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GIRLHALFFULL's Photo GIRLHALFFULL Posts: 670
7/9/12 12:00 A

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Hi to all... Was recently diagnosed with Hashimoto's and just finished more labs, an ultrasound and heading into a my first follow up appointment soon. Most likely a biopsy is going to be discussed and I'm in the midst of trying to research all I can so that I can take a proactive role in dealing with this. It's still all so new and I'm a bit shell shocked and overwhelmed, but managing. Glad to have found a team to look to for support.

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_JULEE_'s Photo _JULEE_ SparkPoints: (200,287)
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7/6/12 9:48 P

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FidgieGirl, what are you taking and when?

Some supplements really should be taken earlier (like most B vitamins) and others are good later in the day to evening (like Magnesium if it makes one sleepy).



We must all suffer from one of two pains: the pain of discipline or the pain of regret. -- Jim Rohn

Do whatever you do intensely. -- Robert Henri

Training is the opposite of hoping -- nikewomen.com
www.intrinsicalchemist.com


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FIDGIEGIRL's Photo FIDGIEGIRL Posts: 113
6/16/12 11:18 P

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Hi all

I can't remember if I did an introduction before. I don't log into SP very often anymore but am currently doing the 10 minute a day challenge and so I thought I'd pop in on this group. It's a big comfort to me to know that it is here and that others are going through the same questions I am.

I was told I had Hashimoto's several years ago, then saw a series of docs who thought I was crazy, and finally am seeing a doc who recommended I go off gluten and I feel a million times better. I was having lots of GI issues, which is what initially brought me in. I almost didn't even mention the thyroid issue - mentioned it only very off-handedly so as to avoid getting the "you're crazy" look ONE MORE TIME. She was finally able to put all the pieces of the puzzle together. I take T4 and T3 and selenium and some other supplements at her recommendation. Feeling good but after I saw her last time I changed the times of day I was taking some of the supplements to the evening and almost overnight was having some fatigue issues. However the labs are so expensive on my current insurance I am going to try to ride it out into the new year. I had no idea the true costs of what I need when I chose this plan, and will be going back to my other plan!

I no longer use the scale as a metric - it's disappointed me too many times and taken my eye off the real goal - feeling better. The GF diet makes that happen. Avoiding dairy makes that happen. The 10 minute a day fitness streak makes that happen. Early morning runs in the crisp air make that happen. So those are what I focus on. I did SP trackers and food measuring and all of it faithfully and moved the needle on the scale about 5 pounds and then no more and burned out with my anal-retentiveness over the tracking. Little did I know I was stoking a fire in my gut with all the gluten I was eating! But I haven't yet reconciled the emotional and intellectual understanding of that and now the scale is almost a source of fear for me due to so many failed attempts to lose weight. So weird! But it is what it is. I just try to keep working from a place of pretty good health toward a place of even better health!

Thanks all for being here. I learn a lot just from reading the threads! Best of luck to all in your health journeys.

Edited by: FIDGIEGIRL at: 6/16/2012 (23:23)
Kelli


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GOODBOOKFAN's Photo GOODBOOKFAN Posts: 33
6/9/12 3:31 P

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Hello, everyone!

I REALLY like the idea of helping the body to heal itself as much as possible, so your group name really stood out for me! :) I'm looking forward to learning with/from you how we can get healthy in as many ways as possible.

I was diagnosed with hypothyroidism/Hashimoto's 15 years ago. I wanted to believe the doctor that Synthroid (or equivalent generic) would be all I needed. But after 15 years, I'm still showing signs that my thyroid is NOT happy, and have FINALLY begun to research options. My current "issues:" I have rather heavy menses (10 ounces minimum on my "heavy" day alone--I use a Diva cup, so I can measure); have been slightly anemic for a few years; my hair is dry and brittle; as for energy, WHAT energy level?; occasional bouts of constipation; weight gain even while monitoring calories AND exercising; and weird skin. Hm....something is not quite right...the doctor never addressed ANY of these things. Hm...I'll be interviewing for our next enrollment period (insurance).

I bought Mary Shomon's book about balancing menopause and thyroid last month, which motivated me to DO something! So far, I've requested the free T3 and free T4 tests. After three days of e-mails with the doctor, she agreed to sign off on them (late Friday), but then said I should see an endocrinologist? I'm out of her comfort level! I haven't had time to get the tests done. Monday morning, I'm going in!.

I stopped eating gluten about two years ago, have done LOTS of detoxing, from what I put ON my body, to what I put IN it (organic, non-toxic foods and cleaners, including toothpaste, laundry detergent, dishsoap, shampoo.....). I have learned to cook cruciferous veggies first, and have bumped up my healthy fiber, with veggies and beans, mostly. And I've finally found an exercise plan I can commit to.

So....I'd welcome any thoughts you may care to share with me on what to do next.

If you aim at nothing, that's what you'll hit. What are we aiming at?

But I press on towards the goal to win the prize for which God has called me heavenward in Christ Jesus.--Phil. 3:14

Help me Jesus to seek YOUR highest goals!!!







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ROWEENA's Photo ROWEENA Posts: 589
6/6/12 12:44 P

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Greetings,
I was diagnosed with Hashimoto's in September of 2010 when my symptoms got so bad I literally could not get off the couch. It was frightening how bad I was. Well, at least if I'd have had the energy, I'd have been scared as it was... emoticon I know that I was suffering from the disease, undiagnosed for many years prior, I had all of the symptoms except constipation, (there are some things to be grateful for). I remember over 15 years ago being so proud of my immune system because while coworkers were getting severe flus and colds I would avoid them entirely or have mild symptoms comparatively. I stopped ever running fever also. Well Proverbs says, “Pride goes before destruction, a haughty spirit before a fall.” enter an autoimmune disorder.

I am now 55 years old and although I initially lost 20 lbs, I have been holding steady at about 301-309 since. Since this is an autoimmune disorder, I am looking for information to help my immune system get right. I recently bought “The Thyroid Diet Revolution” and am finding it very informative. I am currently taking Levothyroxin (T4) 100 mcg, as well as 5 mcg of the Liothyronine (T3). I recently started taking a high quality multi-vitamin supplement, B complex and vitamin D, (my vitamin D levels were almost nonexistent). In addition to hypothyroidism, I have also developed an inflammation of my eyelids that I have to treat with a steroid cream once a week, and now my knees are also degenerating. Any advice or information that anyone can give me would be greatly appreciated. I am so glad that I found this team. Thank you
emoticon

"It's hard to beat a person who never gives up." ~~ Babe Ruth
***
Sleeve 08/20/2014
Pre-Surgery weight 316
Goal weight 163
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LADYDIVINE67 SparkPoints: (118)
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4/13/12 1:15 P

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Sorry, I was looking for a group support on Graves Disease/Hyperthyroid not realizing that Hashimoto in for Hypothyroid.

Unfortunatley, the group I was looking for has not any response for 2 months.. Thanks Anyway :-)

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4/13/12 1:11 P

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Hello, My name is Sonya

I have just been diagnosed with Gravers Disease/Hyperthyroid. I would like to learn on how to naturally cure my disease. Are there any herbal Medicines that can help with a racing heart, anxiety and insomnia? I was just prescribed Tapazole and Metrapolol ... and I dont want to take meds for the rest of my life unless I have too...

Edited by: LADYDIVINE67 at: 4/13/2012 (13:17)
PROCOPIOZOO's Photo PROCOPIOZOO SparkPoints: (2,421)
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4/10/12 10:31 A

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Hello, my name is Michelle.
sorry went through x2

Edited by: PROCOPIOZOO at: 4/10/2012 (10:34)
PROCOPIOZOO's Photo PROCOPIOZOO SparkPoints: (2,421)
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4/10/12 10:03 A

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Hello, my name is Michelle.
I was FINALLY just dx with this as well. My endo started me out on 75 mcg of Synthroid. It's only been a week and I can feel that my thyroid size has decreased some already. I hope to start feel more energy soon.
What has everyone else's experience been with it?

I have been trying to lose weight since my last child( now 2) . I have been able to lose 35lbs( I gain a ton each preg) in the past year, dieting and exercising 4-5 times a week, but it had slowed to nothing with aLOT of effort! I would still like to lose 20 more.

