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LILYPUDGE's Photo LILYPUDGE Posts: 100
11/11/14 8:19 P

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Since I had a steroid injection to my SI joint for back pain, I am taking:

Mobic 15 mg daily
Ultram 50 mg twice a day
Lyrica 150 mg twice a day

I can do all things through Christ who strengthens me. Philippians 4:13



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SHANNAKAY1101's Photo SHANNAKAY1101 SparkPoints: (9,042)
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8/13/14 2:43 P

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My Dr. has been changing my meds around so much lately that it is hard to keep up! At the moment:
Topamax: 100 mg (preventative)
Amitriptyline:10 mg (preventative)
Tizanadine: 2 mg (pain)
Tramadol: 50 mg (pain)
Butterbur (herbal/supplement/preventative)
MigRelief (herbal/supplement/preventative)
Cymbalta (antidepressant)
RelPax (abortive), Vicodin 5/500 (pain), Phenegren (pain/nausea)

Edited by: SHANNAKAY1101 at: 8/13/2014 (14:46)
Shanna Kay


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AQUAGIRL08's Photo AQUAGIRL08 SparkPoints: (205,254)
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6/25/14 2:15 P

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Slada69, thanks for posting the article. I recently read something similar about people who suffer from PTSD too. I wonder if there is any connection.

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OCEANLUVER Posts: 268
6/12/14 9:35 P

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Salada69
Thank you for the article.
And the link to read more.
Very interesting stuff!
Blessings!

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9/3/13 11:12 P

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I use docusate for constipation, but I use a 240 mg capsule, NOT the colace kind that is multiple doses a day, this one is docusate calcium, not docusate sodium. It seems to make a big difference. I also drink about 3/4 gallon of liquid, and eat lots of fruit and vegetables, and little to no fat or meat. The only things I eat from a can are oatmeal, beets, beans and fruit. And diet pop, just once in a while. I find that when I have too much pop, my kidneys go into revolt and I get dark pee. I drink lots of coffee (it's an antioxidant you know) and I love decaf as much as regular. I like flaxseed for a source of essntial fatty acids--Omega 3 and 6.

Please, don't go around teling people not to take pills. YOU ARE NOT A DOCTOR. Medications are prescribed by physicians for reasons. You don't even know what all my pills are for? What if I told you that one of the pills I take, If I don't take it I will die? How would you feel then?

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MACLOVIAITA's Photo MACLOVIAITA SparkPoints: (18,057)
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9/3/13 10:19 P

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I feel bad that you have to take all the prescriptions.
I really don't know their names but at least I can tell you of one thing you don't have to use pills for constipation , you can take a natural food. .It is flax seed for constipation . it really works
take 1 tablespoon with breakfast , cereal or coffee or milk. I usually warm it up with my coffee or cereal , I know my pill medicine for constipation made me feel bad. . Eventually pills are not good for your body. emoticon emoticon emoticon

I started a month ago , but I didn't go nowhere.
Why? I am finding everything I do tiresome and very difficult. I am trying to continue and get somewhere with my fight for a better life. My health has been going down in the last 5 years. I am 73 and recently I am experiencing quite a bit of pain with this injury of a sciatic nerve. Of course that has nothing to do with my continued to eat things are not beneficial for me. I believe depression is the cause of wanting more sweets, is my weakne


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7/27/13 8:36 P

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Since I'm new, I thought I might post what I do for my chronic pain. Many of my meds are for chronic pain AND bipolar disorder, and help me on both conditions:

Synthroid for low thyroid
Docusate for constipation
Cymbalta for chronic pain and bipolar depression
Topamax for pain and bipolar
Abilify for bipolar
Ativan for anxiety and pain
Aspirin for ministrokes I had
eye drops for glaucoma
Thorazine for chronic pain and bipolar disorder
Fentanyl patch for pain

Most of these medications I have been on for over a year (Abilify is the only new one).I am feeling better with my most recent increase of dosage of Abilify, from 5mg a day to 10 mg a day, and I feel like my motivation is coming back, finally!!!!

I also have to use protein powder, use a special fat as a supplement, and take lots of vitamins as supervised by my doctor. Now that I feel better, I am more motivated to stick to my regimen. Thanks for all your support,
Ayla

-Carpe Diem


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PURPLE0906's Photo PURPLE0906 Posts: 2,940
1/8/13 6:19 P

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Tiabits,
Sorry you are in pain due to the dentist. Your pain could be TMJ. I have had since I can't remember. I have a constant ringing in my ears, my face will swell up and I am in pain. I do wear a mouthpiece but need to get a new one. You may want to look into it. I wear it basically at night (it is fitted for my upper teeth). I used to take a muscle relaxer which helped, but have not taken it for years. I just take 3 advils now.

Hope this helps

Cindy
:-)



CINDY

Each day's a gift and not a given right!
Think Positive!!
Take one day at a time!
Believe in yourself, you can do it!
No such thing as I can't!

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SLADA69's Photo SLADA69 Posts: 175
9/26/12 11:46 P

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My friends,here is something that I found and I am 100% sure that chronic pain make us much more problems,so please read!!!!!!!!!



