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LINDA!'s Photo LINDA! Posts: 88,095
7/17/12 7:31 P

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Linda - Florida
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WELDER43's Photo WELDER43 SparkPoints: (153,568)
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7/17/12 1:30 A

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Edited by: WELDER43 at: 7/17/2012 (01:30)
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TMF620's Photo TMF620 Posts: 8
7/10/12 11:02 A

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What I am reading about acid reflux is that some people get pain in their esophagus because they don't produce ENOUGH stomach acid. I sometimes take Betaine HCL tablets before eating- especially if I am going to eat something like a steak. The recommended way to take them is 20 minutes before a meal, take two tablets. Then take 3 the next time, and on and on until taking the tablets gives you heartburn. Then you back off to the dose that didn't give you heartburn. I just take two or three. Interestingly, B12 needs HCL to be present in the stomach for metabolism because I guess the cells that make the intrinsic factor needed for B12 metabolism are influenced by the presence of HCL.

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GOATS03's Photo GOATS03 SparkPoints: (16,889)
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7/9/12 10:20 P

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Thanks for sharing TMF. Your post was very interesting and informative. I think that getting off your meds was a very wise decision.

I always feel much better, calmer and happier when I start my day with my meditation, breathing and being grateful for everything.

I'm working with my IBS-D as well, I know when I have some wine that I will be out of commission the next day. I've just eliminated milk products and it seems to help as well. But I never really know when it's going to hit hard. If I need to go out in the morning I cannot eat breakfast...I can definitely not have eggs in the morning anymore. I have just bought a bread that is Gluten Free and must do more research of food that has gluten.

Keep us updated...

Wishing you a great week!
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LITTLEFAY Posts: 319
7/9/12 9:40 P

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Wow, you have been through the mill. I also question my meds, but eventually go back on when I am having a very tough time. In my mind, I know we need acid to digest our food, but we don't need it going in reverse! Well, good luck to you. Stress plays a huge roll, I believe. I can tell just when a flare started and stress was in the wind. Also, think about your "gut feelings". You actually have feelongs in your gut! I am trying to do a little meditation and deep breathing exercises instead of jumping to my meds. Sometimes, I just have to cry "Uncle." Take care. Phyllis

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TMF620's Photo TMF620 Posts: 8
7/9/12 9:29 P

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Hello everyone. I'm not new to Sparkpeople or to IBS but I am new to this team. I just wanted to say hi.
I'm 41, and I have lost 30 pounds since January 2012. My story is a little unusual, I think. And long. Here it is if you want to read it:

I was diagnosed with acid reflux in 1995 and put on daily acid reflux medication like Prilosec, Nexium, etc. Everyone in my family was on it. My father had such bad reflux he had to get his esophagus stretched every 6 mos in the 80s before PPIs became available. So I was always told - you have to take your PPIs! Right around that time, I started gaining weight and became depressed. I thought it was because I was working the night shift and in a bad marriage. I was put on antidepressants and anti anxiety meds and I changed jobs. I left the bad marriage and changed jobs again. This time I had no health insurance. I couldn't afford the PPIs. I lost 40 of the 60 pounds I had gained. I didn't ever think it was the PPIs- I figured it was the change in circumstances. In 1999, I had my first bout of IBS. To be honest, I don't know how often I had it because all I ever wanted was for it to be OVER and so I put it out of my mind when I wasn't having it. I was also always tired, for years. Just tired all the time. And occasionally had joint pain.

In 2000, I moved away with my new love, had a new job and a new life. I became a vegetarian. I was even more tired than ever. My husband said, "Maybe you shouldn't be a vegetarian. You are so tired all the time." So I started eating meat again and I guess I felt less tired but still pretty tired. I had health insurance again, was put back on PPIs, and was tested for autoimmune disorders as suddenly my face turned red and everyone was always asking me if I was hot or had just ran up the stairs or something. We moved back to our original town in 2005 after we got married. I was taking care of my dying father, working full time, and was in that 6 month waiting period for health insurance. Again, I lost weight but I was still pretty exhausted and had IBS but wrote it off due to stress. I was put on stronger anti depressants and anti anxiety meds. I was in therapy the whole time. Finally, I quit my job and I went to massage school, thinking immersing myself in a healing profession might be the answer to my stress and what I thought were the associated effects of it. My father died soon thereafter. I did do much better.