I am very interested in this group and seeing natural ways to increase / supplement my thyroid. So thankful to find this group.


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3/27/12 2:32 P

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Hello. I'm Chelsea and I have been taking Nature-throid for over 10 years along with iodoral and selenium supplements to help control my Hashimoto's. I have been struggling with my weight for many years and at least now I am not gaining anything. Trying to lose 50 pounds.

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JSMOM5 SparkPoints: (1,147)
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3/19/12 1:42 A

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Hi, I'm Julie & I am 33 yrs old. I was diagnosed with Hashimotos/Hypo in 2000, by 2007 i was on the right meds, finally. I had heart palpatations, like I thought I was going to die several times. My heart finally feels normal since 2010. I've been big my whole entire life. I lost half my hair and fainted several times in 1999, they thought I had cancer. My doc did every test except check for throid because aparently i didn't have the usually stand out symptoms. I gained about 30 lbs a year for a few years and ballooned up to 315. I am currently 233 and it took me a year, well a little over a year to lose it. I'm stuck again right now, its terriblw. . I'm so glad to have found this group of people. My brainfog has pretty much taken over. We've been trying for child #2 for about a year with no luck. :( I have three nodules. I have the absolute worst circulation, always freezing. Once i get cold, not even a very hot bath will help. My family for a camping a lot, I used to love it & for the last 10 yrs, I hate going, i freeze, im misserable at night. My tsh was 380 when diagnosed in 2000. My doc almost fell to the floor and kept hugging me. I am currently 4.3, insane. Been taking synthroid 137 mg ever since. I feel I really need to go up a little though.

-Julie


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SOLUNDRA SparkPoints: (1,692)
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2/17/12 11:55 P

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Hello! I was just diagnosed with Hashimoto's after years of knowing something was wrong and it just getting worse and doctors kept telling me it was just because I was fat and lazy, and that I needed to exercise and eat less. Despite my problems, I have lost a total of 60lbs.. over 3 years.. but recently my symptoms got worse and I couldn't lose weight. I actually gained 10 pounds in a month despite exercise and diet and watching my calories. I went to a new doc and he did a variety of tests that were never done, including antibodies, and my Thyroglobulin antibody was 210.9 (1-30 is normal) and my TPO antibodies were 1900 (1-60 is normal). I also have a 3.1cm lump on my thyroid that I am getting biopsied next week... SIGH. On one hand, it sucks that I now have this chronic disease, but on the other, I'm glad I have an answer and that I'm not a hypochondriac, which my last doctor accused me of being because I asked about the lump! Anyway, I'm determined to work with this and lose the rest of my weight and be healthy in spite of the set back. :)

SPARKLYEYES71's Photo SPARKLYEYES71 Posts: 99
2/3/12 11:16 P

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Hi, I'm Jeanette (feel like I'm at an AA meeting) and I have hypothyroid. I wasn't diagnosed until June of 2010 but I can tell you it gave out Oct 2009 because it was at that time I suddenly could hardly get out of bed much less drag myself through my day, energy-wise. My mom was just recently diagnosed (she's 80), so I guess that means it's hereditary. I'm on Levothyroxine 100 (mcg? whatever the unit is). I've been wondering why the weight loss came to a screeching halt not too long ago and has been such a struggle. Does Sparkpeople have a diet plan for hypothyroid like it does for diabetes?

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_JULEE_'s Photo _JULEE_ SparkPoints: (200,287)
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1/29/12 1:29 P

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Hi Darcy! emoticon

Do you take any supplements?

We must all suffer from one of two pains: the pain of discipline or the pain of regret. -- Jim Rohn

Do whatever you do intensely. -- Robert Henri

Training is the opposite of hoping -- nikewomen.com
www.intrinsicalchemist.com


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DARCYHARDY SparkPoints: (68)
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1/6/12 12:06 P

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Hi, my name is Darcy. I was diagnosed with Hashimoto's Syndrome and have been on thryoid medication on and off for 15 years. Nothing seems to work, lost my insurance and have not been taking any medication for over 2 years. Does anyone have any natural tips that might work? Glad to join this group

STEFFY2579's Photo STEFFY2579 SparkPoints: (500)
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1/1/12 9:11 P

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Hi Everyone! I've been diagnosed with Hashimoto's Syndrome & and under active thyroid. The diagnosis explains so much - depression, weight gain, exhaustion - teamed with the inability to sleep through a night (yeah that's a fun one).

For awhile I lived with the "I have a disease" mentality, and I stopping running, doing yoga, and somehow having the disease gave me license to eat the slice of pizza, brownie or extra helping. After snapping myself out of it I'm focused on being healthy. I refuse to let this rule my life. Nothing is more frustrating as not being yourself - and I haven't been in awhile. I used to run 1/2 marathons, wake up at 530 go for a run, work a full 8 hr day (on top of an 1 1/2 hr round trip commute) come home - hang out and still get a full night of sleep. I miss those days and myself.

The depression and fatigue seem to have hit me the hardest. I find that when I practice yoga I feel better. I'm looking for guidance from others living with this and how you can reclaim your life.

Stephanie

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11/3/11 8:55 P

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Hi, my name is Leanne. I do not have a diagnosis but have many symptoms from the blood tests they tell me that the thyroid is working. I have seen a Naturopath Dr. now and she is saying that she thinks it is a lazy thyroid and has put me on some herb to level my blood sugars and boost my thyroid. I found this team and feel you all can help me understand some of what has been happening with my body over the last few months to a year.

***********************
Leanne

Whatever it takes, I will do it!

Life is a journey, not a destination.


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NIKKIFREEDOM's Photo NIKKIFREEDOM Posts: 34
10/30/11 8:16 P

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Had my thyroid removed in Oct 2009. My throat was three times its normal size, neck swollen, heart palpitations, and a benign tumor hidden in one of the large goiters ( i had several). My scar ended being the length of the entire front side of my neck instead of 2 inches. And since the surgery i still don't have my health of my body back. Worst part is the insomnia and the weight gain. Was once 165lbs. Since surgery i balloned up to 206lbs. And im now down to 192lbs.


Nikki


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_JULEE_'s Photo _JULEE_ SparkPoints: (200,287)
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10/20/11 8:23 P

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Hi Amy! Welcome.

If you're willing to try vitamins and minerals, maybe you'd consider:

- A multi with a good amount of vitamin A OR a Cod Liver Oil supp that contains both A and D in good forms.
- A good B vitamin complex PLUS additional B2, Pantothenic Acid (yes, extra, separate ones) and B12
- Coenzyme Q 10
- The amino acid L-Tyrosine (helps turn on the thyroid)
- selenium

All these vitamins and minerals must be present in the body for the thyroid conversions to happen in order to make that T4 you're taking into the form that the body actually makes use of (T3).

There are also vitamin/mineral mixes available specifically for thyroid support. They're not a bad place to start for those who aren't used to taking vitamins and minerals. If you'll look at iherb dot com or vitacost dot com (or some similar that you prefer) and do a search for thyroid support, you'll see that there are many to choose from.

Don't hesitate to contact me if you need any further assistance.

All the best. emoticon

We must all suffer from one of two pains: the pain of discipline or the pain of regret. -- Jim Rohn

Do whatever you do intensely. -- Robert Henri

Training is the opposite of hoping -- nikewomen.com
www.intrinsicalchemist.com


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AMYZLUZINIT's Photo AMYZLUZINIT Posts: 311
8/14/11 8:57 P

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Hello everyone, I am Amy Smith and I have been dealing with Hashimotos for about 3 years now. I have had symptoms for 3 years before that. I am dealing with the roller coaster affect of my weight. I stay between 158 and 171, I want to be down to 150. I am on Synthroid 0.75 micro grams. I am in the Navy and I get weighed twice a year and I can't go over 164 pounds and right now I am 7 pounds over that. I have read some of the replies and it talks about a thyroid support med I was just wonder what they were talking about.

Amy

"Slow and Steady as we go!!"



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NEVERGIVEUP68's Photo NEVERGIVEUP68 SparkPoints: (20,120)
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7/26/11 4:57 P

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Hello, I am new to this team. I love the fact there is a team support for Hashimoto's. I have been on armour thyroid for last 6 years. My nautropathy doctor dignosed me. My family doctor ignore me even my antibotic was 1000.

