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LINDAF49
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5/17/13 3:19 P

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Pain levels back to around 3 or four...I went back to advill - the anti-inflammatory effect seems so much better with them than with aleve or Tylenol and my blood pressure is doing well even with antihistamines so am coasting along at my "norm"

Physical therapist continues to encourage my motion in my shoulder and encouraging me with verbalizing feelings etc and nutrition...Lovin' that lady!!


Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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SARAHTAIT
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5/16/13 3:18 P

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Pain level 3....love summer weather...it makes my pain better..

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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LINDAF49
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4/23/13 12:51 A

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Pain down to 4 ...will continue to use the Aleve for three days and stay on antihisamines for a couple weeks...So thankful for the more comfortable levels and fatigue is easiing with the better sleep at night...Tomorrow is PT appointment #2

Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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LINDAF49
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4/20/13 11:01 P

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Changed med to Aleve to see if I can get on top of this pain staying at about a 7


Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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LINDAF49
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4/14/13 8:01 P

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Val...i love your attitude and verse is a treasured one for me too.

4 today but I overdid a bit on exercises yesterday and feel happy even with higher pain level.

Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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VALENCHIA1
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4/14/13 2:41 A

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Legs are giving me problems today after doing an aerobic video this morning. Shaky and sometimes giving out on me and am slow-moving. Will I give up? Not in a million! I will not be ruled by this condition nor by anything else! I am in control of my body and my future. "I can do all things (even this) through Christ who GIVES ME STRENGTH." Philippians 4:13

"I can do all things through Christ who strengthens me." Philippians 4:13


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LINDAF49
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4/13/13 11:03 P

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2 this morning but storm coming in and I overdid in the exercises so am hurting tonight.. will need extra tylenol for church navigation tomorrow..

Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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GRAMMAP1
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4/13/13 9:26 P

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4 in my knee, shoulder and neck. My back seems fine after receiving the injection! Praise the Lord! emoticon

Not that we are competent in ourselves to claim anything of ourselves, but our competence comes from God. JanefromWooster,Ohio


 
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SARAHTAIT
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4/12/13 11:46 A

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4 to start but I feel it increasing...no fun!

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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LINDAF49
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4/6/13 2:52 P

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Weight: begin at 234# on 2/23 on new digital scale
3/30... 228# ...6#GONE!!!
4/06...227.6 6.4 GONE!!! but sooooo slow!

4/06 Pain 3 and fatigue 2
4/07 Pain 2 and fatigue 1 Doing good even with rainy weather
4/08 2 and 2
4/09 2 and 3
4/10 3 and 2 Joy in my heart raises energy levels
4/11 2 and 3 but brain fog is +7___what is with that???
4/12 3 and 3 brain is more clear but no motivation to accomplish anything
4/13

Edited by: LINDAF49 at: 4/12/2013 (19:19)
Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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CRYSTAROSE24
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4/5/13 1:32 A

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8 :(


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SUNCRAVER
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4/3/13 2:17 P

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5 - could feel better but could feel a whole lot worse too


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SARAHTAIT
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4/3/13 11:35 A

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4...HOORAY!


"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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LINDAF49
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4/2/13 12:36 P

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Weight: begin Winter 5%Challenge 234# on 2/23 on new digital scale
3/30... 228# ...6#GONE!!!

3/31 EASTER Pain level 2 Fatigue 2 Wore the new red shoes.
4/01 Trip to City for doctors Pain=**** Fatigue=****
4/02 Pain and fatigue off the scale ..day to recouperate from city trip
4/03 Pain at 4 Fatigue 5 headache from eye strain in the new glasses i think...Doing OK
4/04 down to about #2 ON BOTH b=feeling recouped from trip and working around the house comfortably today... nice to be human again.
4/05 holding ay 2 and so thankful!
4/06 3 and 2...slept in gloriously this morning!

