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BECCABOO127's Photo BECCABOO127 SparkPoints: (72,819)
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11/15/17 5:31 P

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Great info mcdid!

I get massages, and am getting ready to try accupuncture. I also do physical therapy which helps with some pain but not necessarily with nerve pain. I do everything I can do each day to help.

Severe pain gives me anxiety, so I guess I should find someone to help me with that too.

I read about Elmore oil from the arthritis team, and just started applying that with some self massage. The scent is heavenly, unlike most potions for nerve pain.

Edited by: BECCABOO127 at: 11/15/2017 (17:32)
If the mind mends, the body will follow. Gluten free is working for me!

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BEAUTIFULSHER's Photo BEAUTIFULSHER Posts: 199
11/14/17 2:24 P

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I’m going to try acupuncture this weekend. Never tried it

BEAUTIFULSHER's Photo BEAUTIFULSHER Posts: 199
11/8/17 2:29 P

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I have chronic neck and back pain. I have cervical spondylosis, narrowing of the spine. Some days are better than others. Hanging in there with my excerise and weight loss. One day at a time

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10/28/17 5:16 A

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emoticon I am new here although not new to SP!
I am a 7 year cancer survivor who has chronic back pain due to fractured discs and nerve entrapment, made a lot worse post chemo and cortisone therapy... I am almost on pain relief daily, taking Diclofenac or Vicodin, but even these don't work very well now.
I am a Rad tech by profession, still at work- Disability is a myth here in Cyprus unless you know people- so making the best of it.
I have weekly physio and use heating pads and hot baths! Learning what I can for pain control so I can ditch some of the meds !


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10/27/17 4:36 P

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Im new here....I have severe pain from fibro, RA, previous back surgery, four bulging discs, and crushed nerves in my neck.
I do everything I can to help my pain. Have tried it all.
I have an oska pulse which is awesome to help with my back pain. YOu can check it out at oskawellness.com. The machine helps promote healing and really does help me. Those in my family who have used it say it helps them too.
I use heating pads, warm baths, rest, walking, stretching, prayer....anything I can do to feel better.
I am on a fentanyl patch-been on the same dose since 2010 so it is not helping much these days I go to a pain clinic each month. I also take vicodin for break through pain. Even with thse meds I am never pain free.
I worked as a RN for 30 years but now am on disability. I am always reading and learning what can help with pain control.

MCDIDDLYD's Photo MCDIDDLYD Posts: 36,519
10/19/17 6:25 P

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Coping With Chronic Pain, By: Jackie Waters

Pain from an injury is terrible, but sufferers know there is an end in sight.  Those who suffer from chronic pain often feel hopeless, asking “when will my pain end?”. This can often lead to substance abuse, which can quickly spiral into addiction. The pain can last months or years and can be difficult to treat. The American Chronic Pain Association describes chronic pain as pain that’s ongoing for more than three to six months and that adversely affects the person’s well being. The following recommendations address lifestyle modifications, physical activity, and support systems. 

Lifestyle modifications can minimize the everyday pain in chronic illness.  The American Psychological Association says it’s important to manage stress. Persistent pain can increase stress, and high stress can increase pain. Essentially, emotional pain and physical pain feed off of each other. It’s impossible to completely remove stress from your life, but one can reduce the amount of stress. Dealing with stress in healthy ways can help one efficiently manage their chronic pain.

Distracting yourself from the pain is also helpful in improving your life, says the APA. Try engaging in activities (such as attending church and related events) that you enjoy that keep your mind busy and off the pain. Also, don’t isolate yourself. This will only promote a negative attitude and increase the perception of your pain. Find an activity that you enjoy that also involves the participation of family and friends or other people in your community.

The APA also suggests getting a sufficient amount of sleep, maintaining the proper level of physical activity, and eating a healthy and well-balanced diet. You can take it a step further by including foods recognized for their ability to reduce inflammation, a known culprit of chronic pain. Healthline suggests choosing easy-to-digest foods and avoiding processed foods. Foods that may alleviate inflammation include leafy greens, foods high in omega-3 fatty acids, low-sugar fruits, and soy products. Likewise, you should avoid foods that exacerbate inflammation, such as nightshade vegetables, dairy, citrus fruits, high-fat red meats, and caffeine.