BOXER_LOVE's Photo BOXER_LOVE SparkPoints: (17,993)
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7/14/11 9:30 P

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Hi my name is April & live in California. I have had hashi's/hypo since 2000. In December 2010 I had my thyroid completely removed. It was the best thing I ever did. I feel so much better. I am still adjusting meds. Currently I am on levothyroxin 200mg. One of my para thyroids were embedded in my thyroid gland & was removed. They are still not functioning & have to take calcium supplements everyday.

June 27th a friend of mine opened her personal training studio. She is training me 3x a week. I have not weighed yet but can feel a difference already.

I look forward in meeting everyone!

You know you had a good workout when you are bleeding sweat & tears... A. Holly


"Just living is not enough," said the butterfly, "one must have sunshine, freedom and a little flower".
~Hans Christian Anderson

Starting over: ~Take one step, one day, one moment at a time

~mini goal - be down 5lbs by Sept. 3rd. (279)

June 27th, 2011 - 291
July 16th, 2011 - 287.8


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COTTENBALL1's Photo COTTENBALL1 SparkPoints: (0)
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6/27/11 12:44 P

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GM all my name is Coco and I am from New Jersey or JOISEY for short. I discovered my Thyroid illness about15 years ago. I find it amazing that so many people suffer with the same symptoms but many different diagnosis from so many physicians. I am very interested in a more holistic approach to this disease. Hope all are enjoying Summer. TTYL

Coco

Edited by: COTTENBALL1 at: 6/27/2011 (12:45)

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STARTINGINLIMBO's Photo STARTINGINLIMBO Posts: 4,214
6/22/11 5:00 P

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Wasn't feeling all that great, as in was kinda down, so thought I'd better increase the thyroid support to 2 tablets instead of one. I feel like I have lots of energy now, and my mood is good. We will see if that continues. Sure hope so. Not sure I want to take four tablets a day (most you can take in a day, according to directions), since I'm already on half a pill of synthroid.

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STARTINGINLIMBO's Photo STARTINGINLIMBO Posts: 4,214
6/19/11 10:59 P

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Thank you. Ah, could be the Guggul did that to me last night. I was so busy today, and wasn't home this evening that I didn't get to take it, so I guess I will try taking it in the morning, four hours after the thyroid half a pill then, thank you! Yes, I make sure I get plenty of magnesium. I take a multi vitamin and other supplements. I love to use sea salt. I'll check out nutri-meds for those things, thank you. That would be so cool if I could get to where I don't need the thryoid med. Thanks so much. :)

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_JULEE_'s Photo _JULEE_ SparkPoints: (200,287)
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6/18/11 8:24 P

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Welcome Michelle!

The guggul in that Thyroid supplement isn't keeping you up? :) Guggul keeps me up. I take it early in the day when I'm using it.

Are you getting enough Magnesium and other minerals? If you're not already doing so, consider a good multi vitamin with minerals OR consider a mineral rich sea salt to add to your food like Redmond's Real Salt. Have you taken a look at nutri-meds dot com's thyroid and adrenal supplements? They are all top notch.

You're on such a low dose of levothyroxine, it may be possible for you to get to a point where you do not need it.

Best of luck to you!

j

We must all suffer from one of two pains: the pain of discipline or the pain of regret. -- Jim Rohn

Do whatever you do intensely. -- Robert Henri

Training is the opposite of hoping -- nikewomen.com
www.intrinsicalchemist.com


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STARTINGINLIMBO's Photo STARTINGINLIMBO Posts: 4,214
6/18/11 6:11 P

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Hi, I'm Michelle. My doctor placed me on synthroid 0.05 mg to be taken first thing in the morning, an hour before breakfast and four hours before vitamins or medicines (which I have no other meds currently). I used to be on cholesterol and blood pressure meds, but when I got down to 150 pounds, like the doc wanted me to, he said that my cholesterol and blood pressure had come down nicely, and he wanted me to get to 135 pounds next, saying he was taking me off my medicines (for cholesterol and blood pressure) now, and especially since I'd be losing more weight. He said I'd always have to be on my thyroid medicine. I wondered about that. I've been looking into it. It looks like there are ways to heal the thyroid -especially when you've lost weight, but it's kind of scary to play with ideas, ya know? However, I did get to the 135, but then gained weight again, having not seen him at the 135 mark, and it's been two years now since I've seen him. He doesn't want to give me my new prescription for the synthroid until he sees me and I don't want to go see him until I'm 135 again! So...I've decided to go for it, instead of just reading about it, try it (and he will be mad at me I'm sure....)- I'm cutting my pills in half (it'll last me five months that way), and I've started taking one (you can take four a day it says) of Natural Factors Thyroid Health Formula. I'm hoping that the latter will help start healing my thyroid, and kind of be "the other half" of my synthroid. The Thyroid Health Formula contains Pantothenic acid, iodine, copper, manganese, L-Tryosine, Ashwagandha and Guggul. I'm taking the pill half an hour or so before supper.It doesn't say when to take it. From all I read though, elsewhere, that sounded wise.
I do wonder if I might be feeling it working, or be sensitive to something in it, because I feel a little strange in my lip for a bit after having a pill. Sort of like baking soda on a canker sore, but slight. :)

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ALILBITSTRONGER's Photo ALILBITSTRONGER Posts: 13
6/17/11 11:07 P

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Hi, I'm Sarah and am 29. I was diagnosed with Hashimoto Thyroiditis after having symptoms for 8 years. My TSH levels have always been "normal". It wasn't until I saw the 4th doctor, that she done an antibody test. Needless to say, it was positive. I have horrible fatigue, joint pain, and brain fog. I was told by the first three doctors that I was just overweight, depressed, stressed... I was even told I was apparently seeking attention. It was very frustrating! There are doctors out there that will listen, you just have to find them.

"I am only One, but I am One. I cannot do
everything, but I can do something.
And I will not allow what I cannot do interfere
with what I can do." - Edward Everette Hale


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CQCCAC Posts: 2
6/7/11 3:02 P

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Hello Everyone. My name is Kim and was just told i have Hashimoto Thyroiditis a few hours ago and I knew Spark People would have all kinds of information for me and some friendly suggestions and help. They are still trying to regulate my medicine to get my numbers right but I know that will come in time and I am looking forward to just finding out as much as I can from all of you

VALSINNJ's Photo VALSINNJ Posts: 282
5/31/11 12:48 P

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Hi my name is Valerie and I was recently diagnosed with Hashimoto disease after years of struggling with all of the typical symptoms. At this time I am under no treatment plan for it though since my other TH levels are within the normal lab ranges. Each day is a struggle for me to function at all due to the fatigue and mind fog. I also have large nodules on my thyriod and am scheudled to have them biopsied by the Endocronologist I have been seeing.
Otherwise it feels like the medical community has dismissed all my other symptoms.

After doing my own research I have decided to try a gluten free diet to help elevate some of my symptoms.

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YIGOBUTTERFLY's Photo YIGOBUTTERFLY SparkPoints: (119,706)
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5/17/11 8:09 A

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Hafa adai, I have been hypo for several years but just diagnosed with Hashimoto Thyroiditis a few days ago. I want to learn more about what I have so I can feel better.

I have been with SP since November 2008 and have lost some weight but need to loose more.

Jane on Guam



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5/16/11 11:05 P

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Hi! My name is Alli, and I was diagnosed as hypothyroid in 2002 after a miscarriage. I was just recently diagnosed with thyroiditis, (my endo refuses to put the Hashi's label on) and I am currently on 125 mcg of levothyroxine. Why they won't say Hashi's is beyond me, because I have antibodies, & it's obviously autoimmune. I also have a hot nodule on my thyroid, but since I am hypothyroid, the levo seems to be sufficient treatment according to my endo. I see so many Hashi people here on Armour, & wonder why I haven't been put on it? What is the difference between that & levo? Anyway, It's nice to he part of this network. I know I'll find good support here. emoticon

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BLUEFISH2's Photo BLUEFISH2 Posts: 3,876
5/4/11 7:13 P

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Yon - Patience is not a strength of mine either. I try to remember something is better than nothing and not get too obsessed with getting it all right, right now. I tend to get into that "all or nothing" trap easily. Eat good and exercise today and your one day closer to your goal...tomorrow...do it again :-) If there was a quick fix I'd be all over it but haven't found one yet. LOL

Be who you are and say what you feel because those who mind don't matter and those that matter don't mind. - Dr. Seuss



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YONSTERR's Photo YONSTERR SparkPoints: (384)
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5/4/11 9:47 A

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Thank you, BLUEFISH.