Edited by: LINDAF49 at: 4/6/2013 (14:48)
Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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LINDAF49
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3/29/13 4:10 P

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Gentle hugs for your 9, Karen...What do you do for it when it gets that high... sounds like a warm soft chair with hot cup of tea and soft music and patient people around you are needed ...did you get a plan written out for the hard days? hope it gets better soon.

Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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EAGLES_WINGS
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3/29/13 12:03 P

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9

Don't give up on the mustard seed!


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LINDAF49
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3/25/13 12:01 A

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Weight: begin Winter 5%Challenge 234# on 2/23 on new digital scale
03/02...232.0# 03/09...231# 03/16...230.6# 03/23...229.0# 5#GONE!!!

3/24 Pain level 2 Fatigue 2 Bought the red shoes.
3/25 Pain=3 Fatigue=4 So tired...bad dreams last night???
3/26 - - - -3 - - - - - - 4
3/27 - - - -3 - - - - - - 5
3/28 - - - 3 - - - - - - - 3
3/29 - - - 4 - - - - - - - 5 Spring allergies rearing their head...started clariten
3/30


Edited by: LINDAF49 at: 3/29/2013 (16:06)
Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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SUNCRAVER
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3/22/13 8:13 P

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pain 5
fatigue 8

Sarah


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SARAHTAIT
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3/19/13 7:25 P

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pain 4-5
fatigue 10

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


Leader:

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LINDAF49
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3/17/13 8:08 P

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New Week and New chart
Weight at beginning of Winter 5%Challenge 234# on new difital scale
03/02...........Weight 232#
03/09 .............231.1 #
03/16 .............230.6 #
03/17 ...Pain level 5..feel "body bruised" from fever yesterday Fatigue level 5
03/18...Pain down to 3 and fatigue still at 5 - insomnia last night
03/19...Pain down to 3 fatigue down to 4 - Slept really good last night
03/20...Pain down to #2 Fatigue still a 4 - slept till 4am
03/21...Pain #2 Fatigue back up after stress of Dr office and driving LONG NAP helped
03/22...Pain level 3-chasing tw yr old...Fatigue 4 Going to be happy for nap time.
03/23...pain 3 fatigue 3

Edited by: LINDAF49 at: 3/24/2013 (23:53)
Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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PEGGIE57
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3/14/13 11:42 P

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7, especially in right shoulder & knee. I'm going to have to take something for pain so I can sleep tonight.


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SUNCRAVER
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3/13/13 3:46 P

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I am beginning to dislike MDs altogether. I newest PCP says my illness is psychosomatic, I almost fell over.My sis was with me and she was so mad. I have not just decided if I am going back to her yet. I hate when I walk into a MD and tell them I am in unbearable pain, I get a lecture on how important it is not to become an addict. The worse part is if I wanted to become an addict it would be a hell of alot easier in this state. Drugs are everywhere. When will they realize I am not seeking narcs I am seeking relief?






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LINDAF49
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3/10/13 7:49 P

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Sarah, we have to learn to tell our Drs what we know works for us and what does NOT...
CAREFUL pacing of my day is the only way I have survived and if I am faithful to that, I can lead a gentle and fragile life and "appear normal" to most people. i find those who also have "hidden chronic disease" are those who can tell at a glance if it is a good or bad day.

So for the Doctor who tells me to push myself harder ...i tell him that is not an option but to teach me what will keep my range of motion optimal and strengthen me slowly. I was so blessed with our doctor for the first 10 years of fibro, he was learning about fibro and we were a team working to find the best for me ...then he up and retired!!! haven't found another that understands fibro or any of the various protocols of treatment. So now they throw in the new diagnosis of arthritis throughout my body and tell me to get better...I smiled and said i want physical therapy to improve potential but no, I will not go out and run any marathon!

Keep talking, sharing and believing that there is a better day coming. You will learn your body and what helps and what hinders...then beginning to improve whatever potential you have.
I am praying for you to find a better path of health for you.

