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ELLEVAMP2015's Photo ELLEVAMP2015 SparkPoints: (362)
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12/5/14 8:22 A

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Hello Everyone!

My name is Emily and I am 25 years old. I have always had an irregular cycle since it started at the age of 10, but at 15 when I hadn't had a period in over 11 months and gained 25 lbs overnight my mother was concerned and took me to her GYN. That's the day I was told I had PCOS, back then my ovaries were COVERED in cysts. I have all of the classic symptoms to this day----dramatic weight gain/loss episodes (mostly gain of course), facial hair and body hair that covers a good 70% of my body (eww), I struggled with infertility for many years but luckily I am currently 7.5 months pregnant with my little miracle baby, mood swings, depression, a few skin tags and skin discoloration, etc. If you look up PCOS in the medical dictionary you might as well just imagine my picture right beside the description, lol. I am still fighting these symptoms everyday, the weight loss especially but is currently on hold still for the next few weeks until after I give birth and recuperate. I seem to lose weight about as fast as I gain (8-10 lbs per month +/-) but if I don't stay on a strict eating and exercise plan I will pack on all of the weight I lost and then some within a matter of days or weeks. My biggest problem has always been falling off the routine of healthy living, not so much losing weight (I seem to be really good at that...) In my lifetime I have probably lost and re-gained (yo-yo) a total of about 300-400 lbs from the time I started dieting at 11. The most I ever was able to lose at one time was 61 lbs. I usually only lost in intervals of 25-35 lbs before getting lazy and falling off of the game plan. This past year I lost about 37 lbs and when I got pregnant, so I had to stop my current plan (Herbalife). That was the ONLY reason I stopped, I was set to reaching my goal. I have since gained that back and then some (about 47 lbs in total.) since last May. I am determined to lose all of my weight after I give birth within 18 months (hopefully)!! I am determined and want to be a positive roll model for my son, so failure (giving up and being unhealthy) will not be an option this time. Good luck to all of you on your weight loss goals! emoticon

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GERMANGIRLINLDN's Photo GERMANGIRLINLDN SparkPoints: (27)
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11/2/14 4:59 P

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Hello,

My name is Nadine-Johanna and I am 24 years old. I was diagnosed with PCOS in September 2012. I had irregular periods and put on a lot of weight since I am 17, without being able to lose it. I exercise regularly and I am quite active during the day, so it seemed strange that I put on over 60lbs without any changes to my diet and exercise regime. I am now on Metformin since Friday, starting off with 500mg a day I shall increase it to 3x500mg soon. I am hoping to be able to lose weight now combined with a low carb diet and exercise. I am looking forward to mutual motivation, exchanges and support.



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TANNERZ's Photo TANNERZ SparkPoints: (19,141)
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10/21/14 10:40 A

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Hey Everyone. I’m Enya and I’m 26 years old. I figured I had issues for quite a while, at seventeen I still hadn’t experienced periods, so I had to get a pill to cause it to happen. Then I got to enjoy a life on birth control until I started getting painful attacks, which turned out to be pancreatitis and gallstones – gallbladder was removed when I was 20. I stopped taking the birth control since that is what caused it. I went back to not experiencing periods again… when I was 23 I got tested and they said I had nothing abnormal? Which seemed odd to me still but I shrugged it off… and let 2 more years pass without having periods. 5 months ago I decided enough was enough, it’s been over 5 years without them.. I had my fun not having them but I knew something was wrong.

I went through testing again, this time they finally found that I had several small cysts all over my ovaries. They pretty much told me my options and the only one I could really take would be birth control again to regulate everything. (Apparently if I didn’t take a form of something I could be at risk for ovarian cancer and the like... which I don’t want) I have a fiancé, so I don’t plan on having kids any time soon so that isn’t an option either.

I’ve been doing pretty well on the weight-loss. I started my journey at almost 250 pounds, (I’m pretty tall though, 5’11”) and I’m now down to 213… I’m looking at trying to get to 150-160 and I know that this is obtainable now. I’ve been doing a lot of research and I found cutting out starchy foods really has helped. (Potatoes, Pastas, Corn, Etc)

I’m glad to be here and hopefully I can help be supportive and receive it back! 


Co-Leader of 20 Somethings with 50-99 Pounds to Lose
Join Us! www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=11518


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DRREEVEE SparkPoints: (22)
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10/4/14 12:53 P

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Hey everyone. I'm Ree, 24 years old and got diagnosed and put on medication last week. I've been health concious my whole life and am quite athletic, so it always irked me when people around me would diet and drop pounds left and right while I am on a perpetually carb-free diet and exercise daily and stay stubbornly bulky. Might sound strange but this diagnosis is something of a relief; I'm a student of medicine so it helped that I was better informed than quite a few people are when the endocrino said "PCOS". Fertility, heart and other possible problems notwithstanding, maybe now I can finally drop to a normal BMI!

JCOLLESIDES's Photo JCOLLESIDES SparkPoints: (558)
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9/29/14 11:12 A

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Hi Heather! So excited for your Princess run! I am planning on doing the Disney half next summer! The only successful way I have lost weight is when I started a hard core running program. I am trying to light my fire and get going again. I am excited to read about your journey!

JCOLLESIDES's Photo JCOLLESIDES SparkPoints: (558)
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9/29/14 10:52 A

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Hi my name is Jessica, I was Dx PCOS 11 years ago by the Dr telling me I would never have more children due to this "horrible" diagnosis. I was put on Metformin and surprise was pregnant 3 months later. I have 4 daughters and never "struggled" too hard to conceive, I did have 2 rounds of fertility treatment with clomid which was eventually successful. So ladies, dont give up!! I busted my ass to lose 100lbs running 6 days a week, between 6-10 miles per day, plus weight lifting...so weight loss I know is possible. In the past 2 years I have gained back most of the weight due to slowing down, pregnancy, bout of depression and eventually doing little to no actual workouts. So today I am beginning this uphill challenge once again... I am thrilled to try this new platform and support each other. I cannot wait to get back to the ME that I discovered when I was feeling my best. emoticon

KDBZERATAKU's Photo KDBZERATAKU Posts: 1
9/15/14 2:12 P

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Hello all. My name is Danielle and I'm a bit new to the community. I have a harder time losing weight because of PCOS and a slow metabolism. I'm 23 and was diagnosed when I was 20. Currently I'm not on any medications other than birth control for my periods and testosterone, but I've also started taking raspberry ketones recently. I'm 320lbs and looking to get down to 180 not only for my health but for my sex life as well.

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WICKEDLOVELY88's Photo WICKEDLOVELY88 Posts: 178
8/26/14 10:40 P

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Hello! My name is Sara and I am 25 years old. I was diagnosed with PCOS about 9 months ago although I have had the symptoms since I was young. When I was diagnosed I was put on birth control and although that seems to of gotten rid of the cyst I still am having trouble with the symptoms. For some reason a couple of days ago I decided to start doing research on it and I hadn't realized when I was diagnosed just how bad it can be and how much work it will take to get it under control. I've been on SP for years but have never been able to stick to it now I am going to really try so that I can get this under control. I'm gonna try a low GI diet and cut out as much dairy and gluten as I can. I'm hoping I can stick with it this time!

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EMMA-LEE14 SparkPoints: (576)
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8/8/14 3:37 P

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Hi everyone! I'm not sure how active I'll be, but I figured I might as well introduce myself before jumping in and commenting on everything. :) I was diagnosed with PCOS at 9 years old. I lost a lot of weight doing a low-carb diet, but then I was misled to believe that Metformin was a "miracle" drug, and began to eat poorly and gain weight once I was put on it. Since then, I lost weight again four years ago by starving myself, but high school stressed me out and in four years, I put all the weight back on and then some. I just graduated and am looking to take better care of myself in this new chapter of my life! :)

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7/30/14 9:56 A

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Hi! I'm Heather. I was recently diagnosed with PCOS (about 3-4 months ago) after a lifetime of struggling with weight loss and other irregularities. I've been attempting to find a lot about PCOS and how to lose weight without spending all of my time exercising. I am in graduate school, a middle school teacher, a mother to a 3 year old girl, and a girlfriend (coming up on our 5 year anniversary in a few weeks). I have to be able to find that balance and that's what I'm struggling with--what to actually eat and what exercises work the best. I will be running the Disney Princess Half Marathon in February and am working towards other goals for running until then.

