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TIME2BLOOM4ME's Photo TIME2BLOOM4ME SparkPoints: (144,646)
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2/13/11 3:24 P

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I also take supplements and provigil. The provigil does help me to get in some exercise at times when it seems impossible. Other times it does nothing depending on how bad the day is. MS is a tough situation. Oh, Ice packs behind the head and neck sometimes helps me to function at times. It perks me up. I wish they would study why it helps.

If it is going to be it is up to me !!!
LIVINGFREE19's Photo LIVINGFREE19 Posts: 37,039
2/13/11 3:23 P

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Wow, thank you for all the information!
I get so tired so often that I can't work. I am working on getting disability right now. I have to commend you and all those other MS'ers that are able to work and hold down a job!
I think the pedometer really is an incentive device to get a person moving.
Thank you so much for the encouragement also!
I am glad your stability has got better. I hope mine does too but with 90 pounds less in would seem inevitable that it would get better for me.
Good luck on your journey also!
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Denise

If you think you can, or if you think you can't, either way you are right!
DISADVOCATE's Photo DISADVOCATE SparkPoints: (0)
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2/13/11 3:19 P

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I was having the same problem even though I was getting eight hours of sleep. I found out that I have sleep apnea and now sleep with the CPAP machine. It improved the way I felt in the morning 100%. Ask your doctor being tired may not be associated with the MS.

TIME2BLOOM4ME's Photo TIME2BLOOM4ME SparkPoints: (144,646)
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2/13/11 3:11 P

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Hi. That would be me. I am recovering from yet another flair. I have a gowearfit.com device to measure the steps and activity, calories burned. It really helps to motivate me.

Anyway I tend to sit and do nothing when I flare, but if I wear it I try to march in place or move more. If I get in 1000 steps per hour by the end of the day I will have my 10,000 steps in.

When I am healthier I go on walks. I can walk up to 3.25 miles now during my better days. If I could just get these flares to go away. I recently found Barre workouts are wonderful for strengthing muscles that are messed up by MS. I can't say enough good things about these workouts. It feels like they help me to walk better, increase the flexibility, I can run a bit with due to the improved strength with them, (before the flare) I was able to walk without holding on to my husband where as before I had to hold on to him for balance.

I don't sell them or anything or promote them I just love what they have done for my muscles related to ms. They have done more for me than any other workout. It feels like the connection between the brain getting the message to the legs to work has been strengthened. If you want links to any of there sites let me know.

If it is going to be it is up to me !!!
VALI_T's Photo VALI_T SparkPoints: (99,011)
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2/13/11 2:04 P

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I usually feel tired when I wake up in the morning and would like to go back to sleep...but don't take me as typical because I get up at 3:00 on mornings when I have to go to work, and who wouldn't feel tired and want to go back to sleep at 3:00 in the morning? But even on the weekends when I can sleep until 7:00 or 8:00 and get 9 or 10 hours of sleep, I still want to go right back to sleep instead of getting up.

One of the frustrating things about MS for me is that I get fatigued so easily and I have absolutely no sense of balance anymore. I used to be able to walk really fast, but these days I have to walk a lot more slowly and be very careful about my footing. Right now it's dangerous for me to take walks in a lot of places outside because there's still ice on a lot of the sidewalks here in town and that's like a death trap for me. But then in the summer when there's absolutely no ice around...it's too darn hot and I can't handle that, either. My MS was diagnosed in 1996 and even after all this time, I'm still trying to get used to what my body can and can not do. emoticon

So anyway, definitely start with small changes in your life. If you can't do 10,000 steps right now, just do what you're able to do. If you can only do 1,000 or 2,000 steps, that's okay. It's a starting point. Maybe you can add 100 steps per day every week or two but just keep your goals realitic. The only way for you to fail is to not try at all. Stick with your program and you'll do just fine. emoticon

There was much rejoicing!


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LIVINGFREE19's Photo LIVINGFREE19 Posts: 37,039
2/12/11 10:42 P

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Hi!
Thanks for the info. Yeah, I definitely will have to start out slow, and with MS it is hard to plan certain times to do the walking each day so I will have to just wing it. They say in the morning is the best time to kick start the metabolism but since MS makes your capabilities so unpredictable I will have to see as I go how I can accomplish this feat!
I feel tired when I wake up in the morning and can go right back to bed. Is this a common characteristic for others? I would love to hear others feedback!
Thank you very much,
Denise

Denise

If you think you can, or if you think you can't, either way you are right!
MAMABUGAZ's Photo MAMABUGAZ SparkPoints: (20,001)
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2/12/11 10:35 P

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10,000 steps per day is a lot, if you're new to walking, and if you have MS. Wear the pedometer all day. Start with going for a "do-able" walk that day, see how many steps you accumulate. Then, just add a little bit every week. Can break up walks into 2 or 3, if it's easier.

I usually average about 3000 steps per day. A day with a lot of walking for me is about 5000. I could do more, if I took my own advice (more walks), but, I can't walk for more than 20 minutes at a time, due to stamina issues related to my MS (and, I'm starting to do more than I used to. Will, hopefully, keep increasing.). I also can't walk very fast.

Do what you can.

Wearing a pedometer helps motivate me. Without it, I'd likely only walk 1/2 as much some days.

I've centered my weight loss mostly on eating habits. It's only in the last month or two that I've been beginning to be more focused on exercise. I set manageable goals and increase them slowly. My philosophy is that it's better to start slow and keep improving than to try to do too much. Then I just get discouraged and throw in the towel and don't do anything at all.

~ Faith

P.S.: One of our SparkTeam members with MS posted once, on her blog, that she walks 10 minutes per hour, for a total of 10,000 steps per day. I don't expect to be that disciplined, but, it gives me hope that I can keep improving.

Edited by: MAMABUGAZ at: 2/12/2011 (22:42)
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Doing It With Multiple Sclerosis;
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2005-2009: 185 lbs. Some minor yo-yo-ing.
2010/Sept: 180 lbs; Waist 46"
2011/Jan 1: 160 lbs; May 22: 133 lbs for DD's wedding
2012/Jan 1: 119.8 lbs; May 1 117.2 lbs
2013/Jan 1 - 121.2 lbs
Monthly wt is in my SP intro

Reached 118 lbs for about 6 months; working hard to maintain weight, w peri-menopuase now;
Goal range: 107-118 lbs/W31.5. Under 123 OK


 current weight: 121.6 
 
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LIVINGFREE19's Photo LIVINGFREE19 Posts: 37,039
2/12/11 10:22 P

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Hi!
I am going to see if I can lose the weight I badly need to shed which is about 90 pounds so I have a real battle ahead!
I feel I am ready and I just went out and bought myself a pedometer and I don't know how many steps a day I can do but with MS I believe I will be pushing myself too hard to try and do 10,000 as is recommended for what is considered "active".
I have relapsing MS and was diagnosed in April of 2010. I am excited to see how much weight I can get off and how many medications I also can shed!
Let the battle begin!

Denise

If you think you can, or if you think you can't, either way you are right!
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