Exercise has shown to provide tremendous help to those that suffer with chronic pain. The postures, breathing techniques, and meditation used in yoga are all effective in treating both the physical and psychological effects of chronic pain, notes Healthline. Yoga increases strength and flexibility, which combats the physical effects. Yoga also calms the mind and reduces stress, which combats psychological effects. One should also practice good posture techniques throughout the day.

Unfortunately, chronic pain can make exercise uncomfortable or painful. According to Spine-health, water therapy provides a much gentler option than exercising on land, while still offering many of the same benefits. “The physical properties of water make it a highly desirable medium in which to exercise,” states Spine-Health. Thanks to its buoyancy, water counteracts gravity, providing support for the patient’s weight. Water also provides mild resistance that gently strengthens muscles and produces hydrostatic pressure that improves heart and lung function. Additionally, pain may be decreased from other factors associated with water therapy, such as the relaxing sounds and warmth of the water.

 Spine-health also points out that a massage can help alleviate pain; however, if you cannot easily leave your home or you prefer a more private option, a good massage chair can provide similar results of pain relief and relaxation. Massage increases blood flow and lymphatic circulation, decreases tension, and improves flexibility. Furthermore, and arguably the biggest benefit, massage releases endorphins, which relaxes the body, promotes positivity, and relieves pain.

Lastly, chronic pain suffers can benefit from a support system. Try to find a support person or group; you’ll get the most benefits from those who can empathize with you.  Consider speaking with a mental health professional. He or she can assist you in managing the physical and psychological issues associated with chronic pain. Even though it’s not always easy, the APA reminds chronic pain suffers to think positively and to lift themselves up, even for small accomplishments toward improvement.  Article written by- Jackie Waters

Jackie was diagnosed with rheumatoid arthritis in her mid-20s. Afterwards, She began making the lifestyle changes needed in order to minimize the number of medications she would need to take. Jackie states, “As a neat freak, I’ve always been obsessed with a clean home. So, one of the first things I did was throw out harmful cleaning products and re-organize my home so that it would be easier for me to manage my “bad” days. I also made diet and lifestyle changes to minimize, as much as possible, my joint inflammation.  I understand how scary it is to be diagnosed with a chronic illness.” This piece offers her tips and advice on how to rework one’s home life to minimize chronic pain and lifestyle changes to make.” I just want to help others who are living with chronic pain.”
– Jackie Waters 

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MCDIDDLYD's Photo MCDIDDLYD Posts: 36,519
10/16/17 6:08 P

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Hi and Welcome to the new members.

Please tell us what find of chronic pain you have and what you do for pain management. I wish you all the best with your goals just take it one day at a time, that is all we can do. I know a lot of people can't understand what chronic pain is, so I think they need to really read upon it. For chronic pain takes away your joy, sometimes your meaning of life and what it is. Pain can come all over you to were it can take your whole day away. If you do not know that person DO NOT JUDGE THEM. Chronic pain comes in all kinds of forum and any body can get it. If you just have pain and not chronic pain and can not understand what we are going through then this team may not be for you.

Leader - Sheila


Edited by: MCDIDDLYD at: 10/16/2017 (18:10)
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AZ_CAT_PERSON's Photo AZ_CAT_PERSON Posts: 416
12/11/13 10:12 P

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Don't know if this is still active or not, but I wanted to introduce myself and share my pain management.

My name is Sindia, I am 51 yrs old. I have had 3 back surgeries due to herniated discs. Unfortunately, all three surgeries were for the L5-S1. My third surgery was in May, I had a laminectomy and discectomy on the L4-L5 & L5-S1; also had the L5-S1 fused. Due to a conjoined nerve root the L4-L5 was not fused. I see a Pain Management Doctor every two weeks for lower back pain, sciatic pain in right leg, and sever shaking of legs. I am currently taking Oxycontin, Percocet, Gabapentin, Zanaflex and zolpidem to help me sleep. I use my heating pad on and off during the day and then put Ultra Strength Ben gay on my back and back of leg at night.
I am currently waiting to see a neurologist, my pain doctor seems to think I have some nerve damage.

Hope you all are feeling a bit better. Hugs to you all.
emoticon emoticon emoticon emoticon


Sindia (Phoenix, AZ)
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KAREN2LOSE55's Photo KAREN2LOSE55 Posts: 8,040
10/28/13 10:45 A

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Well, good for you Ayla, for getting cleared for exercising! Good luck to you!!