I think what I really took away from your post is that it takes time. That's something that KILLS me. I guess I'm much more impatient than I realized.

It's funny, though - time truly does fly by. In the blink of an eye it will be the beginning of July...why don't I just eat right and exercise, and really quickly I'll be in a better place! emoticon

Seriously though - thank you. I wish you a lot of success also.

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BLUEFISH2's Photo BLUEFISH2 Posts: 3,876
5/3/11 9:22 P

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Hi Yon! It is frustrating but the more we try and learn what will work for you. We are all so different. I read a lot, not just about hashimotos but about food, exercise and health in general. I had to tune into how I was feeling and give each change I made some time to work. No easy task. All that said...after losing 60 lbs I fell off the wagon and gained it all back and here I am starting over and learning more about how to maintain my health. Some things that have worked for me: Real Food - the less processed food I ate, the better I feel. I try and incorporate as many whole foods into my diet as possible. A great blender and making my own smoothies is a big help to me right now. A great multi vitamin helps fill in whatever gaps in my nurtrition and helps curb my appetite and help when my energy is low. Sadly I found that dairy and coffee don't agree with me so I am working on eliminating them. Exercise a lot, I could eat one leaf of lettuce a day and gain weight if I'm not working out. Acupuncture has helped me. I'm sure a lot of this you have heard before. I wish you much success with your goals. Hang in there.

Be who you are and say what you feel because those who mind don't matter and those that matter don't mind. - Dr. Seuss



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YONSTERR's Photo YONSTERR SparkPoints: (384)
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4/30/11 8:35 P

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Hi everyone!

At this point in my life, I am very discouraged with my weight loss to date. I worked very hard from '09-'10 and saw almost no progress. I began to feel tired, sore, foggy, etc and it was only after an ultrasound was I diagnosed with Hashimoto's. My levels were fine, but thankfully my doc ordered an ultrasound. It showed an enlarged thyroid with nodules.

I'm currently on two thyroid meds (the natural route didn't help, Armour didn't help). I also have PCOS and went gluten-free at the end of 2010.

Have you guys had any success with weight loss? My doctor is keeping my medication at this dose for another three months but it seems like I'm still having difficulty losing.

Any tips or success stories would be a huge help at this point :)

I'm ready to try again but unfortunately I don't feel very confident. =/

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BLUEFISH2's Photo BLUEFISH2 Posts: 3,876
4/29/11 7:23 P

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Hi XN! There are lots of books and info out there about hashimotos. I was diagnosed 5 years ago but had it much longer. When my meds are working it helps with the exhaustion. The thyroid regulates lots of things in your body so it is important to get your levels checked regularly and take the medication. Taking good care of yourself is the first step!

Be who you are and say what you feel because those who mind don't matter and those that matter don't mind. - Dr. Seuss



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XNIKOX's Photo XNIKOX Posts: 22
4/28/11 1:35 P

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Hello Everyone.

I was recently diagnosed with Hashimoto's (actually, only last Friday). I only vaguely heard about this until my doctor explained what it is to me. I am now taking levothyroxine, which i started on Saturday.

I am actually nervous about this diagnosis, especially since I do not know so much about it. I was also diagnosed with PCOS about six years ago.

Could someone please shine some light & let me know how Hashimotos will effect me long term? All I really know right now is that I will probably be taking the levothyroxine for the rest of my life.

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BLUEFISH2's Photo BLUEFISH2 Posts: 3,876
4/25/11 9:37 P

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Hello! I was diagnosed with Hashimotos 5 years ago after struggling with symptoms for almost 10 years. It has been very difficult to keep my levels steady. I switched to Armor and that seems to be working well for me. What I eat has a big impact on how I feel. 3 years ago I was doing very well taking care of myself and had lost over 50 lbs, then life smacked me around and the first thing that I forgot about was taking care of me. I'm back and ready to take responsibility for my health again.

Be who you are and say what you feel because those who mind don't matter and those that matter don't mind. - Dr. Seuss



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JLHFLUTEJLH SparkPoints: (0)
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4/9/11 1:23 P

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Hello, I've asked my doctor about Armour and she said the reason why she prefers synthroid is because Armour is not as readily available as synthroid is. She said that it's not as dependable to be available at the pharmacies as synthroid is and we have to make sure we are taking the medication on a regular basis or else it wouldn't work. Hope this helps.

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4/9/11 1:19 P

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Hello, I am new to spark and this team. I love the fact there is a team support for Hashimoto's because I was just recently diagnosed and it has been a struggle to get my hormone's back in gear. I'm still working on it but I know very little about hashimoto's (just the basics) Does anybody know where I can go to find more details and research about living with Hashimoto's thyroiditis?

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4/5/11 5:09 P

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Hello,

I am a new member to the forum. I was diagnosed in early March with Hashimoto's. I have what I think are some typical symptoms of hypothyroidism (fatigue, muscle aches, low stamina, brain fog, forgetfulness, low blood pressure, trouble sleeping, mild depression, plus dry eyes and headaches). My TSH was just 6 and my thyroid peroxidase AB antibodies were at 113 - thus the diagnosis by the doctor - plus I have a multinodular goiter.

My endocrinologist prescribed a low dose 25 mcg of generic synthroid, which after 3 doses gave me heart palpitations & a heart rate about 10-15 beats/minute higher than normal for me. So I quit taking it. I had a fasting blood lab test last Friday for cortisal and ACTH looking for a possible adrenal problem, plus screening for diabetes, all were normal.

So today I started baby dose 13 mcg of tirosint to see how I react to that to see if it helps any.

My endocrinologist gave me a long lecture about how she didn't think I was having hypothyroid symptoms since my TSH was so low and that according to some American endocrinology guidelines she didn't have to prescribe anything for me until my TSH was above 10. She believes that my symptoms are from something else, but through discussion and testing we haven't found anything yet. I don't think this doctor will be open to using a natural dessicated thyroid product or even to adding T3 to my T4 treatment if I still have symptoms after months of T4. I would like to find a new thyroid doctor but don't know where to turn to find someone who is qualified. My google reviews of other area endocrinologists haven't turned up anyone that looks helpful.

A question for the group -- I've been reading various books which say hypothyroid patients do better on Armour, but one doctor (Dr. Mark Starr, who advocates Armour for hypothyroid patients) seems to think that synthetic T4/T3 is better for Hashi patients (see www.21centurymed.com). Anyhow, I am left a bit confused and wondering what is best for Hashi's.

I am hoping to gain some insights from this forum on how you found your doctor, what kind of doctor are they, what treatments you've tried and what seems to help the most, and what side issues to look out for.

Thanks for listening and for any help,

Cathy

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QUEENGP's Photo QUEENGP Posts: 1,339
2/27/11 5:25 P

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Hi Julee! I just joined this team last week. I was diagnosed last October. I too am on Armour. I am glad this team is active, as they have already helped me immensely!

Have a great day!

GENIA
FitGirls Team Co-Leader
"No matter your age, weight, or size...we all have a FitGirl waiting inside"

"I will do it, I will achieve it"

My Goal is 155-December, 2011

I am a FitGirl, my body is just in the process of catching up with my attitude :)


Watch this.....This little girl has a FitGirl A.T.T.I.T.U.D.E.

www.youtube.com/watch?v=qR3rK0kZFkg


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ITS_MY_TURN_NOW's Photo ITS_MY_TURN_NOW Posts: 3,086
2/27/11 12:07 P

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Hi,
My name is Julee.

I'm not new to this team but I don't think I introduced myself. I was diagnosed with Hashi's a little over a year ago. But I have probably been dealing with it my whole life. Since I have been diagnosed.... my sister, my 21 year old daughter and my mother have all been diagnosed with Hashi's. So it is a fairly safe bet that for me this is genetic. I take armour thyroid which seems to work better than Synthroid for me. Extremes in temperature (hot or cold) make me miserable. Too much of anything wears me out... exercise, emotion - good or bad, activity, chaos, fun.. doesn't seem to matter.