Published Monday, May. 23, 2011 9:59PM EDT
Anyone who has ever suffered from chronic pain knows it can bring on depression and even problems with concentration and memory. In fact, researchers have found that long-term pain leads to physical changes in the brain.
New Canadian research has found that those brain changes can be reversed when the hurt is treated effectively.
In a study published this week in the Journal of Neuroscience, a group of pain researchers from McGill University and the McGill University Health Centre found that relieving pain actually causes physical brain changes they can see on a brain scan.
The research team looked at 18 people with chronic low-back pain who had been suffering for more than six months and who planned to undergo either long-acting pain reliever injections into the lower spine, or spinal surgery.
They then tested their brain responses to cognitive tests and examined their brains' structures. They also brought in a control group of 16 people without chronic pain and performed similar tests.
MRI scans were conducted on each subject that measured the cortical thickness of the brain and brain activity when the subjects were asked to perform a simple cognitive task.
The researchers found abnormal brain activity during an attention-demanding cognitive task. They also found one region of the brain, called the dorsolateral prefrontal cortex, was thinner in those with chronic pain compared to the healthy patients. This area of the brain plays a key role in mood, social judgment, short-term memory and higher-order thinking.
Anne Marie Hurteau was one of the patients studied. She had suffered from chronic pain for years after a fall left her with two displaced vertebrae. She says on a scale of one to 10, her pain was often a 12.
"The pain started in the mid part of my back, going down into my hip… and all the way to my big toe. It was like somebody had taken a torch and was burning me from the inside," she says.
She tried acupuncture, physiotherapy and other remedies before finally getting surgery. The surgery erased most of her pain, she says.
"Now, I have energy. I can do my day at work. I can be with my family. I can do sports. I can have a life. I didn't have a life for four years and now my life is back. So it does make a huge difference," she says.
Hurteau and the rest of the patients were all tested again six months after their surgery or pain reliever injections. (Only 14 of the subjects returned for the second round of tests.)
The researchers found there was increased cortical thickness in the areas of the brain related to both pain reduction and physical disability in most of the group.
The dorsolateral prefrontal cortex was no longer thinner in the group with pain compared to the control group, suggesting the brain tissue regenerated itself.
During the cognitive test, the differences that the researchers had observed in brain activation in the first round of tests disappeared.
Three of the 14 treated patients reported worse back pain or disability six months later. When researchers looked at their brain scans, their gray matter had not regenerated itself at all.
"Our results imply that treating chronic back pain can restore normal brain function," the authors conclude in their study, which appears in the Journal of Neuroscience.
Dr. Mary Lynch of the Canadian Pain Society said she finds the study results exciting because they add further evidence that pain can hurt the brain.
She says she knows the life-changing effects of appropriate pain treatment because she's seen it.
"People present to you with significant pain and if you treat it, that allows them a better quality of life, their level of function will improve not only physically, but cognitively."
"What this study adds to the literature is that if you treat that pain effectively then you can reverse the changes that you see in the brain, and you can also see improvements in the function," she added.


Read more: http://www.ctvnews.ca/treating-chronic-pai
n-can-reverse-brain-changes-1.646616#i
xzz27ddN7oa1




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SLADA69's Photo SLADA69 Posts: 175
9/26/12 10:54 P

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Hi my friends,I am back here and I miss you emoticon I been in lot of pain recently and I am using Percocet 325 mg two pills all the time,because one does not work for me and I aslo get back on Neproxin 500mg......even I know it did not help me last time.I went to see otrho last week and he told me he can not do ant surgery on my shoulder blade only if things get worse.I am so mad because it can not get worse than is now...... emoticon
I had right shoulder surgery last year and now in November right elbow.My right shoulder is now lower than left and my right hip start to hurt.I feel lot of pain in my right side of body.My neck hurt,my middle back,my lower back........ emoticon pain,pain and more pain.....
Never end.....I don't want to live sometime,this is not life emoticon I am taking antidepressants too and now I got some new antipsyhotic pills......this is just killing me more.
Learn how to live with pain,I never hear more stupidest words in my life......
I try nerve block 74 needle pokes,I try corticosteroids........nothing helps.....and I try local freezing and this is great but not lasting long maybe 4-5 hours.I just got last week from my doctor so I can be free of pain just for short time.I am not sure does anybody going trough this hell.Sometime I think I am only person in whole world who is in pain 24/7...365 days a year. emoticon emoticon emoticon emoticon
Is it any hope for us emoticon

Many hugs from Canada emoticon

Neproxin 500 mg twice a day--pain
Percocet 325mg two pills 3 times a day-pain
Wellbutrin 300 mg-antidepressant
Citalopram 40 mg-antidepressant
Clonazepam 0,5 mg twice a day-benzo
Xanax 0,5 mg-only when I have panic attack
Activan 1mg-only when I have panic attack

THANK YOU ALL SO MUCH FOR SHARING YOUR PILLS,I MAY TRY SOME OF THEM IF MY DOCTOR GIVE ME,IT MAY WORKS BETTER THAN MY PRESENT!!!!!!

Edited by: SLADA69 at: 9/26/2012 (23:17)



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MCDIDDLYD's Photo MCDIDDLYD Posts: 36,384
6/26/12 5:21 P

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My doctor just put me on Roxicodone 15mg, every 6 hours. When my pain is so bad I just can't tell that it is helping much.