You mentioned children ...what age and are you sole caregiver for them? After 26 year of childcare in our home, and 12 of those with fibro, i might have some encouragements.




Edited by: LINDAF49 at: 3/10/2013 (19:52)
Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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SUNCRAVER
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3/10/13 5:12 P

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Pain real high today. My MD keeps saying move more to manage ur fibro....I feel that is the biggest lie ever told. emoticon


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SUNCRAVER
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3/9/13 10:29 P

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Right now it's a little high at 7.

I am not convinced that doing exercise with help the pain. It has induced my fatigue greatly though, slept about 26 hours from Thurs night to this AM. Not a great thing with children.


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LINDAF49
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3/9/13 4:38 P

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Going to change this to a long record on one entry rather than such a long list of entries
Weight at beginning of Winter 5%Challenge 234# on new difital scale
03/02.................................................Weight 232#
03/09 Pain #5 Fatigue #4 Weight 231#
03/10 Pain #4 Fatigue #3
03/11 Pain #5 Fatigue #5
03/12 Pain #4 #4 Saw 230#first time ..hope it stays x3days so it can be official
03/13 Pain #3 #2
03/14 Pain #3 #4 Just does not work for me to skip my afternoon nap!
03/15 Pain #4 #5 Over did with yesterday's walking Hurting and tired today
03/16 Got a bug??? Terrible headache, chills and fever ---to the bed i go.
03/17

Edited by: LINDAF49 at: 3/16/2013 (23:17)
Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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LINDAF49
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3/8/13 2:14 P

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Pain #3
Fatigue #4 Sleepy and wanting to nap but not that "I can't move" kind of fatigue


Edited by: LINDAF49 at: 3/9/2013 (16:40)
Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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LINDAF49
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3/7/13 3:04 P

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Thurs ...after two days away from home, poor sleep and driving through storm
I am so delighted that pain level is only #3 and Fatigue is #4 with just a little fuzzy edge on brain ...God is good and so faithful when we try to do what is best for us!!!

Best trip recoup pattern ever!!!

Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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LINDAF49
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3/4/13 11:10 P

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Mon Pain #3
Fatigue #3 But nerves are a mess ...Been weepy for no reason at all today
Might be more stressed about the driving 2.5 hours to the big city than I thought

Will be gone Tues and Wednesday... trusting it will be good for me to get away from the usual and the "cabin fever" of the winter.

Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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LINDAF49
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3/3/13 8:23 P

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Sunday
Pain #5
Fatigue #3

Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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LINDAF49
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3/2/13 6:13 P

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Pain #5
Fatigue #4

Delight in scales finally going down 2# officially this week - lovin' the new digital scales.


Edited by: LINDAF49 at: 3/2/2013 (18:14)
Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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LINDAF49
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3/1/13 1:21 P

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My levels of pain with 10 as worst pain and 1 is "close to normal" as I remember after 13 years!
10 is tears, gritted teeth, headed to bed most of the day 3 advil every 4 hours
9 is constant prayer just to move about in house and fighting fear - get out the "No fear" scripture cards --- I have a written schedule for meds and use an alarm clock to be sure on time and force liquids and protein...Husband supervises
8 Moving very slow, 2 advil every 4 hours if stomach can tolerate them Have to use my cane in the house
7 Is tolerable with 2 advil every 4 hours nap morning and afternoon. Benadryl at night bedtime to improve rest and cut down the inflammatory process
6 Is tolerable with 2 advil every 6 hours and require nap full hour in early afternoon
5 Carefully paced but not high pain..1-2 advil every 6 hours and hour nap
4 Is moving almost my slow-normal with 1 advil every 6 hours able to work beside DH at Farmer's Market or in my office with mind clear enough to do book-keeping for the family needs
3 Is doing well with advil every 8 hours
2 is doing well with Advil at bedtime only
1 is ...good mobility and energy and no meds

Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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LINDAF49
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2/28/13 9:50 P

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Pain 10++ Leg cramps the worst ever !!!
Just have overdone and should have known better...when the fatigue goes to 1-10 or "tired to tears" and i don't stop and take care of me...I can expect pain levels to be too high the next day and it hit during naptime this afternoon - beginning to ease down to a 9 for each one now...heading to bed early and will set alarm for every 2 hours to drink another pint and every 4 hours for pain med and please Lord, help me get back on top of this.

Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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LINDAF49
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2/27/13 3:33 P

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Pain level #7
Fatigue...#8 "tired to tears" can't seen to do anything...
med schedule, protein intake and meds all mixed up with fasting for blood work and extra trips to town and so am going to crawl into my bed and set clock for every hour to drink another glass of water and try to get it washed out of me and back to human being.

Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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LINDAF49
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2/26/13 6:28 P

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Pain #6 after to Dr office

Fatigue #6 after Dr Office

IBS ...well two pair of underwear later, you can fill in the gaps

Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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LINDAF49
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2/25/13 7:03 P

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Pain #3
Fatigue #1


Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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LINDAF49
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2/24/13 9:06 P

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Pain #3 i think the trying a litttle more exrecise for a challenge is good for me...VERY carefull to increase it slowly! Pleased! Barometer is also staying up above 30.15 and I am convinced it does affect my pain levels...now to use that knowledge well.

Fatigue #2 half hour nap was just right today

Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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LINDAF49
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2/23/13 4:40 P

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Pain #4
Fatigue #3 Going to take my nap

Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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LINDAF49
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2/22/13 7:11 P

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I seem to be talking to myself on this thread but am committed to finish out the month and then will maybe just make a note on my dayplanner

I have been watching the barometric pressure when pain levels increase and just like I have been told, when my pain increases the pressure is lower....it has been right around 30.3. I'm hurting today just Just checked and the temp is still up but pressure is only 29.5 hmmmm.interesting experiment...not that it helps anything...just a diversion ...

Pain #6 ...is tolerable with 2 advil every 6 hours and require nap full hour in early afternoonFatigue #2

Edited by: LINDAF49 at: 2/22/2013 (19:13)
Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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LINDAF49
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2/21/13 9:25 P

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Pain #3

Fatigue #2

Linda F in Wa state

John 10:10b Jesus came to give me life, an abundant life!


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LINDAF49
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2/20/13 6:20 P

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Pain #3 is doing well with 1 advil 8am 2pm and 2 advil at bedtime

Fatigue ...I feel like a human being!! So I guess that is a #1

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Pain #4 is moving almost normal with 1 advil every 6 hours x3 and then 2 at bedtime ... able to work in my office with mind clear enough to do book-keeping for the family needs


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Pain #3-4 different parts of the day...am pleased with ability to do Walmart with no tears and just 1/2 hour nap when I got home!!!
Fatigue #2
Eyes better today and nerves very good and BP OK should get it a little lower with continued exercise and LOOSING WEIGHT is so important but sooooo hard!

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Pain 4 Fatigue 2 Fuzzy eyes today...maybe too much reading yesteday???
But going to push through and keep on going. yes I will check blood pressure too.


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Ahhhhhh fatigue levels back in normal zone

Pain is back down to 4 ...So thankful that it did not take full three days to recoup from one bad day like it used to ... Frustrated that it takes a whole day after the bad day but that is better than three!!

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2/12/13 7:13 P

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Pain levels were way above my chart yesterday and still at #10 this morning but doing better this afternoon and mind is clearing ...I give it a #7.5 at 4pm fatigue about a #7 as well but things are looking up with that huge trip and appointment done and behind me...now to get results in a couple of weeks when other appointment is scheduled I hope!

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2/10/13 5:39 P

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Can't tell pain levels very well when I cannot take meds for 24 hours till after Dr appointment

Would call it a #5 at noon and fatigue building to a 5 already too...I hope I can sleep through most of the night!