After the 6 months of training and 3 months of waiting for licensure, I was finally practicing massage and feeling pretty good. But after about 6 mos, my joints were really bothering me. I would lay in bed at night and try not to move because I was in so much pain. And I was having IBS often enough for it to be a daily worry that I would get hit with a bout when I had a client on the table. I went to a GI specialist who scheduled me for a colonoscopy and another upper endoscopy. I got a new therapist as mine retired. I saw a new general practitioner. I felt like I was going to get some answers. All the tests were negative except I did test a little for Rheumatoid arthritis but a follow up with a Rheumatologist showed I didnt have it. My inflammation scores were high though. They said that was inconclusive.

In 2011, I quit massage and went back to my old job. I was in too much pain to massage. I was having IBS about 7-8 times a month. I was putting on weight. My reflux was worse than ever and I was taking my PPIs religiously. My doctors essentially were very empathetic but said they really couldn't find anything definitive causing any of my issues. They thought perhaps my joint pain was due to my joints being hypermobile.

On Jan 5, 2012, I woke up for the upteenth night with acid in my mouth. I spent the entire night online searching for answers. I decided to go cold turkey off the PPIs. I tried various home remedies. I noticed many changes, such as I no longer was having terrible hunger every 2 hours and my meals seemed to 'last longer." I wasn't waking with acid in my mouth. My acid reflux wasn't gone, but it was different. I found I couldn't physically handle as much food without the PPI. As a result I started losing weight. But I didn't miss the food. My IBS increased a huge amount though. I was down15 out of every 30 days in Jan, Feb and March. Finally my therapist recommended I go see this "Integrative Medicine" doctor who she said had a lot of success with "unspecificed autoimmune" disorders. I made an appt and was seen two weeks later.

This doctor saved my life. She ordered stool tests, blood tests that had never been ordered before like Vitamin D and B12 levels, hormone levels, and I also did a 24 hour saliva test to measure my adrenal function. At this point, I couldn't get through the day without at least one nap. I couldn't pour myself a glass of water if the water pitcher was full because my joints hurt too much and I would drop the pitcher. I felt toxic. I felt like I just had some sort of toxicity. I didn't have much hope but when the blood tests started coming back they showed a severe vitamin D deficiency (bone pain) and a slight b12 deficiency (fatigue, plus the foot problems that I ignored because too many other things were wrong with me.) I started taking b12 shots and liquid vitamin D and after two weeks, there was absolutely no pain. None. She also treated me for SIBO even though the test was inconclusive. I started having more energy. I started living my life again. The IBS slowed way down to 2-3 bouts per month on a much lesser scale. Before, when I had IBS, I would be out for the whole day. Now when I have it it is more just a inconvenience.
I still think the IBS is a separate issue. I also see a nutritionist now and I gave up gluten. When I "Challenged" gluten after 5 weeks of being Gluten Free, I didn't get sick. But I definitely feel healthier being gluten free and it is much harder to mindlessly snack when you can't eat most snack foods :)
Anyway, I just want to help anyone I can by relaying my story. Oh, by the way, I am completely off any anxiety and depression meds since starting my B12 regimen. I suppose it could be that my "stress" (B12 directly impacts nerves) being gone has relieved the majority of the IBS!
Anyway, today I started reading the Spark People book and making my goals for the next round of getting healthy and one of the things to do was introduce myself so there it is :)
I love to talk about vitamins and have done a fair bit of research so if anyone has any questions feel free to contact me.

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