Author: Sorting Last Post on Top ↓ Message:
COCOA99's Photo COCOA99 Posts: 332
7/19/14 2:10 P

My SparkPage
Send Private Message
Reply
HI - I am new to the team. I've had fibro for about 15yrs. I also have some gut issues, and recovering from a leg injury on top of all of that for the past 2.5 years. I ended up with RSD with that injury, and nerve damage.

With the fibro - I have learned to manage it over a lot of trial and error, and a lot of money over the years.

I have a core group of people around me to help me manage and stay ahead of it as much as possible. Hope to get to know everyone here!

That is about it!
Deb

BE YOURSELF! BE YOU! You can do it!

Debbie


 July Minutes: 180
 
0
100
200
300
400
JOIZZZ's Photo JOIZZZ Posts: 458
2/25/14 9:13 P

My SparkPage
Send Private Message
Reply
Hi I'm Jo. I have fibro and RSD. I also have asthma, arthritis and migraines. I suffer through doctors who don't understand any of where I am. I get more support from my Recovery group
than I do from doctors which is a real shame.

Real generosity toward the future consists in giving all to what is present.


 Pounds lost: 14.0 
 
0
12.5
25
37.5
50
BARBIE567's Photo BARBIE567 SparkPoints: (61,785)
Fitness Minutes: (13,312)
Posts: 10,553
2/1/14 6:49 P

My SparkPage
Send Private Message
Reply
Welcome, Jae!!! Come join us in the 2014 chat. I am so glad that you have joined us. I look forward to getting to know you.

Vicky

Beginning weight: 351


 current weight: 330.0 
 
351
300.75
250.5
200.25
150
JAE_HENNINGTON1 Posts: 1,032
2/1/14 4:14 P

Send Private Message
Reply
hi everyone, I am jae. I have both fibromyalgia and CFS..I forget sometimes hard these diseases can hit until they do. It is time for me to realize now my life has changed. So thankful to find this team. Look forward to getting to know and supporting everyone as we travel this path we find ourselves on.

BARBIE567's Photo BARBIE567 SparkPoints: (61,785)
Fitness Minutes: (13,312)
Posts: 10,553
12/31/13 6:06 A

My SparkPage
Send Private Message
Reply
Welcome Amanda!!!

My name is Vicky. I am 53 and I have five adult children. I work part time as a peer advocate at a place called The Neighborhood Center Adult Recovery Services. I live in upstate New York.

Vicky

Edited by: BARBIE567 at: 12/31/2013 (06:07)
Beginning weight: 351


 current weight: 330.0 
 
351
300.75
250.5
200.25
150
AOBERRY81's Photo AOBERRY81 Posts: 10
12/30/13 11:38 A

Send Private Message
Reply
Hello everyone! I am Amanda! I live in south Ga and am a children's pastor. I have always been overweight. Now though, it is horrible. I hurt EVERY day due to fibromyalgia! I am only 32 I should not feel this way. I have a very strong faith when it comes to others yet doubt my situations A LOT! I am here for support, acceptance, and prayer. Both to give and receive. Hope you get to know some of you soon!
Be Blessed!
Amanda emoticon

 Pounds lost: 3.0 
 
0
23.75
47.5
71.25
95
AOBERRY81's Photo AOBERRY81 Posts: 10
12/30/13 11:34 A

Send Private Message
Reply
To Monica-Your testimony really inspired me! You go Sister! I fully believe God can take what satan sends for our bad and use it for our good!

Edited by: AOBERRY81 at: 12/30/2013 (11:34)
 Pounds lost: 3.0 
 
0
23.75
47.5
71.25
95
MONICASHAFFER40's Photo MONICASHAFFER40 SparkPoints: (6,309)
Fitness Minutes: (2,383)
Posts: 121
11/8/13 10:00 P

My SparkPage
Send Private Message
Reply
My name is Monica and I live in East, TN. I really just wanted to share my testimony in the hopes that it would encourage anyone who needs encouragement. I was diagnosed with Fibromyalgia and Chronic Fatigue Syndrome in the spring of 2007. I believe I have experienced every phase and circumstance of FM and CF at this point. I was bed-ridden for almost two years, unable to care for my family and home, or even leave my home. I know the isolation this diagnosis can cause. The good news... for the last year and a half, I have made major improvements and positive life changes. I have lost 70 lbs. with 60 more to go and am off all meds but one muscle relaxer I take at night to help with the pain so I can sleep. I have focused on healthy whole foods and natural supplements, as well as vitamins. Although I still have not achieved a level of health that would allow me to go back to work, I am now able most days to function to varying degrees at home. For two years, a successful day for me meant getting my shower by 5 o'clock in the evening then going back to bed. There is hope for even the most severe so do not despair and NEVER GIVE UP!
As a christian, one of the hardest battles for me have been during those periods of long, agonizing flares of pain and isolation. I was diagnosed two years before my husband was diagnosed with cancer and somehow I was able to care for him during his illness. After he passed away, I was left with two sons who needed their mom even more, but who had a mother who was barely able to function on any day. I lost every friend I had and most of family just couldn't understand the severity of my conditions. There were so many times when I would get mad at God because day after agonizing day and night after long night, I would lie there and beg, plead, grovel, pray, pray, pray for answers and for healing to what seemed like no avail. At the same time I began to pray for and search for wisdom concerning my illnesses. I researched and read everything I could find so in retrospect, God was using that time for my good...and hopefully for the good of others in the future. I know in my heart that there are so many others out there who are in desperate and seemingly desolate situations, but THERE IS HOPE...because THERE IS A GOD that we serve. I have not always understood in those dark times, but I have found that in the end...God is ALWAYS faithful. Jeremiah 29:11 says...For I know the thoughts that I think toward you, saith the Lord, thoughts of peace, and not of evil, to give you an expected end. To give you an expected end = HOPE! His desire is to give us hope. So hope in HIM, even as Abraham ( The father of faith) did...Hope against Hope.



Isaiah 61:3
To appoint unto them that mourn in Zion, to give unto them beauty for ashes, the oil of joy for mourning, the garment of praise for the spirit of heaviness; that they might be called trees of righteousness, the planting of the Lord, that he might be glorified.

Jeremiah 29:11
New International Version (NIV)
11 For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.




 July Minutes: 0
 
0
35
70
105
140
BARBIE567's Photo BARBIE567 SparkPoints: (61,785)
Fitness Minutes: (13,312)
Posts: 10,553
11/7/13 6:08 A

My SparkPage
Send Private Message
Reply
Welcome Jo!


Vicky

Beginning weight: 351


 current weight: 330.0 
 
351
300.75
250.5
200.25
150
JOIZZZ's Photo JOIZZZ Posts: 458
11/6/13 8:33 P

My SparkPage
Send Private Message
Reply
Hello my name is Jo.

I am on permanent disability. I have recently had a change in my life losing much of what kept me busy. So I decided to come back to spark people and at least keep track of how I'm doing.
I also go to a group called Celebrate Recovery it is helping me deal with my addiction to food, sugar and caffeine. With the Grace of GOD I know all this too shall pass. emoticon



Real generosity toward the future consists in giving all to what is present.


 Pounds lost: 14.0 
 
0
12.5
25
37.5
50
BARBIE567's Photo BARBIE567 SparkPoints: (61,785)
Fitness Minutes: (13,312)
Posts: 10,553
9/25/13 6:11 A

My SparkPage
Send Private Message
Reply
emoticon

Beginning weight: 351


 current weight: 330.0 
 
351
300.75
250.5
200.25
150
CSYOUNG1952's Photo CSYOUNG1952 SparkPoints: (25,401)
Fitness Minutes: (13,995)
Posts: 429
9/24/13 9:28 P

My SparkPage
Send Private Message
Reply
Hello my name is Connie and I live in Louisiana. I received my diagnosis about three years ago. I also have two bulging discs in the lower part of my back and in my thorastic area and I also am a diabetic. I took a big step to improve my health and had gastric by pass Aug. 8th 2013. Since my surgery I have been taken off of three of the four insulin shots I took daily and eight of the eleven pills I use to take. My pain level has improved so much and just today the nurse at the doctor’s office commented on how better I am walking. I have lost forty four pounds and several inches. Before my surgery I went to a pain management clinic at least three or four times a year for epidurals of steroids in my back for the pain. I use to take Gabapantin 300 mg. three times a day for my Fibromyalgia and loads of pain pills. I’m thankful that the Lord gave me the strength to go through my gastric by pass and is still guiding me each day to a much healthier pain free life. I know there will be days where I will feel the pain but with the Lord’s help I can and will make it through.
My favorite scripture is found in Isaiah 40:10 I like the first line of the scripture “Fear thou not for I am thy God”. With Him by our side we have no fears.