I have been gluten free since last June even though I tested negative for gluten allergy. It has helped with inflammation and swollen joints. I can feel it now when I get "glutened". I have recently figured out for myself (it takes me awhile sometimes..LOL) that reducing carbs is the only way I lose weight. You would think that would be easy being gluten free! Except that gluten free pasta, bread and my own personal downfall cookies, do exist!

I am always looking for ideas on being healthier and reducing my symptoms. I am learning about yoga and meditation. My cardio workout is usually me on the treadmill. I do feel better when I exercise... its actually getting to it that I struggle with. The lack of energy is one of the hardest things for me to cope with. The best explanation of I have ever read about what it is like to deal with this was written by a woman that has lupus.
The Spoon Theory written by Christine Miserandino
The first time I read this I cried because it she put into words what I had been trying to explain for years. Reading her story helped the people that I love to understand me.

Ok .. so.. I have gone on and on. Sorry. I look forward to getting to know you all. I'm glad this team is active again. emoticon

~ Julee ~
Northern Illinois

Co-Captain Amber Amazon Warriors BLC26

The path of the Warrior is lifelong, and mastery is often simply staying on the path.  - Richard Strozzi Heckler


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SORQAQTANI's Photo SORQAQTANI SparkPoints: (3,126)
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2/27/11 9:56 A

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Hello, I was recently diagnosed with Hashimoto's thyroiditis based on ultrasound and needle biopsy that showed inflammation and goiter. I'm not having any symptoms (yet) and my bloodwork is normal. My weight is healthy and I'd like to avoid having to take supplemental hormones as long as possible, so I'm looking for tips to stay symptom-free.

Edited by: SORQAQTANI at: 2/27/2011 (10:02)
QUEENGP's Photo QUEENGP Posts: 1,339
2/21/11 7:58 P

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Hi!! My name is Genia, I found out I had Hashi's back in November. My doctor said that my antibodies were slightly elevated, when they were more than 10x the number they should be...ugh! I took matters into my own hands at that point.

Well anyway, I am taking Armour, and so far it is working well. But the one thing that bothers me the most is the fatigue. My levels are fine, as of right now...in January I shifted into Hypo, that was ugly!!! I will be seeing a functional medicine doctor next week, I will also be asking for a complete workup as far as my estrogen/progesterone/iron levels, etc.

looking forward to seeing how you work through your symptoms, what to do and not do, and to get more knowledge!

have a great day everyone!



GENIA
FitGirls Team Co-Leader
"No matter your age, weight, or size...we all have a FitGirl waiting inside"

"I will do it, I will achieve it"

My Goal is 155-December, 2011

I am a FitGirl, my body is just in the process of catching up with my attitude :)


Watch this.....This little girl has a FitGirl A.T.T.I.T.U.D.E.

www.youtube.com/watch?v=qR3rK0kZFkg


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ZENAREE's Photo ZENAREE Posts: 105
1/2/11 10:10 P

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Actually, I do - I was born in Jacksonville:)
I love the heat...but only because I'm always so darn cold. I just can't get motivated, and if I do manage to stick to it for a week or two, I get sick and fall back off the wagon! I'm thinking something is going on with my meds because I'm tired again, my joints are hurting again, and my hair/nails are falling out again.....back for my bloodwork..I truly hate this and just can't seem to get it all straightened out.....

Ree - It ain't over til this fat lady sings!

Start Weight: 209 May 07
(The starting weight on my ticker is my weight from May 2007)

Current Weight:
199 September 2013

Next Goal: 195 -
October 2013

Current short term Goal Weight
(1st-10% goal of 20 lbs):
180 by December 2011

Long term goal weight: 145 (Pray with me!) Even if it takes me a few years!!


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BACKTOTEN12's Photo BACKTOTEN12 SparkPoints: (62,767)
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12/31/10 9:30 A

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Hi, I joined this team a while back and am only now introducing myself. I've had Hashimoto's for over 20 years and take a compounded thryoid capsule. I took Levo for a while but the "natural" works much better for me. I also have lupus which has been a lot of pain and energy issues. Hope to get and give support on this team. Happy New Year to all!! emoticon

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ISILELEN's Photo ISILELEN SparkPoints: (2,452)
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12/9/10 4:45 P

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Zenaree, My energy level comes back when it's not 80+ degrees outside...stupid Florida. I overheat way too easily, so unlike most people on thyroid, I LOVE the cold. D'you know how hard it is to work yourself up to go work out when you can step outside and be smothered in air so warm and humid you feel like you just finished your routine? Anyway, hope your energy comes back one way or another. ^_^

No trees were harmed during the making of this message. However, large numbers of electrons were terribly inconvenienced.


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ZENAREE's Photo ZENAREE Posts: 105
12/8/10 9:20 P

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ISILELEN,
I know exactly how you feel! My thyroid was ignored for over 15 years until I had such a low quality of life my husband found a dr that would listen! I'm also receiving treatment and my TSH is down to 1.23 but I'm still tired...has your energy level come back yet? I wish you the best and hope you can reach your goals.

Ree - It ain't over til this fat lady sings!

Start Weight: 209 May 07
(The starting weight on my ticker is my weight from May 2007)

Current Weight:
199 September 2013

Next Goal: 195 -
October 2013

Current short term Goal Weight
(1st-10% goal of 20 lbs):
180 by December 2011

Long term goal weight: 145 (Pray with me!) Even if it takes me a few years!!


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PAMELASUE50 SparkPoints: (0)
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12/5/10 5:43 P

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Hi,I have been on quite a ride for the last 1 1/2 yrs. I quit smoking then and swore that i would not pick up food as a sub. So I tried to diet well nothing worked I just kept gaining weight, I kept saying to everyone that I knew that something was wrong with me but everyone kept ignoring me. Until Mar of 2010 I felt so bad that I would lay down after my shower I needed to rest before I went to work it was so awful. I was exhausted my boss one day looked at me my puffy face etc and asked if i had taken my blood pressure lately I said no we took it it was 220/110 Went to ER, Long story short my thyroid quit functioning totally. I was a mess,finally in Sept I felt like maybe with medicine things were under control and I needed to stop feeling sorry for my self and start a program. I have been using another calorie counter, have lost 27 lbs with that but have switched to spark people because there is so much support. I love to be a part of this family I am on my way to a better life and keeping my Hashimoto's under control. I was up to 206 lbs all time high in my life down to 179,my goal is 140 by May 1 Im gonna make that happen yeah.

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12/3/10 7:20 A

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welcome, welcome, welcome!

emoticon

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11/26/10 8:26 P

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Hi my name is Laura and I have had hypothyroidism for the last 25 yrs and last year I was diagnosed with Hashimoto's Thyroiditis and hyperparathyroidism. I have had ongoing symptoms and now that I have moved to a new state I do have an appointment with a new endo on 12/8 so I will see what she says. I have been dealing with so many apparent autoimmune symptoms and it is very frustrating! I keep on keeping on!

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AIMFOR32's Photo AIMFOR32 SparkPoints: (20,137)
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11/21/10 9:37 A

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emoticon

2006: 215 lbs at my highest weight
2010: 194 lbs at the start of SP
August 2010: 180 lbs
December 2nd: 190.5 (10 1/2 lb gain)
December 7: 189.6
December 15: 187
January 4th: 190

May every step I take lead me to where I want to be.

maystephens.blogspot.com/


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ISILELEN's Photo ISILELEN SparkPoints: (2,452)
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11/21/10 9:29 A

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Hi, all! New to SP and still juggling getting everything rolling. My Hashimoto's hit just around the same time as puberty, and my mother's hit in her senior year of high school so she knew what was going on...but my TSH and T3 kept coming back normal for years until finally when I was 20 my TSH was normal but myT3 was through the floor. THEN they sent me to an endo to test for the antibodies. You'd think a family history (mother, 2 out of 3 aunts on mother's side, maternal grandmother) and a goiter in 10th grade would tip them off.