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ME0909's Photo ME0909 Posts: 129
2/9/12 12:39 P

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Hi Everyone,

I recently have been prescribed Tramadol for my back pain/herniated disc condition/sciatica. It seems to be of help as well as it also is an SSRI which aids in overall pain perception as well as OCD (common to many of us who have experienced long-term obsessive thinking regarding our pain/condition). Also taking Viibryd, Trazadone, Buspar and Klonopin as needed. All, I feel are helping in aid to a more relaxed self (however, I am not necessarily accustomed to, but following my doctor's recommendations).

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REACHING4HOME's Photo REACHING4HOME Posts: 7,783
10/1/11 10:44 P

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I take Gabapentin for the neuropathy pain and it works.
I have Flexeril that I take PRN - when I can't stand the pain any more.
I have had a prescription for Vicodin that I will only take when I am absolutely in tears. It makes me so hyper that I am almost bouncing off the walls. While it does take away the pain, the side effects just aren't worth it. I get 30 and they usually expire with 1 or 2 taken out of the bottle. But when the AS flares up - about twice a year - I am down for the count for 10 days to 3 weeks and live on the stuff then.

"Friends are angels that hold us up when our wings have forgotten how to fly"

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TIABITS's Photo TIABITS Posts: 274
6/20/11 9:21 P

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I have started taking flexeril for muscle spasms in the face & jaw after some dental treatment went wrong & I have been living with pain since then ( 4 months now).

The problem is I find one of the side effects is that I wake up the day after taking it feeling really groggy & almost hung over feeling ...just really blah! Is that a common side effect? Do you get that too? Is there anything I can do to help with this side effect ...like taking it at a certain time or with something else to counter balance this. I dont function well when I feel this way & its even hard to get up when I feel so groggy.

Hope you have some suggestions & advise for me I am new to this team & looking for some answers as they doctors & dentists I have seen the past 4 months dont really know yet what my pain is from. Maybe TMJ ( Jaw joint pain) since I had many dental procedures done & then the pain started. I know its not the tooth that was done because I ended up extracting it & the pain is still there. They were so sure it was infection from the tooth but obviously not...unless it spread to the face & ear....since the worst pain I have is inner ear pain....a strange pain I never had before. I feel constant pressure or fullness in the ear & a soreness like I injured something deep inside & when I blow out my ear tube I get temporary relief but it starts to fill with the pressure within seconds.

I am seeing a physio therapist who is wonderful & tries everything to help me....but his treatment does not give me relief for long....I have a bruxing guard & am taking tramacet daily....every 4-6 hrs for the pain.....also noticing the other ear acting up...maybe I am chewing more on the opposite side to my original pain & its getting sore too. The flexerill is a new medication...doc wants to try it to see if its the TMJ ( jaw joint ) or muscle spasms....I am their little experiment & now seems to know for sure what it is....very frustrating living this way daily for the past 4 months!

Thanks for listening & for you help with the flexerill info. Liz

"Every Day Holds The Possibility Of A Miracle!"

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MCDIDDLYD's Photo MCDIDDLYD Posts: 36,384
6/7/11 4:57 P

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I am now on so much meds that it keeps me a sleep most of the day and a wake a few hours at night, but I need the pain meds just to get by. I am trying to get healthier, eat right and trying to get up and move around more but I can only take it one day at a time and just do the best I can. Never give up! Here are the pain meds I'm on.

Opana 30mg - 2 times a day, morphine used to relieve severe pain
Percocet 10/325 mg - every 8 hours, used to relieve severe pain
Gabapentin 800mg - 3 times a day, used to relieve nerve pain
Tizanidine 4mg - 4 times a day, used to treat muscle spasm
Trazodone 50mg - 3 at night, sleeping pills
Fluoxetine 20mg - 1 a day, panic disorder and depression


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ANJAYS-JOURNEY's Photo ANJAYS-JOURNEY Posts: 6,469
5/24/11 12:52 P

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Hi Derrickr333
Hope you are feeling a bit better, pain is not a nice thing, hopefully things will happen quickly for you, I went down the same road, with an insurance, stay strong and believe in yourself and trust God with all your heart. Although your days are extremely difficult focus on the little things to get you through the day, a hug from one of your kids, a kiss from your lovely wife or just a friendly hi from a stranger, these are all signs saying you are not alone. Take care and it will work out emoticon

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4/18/11 4:28 P

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It has been 2 years of strictly medication to stop the pain. I am nearly immune to most if not all pain medication by now. I am on norcos, and I do have to take 1 1/2 - 2 at a time just to function.
I am happy to say I got to see an AME (Agreed Medical Examiner) today and treatments will start happening. They are ordering the insurance company to do MRI's and I will start getting the help I have been needing for the last 2 years since the accident.
I has been a long fight, but for all those who have the same issue with insurance companies denying treatment, just know there is hope. Get the QME, or AME appointments a.s.a.p!! In 30 days I will have their report, and I will be going to court to sue for pain and suffering, including losing my home, being homeless for a week with my wife and 3 kids, and losing my ability to draw like I used to. The fight is almost over, unfortunately the pain is still there..for now.

ALASKALILLADY's Photo ALASKALILLADY Posts: 79
2/9/11 2:34 P

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Welcome to the team Angela! You will find a great group here and a lot of support.

