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YORKJAG's Photo YORKJAG Posts: 268
1/10/09 8:00 P

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Hi everyone,

I just joined sparks. I am hoping it will help me to get myself back to a healthier body weight. I did well a couple of years ago (i have never been thin)then my weight slowly increased when i went back to school resulting from my eating habits that worsened. I then had my thyroid removed after it was suspected I may have cancer this past april (it was confirmed after removal) the radiation took place in september. Since it was removed my weight has continued to increase to the point where I only have a couple pairs of pants that still fit (that's because they stretch). So i am hoping that I can work on getting myself back into a healthy state. Glad to know I am not the only one out there. Nice to meet you all.

Edited by: YORKJAG at: 1/10/2009 (21:39)
Age: 29

Location: Canada

Goal: get healthy and reach 140 lbs.

Mini Goals:

First 10lbs - Special Origins product. Goal Met

Reach 189.5 lbs - Hair cut . Goal met

Reach 173 lbs – New workout game or fitness equipment.

Reach 156.5 lbs - New workout outfit

Reach 140 lbs – Spa Day



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PRINCESSPEA1965's Photo PRINCESSPEA1965 Posts: 1
1/7/09 12:00 A

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Hi, everybody. Just wanted to thank Erna and Shelly for the welcome messages on my page. I'm really happy to be here! I just passed the eight year anniversary of my thyroidectomy and radiation, and am starting to face the fact (hey, I'm a slow learner) that I'm never going to be effortlessly skinny again like I was before (too skinny, to be honest). It feels good to be engaged in a fitness program again, and I'm glad I found this group. Most of my friends are sympathetic, but they don't really understand how much not having a thyroid affects everything. . .

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ACWITNESS's Photo ACWITNESS Posts: 78
1/5/09 9:16 A

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Thanks guys - I feel MUCH better today! Having happened twice now, I am realizing that not getting a full 8 hours of sleep is a much bigger deal for me than before surgery. Of course, the fact that I still have hot flashes some times makes that tough! Plus I've just had sad news from two other dear friends, both on the church worship team with me. One begins chemo today because of a tumor found on her pancreas over the holidays. The other probably has MS and has been having seizures. Lots of hard stuff all at once, but it is good to have each other to lean on. And our combined faith is a powerful thing!

Debbi
"It's not heaven yet!"



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RUBYYR's Photo RUBYYR SparkPoints: (33,750)
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1/5/09 12:39 A

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Welcome Kathryn!

And thank you for you words. It is not always an easy road I certainly had my down times, especially when I was newly diagnosed. Sometimes sad feelings still come up.

I hope that our members will feel comfortable enough sharing those thoughts & feelings. If not on the public boards then in private messages.



“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss
KATINCO's Photo KATINCO Posts: 38
1/5/09 12:17 A

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Hi Debbi - I'm so glad that my story helps you a little bit. And YES you can expect bad days. If you didn't have some negative feelings about having cancer and all that goes with it, I think you'd be crazy girl! Go ahead and feel it because the only healthy way out of it is through it. To deny the negative feelings bottles them up and then one day you either explode or implode. I think it's much much healthier to feel them and move through them. Yes, we want to be positive... and yes we will be on most days. But to not allow yourself to feel the pain associated with what has happened in your life would be harmful in the long run.

I'll be praying for you and for your upcoming appointment.

Sending cyber HUGS your way!
Kathryn



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ACWITNESS's Photo ACWITNESS Posts: 78
1/4/09 5:30 P

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Hi Kathryn,
Welcome to the team. I am new here as well. I'm not much younger than you - I was actually graduating high school when you were beginning this journey. I am just beginning mine - TT on 12/15. I will be meeting my endocrinologist on the 21st and then heading for RAI and all that goes with it. Today was kind of rough. Very emotional. I feel like the reality of all of this is finally hitting me. I'm a positive person by nature, and a person of faith, but I guess I should expect some of this - right?

I am so thankful to read your story - it really does help to know and meet others who have been this way before and are not only survivors, but overcomers. It helps to share what we feel with others who understand.