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4MEIWILLDOIT Posts: 539
7/27/14 9:55 A

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Hi I am new to this group. I have really been struggling with my weight. I am frustrated and discouraged. I went to the nurse practitioner and she told me I likely have PCOS. The blood work isn't back yet but based on what I am reading it fits me to a T.
I very fortunately have 3 teenage children. I work 2.5 jobs. I have a great spouse who is likely tired of my saying I try and I try but I just cant lose the weight. I just keep gaining. Hey even my mother has told me that everyone thinks I am a "closet eater" and must eat when no one is around. Anyway I hope I am on the path to finding some answers and what works for me

doable and important

Eastern Daylight Savings Time Zone


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KACEYSW's Photo KACEYSW Posts: 2,668
7/23/14 10:20 A

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Welcome to all the wonderful new people!

Refuse to be beaten by inanimate objects, inflexible minds, and incompetent practices.


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MOJO0607's Photo MOJO0607 SparkPoints: (50,653)
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7/22/14 12:18 P

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Hello, everybody!
My name is Marijo and I was diagnosed with PCOS in 2006 when I was undergoing screening to be a surrogate. I have struggled with weight issues, irregular cycles, facial hair, and depression for most of my life, and it wasn't until the fertility specialist was doing the ultrsound before we found out there was an underlying cause--PCOS.

I was very fortunate that I have been able to conceive all three of my children, in spite of the PCOS and the irregular cycles that went along with it. I was also able to be a surrogate to a dear friend of mine and gave birth to her triplet boys in November 2006. With all of that aside, there are still many things that are an ongoing challenge for me and I want to make sure I take the steps needed to not let PCOS take over my life.

I look forward to getting to know each of you and helping to provide support to you during your journey. See you around the group!!

~Marijo


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SELAH714's Photo SELAH714 SparkPoints: (1,486)
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7/20/14 1:26 P

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Hi guys, I'm Becca. I was diagnosed with PCOS last summer, and I'm excited to say that after one year my dr. said that all my visible symptoms are gone! I went to the doctors in college several times, and they all said that the lack of cycle, weight gain, hair loss, etc, was all from stress. But nothing helped. Birth control only made me gain MORE weight (40 lbs in one year!). My new doc has me on Beyaz BC and Spironolactone and it is helping tremendously. My intense food cravings are suppressed, and I can finally lose weight instead of just bulk up when I work out. I'm happy to know that there are other ppl out there who are going through the same things that I am!

**No One Fights Alone**


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BFURS51910's Photo BFURS51910 SparkPoints: (1,166)
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7/3/14 10:05 A

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Hi everyone! My name is Brittany and I am 28 yrs old. I was FINALLY diagnosed with PCOS at the age of 25, even though I had asked numerous gyn. to test me for it since I was 19. They insisted I could not have PCOS b/c I did not fall within the "norm" for those who typically are diagnosed with it. The gyn. that finally diagnosed me would not send me for diabetes testing b/c she felt I did not have it. So I switched gyn and found a WONDERFUL gyn who sent me for diabetic testing and low and behold I am pre-diabetic. So, pretty much my body did not absorb the glucose the right way within the two hr time-frame it should have. At the advice of my doctor, I am ramping up my workouts and TRYING to eat better. She actually suggested I eat as if I am a diabetic. So if anyone has any tips I would appreciate them. As I find eating the hardest thing for me ( I LOVE my carbs).



AERACURA143's Photo AERACURA143 Posts: 4
6/13/14 6:04 P

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Hi, everyone. My name is Kate and I was diagnosed with PCOS in June 2009. In 2012 I lost a little over 10% of my weight with Weight Watchers (I wasn't really eating quality nutrients though) and I got pregnant weeks after getting married (we were not trying). I do consider myself very lucky to get pregnant and have a healthy child. I had a very trying pregnancy and I gained nearly 60 pounds (I lost only 20 LBS) and I was overweight to begin with. I had to have a emergency C-section due to pre-eclampsia. I was put on blood pressure meds and I am still on them and I hate taking them and paying for them.

Its just amazing and frustrating how PCOS differs with every woman, and how it hard it is to find a good doctor to get treated.

I really hope to learn from this team and control some of these PCOS symptoms.

Make your dreams a reality


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PURELYLIZZIE's Photo PURELYLIZZIE SparkPoints: (1,933)
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6/1/14 11:37 P

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Hi. I'm Lizzie, I'm only 19 but I was diagnosed a couple of years ago. My mom and grandma have it. Please read my blog post about PCOS if you have any questions- I did quite a bit of research.

With Love Lizzie


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PIANKHI's Photo PIANKHI Posts: 5
5/10/14 2:31 A

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Hello. I'm not at all new to SP, but I've never participated in the community and I have a tendency to just.. give up. Ah, well. I figure maybe connecting with people, I might stick around this time!

I don't remember when I was diagnosed with PCOS, but it was in my early 20s - I'm 29 now. I have quite a lot of weight to lose, and while mostly it's for myself, I also have a wonderful boyfriend who's stuck by me for 2 years and I feel like not only do I deserve better from myself, he deserves better from me too. We are looking forward to starting a family together, and clearly my health needs to be in check first.

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KLKOONTZ916's Photo KLKOONTZ916 SparkPoints: (5,848)
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5/6/14 9:51 A

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Hello everyone. I am not new to Sparkpeople. I have been using it on and off for the past few years, but now it is time for me to buckle down. I have always had a problem with being overweight. When I was in the 6th grade, I remember having to wear adult size large clothes because the girl's clothes never fit me. I was diagnosed with PCOS at the age of 14. The highest weight I've recorded was 233 in 2011. I have been hovering around 220 for the last year. I am tired of feeling uncomfortable in my own skin and I'm ready to see this through. I am looking to lose at least 50 lbs but more importantly, I want to feel better and have more energy.

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SARAHLEE13's Photo SARAHLEE13 Posts: 30
5/5/14 5:46 P

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So I've been on Spark and part of this group for a long while now. I've been inactive...not even a lurker...just rarely log in and when I do it's usually to fiddle around with my app...

So I'm determined to start using this website again because it was helpful in the past when I had! So I'm reintroducing myself.

I just turned 33, I've know about the PCOS since my 9 year old son was little, so maybe around 6-7 years? I don't remember exactly. When I first found out I did lots of reading of books, these forums, and other things online. I got all the information I needed, and with my NPs help at the time I lost some weight and started feeling better.

I've since slipped up, starting eating whatever I wanted again thinking...yeah tomorrow I'll change. The biggest challenge has been hubby, he likes to cook...he likes to eat...he doesn't care about how healthy the food is only how tasty! Sooo he throws me off my game sooo much every time I try to eat healthy and lose weight! Hmph! Well now he's been diagnosed with high BP and cholesterol and needs to lose weight and learn to eat healthier so that he can lower both and go back off the medicines he was prescribed! He's read some books, listen to what I have to say about reading labels and eating healthier and he will be seeing a nutritionist next month. So now he's on board and wants it to be a family thing so the kids learn to eat healthy and don't develop problems like us!

That's great, as now things will be easier if we are all in it together! So I'm re-motivated to start my struggle all over from scratch. Ideally the long term goal would be around 100lbs, but the drs are usually happy just seeing anything 10+.

So wish me luck in my goal to start from scratch. I will start tracking my daily walking steps as well as stair steps starting tomorrow. Then I can average my regular steps at the end of the month and create goals to try and beat. I'm really not competitive at all, but I'm hoping to learn to be competitive against myself!

Also I realize I'm blessed with two children. I've been told over and over that PCOS makes it harder for most women to have children and often that is how they reach their diagnosis because they are being tested for fertility issues. Since I had two kids accidentally (yeah...not trying for either at the times, though they are such a blessing now!) it never really hit home how much of a struggle this could be for others with the same condition. I took my daughter to her new pediatrician (our old Dr office closed so we had to find new Drs.) and mentioned it to him because she is almost 14 and hasn't started her periods yet. At this point he thinks that is still normal and said not to worry until she is 15...if she hasn't by then we will test her for this and other things. In the mean time just teach her to eat healthy because that's good for everyone anyways! He also took a moment to look at me and say and she's the oldest of two kids? Umm yeah why? Do you know how lucky you are to have TWO kids and having PCOS...Man...that hit SOOOOO HARD! Various DRs have told me that I was lucky, and if I tried now there's probably no way. I just happened to be at my lowest weights and healthiest at the time I got pregnant with them. They turned out to be blessings in disguise!