I started on .08 of Levothroid, but that left me literally falling asleep by noon if I didn't take it, so I switched to Armor, and that was doing better, but my TSH was still high so I switched doctors. Current doctor looked at my 4.7 TSH and said 'we want to get that down to a 2 or a 3' and started upping my dose until suddenly it went from 4.7 to 2.3! So I'm on .125 of Syhthroid, and my TSH keeps edging downward...it was 1.42 last time it was checked. So now that I actually HAVE a metabolism again, it's time to lose the 45+ pounds that have been with me since my diagnosis!

No trees were harmed during the making of this message. However, large numbers of electrons were terribly inconvenienced.


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ZENAREE's Photo ZENAREE Posts: 105
11/19/10 11:58 P

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Hi, I'm Zena. I developed Hashimoto's hypothyroid after the birth of my first child in 1991. It took another 6 years or so for a diagnosis, and it was left untreated until a few years ago. By then my health was shot, and I had about given up. A new Dr has helped me immensely, but I still have symptoms from time to time and just wish it was under control. I hope to learn more and lose weight - which has not been easy!

Ree - It ain't over til this fat lady sings!

Start Weight: 209 May 07
(The starting weight on my ticker is my weight from May 2007)

Current Weight:
199 September 2013

Next Goal: 195 -
October 2013

Current short term Goal Weight
(1st-10% goal of 20 lbs):
180 by December 2011

Long term goal weight: 145 (Pray with me!) Even if it takes me a few years!!


 Pounds lost: 11.0 
 
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AIMFOR32's Photo AIMFOR32 SparkPoints: (20,137)
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11/19/10 7:49 A

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http://thyroid.about.com/cs/fibromyalgiacf
s/a/cfsfibrothyroid_2.htm

Here's one link that shows the possible connection between having had mono and thyroiditis.
I'm curious to know if there are others like me who've had mono and that now have thyroiditis.

2006: 215 lbs at my highest weight
2010: 194 lbs at the start of SP
August 2010: 180 lbs
December 2nd: 190.5 (10 1/2 lb gain)
December 7: 189.6
December 15: 187
January 4th: 190

May every step I take lead me to where I want to be.

maystephens.blogspot.com/


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_JULEE_'s Photo _JULEE_ SparkPoints: (200,287)
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11/16/10 2:48 P

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I haven't heard about mono contributing to Hashi or any other autoimmunes. But there is definitely a connection between Hashi and celiac.
I developed my Hashimoto's from having a full blown thyroid storm at age 9.

Going gluten free is never a bad thing for anyone with a thyroid problem. The grains just really aren't that great for anyone, but especially folks like us. A primal or paleo diet really will serve your body well. You should 'feel' it almost immediately - better energy, clearer head.

emoticon Do let us know how you get on with your change in diet!

We must all suffer from one of two pains: the pain of discipline or the pain of regret. -- Jim Rohn

Do whatever you do intensely. -- Robert Henri

Training is the opposite of hoping -- nikewomen.com
www.intrinsicalchemist.com


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AIMFOR32's Photo AIMFOR32 SparkPoints: (20,137)
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11/16/10 2:11 P

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Hi all. I'm Shirl and I've been a SP member since Feb '10 but hadn't thought until today to search for an actual thyroiditis team and boy am I glad I found you guys.
Ten years ago I was told I had viral thyroiditis and that later in life I could develop it permanently (which happened a few years later) but until last fall when I got really sick, I was never told I was dealing with an autoimmune disorder. Before then the weight gain, freezing hands and feet, intolerance of cold temperature, body aches, joint pain and fatigue were all put down to perimenopause and/or arthritis, and part of it probably can be attributed to that. There was often an 'unexplained' fevery feeling, a feeling of 'coming down with something' that preceded all of the above and the neck swelling, hoarseness and difficulty swallowing even water.
Since my thyroid levels are all 'within normal range' my new Dr suggested I learn to treat the autoimmune tendency by first learning to relax. And then to research and in doing so I was surprised to find the connection to celiac disease (which my father had). I should note that my father also had to have a thyroidectomy before I was born and I have no way of knowing why as he passed away of cancer in '93, shortly after being diagnosed with celiac in his sixties. I tested negative for celiac last fall so figured gluten-free wasn't necessary. Now, with all I am reading, I'm not so sure. I did remove dairy from my diet and felt a little better (eczema and asthma flare-ups lessened a great deal) but am still having thyroiditis flare-ups.
Does anyone know about how long it should take if I did go gluten-free for it to show some positive affect on my thyroiditis?
Also, I read there is a possible connection for people who have had mononucleosis, which I had at 15, and developing thyroiditis later in life. Has anyone else heard of this?


2006: 215 lbs at my highest weight
2010: 194 lbs at the start of SP
August 2010: 180 lbs
December 2nd: 190.5 (10 1/2 lb gain)
December 7: 189.6
December 15: 187
January 4th: 190

May every step I take lead me to where I want to be.

maystephens.blogspot.com/


 Pounds lost: 1.8 
 
0
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48.975
65.3
IMAGINE-KATE's Photo IMAGINE-KATE SparkPoints: (1,223)
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11/15/10 11:52 P

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Hello!
My name is Kate and I've been hypo since the age of 11- which is sig more than half of my life. I was also diagnosed with hashi's just over a year ago. I'm really happy to join your team and I look forward to the forums. I'm curious to see what kind of meds people are taking. I've been on synthroid for years but I know there are some new drugs on the market now. Anyway, thanks for sharing and have a beautiful week!

Edited by: IMAGINE-KATE at: 11/15/2010 (23:53)
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PSKIPPY7811's Photo PSKIPPY7811 Posts: 664
10/23/10 8:24 A

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I have not been diagnosed with Hashimoto's but I have an appointment soon for some tests. I was diagnosed as going though menopause at 28 years old. I was passed from doctor to doctor and none could find a cause. My current OB/GYN believes that it caused by some sort of autoimmune problem and it's just a matter of figuring out which one. I told him about being tired all the time but he attributed that to menopause. I have a doctor's appointment coming up because I've had hives all over my torso for the past two weeks. I asked a doctor on justanswer.com if I should be concerned about the hives and he thought that I was displaying symptoms of Hashimoto's and I should get my thyroid levels tested as well as thyroid antibodies. My T3 and T4 levels were normal 5 years ago but I don't think I've ever had any antibody tests. So before I go to the doctor I thought I'd come here for some advice from those who have been there. Are there certain questions I should ask? Tests I should request? Is there anything you wish someone had told you? Thanks!

~Aran


As long as you are still trying, you haven't failed.


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10/15/10 3:19 A

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hey everyone ive had hashi's for years now about 8 and its been an up and down struggle at first i was put on synthroid my body hated it massive hair loss i found out about armour online and quickly changed to that. was on armour for years til last years armour shortage and have switched to compounded thyroid. did really good on that until i was switched to a different pharmacy as it was cheaper i believe that pharmacy was marketing synthetics(from other message boards im finding this is actually common) as i had an emmediate reaction like i did on synthroid massive hair loss return of all hashi symptons. after about 3 months of arguing with the dr and half a head of hair lighter i finaly got switched back to the place i did well on. im suffering from stage 4 adrenal fatigue and inflamation around my heart right now and ive been on my new compounded medication for roughly 2 weeks im hoping to show improvement soon! its good to be here!

JENN3128's Photo JENN3128 Posts: 211
10/7/10 11:10 A

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Hello all! My name is Jen and I have been struggling with Hashimoto's for at least 5 years now. The first few years I had no idea what was going on with my body. I just knew that things were changing somehow and I didn't like it.
I saw several doctors for stomach pains, because that was my most noted symptom, and they would just keep telling me that they weren't sure what was wrong. I was tested for all kinds of things. It was very frustrating and I finally just decided that I would be sick.
2 years ago I noticed that the outside half of my hands had started going numb often and that my fingers and toes turned purple frequently. I called my mom freaking out because I had no idea what was going on. She worked for a doctor, and she asked him what it could be. He had me come in, tested my thyroid levels and antibody levels. It was clear to him that it was Hashi's, but since my TSH, T3, and T4 were within range, there was nothing much they would do. I have spent my time since then treating the symptoms instead of the disease, praying with each 6 month check that my levels will finally be abnormal.
Well, last week, I finally had a melt down on my family doctor that I can't do it anymore. He refered me to an Endocrinologist, since the one I was sent to 2 years ago has since retired. I requested my lab results from all the doctors that I have been to in the last 2 years, and it is no wonder I am feeling worse. My antibodies have climbed to 40 times the levels that they were 2 years ago and my thyroid levels keep getting lower and lower (but are still in normal range!)
On a good note, I have spent some time reading about Hashi's and have learned much about what I should and shouldn't put in my body. Over the last 2 weeks I have lost 6 pounds by making small dietary and supplement changes. Here is to hoping I found the right doctor and that the other changes added into what he (hopefull) will do, that I will be feeling better soon!

