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JUNEGIRL2's Photo JUNEGIRL2 SparkPoints: (60,507)
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3/31/11 1:19 P

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Hi Kelly, It's good that you are being proactive with your daughter, at least you know what you may be dealing with. It sure does sound like you have your hands full. My daughter has asthma, started when she was 2 weeks old and luckily it tapered off around 8 only to show up full force at puberty. She still has problems but knows when to use her medication before she gets really sick.

We aren't sure yet if our boy has bi polar of not, I mean there are many similiarities between so many neurological illnesses. His birth father was diagnosed as schizoprenic but our
pyschiatrist says he may be bi polar as many people in that age range don't have the right diagnosis. Anyways the meds she put him on work well. We've had to take him off the one due to side effects and the tics, mania etc have returned. Now we are going to try a new med to see if that will help.

We are so lucky to have great peopel working with our son. He has had a visual consultant involved since preschool and she helps the school get work brailled and teaches staff how to help. she also does his mobility training. Dwayne is in a life skills room which may not be the best place for him but he can't handle regular classes and needed a very structured environment.

I hope to see you here again. Have a nice day!

Karen

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KELBETTS04 Posts: 2
3/31/11 10:31 A

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hi Karen,

I'm Kelly. I have two children with special needs. My daughter is 8 and 1/2 and has tourette's syndrome, asthma, allergies and immune issues. We are taking her later this month for a psych eval. I myself have Bipolar disorder and OCD and I want to make sure she isn't at risk for either of those. Her mood and attitude has changed so much lately. Not sure if its hormones or the Tourette's just causing havoc. My 7 Yr old son has ADHD, ODD, sensory issues, asthma, allergies, and eczema. He is working with a TSS, BCS and case manager to help him with his ADHD and ODD and now starting on his sensory issues. His doc said its a severe case. I hear from people all the time "how do you handle this"/ Life is never boring and sometimes gets overwhelming but i wouldn't trade it for the world. Having to do so much for them has helped me get my disorder in check. I cant afford to lose it. I wasn't dxed with the bipolar until i was 22 but i now have an explanation for the stuff that went on with me in high school. I was dxed with depression and anxiety at 12 but I knew it was something more. I truly believe that having Bipolar disorder has been a blessing for me and I've accepted it and welcomed finally knowing why i had these little "corks" that have become a part of my personality.

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JUNEGIRL2's Photo JUNEGIRL2 SparkPoints: (60,507)
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3/30/11 9:56 P

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Hi I am the new co leader of this team and want to intorduce myself.
I have a 15 year old boy with several special needs. He was born at 27 weeks, and because he received no steroids had breathing issues, he is blind and had a bowel obstruction. His birth Mom received no prenatal care for him. He joined our family at 17 months. He had his first seiizure at the age of 2 and these were always life threatening. At the age of 7 he received a VNS and we have had much better control of his seizures since then. He was also diagnosed as having PDD around this age as well. Now the Dr's feel that he is possibly bi polar.
Life is always interesting, never boring adn frequently overwhelming, but I have never regretted our decision to raise this special young man.
Introduce yourself to me! I would love to hear your story.

Karen

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