Karen from Minnesota

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10/27/13 10:28 P

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Hi Seattle: Good news--I gave up my heating pad! I kind of had to, as it was damaging my skin. But my pain is mostly under control. I put on a lot of weight lately, and am renewing my committment to weight loss. I had a thing where I ate almost nothing but oatmeal for a while, and I ate way too much of it.

Then, on top of everything else, three weeks ago I had a pulmonary embolism. I just got home five days ago. But the doc has cleared me to go on an exercise plan, so here I go......


Ayla

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10/24/13 11:40 P

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Oh wow, I'm really feeling for you Ayla, and everyone else who has to deal with chronic pain or just every now and then pain, it's no fun. I have Rheumatoid Arthritis and have hurt so bad for years but was diagnosed in 2008 after my fingers were like sausages and my joints were blue. I even had blood tests before with no sign of it. They say that that can happen more than not. I'm on Prednisone, Plaquenil, Leflunomide and Humira, all for the RA. Also take Lisinipril for high pressure. I hope that everyone's having a less painful day. Today's been tough so am using the heating pad and I took an awesome bubble bath! emoticon

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7/27/13 8:49 P

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Hi, I'm Ayla. I was born with a condition called mesenterointestinal lymphangiectasia, which basically means I have intestinal tumors that swell and burt if I have any more than 30 grams of fat per day. My stomach constantly looks swollen, so people are always asking me when the baby is due. I take meds: Norco, Fentanyl, Thorazine, Cymbalta, Topamax and Ativan, they help on some days. Other days I turn to bed with my heating pad named Kermit.

I was diagnosed at age 8 months, when my MD found a lump. The surgery was open and shut. Biopsies only. I didn't have any symptoms at all until I was in my twenties, and I didn't seek treatment until 2005. I had IV feedings for a while, and also had a g-tube for a while, but for now, I am getting by with strict diet management. Now I have pain and swelling on a regular basis. If I adhere to a superstrict diet, the pain lessens from an 8 to a 5.

"Look for the positive in each day, even if some days you have to look a little harder"

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XOFAITH's Photo XOFAITH Posts: 189
5/18/13 11:11 P

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I have chronic abdominal pain. I did a nerve block injection to help the pain which, seems to be working really well for now. Right now with the block I'm taking two to four norco's per day and managing pretty well.

Before that I was taking 5-7 percocets a day. So its a huge improvement.

I also hope to reduce my pain through healthy eating, exercise and relaxation in combination with the pain meds as needed.

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DCAPDEVI's Photo DCAPDEVI SparkPoints: (4,357)
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2/18/13 10:43 P

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Hello all. I was on here a while back, and trying to stay on the wagon again this time.
Brief History: 8 herniated discs, stenosis, nerve damage. Had diskectomy Aug 2011, reherniated per MRI Jan 2012. Constant pain since 2001, horribly worse since 2008.

I've moved from Jersey to Virginia to live with friends (was getting too hard on my own). I'm stareting over here. Finally got in to see neuro and was told I was too young for the surgery the NJ doctor recommended.

I'm trying to not be too depressed but it's so HARD! And advice? I'm hurting and having a lot of trouble getting any relief! AAARRGGGHH!

Hope you all had a wonderful Monday!

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AMYROSEC's Photo AMYROSEC SparkPoints: (384,207)
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10/20/12 5:21 P

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Exercise has helped somewhat with the pain. I take Gabapentin and Meloxicam for pain 2 times a day, at night I also take Tizanidine so I can sleep.

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VERONICA722's Photo VERONICA722 SparkPoints: (5,591)
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9/6/12 9:58 A

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two days of gingerly walking around an active dog and concerned husband.
emoticon

lots of heat pads and cold compresses.
then the muscle relaxants.
finally got a good night sleep and the pain in manageable with a double dose of Aleve.
emoticon
got things to do today. remember to be good to myself and
BE AT MY PACE!
slow and steady is the way to go.
then maybe I can do some more things tomorrow.



oooooommmmmm gonna do it

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9/3/12 9:59 A

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emoticon

I overplayed my hand this weekend.
I so love riding my bicycle.
Yesterday am, I went out early to take pics of the full moon.
I was riding around town, sleepy little town, on the sidewalks and such, all flat land.
got some ok shots of moon and pine trees. came back home and did my normal Sunday routine of going thru the ads while watching CNN.
by noon, I was in such pain that I could hardly see straight.
my back just seized.
nausea and blinding lights and feelings of coming apart at the seams!!!
took meds and laid down in dark cool room. 2 hours later the meds had begun to take the edge off. I watched some of a baseball game -- one of my most favorite things to do!
couldn't watch it all and went back to bed.

