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LADYAMETHEST's Photo LADYAMETHEST Posts: 2
8/27/14 10:10 A

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Hello, I am 36 married. I have Chronic pain to the fullest. I have Char-Marie-Tooth syndrome. Plus my hip needs to be replaced. The doc won't do it cause of my disability. Plus I will need a complete hip. He told me it won't be worth it. He wants me to wait 5-10 years. Not to mention he cut me off on pain meds. I can hardly walk, but I do.

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SHANNAKAY1101's Photo SHANNAKAY1101 SparkPoints: (8,660)
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8/13/14 2:33 P

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Hello there, new to the team. Been suffering from chronic migraines since 1996, and have been suffering horribly in the last year or so. I have recently become much more proactive in my treatment and in my approach to life in general, and that comes with seeking and giving support with others who understand, and who are doing the same :)

Shanna Kay


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TRACY9301's Photo TRACY9301 SparkPoints: (1,455)
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8/6/14 12:09 P

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New to team. Suffering from chronic pain since 2009. Looking forward to finding people who understand my pain, and who will support and help find exercises and food to help.

Remember to LOVE you first


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OCEANLUVER's Photo OCEANLUVER Posts: 196
7/11/14 11:33 P

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emoticon
New to the team.
Suffer from chronic-pain 12 yrs now.
Glad to find a place that understands just because you can't see my pain does'nt mean it's not
I am very blessed!
Take care .
Hope you all have a pain-free weekend! emoticon


Edited by: OCEANLUVER at: 7/11/2014 (23:39)
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HEATHERSTHPW68's Photo HEATHERSTHPW68 SparkPoints: (39,164)
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6/23/14 9:49 P

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Hilary,

I 'm so glad you have joined the group. Your pain situation sounds a lot like mine. I suffer from what my doctor describes as "post surgical chronic pain" on the right side of my head. It is a result of several brain surgeries to control my seizures. For the longest time there were several family members who didn't agree with my decisions or didn't believe how much I was suffering. It has been fifteen years since this all started and my neurologist recently perscibed a special compound made of many different meds i've tried over the years but my insurance has denied for one reason or another. and the disability thing.....I wish you the best of luck! emoticon

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KMOMMO's Photo KMOMMO Posts: 339
6/23/14 3:10 A

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Hello! I am new to this team. Chronic pain is my biggest issue now. I have fibromyalgia, arthritis . Bursitis in both hips, moderate arthritis & bone spurs in both knees & feet and spinal stenosis. If I stand or walk too long, my legs and feet become tingling and painful. Going to a grocery store is torture for me. I know I could do the wheel chairs but I am not ready to do that yet. (Pride can be painful. ) but, I can ride a bike. I have been going to the gym and riding a stationary or recumbent bike. I can do the weight machines because I sit while doing them. Getting this extra weight off is very important to me! It will make a huge difference in what I can do and my mobility now and later on. However, when the pain gets bad, I often crave the good ol comfort foods! Sugary, carby, high calorie stuff! Temporary fix for the mood but a big detriment to the body! Willpower can be hard to come by when you feel miserable! I look forward to meeting & learning from you!

You're not obligated to win. You're obligated to keep trying to do the best you can every day. Marian Wright Edelman
Tears will get you sympathy. Sweat will get you results. -Anonymous
Sweat is fat crying. - Anonymous


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INSILVERSCRIPT's Photo INSILVERSCRIPT SparkPoints: (5,360)
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4/27/14 11:33 P

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Hey, everyone!

I'm Hilary, I'm 23. I have what my doctor says is nerve damage in my right foot. I had a bunion surgery back in 2011 where the doctor implanted a steel plate and four screws, and ever since then I get awful pain whenever I so much as move my foot or stand up. I've gained about 50 pounds since the surgery (including 30 or so I'd lost in college) and most of my family stopped talking to me because they don't believe I'm really in pain. I've also been fighting to get disability for two years because I can't work due to the pain.

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JPL2014's Photo JPL2014 Posts: 625
4/14/14 9:57 A

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Hello!

I am Jill, 45 yrs old. I have had 4 spine surgeries and my neck is fused at every level except 2 and have degenerative disc disease. I have been dealing with chronic for many years. I have a spinal cord injury and nerve damage. Now dealing with another herniated disc l5-s1, so now have pain in my ankles/feet in addition to my pain from neck. I feel everyday is a fight to not allow my pain consume life as it has since 2010.

Hoping to get to know everyone and hopefully give support as well. Our loved ones try to understand, but they truly cannot grasp what it is like to deal with so much pain each day.




I am all in...one day at a time. I CAN DO IT!