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2/9/13 9:13 P

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Pain #5 Fatigue #2

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2/7/13 3:40 P

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Pain #4 Fatigue #3 but brain a bit fuzzy with stress over DH tooth pain and Dentist not sure what is going on ...if not better by next Wednesday will pull two of them...Pray for his pain levels and my patience with his own admission of being a wimp with pain. he still thinks that my being a nurse should be able to fix this hurting...silly man, i was an OB nurse and that and teeth have very little similarities!!!

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2/6/13 2:42 P

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Pain Level #4.5 Fatigue level 3 No nap today..DH has routine Dr Visit right in the middle of our nap time and so will be tired tonight...

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2/5/13 3:59 P

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Pain still #5 Fatigue down to 4...brain is much more clear and heading to the office for family book-keeping and pay bills.


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2/4/13 4:49 P

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#5 but fatigue is #9...headed for long nap.

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2/3/13 11:23 P

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#5 Good day for general Sunday needs...May have overdone playing with "honorary grandson"...2 1/2years old and one of my former daycare kids - - son of one I raised in day care and he calls us MaaMa and Paapa..so cute and good for my heart that longs for a grandchild.

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2/2/13 7:19 P

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6 - poor sleep due to hip hurting ...knees stiff today but will get back on the elliptical and do my 6 minutes for thre days then try to inclrease by one minute for three days.

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2/1/13 10:28 P

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Jan 31...#4 having some leg cramps at night and twinges during day...extra glasses of water with lite salt to make sure potassium and sodium and liquids are adequate also an extra 1/2 Mag/Malate at bedtime


Feb 1 - short restless night but due to DH restlessness, not my pain
#4 no leg cramps so think that is the issue... head a bit fuzzy today but I think it is because of poor sleep, pain is ok with 1 advil will have 2 at bedtime and make sure DH takes his meds tonight.

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1/30/13 3:32 P

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4 but feeling cold with weather bouncing around.

Linda F in Wa state

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1/29/13 4:31 P

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Calling it 4.5 ... needed the advil at 6 hours today.. feeling really tired and fragile... have been on the phone for several ministry calls relating to my eldercare/grief ministry talking with her and with her daughter.



Edited by: LINDAF49 at: 1/30/2013 (15:23)
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back to 5 ...more tired than pain and I was in bed most of 9 hours last night which is VERY long time for me! I often only get in 7.5 including the afternoon naps!! It hurts to lay there! and some insomnia issues but I try to stay in the bed most of 10pm to 5am ..up twice to stretch and potty usually.

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1/27/13 10:16 P

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7 - not good when i was speaking at church today but poured in the advil, long shower this morning good protein breakfast and hot liquids steadily till we got back home and then rested.

I think part of it was nerves about speaking but also weather shifted and I had no pain meds yesterday...i think there is something about the anti-inflammatory effect of advil that i need some of each day even if don;t need help for pain??? Or am i addicted just a bit and body wants its fix??? time to talk with Dr about this I think.

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1/26/13 10:44 P

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4 - good day of rest and "Flushing our with extra liquids" Afternoon nap and lots of picture playing on the computer plus catching up with Sparks and facebook friends.



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1/26/13 12:14 A

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6 - too much going and doing too many days in a row - needing to rest tomorrow!

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1/24/13 7:24 P

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5 - painful first part of the night last night...finally took dimetapp [an antihistamine] liquid form and warm cup of milk with pkt of sweet and low and dash of vanilla and half hour later dozed off and rested fairly well. up early to go with DH to take car to repair shop and then back home in the pickup... good soup lunch and nap and now feel pretty good. Oh the rollercoaster of the fibro path.

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1/23/13 1:10 P

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5 - needing nap and it is only 10am!!