Connie
RNY Date: 8/8/2013
Pre Surgery Weight: 255
My Goal Weight: 150

"Life is like a 10-speed bicycle. Most of us have gears we never use." ~ Charles Schultz ~

"Nothing is impossible. The word itself says "I"m possible!" ~Audrey Hepburn ~


 current weight: 144.0 
 
255
227.25
199.5
171.75
144
BARBIE567's Photo BARBIE567 SparkPoints: (61,785)
Fitness Minutes: (13,312)
Posts: 10,553
9/19/13 6:57 A

My SparkPage
Send Private Message
Reply
emoticon

Thanks ladies for introducing yourselves. My name is Vicky. I am 52 and have struggled with weight loss for almost as long as I can remember. I have five kids, ages: 29,27,25,23,20, No grand babies yet. I have been married for 30 years. I have two dogs and a cat. I work at a place called The Neighborhood Center: Adult Recovery Services. It is a place for those with mental illness can go to socialize and take classes to help them in their Recovery. I have severe depression myself and am a member there. It has really helped me a lot and now I work there part time.

Vicky

Beginning weight: 351


 current weight: 330.0 
 
351
300.75
250.5
200.25
150
PJWOLFE's Photo PJWOLFE Posts: 126
9/18/13 2:29 P

My SparkPage
Send Private Message
Reply
I am back! i havent been here in a year or two been struggling and i just try to lose the weight and stay faithful here then fall away. i have gained alot on gabapentin and have fibro and connective tissue disease, depression and degenerative disc disease. I can no longer work and am babysitting again at home. i have a 23, 17 and 15 yr old and been married 26 yr this oct 10 i have am up to 329 lbs and not happy!! can hardly move due to fibro and now the weight and am in pain. so hoping to get help and get this weight off!!!! thanks!


 current weight: 329.0 
 
329
296.75
264.5
232.25
200
BEA_SERVICEDOG SparkPoints: (264)
Fitness Minutes: (255)
Posts: 5
8/14/13 12:17 A

My SparkPage
Send Private Message
Reply
I'm new here and new to fibro. Got diagnosed 7/25/13( the day before my 20 birthday ) been dealing with the symptoms for almost a year and a half before they figured it out. Having trouble adjusting. I was getting married this oct but have had to put it off due to my health ( he has been great. He takes care of me from day to day)
Need help figuring out how to deal.

BARBIE567's Photo BARBIE567 SparkPoints: (61,785)
Fitness Minutes: (13,312)
Posts: 10,553
7/10/13 7:01 A

My SparkPage
Send Private Message
Reply
Debbie,

It is nice to meet you! I have had fibro for years and years but it took years before it was diagnosed.

You will find understanding, encouragement, and much support here.

When you get time come by the Daily Chat thread.

Vicky

Beginning weight: 351


 current weight: 330.0 
 
351
300.75
250.5
200.25
150
KIMBERLYL532 SparkPoints: (75)
Fitness Minutes: (35)
Posts: 16
7/10/13 12:32 A

Send Private Message
Reply
emoticon Hi Debbie,

It was a few years before my neurologist found out I have fibro. Actually he found it quickly when I was referred to him for another problem.

You will find a lot of support and great people who care about you and each other.

Welcome to our wonderful group Feel free to send me a message if you need to chat. And use the sites associated with your problems. Great ideas, suggestions, etc.. emoticon
Kim

DEBBIERNDDHC's Photo DEBBIERNDDHC Posts: 461
7/9/13 1:09 P

My SparkPage
Send Private Message
Reply
Hello there. My name is Debbie. I have been struggling with this crud for the last 3 years or so. Getting a final diagnosis seems to be the final hurdle for me. i have seen several specialist, from nuero, to ortho, to rheumatology to immunology. I have an autoimmune condition, psoriasis and so i was focused on psoriatic arthritis. I still have doubts about whether or not that is going to enter the picture. The struggle began about 6 years ago with a car accident and me striking both knees on the dash board. after many many struggles with that, i have nueropathy to both legs related to that. It required a physologist to finally try medication for nerve damage to stop a horrible life altering burning pain in my legs. So after that, i had generalized pain in my body. extreme fatigue and poor sleep. But i kept getting pain in various and specific areas. My nuerologist felt very strongly that i had FM, but i disagreed. not openly, but inwardly. I was referred to Rheumatology due to my psoriasis, so i have many studies and many things. But recently, i began to have this pain in my arms. it is focused on my elbows, above and below them. i have these very specific spots. My regular doctor, holy crud, put his little bony fingers on them and it hurt so bad i burst into tears in the exam room. This was mortifying to say the least. he referred me to ortho, as he felt i had Tennis elbow. classic symptoms. I see ortho, he thinks i have SeroNegative Rheumatoid arthritis. I have cried and cried. The merry go round never ends. To just get a diagnosis, to get a treatment plan, one especially that includes more than just take these pills is my fondest dream. I want more than anything to do something to get better. So my rheumatologist has increased my Lyrica, i take cymbalta as well. i am out of any pain medication. I am exhausted all the time. I can't sleep. I struggle with everything. I am here, in the hopes that i will find others who will see me as a human being, not as a problem, not as a whiner. not as lazy. who will hear the words fibromyalgia and not think it is a made up diagnosis or condition or whatever. That is a great place to start. If nothing else comes from this, that is enough for a life time. Debbie

KAREN1951's Photo KAREN1951 Posts: 2,363
7/7/13 12:15 P

My SparkPage
Send Private Message
Reply
Hi Kim....welcome we are so happy to have you with us. The team has been pretty quiet the last few days but keep checking back - some check the treads and pray for the team but don't always stop long enough to chat. Lots of issues going on. One thing you may want to do is go to the threads exspecially the ones that tell you about the different things that seem to go hand in had with fibro and cfs...look under fibro facts for that and go back to the beginning of the thread and you find the whole list that people with fibro and doctors have come up with. Welcome again, can't wait to get to know you. Hugs, Karen

Karen

Here is our daughters web page if you know of a birth mother that is wanting to adopt her baby out please refer them to these web links www.iheartadoption.org/users/thomas1 www.facebook.com/jimandamyhopingtoad
opt
revjet3@netzero.com Toll-Free Adoption Phone Number: 1-877-257-6127

Watch your thoughts; they become words.
Watch your words; they become actions.
Watch your actions; they become habits.
Watch your habits; they


 current weight: 219.0 
 
228
209.75
191.5
173.25
155
BARBIE567's Photo BARBIE567 SparkPoints: (61,785)
Fitness Minutes: (13,312)
Posts: 10,553
7/7/13 8:22 A

My SparkPage
Send Private Message
Reply
Hi Kim,

I am so glad to see you here. Stop in on our daily chats. I look forward to getting to know you better.

Vicky

Beginning weight: 351


 current weight: 330.0 
 
351
300.75
250.5
200.25
150
KIMBERLYL532 SparkPoints: (75)
Fitness Minutes: (35)
Posts: 16
7/7/13 12:34 A

Send Private Message
Reply
My name is Kim and I am grateful to be beginning this process with other Christians. I was diagnosed with Fibro. 2 years ago. Looking forward to learning a lot from each other as we deal with this disease. Thank you all for your support.