If you are doing your best, you won't have any time to worry about failure. Author Unknown

"A positive attitude may not solve all your problems, but it will annoy enough people to make it worth the effort."
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ANGELA8108's Photo ANGELA8108 SparkPoints: (1,635)
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1/14/11 2:58 P

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I take vicodin, zanaflex, and motrin 800mg for pain, and trazadone 200mg for sleep because of pain. I also take remeron 30 mg for depression and i take loratadine, albuteral and asmanex for my asthma. I take asprin and metformin and ortho cyclin for poly cystic ovarian disease. The combo of the vicodin, zanaflex, motrin and trazadone help me to sleep some at night but not a lot, the vicodin helps only a little during the day and only if i take motrin 800 with it. ON the remeron i have very little depression and sometimes none at all

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RANDOMKINDNESS Posts: 376
12/16/10 2:21 P

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Beesuth - I was happy that you shared your great news about the intercostal nerve block working so well - I know what you mean about over doing it on a good day. It feels like you get your life back.

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12/14/10 3:01 P

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I think I might need to stop taking the gabapentin--it is working, but it makes me unbelievably sleepy--hard to do my job when I can't stay awake. Also, last week I had an intercostal nerve block (injection) done and it was tortuous the next day (really sore and I felt like my limbs wouldn't move properly on my left side), but then the following day, I felt SO GOOD. Naturally, I overdid it....but I think the shot may actually be working--they said it sometimes take 7-10 days for it to start really working. I'm cautiously optimistic. It would be so nice not to have to take so much medication!

~Bethany

Habit is habit and not to be flung out of the window by any man [or woman], but coaxed downstairs a step at a time.--Samuel Clemens

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"Burn it, to earn it!"

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RANDOMKINDNESS Posts: 376
12/3/10 12:37 P

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I've been taking Tramadol for fibro and CFS for several years now. So far it's been the only thing that has helped. It only eases the symptoms, but I have increased energy & less pain for a couple of hours, enough to get me up and out of bed in the mornings and another dose at night to ease the pain and I sleep better. I also have to avoid certain foods and certain chemicals like pesticides, fragrance & cleansers since those make my symptoms unbearable and I often am bedridden afterward.

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10/26/10 7:57 P

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I went to see a new doctor today--he prescribed neurontin and is keeping me on the percocet--he did not want to increase the dosage, but that is fine--I don't want to have to take more! I know that one can develop a tolerance to opiates/narcotics and you need more and more to stay feeling well.

The only thing I am worried about is the appetite stimulation effect that neurontin can have. Hope it doesn't effect me that way--I will just have to be careful.

~Bethany

Habit is habit and not to be flung out of the window by any man [or woman], but coaxed downstairs a step at a time.--Samuel Clemens

Blue Bulls Co-leader
Leader--Celiac Disease and Gluten-Free

"Burn it, to earn it!"

"As we express our gratitude, we must never forget that the highest appreciation is not to utter words, but to live by them." - John F. Kennedy


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SINGLEMOM1960's Photo SINGLEMOM1960 Posts: 991
10/7/10 6:36 P

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Wow I am so sorry. I know how much I depend on my pain meds. If he took you off oxy, can you ask to be on vicodin or something similar and less addictive, which is why he probably took you off the oxy.

Remember the doctor is there to help you, not put you through hell. Explain you need something for pain. It took going to a doctor that is actually going through the same symptoms I have, to prescribe the right meds for me. I hope you get relief soon. Someone else posted on another site about eating dark chocolate. 70% or higher to help with pain. They said it works. I'm a chocoholic so I'm all for it.

Edited by: SINGLEMOM1960 at: 10/7/2010 (18:38)
No matter what you're feeling on the inside, if your outward appearance looks good, people will give you positive comments. These positive comments will help you on the inside.


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9/24/10 10:30 P

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I am taking lyrica for fibro and I notice a little difference. I haven't been on it too long but I hope it works. He said taking the oxycodone for fibro will make it worse and took me off my only relief.

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SINGLEMOM1960's Photo SINGLEMOM1960 Posts: 991
9/14/10 10:29 P

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Is anyone taking Savella for Fibro? If so any thoughts, comments on it?

No matter what you're feeling on the inside, if your outward appearance looks good, people will give you positive comments. These positive comments will help you on the inside.


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BRAVEONE92's Photo BRAVEONE92 SparkPoints: (113,147)
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6/27/10 7:07 P

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I am not surprised that you have problems concentrating. Taking that many meds for your pain, will certainly interfere with your brain processes. I know, because I have been on them myself. After surgery, I don't take as many. I really feel for everyone who suffers with pain like you and like I did at one time. It is hard to get your mind off your pain to enjoy life at all.

When you mentioned that you get tired and that you get pain on your right side, I can identify with that for sure. I am now having trouble with not only with my back but my SI joint on the right side, sometimes on the left side. My pain is terrible and it seems that nothing will help the pain. I have had injections but they only help temporarily.

