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WHIMSYM's Photo WHIMSYM Posts: 10
12/11/17 6:27 P

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Thank you so much, this is very helpful and welcome information to hear. I want very much to do whatever I can to improve my kidney function and keep them healthy! I have only been seen by general practitioner and an ER Doctor, neither of whom seem very interested in exploring much further than admonishing me to drink electrolytes and "give it time." Thank goodness for the floating MD who triaged me into the ER, giving me the needed "extra symptom" to get through the door, or I would have had complete kidney failure. She listened and observed, and then followed up with labs for concerns that were GI-related, and even sent full print-outs of all the results with explanations. Unfortunately she is not able to accept regular patients as a "floater" but seeing the difference in attitude in her, I am now on the long search for someone similar as a regular general practitioner.

I do have a life-long medical condition. low blood pressure, that can be quite dangerous in terms on not getting enough oxygenated blood to the brain, heart, muscles and major organs, so that does impact my sodium needs. But, I will work on incorporating reducing my "normal high" sodium needs with the renal balancing diet of lower potassium, etc. Still on a steep learning curve, and having to learn as I go how diet changes impact my overall health as well as kidney health, but it is a journey I am committed.to.

Would love to hear more about everyone's diet choices and results, and I can now totally related to "feeling it" when I eat the wrong stuff (learned the hard way to avoid frozen dinners, OMG, and am trying to develop easy alternative recipes).

Thanks again, for "sparking" me on to looking further, learning more, and making on-going changes!

Do not seek to follow in the footsteps of old; seek what those of old sought. Basho


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I.M.MAGIC's Photo I.M.MAGIC Posts: 13,116
12/5/17 2:10 P

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I'd be concerned too, so I don't blame you for wanting to be cautious. Do you see a general practitioner?
Your age does not really have anything to do with your GFR. 57 is NOT normal for ANY age unless you've been chronically ill. I have a friend in her 70s and her GFR is 83. She has CKD, too, but with a strict diet and the right kind of exercise she keeps her numbers up. She told me once that if she eats the wrong stuff even for one day, she can feel it... so I'm thinking if it were me I would take a closer look at the Renal Diet for Beginners, and start following the guidelines there.
It won't hurt anything to try, and may help your kidneys recover quicker...

Keep us posted how things go!...
Kathy emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!
P.S. I looked up enthusiasm, and it says the root words mean God within... interesting...!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in si


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WHIMSYM's Photo WHIMSYM Posts: 10
12/3/17 10:56 P

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I'm tracking kidney function after an infection sent me to the hospital, and my learning curve has shown me that I may have other indications of possible chronic renal disease.

January 2016: low test for Vitamin D (8ng vs. normal range = 20-80) so Dr. Rx'd supplement
"normal for my age" test result for GFR of 57
January 2017: low test for Vitamin D (15 ng) but plan to re-test in summer months
"normal for my age" test result for GFR of 53
August 2017: mid-range result for Vitamin D (42) w/2hrs/day gardening
November 2017: ER/Hospital admit with 15 GFR and kidney infection with sepsis (atypical symptoms; one minute fine w/no symptoms, the next with hard chills for 2 days - thought it was flu and waited two weeks until I realized it was not - with nausea throughout, but no vomiting). After three days hospital with antibiotic and electrolyte IVs, discharged at 25 GFR with additional antibiotic pills. Two weeks later, GFR was only 27.

Doctor says it is normal for kidney function to come back slowly when infection/sepsis was this severe, but I admit I am worried there may be permanent damage or underlying chronic failure issues. Am not to re-test until end of December. No diagnosis of Chronic or Stage to date, but the GFR speaks for its own self ....

I'm working on learning and keeping to Renal Diet, perhaps for life, no matter if even the GFR rate gets back to "normal." Since I had no UTI or Kidney infection symptoms that would have distinguished it as Kidney related rather than flu-related, I know that I will need to always be aware, and ask for annual tests, with as-needed tests if I start to feel ill.

Accolades to all who are managing chronic conditions.