I hope to continue to be active and share and learn with this group. Thanks for reading!

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RINLYN's Photo RINLYN SparkPoints: (52,374)
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5/2/14 10:07 A

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Hi all. I tried another PCOS team, but it's totally inactive. Hoping for more activity here!

Was diagnosed with PCOS at 24, but didn't find someone that gave me real help (other than just putting me on BC) until last year (I'll be 30 this year). I'm now seeing an endocrinologist and a nutritionist to help keep me off metformin. I'm pretty lucky in that my only blood work problems are my c-peptide levels. I brought those down to normal in six months just with a change in diet (then backslid due to leg surgery, and now I'm working to do it again).

My major issue is food. My nutritionist is awesome and well-qualified to help me, but I'm struggling and it's so frustrating. I'm not eating enough during the day, according to my nutritionist, but it's really hard for me. I hate thinking about food, buying food, preparing food, all of it. I wish I had the money to hire a personal chef who would make me something and set it down in front of me at the right times so I can just eat it and move on.

What I'm hoping to find here is more ideas of things I could be eating, and just general community.

I work out pretty hard. I'm into kickboxing and Judo, plus I lift. I work out five days a week (twice on Saturdays). My goals are to lose excess weight and build muscle. I don't really care about the exact poundage that I weigh, but I estimate that I'll probably need to lose about 90lbs to get to where I'd like to be.

Tl;dr: Have been diagnosed with PCOS for about 5-6yrs, but only being treated for 1. Having trouble losing weight due to inadequate eating, but exercising plenty. Looking for food help and community.

Edited by: RINLYN at: 5/2/2014 (10:08)
Cogita tute


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ALLNEWTAUNA SparkPoints: (578)
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4/30/14 6:32 A

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Hey everyone, my name is Tauna. Nice to meet you ladies!!! I just wanted to introduce myself and tell you a little about myself. I am 24 years old and I was diagnosed with PCOS back in 2005. It has been relatively difficult for me, I went through the rough years of high school dealing with facial hair and splotchy skin and acne EVERYWHERE, not to mention the lack of periods, or when i actually got one, being afriad of bleeding EVERYWHERE during class and hoping i dont have that little stain on the back of my pants as i rush to the bathroom to change, and going through months of that. My periods literally last 2-4 months when i actually get them. So knowing that losing weight and being healthier will help with the symptoms of PCOS I am hoping that it will work for me too. I have about 120 lbs. to lose to get into the healthy range for my height. so thats my goal. I do have a blog post that says a little bit more about me. if you all want to check it out and add me as a friend so we can stay in contact.

Edited by: ALLNEWTAUNA at: 4/30/2014 (06:35)
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ALBURBRIDGE's Photo ALBURBRIDGE Posts: 103
4/21/14 10:51 P

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Hi everyone. I was diagnosed with PCOS probably in 2000. I've known I've had it for years and years but never really cared because other than being morbidly obese, I've mostly had a mild case. I guess if I wanted to get pregnant there would have been issues. I was on BC for years because without it I wouldn't have a period. About a year and a half ago now I went off the BC and haven't had a period since. My doctor says that is okay, which does concern me since it seems wrong. I'm 36 and weigh close to 400 lbs. I've lost 70 pounds in the last year and a half and my husband and I know if we want even a shot at having a family we need to lose a ton more weight.

So that's where I'm at. Just working on the excess weight and trying to decide if we even want a family.

Restarted my WL journey 3/3/14
Total lost since Jan 2013 = 127
Blog at aprilsweightloss.com
SOFT_VAL67's Photo SOFT_VAL67 Posts: 2,461
4/21/14 8:44 A

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I was never convinced either.
I always just thought it was my being overweight that caused these issues.
I never had any fibroid tumors, my cycles were regular and normal up til I went off birth control pills in my late 20s.
I only did so, because I had high BP.
I was put thru a series of blood tests, I was checked for diabetes, and all sorts of other thyroid tests, anything they could think of to explain my weight gain and other issues.
The only thing I was ever told was my adrenal glands were slow.
Whatever that means.
So, here I am, 46 and I suppose I can lay it off on early menopause.
But I am not going to take it laying down, I have an appointment with the gyno next month, well, I guess I will be laying down for that......(joke).....
And I am going to ask them to repeat all the previous tests, thyroid, glands, a1c, fsh,hormones, etc.
I dont think I have PCOS. But I hope to find out what is going on.

RDDY4CHANGE2 SparkPoints: (1,413)
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4/20/14 9:10 P

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Hi! I am 24 and was diagnosed with PCOS probably 5 years ago now. I am not truly convinced, but here I am. My cycle has always been off, only getting a few a year. I was able to conceive using metformin. I have been trying for a second child now for about 3 years with no luck. No more metformin, using cinnamon and honey. I was able to have a regular cycle using the C&H, but it has now been about 120 since my last cycle. I joined SP to try to keep myself in check. I have some serious weight I'd like to lose and I am hopeful that it will help me to conceive. Thanks!!

RE_ANNE's Photo RE_ANNE SparkPoints: (3,108)
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4/20/14 6:57 P

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Hello to everyone. I am 36 years old and was first diagnosed with PCOS at the age of 28 but experienced pain associated with it from the age of 12. Was originally diagnosed as a hypochondriac because my family doctor wasn't ethical or intelligent enough to refer me to a specialist when his constant tests for appendicitis kept coming back negative. I wonder if anyone else experienced the same problem in getting diagnosed.

Looking at others stories I'd say my PCOS is mild to moderate as my biggest problems are sensitivity to some foods, extreme menstral pain and the majority my fat congregating in the front part of my naval and in my but and making me look like I'm pregnant even when I'm not.

Not on any meds for it as I have found the best way to control it is a balanced diet of non processed foods and exercise. Unlike some I find milk to not be a factor in causing the symptoms but it does help with preventing it - actually milk products, especially yogurt, seem to help which is odd for a person with PCOS. Used to think I developed Lactos intolerance during my period but changed my mind when I had the same symptoms even when avoiding dairy.

Anyway - nice to meet you all!

Hey look! I finished a post! Who says I never finish anythi ..... Look! Shiny flutterbys!


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JOANG13's Photo JOANG13 Posts: 262
4/14/14 2:16 P

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My name is Angela. I was diagnosed with PCOS about 8 years ago. They put me on BC to stop a 4 month period. This jar to my system kicked in a bunch of new stronger symptoms. It started out as uterine cramps (likened to labor pains) then it went into ovarian cramps as well. I cramped 3 out of 4 weeks, gained weight, etc. They put me on Metformin, Spirolactone, and changed the BC to a lower dose. While on that the pain stopped, I lost 40# but then the medication stopped working after about 8 months and bleeding and pain started again. So they upped the dosage. That stopped working after 3 months and all the weight came back. I'm now at the maximum dosage of BC and metformin and no matter how well I eat and how much exercise I do, I cannot lose weight. I am discouraged at this point in time and will be discussing this with my endo tomorrow. She says that if I can lose at least 50# I can start coming off the medications.

I know about most of the struggles of this disease - except for the struggle of pregnancy - I won't comment on that area for anyone but wish everyone the best of luck with whatever their area of focus is (mine is weight loss).

Ang


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SOFT_VAL67's Photo SOFT_VAL67 Posts: 2,461
4/13/14 4:20 P

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I was "vaguely" diagnosed with pcos years ago.
but after taking metformin and aldactone for years and zeroooo changes, i just stopped.
i lost alot of weight in 2012 and then i stopped.
i have been having a lack of menstration for about 6 months now.
and not sure if its pcos or weight gain, since i gained back 16 lbs this last year.
so, ive been put back on metformin, and am going for hormone testing and pap smear, etc next month,
also will be having a bone density test.
i broke my foot in january 2013 and was then diagnosed with a vitamin d deficit.
after doing some reading, i have learned that metformin can interfere with b12, so im wondering if anyone knows if this is also true of vitamin d?????
well, i hope to get some answers when i see the doctor and have all this blood work.
something hormonal is happening to me, i guess periomenapause is pushing on to regular old menopause, i will be 47 this year.
i dont know what hormones are lacking.