I hope that you get to feeling better soon, but I think we both know, that chronic pain is probably here to stay.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


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BISHOPJ57's Photo BISHOPJ57 Posts: 503
6/24/10 7:27 A

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I have been dealing with chronic pain for many years. I could deal easily with fibro pain but then the RSD (CRPS) started and the pain was unbearable. I am taking lyrica, baclofen, tramadol, folic acid, vitamin b12, diazepam at night and lortab for intractable pain. I went from wheelchair with little hope of walking to working again prn (as needed) in ER. I am probably 75%-85% better. I have problems concentrating when I get really tired and problems with pain in my back and right side when I get tired.

Jane


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SHAWWB's Photo SHAWWB Posts: 1,935
6/9/10 10:24 A

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That's too bad you have to go so far for another doctor. I thought mine was bad, I travel 55 miles to my doctor. I too did not like the first rheumatologist, but have been having trouble finding another. My insurance is through the Military and the doctors that take are scarce unless you are by an active base, which I am not. Chin up . . . you will get better and try the osteopath, I truly think mine helped a lot.

"Failure is not defeat until you give up" Author Unknown


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6/8/10 11:48 P

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I was seeing an osteopath for about two years and he helped me alot but he moved away from my area. I know there are others here, but I haven't thought about seeing one. Thanks for the reminder. I would love to see a good rheumatologist. We have just one in our area and I went to him once. I didn't like him at all, so I never went back. The nearest town, to see another is about 90-100 miles a way. I am planning on trying to make an appointment with one in that town soon.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


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6/7/10 1:37 P

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You are in the right place. I fortunately have gotten my pain under control. Maybe your doctor needs to look at some other alternatives. Are you seeing a Rheumatologist or just your general doctor? Don't let up, keep telling them and make them do something, I also started seeing an Osteopath for manipulative therapy and it has been wonderful. There is help out there, you just have to find it, which can be frustrating in itself. If I was you, I would find a new doctor! Just my suggestion Braveone92!

"Failure is not defeat until you give up" Author Unknown


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6/7/10 11:12 A

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I am new to this team. My main pain comes from my back, mostly lower, but sometimes includes across my shoulder blades. My bones & muscles are always very sore. I have not been diagnosed. I don't have fibromyalgia. I am able to do most things re: chores around the house. I cannot use muscle relaxers, they do no good at all. I am currently using Celebrex and Lortab 7.5 mg.~ two daily. I use an ice pack & alternate heating pad. I use linament on my sore muscles. It seems that I am having more trouble with my sacroillac joints on both sides now. On the right side, I have had injections 3 times. They help for a while. The pain is horrific from these areas at times.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


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5/26/10 10:12 P

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Can I just tell you guys that Meloxicam is a wonder drug. At least it is for me. I took my first one this morning and I don't know if it's all in my head or what, but I am painfree this afternoon. It is wonderful. I'll keep you posted!

"Failure is not defeat until you give up" Author Unknown


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5/25/10 8:57 P

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This chronic pain thing is relatively new to me. But over the last 6 months, it has been horrible. I have tried many medicines and too many at once to know which works.

Currently I am on:
Lexapro - anti-depressant
Nortriptyline 0 anti-depressant
Meloxicam - Anti Inflammatory
Fish Oil

Usually on Lipitor - but recently went off because doctor thinks it may be responsible for some of my pain.

Doctor is trying to determine if I have rheumatoid arthritis or fibromyalga. More bloodwork scheduled for Saturday.

"Failure is not defeat until you give up" Author Unknown


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LGLITTERBUGL's Photo LGLITTERBUGL Posts: 12
5/1/10 1:00 A

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Well I have tried many medications for the pain..The narcatic drugs they refuse to prescribe in my area. My pain is HORRIBLE!. I cant even open a can with a can opener anymore...I cant hold my grandbaby...it really stinks...I spend hours in bed trying to get comfortable. There are times I cry myself to sleep. Just wish the doctors would understand how bad it really is...People ask me how it feels and the best way I can describe to them is...When you get the flu and every muscle in your body aches bad times ten! However I would say within the last 5 or 6 months its gotten worse then that! Someday maybe there will be a miracle to wipe this stuff out

Edited by: LGLITTERBUGL at: 5/1/2010 (01:02)
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3/24/10 11:05 A

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Hopefully, i will remember them...I'm on a boatload!
Flexaril, ketoprofin, neurontin (new), tylenol 3 (PRN), celexa, trazadone, flonase, zyrtec, lisinopril, metformin, cabergoline, miralax, pravastatin, nexium, calcium with D, multivitamin, megadose of B vitamins, and Diltiazem.

The first 4 are for pain/fibromyalgia/arthritis issues. Just started the neurontin last evening.
Zyrtec and liquid allergy serum for allergies, cabergoline for pituitary tumor (works great!), pravastatin for cholesterol, nexium for GERD, diltiazem for tachycardia.

I went off my flexaril for @2 months last summer, I have been on it for years, wasn't sure if it was still beneficial...found out it was. Same with my ketoprofin...that was increased to 100mg 2x a day a few weeks ago and that helped quite a bit as well. Added neurontin for additional pain relief.

I was on elavil years ago, but gave me horrendous night terrors, and weight gain. I'm hoping that I'll be able to be more active with better pain relief so that any weight gain from the neurontin will be minimized...and hopefully, neutralized!

good luck everyone!