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BLADAMS89's Photo BLADAMS89 Posts: 132
9/30/10 9:27 A

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My name is Brittney, and I was very excited to see that this team existed! I started Sparkpeople in March 2010, and lost 30 pounds! I then transferred to a university, and well...gained 10 back. I noticed that my fatique and other symptoms were getting really bad, so I finally went to the doctor. I was diagnosed with Hashimoto's last week, and am currently on 50mcg of Levothyroxine. My mother has this disease as well. She had great success after medication, and lost 100lbs. I am hoping that with some hard work, I can finally be healthy, and stay that way.! Let's do this together! Do any of you have any tips about just starting out on the hormone replacement?

Keep Sparkin'

~Brit


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EZELLK333's Photo EZELLK333 Posts: 63
9/24/10 11:28 A

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Thank you so much for your reply. I'm excited in some ways about the removal but filled with trepidation also in thinking of the permanence. I am truly hopeful that I will feel better in the longterm!!
Thanks again for your reply.

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BJTHOMPSON4821's Photo BJTHOMPSON4821 SparkPoints: (0)
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9/24/10 8:02 A

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No, it doesn't go somewhere else..
The thyroid is kind of like a little hormone generator. Once it's removed those hormones that it once produced will be replaced with a synthroyd and it may take a cycle or two to get your TSH levels correct but you will and you will feel much better. Good luck!

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EZELLK333's Photo EZELLK333 Posts: 63
9/23/10 3:09 P

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Hi,

Two books that I found extremely helpful are "The Thyroid Solution" by Dr. Arem and "Why do I still have thyroid symptoms" by Dr. Kharrazian.

The thyroid solutions was written by an endo. that was the head of Baylor's Endo. department for many years. It actually made me feel so much better because I realized I wasn't crazy!

The other book takes a more naturopathic approach in limiting your autoimmune response through diet and such. Both are very enlightening.

Best of luck to you.
Kim

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EZELLK333's Photo EZELLK333 Posts: 63
9/23/10 2:49 P

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Hi,

I'm Kim. I have Hashimoto's and was diagnosed in 2007. I am scheduled to have my thyroid removed on October 11th. I'm curious as to what happens to the immune problem at that point. Does it pick something else to attack. YIKES Or does it go into remission?? I've tried to find an answer to this and as yet haven't been successful.

Hello to everyone though and I'm glad to have found this team!

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BJTHOMPSON4821's Photo BJTHOMPSON4821 SparkPoints: (0)
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9/23/10 10:37 A

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I've had this for about 15 years and will help you anyway I can. I had a bunch of symptoms all through my life but was finally diagnosed in 1996. I know it's strange to deal with odd feelings but you're not alone.

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GWENFITNESS1ST's Photo GWENFITNESS1ST SparkPoints: (51,157)
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9/16/10 11:01 P

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Hi

I was diagnosed with Hashimoto's 11 years ago and have been euthyroid. However, I am sure that my slow weight loss is related to this disease. It runs in my family. I look forward to learning more about how to eat and exercise.

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KRANSUE's Photo KRANSUE Posts: 11
9/9/10 7:12 P

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*waves* hello, I'm Karen. I was diagnosed hypothyroid a little over 2 years ago and just yesterday was told I have Hashimoto's. This is a whole new chapter of my journey and I'm looking forward to reading and learning as much as I can about.

Come check out my blog!

~Karen

www.karensmeltingaway.blogspot.com


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LAURIEBOTT's Photo LAURIEBOTT SparkPoints: (7,442)
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8/30/10 8:23 P

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Hi I'm Laurie. I was diagnosed 24 years ago at the age of 7! I've struggled with my weight most of my life. I'm currently on Synthroid. I've only been here at SparkPeople for 2 weeks but already have found success!

Edited by: LAURIEBOTT at: 8/30/2010 (20:26)
¢¾ Laurie¢¾


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FROG60's Photo FROG60 Posts: 59
8/28/10 11:33 A

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Hi, I'm Sue. I was diagnosed ten years ago, at age 40 because my doctor made a mistake and did a thyroid peroxidase test !! I was diagnosed right away.
My only sadness about having auto immune issues is that my 24 year old has inherited it from me and is on Synthroid also. I hate giving her that legacy, but what can you do.



"He must become greater, I must become less."
John 3:30 (NIV)


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OKIE89's Photo OKIE89 Posts: 3
8/26/10 2:55 P

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Hi! My name is Cassie. I'm 21 years old, and was very recently diagnosed with an autoimmune thyroid conditions. I've been overweight my entire life, and other than that, everything seemed very normal for me, until my right eyelid started swelling for no known reason. My opthalmologist though it may have been my thyroid, but my tests came back in the normal range, except that I had a high TSH. Another test ended up referring me to a rheumatologist. The rheumatologist did a thyroid ultrasound and found a nodule, so she referred me to my endocrinologist. He did an FNA of the nodule and more bloodwork. The biopsy results came back undiagnostic, and the bloodwork showed an underactive thyroid. He got to see my thyroid on ultrasound, too, and said it was very "lumpy", common with autoimmune. So, finally, six doctors in to it, I received an answer! I started a low dose Synthroid treatment Sunday, and my eye is already back to normal!

I'm very happy to be here! I'm sure I have much to learn about thyroid issues, and I'm anxious to do so!

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HARMONB1's Photo HARMONB1 Posts: 31
8/23/10 2:35 P

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Hello All - I was actually diagnosed with PCOS in my teens, but then they realized that I was actually Insulin Resistant. Then, when my mother was diagnosed with thyroid cancer (and had to have hers removed), my endocrinologist started freaking out because my thyroid was "a little full."

When I had a thyroid sonogram a few months ago, they found nodules "consistent with Hashimoto's Thyroiditis." Every blood test I've ever had showed normal/average levels of TSH, and I haven't really shown any symptoms specific to hypothyroidism - but my mother's physical problems have me really nervous about my own future health.

I figure that information is the best weapon, and hopefully I can keep my possible HT from becoming serious.


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SUSANW01's Photo SUSANW01 Posts: 1
8/4/10 8:33 A

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I was diagnosed last year with Hashi's and it has been an interesting year. Mostly of weight gain rather than of any weight loss.

I exercise regularly and have again started recording everything to pass across my lips.

The first medication I was put on did not agree with my body and I started putting weight on and became severely depressed and I stopped taking the medication then visited the doctor and let him know what had been going on.

Due to the fact that I am a DES daughter and have had problems in the past with hormones, he recommended a endocrinologist but I have no faith in the endocrinologist. Seems he wants to find a pigeonhole for a patient and then no other testing is done.

I have started reading a lot on the internet and some of the problems I am having do not seem that unusual but it appears that the medical world finds it easier to ignore the symptoms and act as if many of us are imagining our symptoms. I realize that I am sounding a bit cynical here but am totally disillusioned by the medical world lately.

Hopefully I will be able to pick up some insight here and be able to have ammunition when I see my doctor again two weeks. I am finding a lot of articles but now I need to get them in order to start understanding what is happening with me.

I would prefer to get off the thyroid medication and use a natural approach as I don't care for ingesting medications that are not needed.



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PUPPYMOM03's Photo PUPPYMOM03 Posts: 14
8/1/10 5:28 P

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Hi everyone! I was diagnosed with Hashi's in January 2008 after many years of suffering.
I could really use some support and encouragement.
:)
I know you've all gone/going through the same things as I have.
I am hoping this will be the last stop. That finally this place will have all I need to get rid of these pounds. (awesome cool site btw)
:)

I matter to ME.