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4/11/14 8:58 P

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Hello. I have been living with PCOS for almost 10 years. I was able to lose a lot of weight-65 pounds-before but I have gained it all back plus more. I am working on getting it off again before I get married next fall. Right now I am on BC but not metformin, though I have taken that in the past. I have been working out off and on, and not really tracking my calories until recently. My fiance and I have a lot of goals and dreams to travel so I am getting more serious. I am hoping to be able to lose the weight again and do so much more.

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4/4/14 6:08 A

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Hi all, I'm Tracee from Western Australia & just joined the group. I have had hypothyroidism for years & was diagnosed with PCOS last December. After ignoring it for a few months I am now ready to deal with both of these, my weight & changing my life in 101 ways for the better. I was glad to see a group of others who understand & I'll be able to learn off. xx

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DEFTDODGER Posts: 2
3/24/14 2:21 P

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My name is Teri and I was diagnosed with PCOS about a year ago. Doctors have always told me they thought I had it, but would then do an ultrasound for cysts and I never had any so I was always told "Oh, guess you don't have it." I found a new OBGYN and she told me that you didn't have to have cysts and a blood test was the best way to determine if I had it. News to me! So I don't have the cysts, but all the other symptoms--bad acne, weight around my middle, can't lose weight, hormone imbalance, super irregular periods, etc.

My doc upped the hormone dosage in my birth control, but that's about it. I have been exercising and dieting and am not losing weight. Very discouraging. I am hopeful that by joining this SparkTeam maybe I can get some new ideas.

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3/19/14 8:13 P

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My name is Joanna and I was diagnosed with PCOS in 2012 at the age of 25. My husband and I have been TTC for almost 9 years now. I try not to let it get to me that I haven't been able to have kids. I have to have faith that I will someday.

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3/15/14 9:38 P

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hello all, my name is Valarie and i was told i have PCOS when i was 19 years old, i still have it and am 29 ( i know it won't go away). God blessed me with two wonderful little boys. I was lucky and am thankful for them. i hope to have another one someday but that is all up to God. i am newly divorced and couldn't be happier about that. he was very abusive. i am with a man now that treats me like a queen.

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BOOKWORM_2014_ SparkPoints: (108)
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3/15/14 12:07 P

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Hello everyone. I was diagnosed with PCOS in November 2012 and then Hypothyroidism June 2013. It has been a rough journey and I need to get healthy and become more active. My dream is to become a mother. My husband and I have been trying to conceive for 8 years now with no success.

KIMMIERN81's Photo KIMMIERN81 Posts: 13
3/10/14 6:14 P

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HI everyone
I am new to Sparkpeople, and I am in need of support. Today I was diagnosed with Insulin resistance and PCOS as well as Hypothyroidism. Needless to say today has not been my finest days. Today has motivated me that more than ever my life needs to change and fast otherwise I will never have children, I will get diabetes, I will end up with heart disease! I don't want this!
please help!

Got to kick at the dark till it bleeds daylight-BNL


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WALKERJK SparkPoints: (9)
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3/7/14 10:05 P

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Im Jessica. I was diagnosed with PCOS about 2 weeks ago. I was put back on birth control and lost 18lbs fairly fast. I also have hypothyroidism and am frusterated because I was told to lose 60 more pounds and maybe I would be able to get pregnant on my own.

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3/2/14 7:51 P

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Hi! I am Melissa. I am 33 years old and was diagnosed in 2008 with PCOS. It took me two years to conceive my daughter. I tried a lot of different things while trying to conceive. The combination that worked was a combination of Menopur Injections and IUI.

I am trying to loss weight right now. I feel tired and wore out all of the time and I really want more energy to play with my daughter. My husband and I are also going to start trying to conceive again in the next few months.


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3/1/14 12:10 P

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Hello :)

My name is Brittany, I was diagnosed with PCOS about 6 months ago. I am currently 23, will be 24 in June. I have a 4 year old daughter. I was never really overweight until I was pregnant with her. I gained about 50 pounds during my pregnancy. I lost a good majority of it right after birth, but soon found myself putting the weight back on over the next few months. I have always had problems with my periods. I have had 17 day long periods before and I have missed a periods for months at a time (longest without a period being 6 months). I have had SO much trouble losing weight, and just realized the cause of it when I was diagnosed. I still do not fully understand PCOS. My doctor did not really give me much information. Most of what I know are from forums like this and random research on the internet. I have spoken to my GYN about different medications, but she has been so hesitant because she says I am too young. I am considering a new GYN. She put me on birth control, which honestly did not help with any symptoms except my irregular periods. I have recently come off birth control, but since I've done that I have had horrible cramps and pains before and during my periods. I am struggling to stay on a good diet. I crave so many carbs, it almost feels like an addiction. I try to stay away, and then I lose control and binge eat. It's so difficult to get motivated. I am always tired and I feel worn out constantly. I suffer from anxiety and depression. I was on two different medications to help monitor those, but I didn't feel myself while taking them. So I was taken off of them. I have refused to take anymore medications for the depression and anxiety because I feel like it is a direct correlation of PCOS. I have never had an issue or illness like this before, and I love being able to go online and find other people to connect with that know and understand what I am going through. I look forward to new friends :)

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2/28/14 7:20 P

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Hi, my name is Sharon and I am 31. I was diagnosed with PCOS in 2011 but it kind of really freaked me out and I have been running from/avoiding dealing with it since then. I have never had a normal/regular menstrual cycle, and I was first put on bc in 98 or 99 when I was 16 for my irregular cycle. I have always had the really unfortunate hair growth for as long as I can remember since puberty too. I was always a size 6 for my entire adult life until about a year and a half ago, and I gained a lot of weight really fast but I was also eating pretty much nonstop. I've lost about 20lbs since October when I finally weighed myself in at 211, so yeah I am about 190 5'7. Not married or even dating right now so conception is not an issue. When I was first diagnosed my doctor thought she was going to have to put me on diabetes medication because my hormone levels were 'post menopausal' but my glucose levels were actually really good and so that wasn't necessary. Not taking any medication for the pcos now.

Sharon


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JMBANDI's Photo JMBANDI SparkPoints: (1,140)
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2/26/14 3:59 P

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Thank you!

"If you always put limit no everything you do, physical or anything else, it will spread into your work and into your life. There are no limits. There are only plateaus, and you must not stay there. You must go beyond them." ~Bruce Lee


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DONEGIRL4LIFE's Photo DONEGIRL4LIFE SparkPoints: (30,875)
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2/26/14 3:43 P

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emoticon I wish you the best on your path!

"We are what we repeatedly do. Excellence, then, is not an act, but a habit"

Aristotle

"Cultivate the ground before planting the seed"

~ Blessings to you~


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2/26/14 3:31 P

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Hi, my name is Julie and I have joined this team because like all of you I have PCOS and I am on a journey to lose weight and to become healthier.

I am 29 years old and was diagnosed about a year ago with both PCOS and hypothyroidism. The diagnoses came after talking to an OBGYN and an endo about me and my husband unsuccessfully trying to get pregnant for over two years.

Hm... some other stuff about me... I am into karate and have a goal to do some form of cardio workout every single day, even if for only 25 minutes. I am entering a healthywage contest this friday with some coworkers to kind of help boost the weight loss - so that's kind of exciting.

I look forward to chatting with you all and to getting and showing support in this group!

"If you always put limit no everything you do, physical or anything else, it will spread into your work and into your life. There are no limits. There are only plateaus, and you must not stay there. You must go beyond them." ~Bruce Lee


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DONEGIRL4LIFE's Photo DONEGIRL4LIFE SparkPoints: (30,875)
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2/20/14 5:46 P

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Congratulations on starting your journeys! Welcome to the team! You will find lots of support here and on SP. emoticon

"We are what we repeatedly do. Excellence, then, is not an act, but a habit"

Aristotle

"Cultivate the ground before planting the seed"

~ Blessings to you~


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BLONDEGIRL04's Photo BLONDEGIRL04 SparkPoints: (3,255)
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2/20/14 5:18 P

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Hello everyone, my name is Angie. I was diagnosed with PCOS in 2002. My doctor suspects I have had it since I was 15 years old. I have experienced the infertility and weight gain that typically comes along with having PCOS. After years of struggling to have a baby I finally gave birth to my daughter 16 months ago. My PCOS has gotten worse since giving birth and although I have taken off about 40 lbs of the pregnancy weight I am struggling to get the rest off which my doctor says I need to in order to improve my PCOS symptoms. I just switched from Weight Watchers to the Atkins diet about 3 weeks ago. I have lost 5 lbs the first week, 7 lbs the second week and am looking forward to weighing in tomorrow to see if I have lost any this week.