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10/5/09 12:48 A

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Savella didn't help me at all. I tried it for 4 months. Lyrica didn't help either but lyrica made my psycho, savella didn't. It made my nerve pain worse though.
I hope it works for you!

Island Girl from Utah

There are two ways to spread light; to be the candle, or the mirror that reflects it.
Edith Wharton




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6/9/09 3:30 P

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Okay team, I'm trying Savella. I figure if it can help, I might as well try it. I'm almost a week in & so far I have insomnia & no decrease in pain. Hopefully, it will get better if I give it a little longer.

Mystyne :)

"Today is your day, your mountain is waiting, so get on your way." ---Dr. Seuss

Every adversity carries with it the seed of an equal or greater benefit. -from a fortune cookie


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5/16/09 8:14 P

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Has anyone's doctor talked to them about trying Savella (generic name: milnacipran hydrochloride)? It is the newest medication approved by the FDA for the use of fibromyalgia. It been used in other countries sold under the name Ixel since 1998.

Does anyone know anything about this med? I've gone cross-eyed reading information on the Internet. My doc wants me to give it a try. Of coarse, my use would be off label.

Mystyne :)

"Today is your day, your mountain is waiting, so get on your way." ---Dr. Seuss

Every adversity carries with it the seed of an equal or greater benefit. -from a fortune cookie


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JBANDIT's Photo JBANDIT Posts: 40
3/11/09 4:23 P

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You are so right the poor old liver takes a bit of a bashing. It's not something I do myself except when I have a relapse and my pain increases, so I save the paracetamol for then. It was one of those thoughts that jump into your head but I should have written about the liver, many thanks for the reminder.


"Just breathe..."

Socrates
"To know thyself is the beginning of wisdom."


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3/11/09 5:35 A

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I had to give up on the Tylenol hybrids as my main source of pain control, because as tolerance to the narcotics increases, the amount of Tylenol in the hybrid drugs can be very unkind to the liver over the long haul. emoticon

Although I'm not a big fan of liver in general, I've grown kinda fond of my own. emoticon

"Sometimes you have to take the leap, and build your wings on the way down."


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JBANDIT's Photo JBANDIT Posts: 40
3/11/09 12:10 A

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Hey there,
You probably all know this but I'll put it up in case anyone benefits. I worked in ICU, orthopaedics, ED for a number of years and I faced a lot of challenges in helping patients deal with chronic and acute pain. The first med anyone went on was paracetamol (tylenol?),when it's taken regularly it lays down a steady level of low lying pain relief and more importantly it potentiates the other meds patients were on especially opiates.
Just occurred to me again so thought I'd share.
Take care
Sonja

"Just breathe..."

Socrates
"To know thyself is the beginning of wisdom."


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3/9/09 4:24 A

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I'm not on Opana specifically, but I've been on several extended release meds (Fentanyl patch, right now) and I'll take them any day over the short acting drugs. Since you maintain a certain level of the drug in your blood continuously, it eliminates the groggy/loopy/dopey cycle that goes along with having pain resurface and needing to re-medicate every 4-6 hours.



Edited by: MEMRYLAPS at: 3/9/2009 (04:26)
"Sometimes you have to take the leap, and build your wings on the way down."


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THEFIVEFIGS's Photo THEFIVEFIGS Posts: 2
3/7/09 10:16 P

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Hi, I am new to SPARK and am glad I found this site. I also live in GA. I live in North Atlanta...Peachtree Corners. I would love to be able to meet with someone that has similar helath issues as I do. No one I know has Fibro or Chronic Pain; I feel so isolated and alone. Hope to hear from you soon. Rita

THEFIVEFIGS's Photo THEFIVEFIGS Posts: 2
3/7/09 10:13 P

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HI..I was diagnosed with fibro a year ago. I have tried Lyrica and it did not work for me. I have been taking percocet daily for 2 years now. I noticed you take Opana. How does that work for you? Is it better than perc? I take 2- 7.5mg of perc every 4-6 hours. Since Opana is an extended release...do you feel groggy all day? I have 3 kids and I am also a caregiver to my 85 year old mom. Any help you can offer wouldbe so very appreciated. Thanks, and I pray you are doing well today!

Edited by: THEFIVEFIGS at: 3/7/2009 (22:25)
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1/21/09 10:10 P

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Gloomyone - thanks for sharing your story & concerns. You are so right about making sure your doc know everything you're on.

Edited by: SWIMGIRL at: 1/22/2009 (23:19)
Mystyne :)

"Today is your day, your mountain is waiting, so get on your way." ---Dr. Seuss

Every adversity carries with it the seed of an equal or greater benefit. -from a fortune cookie


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1/19/09 9:27 A

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always make sure your doctor knows everything that you are taking, even over the counter medication/supplements/ect. If you have more than one doctor and they each prescribe medication let each one know what your taking. I was on 21 prescriptions by 3 different doctors and I almost died. I was in the hospital for 10 days on a suicide watch. I am now medication free.... not pain free, I just found other ways to work through it. Be safe all of you .... you only have 1 life :)

Life isn't about finding yourself, it's about creating yourself.
JBANDIT's Photo JBANDIT Posts: 40
12/23/08 8:52 P

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Neurontin - nerve pain
Amitryptilline - nerve pain
Fluoxetine - antidepressant
Naproxen - non steroidal
Mag/phos, calcium - muscle spasm
MSM - pain
Heat wraps, vibration massage, physio, osteo, excercise


"Just breathe..."

