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ALIDOSHA's Photo ALIDOSHA Posts: 4,139
10/18/12 5:17 P

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I wish you strength of spirit and good luck!

Never say never


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COUZCAT's Photo COUZCAT Posts: 4,362
6/25/12 4:26 P

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I believe there is at least one MB on CKD or related kidney issues. You may want to take a look.

SUNNYARIZONA's Photo SUNNYARIZONA SparkPoints: (184,898)
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6/16/12 2:02 A

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I am a believer in the NATURAL way, if one can find it and make it work! Good for you.

MY NEW saying: (borrowed from Delila)

"If you want to do something, you'll find a way, if you don't, you'll find an excuse."


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DONNALEE24's Photo DONNALEE24 SparkPoints: (100,002)
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6/14/12 5:57 A

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God bless your positive efforts emoticon

In GOD We Trust Choose To Lose
"If you are going to win any battle you have to do one thing. You have to make the mind run the body. Never let the body let the body tell the mind what to do. The body will always give up. It is always tired in the morning, noon and night. But the body is never tired if the mind is not tired."
-General George S Patton, U.S.Army, 1912 Olympian


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JANNYGIRL3's Photo JANNYGIRL3 SparkPoints: (36,744)
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6/13/12 8:41 P

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'Loving our Kidneys' is a great Spark Team for people with CKD.


"If you have the courage to begin, you have the courage to succeed."
~ David Viscott ~


Coincidence is God's way of remaining anonymous.
~Albert Einstein~




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DEBBY4576's Photo DEBBY4576 Posts: 4,473
6/13/12 5:01 P

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I found a diet for Crohn's patients. My husband has the disease. He is now in remission. I have told those I've met how the diet works, given them all my research by email, only to find that most of them haven't tried it. I know how you want to share all your research, and the marvelous response to what you have found in your loved one. I hope someone reading this will contact you.

In the meantime, you might like the team "Natural Health using herbs, vitamins and supplements in addition to here.

Bless you for sharing.

Northwest PST
Debby
CoLeader of Natural Remedies, Natural Health.

"Years teach us more than books."
Berthold Auerbach

Don't let your past hold your future hostage.


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JESSIG5's Photo JESSIG5 Posts: 2,418
6/13/12 4:57 P

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If you get any response why not start a team just for CKD. There are teams for most other health conditions. Good luck to you and prayers for your daughter.

One day at a time; one pound at a time.

SANDIELD Posts: 2,070
6/13/12 12:35 P

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The newest issue of Good Housekeeping just had a great article about using social media such as Facebook for medical issues. Worth the read.

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EDDIEMAN1 SparkPoints: (30)
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6/13/12 11:05 A

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My daughter was diagnosed with sudden onset Stage 5 Chronic Kidney Disease (CKD) when she was just 29. The doctors told her she'd be on dialysis within months. I started researching CKD and quickly found the medical system isn't really geared up for people who aren't yet on dialysis and are even trying to resist going on dialysis for as long as possible while still maintaining the best health.
As a result of my researching and recipe experimentation she has increased her eGFR (a measure of estimated renal function) has moved up into the middle of Stage 4 CKD and has lasted 3 years without going on dialysis! We don't know how much longer she can remain dialysis free but it's my goal to give her the best chance of remaining healthy and off dialysis I can find. I'd like to be of some help to others with what I've done with my daughter.
I am not a business and nor am I selling anything but am merely a simple ordinary person trying to attract people with any stage CKD and their family or friends so we can help each other with discussions about what works and what doesn't; what recipes we have tried; and any other hints or pieces of useful information to our mutual benefit.
Other than recipes and information I am not 'pushing' anything and what I offer is free for people to use or not as they see fit.
Hope we can get a mutually beneficial dialogue happening.
Catch you all around,
Regards,
Eddie

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