I am so excited to have found this forum and look forward to meeting and getting to know everyone.

When you feel like quitting: think about why you started.
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2/18/14 11:08 P

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hey everyone, i was diagnosed with pcos in 2008 but i had all the symptoms since middle school. anyways, it has been hard for me to eat healthy because i crave so many carbs. recently i found out that i am prediabetic and i really want to change my eating habits and reduce my sugar intake. i also want to exercise more. hopefully my symptoms will get better as well.

i am so glad that i found this group because i dont know anybody in person that has this condition, i have no one to talk to about it. i cant even tell my best friend about it because no one knows about what its like.

DONEGIRL4LIFE's Photo DONEGIRL4LIFE SparkPoints: (30,875)
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2/3/14 9:42 A

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emoticon I look forward to interacting with you all on your health journey!

"We are what we repeatedly do. Excellence, then, is not an act, but a habit"

Aristotle

"Cultivate the ground before planting the seed"

~ Blessings to you~


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SELENITYLUNARE's Photo SELENITYLUNARE SparkPoints: (16,509)
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2/3/14 12:02 A

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I was just diagnosed on 1/29/14 with PCOS. I have supposedly had it for 8 years without any form of treatment. I have been married for about 11 months. Absolutely no interest in becoming pregnant but 100% interested in becoming healthier and shedding enough weight to get back into my running.

Challenges for the rest of 2014 (from 9/1):
Burn 3000 calories/week with DDR
ST 90min/week
10% body weight lost by 1/1/15
Complete True Beginner, Core, Recover, and Cardio on DailyBurn
Exercise at least 10min/day for 100 days this year



Our greatest weakness lies in giving up. The most certain way to succeed is always to try just one more time.
- Thomas Edison


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GABBY0913's Photo GABBY0913 Posts: 199
1/31/14 8:53 P

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Welcome to everyone who's new to the team!!! Can't wait to get to know everyone!


Army Wife, Crazy Cat Lady, PCOS Fighter.


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SEML128's Photo SEML128 Posts: 104
1/31/14 4:32 P

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Hi everyone,

My name is Sarah and I am 29 years old. I was diagnosed with PCOS in September, after me and my hubby tried to conceive for 2 years. My fertility doctor diagnosed me, but we think I have had it since I was a teenager. I am currently on my 4th round of IUI (insurance says I have to have 6 failed attempts before IVF). I have been off and on Sparks since 2009.

Good Luck everyone!!

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AWESOMEESH's Photo AWESOMEESH SparkPoints: (1,674)
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1/20/14 3:32 P

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Hey everyone :)

I was diagnosed with PCOS about four years ago, though I've had the symptoms since my early teenage years. I had managed to keep the weight off until this past year. Somehow I was suddenly 30 pounds heavier and could not lose the weight. I don't tend to react well to meds, so I'm trying a low carb diet and increasing my activity level to see if that works. Hopefully it'll work- my energy and mood have been low lately, and I'm pretty sure it's because of the extra weight.

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LUNACORN's Photo LUNACORN SparkPoints: (842)
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1/18/14 12:47 P

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Hello everyone, My name is Lindsey. I was diagnosed with PCOS in 2011, but my OB suspected I had it back in 2008. I have no idea why it wasn't actually diagnosed back then, but it wasn't. My fertility doctor discovered it when I was having such a difficult time getting pregnant with my first little boy. We tried for 2 1/2 years before we had him via IUI. Earlier this year I was put on 1000mg of metformin because my weight kept creeping up and up no matter what I did. I am hoping the metformin plus healthy eating and working out will start pushing the number on the scale down.

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GABBY0913's Photo GABBY0913 Posts: 199
1/13/14 9:14 P

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Welcome everyone!!!

Army Wife, Crazy Cat Lady, PCOS Fighter.


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KACEYSW's Photo KACEYSW Posts: 2,668
1/13/14 1:51 P

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Really glad you ladies are here. Yes, it is an extraordinary struggle and sometimes it feels like we are climbing a slick mountain in ballet shoes, but the journey is worth it. It is worth it because we know we are doing the best thing possible for ourselves to obtain good health and well-being so we can meet the challenges life gives us each day.

You each are so very precious and deserve the best efforts you can give yourself!

Refuse to be beaten by inanimate objects, inflexible minds, and incompetent practices.


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SUGARHIGH23's Photo SUGARHIGH23 SparkPoints: (180)
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1/12/14 2:02 P

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Hi everyone it was so comforting to read all of your stories and see that there are other women going through the same difficulties as me. I am 28 years old and newly married. I have two children from a previous relationship my youngest is 8 years old.

I was diagnosed with PCOS last month, after trying to conceive for the last 10 months with no success. I had my IUD removed last March, and the first 2 cycles were pretty regular then they stopped completely. March to December I gained 45 pounds, and I couldn’t seem to figure out why, nothing had changed in my life or eating habits. Every time I went to my Ob-gyn to discuss my irregular cycles, she would say my weight gain had nothing to do with me removing my IUD. Frustrated I switched to a new Ob-gyn practice.

I also had a few episodes of hypoglycemia over the summer, after eating carbohydrate dense foods. Well on a hunch I had my doctor run a glucose fasting test, and lipid panel. The results were not good; I have high cholesterol, and am insulin resistant. I was put on metformin ER 500mg once a day and I have an appointment with a PCOS specialist in March. I know that metformin could make me ovulate, but I really want to lower my cholesterol, and weight before I am pregnant so we are waiting. I hope to be ready to try again by the fall.

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SPRINGSTEEN3406's Photo SPRINGSTEEN3406 Posts: 2
1/3/14 10:03 P

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Hi, I'm new here though I joined a while back. Im 34, married, and sahm to a beautiful little girl. After, I had my daughter within 2 months I had gained 40lbs. My ob had taken me off Metformin during my pregnancy and I thought I would renew my prescription at my 6 week appointment, but too late I had already put the weight on :( After losing 50lbs to help me conceive I put it back on! Im here to change my life style so I will be around for my daughter and be able to keep up with her. I would love to have a diet buddy for support if any ones interested :)

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BLANKTIES SparkPoints: (313)
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1/2/14 1:14 P

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Hi, I'm Jill. Your story reminds me of mine. I was diagnosed in the mid-90s -- back when few medical professionals had ever heard of PCOS. For the past 18 months I've worked with a personal trainer. Initially we had some success, going from 309 down to 272 at one point. Then life situations, emotions and yes, hormones, all came into play. When we confirmed that I'd regained all weight that was once lost -- the short version? the PT basically gave up on me.

Of course nothing's quite that simple, however she never really understood that my PCOS was always an underlying factor. (Things are very black-and-white in her fitness world: she viewed my weight as the *source* of my other issues, while I know it's really a symptom.) Ironically, since we've mutually agreed to "take a break," I'm much more optimistic about becoming a self-motivated exerciser. I now have 18-months of ideas to use with my home equipment. And yesterday I joined our local rec center.

I've also bought a newer book on PCOS and an reading it again. It promises insights into this journey. (So far the early chapters are reminding me of just how confounding it was to have all these *symptoms* treated by individual specialists without anyone seeing a bigger picture.) It truly does seem like medical understanding of PCOS has advance leaps and bounds since we were diagnosed!

If you're interested in receiving encouragement from another long-time PCOSer, please send me a private message and we can exchange emails. Believing in You -- JB

CNFINNEY87 Posts: 8
1/2/14 11:22 A

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Hi, I'm Candice.
I'm 27 and I was diagnosed with PCOS about 4 1/2 years ago. I am blessed to be the mommy of 2 daughters one conceived while on metformin er. This past year I've put on about 50 lbs and a lot of my PCOS symptoms are getting worse. I have an appt scheduled for February to see the OB-GYN to see about getting it under control. I'm looking forward to eating healthier and getting my weight back down to a healthy level. I'm starting the South Beach diet Monday and I'm looking for a diet buddy.

Be thankful for the blessings you have instead of disappointed in the ones you don't!