Socrates
"To know thyself is the beginning of wisdom."


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12/21/08 6:34 A

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Too many to list! emoticon


A ship in the harbor is safe. But that’s not what ships are built for. ~Anonymous

Your body is precious. It is our vehicle for awakening. Treat it with care. ~Buddha
JUDIA62 Posts: 3,337
12/20/08 10:12 P

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Hi Everyone,
Sheila at least it won't irritate your stomach lining that way. I wish you luck. Please keep us posted. Hugs, Judy

"When an old person dies a library burns down."



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MCDIDDLYD's Photo MCDIDDLYD Posts: 36,384
12/20/08 6:24 P

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D-sorbitol it's for arthritis and inflammatory this med made me so very sick and I started bleeding inside after 2 days of taking it. They had me to stop taking it 6 days later and it took me two weeks to get over it.

Now they have me on Flector Patch it has the same med in it but with the patch it want cause the same thing. I start tomorrow using it so we will see how it goes.

Sheila

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MCDIDDLYD's Photo MCDIDDLYD Posts: 36,384
10/30/08 6:35 A

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Last month my doctor tried letting me come off my depression med. I went from 40mg to 20mg for two weeks they starting cutting them in half. Well when I did that I started having chest pains off and on all day everyday. So when I went back to see my doctor he said right now must not be the time for me to come off of them. So he put it back up to 20mg but the way I feel I really think they need to go back up to 40mg. I think I am going to have to call him or go see him soon. This is bad I wanted to come off of them, oh well maybe some day.

Sheila- Leader

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10/10/08 3:50 P

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Cyclobenzaprine 10 Mg - Muscle Relaxer used for my Chronic Bursitis and Hip Flexor/Band tension. It does make you drowsy! I only take it once a day to help keep my muscles from tightening and flaring my bursitis at night so I can sleep.

I only take this for a 2-3 weeks at a time bc the tnesion and immflation goes away after 14-20 days...lasting a month to 6 weeks at a time.

I take a half dose at night (5mg).

Better than meds...Stretches specifically for the hips and the smaller/deeper muscles of the glutes and lower back. Also modified lunges and squats to strengthen the muscles which helps to keep the muscles from flaring over time.

Edited by: MRSPRINCESS07 at: 10/10/2008 (15:49)
"

DRGNWRITER Posts: 2
9/19/08 5:56 P

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I've taken so many different drugs over the last few years right now though I'm on Opana ER (oxymorphone)
Lyrica and Percocet. I am still in pain all the time but the drugs make it bearable.

I play online games at times for a distraction from the pain.

Somedays I just exist.

Steve



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9/14/08 12:27 A

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I am on the fentanyl patch, lyrica, hydrocodone for breakthrough pain. Still have pain but at least with meds can have some life. Also on meds for blood pressure and reflux. Take valium for muscle spasms but try not to use it too often

Karen

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9/8/08 9:06 P

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I'm on Celebrex, Lyrica & Zanaflex for the pain. It's not complete pain relief, but it is much better. I'm also on Lunesta so I can sleep. What a beautiful drug.

emoticon Mystyne

Mystyne :)

"Today is your day, your mountain is waiting, so get on your way." ---Dr. Seuss

Every adversity carries with it the seed of an equal or greater benefit. -from a fortune cookie


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URESTI2007's Photo URESTI2007 Posts: 328
9/4/08 12:12 P

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I take percocet, celebrex, ultracet, zanaflex, and lyrica for the pain and it is still there constantly but Thank the lord it at least brings the pain down a little. emoticon I am also on Lunesta I love it! But I think my body is adapting o yeah and I also have a "tens" unit for the pain

Edited by: URESTI2007 at: 9/19/2008 (18:12)
"If your lifestyle does not control your body, eventually your body will control your lifestyle.the choice is yours!"


Ideas without action are worthless.
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MOGETTINGFIT's Photo MOGETTINGFIT Posts: 537
9/4/08 11:16 A

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I AM ON PERCOCET 10 MG FOR PAIN AND NEURONTIN 600MG IT IS SUPPOSE WORK TO COVER THE NERVE ENDINGS.SOMETIMES WORKS BUT IT SEEMS LIKE THE PAIN IS THERE ALL THE TIME. I am also on zeneflex and fleril.but can only take them at night becouse they make me sleepy. I have problems sleeping at night becouse of the pain

Edited by: MOGETTINGFIT at: 9/4/2008 (13:10)
This is the day the Lord has made, We will be glad and rejoice in it
Psalm 118:24

Sandy
COLEADER: DEALING WITH CHRONIC PAIN


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8/26/08 8:51 P

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I take methadone and oxycodone for pain. Sometimes the methadone alone doesnt work so I have to add the oxy and when I do the pain does go away for a little while.

