chat. I am so glad that you have joined us. I look forward to getting to know you.

Vicky

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2/1/14 4:14 P

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hi everyone, I am jae. I have both fibromyalgia and CFS..I forget sometimes hard these diseases can hit until they do. It is time for me to realize now my life has changed. So thankful to find this team. Look forward to getting to know and supporting everyone as we travel this path we find ourselves on.

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12/31/13 6:06 A

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Welcome Amanda!!!

My name is Vicky. I am 53 and I have five adult children. I work part time as a peer advocate at a place called The Neighborhood Center Adult Recovery Services. I live in upstate New York.

Vicky

Edited by: BARBIE567 at: 12/31/2013 (06:07)
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AOBERRY81's Photo AOBERRY81 Posts: 10
12/30/13 11:38 A

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Hello everyone! I am Amanda! I live in south Ga and am a children's pastor. I have always been overweight. Now though, it is horrible. I hurt EVERY day due to fibromyalgia! I am only 32 I should not feel this way. I have a very strong faith when it comes to others yet doubt my situations A LOT! I am here for support, acceptance, and prayer. Both to give and receive. Hope you get to know some of you soon!
Be Blessed!
Amanda emoticon

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12/30/13 11:34 A

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To Monica-Your testimony really inspired me! You go Sister! I fully believe God can take what satan sends for our bad and use it for our good!

Edited by: AOBERRY81 at: 12/30/2013 (11:34)
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11/8/13 10:00 P

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My name is Monica and I live in East, TN. I really just wanted to share my testimony in the hopes that it would encourage anyone who needs encouragement. I was diagnosed with Fibromyalgia and Chronic Fatigue Syndrome in the spring of 2007. I believe I have experienced every phase and circumstance of FM and CF at this point. I was bed-ridden for almost two years, unable to care for my family and home, or even leave my home. I know the isolation this diagnosis can cause. The good news... for the last year and a half, I have made major improvements and positive life changes. I have lost 70 lbs. with 60 more to go and am off all meds but one muscle relaxer I take at night to help with the pain so I can sleep. I have focused on healthy whole foods and natural supplements, as well as vitamins. Although I still have not achieved a level of health that would allow me to go back to work, I am now able most days to function to varying degrees at home. For two years, a successful day for me meant getting my shower by 5 o'clock in the evening then going back to bed. There is hope for even the most severe so do not despair and NEVER GIVE UP!
As a christian, one of the hardest battles for me have been during those periods of long, agonizing flares of pain and isolation. I was diagnosed two years before my husband was diagnosed with cancer and somehow I was able to care for him during his illness. After he passed away, I was left with two sons who needed their mom even more, but who had a mother who was barely able to function on any day. I lost every friend I had and most of family just couldn't understand the severity of my conditions. There were so many times when I would get mad at God because day after agonizing day and night after long night, I would lie there and beg, plead, grovel, pray, pray, pray for answers and for healing to what seemed like no avail. At the same time I began to pray for and search for wisdom concerning my illnesses. I researched and read everything I could find so in retrospect, God was using that time for my good...and hopefully for the good of others in the future. I know in my heart that there are so many others out there who are in desperate and seemingly desolate situations, but THERE IS HOPE...because THERE IS A GOD that we serve. I have not always understood in those dark times, but I have found that in the end...God is ALWAYS faithful. Jeremiah 29:11 says...For I know the thoughts that I think toward you, saith the Lord, thoughts of peace, and not of evil, to give you an expected end. To give you an expected end = HOPE! His desire is to give us hope. So hope in HIM, even as Abraham ( The father of faith) did...Hope against Hope.



Isaiah 61:3
To appoint unto them that mourn in Zion, to give unto them beauty for ashes, the oil of joy for mourning, the garment of praise for the spirit of heaviness; that they might be called trees of righteousness, the planting of the Lord, that he might be glorified.

Jeremiah 29:11
New International Version (NIV)
11 For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.




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11/7/13 6:08 A

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Welcome Jo!


Vicky

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11/6/13 8:33 P

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Hello my name is Jo.