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TIGRISH611's Photo TIGRISH611 Posts: 169
12/30/13 5:14 P

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Hi everyone. I used to be on Sparkpeople all the time, but it has been a year or so since I was on here consistently. I switched to the Baby Fit site when my husband & I started trying to conceive in Oct. 2012. I didn't find out until 6 mos. later (ugh!) that I had insulin resistance. I was diagnosed with that in Mar. 2013. I was put on Metformin/Glumetza and started the diet and exercise. Since Mar. 2013, I have lost 28 lbs. - which is AWESOME! But, so far the weight loss has not regulated my VERY irregular cycle or helped with my fertility. No cycle, no ovulation. So my OBGYN did 3 rounds of progesterone and clomid to try to conceive. Not until the 2nd round of clomid did my OBGYN say "PCOS". We did follicle scans to try to prepare to do and IUI procedure. My follicles wouldn't grow to the right size even with the medicine. So this month (Dec 2013), my husband and I decided to stop the rounds of clomid/scans because they were too expensive and we couldn't afford it anymore. So now we're focusing on losing the rest of the weight and getting healthier and trying on our own and putting in God's hands. I haven't done so well because of the holidays, but I am resolving to lose the rest in the new year. :)







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DOBHRAN3 Posts: 9
12/30/13 4:02 P

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Hello!

I have been away from Spark People for several years. Recently I had a rapid weight gain that frankly scared the heck out of me. I was diagnosed with PCOS in the late 1990's. I know I can not do this alone so here I am. At least now, my weight is heading in the right direction.

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L3GIRL's Photo L3GIRL SparkPoints: (2,806)
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12/30/13 1:22 P

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Hello everybody. I was diagnosed with PCOS about a year ago. At first, I didn't adjust my lifestyle because, frankly, I was too depressed about the possibility of not being able to have children. I have now gotten past that and my meds are finally where they should be. I have lost 25 lbs without changing my eating habits. However, it is time to get serious about getting my life back so here I am!

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DONEGIRL4LIFE's Photo DONEGIRL4LIFE SparkPoints: (30,875)
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12/29/13 12:51 P

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Hello again everyone,

I am rejoining and resetting my goals after being in a dark hole the past few months. I have been very depressed about this baby and weight loss issue. I worked out very hard after stopping prozac and did not lose any weight/have a menstrual period from 11/2012-11/2013. I have climbed out of the rubble and ready to tackle this weight so my dreams of becoming a mother will be realized. Here are my stats.

Diagnosis: PCOS 2003, celiac disease, and severe food allergies to corn, peanuts, chicken, soy, Optimal cholesterol, BP, sugar, A1C, and triglyceride levels
Current weight: 350.4lbs
Current medications: Metformin 2000 mg/day, multivitamin, Co-Q10, B complex, Vitamin D, Fish oil
Current weakness: Sugar, nacho cheese and nachos, buttered popcorn, Cheese

I am getting back on track with my workouts and eating. I plan to a modified paleo diet with raw foods (fruits, vegetables,nuts, and seeds) throughout the day. I am doing strength 4 times a week and cardio 7 days a week. It is nice to meet you all and good luck with your endeavors!

"We are what we repeatedly do. Excellence, then, is not an act, but a habit"

Aristotle

"Cultivate the ground before planting the seed"

~ Blessings to you~


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GABBY0913's Photo GABBY0913 Posts: 199
12/16/13 11:38 A

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Welcome, WANT2FEELPRETTY! Go ahead and snoop around the other forums; you'll find lots of information and helpful tips. I'm recently beginning to tackle my PCOS in a natural form, with all natural eating and exercise. If you have any questions, please feel free to contact me!

Army Wife, Crazy Cat Lady, PCOS Fighter.


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WANT2FEELPRETTY's Photo WANT2FEELPRETTY Posts: 1,174
12/16/13 11:24 A

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Hi. I'm new here. I don't have PCOS but my daughter, 14, has been diagnosed. I'm here to find support for her as to what to say etc. I had a friend that was diagnosed almost 20 years ago so I'm going from memory in how she dealt with it. We are now on this journey together. I have always watched what she ate. Reminded her not to eat too much of something and have exercised with her. She also has an appointment with a nutritionist coming up. Lots to figure out here.

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11/15/13 1:48 P

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Hi, my name is Danielle Potts I am 26 years old and I have PCOS. For a while I had no idea what was going on with my body but right out of high school I couldn’t afford my birth control and that’s when my periods completely stopped and I went from being 115 pounds to almost 200 in a very short period of time. Finally after 2 years with no period, no weight loss, crazy moods, embarrassing hair growth, depression, and wanting to start a family..I decided to go to the doctor. Well that did not go over well because she was very rude and treated me like I was just some FAT loser. Yes she used the word fat over and over again, “you are just fat, and you need to lose the fat”. I left the doctor’s office in tears, it’s not like I sat around all day and when I gained all my weight I didn’t have a car at the time so I walked everywhere including the 3 miles to work and 3 miles home but she wouldn’t listen to a word I had to say. My mom helped me by looking up my symptoms on the computer and found a couple things but PCOS stood out to her. So we went back to that doctor and shoved our information at her and told her to just refer me to someone else and I will not be coming back to her. That is when I found my awesome doctor, Celestine, she helped me with so much..I am so grateful for finding her. By the time I got to her my body was so out of whack, she said that she does not see a baby in my near future but we will work our hardest to reach that. I got on birth control and metformin to try to regulate things and I was feeling pretty good for the first time in a long time. Finally she put me on clomid so that my husband and I could start the process of trying for a baby. I went to see Celestine about once a week so we could keep an eye on whenever my body would be ready for the shot I would have to get to help me ovulate. I went in to see her on a Friday and did the normal ultra sound to check things..Celestine had the look of disappointment and said that it is very far off and would probably have to try again next month but I did have one more appointment for the month which was on Monday, just a couple days away. I tried not to let any of this get to me..I kept telling myself that I won’t give up but I also won’t let it ruin my life. I went in to see Celestine on Monday to get the routine ultrasound and all of a sudden Celestine got excited and said “I don’t how this happen but we need to do the shot today!” I ran to purchase the shot from the pharmacy and came back to get the shot right in my butt. I did everything I needed to do but I was very calm about it. A couple weeks later I went in to see if I was pregnant and by some great surprise/miracle I was pregnant! I cried so much out of happiness and Celestine even cried with me. She kept a close eye on me through my whole pregnancy since I was high risk and now I have a beautiful 3 year old..She is my little miracle. Now here I am just taking it day by day with my family, some days are better than others but I look at my daughter and just keep moving forward. I don't really have anyone to talk to about PCOS so I am still kinda lost on how to lose the weight and stay healthy.

Edited by: JOHANNASMAMA at: 11/15/2013 (13:50)
NISHA2009VC's Photo NISHA2009VC SparkPoints: (218)
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11/13/13 12:43 P

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Hi Anjin,

I am in the same boat as you. Trying to conceive to trying to bring down my weight.

Nisha

Nisha

Variety is the spice of life ;)


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NISHA2009VC's Photo NISHA2009VC SparkPoints: (218)
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11/13/13 12:30 P

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Hi,

I got diagnosed with pcos at 18 yrs. Had irregular periods since 15 yrs old. Due to PCOS over the years, I developed several health problems like blood pressure, diabetes(insulin resistance),blood clots in lungs and leg(birth control pills to regulate period, duodenal ulcer a.k.a internal bleeding,fertility problems.

I started my weightloss journey this year after realization that I may not live if this continues any further. I was at 232 pounds at the beginning of this year, now at 210 pounds. Continuing to eat healthy.

My aim is to get to 150 pounds one day and be healthy to lead a normal life.

Nisha

Variety is the spice of life ;)


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11/7/13 8:16 A

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My name is Theresa. I was diagnosed officially about a year and a half ago. Unofficially, I was diagnosed almost three years ago. I have tried Metformin, NO HELP. I have tried the different hormone birth controls, NO HELP and MADE ME SICK. Now, I am trying myself. I gave up on the doctor coming up with a plan that works. I was told there is the option for weightloss surgery, but HELLO it costs money that I do not have. Now I am back where I started, just have a name that goes with it.

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KINASMOMAZ's Photo KINASMOMAZ Posts: 91
10/30/13 5:53 P

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Had a follow up appointment today with my doctor and she did put me on the metaformin (think that is how it is spelled)

My gluclose levels are good so she had to give me a machine to make sure that they don't fall too low. Hoping this helps me loose weight!!