Jill L.


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LOVEFROMKELSEY SparkPoints: (2,042)
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4/13/14 4:32 A

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Hi everyone! I am Kelsey. I'm 18. I have been suffering from chronic pain for just over 4 years. About 3 years ago I had to be pulled out of school. I've had two surgeries and seen about 20 doctors. We are still not sure what is causing it and the pain is getting worse but I am hopeful that we will find an end soon! I am a singer which is what I love most in the world. I am fortunate to have amazing parents that understand my situation and support me however they can. Because of my age, the chronic pain has been very isolating. I have been needing to find some people that understand that it is just more than a muscle cramp occasionally or a stubbed toe or something. Sorry if this was a bit of a ramble, I haven't slept in a few days so my brain is a little all over the place.

Hoping to be able to find support here and support everyone else :)

HEATHERSTHPW68's Photo HEATHERSTHPW68 SparkPoints: (39,164)
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4/6/14 10:36 P

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Hello everyone!

I'm Heather and I live in Topeka, KS. I have been suffering from post surgical chronic pain since 1998 as a result of several brain surgeries on the right side of my head. I had relief from seizure fr about four years before they returned, but the pain is constant. The only time I don't feel it is when I'm sleeping. It was five years before my neurologist found a medication that would give me any relief but he is rather cautious in what he would prescribe because most pain meds can trigger seizures and I would rather deal with the pain than have a seizure any day. It's been seven years since my last break through and I don't want to break that record! Thanks for listening emoticon

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AZ_CAT_PERSON's Photo AZ_CAT_PERSON Posts: 415
2/18/14 9:54 A

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Hi all welcome to the team. This is a good place for support.

Sindia (Phoenix, AZ)
________________

At the end of the day, if you're able to say that you lived well, loved much and laughed often then you, my friend, are the wealthiest person on Earth.
*******************
You can't lose what you never had, you can't keep what's not yours, and you can't hold onto something that doesn't want to stay.


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KAJIRA_CALLA's Photo KAJIRA_CALLA Posts: 692
2/15/14 9:37 A

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Hello All

I'm Shannon and I live in Rosebush, MI with my husband. Am 45 yrs old and was diagnosed with Fibromyalgia about 3 years ago on a good day my pain is at a 5. Sleeping is almost impossible but the depression from the stress knocks me out till the pain wakes me back up. Nasty cycle.

Shannon Buddy

Love yourself first because if you don't who will?

Happiness often sneaks in a door you did not know was open.
Author Unknown.

Never apologize for showing feeling. When you do so, you apologize for the truth.
Benjamin Disaraeli


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DEMONSANGEL4U's Photo DEMONSANGEL4U SparkPoints: (1,093)
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1/17/14 10:07 P

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Hello all..

I am Tawnya and I live in Lexington, KY with my husband. I am 39 years old and I am suffering from chronic pain which makes moving very difficult for me. I am trying to get healthier for myself and my husband. My pain most days is between 7-10 and it makes sleeping very difficult. I am hoping to meet people like me and meet my goals.

Life is only as good as you make it.

No one is responsible for your happiness but you.


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HAKOLBZMAN SparkPoints: (1,016)
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1/6/14 2:42 P

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Hi. I am a 45 year old mom who was diagnosed with RSD (aka complex regional pain) in 2009 of my left leg. I consider myself very lucky to have been diagnosed within 6 months of the onset, but it's a battle every day. I gained 40lbs in less than 2 months from lumbar injections that were mixed with steroids and I have been maintaining this weight ever since. Needless to say I stopped the injections! This weight has got to go, but the pain is sometimes so overwhelming I just can't move. I work full time as a paralegal in Manhattan, but I live on Long Island. By the time I get home I am so totally exhausted physical exercise is just not something I want to think about. I am about to join a new type of gym called KoKo Fit and I am hopeful I will be able to handle it. It is all low impact and designed for many different levels. I joined this discussion for tips on how to push through the pain to get this weight off and feel better!!!

JANI-LOU Posts: 1,513
12/29/13 11:23 P

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Hi, I just searched for and joined the team at the recommendation of my SparkCoach. My name is Jan. I have been using Spark People for five years and was doing very well with my weight control until I was involved in a severe car accident almost three months ago that has changed my life. The vehicle I was driving was struck from the side by a truck that ran a stop sign. My vehicle flipped/rolled four times with my head hitting the pavement on each flip. I didn't fracture my skull but I have severe, constant pain at the base of my skull, in my neck, shoulders. I was also left with a scar on my shoulder, and permanent "chocolate-colored" eyes from the severe bruising that occurred after the accident. I've gained thirty pounds since the accident, and I'm feeling pretty low and despondent right now. I'm on medications for pain, and muscle relaxants. I don't seem to be able to stop "comfort eating." I am ready to take two steps forward today. I want to regain control of my life, even if I can't control the pain. Jani


'The only time you should look down on someone, is when you are reaching to help them up.'

