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ORANGE81's Photo ORANGE81 Posts: 245
9/6/12 5:48 P

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Ben back for 2 days and it is very sore and now i have a headache listening to staff complain. I work with the disabled folks, adults. I do paper work, consumer care, like help people eat and we work in the ladies room etc. We have stand pivot transfers, and mechanical lifts to help us change folks. But lots of times even using proper body mechanics you need to pull them up in their wheel chairs! No way to do it without it pulling your lower back. Or it could be I am 5'3" and those big powered wheel chairs are high up. So I push and pull manual wheel chairs. Been there 19 years and the bathroom shift is only 30 minutes 1 time a day not to bad. Light duty means no pushing,pulling and lifting or take downs of any type or bathroom coverage. So I should get 2 months of that. I know I will get through it pain or not because I did it before and that was with out some pain medications.Thanks for your support

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WELLS2000's Photo WELLS2000 Posts: 5
9/6/12 12:46 P

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Ouch! Sorry to hear you had to go back to work before you were ready to. I know that has to be a killer. What kind of job do you have? Hopefully it isn't something too physically intensive. I know how hard it is. I work a lot too. I am fortunate though to be able to mostly go at my own pace. When it was reading your post, it struck me that it seems like doctors never seem to all have the same answers. Makes me wonder if some of them make things up as they go. ha ha

I never had anyone tell me that I could not expect my surgery to get my pain free. The only thing I got was that it was a roll of the dice. Some people end up pain free, some end up worse, and the rest fall somewhere inbetween but there was a chance it would fix me. If they had told me what you were told, I would never have bothered.

Hope today isn't too hard for you and that you start feeling better soon.

ORANGE81's Photo ORANGE81 Posts: 245
9/5/12 6:33 P

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You two ladies cracked me up with the walk a mile in my shoes. So true. I have been at this between my back and neck over 5 years. My neurosurgeon, in his 40's, has a younger partner who just told me after 14 weeks of being home I could remove the brace and I need another month and a half at home. I cried and said I wont have a job and to cobra my insurance is over one thousand dollars a month. I can't pay that even if I wasn't on disability! So I returned to work first day today. Lots of pain. Let me get back to why you made me laugh because I "really", "seriously", thought the pain would be leaving and the young doctor said to me I am so sorry that you thought you would be pain free didn't you know most cases of back surgery after it's done you still have the same pain? I said no you fixed it with the fusion and the rod and your screws and he was like that was just to prevent more nerve damage and to keep you walking. I am so sorry again that you thought you would be pain free afterwards. I still have so much pain in my back and can not at times seem to unhinge my back and stand straight. Never mind the lack of sleep from those nerves. They maxed out my Gabapentin and gave me 2 scripts for pain killers. Hopefully the nerves will some day be better or fixed and I hope like the doctor said the pain will decrease some over time. But I am glad I can walk and if I need pain medication to function I will take it because neither of my doctors have this and unless you do you can not imagine the pain and how hard it is to get threw a day sometimes. I am glad I had the younger doctor because the surgeon was like oh she should be ok and deal with the pain, so you are so right ladies they need to walk in our shoes. I am glad there is this site to help with a healthy lifestyle in all kind of ways. I also wish you both much luck with everything.Must go get a few minutes of exercise now!

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WELLS2000's Photo WELLS2000 Posts: 5
9/5/12 12:24 P

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The doctors did not so much quit giving me pain meds. It was more a choice I had to make. I needed to either keep my husband or give up all my medical benefits. Either one was certain to be painful! ha ha When I divorced and lost my benefits, my pain management doctor had already done a neuro stimulator trial and wanted me to have one implanted. I was freaked out by the thought of another back surgery. My fusion did not go well. So, I guess mostly I CAN live without any of the pills though some days it is horrific to have to do. I work 6 days a week and have been unable to get benefits through the company I work for but I have hope that I may remarry. That would be nice.

You said you were doing ok until 2 years ago and then you had problems. May I ask what happened? Sounds like you have quite a story to tell. I was floored when you said you have been on pain meds since you were 13. Bless your heart. I can't even imagine. I have only been dealing with this for about 7 years and it feels like an eternity. And for note, I don't think you were being mean about wishing the doctors could walk a mile in our shoes. No one really gets it until they have to live with it. Of course, maybe I'm just mean. I would have wished childbirth on my ex-husband, as well.