I've been on my diet and exercise plan a while now and no results. Praying this is the miracle I've been wanting emoticon

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VERO_DEN's Photo VERO_DEN Posts: 296
10/28/13 8:24 A

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Hi everyone! I have been lurking on this team for a while and totally forgot to introduce myself....I think. I have been diagnosed with PCOS for about 3 years now, but I had it longer than that. I recently underwent an endometrial biopsy and found that I have simple endometrial hyperplasia. I have lost a little over 50 pounds this year and I am no longer insulin resistant...the only medicine I have to take now is birth control to try and fix the hyperplasia. I have been married for a little over 4 years and we aren't TTC, so that's good because I can focus on my health. It's nice to meet all of you and can't wait for each other's support.

emoticon

When friends tell you how awesome you look, drop the "I still have more to go" crap. You worked hard and you deserve the compliment! ~Jillian Michaels


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JWHITEHEAD05 SparkPoints: (1,411)
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10/27/13 11:27 P

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Hi. I'm 26 years old and was diagnosed with PCOS November 2012 and thyroid problems July 2013. I take Metformin ER twice a day. My husband and I have been married for 8 years and have been TTC since we got married.

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STELLASPIKE's Photo STELLASPIKE Posts: 16
10/20/13 3:44 P

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I was Diagnosed with Graves disease and PCOS this year. The combination of the two complicated my plan of action.But yeah, 39, dealing with my infertility, and my hair loss, and my beard, and my weight....


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KIMMA34's Photo KIMMA34 Posts: 91
10/20/13 11:58 A

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Hi,

New with PCOS. Struggling to lose weight and I have other problems related to PCOS too. I need help! What should I do to lose weight with PCOS??

-Kim

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10/18/13 1:36 P

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Hello, I'm Crystal and I was diagnosed with PCOS about a month ago but I have had problems for at least a year and a half but probably longer.

Having been recently diagnosed I have a lot to learn, and I have learned quite a bit already. I am currently on birth control, but after researching more about it, I don't want that to be my permanent solution. I am looking for ways to try to treat it more holistically.

I am amazed at how many women I know that have this. It is good to have a better idea of what is going on with my body when for so long I thought it was something I was doing wrong with diet and exercise (which always has room for improvement..!) while fighting off intense cravings for sugar and carbs. I always thought everyone has that problem, but the more I read about insulin resistance and the problems other women have I realized that it happens because of the hormonal imbalance.

Anyway, a friend and I started a blog to talk about some of the things we have tried or are trying, and what works, what hasn't, our feelings and frustrations, and we have plans to create recipes suitable for women with PCOS.

We would love to hear your thoughts and experiences! Glad I found this team. I have used spark people on and off for several years, and I do love this site and I need to take advantage of it more.

Nice to meet you all. :) endurepcos.blogspot.com/

Edited by: -LIVE- at: 10/18/2013 (13:39)
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10/17/13 1:22 P

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Hello everyone:

My name is Laura and I have had PCOS since I was 11 years old. I was diagnosed right away. I have been on birth control pills for fourteen years. Fertility issues run in my family and many of my cousins have had to rely on numerous fertility treatments to conceive.

Having a child is s figment of a goal right now, as I am focusing on getting my weight down. I have struggled with my weight for years. My doctor just put me on Metformin and I hope it is the boost my body needs to help maximize all the other things I am doing for better health.

I am glad that I found this group and look forward to interacting with you.

Laura
(anjinsgal)
emoticon


Edited by: ANJINSGAL at: 10/17/2013 (16:45)

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KINASMOMAZ's Photo KINASMOMAZ Posts: 91
10/17/13 12:36 P

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Hi ladies!

I'm new and its comforting to read your stories and know that I now how a group I can reach out to. I was diagnosed in 2009 with PCOS. I never had a regular cycle when I was young and at age 21 (2004) I started taking birth control. It wrecked my system!!! By 2009 I decided to have the essure procedure as permanent birth control thinking it would fix me... NOPE!! And not to mention I ended up getting divorced and I'm about to remarry in March 2014 and my fiancé wants children. He understands the procedure that I had and we have done research to find out that its reversible, so hopefully when that time comes that will be corrected without a hitch. My issue now is weight. I'm a very small frame person and about 40pounds overweight for my frame. When I started taking BC I was 105lbs and 17% body fat.. within 3 years I had gained about 30-45 lbs. And became and still somewhat am depressed about it. I would 5-7 days a week for 30min to an hour and I eat well and my weight is just staying the same. I'm trying to find a good doctor in the Brandon, Florida area so I can see what I can do about my weight. Wish me luck ladies!!

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GABBY0913's Photo GABBY0913 Posts: 199
10/10/13 9:59 A

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As much as I hate that any of us are going through this, I must say it's comforting to not be alone. I was diagnosed about two months ago, and I go back to the doctor later this month. My husband and I have been TTC for about 3 years now and when I was two months late on my period we thought we finally did it. Took pregnancy tests - negative. Went to the doctor - negative. All my PCP could tell me was I had cysts and to see my Gyno. I went, and she was skeptically that PCOS was my issue, but still gave me information on it. She told me three main symptoms: missing period, acne, and increased facial hair. Well, 1st one was on point, but I always had acne (never got better, never got worse) and my hair is jet black, so I was always self conscious about facial hair and got it removed. "Well, then that's probably not your problem. Come back in a few months." I felt like I was being a bother to my doctor, told myself it wasn't PCOS, I was "just fat, or didn't try hard enough", and fell into depression. A couple weeks later, my feet and ankles began swelling (they had before, but not to this extent); everyone kept telling me I was diabetic and go to the doctor. I was scared out of my mind. I never put any of my symptoms together until a friend of a friend (who has PCOS and a beautiful baby boy - there is hope!) told me about her struggles and said that she was prediabetic when she was diagnosed with PCOS. Even though that scared me more, it was good to know that everything was related. I called my doctor, told her about my newly found symptoms, and was officially diagnosed. She believes I've probably had it since high school or before, but because I got on birth control at 14 we never knew. My husband has been extremely comforting through all this but I'm still worried that our chances at a family are ruined. Right now I'm focused on getting healthy, losing weight, and getting our life settled, but we're still not using birth control, just in case.

I'm so thankful to have found all of you. Good luck!

Army Wife, Crazy Cat Lady, PCOS Fighter.


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BBANKSTON08's Photo BBANKSTON08 Posts: 4
10/5/13 4:24 P

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I was just diagnosed with PCOS on Tuesday. I started having lots of problems about 4 years ago, but due to me not having insurance I couldn't get any tests done to see what the problem was. The doctor at the health center put me on birth control to try and ease some of the pain. Last July (2012) I went off the birth control because of some heart concerns.

Since then I have only had 2 menstrual cycles. This May (2013) I graduated from college and in August (2013) I started my new job which offered great health insurance. My girlfriends really encouraged me to go see someone. And so in mid September I went to an ObGyn.

I was really nervous. I want nothing more in life than to have children. I was so afraid that the doctor would give me bad news. She ordered labs and had me reschedule for an ultrasound. When I went back I was so afraid. When she came in after she was really nice talking to me about my options.

The past few years I have tried to loose weight but really struggled with it. I need to make this an upmost priority for health and fertility reasons. I am still a little in shock and I don't think that it was really sunk in yet. I know that I need support not only to loose this weight but also to face PCOS.

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10/3/13 7:40 P

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Hey everyone!!

I was diagnosed with PCOS November 2012. I have always struggled with weight problems since I was a teenager. I started having menstrual problems about 5-6 months after getting married. My period completely stopped and I did not know why. I saw two different doctor's who ran blood work and ultrasounds and neither one could tell me what the problem was.

My husband and I have been married for 8 years and have been trying for a baby since we got married and have had no success. I went to the doctor November 2012 due to allergy problems and talked to her about my problem. She was willing to find out what the problem was and to help me. I was diagnosed a week later and was put on Metformin. I had bad stomach and GI problems so was switched to Metformin ER 4 months ago. I have lost 27 pounds so far and am still hoping that one day I will be called mommy.

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TAMARAKH's Photo TAMARAKH Posts: 32
9/27/13 3:04 P

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Hi ladies!