Debbi

Debbi
"It's not heaven yet!"



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KATINCO's Photo KATINCO Posts: 38
1/4/09 3:10 P

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Hi everyone. I'm a long-time survivor of thyroid cancer. Mine was back in 1975 and was found just after the birth of my youngest child. I was 25 at the time. Some of you probably weren't even born then!! So, you can call me the old lady of the group. I had a thyroidectomy and radiation therapy and let me tell you it was rough with two babies in diapers (6 weeks and 20 months) and a pre-schooler who was almost 5 years old. But I not only survived, I became a much stronger and resilient person because of the difficulties. And trust me, there have always been a lot of difficulties. My opinion is that thyroid medication does not work the same as the body's natural processes. I have taken so much synthroid at times that my heart was racing and the doctors said I should be as skinny as a beanpole. Not so! Since having cancer, I've always been "fluffy" and still battle the bulge. But I'm an overcomer and just look at me now -- a grey haired granny!

I hope that I can offer some encouragement to those of you who are just beginning your journey with a recent diagnosis or those of you who are becoming discouraged. We have been dealt a difficult hand, but we can make even the most difficult circumstances easier to deal with when we share the burden. I've always tried to maintain my faith and a positive attitude through it all, but I can tell you that sometimes I just needed to know that someone else had walked in my moccasins and knew how I was feeling. If I can do that for any of you, don't hesitate to call on me! My struggle is not over with thyroid issues, but I have come to the point where I am at peace even in the midst of the struggle.

Godspeed. I pray your journey will be fruitful and bring you greater peace than you ever thought possible.

Kathryn



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RUBYYR's Photo RUBYYR SparkPoints: (33,750)
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1/2/09 1:53 A

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Welcome new members! Our team is growing!

I'm so glad that your voices were spared. I only recently learned that there are specialists who have excellent results preserving the voice with thyroid surgery.

Happy New Year everyone!

“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss
ACWITNESS's Photo ACWITNESS Posts: 78
1/1/09 9:24 A

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Hi folks! I joined here yesterday and am so glad I found this group. I was just reading the posts from the vocalists in this group and just wanted to say that I am praying for you to regain not only what you had, but even more. I too am a singer, a worship leader at my church. I sang professionally in clubs for 20 years before I became a Christ follower.

Before my surgery (TT 12/15/08) I, too, had lots of anxiety at the possibilty of losing my voice. I've had so many "careers" throughout my life, but singing is the one thing that has always stuck and never gotten old - very much a part of who I am. When my surgeon was discussing the possible risks of the surgery, I sort of just said to her "Yeah great, I'm a singer." My way of dealing with scary stuff is New England style sarcastic humor :) Well, she immediately took note of my concern and marked it on her chart, promising to take extra care of my voice. I was amazed that she was so considerate and I was very thankful.

A dear lady from my church called me the morning before the surgery to pray with me. She went through the same thing 30 years ago. She was prayed for and her vocal range actually increased! Well, this is what she prayed for me. I thanked her thinking, yeah, we'll see. At some point I remember thinking that if I lost my voice, I would just have to become a dancer. I would find a way to praise Him no matter what!!

When I awoke from the anesthesia, the first thing I did was ask for pizza. No, they didn't give it to me ;) But they were amazed at how good I sounded - not even scratchy from the tube. I sounded completely normal. I not only retained the highs that I had, but actually increased the low range! I am at least as thankful to God for that as I am for having the cancer discovered and removed.

I still have to get through the RAI and all that comes with it, but my faith is stronger than ever and I'm using that faith to pray for all of you.

Sorry for the book I just wrote - if you read all of that you deserve chocolate :)

Debbi
"It's not heaven yet!"



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MYYEAROFHEALTH's Photo MYYEAROFHEALTH Posts: 130
12/31/08 2:17 P

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Hi, everyone. I'm new here, too. A little over a year ago, I had my left thyroid lobe removed, and there was a microcarcinoma in it. Yesterday, I had another biopsy on the right lobe, and it may have to come out, too. I hope to get help and inspiration here while I'm working on regaining my health.