I am on permanent disability. I have recently had a change in my life losing much of what kept me busy. So I decided to come back to spark people and at least keep track of how I'm doing.
I also go to a group called Celebrate Recovery it is helping me deal with my addiction to food, sugar and caffeine. With the Grace of GOD I know all this too shall pass. emoticon



Real generosity toward the future consists in giving all to what is present.


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9/25/13 6:11 A

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emoticon

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9/24/13 9:28 P

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Hello my name is Connie and I live in Louisiana. I received my diagnosis about three years ago. I also have two bulging discs in the lower part of my back and in my thorastic area and I also am a diabetic. I took a big step to improve my health and had gastric by pass Aug. 8th 2013. Since my surgery I have been taken off of three of the four insulin shots I took daily and eight of the eleven pills I use to take. My pain level has improved so much and just today the nurse at the doctor’s office commented on how better I am walking. I have lost forty four pounds and several inches. Before my surgery I went to a pain management clinic at least three or four times a year for epidurals of steroids in my back for the pain. I use to take Gabapantin 300 mg. three times a day for my Fibromyalgia and loads of pain pills. I’m thankful that the Lord gave me the strength to go through my gastric by pass and is still guiding me each day to a much healthier pain free life. I know there will be days where I will feel the pain but with the Lord’s help I can and will make it through.
My favorite scripture is found in Isaiah 40:10 I like the first line of the scripture “Fear thou not for I am thy God”. With Him by our side we have no fears.


Connie
RNY Date: 8/8/2013
Pre Surgery Weight: 255
My Goal Weight: 150

"Life is like a 10-speed bicycle. Most of us have gears we never use." ~ Charles Schultz ~

"Nothing is impossible. The word itself says "I"m possible!" ~Audrey Hepburn ~


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9/19/13 6:57 A

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emoticon

Thanks ladies for introducing yourselves. My name is Vicky. I am 52 and have struggled with weight loss for almost as long as I can remember. I have five kids, ages: 29,27,25,23,20, No grand babies yet. I have been married for 30 years. I have two dogs and a cat. I work at a place called The Neighborhood Center: Adult Recovery Services. It is a place for those with mental illness can go to socialize and take classes to help them in their Recovery. I have severe depression myself and am a member there. It has really helped me a lot and now I work there part time.

Vicky

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9/18/13 2:29 P

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I am back! i havent been here in a year or two been struggling and i just try to lose the weight and stay faithful here then fall away. i have gained alot on gabapentin and have fibro and connective tissue disease, depression and degenerative disc disease. I can no longer work and am babysitting again at home. i have a 23, 17 and 15 yr old and been married 26 yr this oct 10 i have am up to 329 lbs and not happy!! can hardly move due to fibro and now the weight and am in pain. so hoping to get help and get this weight off!!!! thanks!


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8/14/13 12:17 A

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I'm new here and new to fibro. Got diagnosed 7/25/13( the day before my 20 birthday ) been dealing with the symptoms for almost a year and a half before they figured it out. Having trouble adjusting. I was getting married this oct but have had to put it off due to my health ( he has been great. He takes care of me from day to day)
Need help figuring out how to deal.

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7/10/13 7:01 A

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Debbie,

It is nice to meet you! I have had fibro for years and years but it took years before it was diagnosed.

You will find understanding, encouragement, and much support here.

When you get time come by the Daily Chat thread.

Vicky

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7/10/13 12:32 A

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emoticon Hi Debbie,

It was a few years before my neurologist found out I have fibro. Actually he found it quickly when I was referred to him for another problem.

You will find a lot of support and great people who care about you and each other.

Welcome to our wonderful group Feel free to send me a message if you need to chat. And use the sites associated with your problems. Great ideas, suggestions, etc.. emoticon
Kim