anyway, with the help of meds I was able to at least rest most of the night.
today, I've been up about 2 hours and getting ready to take a hot bath, more meds and go back to bed. I can't even think about knitting! YUK!!!
I really hate days like this. but truly I haven't had so many lately that
this just caught me by surprise!! I feel like such a baby! BOO! HOO!

thanks for letting me rant!!


emoticon emoticon

emoticon emoticon

oooooommmmmm gonna do it

Your task is not to seek for love, but merely to seek and find all the barriers within yourself that you have built against it.
--Rumi

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8/3/12 1:15 P

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I have been having severe back pain since Feb. I found out I have bulging discs and spinal stenosis. I am getting shots in my back and also Physical Therapy. I just started therapy, but I can use the exercises for tracking.
I have had a hard time posting or tracking my goals. My computer keeps freezing up on me. Today I noticed everything I had track since Sun is gone. I tried to get them back or reenter but nothing happens. This is so frustrating. I will keep trying though. If anyone notices that I haven't been on or tracking you will know why.

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ARGENT690's Photo ARGENT690 SparkPoints: (4,169)
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5/13/12 3:16 A

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After over a year of trying to find the right combination, my doctor has me on Cymbalta (1/day 30mg) and Oxycodone (1/day at night to help me sleep). The Cymbalta has worked amazing and I actually managed to have days of no pain! At first I was hesitant of it (what with it being an anti-anxiety and anti-depressant drug) but found out that it is used for chronic lower back pain and fibromyalgia. If it keeps up I can stay on just Cymbalta, no other meds.

The Oxycodone was recently added back after a re-injury to my lower back causing extreme pain, but most days I don't need them any more! I used to have to take them 2 every 3hrs to get even slight relief.


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MCDIDDLYD's Photo MCDIDDLYD Posts: 36,519
5/1/12 7:25 P

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Back Pain Overview

www.laserspineinstitute.com/back_pro
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ems/back_pain/?source=unifiedsearchmR>arketplace&Category=USM&AdID={creati
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ork={ifContent:Content&SiteT
arget={pla
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ource=unifie
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5/1/12 7:23 P

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Manage Diabetic Nerve Pain
Learn About Ways That May Help You Manage Your Diabetic Nerve Pain

www.diabetespainhelp.com/diabetic-ne
rv
e-pain-management.aspx?source=yahoo&R>HBX_PK=s_nerve++pain++management&o=4
11
88197|218075020|0&skwid=43700003273836243


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ME0909's Photo ME0909 Posts: 129
2/9/12 1:04 P

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Hi Beesuth,

I have had a 4 year history in working with Pain Specialists with not much success. I have found there to be two to three different type of pain specialists when I have been dealing with my herniated disc/sciatica/back pain issues.

1.) Those who offer a myriad of treatment possibilities - including narcotic, non-narcotic, injections, nerve surgeries, ECG supportive services, etc.
2.) Those who offer very limited, non-invasive, non-narcotic approaches for treatment - epidurals, nerve blocks, and as a last resort prescription, but non-narcotic medications only
3.) Those who only offer medications only - both narcotic and non-narcotic.

I too, had been on Percocet for over three years. It definitely helped but only for awhile until, not realizing it was a narcotic, the doctor simply kept increasing the dosage as a means of improving the effectiveness of the medication. The surgeon whom I had been seeing advised to get off all the narcotics given that it did not provide an adequate frame of reference baseline as to my injury and need for surgery. I tried to get off of the Percocet but needed to be hospitalized for the withdrawal symptoms (now know what it is like for an addict..smiles) to only be placed on Subutex to aid in the withdrawal - another narcotic. Eventually had the same withdrawal symptoms as I attempted to end that as well. I tell you this only because I am concerned for you and I am very sincere. Eventually, that is something you need to work through and discuss however, as we all do, with our doctors. Right now I am on Tramadol which also has it's pro's and con's however it seems to be working as have my new approach of seeing a local chiropractor who also offers accupunture. I truly have gone the gamit of treatments, most unsuccessful. I also find the importance in what I feel is using scientific based testing when working with any pain specialist. The one doctor never used anything more than my MRI and the radiologists reports where his partner, immediately questioned why an ECG was never done to determine the exact location of the injury/pain source. That provided greater insight as to the exact location of the pain. It did not however, help in resolving the issue via nerve blocks or epidurals. As mentioned, I am finding that currently help through a chiropractor as well as my general physician who has prescribed the Tramadol. I also take a few anti-depressants as well as anti-anxiety meds to aid in managing my pain threshold.