Do you like to read short stories? Inspirational stories? Visit my website:
www.rainbowgatefarm.com
where you will find links to my blogs, Days In The Life Of A Dairy Goat Farmer, and For The Love Of A Lion.


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SANVEAN83's Photo SANVEAN83 Posts: 126
10/23/13 10:01 A

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Hello, I'm Carey. I have fibromyalgia, with symptoms starting when I was 19. (I'm now 30)
I also have an autoimmune disease that also cause aches & pains.

For a long time I've tried to deny the existence of these things. I thought "I'm a young person, I shouldn't have chronic pain, this isn't fair!" But then I realized that life doesn't always turn out the way we want. I'm still trying to find out why life led me to this. There has to be a reason.

I'm trying to exercise more, even taking an arthritic aqua aerobics class with a handful of 80-90 year old women (love them!) and just working on gaining as much mobility as I can & discover how to live the best life I can despite how I feel on any given day.

Gentle hugs to you all.

~Carey

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LASARRE's Photo LASARRE SparkPoints: (105,608)
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10/21/13 10:59 A

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Hi all, I'm Nina. I have degenerative disc disease in my neck and I have had surgeries in both shoulders due to an incident when I was a teacher. Because of both of these, I can not lift my arms over my head and even just reaching forward hurts. I have had 3 cervical epidural injectìons. They helped some, but I still have the pain and the limited mobility.

It is frustrating because I can't do any form of weight lifting or even raising my left arm during a workout. This makes it much harder to get my heart rate up. I basically do the treadmill and Walk it Out or a walking dvd. I also try to get to the barn to ride my horse 2x per week.

I hate feeling limited in what I can do. It is good to find a team where other people are going through what I am.

Nina- Wisconsin CST
Together Everyone Achieves More

Co-Leader- Walk it Out
Co-Leader- Wii Exercise
SEATTLE58's Photo SEATTLE58 Posts: 4,734
10/21/13 12:09 A

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Hi, I'm Karen and I just joined this team because of having chronic pain with having Rheumatoid Arthritis. I'm on the best regimen of RA drugs that I can have I believe. I was diagnosed in 11/08. I'm on one of the strongest drugs for RA called Humira. It's a biologic to help slow down the disease and possibly even stop it for a period of time. I know that once this med. kicks in (it takes anywhere from 2-6 months or more to kick in) I will feel alot less pain and will be able to move around better but I also know that I will always deal with some pain and know too that some days will be worse than others. It does feel good to find a team where others are dealing with pain too and the problems that are caused because of not being to exercise like others can that don't have alot of pain.

I'm starting my ticker over with going low carb.

"Little by little whittling my middle!"

Karen




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DETRMND2LOSE's Photo DETRMND2LOSE SparkPoints: (18,737)
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10/6/13 12:26 P

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Welcome to the group Lynn! I'm sorry to hear of all the back pain you are experiencing. I don't have any good suggestions for exercises but just wanted to say Hi! Sparkpeople is a wonderful site full of info and support. I hope you will be able to find what you are looking for here.

emoticon


Carrie

~ Leader - Intracranial Hypertension Support ~

"I wish you could see I'm saying 'yes' to me; not 'no' to you." Anonymous

"You're braver than you believe, and stronger than you seem, and smarter than you think."

-Christopher Robin to Pooh


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LYNNANDDALE SparkPoints: (513)
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10/4/13 9:05 P

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Hi! My name is Lynn and I live in a small town in eastern Northern Colorado. I just joined SparkPeople earlier today, and I'm looking around the website to get to know it better. I have not yet started, but I'm excited to learn more! I have been disabled since 2008 when I had a bad car accident (a drunk driver slammed into the back end of my car and pushed me into the car in front of me emoticon ). I already had spinal stenosis and other problems resulting in two lumbar fusions back in 2003 and 2004. The accident caused severe whiplash, and I had two cervical fusions in 2011 and 2012. I have chronic pain in my back that doesn't go away, and I am very limited in my physical activities. I have been through several physical therapy programs, none of which have helped much. I would love to be able to do water exercise, but I would need to travel about 25 miles one way to a therapy pool, and I am unable to drive. Oh, boy! Do I ever sound as if I'm on the pity pot! Well, in a way I am, because I'm so frustrated with over 5 years of chronic pain and limitations! If anyone out there has any helpful advice on simple exercises that I might be able to do, please reply!