Myoh
(My year of health)


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ALASKASUNSHINE's Photo ALASKASUNSHINE Posts: 48
12/31/08 11:33 A

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Life is hard but...
God is good! words by Pam Thum
Stay strong and be of great courage, God is with you. When I had RAI I was loking out the window at the hospital and I was very aware that even though no one could be in there with me for 2 days God Almighty was still with me. I can not tell you the peace that thought gave to me. We are just passing through...heaven is our forever home YEAH!
Blessings,
Sunshine :)

RUBYYR's Photo RUBYYR SparkPoints: (33,750)
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12/28/08 6:51 P

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It's nice to know I'm not the only one...

thanks for sharing your story Shelley

Ruby emoticon

“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss
BELLE52877's Photo BELLE52877 Posts: 174
12/26/08 9:24 P

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BLCopera,

I haven't been on to post in a while but I wanted to respond to your posting. I can totally understand where you are coming from. I too am a classically trained singer (though I am now pursing a career in nursing... long story, ANYWAY). I was also devastated with the probability of not being able to sing as a result of surgery and it was almost more heartbreaking than knowing I had cancer. Only other singers can understand this sort of thing as I was told by many people that I was crazy for feeling this way. In fact I think I scared my surgeon with all of my pedagogical questions! But, as you know singing is something so personal for us that it is a part of who we are, not just what we do. I had to literally FIGHT with the anesthesiologist to get him to use a small intubation tube- he didn't see the point, and when I explained to him that I was a TRAINED singer, not just a "sing along with the radio" singer, he conceded but he wasn't happy. I really didn't care - I figured I would do what I could to protect my vocal folds any way possible.

I too have been working since my surgery last year to rebuild my voice and the road has been hard but progress is always being made. The first thing I did right after surgery while I was by myself was try to vocalize. This was probably not the best thing as it made me incredibly emotional. Though it did give me the drive to keep trying. I had a lot of disappointment in those first few months but I was determined to keep working.

I sing with a professional symphony chorus and at first the rehearsals were so exhausting. I would barely get through warm-ups before I was too tired to sing. Eventually though it started becoming easier and my range has almost returned to where it was previously, though my high notes are not what they once were and the agility I had before is sluggish.
It took me a while to rebuild my confidence for solo work, but it came with time. I would have classified myself previously as a lyric coloratura soprano, but the post surgical voice at this point is more along the lines of a light lyric. Though this could also be due to age as I just turned 30 when I had surgery.

The only other singer I have ever met who had thyroid cancer (or any neck surgery for that matter) and was also a singer was my very own voice teacher from college. She was such an inspiration to me and I wish I had fully comprehended at the time what she was going through. Now that I have been through it myself it is really eye-opening and it makes me appreciate the gift so much more than I ever did before.

I am sorry I have rambled on for so long, it is just good to share a small part of my story with another person who really has been there too and hopefully give you some hope that with time and work, you can get yourself back on the stage.


Bocca al Lupo :)


Shelly (Belle)

A dream is a wish your heart makes, when your fast asleep....


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ALASKAN's Photo ALASKAN SparkPoints: (37,730)
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12/24/08 7:02 P

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Merry Christmas and a Happier New Year, Ladies. I can not give you gifts, but I have a lot of emoticon to share... Always, ERNA

Live 1 day at a time and live it to the fullest. Wish you all the best that life has to offer.... Stay focused, positive and it will get you where you want to be or done in life itself.
My name is ERNA



I'm leader of a new team : "A Safe and Happy Home For Grievers"

www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=22259


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RUBYYR's Photo RUBYYR SparkPoints: (33,750)
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12/22/08 9:32 A

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I want to sing with the choir but the snap, crackle pop! OH MY! I may just do it anyway. emoticon

“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss
DEBBIEZ56 SparkPoints: (0)
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12/19/08 3:24 A

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. emoticon emoticon emoticon . emoticon emoticon emoticon . emoticon emoticon emoticon