Hope this was of some help and I will say a prayer for you also...

ME

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10/1/11 10:49 P

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I wonder if this has happened to any of you. I have been tried on every single pain medication on the market and they all have the same effect on me - they make me extremely hyper. Even only half a pill keeps me awake for 20 hours. The same thing happens with sleep medication.
I guess my body must work backwards. Maybe I should try something to make me hyper on purpose and then I will sleep! I can go for 5 days at a time without any sleep and then sleep for about 2 hours and the pain wakes me up.

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MCDIDDLYD's Photo MCDIDDLYD Posts: 36,519
6/9/11 5:30 P

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I have been seeing a pain management doctor for the last 5 months, I think. He really does try to help with the pain but I just can't take all this meds and live a healthy life. I don't know what to do. I am trying to move around a little more, that does help some and only at times.

How are all of you doing?

Sheila

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5/2/11 7:53 P

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I have never been one to take meds.......even asprin but things change as we get older..........oh dear, that even hurt my fingers to type that revelation.......lol. I was given an cortisone shot in the spine last Friday for pain that I think even surpassed childbirth.........now ladies, I figure that is about a strong a statement that you can ever make. Today not in so much pain but have numbness in leg and feet for which the Dr office tells me is quite common. I am so hoping this shot works for I have way to much to get done around the house here. I have reached the decison to hang up my dustcloth to other houses as it is taking all I have to get my own done. I feel really bad about letting my clients down but just can't keep up. You know the saying, "If you can't run with the big dogs, stay on the porch"

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ALASKALILLADY's Photo ALASKALILLADY Posts: 79
1/5/11 4:58 P

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Hi Everyone!

I am just dropping by to say hi and introduce myself to the team. I am a 30 year old mom of two wonderful children and my chronic pain is having a major impact on how I deal with situations and how much energy I have at the end of the day.

I was married to a very abusive person and unfortunately I am now realizing how much damage was really done to my body. I have been seeing a neurologist, a pain management specialist, an orthopedic surgeon, a physical therapist and also am using a tens unit. I am also taking neurontin, depakote, and Ultram. I am trying to get up and move more every day but there are sure days that it is very difficult to even get out of bed.

Talk to you all soon.
Thanks for letting me vent.

Cristin

If you are doing your best, you won't have any time to worry about failure. Author Unknown

"A positive attitude may not solve all your problems, but it will annoy enough people to make it worth the effort."
-Herm Albright

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BEESUTH's Photo BEESUTH SparkPoints: (0)
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10/21/10 7:06 P

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Has anyone had any issues getting a referral to pain specialist? I'm trying to get in to see one, but they won't call me back!

I take at least 4 5mg percocet per day, and am as active as I can be (dance twice per week, yoga once per week, stretch at home every day). I want to explore other altneratives for pain management--different medications, other exercises, etc.

Edited by: BEESUTH at: 10/21/2010 (19:11)
~Bethany

Habit is habit and not to be flung out of the window by any man [or woman], but coaxed downstairs a step at a time.--Samuel Clemens

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"As we express our gratitude, we must never forget that the highest appreciation is not to utter words, but to live by them." - John F. Kennedy


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PAGGYJ's Photo PAGGYJ Posts: 1,843
9/30/10 5:52 P

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Hi swimgirl and all.Good to see u here but not the pain.Is your pain better at all.refrest me on this.beside that how is life..Peggy

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9/30/10 3:23 P

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My doctor increased my Lyrica dose and I am so sleepy. I am hoping I adjust to this new dose soon. emoticon

Mystyne :)

"Today is your day, your mountain is waiting, so get on your way." ---Dr. Seuss

Every adversity carries with it the seed of an equal or greater benefit. -from a fortune cookie


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PAGGYJ's Photo PAGGYJ Posts: 1,843
9/21/10 6:31 P

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Good for you on pain and weight loss.I thought the same thing.I can't do that in this pain but we find we can..Take care..pj emoticon

Edited by: PAGGYJ at: 9/21/2010 (18:31)
SPECIAL6's Photo SPECIAL6 Posts: 4,466
9/21/10 6:17 P

