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EBBYSTONE1 Posts: 20
12/24/10 8:43 A

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Jeremy,
Three things make me wonder if you were correctly diagnosed.
1.As I understand it it is not the blood as much as injecting a needle and pulling crystals to determine which of the 5 types of Cyrstaline (gout) diseases/syndromes you have
2. The fact that this is not just the toe but throughout your body.
3. The fact you have found no triggers!!!!!

May I suggest you might have one of the other crystaline diseases. "Gout"/uric acid is just one of them.

You may have CPPD/Calcium Pyrophosphate Dehydrate Sydrome(meaning it is less known so not yet fully figured out to be called 'disease'). Another name which I despise is pseudo-gout. Nothing pseudo-gout about it.

Seems you wrote in August. I do not know how to manage this site as looking many times this is the first time I saw your writing.






Edited by: EBBYSTONE1 at: 12/24/2010 (08:51)
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RASSIERJNJ's Photo RASSIERJNJ Posts: 54
8/18/10 10:38 P

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Hello,

I'm jeremy and heres my story. when I was 27-28 is I had terrible toe pain, you all know the spot. Doc said it was just a sprain. I got worse and worse. I spent a lot of time seeing many different docs. one of them gave me exercises!! they didn't go well. I had it in every joint except my hips and shoulders. I had to have my Brother come over to get me out of bed. finally I seen someone who ran the blood work and found out it was gout. he gave me Colchicine one time an hr until I was sick one way or another, that got it more tolerable. It has been off and on for years now, the first couple years were brutal. now i'm just uncomfortable in most joints, most of the time, indocin helps the real flare ups. It has been much better now wit 400mg of Allopurinol, but i always wonder if it could be perfect with something else. I have found NO triggers. I am 310 pounds now, was 260 when it started.

I know this was a long intro. sorry if it was inappropriate

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