I, too, had voice changes after my thyroidectomy, I still sing at church, but I can only sing for so long and then it becomes painful, so I just wisper the words t myself. My thyroidectomy was in April of 2006, so I don't expect it to get much better. Still... I am blessed with two years of clean annual scans and I can sing to the Lord no matter what my voice sounds like

Edited by: DEBBIEZ56 at: 12/19/2008 (03:28)
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12/19/08 1:43 A

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Hi BLC,

I too had voice changes and I recently spoke with a speech pathologist I know who said there are exercises that can be done to prevent voice damage - or to get it back.

there are ENT doctor specialists that specialize in this. I can get you the name of 2 in Orange County - near Los Angeles. she said the best results are obtained closest to surgery so it sounds as if you're on the right track with a coach.

I still get sad at the loss but I can imagine it must be much worse for a professional singer!

My voice did improve greatly after 2 years but I still have zero range :-(

but as my husband tells me when the gloomies set in, "it's better than the alternative".

Welcome to our group!

Anyone else have voice changes? What have you done about it?

“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss
BLCOPERA's Photo BLCOPERA Posts: 39
12/18/08 6:36 P

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Hello everyone and HAPPY HOLIDAYS!!

2008 brought thyroid cancer (papillary as well as follicular variant of papillary carcinoma) into my life. I had a PT in April(immediately followed by a hematoma evacuation which saved my life) and then the other half was taken in June. I had 100 mcg RAI (what an awful, lonely weekend) in June as well. I have had 2 increases of Synthroid (presently on 175). I see my Doc tomorrow to go over my blood work.

It has been quite a ride as you all know. I think the most difficult part for me was not so much hearing that I had cancer as much as hearing that I had to have surgery to my neck. I am a classically trained (opera) singer and that was devastating to hear. My Doc said there was a good possibility that I would never be able to sing again. I had to make peace with this fact before I had my first surgery.

Well, I have retained the voice, although not the range I had prior to the surgeries. I have been working with a coach and I hope to perform again in 2009. It has been a tough road back and things don't work as easily as they did once, however, these things take time. And that is something I have a lot of thanks to God and being cancer-free!

So glad to be here.
BLCopera

"whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things. "
Philippians 4:8


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DEBBIEZ56 SparkPoints: (0)
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11/9/08 8:01 P

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emoticon emoticon emoticon
Thanks so much for all your warm welcomes.... I appreciate your offers of support.
Sincerely,
Debbie

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ALASKAN's Photo ALASKAN SparkPoints: (37,730)
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11/9/08 7:33 P

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welcome & hello Debbie,
I will try to help as much as you may need. We all support and encourage one other. Hope you will enjoy yourselves and as we like having new members come in. Don't be afraid to ask any of us if you have questions, b/c we all were in your same situation when we joined. I have had cancer 3 different times and a survivor for the last 5years in a row..... Always, ERNA


Live 1 day at a time and live it to the fullest. Wish you all the best that life has to offer.... Stay focused, positive and it will get you where you want to be or done in life itself.
My name is ERNA



I'm leader of a new team : "A Safe and Happy Home For Grievers"

www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=22259


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RUBYYR's Photo RUBYYR SparkPoints: (33,750)
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10/26/08 2:03 A

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How's everyone doing this weekend?

emoticon

“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss
BELLE52877's Photo BELLE52877 Posts: 174
10/17/08 8:21 P

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Debbie welcome to the group. It sounds like you have been through quite a bit. We are all here to support you in your journey. Everyone in this group is at all different stages of thyroid cancer and weight loss so we are here to get each other through our struggles. Keep us posted and let us know how things are going for you.

Shelly (Belle)

Shelly (Belle)

A dream is a wish your heart makes, when your fast asleep....


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RUBYYR's Photo RUBYYR SparkPoints: (33,750)
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10/17/08 7:53 P

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Welcome to the boards Debbie! We're all pulling for you as you go through this difficult time. Keep us posted on your progress and let us know how else we can support you!