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Hi!!!! everyone I been in so much severe pain even through I had been taking pain medications so I went to my pain specialist for her to up my dosage for the pain relief and she suggest I move more I look at here like she was crazy how can I move when I in so much pain but anyway I went home and tried working out on the chair and you know what!!! My pain has been reduced I will continue exercise while I am on my chair for pain relief and I am losing weight as well. Sorry for an long message here I am so excited I had to shared with the team. emoticon

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PAGGYJ's Photo PAGGYJ Posts: 1,843
9/5/10 12:15 A

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emoticon Hi..I havent been here in some time.I am trying to manage my pain with doing what i can and then rest.I take pain meds too.I had big back surgry and still have others stuff.It gets u down when u are not allowed t do much.I go back in couple weeks.I decided to not lift no more than 10 weights if I can,He told me not to.But I am doing some better.I hope u all are finding ways to manage your pains..peggy

GENIELEU1's Photo GENIELEU1 Posts: 21
6/27/10 7:42 P

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Attitude is the only thing that we can always control. Having a negative attitude certainly doesn't get us anything, so... You go, girl. Sounds like you are doing everything you can. I have heard so many wonderful things about yoga. My boss is a real advocate. I'm thinking of taking one of the classes they offer at work.

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SUSANPETUNIA's Photo SUSANPETUNIA Posts: 320
6/27/10 7:37 P

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I have decided to focus on what I can do not what I can't do. I have bombarded doctors lately and have gotten mixed results, but I am making progress. For me, pain killers are my only short-term relief right now and I can't get those often. I am trying yoga which I was pleased with my first class. I am yanking myself back from the point of no return. I am the only one who can make my life better- no pill can do that and it won't happen overnight as I want it to. So, I am on here soaking up whatever I can and reading The Spark, also taking advice from people who have been where you are and believing that life can and will be different. Attitude is hard to keep positive, but it's necessary. Sparkpeople helps with that!

emoticon

"So oftentimes it happens that we live our lives in chains, and we never even know we held the key." Eagles, Already Gone


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GENIELEU1's Photo GENIELEU1 Posts: 21
6/27/10 7:26 P

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Thank you, BraveOne92. You, too, have been through a lot, but we know that God will only give us what we can bear. My daughter (also an ICU nurse - they are a special breed) says that God knows that I am a "tough broad". She has been my rock, not to mention my son and d-in-law. SparkPeople, too, has been a huge resource - good info, good people. I hope that you will continue to find the strength to keep on going, no matter what. As I always say - life is good. God bless you.

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BRAVEONE92's Photo BRAVEONE92 SparkPoints: (113,181)
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6/27/10 7:14 P

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My gosh Genie, I am so sorry to hear that you have gone through so very many different surgeries and conditions. I have never heard of the kind of neuralgia that you mentioned. I will check it out though. I do hope that the medicine will help you to ease off. I sure hope that I don't ever get this condition. When we think that we cannot take another painful condition, we find us in yet another, it seems. My daughter is also an RN, working in ICU, when she comes back from vacation.

Edited by: BRAVEONE92 at: 6/27/2010 (19:15)
"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


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GENIELEU1's Photo GENIELEU1 Posts: 21
6/26/10 2:57 P

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Just diagnosed with trigeminal neuralgia about a week ago. OMG, the pain can be horrific. I am taking Tegretol, which sometimes seems to work and other times, not so much. Today is a not so much day. I am up to 400mg/day and the MD said we could go to 1200 ultimately. At this point, I would hang by my toes from a flagpole if they said it would help. How do you deal with it? What has worked. I have read other blogs and people have tried all sorts of things. Just read about some sort of portable, low intensity, ultrasound pain shield. It's relatively new, but may hold some promise. My daughter is a nurse, and she is advising just to stay with the Tegretol for a while until we see how that works. I have been through breast cancer, mastectomy, chemo, a fistula and abdominal surgery in the last year. This is worse than all of them. Would love to hear how you are coping. Genie

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6/7/10 11:19 A

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I went last year to physical therapy for 3 months. They worked with all my muscles, trying to stretch them. It really did help me. As long as I do my stretches, it seems that the pain is not as bad. The thing is, I don't like to exercise, other than walking. So, I will get lazy and not stretch for a long period. My muscles tighten up and then the pain comes on. PT gave me illustrations on paper, to do all the exercises that would keep me limber, I just need to do them.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


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PAGGYJ's Photo PAGGYJ Posts: 1,843
5/23/10 12:51 A

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Can not get my pain under control.Hope u all are doing well.pj

SHAWWB's Photo SHAWWB Posts: 1,939
5/4/10 2:11 P

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I don't think I ever really understood what Chronic Pain meant until this past year. Still not sure what is wrong with me, one doctor says Fibroymyalgia and the other says Sleep Apnea. I guess it goes back to the chicken or the egg, "am I in pain because I don't sleep or do I not sleep because I am in pain?" Boy if we could just figure that out.