ONBEACHSIDE's Photo ONBEACHSIDE SparkPoints: (58,604)
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9/4/12 6:55 P

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From your reply, it sounds as if the doctor stopped giving you any pain medications, do you still need them? I know I have required them since I was 13. I am now 47. Until two years ago, when I got into very serious problems, I managed to keep doing my life on Darvocet N-100 (now off the market). I never became dependent on them. I averaged 1-4 a day without never going up over all those years. Too many doctors.IMHO, are more worried about the DEA coming down on themthan the pain their patients are in. Have you discussed the pain with your ortho or neuro? If they won't help, what about your family doctor? I know it can be very hard in this day and age and it shouldn't be. I hate to be mean, but I wish that these doctors had to experience the pain that they tell us to "grin and bear it". It would change their perspective.

You probably do have a good basis on which to move having had three rounds of PT. Do take it slowly and take care.

Enjoy life when you can, as life changes when you least expect it!!!


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WELLS2000's Photo WELLS2000 Posts: 5
9/4/12 6:44 P

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Thank you for the welcome and the good advice. I will take it to heart. I have been through physical therapy 3 times so I am well versed on do's and don't. Lol the positive attitudes I am seeing here are inspiring and appreciated. On bad days I sometimes need a little extra reason to make myself get up and move. Hope you have great success.

WELLS2000's Photo WELLS2000 Posts: 5
9/4/12 6:39 P

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Thank you for the advice. I have gone through 3 separate rounds of physical therapy so I have a lot that I have learned that I can draw from. I was getting back on track for a while after my fusion but unfortunately found myself with no medical coverage and no pain meds. While I never had a problem with addiction, it sure made things more bearable some days. I think starting small is exactly what I need to do. I am used to trying to go all out and I just cannot do that anymore. I am glad to hear that you are overcoming despite the difficulties. Thanks for the welcome and best to you on recovering.

ORANGE81's Photo ORANGE81 Posts: 245
9/4/12 6:08 P

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Hi Brenda, I had my neck fused and my lowest disc in my back and not 7 months later the scar tissue so they said turned out not to be there and they put a rod and screws in for spinal stenosis and I have some major nerve damage and today at the doctors appt. he can't say if it will ever go away. My friend at work says he knows I am a autobot of some sort. lol. I agree with Kimberly pt,and tracking. I also started Spark People and left and gained weight so I am back as it does help my back to be lighter. But when I first started I drank water and wrote everything down too and then started tracking food and cutting back I just couldn't do everything at once. Don't overwhelm yourself. I can walk 30-35 minutes in the woods and my doctor said the same thing as Kimberly when you feel the pain stop. Good luck and welcome

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ONBEACHSIDE's Photo ONBEACHSIDE SparkPoints: (58,604)
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9/4/12 4:23 P

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Hi Brenda, welcome to the team. I do believe that the added weight makes it much harder. First off, try to think of losing weight as important step to being healthy not to looking attractive. If you approach it more as an important step to gaining a healthy lifestyle, you will probably be better at it. Do not make things off limits, just reduce the amount you are eating. I started off by not restricting anything but logging everything I ate into the nutritional trakcer and what my activities were into the fitness tracker. After a week or so, I examined were I could start making easy changes to both diet and fitness. Keeping things gradual is far easier to incorporate into your life.

The next question I have for you is have you had PT? See if you can get PT from your doctor for PT doing swiss ball, pilates and core work. This should give you a good starting place. The reason I suggest PT is do to your fusion and possible pain. A physical therapist should be able to make sure you do not injure yourself. If financially this is not possible, just be very careful about keeping your core engaged and keeping your body aligned. Start out by walking and gradually speed it up. The main thing to remember in both exercise and food, is moderation. Don't change anything quickly. It could injure you with exercise and cutting too much food too quickly will make it harder to stay with it.

I hope that you can get back to your old life or even a better new one. You can find support on this team as with other teams. Best of luck.

Kimberly

Enjoy life when you can, as life changes when you least expect it!!!


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WELLS2000's Photo WELLS2000 Posts: 5
9/4/12 3:52 P

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My name is Brenda. I was in a rollover in 2005 which resulted in two ruptured discs in my back and one in my neck. I had a spinal fusion in 2006 (which I wish I could take back honestly) and at times I feel like I will never be right again. The weight just keeps packing on and the more I gain, the harder it is to get around. Any help would be unbelievably appreciated. I want so badly to find a way to get my life back, or at least start a new one I can be happy with.

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