Ruby emoticon

“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss
DEBBIEZ56 SparkPoints: (0)
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10/17/08 12:15 A

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emoticon emoticon emoticon I was diagnosed with bilateral papillary carcinoma in April of '06 after having a total thyroidectomy for Hashimotos thyroiditis. I had 107 miC of RAI in May of '06, after following a low iodine diet for 3 weeks. In July I had a heart cath, to follow up on the chest pain I had while I was hypothyroid prior to the the RAI. It was OK, just a 30 % blockage of one artery, but the treatment was to take Zocor and lose weight. Like a lot of people I haven't been very successful at losing the weight. I've also had two surgeries for carpal tunnel one for each wrist. Then I had diffuse multi-level spinal stenosis, causing progessively more problems with my legs and arms. I'm not supposed to exercise except in warm water, but since I've now had a cervical and a lumbar surgery to free as many of the compressed nerves as possible, followed by Physical Therapy in a warm water pool after each surgery, now I'm exercising in the cold water of the pool at my apartment. I had multiple lumps in my breasts after this last episode of being hypothyroid, but they didn't find anything on my mammogram or ultrasound, so the surgeon says we just wait until next year's mammogram. After my lumbar sugery in May of this year, I've had difficulty with constipation and now I have what we are calling a hernia in my left lower abdomen. The surgeon will be repairing the hernia. later this month, on the 29th. Please remember me in your prayers.

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9/5/08 2:47 P

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emoticon

Welcome Lainie!

It's nice to see our group is growing. Let us know how we can support you.

Ruby

“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss
BELLE52877's Photo BELLE52877 Posts: 174
9/4/08 8:11 P

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Lainie

Welcome to the group. You will definitely find people here who know what you are going through and can lend support! We are so glad you found us. emoticon

Shelly (Belle)

A dream is a wish your heart makes, when your fast asleep....


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BELLE52877's Photo BELLE52877 Posts: 174
9/4/08 8:08 P

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Welcome to our group Angie! This group is still a small one but there are alot of great people here so let us know how we can help! Glad you are with us! emoticon

Shelly (Belle)

A dream is a wish your heart makes, when your fast asleep....


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ALASKAN's Photo ALASKAN SparkPoints: (37,730)
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9/4/08 6:54 P

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welcome & hello Lainie
It's good to see and meet you here on Thyroid Cancer team. Good luck on your goal(s) and I'm here if you need help on this site. Take care and talk to you soon. Stay focused and have a positive attitude will help. I'm here to keep you encouraged and to be supportive.

Live 1 day at a time and live it to the fullest. Wish you all the best that life has to offer.... Stay focused, positive and it will get you where you want to be or done in life itself.
My name is ERNA



I'm leader of a new team : "A Safe and Happy Home For Grievers"

www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=22259


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LAINIE512 SparkPoints: (0)
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9/4/08 6:22 P

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Hi,

My name is Lainie and I just found this group.

I had a TT on January 2007 and then in June 2008 they found a tiny node and did a biopsy and it was suspicious. Had to have surgery and it was cancer. They couldn't understand that it didn't show up on bloodwork and all my endo e-mailed for opinions from drs all over the country. Decision was not to do RAI since my follow-up WBS didn't show anything. They will watch it with ultrasound.

I am glad I found this group at least I have people who can understand me.

Lainie

Take life one day at a time and know you can do anything you want to


 
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RUBYYR's Photo RUBYYR SparkPoints: (33,750)
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9/4/08 12:01 A

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Welcome to our team Angiemarie!

emoticon

Getting past the initial hurdle of surgery & RAI treatment is such a relief! It's great you found us as we continue on this weight loss journey together. Ask questions, if you have any and jump in and offer any suggestions you may have learned on your way.

Ruby

emoticon

“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss
ALASKAN's Photo ALASKAN SparkPoints: (37,730)
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9/3/08 11:28 P

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welcome & hello Angie
It's good to see and meet you here on Thyroid Cancer team. Good luck on your goal(s) and I'm here if you need help on this site. Take care and talk to you soon. Stay focused and have a positive attitude will help. I'm here to keep you encouraged and to be supportive.