BARBIE567's Photo BARBIE567 SparkPoints: (61,785)
Fitness Minutes: (13,312)
Posts: 10,553
6/19/13 5:08 P

My SparkPage
Send Private Message
Reply
Hi Christine,

It is so good to meet you. Thank you for sharing about yourself. I will check out your artwork when I get a minute.

You sound like a busy lady. I am sorry you had to give up a job that you loved.

Congrats on being married for 31 years. I have been married for 30 years. I have five children and no grand babies yet.

I like to be with people and I have just started a part time job that works with people with mental illness. So far it is fun because I get paid to visit and play games with the clients. I know there is more to the job that I don't know about yet though. Because of vacations and being short handed they haven't been able to teach me the paperwork part of the job yet. I can really relate to the clients because I have been a client myself. I am trying for a full time job there as well which is more of the same but more responsibility. It will probably be difficult but we desperately need the income and I may be losing my health insurance so the full time job would be helpful in that regard.

Vicky

Beginning weight: 351


 current weight: 330.0 
 
351
300.75
250.5
200.25
150
CHRISTINE_107's Photo CHRISTINE_107 SparkPoints: (110)
Fitness Minutes: (0)
Posts: 4
6/19/13 4:48 P

My SparkPage
Send Private Message
Reply
Well, that link just went to my FB in general. Add me if you like. Otherwise, there's a link to the art: https://www.facebook.com/christine.n
ic
holsart/media_set?set=a.102963063173R>510.3025.100003794495898&type=3


I'm sorry that didn't work either. IF you go to my profile and then click PHOTOS, then ALBUMS, and then click on FOR HIS GLORY you will find the art.

Edited by: CHRISTINE_107 at: 6/19/2013 (16:50)
Because Your love is better than life itself, my lips will glorify You! Psalm 63:3


 Pounds lost: 13.0 
 
0
33.75
67.5
101.25
135
CHRISTINE_107's Photo CHRISTINE_107 SparkPoints: (110)
Fitness Minutes: (0)
Posts: 4
6/19/13 4:38 P

My SparkPage
Send Private Message
Reply
Hi, I'm Christine from Minnesota. I'm a Christian artist, blogger, and a gardener. I do acrylic abstract paintings, digital art, and photography; and I write an art and a psalm blog. I haven't started a gardening blog yet, but it's an idea. emoticon It sounds like a lot, but I don't do any of them as much as I would like to. I am happy and grateful, though, to have creative avenues to express the Lord's unfailing love! By God's grace and blessings, I've been married to my husband, Tim, for 31 years. We have three sons and six grandchildren.

I'm a gardener of the flowering variety. My husband grows veggies. For Mother's Day, my family gave me a new front garden. The old one was overcome with grass and weeds, due to my pain level of not being to keep it up for the last three years. I have low back pain and FM, so it seems that if one isn't hurting, the other one is, but I'm learning to deal with both.This summer my guys will be installing a brick pathway in the front garden and paint the gazebo. I can't wait!

Recently I went to the Mayo Clinic for low back pain. The specialists found plenty wrong with my back but not a specific reason for the intense pain I have when standing and walking. Mayo did officially diagnose me with Fibromyalgia, though. I was originally diagnosed 15 yrs ago with FM but the specialists that I saw in the Twin Cities had differing opinions on whether I had Fibro or not. Mayo settled that debate, at least. I scored high on both the physical and cognitive tests. I finally understand why it's difficult some days to express a thought or connect two thoughts together. Isn't Fibro fog fun! lol I also learned that my sleep probs may be related to sleep apnea. More tests are recommended, but we'll have to pay off those Mayo bills first.

I used to work at an elementary school as a K-3 Paraprofessional (teacher's assistant) but I had to give it up due to extreme fatigue. That job was difficult to give up. I loved working with the teachers and the kids. I've been at home since 2000 and I still miss that job. The Lord called me to paint for Him in 2009 and has been given me a number of painting by the guidance of the Holy Spirit. I don't have a specific website but I do share my art on Facebook. I'll add a link in case anyone is interested.

I look forward to getting to know others in the group. Blessings!

https://www.facebook.com/christine.n
ic
holsart


Edited by: CHRISTINE_107 at: 6/19/2013 (16:40)
Because Your love is better than life itself, my lips will glorify You! Psalm 63:3


 Pounds lost: 13.0 
 
0
33.75
67.5
101.25
135
BARBIE567's Photo BARBIE567 SparkPoints: (61,785)
Fitness Minutes: (13,312)
Posts: 10,553
6/19/13 7:43 A

My SparkPage
Send Private Message
Reply
emoticon Cynthia and Colleen!!!

I am so glad that you have joined our family. I look forward to getting to know you both. Be sure to stop in at the Fibro Chat forum. I think you will find this team to be very supportive and helpful.

Vicky emoticon

Beginning weight: 351


 current weight: 330.0 
 
351
300.75
250.5
200.25
150
COLHUR451's Photo COLHUR451 Posts: 74
6/18/13 1:44 P

My SparkPage
Send Private Message
Reply
Hi my name is Colleen I really don't know how to post. I am 58 years old widow with fibromyalsia for the last 20 years arthritis cardiac issues. I love God with my whole heart and I know focusing on Him is the answer. I hope to meet you all.

 current weight: 238.5 
 
290
255
220
185
150
JENNIW70's Photo JENNIW70 SparkPoints: (44,046)
Fitness Minutes: (16,229)
Posts: 5,272
6/17/13 1:38 A

My SparkPage
Send Private Message
Reply
Hi Cynthia,

Welcome to our team! No one here will accuse you of being a drama queen for saying fibro has stolen your life. We all understand that feeling! I hope you can join us in our dailly fibro chat thread so we can get to know you better.

And feel free to poke around our other threads here too, especially the fibro facts forum and the tips and helps section.

God bless you!

Jenni

Co-leader, Christians with Fibromyalgia

"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31



"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


 Pounds lost: 1.0 
 
0
3
6
9
12
HLTHAPPINESS4C's Photo HLTHAPPINESS4C Posts: 21,178
6/15/13 12:27 P

My SparkPage
Send Private Message
Reply
Hi everyone! I'm Cynthia, SC gal originally from MI. Been down here 15 years and love it. I've had a strange decade. In 2002 , when I was 24 I was diagnosed with Fibro and was put on an antinflamatory. It helped, but I also struggled with really bad back pain. I went to a great chiropractor for over a year and she really straightened me out (no pun intended..lol). Anyway the fibro went into remission, but reared it's nasty ugly head 3 years ago. I don't know what triggered it for sure. But I was on a new medicine for bipolar and within hours I had horrible joint and muscle pain in knees, hands, elbows. I was hospitalized to be taken off of it. The Dr. thought the med to be the culprit of the pain, but after weeks now years of being off of it...I still have it and I also have arthritis in my lower back that has recently required an epidural.

The fibro sometimes I feel like it has ruined my life. I don't mean to sound like a drama queen; it';s just that sometime the pain is so fierce and long lasting that I am debilitated from what I want to do. I can not seem to find that happy balance of not doing too much yet not doing to little. I had lost 30 lbs exercising 6 days a week and eating right. Now I;ve put all of it back on. I;ve been too afraid to exercise, because if I overdo the pain goes crazy. I've allowed it to take over. I did do physical therapy last year and it was somewhat helpful. I also have done some massage therapy and while it works it's too expensive for me to do very often.

I am a Lover of the Lord Jesus. He has been my rock...that is when I let him. Right now I am doing the Beth Moore study of Breaking Free. I am so excited to see what God has in store.

I am grateful to have found this team and look forward to getting to know y'all and making new friends.
emoticon Cynthia

Cynthia~~~ A follower of Jesus Christ!!