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ROSIEDEE SparkPoints: (19,543)
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7/25/10 4:41 P

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Hi..my name is Diane and i have had hasimotos for the last 12 years. I find it difficult to lose weight. What i want to know is...is it possible to lose a large amount of weight (50 lbs.) when you are 63 and have hasimotos. I am on Cytomel and Synthroid.
My last test was barely registering on the low end of the thyroid scale for TSH. (0.45) but all my other numbers were normal. Any info?

Nothing tastes as good as THIN feels!


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KELSEY511's Photo KELSEY511 Posts: 2
7/19/10 7:33 P

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Hello! Just joined SP today, love the fact that this team exists(usually no one even knows what hashimotos is! haha)

My name is Kelsey, I'm 20 years old....was diagnosed at age 12. Stayed hyperthyroid for about 3 years before I turned hypo. Been on Synthroid since, and have found a nice balance...but every once in awhile my thyroid likes to act up! Mostly I have problems as a result of it, even though I'm pretty stabilized on the meds. Just weird side problems(awful circulation, hair loss STILL), I heard from a cardiologist that the heart arrhythmia I've developed could be from this as well....

Anyhoo. Enough rambling. Glad to have found this!

"It will all be okay in the end. If it isn't okay, it isn't the end." -anonymous

5'5" SW:125 GW:110


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GEOMOSGIRL's Photo GEOMOSGIRL Posts: 171
7/14/10 8:39 A

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Hi...I'm Jane and I have been on thyroid meds since the mid-90's when I was diagnosed as being hypothyroid. I had all the signs of Hashimoto's, but wasn't diagnosed as such until five years later. At that time a second med was added and really helped with some of my symptoms. I am on Levoxyl and Cytomel. Glad to have found this team!

SAMSEE's Photo SAMSEE Posts: 61
7/8/10 1:14 P

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Hello; My name is Sarah and I'm restarting on Spark People. I've had success before but have found it difficult to lose weight this past year...maybe thyroid acting up! Or, it could be that I'm 46 and my metabolism has slowed for that reason.
I'm married, 3 children aged 10,16,18, work part time, attend college online to be an Educational Assistant and volunteer often.
I'm looking for healthy living ideas, helpful foods, and support.

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NOWTODAY2 Posts: 3
6/24/10 10:52 A

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Hi:
I was diagnosed several years ago,after my doc found nodules on an exam. I had half of my thyroid and half of my parathyroid removed. The "scar" tissue was so bad from the Hashi's that the surgeon could not seperate the parathyroid from the thyroid.
My ongoing struggle weith my doc is that she believes SYNTHROID is the God-given answer to the problem. I asked the druggist for the Levothroxin and the next time my levels were drawn, they were, in her opinion, too low.
I feel best when my TSH is around 1.0. She wants it around 3.0. The ACE (American College of Endocronoligists) recomends it be 0.3-3.0 (don't quote me on that,I may be wrong).
I struggle with weight loss daily. I have found the best success on low carb, but with my Hashi's, I cannot get above 25-30 carbs a day, or I gain.
I need help!
I am 60 and single, and cooking is done mostly on the grill. When my mom is here in Oklahoma for the winter, we eat out a lot. I need to either go low fat or stop eating out with all the temptaion.
Corn and carrots blow me up like a pig-in-a-blanket.
Soy does too.
Any menu suggestions from the members would be greatly appreciated!


SPRINGTULIP46 Posts: 18
6/16/10 9:08 A

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Hi everyone my name is Ann i was diagnosed with hashmotos in march of last year after fighting the docotr for a few months telling him i had this and they didnt listen after they gave me my blood test antibody count of 2750 my doctor at the time was just watching me so now i changed doctors and they out me on hormones. I am cycling from hyper to hypo ever few months i find it hard to exercise with the joint pain but i still try.

Edited by: SPRINGTULIP46 at: 6/19/2010 (16:41)
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BFLACK33's Photo BFLACK33 Posts: 131
6/5/10 10:48 P

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Hi all. I was diagnosed 7 years ago. I havn't had too much trouble with my health since getting on the synthetic hormone but I do struggle with my weight and I have joint pain which, untill yesterday, I did not know could be related. My doctor told me she believes that as many as 75% of adult women suffer from some form of thyroid disease. Wow.

"There's no need for turning back, cause all roads lead to where we stand.


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ESPERANCE33's Photo ESPERANCE33 Posts: 87
2/22/10 5:19 A

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Hi everyone!
I just wanted to express how happy I am to see that there's a Hashimoto's group here! I was diagnosed a few years ago.. FINALLY! Sorry.. don't get me started on that.. It only took a giant goiter to catch a doctor's attention! All those years of feeling like total garbage and having no idea why... Now I feel like garbage, but I know why! That really does make me happier. :-) When I was diagnosed the nurse called and told me and I was all excited about it. She thought I was a little.. odd.. and then went on to explain the lifelong reality of it... I didn't care. It was an answer to a question I had for nearly my entire life!

Anyway.. Now that I know what's going on.. I may actually start doing something about it.. I suppose I'm hoping this site will be a good motivator for me.

Catch ya later...



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SMONTGOMERY32's Photo SMONTGOMERY32 Posts: 8
2/20/10 11:00 P

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Hi everyone,

My name is Suzan and I was diagnosed with Hashimoto's in Oct 09. I have been reading all of your threads the past hour hoping to get some pointers on diet, etc. I am SOOO frustrated in that I have been trying to watch what I eat, even planning my meals to watch my glycemic index because I just can't loose weight! I've only been on synthroid for 4 months now but I think my dose needs to be increased as my hair has stopped falling out but my voice is still hoarse.

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CINCYGIRL's Photo CINCYGIRL Posts: 434
2/19/10 2:33 P

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Hi Everyone!
I am new to this group and just wanted to say hi! I was diagnosed with hashimoto's 11 years ago after the birth of my first daughter. It took about 4 or 5 years before things really balanced out and I felt pretty normal. Then last year I gave birth to my second child and the battle has started all over! My youngest is now 15 months old and my thyroid levels are just now starting to level back out. I am currently on the .175 dosage and I was on the .125 before my last pregnancy.

During the last year my weight has gone up and down and back up again. Now that I am starting to feel better I figured it is time to get back onto Sparkpeople and get my life back in order again.

I'm very glad to have found this group because it's so much harder for anyone with thyroid problems to lose weight and get healthy, it's nice to have people around who can really understand.

~Heather

~Heather

"Always concentrate on how far you have come, rather than how far you have left to go. The difference in how easy it seems will amaze you."

---Heidi Johnson


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MAMA2WES's Photo MAMA2WES Posts: 3
2/13/10 3:43 P

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Hi everyone! I was diagnosed with Hashimoto's Thyroiditis after a cancer scare Sept 2009. I had a nodule on my right side of the thyroid, and after a FNA showed it inconclusive yet suspicious, I had it removed. I am not on any medication yet, but I have a follow-up in March. Last I checked, my TSH levels were at 4.3.
Anywho! I have a two year old son named Wesley and my weight gain started when he was around the age of 6 months. I had a hard time losing the weight, but since I've had the surgery, the weight is seeming to come off a little. I know it's going to be a hard journey but I have about 50lbs I want to lose, but I would be happy with losing 30-40lbs!


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LADYROSE's Photo LADYROSE SparkPoints: (100,807)
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2/8/10 3:29 P

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Welcome! Glad you found this group - Julee has posted some awesome articles and lots of great info to get you started.

Steph
ladyrois.blogspot.com/

Take the words “genetic freak” out of your vocabulary and substitute the words “hard working, committed, and focused” and you will have removed one obstacle to doing things you never thought possible. Top Dawg

The BOSS Rules: Train Beyond Our Self-imposed Strength Limitations.

"Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think."
C. Robbin


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KITKATSGRACE's Photo KITKATSGRACE Posts: 1,469
2/7/10 4:13 P

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Hi everybody, I was diagnosed with Hashimoto's around 9 or 10 years ago. When I tell people about it, they say they have never heard of it so I was very surprised to find this group!! I am married and I have 2 teenage sons. I have been on SP close to 3 weeks now and I am happy to meet others with similar issues!

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