Live 1 day at a time and live it to the fullest. Wish you all the best that life has to offer.... Stay focused, positive and it will get you where you want to be or done in life itself.
My name is ERNA



I'm leader of a new team : "A Safe and Happy Home For Grievers"

www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=22259


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ANGIEMARIE55's Photo ANGIEMARIE55 Posts: 3
9/3/08 11:23 P

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Hi everyone! My name is Angie and I am 25, soon to be 26. I am new to this team and somewhat new to sparkpeople. I am a thyroid cancer survivor!! I was diagnosed with papillary carcinoma in January and finished my radioactive iodine treatment in June. I am a wife, mother to a 2 year old and 2nd year medical student. I am hoping that this time around, I will lose the weight;-)

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RUBYYR's Photo RUBYYR SparkPoints: (33,750)
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8/30/08 1:08 A

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Welcome Alaskan! I saw where you posted on the huddle you've been at SP for 2 years and 2 weeks! WOW! I've been here just a little over 2 months and think it's great.

I visited Alaska last summer and pretty much fell in love with it. I know you're not there now, you must miss it but then I hear Kentucky is pretty beautiful as well. I've never been there.

Welcome again!

Ruby

“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss
ALASKAN's Photo ALASKAN SparkPoints: (37,730)
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8/29/08 9:19 P

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Thank you, Belle

Live 1 day at a time and live it to the fullest. Wish you all the best that life has to offer.... Stay focused, positive and it will get you where you want to be or done in life itself.
My name is ERNA



I'm leader of a new team : "A Safe and Happy Home For Grievers"

www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=22259


 current weight: 145.0 
 
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BELLE52877's Photo BELLE52877 Posts: 174
8/29/08 9:06 P

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Welcome to the group Erna!

Shelly (Belle)

A dream is a wish your heart makes, when your fast asleep....


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ALASKAN's Photo ALASKAN SparkPoints: (37,730)
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8/29/08 2:10 P

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Hello Ladies,
First, thank you Ruby for the invite.
My name is ERNA and I am thyroid cancer survivor. I had my thyroid taken out in 2003. The doctor said that I had cancer on it. I'm a Mother of 3 grown sons. Their ages are 36, 31, and 18.

Hope you Ladies will have a nice Labor day weekend, take care and talk to you all soon.

Edited by: ALASKAN at: 8/29/2008 (14:09)
Live 1 day at a time and live it to the fullest. Wish you all the best that life has to offer.... Stay focused, positive and it will get you where you want to be or done in life itself.
My name is ERNA



I'm leader of a new team : "A Safe and Happy Home For Grievers"

www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=22259


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GENIADR's Photo GENIADR Posts: 225
8/4/08 10:44 A

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Way to go thanks so much, I hated that blank picture this is much better,

hope finals went well and the singing went off without a hitch,

Happy Monday

Never Let The Odds Keep You From Doing What You Were Meant To Do.


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RUBYYR's Photo RUBYYR SparkPoints: (33,750)
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8/4/08 2:20 A

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It's perfect!

Thanks Belle, I hope you did well on you finals!




“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss
BELLE52877's Photo BELLE52877 Posts: 174
8/3/08 9:29 P

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Hey I finally posted a picture for our group. Sorry it took so long but I had finals this week and I am getting ready to sing at a wedding so things have been hectic.





Shelly (Belle)

A dream is a wish your heart makes, when your fast asleep....


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GENIADR's Photo GENIADR Posts: 225
8/1/08 5:02 P

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I think that would be Super, anything but a blank screen and my weeks on the Iodine Diet was so bad (at Thanksgiving) but a week later it was pretty much forgotten.
Happy Friday.......Looks great to me,

Never Let The Odds Keep You From Doing What You Were Meant To Do.


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RUBYYR's Photo RUBYYR SparkPoints: (33,750)
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8/1/08 3:02 P

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Hey Team,

I found a digital image of the chemical structure of Iodine. It's from wikimedia commons and is in the public domain. http://commons.wikimedia.org/wiki/Image:Io
dine-monochloride-crystal-3D-vdW.png

I pasted it as my profile pic instead of my photos but you can see it right here and we can decide. It's kind of abstract art and represents Iodine, an element very near & dear to us "Thycanians", well it's near & dear to me. Between a Low Iodine diet for weeks on end, and the elegant "silver bullet" of Iodine 131 which targets just the cells we want. It has my vote.