Proverbs 3;5-6
Trust in the Lord with all your heart and lean not on your own understanding; acknowledge him, and He will make your paths straight.
~~~~~~~~~~~~~~
Co-Leader of Dealing with Anxiety Team!

Co-Leader of L.I.F.T Ladies in Fellowship together


 July Minutes: 306
 
0
213.75
427.5
641.25
855
LIVELYLYNN's Photo LIVELYLYNN Posts: 3,995
5/18/13 5:21 P

My SparkPage
Send Private Message
Reply
Hi Carolyn. Welcome to Sparks. Yes this site can help you lose the weight and get in shape.

I am in Mesa right now visiting and helping out with my mom so guess I can also say welcome neighbor. emoticon

Lynn -Maryland

Everyone Deserves A Lifetime...


 Pounds lost: 3.4 
 
0
25
50
75
100
OWLYGIRL1016's Photo OWLYGIRL1016 SparkPoints: (101)
Fitness Minutes: (110)
Posts: 4
5/18/13 4:54 P

My SparkPage
Send Private Message
Reply
Hi, my name is Carolyn. I live in Phoenix, Arizona, but lived in South Carolina for 8 years before that. I am originally from Indiana. I met my husband in SC and we have been married now for 8 years. We don't have any children, but have a dog and three cats. I have had fibromyalgia for 27 years. Most of the time I was able to deal with it, but in 2005 a year after I got married, I had a major flare and had to quit working full-time. I finally found a doctor who got me on a good regimen of medicine. Though I had gained weight on Lyrica. Then they switched me to Neurontin and we moved to Phoenix (mostly because of family out here but also for my health). I was able to be more active and even got a job as a photographer and I lost weight. Then last year, I somehow tore the cartilage that connects my ribs to my sternum. It was very painful and the only thing I could do was to be mostly inactive. Since then I have gained some weight back. I am now able to be a little more active and really want to work to lose weight, but it's difficult because I am still somewhat restricted! Hopefully on SparkPeople I can really focus on that.

Blessings, Carolyn

Draw near to God and He will draw near to you.

Jeremiah 29:11 "For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future."


 current weight: 180.0 
 
180
170.5
161
151.5
142
LIVELYLYNN's Photo LIVELYLYNN Posts: 3,995
5/15/13 7:26 P

My SparkPage
Send Private Message
Reply
Welcome Kara and Karen.

Karen I have fibro fog quite a bit. The less sleep and more stress the more foggy I get.

Lynn -Maryland

Everyone Deserves A Lifetime...


 Pounds lost: 3.4 
 
0
25
50
75
100
LOVETOLAUGH56's Photo LOVETOLAUGH56 SparkPoints: (49,684)
Fitness Minutes: (55,110)
Posts: 1,393
5/15/13 12:34 P

My SparkPage
Send Private Message
Reply
Hi my name is Karen. I think I was a member of this group before, but I some how lost you. Fibro Fog!! Any one else have that?
I've had fibromyalgia most of my life, but it put my out of the job force about 24 years ago. I am 57 years old, married, have two children ages 18 and 20, three cats and we live in north west Florida.
I've been a Christian all my adult life and my faith grows and grows.

I look forward to getting to know you and making this journey together.

Karen, Florida, USA, Central time
*Co-leader of Feeling Fit Friends team.
Phil 4:13 "I can do everything through Him who gives me strength"
Quotes I like:
"Energy and persistence conquer all things"
- Benjamin Franklin
"Shut out all of your past except that which will help you weather your tomorrows"
-William Osler


ALL4ME13's Photo ALL4ME13 SparkPoints: (503)
Fitness Minutes: (600)
Posts: 14
4/22/13 11:55 P

Send Private Message
Reply
Hi everyone. My name is Kara. I am new to Spark and Fibro. I am 45, single and very active in my home church. I am from Arvada, CO and I am a full time nanny. I am looking forward to being a part of this group and thank you for allowing me to join.

Because of Grace,
Kara


 Pounds lost: 5.0 
 
0
25
50
75
100
VALENCHIA1's Photo VALENCHIA1 SparkPoints: (802)
Fitness Minutes: (213)
Posts: 33
4/10/13 7:58 P

My SparkPage
Send Private Message
Reply
Hello and welcome, Crystal! I, too, just joined and am so glad to have found this team! Life is hard enough with Fibromyalgia, but to have to run around with little ones, too? I couldn't imagine it! Do you have a secret to keeping up with your children while maintaining your sanity and keeping your pain level at a minimum?

"I can do all things through Christ who strengthens me." Philippians 4:13


 current weight: 179.0 
 
183
173.5
164
154.5
145
CRYSTAROSE24's Photo CRYSTAROSE24 Posts: 106
4/5/13 1:38 A

My SparkPage
Send Private Message
Reply
Hi! I'm new to the team. My name is Crystal. I'm 30 years old with three boys ages 3 and under. Our eldest is adopted and is 3, then we have a 2 yo and a 4 mo. My husband and I are Christians and I suffer fatigue and severe pain and other issues due to FM. Medications cause severe mood problems and I've tried Tai Chi, pain meds, exercise, etc. I haven't found ANYTHING that helps though :( I am on a weight loss/healthy life journey and I'm pretty excited about it.

 current weight: 186.0 
 
250
225
200
175
150
LINDAF49's Photo LINDAF49 SparkPoints: (58,251)
Fitness Minutes: (10,696)
Posts: 5,359
4/3/13 11:13 P

My SparkPage
Send Private Message
Reply
Very gentle welcome hugs Lynn. New diagnosis is quite an adjustment and a big step of acceptance...Begin a journal of what works to ease your pain levels and what helps your energy levels and study...study...study.... Start with good multi-vitamin and build up from there with other supplements that help you. Drink LOTS of water to wash the garbage out of your body and ease the pain caused by stuff in muscles and connective tissues, get good rest in soft warm comfort ---I use heated mattress pad and pillows of different sizes so joints not resting on each other. Diet...what are you working with???seems to help if you go lower sugar and Good quality proteins... Lots of love and support waiting for you here...several of us have fought the battle quite a while ..Mine since Jan 2000.

Jump in on the chat thread and let us know how to help, encourage and come along side you in caring and praying.

Linda F in WA state
*John 10:10b Jesus came to give me life,
an abundant life!


 current weight: 216.0 
 
218
213.25
208.5
203.75
199
LIVELYLYNN's Photo LIVELYLYNN Posts: 3,995
4/1/13 10:21 A

My SparkPage
Send Private Message
Reply
My name is Lynn I was diagnosed with FM a few weeks ago. my husband was the first to think i had it. He knew of someone a few years ago with the same pains. Since I have had 3 doctors say yes to it. One (my foot doctor) even laughed when I brought it out as a question and closed my file saying I didn't need him anymore. The sever pains were all FM.

I have been a Christian for about 20 years but the one church we were at brought me down I now consider myself starting over with God. I became a doubting Thomas.

I have 2 girls and one granddaughter who is 3. My youngest (the mommy) just got engaged and I am desperate to lose 90 pounds before the wedding next August. So far this pain isn't letting me lose, but I am trying to trust in God and know that with his help I can do this. He is the one that led me to you :)

Lynn -Maryland

Everyone Deserves A Lifetime...


 Pounds lost: 3.4 
 
0
25
50
75
100
LINDAF49's Photo LINDAF49 SparkPoints: (58,251)
Fitness Minutes: (10,696)
Posts: 5,359
3/16/13 1:55 P

My SparkPage
Send Private Message
Reply
Welcome Michelle, Sorry for the pain and fatigue of fibro but thankful you came to join us - Hoping we can encourage and make some practical day to day helps but mostly make you realize you are NOT alone. Hope you have time to read some of the articles and side trails of different threads - Let us know how to be of help. Praying for strength and joy in your three sons and marriage to begin with ...then, hoping you will find dome special area to center on for improvement first and let us know how to come along side you. God bless.

Linda F in WA state
*John 10:10b Jesus came to give me life,
an abundant life!


 current weight: 216.0 
 
218
213.25
208.5
203.75
199
MICHELLEMATT98's Photo MICHELLEMATT98 Posts: 1,423
3/15/13 10:37 P

My SparkPage
Send Private Message
Reply