I was diagnosed with PCOS this week, though I suspect I've had it since I was a teenager. I have never had regular periods, except when I've been on birth control (although I haven't had ANY periods since I started using a Mirena IUD five years ago--woohoo!), and I have basically gained 10-15 pounds per year since I started puberty. I've also been found to be insulin resistant, which is a fun twist on my life, huh?

I have always struggled with my weight and have never really understood why. I went to the doctor recently, wanting to figure out why a) I don't sleep well, b) I am always exhausted, and c) I have so much trouble losing weight/keeping it off (I lost 30 pounds using Body by Vi products last year, and have subsequently gained 20 of them back. Story of my life). My sister-in-law was recently diagnosed with a low-functioning thyroid, and her symptoms sounded like mine, so that was what I went in to have tested, in addition to getting a sleep study to see if I needed a CPAP machine. I did a little bit of research about hypothyroidism, and found that irregular periods can be a symptom, so I mentioned that, along with the rest of my list, to my doctor. He immediately thought of PCOS and did blood tests for insulin resistance and had me see my gyno to confirm (well, as much as it can be confirmed, apparently).

As it turns out, I do need a CPAP to help me breathe while I sleep, and I do have PCOS. Consequently, I need to drop a whole bunch of weight, as the term "pre-diabetic" was dropped and basically scared the crap out of me.

I can't even begin to say how happy I was to find this group here. I used to be very active on SP, but veered away from it a while ago. I'm happy to be back and hopeful that this group will help me find the motivation and information I need to take on this new obstacle in my life. Thanks for being here, guys :)

Tamara

Story of my life:

"Do not wait; the time will never be 'just right.' Start where you stand, and work with whatever tools you may have at your command, and better tools will be found as you go along." --Napoleon Hill

"Satisfaction lies in the effort, not in the attainment. Full effort is full victory." --Mahatma Gandhi

"If I can get my chunky butt moving, so can you. Just get up and do it!" --Tamarakh :)


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KACEYSW's Photo KACEYSW Posts: 2,668
9/22/13 12:29 A

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Stacey, Haley, and Ferretgirl:

Thank you for joining the team. Know you are welcome and appreciated here. There are many great threads that have tons of information you may find helpful.

Have a great weekend!

Refuse to be beaten by inanimate objects, inflexible minds, and incompetent practices.


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KACEYSW's Photo KACEYSW Posts: 2,668
9/21/13 1:51 A

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Hi Becca! We're glad you are here! We are a very supportive group and work hard to help each other! Know you are valued here!

Refuse to be beaten by inanimate objects, inflexible minds, and incompetent practices.


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FERRETGIRL28's Photo FERRETGIRL28 Posts: 113
9/16/13 7:48 P

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Welcome to the team Becca :)

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BAN0923 Posts: 1
9/16/13 4:40 P

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Hi,

My name is Becca and I was just diagnosed with PCOS a little over a month ago. However, I think I've had it a while before being diagnosed. They put me on metformin and spinolactone, but I couldn't stand the side effects. I would welcome any tips on how to lose weight, or just someone to talk to about it. Since I'm so new to PCOS I'm still learning about it, and what this may mean for my future.

FERRETGIRL28's Photo FERRETGIRL28 Posts: 113
9/12/13 5:51 P

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Hello everyone,

I am brand new to the team....I was diagnosed with PCOS in 2008. Since then, I have been on birth control to regulate my periods, but nothing else. I tried taking Metformin for a while, but the side effects were so bad I could not live with them. I am now 36, still trying to lose a lot of weight, and trying to come to terms with the fact that I will probably never become a mother (not solely because of the PCOS, but just the way things in life worked out). This is very difficult for me to accept, but I'm getting there. I've never really talked to any other women with PCOS and weight issues before, so I am hoping by joining this team to meet some new friends that understand what this struggle feels like.


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HALEY79's Photo HALEY79 SparkPoints: (65)
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9/10/13 3:50 P

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Hello,
I am new here. I am 34 years old and will be celebrating my 10 year anniversary on 9/19/13 in the Bahamas. I was diagnosed with PCOS in 2003. It took 4 years to have my daughter after 3 miscarriages. She was conceived using Femara 7.5 mg and HCG trigger on 12/25/2006. She just turned 6 years old on 9/7/2013. We started trying again when she was 1 years old and have been trying ever since. We did manage to get pregnant in August 2009, but unfortunately that ended in miscarriage as well. I recently had Lap Band surgery on 2/28/13 and have lost 50 pounds so far and I now weight 179. I would like to lose 39 more pounds. I am really hoping that my weight loss will help me conceive again. Three weeks ago I had a positive pregnancy test, but ended up being a false positive or something, because blood came back negative. Needless to say I was really upset about it and I still am. I am not presently on anything to help me conceive and I am believing that God will bless us again. Anyway, that is pretty much my life story. Right now I am trying to focus more on my weight loss and keep the wanting a baby really bad off my mind.

STACEY_MD SparkPoints: (2,900)
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9/9/13 11:49 A

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Hello, folks.

I'm very much looking forward to reading through this forum to hear all the experiences of other people with PCOS.

I was diagnosed with PCOS my freshman year of college, way back in 1997. They didn't have too many treatments for it at the time and since I was young and invincible I pretty much ignored it. It was honestly pretty nice to not have to deal with getting my period every month, but in hindsight I wish I hadn't taken that course of (in)action.

After college I went to an OBGYN who also specialized in endocrinology and her answer was to put me on birth control without delving any deeper into the issue. I was on the pills for years and while my period was back and my skin cleared up, I was never successful losing weight over a sustained period.

In November 2012 I was admitted to the hospital with a pulmonary embolism (blood clot in my lung). I spent a total of five days in the hospital over two separate trips, and I'm still on blood thinners to eliminate the clot (it was pretty huge, the doctors couldn't believe I was still walking around with it).

It was really tough going through that, but it turned out to be a blessing. After running a number of tests it was concluded that the source of my blood clot was my birth control pills and I was forbidden from taking any hormonal BC ever again. I was referred to an absolutely awesome endocrinologist who explained to me the different ways to treat PCOS and how it's not a one-size fits all. I've now been on metformin since January and for the first time in my life, I'm able to lose weight without it being a constant struggle. I still have to put in the effort of course, but a lot of times before I'd put in the effort for awhile, not really see any results, and get so frustrated that I gave up.

I got married in June and am hoping to begin trying to get pregnant next year. It's anticipated that I'll be on blood thinners until January and I've been warned over and over not to get pregnant while on them, and in February I turn 35. So I will find myself next year as a 35-year-old with PCOS and a history of blood clots trying to get pregnant. It won't be easy I know, so I'm working my hardest to get in the best physical shape possible between now and then to give myself the best chance.

I didn't intend for this intro to be so long but if you made it this far, thanks for reading! I look forward to getting to know this group.

You may delay, but time will not. --Benjamin Franklin

KACEYSW's Photo KACEYSW Posts: 2,668
9/8/13 11:52 P

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Welcome, Teresa! Know we are very glad you are here! Feel free to ask questions, follow different members, friend people, and participate however you feel most comfortable.

We appreciate you!

Refuse to be beaten by inanimate objects, inflexible minds, and incompetent practices.


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4MYHEALTHYHEART's Photo 4MYHEALTHYHEART Posts: 11
9/6/13 8:42 A

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Hello all,

I am Teresa. I am 29 and was diagnosed in 2007 while trying for a 3rd child with my ex-husband. My husband and I have been not trying to stop pregnancy for 2 years now and I am almost to the point where I am ready to give up and just be happy with his and mine and never having a ours. Lately the syptoms have become worse and harder to deal with so I am ready to go back on the pill to control all of that.

Teresa

Plugging along one day at a time!


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KACEYSW's Photo KACEYSW Posts: 2,668
9/4/13 12:04 A

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Hi Christine! Welcome to the team! Know you are appreciated and valued here. We are a community of sisters who share this unique disease and support each other fully! Feel free to share and ask questions. We are all here to help!

Refuse to be beaten by inanimate objects, inflexible minds, and incompetent practices.


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8/28/13 7:25 P

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Hello everyone.
My name is Christine. I am married with a 5 year old little girl. I haven't been heavy my whole life. I only started struggling with my weight after I got pregnant. I am trying to get back to a healthy weight so I can enjoy a long and happy life with my family
I was 189 in June and am now down to 166. Hoping to get down to a healthy weight by my family vacation in February.

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