SANDYPUDOFF's Photo SANDYPUDOFF Posts: 139
8/14/13 10:20 P

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WELCOME TRGIRL 78- Nice to have you on the team. There is not a perfect one in the whole bunch so you might as well get comfortable, we all have are issues!! If you need a shoulder or just an ear, I'm here for you. Send me a private message on my sparkmail or just thru the team page-I feel your pain, girl!


"Sandy, you can do anything you set your mind to."


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TRGIRL78's Photo TRGIRL78 Posts: 524
8/14/13 12:24 A

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hi everyone I'm amy I'm 35 but sometimes i feel alot older. I have neurophaty,gout, major back pain,knee pain and it all limits me to what i can do.

~*Amy*~

Your goals, minus your doubts, equal your reality.
- Ralph Marston

) The biggest weight loss secret? Manage your emotions or they will keep mismanaging you.
– Brian Vaszily

Take care of your body. It's the only place you have to live.
– Jim Rohn

Passionate Peeps
ORANGE CRUSHERS


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SANDYPUDOFF's Photo SANDYPUDOFF Posts: 139
8/6/13 9:10 P

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Have you tried water exercises? All of your joints and organs are floating and it takes an enormous pressure off your back. I've had a "bad back" for 30 years and the water aerobics class I take at the YMCA is the best workout and most pain free exercise I've ever done. Walking is great but it buts more pressure on those vertabrae and pounds on those discs. You should be able to get a prescription for aqua therapy if you can't join a YMCA. Welcome to the team, my name is Sandy Pudoff and I've only been around about a month.


"Sandy, you can do anything you set your mind to."


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SANDYPUDOFF's Photo SANDYPUDOFF Posts: 139
8/5/13 10:18 P

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Hi Michelle-Welcome! My name is Sandy Pudoff and I am a new member to Spark also. I am not new to RSD though, I have had it for 19 years in all 4 limbs. I know a lot about RSD having tried everything I could find, went thru Stanford and Mayo pain programs, had all the ganglion blocks, sympathectomy (RFL). I spent several years in a wheelchair because I had lost all the muscle in my arms and legs. The only treatment I haven't tried is a spinal column stimulator and that is only due to my severe nickel allergy. Medtronic made special leads for me that didn't contain nickel however the insurance company wouldn't approve their use because they weren't covered by the standard warranty. Turned out for the best for me. I used strong meds and exercises to get my body back. It took several years of daily pain, but I was in pain anyway and at least this way I was accomplishing something. You would never know today that I have RSD/CRPS in 4 limbs. In fact, I just completed the nationwide 2 mile walkathon to raise funds for research for RSDSA.org. I used to judge how my day was going by how close I could walk to my mailbox at the end of my driveway.
You will find several others with RSD/CRPS on this team who all have different ways of coping with their pain, disability, depression, and weight loss. Welcome aboard!


"Sandy, you can do anything you set your mind to."


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SARAHTAIT's Photo SARAHTAIT Posts: 25,982
7/28/13 3:11 P

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I'm Sarah and have lived with chronic pain for 19 years. I have fibromyalgia, degenerative disc disease, RA and graves disease.
It is great to find others who know how it is to deal with pain on a daily basis.

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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Yorkie Lovers

Fibro Sisters


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VERA3625's Photo VERA3625 Posts: 797
7/25/13 10:23 P

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MY NAME IS VERA, I SUFFER FROM CHRONIC BACK PAIN, HAD SURGERY OF THE SPINE AND HAVE A LOT OF NERVE DAMAGE! HOPE THIS TEAM WILL HELP ME WITH TIPS OF EXERCISE AND MOTIVATION!

Vera


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MACLOVIAITA's Photo MACLOVIAITA SparkPoints: (17,858)
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7/17/13 10:15 P

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My name is Maclovia and I am seemingly in constant pain
I am glad I found this Team. I am doing the best I can . I have a lot of faith that sooner or later I am going to get better. Or at least that is my desire more than anything else. emoticon emoticon emoticon

I started a month ago , but I didn't go nowhere.
Why? I am finding everything I do tiresome and very difficult. I am trying to continue and get somewhere with my fight for a better life. My health has been going down in the last 5 years. I am 73 and recently I am experiencing quite a bit of pain with this injury of a sciatic nerve. Of course that has nothing to do with my continued to eat things are not beneficial for me. I believe depression is the cause of wanting more sweets, is my weakne


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THEWWWAY's Photo THEWWWAY SparkPoints: (6,901)
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7/16/13 3:42 P

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My name is Brigette. I joined this team because I have chronic leg pain and it gets really depressing. I am hoping that eating right and exercising more will help with both my pain and depression.