Hi my name is Michelle I was diagnosed with Fibro in Sept. I had the symptoms for about 2yrs now. I fell and sprang my ankle about 4 years ago which lead me on a nightmare path with planter factitious and Achilles tendentious. Which eventually turned into a stress fracture. I was in a walking boot for almost 9 months. I went to 3 doctors until I was totally devastated than God lead me to a great doctor that actually listened to me. I came with a list of everything that I had been through. He listened and took action and got me to the places I need to be to get my foot better. While under his care my ankle gave out and feel and took my shoulder out. During this time I started to feel very tired and my hair was falling out. I asked my doctor to run a thyroid test and it came back negative. At that time they put me on celaxa for anxiety. It worked great for that but the tiredness never went away. Blood test should my testosterone was below one so we changed my birth control still didn't help so I'm on testosterone cream that help a little but not for the fatigue. Than we put our house up for sale and didn't sell and brought a foreclosed house and had 2 house payments. The stress kept building and the fatigue got worse and than came the muscle aches. The more I research fibro I think I have had symptoms for a very long time. For years I had about with extremely itch rashes that would appear all over my body for no reason. When I was 20 I got so sick I could not eat. It would go away and come back every couple month. I was very sick and was diagnosed with IBS-C . I just hope I can figure this out soon and get my life back to normal. I have been reading many things most of it just makes me depressed. Thanks for Listening Michelle

 current weight: 168.0 
 
168
158.25
148.5
138.75
129
LINDAF49's Photo LINDAF49 SparkPoints: (58,251)
Fitness Minutes: (10,696)
Posts: 5,359
3/7/13 4:08 P

My SparkPage
Send Private Message
Reply
Hi Sarah and welcome to our team ...I am still relatively new to the team but old to the diagnosis in 2000...
Similar stories in being a former nurse, car accident may have been the final blow in series of life events...the trail of MD's out behind us.... The best advice i got was from the GYN who was treating my cervical cancer..."I don't diagnose it, i don't treat it in my specialty but if you have it --face it...study it every day...find your path of treatment and follow it to the letter for three months...fine tune and decide if helps or hinder and do the process again until you find a way to have positive life in the body God gave you." So every three months i do still sit down and say OK what is working, what is not....I went through support groups and away from them and find this group precious in loving on me, hearing me cries and suggesting things to help... I pray i am also an encouragement to them.
I give lots of hugs and spend serious time praying for each one I have on my list and have just entered your first notes on my list. I will pray, i will love, i will care and share what ever you want to know of my path and life... God bless your time here - Weight loss has moved back to the top of my list and have sought help with physical therapy that will begin soon so I can get more mobile.

Linda F in WA state
*John 10:10b Jesus came to give me life,
an abundant life!


 current weight: 216.0 
 
218
213.25
208.5
203.75
199
SUNCRAVER's Photo SUNCRAVER Posts: 119
3/6/13 10:42 P

My SparkPage
Send Private Message
Reply
Hello, My name is Sarah and was diagnosis with fibro about 2 years ago after a year in half of testing. I was in a car accident in 2010 and I believe that is what brought it out fully. I had been in an abusive marriage and had an unkind childhood, other factors I believe contributed.
I was freed with the grace of God from the abusive marriage and am blessed with an amazing husband.
Fibro and it's great friends, chronic fatigue, chronic myalgia pain, IBS, anxiety and depression has taken my normal life. I had to leave my career as a nurse and I am filing disability ~ which I hate.
I am currently going to a naturalist trying to find some relief for all my symptoms. I have been told basically by numerous MDs to just live with it. Easy for them to say. I have been to some many MDs...nuero, rhem, pain specialist, 3 different PCP...no luck with any help.
I have recently found out I have a damaged liver due to my weight and the fibro meds I was taking.
It is critical I lose this weight.
I need support and prayers to help with this journey.

 current weight: 192.8 
 
237
212.75
188.5
164.25
140
JENNIW70's Photo JENNIW70 SparkPoints: (44,046)
Fitness Minutes: (16,229)
Posts: 5,272
2/6/13 12:59 A

My SparkPage
Send Private Message
Reply
Welcome to all the new members here to our little corner of SP! haha

emoticon

Feel free to join us on our daily chat thread. We'd love to get to know you all better and vice-versa! www.sparkpeople.com/myspark/team_mes
sa
geboard_thread.asp?board=0x2514x5191R>8277


Also, we have a new challenge up: www.sparkpeople.com/myspark/team_mes
sa
geboard_thread.asp?board=24656x2514xR>51909177
Karen, you may be interested in this especially after I read your post here.

Co-leader, Christians with Fibromyalgia

"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31



"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


 Pounds lost: 1.0 
 
0
3
6
9
12
EAGLES_WINGS's Photo EAGLES_WINGS Posts: 1,860
2/3/13 7:26 P

Send Private Message
Reply
I was diagnosed with fibromyalgia when I was 36. I had fatigue, aches and tiredness. It wasn't as bad at first though the fibro fog was awful. I had prayer intervention and got better for a few years but then I had gone into a relationship with a man that wasn't good for me and also followed with depression. In April 2010, the disease progressed and my CPK levels went skyrocketing. I spent a lot of time dealing with intense pain and physical weakness. I went to see a pain management specialist and she got me in to see a rheumatoid specialist that summer. I take several medicines which have helped over the last three years to get me back onto my feet. I am trying to get over the lethargy I have been feeling this January. Winter has been pretty bad around here and I am trying to make myself get out into my apartment building and walk in the halls because it is frigid outside. I want to do strength exercises but haven't been making it a priority so I have slipped up there. Been struggling with emotional eating. Trying to treat the emotional problems now. I am hoping to connect with other Christian women who deal with this disease and help themselves feel better and to motivate to lose weight. Last year I had lost 30 lbs., however, so far this year I have not found a great deal of resolve. I really want to change that.

Where two or more are gathered there is love.


 current weight: 297.0 
 
300
295
290
285
280
LADYMOO's Photo LADYMOO SparkPoints: (109)
Fitness Minutes: (20)
Posts: 110
1/10/13 11:08 A

My SparkPage
Send Private Message
Reply
HI my name is Pam and i am in ohio. I was diagnosed in May with Fibro and also with connective tissue disease that they first thought was lupus ( am waiting for more symptoms to pop up ) i believe i have been struggling with fibro for more than 2 yrs tho i was just diagnosed. have been extremely tired run down over past years some days napping all day. pain finally settled in hips and i had to quit work in May. which i hated cause i work at chick fil a.
now my feet have been killing me i have plantar facil itis which i read can be irritated by fibromyagia so bad that i can barely walk
just got new inserts so hope they work
i am working on loosing the weight i have gained partly due to being on predinsone awhile back. and can just really use some encouragement, as i am not good at sticking to things i have been on spark people on and off for last couple of years but hope this time can stick with it!
God bless you all!
pam

" Don't Worry about anything, Pray about Everything!!" GOD IS IN CONTROL!


 current weight: 303.0 
 
318
288.5
259
229.5
200
LINDAF49's Photo LINDAF49 SparkPoints: (58,251)
Fitness Minutes: (10,696)
Posts: 5,359
1/8/13 3:52 P

My SparkPage
Send Private Message
Reply
Hi, I'm Linda, almost 64 in Washington state and Dx with fibro in 2000. I had it in pretty good contol for a time but it has raised its crul heas again and I am wanting to come along side others and be encouraged and I hope give encouragement.
My pain levels need accounting as do pain meds, sugar intake and general personal accounting so I know what to to ask for help with...I have to see Dr in Feb sometime and decided it was time I recorded symptoms and progress or regress and see what can ease life up a bit. I don't like feeling like I am 80 years old, slow, painful and IBS is even showing up again after being in cood control for a year since I went gluten free with daughter who is Dx with severe celiac.