Edited by: WHIMSYM at: 12/3/2017 (23:03)
Do not seek to follow in the footsteps of old; seek what those of old sought. Basho


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I.M.MAGIC's Photo I.M.MAGIC Posts: 13,116
2/19/17 1:38 A

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There has been some tweaking done--again!-- on the stages of kidney, so here are the new parameters:

Stage 1 = normal kidney function = GFR 90+
Stage 2 = mildly reduced function = GFR 60-89
Stage 3A = moderately reduced function = GFR 45-59
Stage 3B = moderately reduced function = GFR 30-44
Stage 4 = severely reduced function = GFR 15-29
Stage 5 = renal failure/dialysis = GFR less than 15

As you can see, there is a new "half stage" included... not sure what purpose it serves but they must have a reason... LOL

Kathy

Edited by: I.M.MAGIC at: 2/19/2017 (01:41)
"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!
P.S. I looked up enthusiasm, and it says the root words mean God within... interesting...!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in si


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BELLAMEMAW's Photo BELLAMEMAW Posts: 8,043
2/18/17 2:56 P

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My GFR is at 57.1 and, while that isn't 'bad', it was at 75 4 years ago and my family doc kept saying 'you're fine'. After seeing the number drop yet again for my latest blood test - 1/7/2017 - I insisted she send orders to a local nephrologist so I can talk to someone about this. What REALLY ticks me off is I've been getting my blood tested 2X a year because of my low Vitamin D level. Even in the summertime when I spend more time outside it's been consistently below normal. Now I've been reading that people with compromised kidney function have a hard time absorbing Vitamin D....shouldn't this have raised a flag for a GP?

I'm glad I'm taking steps to be proactive. I've stopped drinking and am doing lots of research to prepare for when I meet with the Neph.

I believe in myself, I am a strong woman. I will reach my goals, NOTHING & NOBODY will hold me down. I will live my life with integrity and intention. I will set a good example for my daughters and my son. I will be a woman that makes my grand children proud when they look at pictures of me long after I've left this earth.


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I.M.MAGIC's Photo I.M.MAGIC Posts: 13,116
1/16/16 12:04 A

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Instead of wishing you luck, I'll pray for you that you won't need it. emoticon
Kathy emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!
P.S. I looked up enthusiasm, and it says the root words mean God within... interesting...!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in si


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K1TT3N's Photo K1TT3N SparkPoints: (95,077)
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1/14/16 1:37 A

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I see my renal Dr tomorrow wish me luck

Eastern standard time

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WOWEETOO's Photo WOWEETOO SparkPoints: (170,979)
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4/11/13 8:01 P

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spark people has a chair exercise team also that is very good
the lady mary

TODAY IS LIFE THIS IS NOT A DRESS REHEARSAL

there is no cause when there is no effect km

i can do that, but not on a tuesday
for that is my day of thrust in the opposite direction -
off the starboard bow
over the hurdles,
and down the shute.

last is just the slowest winner. c.hunter boyd

people often say that motivation doesn't last. well neither does bathing - that's why we recommend it daily. zig ziglar

if i stitch fast enough do


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ROSYJANET1 SparkPoints: (105)
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4/11/13 5:02 P

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Diet is crucial and complicated! In addition to kidney disease I have diabetes too. I sent away for three books that will help me. I looked and i don't think that the book offered through Spark would help me much. I am severely disabled with arthritis in my back and I am unable to stand or walk for any length of time. I have been given exercises from a physical therapist and I am doing those. I move around as much as I can, but burn less calories than I use to when I was up and active. Cutting back on carbs and calories has certainly been difficult! I use to be able to lose weight eating 2200 - 2400 calories. Now I have to cut back to 1800 I think, to lose less weight!

I.M.MAGIC's Photo I.M.MAGIC Posts: 13,116
4/11/13 3:32 P

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I didn't get QUITE that far, but I did go from stage 4 to stage 3... then I had a setback--cancer, CT scan with dye (if you need this TELL THEM YOU HAVE KIDNEY DISEASE! ) surgery, etc... so I was down to GFR of 26.... stage 4 again. It is up to 31% the last test, though new tests are due next month. Diet really is crucial!

I'm hoping for more improvement, since I had it up to 44%...I like that quote from the movie "Galaxy Quest"...

"NEVER GIVE UP! NEVER SURRENDER!"

lol emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!
P.S. I looked up enthusiasm, and it says the root words mean God within... interesting...!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in si


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4/11/13 12:11 P

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That sounds encouraging, thanks!

