Welcome to the group CaliBilly!! Oh how we all understand you. We can all share our experiences, thoughts, feelings and even advice but only you will know what works for you. There seems to be no "right" answer.
I for one no longer go to specialist. I didn't get anywhere further than I did with my own doctor and spent years of drinking this, xraying that, testing this and feeling like I was just blown off and no one either cared, listened or didn't bother saying - I don't know what to do.
My doctor has all the records of every test and everything else and they all say the same thing. I said what do we need to do or what do I need to do. He suggested things that trigger - fry, chocolate, sweets, etc. and gave me a prescription. I have flare ups now and then but not like I used to. The medication I take helps me.
The other thing - I eliminated a lot of stress. Those around don't like it but they weren't going through what I was so a little inconvenience to them is a big help to me.
Hope I have helped in some way. I look forward to future chats and hoping that we find the answers to get feeling great again.
Oh - one more thing.... I find for myself and my sister noticed too, I am worse in the spring. I have a theory it could also be a form of an allergy or something that could trigger it, I now keep a journal. Maybe do that as well to see if you have a time that it's worse than others. Plus it will show you what foods you have to see if there is something causing problems too.
"Be careful who you open up to, only a few care. The rest are just curious."
"Don't worry when you are not recognized, but strive to be worthy of recognition." -Abraham Lincoln
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