So here I am to love, laugh, lift and live with a syndrome that I don't want to rule my life or take be back to bed where I started 13 years ago this month.

Edited by: LINDAF49 at: 1/9/2013 (21:40)
Linda F in WA state
*John 10:10b Jesus came to give me life,
an abundant life!


 current weight: 216.0 
 
218
213.25
208.5
203.75
199
SLBCNV SparkPoints: (1,378)
Fitness Minutes: (285)
Posts: 2
12/19/12 3:35 P

My SparkPage
Send Private Message
Reply
My name is Sara, and I have had fibro about 4 years now. When I was diangosed, I didn't realize I would never feel 100% again; I figured I would take a pill and magically feel back to my old self. I am learning to take care of myself in a different way, accept some things, and quit seeing my physical self as something that is fighting my spiritual self. I am becoming one whole person again. I am hoping that sparkpeople will help me to get further down that road to the whole me. :)

LOOMINGS Posts: 1
12/9/12 10:49 A

Send Private Message
Reply
Hi - my name is Linda. I have had Fibro most of my life, they just didn't have a name for it at the time. I was officially diagnosed with it in 1990. Before, they called it a wastebasket diagnose and thought it was all in my head. Someone forgot to tell my body!! I was on some meds in the beginning, but due to side-effects, could not take them. I found as I grew older, the side-effects of meds got worse. I have to watch what I take and start with a very low dose. Also suffer from IBS (Irritable Bowel Syndrome).
At this time, I am only take two meds, Lodine and Lorazapan, but just when needed.
So far, I can work a full work week (40 hrs +) and have a very supportive boss. When I came into his department, he studied up on Fibromyalgia and understands what it is. I learned the trigger points of my body and have found that if heat is applied, the pain subsides into a manageable level. So I keep rice packs and a heating pad at my desk and use them on bad days.
My first major attack happened when I did a 15 mile bike hike (was a swimming instructor at the time) never realizing my body was going rebel as I was exercising every day. Put me on my back for 6 months until I found a doctor who knew how to treat it. Not many doctors in the 1990's who knew what Fibromyalgia was.
With the help of the Lord, many prayers and a positive attitude, I have come back to the point of being able to work like I do.
I also enjoy weaving, sewing and quilting. emoticon

Edited by: LOOMINGS at: 12/9/2012 (10:51)
LILYSMOM21's Photo LILYSMOM21 SparkPoints: (1,165)
Fitness Minutes: (605)
Posts: 89
12/3/12 5:42 A

My SparkPage
Send Private Message
Reply
Hi All,
I posted a seperate thread introducing myself, but I figured I would post in here as well, I want to get to know as many of you as I can. I am back on SparkPeople after a two year break, and this time it will be for the long haul. I am 23 and I got diagnosed with Fibromyalgia after I had my first daughter, she is now two and our second daughter will be five weeks Tuesday. Being home with two small ones is very stressful and unfortunately there are times that by the end of the day, I am having to use a cane to get around. I cannot wait to get to know you guys and hopefully become sources of encouragement for each other!

 current weight: 214.4 
 
217
209
201
193
185
COLHUR451's Photo COLHUR451 Posts: 74
11/10/12 12:52 P

My SparkPage
Send Private Message
Reply
Hi my name is Colleen I have had fibro for almost 20 years I am an oldie.I know God is with me.

 current weight: 238.5 
 
290
255
220
185
150
MOM2KHINTEO SparkPoints: (3)
Fitness Minutes: (0)
Posts: 1
11/6/12 1:05 A

Send Private Message
Reply
Hello,

My name is Becky. I'm 32 years old and was diagnosed with FMS about 6 months ago. I've had it for a long time but no one ever connected all my symptoms until I started seeing this new dr. I've been a Christian since I was 8 years old and needed some other Christians who can relate to this. I've struggled as friends have turned away from me when I told them what I had. I have very few friends who have stood by and supported me. I feel like a burden to my husband even though he has never expressed that to me. I'm currently taking Cymbalta for the pain and am now on Gabapentin for numbness and tingling. It helps a little but I still feel very weak and have no grip in my hands. I hurt just coloring to prepare my sons school day. I feel very at a loss. I know the Lord is with me. I have no doubts. He has been here for me through all I've gone through. This just isn't my favorite thing to go through. I know you all can relate.

JENNIW70's Photo JENNIW70 SparkPoints: (44,046)
Fitness Minutes: (16,229)
Posts: 5,272
10/30/12 7:06 P

My SparkPage
Send Private Message
Reply
I have been really remiss here with welcoming you all to our team! I had been struggling just lately, but I'm back on the SP wagon, and well....welcome to all of you! I hope you all will explore our team page. We have information on fibro, CFS and depression. We have some tips and ideas for how to cope with our unique struggles. We have periodic team challenges -- the more the merrier! A link to our daily chat thread is listed at the bottom of this post. That's where we do most of our conversing with each other. Feel free to post any questions or struggles there, as well as telling us about your day, or just venting if you need....

Teressa, Happy Birthday! emoticon

Heather, yes, it is so FRUSTRATING to not be able to do what we once did! We understand! Several here also like to take a more natural approach when we can.

Holly, so thankful you joined us! Wow, you must really be busy beside yourself with three little ones to care for. God bless you and give you strength. I have less pain than others here too, but that is because I have the sister illness -- chronic fatigue syndrome which is more exhaustion than pain. But I do have lots of aches and pains in my daily life too.

Robin, what you posted is true of all of us! Just know you are not alone and we do understand what it's like. Welcome!

Kim, you did a great job introducing yourself! I grew up very shy too, but the Lord has slowly been pulling me out of my shell. I'm still quiet, but the Lord has helped me. You are welcome here!

Brandi, I know what you mean about how meeting others in similar situations helps us cope a lot. Please join us daily if you need to. I hope you will find this group as encouraging and supportive as I have!

V, welcome back! I'm glad you came back to us. Don't worry...we all need to fret and whimper sometimes. Our team is a safe place where everyone can come to find support, and a shoulder when they need it. Know you are not alone.

Ashley, you are inspiring. Sometimes it's hard to understand why, but we all have to place our burdens, sorrows and fears at the Lord's feet. We are powerless to do anything else. Still, that is a very hard thing to do and then LEAVE them there. You may just have Chronic Fatigue Syndrome too -- that's what I have other than fibro. It is a sister illness.

Lyaria, bless your heart. You are going through some tough stuff. Please come and chat as much as you want. I hope you will find this team supportive and encouraging as I have. Were you diagnosed with fibro after all? I pray for you. You may want to look into the depressed feelings you have. Sometimes you can take meds for that too. I have depression and my meds help me a lot. I also struggle with lack of motivation and drive when I'm at my worst.

Kathy, I DO remember you! Welcome back! So good to see you here and starting over. I am too.

Brenda, feel free to post on our chat thread if you are still needing support and friendship. God bless. I know how frustrating it is to find the help emotional and physical we need.

Janis, I hope you join us on our daily chat thread, so we can get to know you better. We have varying levels of pain and illness, but we all try to be there for each other. Praying for you!

Bonlat, welcome! I agree. A lot of the posts are insightful and encouraging.

RothVL, please feel free to post on our daily chat thread that you are looking for a buddy, and any questions you might have for us.

God bless you all,
Jenni, co-leader
www.sparkpeople.com/myspark/team_mes
sa
geboard_thread.asp?board=0x2514x5020R>4936


Co-leader, Christians with Fibromyalgia