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Re-defining my levels ten is huge pain 1 is "close to normal" as I remember after 12 years!
10 is tears, gritted teeth, headed to bed most of the day
9 is constant prayer for moving about in house and fighting fear - get out the "No fear" scripture cards --- If no reason I can Identify for the flare, I will have a written schedule for meds and DH uses an alarm clock to be sure that he supervises them on time and forces liquids and protein because I don't function well enough to know if I took them or not
8 is not pretty site to others, moving very slow, 2-3 advil every 4 hours if stomach can tolerate them Have to use my cane in the house
7 is tolerable with 2 advil every 4 hours nap morning and afternoon. Benadryl or Dimatapp at night bedtime to improve rest and cut down the inflammatory process
6 is tolerable with 2 advil every 6 hours and require nap full hour in early afternoon
5 Carefully paced but not high pain..1-2 advil every 6 hours and hour nap
4 is moving almost normal with 1 advil every 6 hours able to work beside DH at Farmer's Market or in my office with mind clear enough to do book-keeping for the family needs
3 is doing well with advil every 8 hours
2 is doing well with tylenol or Advil at bedtime only
1is ...good mobility and energy and no meds

Is this close to what you girls (are there any guys on the team?) do?
I've tried neurontin and a few others and they make me crazy feeling, and see little green men on the rims f plates and tea cups etc....Weird! so no thank you to them.

Edited by: LINDAF49 at: 1/30/2013 (15:28)
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1/20/13 8:21 P

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I seem to be talking to myself here but it is good to force myself to evealuate where I am in a scale from 1-10...WIll be good to take this record to new Dr next month...

3 today even in public...feeling tired and tense tonight though...Hot herbal teas seem to be relaxing me a bit.



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1/18/13 4:01 P

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emoticon 3 [using advil instead of tylenol though]
Weather has mellowed up to 25 degrees and I feel better....
Wakeful night...I do this once or twice a month, not painful, just not sleeping from 2-5 then fall back to sound sleep for an hour and wake up feeling good. WEIRD!!!

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1/17/13 8:09 P

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emoticon 3.5


Linda F in Wa state

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1/16/13 11:40 P

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5 today except no nap so need to get to bed.

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1/15/13 6:44 P

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5 with new stiffness in shoulders and neck...now what is going on???

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1/14/13 11:43 P

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4-5 smooth sailing with pacing day and 6 hour advil ...Advil works so much better for me than tylenol...Learning to be more emphatic about using physical out put as a guage for pacing. So a physical amount of effort then I rest and use mental for a while then do another bit of physical and then mental then physical and then nap with niether physical or mental...yup good pacing for today.

Edited by: LINDAF49 at: 1/15/2013 (18:43)
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Chuckling at your comment "isn't it a shame we can't have a life with fibro"...
I tell many that I have a "Carefully paced life life every-other-day" because that is how I have managed the summers when DH has to have help with garden/market ...
I carefully work/rest/work/rest on market days and don't do hardly anything the next day and survive Tues/Thurs/Sat Markets then totally crash on Sundays, our day of rest. This winter has not even done that well...
I definitely recognize if I neglect the rules and overdo, I will suffer three days...
I read many years ago that most fibro people sense things three times more than regular population...If you pinch me, i perceive it three times harder/more painful than a non-fibro would...If I chill, I am three times colder than non-fibro person and take three times as long to :thaw out and pain levels lower then deal with the exhaustion of that same amount of time after it quits hurting...does this make sense to you? Fit your patterns???

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Today is 4-5...off my patch now. I am trying to keep y stress level way down as that increases my pain...I am having to learn how to deal without my narcotics..so not fun but I really really want to be able to handle things without them since my doctors office is giving me such an impossible time about my refills.
Linda..isn't it a shame we can't have a life with fibro? I am really down in the dumps about this! How can I help my parents when I can't do anything much..or go out of town like I love to visit my grandkids? I am praying I can figure it all out and deal.