Brigette


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ICANLOSEMORE's Photo ICANLOSEMORE SparkPoints: (23,221)
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6/3/13 11:47 P

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Hi, I'm Janet. I'm using spark coach right now and this group was recommended to me. I have multiple issues that mostly stem from poor body construction. club feet, lymphedema on the left side, scoliosis with added problems of a bad car accident, arthritis pretty much everywhere else, hiatal hernia and the newest edition is a splenic artery aneurysm, which is the only one that doesn't cause me pain at this point, so I'm ok with that. I tend to self medicate with chocolate, which is not good for multiple reasons, bothers my hernia as well as putting on the pounds. I need to find better ways of dealing with pain. Any and all suggestions welcome. I do have, lymphedema stockings, a traction machine for my neck, orthopedic inserts for my shoes, a splint for my teeth to relieve night clenching and multiple therapy exercises. I have lost about 55 pounds since I was at my worst, which has helped but I am also getting older and age isn't kind is it. I need to lose another 50 but can't seem to keep the number moving down.

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4CONNIESHEALTH's Photo 4CONNIESHEALTH Posts: 3,357
5/24/13 4:20 P

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Hello, I'm Connie and I am 40 feeling 30 on some days and 80 on others. I suffer from chronic pain from fibro. and spine issues. I have had spinal surgery of which has left me with less nerve pain but also less feeling in places on my left side. I enjoy working out on most days of the week even though it causes pain because it gives me a sense of accomplishment that I won't let this issue get the best of me.... (well most of the time).

I am looking for a group of people that will understand more of what I am going through and may have suggestions and support as I will be able to give as well.

Edited by: 4CONNIESHEALTH at: 7/17/2013 (23:03)
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CRYINGEAGLE's Photo CRYINGEAGLE SparkPoints: (2,013)
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5/23/13 11:29 P

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Hi,
My name is Clara. I'm 33, and I've suffered from migraines since I was about 14. In 2009 my journey with chronic Lyme disease and fibromylagia began. Since then, I've been diagnosed with several other disorders that contributes to my pain, which contributes to my weight, which contributes to my pain! It's been a long and difficult journey. I am so blessed and o grateful that I found Spark People and this team!

Body under construction...
I can do all things through Christ who strenghten me. ~Philippians 4:13~


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MEMRYSBYMICHEL's Photo MEMRYSBYMICHEL Posts: 598
4/29/13 11:58 P

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Hello....my name is Michelle. I'm attempting to reignite my activity on sp and looking for ideas to increase my weight loss. I joined weight watchers in January and lost 15 pounds initially, but due to hip/leg/foot pain, exercise has been out of the question. Not only is my foot painful, it is so swollen, I can only wear flip flops. My year started with a severe case of sciatica, then peroneal neuropathy and RSD with foot drop, in that order. I just had a neurostimulator trial and will have the implant on Wed. While the pain relief was great, I'm concerned about how much mobility I will regain. I really really want to exercise, but putting shoes on is unbearable, and I don't yet know if the foot drop will resolve.


.•´¸.•*´¨) ¸.•*¨)
(¸.•´ (¸.•´ *Michelle ¸.•´¸.•*´¨) ¸.•*¨)
(¸.•´ (¸.•´ ¸.•´


Proud MOM of Nina (21), Christopher (16), and Identical twin boys-Kraig (7) & Kyle-my angel born sleeping
.•´¸.•*´¨) ¸.•*¨)
(¸.•´ (¸.•´ One day may I laugh as deeply as I cry.•´¸.•*´¨) ¸.•*¨) (¸.•´ (¸.•´ www.marchforbabies.org/team/madetoge
ther


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MEDARLING's Photo MEDARLING SparkPoints: (45,278)
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4/13/13 12:50 P

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good morning,

I am very happy to have found this spark team. I have been dealing with chronic pain since I have been old enough to remember. I am 40 years old and struggle with several health issues that contribute to my chronic pain.

head aches from a closed head injury, back pain, nueropathy, fibromyalgia, and rsd.

great to have the chance to learn some new things and possibly share some wisdom too!
emoticon

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LOBOSMOMMA's Photo LOBOSMOMMA Posts: 141
4/11/13 10:40 A

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Good morning all. My chronic pain is mainly headaches. I suffer from migraines as well as sinus related headaches. Lately I've been having a lot of lower back pain as well. I'm trying to put off going to my regular doctor because I am trying to get in with the VA. I have an appointment at the end of next month and hoping I can wait until then.