"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31



"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


 Pounds lost: 1.0 
 
0
3
6
9
12
GRANNY2B2's Photo GRANNY2B2 SparkPoints: (109,110)
Fitness Minutes: (22,345)
Posts: 4,866
10/30/12 3:08 P

Community Team Member

My SparkPage
Send Private Message
Reply
My name is Teressa, I will be 49 tomorrow, and I have had fibro for about 3 years. i'm looking forward to getting to know you all and learning from you about fibro and losing weight.

I can be changed by what happens to me, but I refuse to be reduced by it. -Maya Angelou
++++++++++++++++++
Teressa
Mississippi
Central Time Zone


 current weight: 232.0 
 
234
220.5
207
193.5
180
GRANNY2B2's Photo GRANNY2B2 SparkPoints: (109,110)
Fitness Minutes: (22,345)
Posts: 4,866
10/30/12 3:08 P

Community Team Member

My SparkPage
Send Private Message
Reply
My name is Teressa, I will be 49 tomorrow, and I have had fibro for about 3 years. i'm looking forward to getting to know you all and learning from you about fibro and losing weight.

I can be changed by what happens to me, but I refuse to be reduced by it. -Maya Angelou
++++++++++++++++++
Teressa
Mississippi
Central Time Zone


 current weight: 232.0 
 
234
220.5
207
193.5
180
HTHOMAS_30's Photo HTHOMAS_30 Posts: 445
10/24/12 11:13 P

My SparkPage
Send Private Message
Reply
Hello, My name is Heather. I was diagnosed officially with fibromyalgia back in July but I have had doctors in the past think I have had it. Its frustrating especially when I have periods of remission. This time its been very hard on me. I also have Interstitial Cystitis. I was running 5k /10k and now its difficult for me to to do it. I am hoping to be running a 1/2 marathon by next year. I chose not to take the standard treatment for fibromyalgia. I am trying diet and exercise and occasionally take a muscle relaxer. I am looking forward to meeting all of you.

HOLLYMOMTOMY3 Posts: 14
10/3/12 11:03 A

Send Private Message
Reply
Hello I'm Holly, 32 year old single mom of three kids. Just yesterday I was diagnosed with a "slight case" of fibromyalgia and low vitamin d, after numerous tests and blood draws. I don't have as much pain as most of you talk about, I get numbness first and then some pain.

 Pounds lost: 0.0 
 
0
12
24
36
48
ASANA26's Photo ASANA26 SparkPoints: (1,170)
Fitness Minutes: (1,138)
Posts: 15
10/1/12 10:10 P

My SparkPage
Send Private Message
Reply
Hello everyone ! I'm Robin, and I've had Fibromyalgia for over 20 years. I also have several other auto-immune diseases. I had to quit working about 10 years ago because of the pain, and it worsens with activity. I have to take naps everyday, or I suffer for it.

I am not able to do a lot of things I want and need to do. Sometimes I wonder if other people with this are able to live a less restricted life. So, I'm excited about joining this group. I think I need the support and information about how others are dealing with this.

I have a wonderful group of christian friends from a ladies bible study, that is my life line. They are understanding but I hate it that I cannot depend on feeling good enough to do anything. I feel guilty for missing the study for long periods of time, and for not doing more.

Anyway, it's good to find a place where other Christian women are dealing with the same thing. I look forward to getting to know all of you !

 current weight: 117.8 
 
152
143.45
134.9
126.35
117.8
KIM_FRANKS_77's Photo KIM_FRANKS_77 Posts: 2
8/28/12 1:45 A

Send Private Message
Reply
I'm not too good at doing this... introducing myself, that is... lol

I am a quiet and very shy 35 year old, who suffers with fibromyalgia, double scoliosis, arthritis, and I stay in constant pain all the time. emoticon
I'm the youngest of 3 girls. I go to a baptist church, where I used to be the youth Sunday school teacher. I work in a high school cafeteria, where I am on my feet all day.

I don't really know what else to say right now... but if you would like to know more, just ask... emoticon

Edited by: KIM_FRANKS_77 at: 8/28/2012 (01:46)
BRANDINICOLE13's Photo BRANDINICOLE13 Posts: 63
8/27/12 11:04 P

My SparkPage
Send Private Message
Reply
Hello..I'm Brandi. I am 31 yrs old and have had fibro for 15 years. I also have other serious medical conditions, which make things seem like too much to handle sometimes. Meeting new people with similar issues has helped me alot.

 Pounds lost: 8.0 
 
0
7.5
15
22.5
30
SISTERCICKV's Photo SISTERCICKV Posts: 20
8/27/12 4:17 P

My SparkPage
Send Private Message
Reply
It's me again! I was here two years ago (although I thought it was much less time than that). I began at the same weight as I was then, but I am not giving up and not giving in. I say that metally and spiritually but frankly, emotionally, today is not a good day. My pain levels are high and it decreases my resolve.
I need encouragement, but I do not want sympathy! We are all in this together and some of you are in worse shape than I am so I will try to not whimper and complain unnecessarily.
Thanks for listening!
V

 current weight: 186.8 
 
190
182.5
175
167.5
160
ASHLEYDAWN628's Photo ASHLEYDAWN628 Posts: 110
8/22/12 3:15 A

My SparkPage
Send Private Message
Reply
Hi! I'm Ashley. I haven't been formally diagnosed with fibro, but have suffered from widespread, chronic pain since highschool and in the past 2 years it has become much worse along with the migraines, depression and moodswings. I am tired all of the time and sometimes Ifeel so weak I have a hard time getting out of bed. I love the Lord and trust him, I know theres a reason I feel like this I may not understand it, but he does. I'm placing all of my sorrows and pain in His hands.

 current weight: 193.0 
 
210
191.25
172.5
153.75
135
LYARIA's Photo LYARIA Posts: 4
8/21/12 9:56 P

My SparkPage
Reply
Hi, I am new to FM and to this group. I have been a christian for about 10 years, but feel like I am a new christian. I have not found the right church yet and feel lost alot of the time. I have not been formally diagnosed (appt is Sept 13 with the Rheumatologist) but family doctor is pretty sure it's FM. I started in Amitriptyline yesterday. I am 46, overweight, out of shape and sick :( My faith has really taken a nosedive during this period of not knowing what is wrong with me, The depression and mood swings are driving my family crazy. I have no motivation or drive to do anything. We are on a limited family income because I am not working, so buying high quality fresh food is not easy for us. I seem to make alot of excuses for everything. I am also an emotional eater and the depression really doesn't help with that. I really need your help.

 current weight: 170.0 
 
178
171
164
157
150
SANJOSEGIRL's Photo SANJOSEGIRL Posts: 464
8/3/12 10:53 P

My SparkPage
Send Private Message
Reply
My name is Kathy and I am back again and I doubt very much if anyone here remembers me so I thought I'd just start over.
Fibromyalgia and I are old, old roomies since somewhere in the 1990s. I am sick more often than not but I will try to keep up and participate this time around.
My doctor took me off cymbalta this week. It was no longer helping. With me, my body gets used to the med and loses its effectiveness. Right now I am only taking oxycontin, 4 times a day. It is adictive but my body, so far, does not require more and more.
I hope to get to know all of you
K

One thing you can be sure of, things are gonna’ change. Bryan Duncan

Whatever you do, whether you eat or drink, do it all for God's glory. 1 Cor 10:31


 current weight: 220.0 
 
220
202.25
184.5
166.75
149
KYJESUSONEFAN's Photo KYJESUSONEFAN Posts: 524
8/2/12 11:19 A

My SparkPage
Send Private Message
Reply
Hi my name is Brenda I have been a member of spark people for about 2 years and i have not been on in a while i have been recently diagnosed with fibromyalgia they have tried me on savella which worked but made my bp go up and cymbalta gives me miagranes and now i'm on lyrica which is making me fatter lol but i can't live with the pain i hurt all over from my head to my toes i need to get healthier and i need a friend who wants to share info and maybe good advise to get me through this thanks

 current weight: 174.0 
 
185
172
159
146
133
JANIS-IRENE's Photo JANIS-IRENE Posts: 266
7/12/12 9:01 A

My SparkPage
Send Private Message
Reply