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1/12/13 4:43 P

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Staying at 6 with extra Advil for the cold stress... The sunshine does a lot of good for me...I think it helps the natural Vit D our body makes in response to the sunshine. Or maybe it is just the emotional uplift...but it is being a fairly good day but I'm not trying to do anything but type and rest and cook meals for DH.

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1/11/13 7:24 P

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6 after a good night's rest...I always feel kind of bruised all over after a flare like yesterday evenings..not really pain, just tender EVERYwhere...Temp is supposed to go to 0* tonight but I am preparing for it with hot soup and extra clothes layers already on so no chilling...THis evaluating and putting numbers to my feelings is good for me ..Thanks for this team already!

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1/11/13 1:17 P

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7 today....
Linda you are lucky that your husband is so caring. Many do not understand fibro. I can picture myself exactly where you are..rocking because of the pain.

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#5 til about noon and as the temp drops outside pain level zoomed up to #8 and got ahead of the meds. so am sitting here rocking and husband is fussing over me He gets more scared than I do when the pain comes on like this ... weather is not kind to those with fibro! WIll be thankful to crawl into my nice warm bed with electric heating mattress pad.

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Linda..I am on a fentanyl patch which is very very strong and dangerous stuff. But I use it so I don't fry my tummy or liver with vicodin..my other drug for pain.
I read your pain level and really like it except 2 advil would not help me at all at this point. I am way beyond that. If I have unmedicatedc fibro pain I am a 10 and it is intolerable. I started out much milder and even worked for about 14 years with fibro taking advil and ultra. It seems my pain has progressed and is much worse..which is not supposed to happen with fibro. I have thyroid issues tho (graves disease) which also can affect my pain level. I have a tumor on my thyroid (noncancerous)

Today I was a 4 and went to town..now an 8-9...so am home relaxing to bring down my level.

I am laughing at the little green men. Many people don't tolerate vicodin well but it helps me..it relieves the pain without getting any "high" or fuzzy feelings...but for many people it makes them crazy. The issue is that it kills the liver in the amount I would have to take..therefore the patches really help me keep my vicodin use in check.

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Glancing back I don't see a definition of levels so need to define some for me
10 is tears, gritted teeth, headed to bed most of the day
9 is constant prayer for moving about in house and fighting fear - get out the "No fear" scripture cards --- If no reason I can Identify for the flare, I will have a written schedule for meds and DH uses an alarm clock to be sure that he supervises them on time and forces liquids and protein because I don't function well enough to know if I took them or not
8 is not pretty site to others, moving very slow, 3 advil every 4 hours if stomach can tolerate them Have to use my cane in the house
7 is tolerable with 2 advil every 4 hours nap morning and afternoon
6 is tolerable with 2 advil every 6 hours and require nap full hour in early afternoon
5 Carefully paced but not high pain..1 advil every 6 hours and half hour nap
4 is moving almost normal with tylenol every 12 hours able to work beside DH at Farmer's Market or in my office with mind clear enough to do book-keeping for the family needs
2 is doing well with tylenol at bedtime only
1is ...good mobility and energy and no meds

Is this close to what you girls (are there any guys on the team?) do?
Sarah I see you use pain patch...does that bypass the stomach irritation of Ibuprofen and tylenol?
I've tried neurontin and a few others and they make me crazy feeling, and see little green men on the rims f plates and tea cups etc....Weird! so no thank you to them.



Edited by: LINDAF49 at: 1/15/2013 (18:42)
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4-5..meds are controlling well

"In all these things we are more than conquerors through him who loved us"
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SARAHTAIT
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1/1/13 3:00 P

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8-10 today..I am having to rest between activities to get the pain level down.....

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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SARAHTAIT
SARAHTAIT's Photo Posts: 22,146
12/18/12 11:24 P

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good peggy...glad your pain is a bit better....

today I'm a 6..(9 at times tho)

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


Leader:

Yorkie Lovers

Christians With
Fibromyalgia!!




 current weight: 180.0 
 
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206.5
175.75
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