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7/9/13 1:09 P

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Hello there. My name is Debbie. I have been struggling with this crud for the last 3 years or so. Getting a final diagnosis seems to be the final hurdle for me. i have seen several specialist, from nuero, to ortho, to rheumatology to immunology. I have an autoimmune condition, psoriasis and so i was focused on psoriatic arthritis. I still have doubts about whether or not that is going to enter the picture. The struggle began about 6 years ago with a car accident and me striking both knees on the dash board. after many many struggles with that, i have nueropathy to both legs related to that. It required a physologist to finally try medication for nerve damage to stop a horrible life altering burning pain in my legs. So after that, i had generalized pain in my body. extreme fatigue and poor sleep. But i kept getting pain in various and specific areas. My nuerologist felt very strongly that i had FM, but i disagreed. not openly, but inwardly. I was referred to Rheumatology due to my psoriasis, so i have many studies and many things. But recently, i began to have this pain in my arms. it is focused on my elbows, above and below them. i have these very specific spots. My regular doctor, holy crud, put his little bony fingers on them and it hurt so bad i burst into tears in the exam room. This was mortifying to say the least. he referred me to ortho, as he felt i had Tennis elbow. classic symptoms. I see ortho, he thinks i have SeroNegative Rheumatoid arthritis. I have cried and cried. The merry go round never ends. To just get a diagnosis, to get a treatment plan, one especially that includes more than just take these pills is my fondest dream. I want more than anything to do something to get better. So my rheumatologist has increased my Lyrica, i take cymbalta as well. i am out of any pain medication. I am exhausted all the time. I can't sleep. I struggle with everything. I am here, in the hopes that i will find others who will see me as a human being, not as a problem, not as a whiner. not as lazy. who will hear the words fibromyalgia and not think it is a made up diagnosis or condition or whatever. That is a great place to start. If nothing else comes from this, that is enough for a life time. Debbie

KAREN1951's Photo KAREN1951 Posts: 2,364
7/7/13 12:15 P

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Hi Kim....welcome we are so happy to have you with us. The team has been pretty quiet the last few days but keep checking back - some check the treads and pray for the team but don't always stop long enough to chat. Lots of issues going on. One thing you may want to do is go to the threads exspecially the ones that tell you about the different things that seem to go hand in had with fibro and cfs...look under fibro facts for that and go back to the beginning of the thread and you find the whole list that people with fibro and doctors have come up with. Welcome again, can't wait to get to know you. Hugs, Karen

Karen

Here is our daughters web page if you know of a birth mother that is wanting to adopt her baby out please refer them to these web links www.iheartadoption.org/users/thomas1 www.facebook.com/jimandamyhopingtoad
opt
revjet3@netzero.com Toll-Free Adoption Phone Number: 1-877-257-6127

Watch your thoughts; they become words.
Watch your words; they become actions.
Watch your actions; they become habits.
Watch your habits; they


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7/7/13 8:22 A

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Hi Kim,

I am so glad to see you here. Stop in on our daily chats. I look forward to getting to know you better.

Vicky

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7/7/13 12:34 A

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My name is Kim and I am grateful to be beginning this process with other Christians. I was diagnosed with Fibro. 2 years ago. Looking forward to learning a lot from each other as we deal with this disease. Thank you all for your support.

BARBIE567's Photo BARBIE567 SparkPoints: (62,440)
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6/19/13 5:08 P

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Hi Christine,

It is so good to meet you. Thank you for sharing about yourself. I will check out your artwork when I get a minute.

You sound like a busy lady. I am sorry you had to give up a job that you loved.

Congrats on being married for 31 years. I have been married for 30 years. I have five children and no grand babies yet.

I like to be with people and I have just started a part time job that works with people with mental illness. So far it is fun because I get paid to visit and play games with the clients. I know there is more to the job that I don't know about yet though. Because of vacations and being short handed they haven't been able to teach me the paperwork part of the job yet. I can really relate to the clients because I have been a client myself. I am trying for a full time job there as well which is more of the same but more responsibility. It will probably be difficult but we desperately need the income and I may be losing my health insurance so the full time job would be helpful in that regard.

Vicky

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CHRISTINE_107's Photo CHRISTINE_107 SparkPoints: (110)
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6/19/13 4:48 P

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Well, that link just went to my FB in general. Add me if you like. Otherwise, there's a link to the art: https://www.facebook.com/christine.n
ic
holsart/media_set?set=a.102963063173R>510.3025.100003794495898&type=3


I'm sorry that didn't work either. IF you go to my profile and then click PHOTOS, then ALBUMS, and then click on FOR HIS GLORY you will find the art.

Edited by: CHRISTINE_107 at: 6/19/2013 (16:50)
Because Your love is better than life itself, my lips will glorify You! Psalm 63:3


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