Been on Spark People for over a year, but have been diagnosed with fibromyalgia for about two years I believe. The doctor tried putting me on medication for it but there too many bad side effects. I am in pain every day and most days it is to the point of tears. I can't function as well as I'd like. Everything just hurts and I am so fatigued from the pain and get irritable. I just don't know what to do anymore. I am looking to gain knowledge, support, and hopefully friends. emoticon



 current weight: 221.0 
 
273
237.25
201.5
165.75
130
BONLAT's Photo BONLAT Posts: 6
7/7/12 9:39 P

My SparkPage
Send Private Message
Reply
Hi, I've been on SparkPeople for a few weeks but not a regular huddler/poster/blogger. Currently, I mainly track veggies, water and activity. I'm trying to spend more time on teams, however, because I find the posts insightful and encouraging. I've had many fibro symptoms for a few years but because I was struggling with other physical issues, doctors tried to link them to other illnesses. I was diagnosed less than a year ago.

First say to yourself what you would be; and then do what you have to do. - Epictetus

ROTHVL SparkPoints: (83)
Fitness Minutes: (0)
Posts: 3
6/22/12 3:14 A

My SparkPage
Send Private Message
Reply
When I joined SparkPeople a few months ago, I was facing gallbladder surgery and then a total hysterectomy. I wasn't in a position to start dieting and exercising quite yet. I am now fully recovered and ready to go. More than ready. I'm just not sure where to start and how all this works. I could use a spark buddy to help me.

JENNIW70's Photo JENNIW70 SparkPoints: (44,046)
Fitness Minutes: (16,229)
Posts: 5,272
6/21/12 11:27 P

My SparkPage
Send Private Message
Reply
MeShelle, Jeanne, Jenny, Mary Anne, and Suzie,

I wanted to officially welcome you all to our team! Life has been kind of crazy lately for me, so I haven't had much time here. But you are all welcome and we are excited you have joined us. If you look at our team page, you will find a fibro facts forum. There you can learn more about symptoms of fibro and what some of us have found has helped. Also, if you have questions that aren't answered there, please ask us in our main chat thread here:

www.sparkpeople.com/myspark/team_mes
sa
geboard_thread.asp?board=0x2514x4844R>5083


Changing our lifestyles to a healthier one can be challenging enough and when you add additional challenge like chronic illness it makes it even harder. But we are all glad to be here together, helping each other out along the way and supporting and praying for each other. I'm glad to see a couple of you already made it over to our chat thread. Hope to see the others there too!

Jenni

Co-leader, Christians with Fibromyalgia

"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Is. 40:31



"For physical training is of some value, but godliness has value for all things, holding promise both for the present life and the life to come." - 1 Tim. 4: 8


 Pounds lost: 1.0 
 
0
3
6
9
12
MESHELLEB's Photo MESHELLEB SparkPoints: (76)
Fitness Minutes: (0)
Posts: 2
6/21/12 10:05 A

My SparkPage
Send Private Message
Reply
I have had Fibromyalgia for as long as I can remember. Of course they had NO name for it when it began, which was after 2 car accidents in 1991. I just kept pushing myself to do the things that needed to be done. I am glad to have found this site and look forward to learning ways to deal with this and lose weight at the same time! I was taking Lyrica, but besides some relief I was gaining weight like crazy! Now I am off Lyrica and the weight is slowly coming off. Why does it come on so fast and go away so slowly?
Look forward to reading about you all!
God bless you each today!

Everyday you are given a choice: Will it be a good day or a bad day? I choose GOOD, because there is enough bad out there already! Praise God for giving me a choice!!
Michelle


 current weight: 292.0 
 
320
286.25
252.5
218.75
185
SOARINGPHOENIX's Photo SOARINGPHOENIX Posts: 1,754
6/13/12 6:21 P

Send Private Message
Reply
Hi everyone my name is Jennifer you may call me Jenny. I just was recently diagnosed with Fibromyalgia. I was diagnosed today at the doctor's office. I knew something was wrong when I felt like I was dragging all the time. I would take a nap and still be tired. I am struggling with the news and what this means for me. I also have other things wrong. I am unsure how to feel about it.

Jenny or Jennifer in Peshtigo, WI
BLC 19 GOLDEN PHOENIX
BLC 20 Golden Phoenix
BLC 21 Golden Phoenix
Gold Phoenix
It is not about me it's all about God and his desires for my life

Phil 4:13 I can do all things through him who strengthens me


 current weight: 385.0 
 
385
324.25
263.5
202.75
142
MADAMEJEANNE's Photo MADAMEJEANNE SparkPoints: (11,959)
Fitness Minutes: (13,542)
Posts: 211
5/17/12 4:11 P

My SparkPage
Send Private Message
Reply
Hi,
I am a return sparker, I had a different user name before. I was diagnosed with fibro in 1999, but am pretty sure I have had it since 1963. As a child it was just unexplained pain once in a while. After I had our first ds in '74 is when it became more significant. In between '74 and '99 I had different times I went to the dr. and it wasn't diagnosed. As a young mother I thought I was tired all the time because I was pregnant or nursing. BUT my friends had the same and had 3 times the energy I did. My weight has gone up and down all along. At my heaviest I weighed 185, currently I weigh 147 and can't seem to get the scale go down. I am exercising and journaling my food. Yesterday I underestimated the calories of pizza, so no wonder, the scale doesn't go down. I am still working, have 5 grandchildren, and also have some arthritis in addition to my fibro. I was born again in 1971 and have been blessed to have the Lord along this challenging journey. Because I am only 5'1" my goal weight is 110.

Matthew 11:28 Come unto me all ye that are heavy laden and I will give you rest unto your soul.


 current weight: 136.0 
 
150
140
130
120
110
FASTFEET's Photo FASTFEET Posts: 1,140
3/22/12 9:47 P

My SparkPage
Send Private Message
Reply
I am Mary Anne. I have just been diagnosed with Chronic Myofascial Pain. My doctor said it is pretty much like fibromyalgia so that is why I am here. I am trying to understand what exactly this is going to mean for my life. I think I have been struggling with this for years. I am trying to wrap my head around what God wants me to do now. Any thoughts.

Mary Anne
Calorie Range: 1340-1700

2014 Goal
Become a GRANDMA Again! Reese due April 10

Finish Disney Princess Half Marathon in Feb.

Do 2 Triathlons

Journal at least 3 days a week.



 current weight: 140.0 
 
199
183
167
151
135
MSSUZIE82's Photo MSSUZIE82 SparkPoints: (897)
Fitness Minutes: (434)
Posts: 4
3/21/12 4:22 P

My SparkPage
Send Private Message
Reply
Hi my name is Suzie and I am so new to this! I hope I am posting in the right place lol
I have had fibro for about 5 years now and it has almost taken over my life. I am looking forward to learning different ways to cope with fibro. I also look forward to meeting all of you!

 Pounds lost: 19.2 
 
0
14.5
29
43.5
58
KAREN1951's Photo KAREN1951 Posts: 2,363
3/1/12 10:00 P

My SparkPage
Send Private Message
Reply
Hello and Welcome to the Team . We are so happy that you chose to take your journey to better health with us.

Please tell us a little bit about yourself.

When you have a chance please come up to the general forum top thread and chat with us.
Here is the link to make it easy:

www.sparkpeople.com/myspark/team_mes
sa
gebo



I changed this to a monthy change over so it will be easier to open!

Hugs, Karen

Karen

Here is our daughters web page if you know of a birth mother that is wanting to adopt her baby out please refer them to these web links www.iheartadoption.org/users/thomas1 www.facebook.com/jimandamyhopingtoad
opt
revjet3@netzero.com Toll-Free Adoption Phone Number: 1-877-257-6127

Watch your thoughts; they become words.
Watch your words; they become actions.
Watch your actions; they become habits.
Watch your habits; they


 current weight: 219.0 
 
228
209.75
191.5
173.25
155
Page: 1 of (1)   1

Report Innappropriate Post

Other Christians with Fibromyalgia Introduce Yourself to Team Forum Posts

Topics: Last Post:
New to the group 7/16/2013 1:02:23 PM
Fibro and Nutrition! 4/25/2013 8:12:34 PM
Praying for a fighting chance 5/9/2014 1:51:37 PM
hello 4/27/2013 1:38:07 PM
New To Spark 1/29/2014 3:21:26 PM

Thread URL: http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x2514x46857215

Review our Community Guidelines