I just ordered a Sleep Number bed which should come in shortly and hopefully that will help, also had an overnight 1st step test for the Apnea, if we can rule that out, we can move the other way.

My doctor has my on Lexapro and Nortriptyline and has given me a Flector Patch for the pain. Nothing seems to help.

I have new sympathy for all you people out there with Chronic Pain and I apologize for all the years when I thought it wasn't a big deal. Boy was I wrong!

Edited by: SHAWWB at: 5/4/2010 (14:11)
"Failure is not defeat until you give up" Author Unknown


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BETTERME54's Photo BETTERME54 Posts: 1,966
5/3/10 3:53 P

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MAY 3-
Today report on me is I'm in soooooo much PAIN I can barely think, remember, move, my upper body feels like it's on fire.
I can relate ladies with all the pain you are having. emoticon

When things get tough, always remember...

Faith doesn't get you around trouble, it gets you through it !!


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CANDYCANE4049's Photo CANDYCANE4049 Posts: 823
4/22/10 10:29 A

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I HAVE LOWER BACK PAIN THE DOCTORS DONT WONT ME ON DRUGS FOR PAIN BECAUSE OF MY HEALTH SO I LIVE WITH IT .DOCTORS TOLD ME TO WORKOUT OUT EVERY DAY ALL I GET IS MOER PAIN!!!!! PAIN STOPS ME FROM WORKING OUT EVERY DAY SO I WORKOUT ONLY 2-3 DAYS A WEEK NOW STILL IN PAIN THATS MY LIFE..


*( I WRITE IN CAPS BECAUSE I DON'T SEE WELL)*

**********
FIRST GOAL IS TO LOSS

5LBS

SECOND GOAL IS TO

10LBS

3 RD GOAL IS TO LOSS

15 LBS

4 TH GOAL IS TO LOSS

20 LBS

5 TH GOAL IS TO LOSS

25 LBS

6 TH GOAL IS TO LOSS

35 - 45 LBS

7 TH GOAL IS TO LOSS

55-65 LBS


MEDIUM-TERM GOALS:

TO LOSE 1-2 LBS A MONTH

SHORT-TERM GOALS EVERYDAY :


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DDOOAK's Photo DDOOAK SparkPoints: (0)
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3/22/10 7:39 P

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Just went 5 days without any painkillers and OMG I not realize (not for the first time) just how much this fibromyalgia is affecting my body. Especially my middle back. Today I got some painkillers and they took the pain but I still feel like I'm walking around all bent over and stuff (like I'm still in pain) although I'm not really feeling it. But emotionally I feel very down. I don't know if it's from the meds. Anyways, life really has changed since I got fibro and CFS. But I've learned to live with it. I have a good mattress, but I've noticed that's where my back really hurts after a night's sleep so I ordered a 4" memory foam mattress which should come in a week. Hope that helps.
Take Care all.
Karen emoticon

Grant that I may not pray alone from my head; help me that I may pray from the depths of my heart.

"Be who you are, and say what you feel. Those who mind, don't matter, and those who matter, don't mind". - Dr. Suess.


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BETTERME54's Photo BETTERME54 Posts: 1,966
2/17/10 6:25 P

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Hi Betty

How are you today? My TENS Unit only can do so much due to the combinations of pains I'm suffering from. My pain management doctor put me on this other nerve stimulator called Alpha-Stem that also has a more advanced 10 unit which helps a lot but now I am suffering from diverticulosis, and esophagitis and it feel like my insides are on fire. I have medication to help and I have to watch what I eat, of course it will take sometime to heal(if it heals).
This pain combine with chronic pain and fibromyalgia really bing me down but I'm fighting to keep my head above water.

This cold weather do get you right everybody.
Soft emoticon emoticon to us ALL!!!!

Edited by: BETTERME54 at: 2/17/2010 (18:29)
When things get tough, always remember...