But I'm a flexible and a democratic kind of gal so what do you guys think?

Ruby

“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss
RUBYYR's Photo RUBYYR SparkPoints: (33,750)
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8/1/08 2:23 P

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I agree about the need for a picture for our group. Do you guys have anything in mind? I was looking at google images yesterday but didn't really see anything that struck my fancy. I think only Belle can post it but we can send one to her!

I was thinking some kind of nature picture. I have some pretty shots of my roses. I don't want to post anything that's not for public use, I've got a thing about copyrights.

As far as pics for my profile? Well, I'll have to work on that one.

I had my blood drawn this morning and re-started my synthroid and cytomel immediately after (in the car!)

I hope to be back up to "speed" by Sunday. I'll only take the cytomel for a few days and then go off as the synthroid starts to kick in. :-)

Results take a couple of weeks. I'll keep you posted.

Have a great day!

Ruby



“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss
GENIADR's Photo GENIADR Posts: 225
8/1/08 10:01 A

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Good Morning and Thanks so much for the welcome, I will check out the website, I looked at it a little last night after my 15 mile bike ride but I was to pooped to read anymore so I will look at it this weekend, Thanks so much I am looking forward to the support here and just learning from each other.

But we NEED to get a picture up for our group I think only the founder can set the picture, Common girls get your profiles up there too. Talk to you guys soon, Genia

Never Let The Odds Keep You From Doing What You Were Meant To Do.


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BELLE52877's Photo BELLE52877 Posts: 174
7/31/08 10:23 P

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Genia

Welcome to the group. I started this group because I think we thycas need a little extra support! It is a good place to trade stories with people who know what you are going through.

Ruby is right thyca is a great resource and you can find so much information there. They have links to two good websites with a lot of clinical information as well (American thyroid association, and the national cancer institute etc.)


Good luck at the endo on tuesday! Hopefully everything goes well.

Shelly (Belle)

A dream is a wish your heart makes, when your fast asleep....


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7/31/08 6:49 P

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Hi Genia,

Welcome to our small but mighty group! Great to hear from you! Did you check out the link to Thyca I posted on the other thread? There is a ton of information over there.

Getting diagnosis of cancer is pretty shocking. I didn't know my diagnosis until a week after surgery for removal of a nodule. I had 2 NORMAL fine needle biopsies done on the nodule over an 18 month period of time. They decided to remove it because it never went away or got smaller. So I can relate to the way you found out about your diagnosis.

It sounds like you're doing great, though! What does your endo want your TSH to be? I'm not exactly sure what your question is. Are you thinking your TSH is too low and your endo will want to reduce your synthroid and you are worried less synthroid will slow the weight loss?

So, keep on doing what you have been doing and check with your endo about TSH levels and get your testing done!

Let us know how you're doing!

Ruby

emoticon

“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss
GENIADR's Photo GENIADR Posts: 225
7/31/08 4:40 P

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Hi, guys I am new here and with a lot of things. I just thought I would see about getting an answer to some questions and I thought I would check Teams and I found you guys,

So I had a goiter removed in October 07 which after biopsy I was diagnosed with Papillary Thyroid Cancer, I had RAI in November ( that was horrible i was on the no-sodium diet over Thanksgiving.

After being totally exhausted for a couple of months I started working on ME April 15. Right after tax season, since during tax season I am a working fool.

So things have been going great for me. I feel good and I have been loosing very steady, exercising and eating healthy ( for the first time in a long time) NO fast food at all ( I think that has helped) So last week I had my labs done and my TSH was .02. I see my endocrinologist next Tuesday but any thoughts. I don't want to change anything that would take me off the weight loss path.