~*~ Betty ~*~

"If you truly want to change your life, you must first change your mind." - Anon


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LOVE2MY3's Photo LOVE2MY3 SparkPoints: (11,828)
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3/27/13 11:07 A

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Good morning! I am so glad I found this SparkTeam! I am 38 years old, and have major back problems. I have 3 bulging disks, degenerative disks, arthritis, SI joint issues, and lots of other issues. My back pain has made my life miserable, and my last Dr.'s appointment was told that there is nothing they can do to fix the problems, but they can keep me medicated to help cope with the pain. Blah!

I started my weight loss journey in January, and have lost 10 pounds so far. My main form of exercise is walking, and I have logged 157 miles walking a little circle in my garage! emoticon I also do stretching and some strength training with hand weights. This site has been an amazing resource for me, and I know I would have quit a long time ago if it weren't for Spark!

I look forward to meeting others, and making some new friends! God Bless!

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FISHER011's Photo FISHER011 Posts: 1,598
2/26/13 4:29 P

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Hi! My name is Debbie. I live in Sacramento, California.
I'm a heart bypass survivor. I had a heart attack 11/08.
I'm in chronic pain with my right knee & leg. This is the leg the Drs harvested my vein from when they did my bypass surgery. My knee swells up & makes it hard to sleep because of the pain. Drs are recommending knee replacement.
I also have had 2 carpal tunnel surgeries & have pain in my hands all the time.
A lot of my health issues & pain are related to my being obese. Standing on my feet & legs is hard- I use a cane for balance.
I've been on SparkPeople actively since Dec 2012- I am losing weight-slowly, but surely.
I woke up in a lot of pain this morning, so I am here! emoticon I get most of my support from SparkPeople! I'm also educating myself on various conditions I have been dealing with-Diabetes, NASH. COPD, Asthma, heart Disease, kidneys...
I sure am glad I didn't have all these health issues when my 4 older children were growing up! But it has limited my enjoyment of life with my 2 youngest (20 & 17) children & granddaughters!
I'm currently not on any pain medications due to my kidneys & liver. I am using Thermogesic which helps! it's a cream like BenGay.
Happy to be here! emoticon


Be~Happy~!

~HUGS~
Deb


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CHRISTINETTC's Photo CHRISTINETTC SparkPoints: (125)
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2/20/13 10:44 A

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Hello, I am Chistine from Minneapolis. I have been dealing with chronic pain for a long time now. I had Chiari Decompression surgery in July of 2010. Before my surgery and they found out what it was, I was having horrible neck pain, right arm pain and headaches. After surgery some of the pain lessened but I have never been completely pain free a day since then. It's always something, whether it be a headache or pain in my neck. I was in two car accidents this past fall/winter and that made the pain in my shoulders and neck worse. I am dealing with that now. I get headaches again pretty bad. I know that some of the pain has be increasing because I haven't been doing any working out at all. I found that in the past when I was more active I would feel better and be able to sleep better. So, I need to start working out and eating right because I know it helps. Also, stretching daily will help a lot. I need to get back into that. I deal with the pain pretty well, but I am on depression meds and have been having a hard time dealing with things lately. Hopefully my new start will help sooner than later.

JANEY28021 SparkPoints: (563)
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2/11/13 6:01 P

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Hi Wilma! My name is Jane and I have been living with chronic pain for several yrs. I was in a car accident a few years ago and it left me in a coma for 3 days with severe head concussion, fractured cheek bone, torn muscle to my left shoulder, fractured pelvis, and nerve damage to my spine that effected my left leg. After all the bruises and fractures healed, I was left with chronic neuropathic back and shoulder pain. I managed to work for several years, by changing careers over the years to compensate for the increasing pain and physical disabilities. But the last 10 yrs. things become so debilitating, that I finally have to quit.
For the most part, I manage my pain quite well....however some days it gets the best of me. My major concern is that I'm on Lyrica that has caused me to gain weight and with my physical disability, I find it hard to lose weight. Anybody have this problem with Lyrica or other meds? And what worked for you?
Thanks! Jane

WILMA102's Photo WILMA102 Posts: 1,263
1/24/13 7:34 P

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Hi i'm Wilma you will get so much support on this site we all know how it feels to have pain and still get on with our lives we help each other just get out of bed some days

Team Leader
Victoriana
Prednisone Before and After
Cass County NE Sparkers
"Eastern Star"


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BRAVEONE92's Photo BRAVEONE92 SparkPoints: (113,049)
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1/14/13 9:56 P

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Hi, I am disabled as a result of a car accident of 2003. A car T boned
our car on the passenger side, where I was a passenger. He hit the
front car door. It broke a vertebrae in my spine. I was almost beyond
walking for over 3 yrs. because of the excruciating pain I suffered. In
2006 I had spine fusion. It took a full two years to heal. It was a
blessed relief to get rid of some of the pain.