Faith doesn't get you around trouble, it gets you through it !!


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BETTYBAY's Photo BETTYBAY Posts: 63
2/16/10 6:05 P

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emoticon betterme54 how is that TENS unit doing for you?? Years ago I had one LOVED IT!! Had a great doctor as the pain changed he would move the pads around. Sure do miss it. emoticon My morphine doesn't do much for me especially on cold days, like today!! GOOD LUCK

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LILYPUDGE's Photo LILYPUDGE Posts: 124
11/12/09 8:19 A

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I have trigeminal neuralgia too. Had it since 1985. Tegretol has been helpful for me and now in my mid-50s I need less of the Tegretol to manage the pain.

Mine is worse in cooler/colder weather. I'm moving to south TX tomorrow so I'll be interested to see if climate really helps. Been living in KS and CO for past 6 years.

Hang in there!

I can do all things through Christ who strengthens me. Philippians 4:13



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DEAFESKIE's Photo DEAFESKIE Posts: 29
6/18/09 11:31 P

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Hmm. Not sure what is Neuralgia pain....

But I am noticing something. The more REST/SLEEP I get the less pain.... Mind you I don't mean LOTS of sleep like ten hours--no. I mean if you get a good eight or nine hours a night. Pain goes down.

Also if you have acid reflux--and it's "flaring", you pain levels will go UP at least in your back.

Now I would like to ask a very good question.

Has ANYONE tried those Himalayian Salt Lamps????? Are they any good? Do they work???? I am hearing results from friends of mine that say they DO work, and I would love to find more people that say it does work and all of that before I buy my own.....

Experiences wanted.....:)

Le & furbrats Blossom (at the bridge), Meriko , & introducing...Tinkerbell!!
Houston, Texas
192lbs @ sign-up with a 35.5 BMI
Goal Weight: 150lb or less & sticking to the program for life.


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SEZWHO's Photo SEZWHO Posts: 142
6/6/09 9:04 A

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Still having neuralgia pain, up to 1800mg of neurontin, but it is manageable. I will up meds 300 more this week and hopefully that will rid me of all the face pain. Going to have to go back to the neurologist soon, but can't think of that until after vacation..Anyone here have trigeminal neuralgia?

Enjoy each day - take whatever it brings and go with it and you will never be disappointed.


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BETTERME54's Photo BETTERME54 Posts: 1,966
5/8/09 5:58 P

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I had my monthly visit with my pain management doctor and my first task was I got off those fentanyl patch and I'm only going to take the hydrocodone as needed for the pain instead of 3 x a day. Use my heating pad and TENS UNIT. Drink more herbal tea.

When things get tough, always remember...

Faith doesn't get you around trouble, it gets you through it !!


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BETTERME54's Photo BETTERME54 Posts: 1,966
4/24/09 7:25 P

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Sorry to hear that you have to go through surgery again.

I'm praying for you. I do hope all goes well.

Let us know when. Hang in there a miracle will come your way. You never know.


emoticon

When things get tough, always remember...

Faith doesn't get you around trouble, it gets you through it !!


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ARMYMOM46's Photo ARMYMOM46 Posts: 5,267
4/24/09 8:04 A

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Not good. He is going to do a CT scan and said I am in for more surgery he just wants the CT scan first so he know what all he hasw to do. This will make number 16 back surgery

ARMYMOM46
OUR FREEDOM IS NOT FREE PRAY FOR OUR TROOPS.


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BETTERME54's Photo BETTERME54 Posts: 1,966
4/23/09 4:37 P

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ARMYMOM46

How did your visit to the doctor?

When things get tough, always remember...

Faith doesn't get you around trouble, it gets you through it !!


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BETTERME54's Photo BETTERME54 Posts: 1,966
4/23/09 4:34 P

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Hi BONNIEMAC588

I hope you are having a good day.

Have you got any release from the pain?

You take care.

Edited by: BETTERME54 at: 4/23/2009 (16:36)
When things get tough, always remember...

Faith doesn't get you around trouble, it gets you through it !!


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BETTERME54's Photo BETTERME54 Posts: 1,966
4/23/09 4:31 P

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Hi everybody emoticon

Hope is Health,
Hope is Peace,
Hope is Love,
Hope is Hugs,

So I'm sending out emoticon to you all.
Have a good day



When things get tough, always remember...

Faith doesn't get you around trouble, it gets you through it !!


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