Help, it is so great to know others in the same situation, I tried the Thyroid Community Room but there was so much info about stuff I knew nothing about. I think I needed it to be more specialized, I am so new at this. I was having some problems and they thought it was because of my goiter so that is why it was removed. Cancer was the furthest thing from my mind,

Talk to you soon, Genia emoticon

Never Let The Odds Keep You From Doing What You Were Meant To Do.


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RUBYYR's Photo RUBYYR SparkPoints: (33,750)
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7/29/08 10:24 P

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Hi Shelly,

I sent you a mail message too! I'm happy to hear from you.

I had surgery & RAI in 2002 and have always tested negative. I had no testing last year but it's time for throglobulin testing this Friday. I'll be able restart meds right after, yay! I usually handle the hypo pretty well, everyone tells me I'm acting "normal" (ha! whatever that is) but I can tell I'm kind of goofy. I am tired though.

I'm sorry to hear about your need for re-treatment, hopefully it will take care of any residuals. I agree, the low iodine diet is not fun.

Remember to bring hard sour candy during your rAI treatment and lots of water! The candy really helps protect your salivary glands. Will you have the RAI right after surgery or will they wait a few weeks?

I've been losing weight for the past 6 weeks or so (20 lbs last week, yay!), we'll see how this week has been tomorrow, it's a weigh day. I've started going to weight watchers at work but am following the spark plan since I started it first. I tried tracking points and calories, etc but that lasted 3 days, it's just too much!

I do like the support and the tips from my ww meetings and getting weighed is helpful and consistent. I track my food & exercise on here on SP and so far it's been great! So far I'm doing what is in front of me and having positive results so I have no plans to change anything at the moment.

I've been playing with my synthroid as well and have a hard time not getting too hyper. But hyperthyroid and all, I continue to gain weight so I don't really believe there is much of a connection with thyroid hormone & weight gain, at least not with me anyway.

I started exercising regularly last October and never lost one ounce. I started tracking my food and voila! The pounds are leaving. I continue to exercise 4 days a week with my exercise buddies. They truly help a lot. I would have stopped months ago had they not been there. OK, looking forward to hearing more.

take care!

Ruby



Edited by: RUBYYR at: 7/29/2008 (22:23)
“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss
BELLE52877's Photo BELLE52877 Posts: 174
7/29/08 3:26 P

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Ruby

Thanks for introducing yourself. I am sort of limbo right now with my journey. I just had my surgery a year ago and treatment was at the end of september. All was well until 2 months ago and I had tumor markers appear in my lab work. I am scheduled for a biopsy in a few weeks so I will know more then. If I have a recurrence (local lymph met.) then I will have surgery, and RAI again. Not looking forward to going hypo and doing the LID again that is for sure! That has to be about the worst diet I have ever had to be on. I also have the cookbook which is really helpful.
I have had a very hard time losing weight because we just can't seem to get my synthroid adjusted. My TSH is always high. I also have a problem with Vit. D and Calcium absorbtion since my surgery.

So why are you going hypo? Are you getting ready for RAI treatment?

Shelly (Belle)

A dream is a wish your heart makes, when your fast asleep....


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RUBYYR's Photo RUBYYR SparkPoints: (33,750)
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7/25/08 9:41 P

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Hi Shelly! I am so glad you started this thread!

I'm in the process of going h y p o at the moment. Hopefully for only another week and a half and of course am concerned about a slowing weight loss but mostly I'd just like to connect with others who understand.

I've not been on a low iodine diet for a long while but I do have a low iodine cookbook from Thyca.org Where are you on this journey?

Anyone else out there? Jump in!

Ruby

“Fall seven times. Stand up eight.” Japanese proverb

don't cry because it's over, smile because it happened. ~ dr. seuss
BELLE52877's Photo BELLE52877 Posts: 174
7/18/08 9:17 P

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Hello. My name is Shelly, and I have stage 2 papillary thyroid carcinoma. I wanted to create a sparkteam for those who are affected with thyroid cancer to have a place to discuss things like low iodine diet, going hypo, weight loss (and gain) and anything else that might help us on our way. Hopefully we all can learn a ton!

Shelly

Shelly (Belle)

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