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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
1/8/08 6:14 P

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Hi Phouka,

Welcome to this group. I also had a negative blood test and by the time they did the endoscopy I had been gluten free for six months so it did not show any damge to the vili. But my doctor was cool and said that it was enough for her to diagnose me just by my symptoms when I eat wheat. The other products are a lot easier to avoid.

As far as fast foods you are very limited. The low carb diets has resulted in a lot of restaurants providing low carb options such as wraping the sandwhich in lettuce which I really like while others find it not so appealing. Some restaurants do a much better job. In-n-out is by far the best and Carl's Jr. does a preaty good job. Most however just put everything on a bed of lettuce and still call it a sandwich. Del Taco's ground beef taco's are safe. Aviod fries at any fast food restaurant because they share friers with gluten containing products. The only exception is In-N-Out which only cooks frys in their friers. Sub shops such as Subway or Quiznos are not very safe because when they make sandwiches crumbs fly everywhere and get into most ingredients that they would make a salad with. I have watched it happen so I realy know for a fact that it happens.

For snacks I like the Sargento Cheese snacks with totilla chips on occasion. We also buy presliced packaged apples that make a good snack for Smart and Final.

I also am very thankful for the rice pastas but have reduced the amount that I use them becuase they are higher in carbs and calories then regular pasta. But it gives me my pasta fix.

I hope this helps some.

Mark

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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PHOUKA's Photo PHOUKA Posts: 1,734
1/3/08 1:48 P

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Aloha! I'm new to this team, but not new to Spark--I just took a heck of a hiatus.

After reviewing a checklist of symptoms for Celiac Disease and turning it orange with my little checkmarks, I had my doctor run the blood tests. Although I tested negative on the blood panel, I felt MUCH better during the GF three weeks I spent while we ran the tests. I don't have to be quite as careful as a true Celiac, but I find my body does nasty things (involving mass quantities of TP and Cottonelle Wipes) when I eat wheat. I've also found that I'm dropping weight easier off wheat than on, and, given Pasta Joy, I'm not missing the wheat too much.

I'm here for help and suggestions on how to eat. I'm still new at this, so finding good food sources is a challenge for me. I'm particularly interested in "fast foods"--I don't always want to cook a full meal, and I haven't found any good fast snacks other than bananas (and there's only so many bananas a girl can eat, ya know?)

It is harder to preserve than to obtain liberty. --John C. Calhoun

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I like your Christ. I do not like your Christians. They are so unlike your Christ. --Ghandi


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MARISSAAMES's Photo MARISSAAMES Posts: 318
1/1/08 9:14 P

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Hi, I'm Missy and I self-diagnosed myself after putting my son on a gluten-free diet for his autism. I'd never researched it until then, and when I did, I realized I had many symptoms of celiac disease. It was actually my husband who insisted I try it out. Now that he's seen the change in me (10 lbs of bloat dropped immediately, and I was just easier to deal with) he is now very militant to make sure neither I nor my son eat gluten. All of our family meals are GF, and my husband and daughter sometimes go out and bond over pizza. When we go out, we usually eat Vietnamese, Thai, or traditional Mexican, but for the most part I do all my cooking at home.

We also follow a diet that cuts out most added sugars (for my daughter,) preservatives, and reduces cholesterol (for my husband.) So when we get invited to parties and church socials, there usually isn't much we can have, so I insist on bringing safe alternatives.

Oh yeah, and my husband and I are also trying to lose weight and stay in shape... which is why I'm here!

So what have you learned today? Nothing? Well, you better get going, before it turns into tomorrow and you've wasted your chance.


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LEILAHT's Photo LEILAHT Posts: 61
12/21/07 12:38 P

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I am 38 and returning to Sparkpeople after getting lazy. I am not Celiac, but am wheat intolerant. I don't get really sick, just tired and my gums bleed. Eating wheat also makes my eyes itchy and my acne worse. Not bad at all compared to what most go through.

 
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LEILAHT's Photo LEILAHT Posts: 61
12/21/07 12:34 P

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Just for the record... A celiac friend of mine told me she got a gluten free pizza at Jet's pizza last week. She said it was the first time she has ever eaten pizza and not been sick. She also has Lupus, so every little bit of gluten makes her react. I got "The Best Ever Wheat-and Gluten-Free Baking Book" by Mary Ann Wenniger at our local library and the recipes come out very well in it. Light and fluffy buckwheat pancakes that were absolutely yummy.