WOWEETOO's Photo WOWEETOO SparkPoints: (170,979)
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4/11/13 7:23 A

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sure it can i went from stage four at the doors of dialysis it took over four years but my kidneys are in stage one to normal always now i maintain mostly a kidney diet even as a diabetic and control that with insulin..it's hard work and i was angry but i corrected it and the nephrtologist took me off the diet but i told him it's chronic and no relapses for me..i'm not doing dialysis ever
the lady mary
hello ya'll emoticon

TODAY IS LIFE THIS IS NOT A DRESS REHEARSAL

there is no cause when there is no effect km

i can do that, but not on a tuesday
for that is my day of thrust in the opposite direction -
off the starboard bow
over the hurdles,
and down the shute.

last is just the slowest winner. c.hunter boyd

people often say that motivation doesn't last. well neither does bathing - that's why we recommend it daily. zig ziglar

if i stitch fast enough do


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ROSYJANET1 SparkPoints: (105)
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4/11/13 4:32 A

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I am newly diagnosed with stage 4 kidney disease. What I don't get is why didn't the doctors tell me when I had stage 2 or stage 3? The numbers were there but they just let me go out the door without tell me what I should or shouldn't eat. i went from 32 to 28 in a month and the doctor said nothing about what my diet should be. I am a little angry about that. Can any of this be reversed?

WITCHYWANNABE's Photo WITCHYWANNABE Posts: 106
3/25/11 6:01 A

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Thank You!

Allow me the ability to laugh through sadness and shed tears of joy.



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WENDYJM4's Photo WENDYJM4 Posts: 20,566
3/4/11 8:35 P

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Hi Kathy, that is so important to have that information for kidney disease.


Wendy
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3/4/11 12:40 P

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thanks kathy for that information last year it was so different and now i have to reevaluate my stats yet again they aren't bad but i have to research why the foundation changed them so drastically or if my doc is using a different system?? hugs always the lady mary

TODAY IS LIFE THIS IS NOT A DRESS REHEARSAL

there is no cause when there is no effect km

i can do that, but not on a tuesday
for that is my day of thrust in the opposite direction -
off the starboard bow
over the hurdles,
and down the shute.

last is just the slowest winner. c.hunter boyd

people often say that motivation doesn't last. well neither does bathing - that's why we recommend it daily. zig ziglar

if i stitch fast enough do


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I.M.MAGIC's Photo I.M.MAGIC Posts: 13,116
3/4/11 11:51 A

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One of the discussions we were having got me thinking and here is the result:

This will be a permanent 'STICKY' topic, a sort of 'sub-topic' of our regular library, and I'm starting it to be a quick reference point for all of us on the different stages of kidney disease. I'm starting with the GFR, since that is the summary number we all need to deal with that determines our stage. I've been keeping my own lab test records for a few years now, and will work on compiling data on PacLab's other 'normal ranges' for things like creatinine, BUN, etc. (PacLab is the one used by Franciscan Health Group) If any of you have this kind of info you'd like to share, here is the place. Let's try to stay on subject, though, so it's easier for newbies to find what they need, okay? It's SO easy to get distracted...LOL

Here are the stages of Chronic Kidney Disease as given by AAKP:

"The glomerular Filtration Rate (GFR) is one of the best methods for measuring your kidney function. A GFR tells your doctor how well your kidneys are working. GFR is calculated from your blood creatinine, age, body size and gender."

Stage 1: GFR more than 90, may be slight kidney damage with normal or increased GFR.
Stage 2: GFR 60-90, mild decrease in kidney function.
Stage 3: GFR 30-60, moderate decrease in kidney function.
Stage 4: GFR 15-30, severe decrease in kidney function.
Stage 5: GFR less that 15, kidney failure. Dialysis or transplant is the necessary treatment

The AAKP suggests keeping a notebook specifically for dealing with medical issues. In this notebook they suggest writing down your GFR each time you see your doctor, as well as writing down all your questions for each visit, and leaving room to take notes for the answers, thus building your own personal reference material. Knowledge of your own body and its needs is key to your successful health journey.

Kathy

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!
P.S. I looked up enthusiasm, and it says the root words mean God within... interesting...!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in si


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