My back never completely stopped hurting. As I have aged, I now have
pain with an infected bursa in my hip, and my SI joint. I have found that
the injections for my SI & the bursa, may or may not work. Most of the
time now, I feel bad.

I can't stop running though. My Mom went into the nursing home first
week in Aug. It has been a very stressful ordeal to go through. Too
complicated to explain. I go nearly every day to visit Mom. She is 93
and still has good mind and looks great. However, she fell in her apt.
and can no longer stand nor walk.

I had breast cancer Nov. 2010 and had a mastectomy. Because of the
incidence in getting cancer back in the other, I decided to have a
mastectomy on the other 08-'11. I feel very good about my decision.
There is always the chance that I can get it back in 5 other places
in my body.

Edited by: BRAVEONE92 at: 1/14/2013 (22:01)
"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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LUANN7's Photo LUANN7 SparkPoints: (43,062)
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1/8/13 3:01 P

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Hello! I am 55 and a disabled RN. I am married with 2 daughters, 2 grandsons and a husky:)
I have constant pain I have rheumatoid arthritis and back pain- I had 3 back surgeries the last one in June 23 2012. I have been blessed because I am walking without a walker or wheelchair for the first time since 2005-hooray!!!I am on continuous pain medications and dont get out too much.I visit my mother everyday in the local nursing home.this is a new beginning for me and I cant wait for the p ounds to come off.I look forward to meeting u and having friends with the same problems as me.

I can do all things through Christ who strengthens me!! whoever believes in him shall not perish but have eternal life!!!
LEADER-PARTNERSHIP ACCOUNTABILITY TO THE FINISH LINE.
CO-LEADER SHINING FOR JESUS
CO-LEADER GOD ANSWERS PRAYERS
C0-LEADER GODS AMAZING GRACE
CO-LEADER CHRISTIANS WITH 100 POUNDS TO LOSE
CO-LEADER GOD WORKS AMOUNG US


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PURPLE0906's Photo PURPLE0906 Posts: 2,844
1/6/13 9:01 A

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Hi, my name is Cindy. I deal with pain every day, some days worse than others. I have back problems (3 enlarged disks in lower back, pinched nerve in back), TMJ, IBS, High blood pressure, Acid reflex and Collangenous Colitis.

CINDY

Each day's a gift and not a given right!
Think Positive!!
Take one day at a time!
Believe in yourself, you can do it!
No such thing as I can't!

Computer Technician



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CASTLE_AOKI's Photo CASTLE_AOKI SparkPoints: (8,402)
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12/20/12 12:28 A

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Hello all! My name's Addy and I'm 30 years old. I have an arrythmia (SVT), high blood pressure, and Graves' Disease. I was recently hospitalized for chest pains, trouble breathing, and high heart rate; it was there that I was diagnosed w/SVT (Supra Ventricular Tachycardia). They put me on a beta blocker for the tachy and the arrythmia but my chest pains have persisted these past 5 months. My doc thought it was GERD/heartburn so I made some small changes, i.e. not eating past 8 pm (I go to bed at 11 or 12), avoiding spicy food, but the chest pain persisted as I went to sleep and when I awake in the morning. It it now persisting all day throughout the day and I'm at my wit's end. :( I started taking aspirin but it did nothing (in fact I think it made it worse) and then I tried tylenol (which did nothing). Finally, I tried ibuprofen and voila, no more chest pain. I hope this is a temporary situation as I would really not like to be taking meds for the rest of my life. I'm young and I take care of myself this is so frustrating to be in this position.

I really want to get the SVT treated but my doc wants to take a wait-and-see-approach it seems. :P What do you all think? Anyone here with SVT and chest pains? Did cardiac ablation relieve your chest pain symptoms or do you think I have something else? I feel that since ibuprofen is an anti-inflammatory medicine and ibuprofen relieves my pain, my pain must therefore be inflammation-related, wouldn't you think so too? Who knows, it could be unrelated. :( Then I'd be back to square one. Anywho, just thought I'd introduce myself and see if anyone had any advice. Nice to be here and excited to meet you all!