Gloria

Dear God,

I surrender my body&my weight loss to your divine care and love. I ask that you remove all excess &unnecessary weight from my body. Return my body to its most healthy&balanced state. Give me eating habits that support my health and life energy.And,finally,teach me to love my body&to care for it from this day forth. Amen
LIFE stands for Look Incredible, Feel Extraordinary!...Joy Bauer


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PRAIRIEGRANDMA's Photo PRAIRIEGRANDMA Posts: 152
8/11/08 10:13 A

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I take Trazadone at night for sleep. I have RLS and it really helps.
Also take Naproxin 500 am & pm for pain and it does help unless I overdo it. Then Nexium to keep Naproxin from hurting my stomach.
Also take Zetia to lower cholesterol. Works wonders.
When needed I take allegy pills and I take a boatload of vitamins.

When doctors first began treating my pain, they gave me Celebrex. It works really well BUT then I had to take blood pressure medicine. When I discovered what was causing the high blood pressure I got off the Celebrex and the blood pressure medicine. I do have a bit more pain and I have to take 2 pills a day instead of 1 but I feel better!
At one time the doctor had me on Lipitor. That stuff is AWFUL! It made me hurt all over and my muscles turned to jelly.

Edited by: PRAIRIEGRANDMA at: 8/11/2008 (10:11)
You can't win if you don't try.


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LADY_RAVENROSE's Photo LADY_RAVENROSE Posts: 145
8/6/08 5:09 P

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I take Elavil to help me sleep, works about 50/50, and tramidol for pain. That see,s to be working less and less

Kathi
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Unless someone like you cares a whole awful lot,
nothing is going to get better. It's not."
(The Lorax by Dr. Suess)


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7/15/08 9:41 A

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I take Nardil (MAOI) for depression, Xanax for anxiety but only as needed, Trazodone for sleep, morphine for pain (I've been through the others that aren't as strong), and Soma (only at night) for muscle spasms. When I was finally put on 120mg a day of morphine, it finally started to help the pain. However, if I do anything that requires bending over for any length of time (like giving my granddaughter a bath, sweeping the floor, even doing dishes), the pain will come and no amount of medication will work. At this point, this is the best I've felt since 2001.

Kathy

Start by doing what is necessary, then what is possible, and suddenly you are doing the impossible.
---St. Francis of Assisi


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SASSISPRING's Photo SASSISPRING Posts: 11,030
7/13/08 11:41 P

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I took Eflexor for a year - 32mg (the lowest dose avaiable). It helped me through a rough patch and during that time I also went through counselling. I made the choice to get off the med, had the option to remain on it for life (as I have ADHD and it helps out with that too). What I liked about it was that I didn't feel drugged, I simply was better able to focus, especially when anxiety hit.

Pentasa, 500mg, 3x per day - ulcerative colitis

Arm Thyroid - 2 pills alternate next day with 3
Thyroid Disease

Calcium with Magnesium, 3 tabs every night

Multi-vitamin, no iron - once per day

Anti-histimine daily - allergies

Omega Oil 3-6-9 (supplement)

Advil, gel caps, extra strength - 2 caps every night
(pain and inflammation)



Edited by: SASSISPRING at: 7/13/2008 (23:40)

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7/13/08 8:50 P

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I am currently taking Wellbutrin XR for clinical depression, Flexeril and Ultram for pain and spasms, along with Tylenol Arthritis Strength and ibuprofin for inflammation, Trazadone for sleep, Advair for asthma, Flonase for allergies, Ativan prn for anxiety/panic attacks(don't usually need it), loratadine for allergies, HCTZ for hypertension (don't always take it b/c it makes me live in the bathroom!)
Pain meds don't always work, but I am not willing to take anything stronger as yet, so i try to deal with just keeping it down to a "dull roar".

"I am only one, but still, I am one. I cannot do everything, but I can do something. And, because I cannot do everything, I will not refuse to do what I can."-Edward Everett Hale
Karimah
GRANY012 Posts: 53
7/13/08 5:17 P

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i used to ake effexor and it works. now i take celexa. its genereic and cheaper than my other meds. i only get panicky when im in a car. i was in a car accident 7 years ago and never got over it.

MCDIDDLYD's Photo MCDIDDLYD Posts: 36,384
7/13/08 5:14 P

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Effexor XR 75mg, This is for depression and panic attacks.

I've been on it for a while now and I've had two panic attacks and it wasn't to bad and it didn't last long at all. So I hope this will be the one for me because none of the others had worked. I get to where I can't breath and I feel like I'm having a heart attack. My doctor said to breath into a paper bag when it first starts but if you wait to long it want help then you will just have to wait it out.

Sheila

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GRANY012 Posts: 53
7/13/08 2:44 P

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Im taking propo-n/apap-100-65 tab mall darvocete? it works for an hour and i cry the other 3. its supposed to be for pain. vicodin doesnt work. besides i break out in hives from it. emoticon

MCDIDDLYD's Photo MCDIDDLYD Posts: 36,384
7/13/08 2:22 P

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emoticon Post any medicines and what they are for. Also post if they help you in any way. Just in case someone has the same problem as you and they are looking for help so they can talk to their doctor.

Thank you,
Sheila- Leader

My Teams: ✞Keep GOD First✞
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Re: Lyrica 12/10/2013 6:20:00 PM
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Looking for Positive Vibes! 10/21/2014 4:56:19 PM
Introduction 9/11/2014 11:46:20 AM
New to the team and need a friend 10/4/2014 10:30:27 AM

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