 
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GEOGIRL Posts: 3,745
12/2/07 12:04 P

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I have to say that you are doing really well with keeping your family GFCF, and someday I am sure your children will look back and truely appreciate all of your effort :) I'm embarassed to say that I can relate to your kids, I've been dying for slice of pizza for about a week now and sitting and watching my fiance eat some two nights ago almost drove me insane! I've resolved to make my own this week, its hard to find a really good pizza crust recipe but where there is a will there is a way! Have you found any pizza recipes/pizza alternatives that would work for your family?

I have to say that I think my mom is a saint for providing me with so many alternative meals over the years, at childrens birthday parties ages ago, at family gatherings and even these days when I am back home for a visit. I know I was hard to please and she felt so bad not letting me have what the other kids were having...but I also realize how scared she was all of the time I was out eating with other people when she wasn't 100% controlling what I was eating as a child, she still worries about me more than anyone else!

Smiling just makes everyones day better :)

FINAL15INFLA's Photo FINAL15INFLA SparkPoints: (0)
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12/2/07 7:16 A

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After a month of being GFCF, yesterday was probably the hardest. We had two birthday parties to go to, and telling an 8 and a 6 year old they can't have pizza, cake or ice cream is no fun at all! I had already made them mini chocolate cakes at home, so I had that to give them - so it wasn't so much the cake they were upset about, but the PIZZA!!! Anyhoo, I ended up telling them we'd have chocolate chip pancakes (GFCF of course) when we got home and it did help a little - but I just felt awful.

---Stacey

Tracker shows my maintenance range.

"Everything happens for a reason" is no reason not to ask myself, "Am I living it right?" -- John Mayer "Why Georgia"


 
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GEOGIRL Posts: 3,745
11/29/07 3:58 P

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Hi Stacey! It sounds like your family is doing really well with being gluten free, that is really great that everyone is following the plan and you are finding foods that everyone can enjoy. I have to say that with only two of us in our household we eat most of our meals together and enjoy gluten free but our house is riddled with tons of things I cannot have...

Let us know how your family progresses with eating gluten free!

Smiling just makes everyones day better :)

1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
11/29/07 2:58 P

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Hi Stacy,

Welcome to the group. I have a freind that the gluten free diet has really helped with her son's autism. He is so much more active and responsive now. After giving up all the gluten stuff I would find it so hard to also have to give up dairy. I think it is neat how your whole family is following the diet when only your son has to. I do all the cooking so it makes it easier for me to keep the main meals gluten free. But the kids and my wife have to have their bread and snacks around so it always causes a chance of cross contamination. It makes it so much easier if everyone is on the same level.

Mark

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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FINAL15INFLA's Photo FINAL15INFLA SparkPoints: (0)
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11/29/07 5:48 A

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Hello~ My name is Stacey and I have an 8 year old sone with autism, so the whole family has been GF and casein free for almost a month now. The gluten free part is easier for me than the casein free. I don't feel deprived of anything GF - the substitutions that are available are yummy.

---Stacey

Tracker shows my maintenance range.

"Everything happens for a reason" is no reason not to ask myself, "Am I living it right?" -- John Mayer "Why Georgia"


 
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GEOGIRL Posts: 3,745
11/28/07 4:46 P

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Thanks for the recipe! I'll have to try it out this weekend, sounds very interesting and I've never made anything like it before...and I am sure I will be a huge fan since its 100% allergen free for me!

(Thats very exciting!)

Smiling just makes everyones day better :)

1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
11/28/07 1:42 P

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It is usually made from a mix but I have this recipe for making it. I spelled it wrong. It is Chebe.

Preheat oven to 375°.

Boil the following until white foam appears (on stove or in microwave):

1/2 cup vegetable oil
1/3 cup water
1/3 cup milk
(1 tsp salt optional)

Add this hot mixture to 2 cups tapioca starch. Mix well with wooden
spoon and let rest for about 15 minutes. You will get white ball. Mix in
2 eggs and about 6 ounces
grated hard cheese (e.g., parmesan). You will get a gooey, sticky mass.

To form balls, cover hands with grease, use a teaspoon and quickly roll
into ball shape as best you can (they will smooth out during baking). *
Better yet, use a miniature
ice-cream scoop. Each ball should be about 1-1/2 inch in diameter. Bake
on lightly greased sheet or on parchment paper.

*I find that the best way is to use an ice cream scoop and put in muffin tins.
They come out perfect, way better than using cookie sheet.

Bake for 15-20 minutes, depending on size, until tops begin to brown.


Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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GEOGIRL Posts: 3,745
11/27/07 9:26 P

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This is the book that uses mostly potato starch and cornstarch:

"The Gluten Free Kitchen" By Roben Ryberg
Three Rivers Press, New York 2000

The recipes I really like are: Bagels, Danish, Cheese Straws, Crepes

There are many other good ones, I am especially happy with it because it has the calories/fat/Cholesterol/Carbs/Fiber/Prote
in/Sodium breakdown, often I find our recipes to be higher in fat/calories and I like to know what I"m getting myself into before I take a bite :)

Smiling just makes everyones day better :)

GEOGIRL Posts: 3,745
11/27/07 5:01 P

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I'm like you, I haven't found a single crust recipe that I can roll out, I always end up just pressing it into the pan after fruitlessly trying to roll it out on waxed paper...but every time I try just in case it will be the first time I can roll it out!

I shall put the name of the recipe book and author on this post later tonight, I can imagine what it looks like right now sitting at my desk but I can't quite remember the exact title. I may be biased by having to use so much potato flour/starch but I really do love this book and highly recommend it. I'll even give you the page numbers of my favorite recipes in it, if you should end up finding it it would be great to see what your opinion of some of the recipes are!

I am not familiar with Brazilian Cheba bread, what is it comprised of?

Smiling just makes everyones day better :)

1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
11/27/07 4:03 P

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I would like to know what the recipe book is. It sounds like a good addition to my cookbook library (most of which I bought before going gluten free). Pie crusts have not been a success for me. I bought the Pamela's Pie Crust mix for making the holiday pies and they tasted good but there was no way that I could roll them out. They just stuck to the wax paper and I ended up just pressing them into the pie pans. My mom uses a lot of the potato flour and starch in her cooking but I haven't had as much success with it. But then I really haven't tried much with them. Most of the recipies on the boxes of potato flour still use mostly rice flour. I really want to try the Brazilan Cheba bread which sounds really good but I haven't made the effert to make it. I have read that some people even use it for the crust for pizza.

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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GEOGIRL Posts: 3,745
11/26/07 4:28 P

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Hi Again :) I wish I could use the bean flours, everyone keeps telling me that they make pretty good bread. I love your comment "it tasted almost like real bread!" I hear things like that all the time at home, I make my recipes and my fiance eats them with me and says things like, "wow that actually almost tastes like a real pie" I have to laugh and wonder if gluten free food isn't real food!?!?!?!

I have to stay away from soy flours as well, with potato being my staple. I really disliked potato flour in the beginning but my sister (a chef) found me a cookbook basing all their flour blends on potato flour and cornstarch and most things are really really good (this really surprised me). The focaccia and danishes out of this book are amazing! I even made a crust for a chicken pot pie this past weekend and it was so good I almost cried, its wonderful finding recipes that work so well.

Smiling just makes everyones day better :)

1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
11/26/07 4:16 P

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Sorghum has been my favorite flour since I started using it just over a year ago. It combined with bean and rice flour has made the best gluten free bread that I have made in the twelve years I have been gluten free. It tasted almost like real bread. The rice, tapioca, and potato mixs have not been to my liking for anything except biscuts. Every thing else from this mix reminded me of those days in grade school when I tasted Elmer's paste because there was a kid that said it tasted so good. Yuck! I also use a little bit of soy flour in everything to add the benfits of soy like the higher protein and fiber. Sorghum is very closely related to corn if you can eat that. Also for the rice flour I like to mix brown and white rice flour together. The brown is a little heavy by itself but mixed with the white it can make some deccent recipies. I like to use it to coat chicken before cooking it. Yummm! I also like to add cornstarch to foods that I want to have a crispyness to.

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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GEOGIRL Posts: 3,745
11/26/07 3:28 P

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Hi Mark :) Yes indeed I do use tapicoa flour in a number of recipes but to get the right balance for baking with it its usually blended with other flours/starches. The one that works the best for me is a blend of tapioca flour, rice flour and potato starch. Tapioca is also commonly blended with bean flours which I do not use, I think it blends well with sorghum too but I have little experience with that.

Thanks for the input!

Smiling just makes everyones day better :)

1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
11/26/07 3:18 P

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Hi Geogirl,

Welcome to this group. I also have a lot of allergies and found the allergy group to be limited. What about the tapioca flour (cassava). It is made from a root instead of a seed, grain or nut. Arrowroot would be another choice but it has limited uses.

Mark

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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GEOGIRL Posts: 3,745
11/26/07 10:15 A

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Lol, and yes, I remember you from the allergy group! I left it awhile ago because it seemed more geared to seasonal and other allergies like that, I was hoping a group dedicated to gluten free would be more appropriate for me :) Although you and I may be the only ones in here these days!