See you around,

Addy

Edited by: CASTLE_AOKI at: 12/20/2012 (00:29)
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WUNDERCHIC2010's Photo WUNDERCHIC2010 Posts: 153
12/11/12 4:49 P

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Hi, VJH-W65! emoticon
I have looked into wheat allergies. While I am not allergic to wheat, I am slightly Gluten intolerant (like some people are lactose intolerant). It only seems to have an effect on my digestive system. When I tried eliminating gluten completely for 6 months, there was no change in my pain, unfortunately. But I do hear that some people have had great success with it. Any relief from pain is a blessing!

You might want to try King Arthur Flour's website for buying gluten free products. They have several gluten free flours and mixes. And Living Without and Delight magazines both have lots of GF recipes. There are lots of GF blogs out there as well. Best of luck!

"Don't give up what you want most for what you want now" (from Fitness Magazine #fitquote)





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VJH-W65's Photo VJH-W65 SparkPoints: (6,568)
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12/5/12 11:59 A

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New issue Monday I went for tests onn my feet,
I had no clue that 3 inch needles would be inserteds into my leg muscles and zapped!
OUCH! yes needle was thin but still it hurt like the dickens
electrodes and the zap was like being flipped with a rubber band all over my feet !
Was bearable at the time but since then my feet are hurting badly.
I have a high tollerance for pain I'll never do that test again.


"Success is not the result of spontaneous combustion. You must set yourself on fire."
--Reggie Leach


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JUDYAASH's Photo JUDYAASH SparkPoints: (15,890)
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12/2/12 7:25 P

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I'm glad I'm not the only one with left foot crud!

“Only as high as I reach can I grow,
Only as far as I seek can I go,
Only as deep as I look can I see,
Only as much as I dream can I be”

25% of weight to lose


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VJH-W65's Photo VJH-W65 SparkPoints: (6,568)
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12/2/12 11:38 A

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Too funny Judy 'concealed weapons'
I call those 'sheet shredders'
@ $100.00 + for a set of sheets trimming nails are just the wise thing to do.
I plan a monthly Day one as my pedicure pamper every month
Sometimes an early time opens up and I just do them.
I can do my right foot but the left I must snag someone to cut them,
My DH does not want to learn how to do them,
I ALWAYS get an ingrown toenail if he does it his way!
So every 3 months i must go to a foot doctor to have my left foot toenails trimmed

"Success is not the result of spontaneous combustion. You must set yourself on fire."
--Reggie Leach


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JUDYAASH's Photo JUDYAASH SparkPoints: (15,890)
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12/1/12 7:05 P

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Speaking of toenails I had to do mine today or register them as weapons. It took me 30 minutes to get up when I finished. I now have 4 bloody toes since I can't see as well since my cataracts were removed so thank god I don't have diabetes or I really don't know what I would do about my feet. since I live in a very small community with few amenities and no public transportation.

“Only as high as I reach can I grow,
Only as far as I seek can I go,
Only as deep as I look can I see,
Only as much as I dream can I be”

25% of weight to lose


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VJH-W65's Photo VJH-W65 SparkPoints: (6,568)
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12/1/12 3:17 P

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Hi & Welcome Carrie,
Have you checked the wheat allergies ?
I have read that gluten free has helped lessen fibro,
Cutting all gluten for a week then add it back
My reaction was seriously horrible. food poisoning flu like reactions.
I am in the process of going gluten free
My friend is sending the GF flours to me [small town here]
With so little help yes we must explore on our own.
Wheat Belly is the SP team

"Success is not the result of spontaneous combustion. You must set yourself on fire."
--Reggie Leach


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VJH-W65's Photo VJH-W65 SparkPoints: (6,568)
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12/1/12 3:11 P

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Hi Judy nice to meet you sounds really bad
we are all really pluggers because that fuels our hope!
I think that if i keep going then i will lose weight and
then i can trim my own toenails
and the twist in my spine will have less torque
As it was it would have just became more painful with no hope a'tall.


"Success is not the result of spontaneous combustion. You must set yourself on fire."
--Reggie Leach


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JUDYAASH's Photo JUDYAASH SparkPoints: (15,890)
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11/30/12 12:52 P

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Hi. I;m Judy . I am 69, have had a stroke, a heart attack, stage 4 CKF, advanced degenerative disk disease in my lower back and neck (had surgery on my neck but the trouble is back now) and bad arthritis in my hands knees and hips, as well as a numb left foot. I hope no one here is going to encourage me to run a 5k because it ain't gonna happen. I do chair exercises every day and try to watch what I eat but I have had more and more of those days when I wonder if I really want to be here. I must because I am still plugging along doing my exercises and a whole lot of needlework.

“Only as high as I reach can I grow,
Only as far as I seek can I go,
Only as deep as I look can I see,
Only as much as I dream can I be”

25% of weight to lose


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