Smiling just makes everyones day better :)

GEOGIRL Posts: 3,745
11/26/07 10:13 A

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Hi There, no flaxmeal isn't an option, my main anaphylactic allergies are to all nuts, all seeds and all grains. So the seed options won't work for me either.

But thanks for the thought! I am always looking for new ideas!

Smiling just makes everyones day better :)

DOTSLADY's Photo DOTSLADY Posts: 10,019
11/21/07 8:53 P

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Hi Geogirl - I remember you from the allergies group :).

I was wondering if you could use flaxmeal at all since it's a seed?

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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GEOGIRL Posts: 3,745
11/21/07 1:42 P

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Hi Everyone :) I've read most of the posts in here and it seems like there are quite a variety of gluten issues! Glad I found a group that can relate!

To introduce myself I am 27 years old and I have been living a "gluten free" life for the past nine years. I am not Celiac but rather I am anaphylactic to absolutely all grains whether they contain gluten or not. For the most part I can alter gluten free recipes for myself unless they contain any ancient grains or bean flours...because I can't have any of those either. I am very allergic to regular rice but for some reason I can use rice flour in limited amounts in my cooking as long as I don't overdo it. Mainly I have to use potato four.

I've noticed lately that my moods are greatly related to my diet, I know when I haven't had enough carbs because I get angry and then sad to the point of depression...but I am not sure how to even achieve a healthy balance. I am seeing an allergist in two weeks and I am hoping to work with a dietitian after that. I am really hoping this helps me to balance out my eating in some way because I can't handle this roller coaster of moods anymore, I am not overweight but I've put on 10 pounds in a year because without a balanced diet exercise really wears me out and I run the risk of exercise induced anaphylaxis.

Anyways I am rambling on :) I just wanted to say hi and its nice to meet people that are dealing with similar issues, gluten avoidance is difficult and any tips are appreciated!

Smiling just makes everyones day better :)

1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
11/19/07 3:39 P

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Hi Joy,

I was told that I had eczema when I was in college. I would break out really bad around finals every quarter. The Doctor always said it looked like I had been in poison oak. Stress really played a roll in my breakouts. I had it really bad on my hands. I was told at that time to take zinc supplements which really helped but it never went away. After I went gluten free it completely cleared up and I have been rash free for about twelve years. I also had stomach aches most of my life but the eczema (DH) was my worst problem until I got older when the stomach problems got really bad. If you go in for testing for Celiac make sure your not gluten free before the tests or they will be negative.

Mark

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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JOYFULCANARY's Photo JOYFULCANARY Posts: 52
11/18/07 6:39 P

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Hello everyone! My name is Joy, and I was just diagnosed with DH last week, after going to my GP, an allergist, and a dermatologist.

I had been breaking out on my arms for about three years, but various people in the medical field said that it was most likely a skin reaction to some sort of cleaner, and not to worry unless it spread. I noticed it on my knees in August of this year, and after going through the doctor chain, I was diagnosed. Unlike most people with DH, my breakouts didn't itch at all. My mom also thinks I may have CD, since I've had stomach aches most of my life.

I'm currently a junior in college, and finals are in two weeks...what a wonderful time to be diagnosed.

 
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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
11/14/07 2:53 P

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Welcome Khoneyann.

I know what you mean about seperate butter. We have to have seperate everything when it comes to something you scoop out of the jar or tub even though our kids are very carefull it still leaves crumbs of their bread. What ever we can we transfer to squart bottles so there is no chance of contamination. It is hard to live in a house of people that do not have the problem. I always have to wash down the work surfaces before I can prepare a meal because there are almost alway bread crumbs from their sandwiches that they make for themselves.

I also have a problem with getting enough fruits because I have never been much of a fruit eater and after 51 years it is hard to add them. I have always eaten a good amount of vegetables so they are not a problem. I rescently found at Smart and Final a container with sliced apples in individuale snack packs that allows me top get half an apple a day with out the frustration of bitting into an apple and having to chew around the core and getting sticky in the process. The kids also love them as an afternoon snack.

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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KHONEYANN Posts: 1
11/13/07 9:29 P

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Hello, I am new to Sparkpeople and have the sprue!!! I was given the news six years ago by a physician who knew nothing about CD! In six years I have a great handle on it, but I am very overweight. My grandmother also is a Celiac, however, she is not as strick as I am and can seem to handle gluten without to much trouble. Not me!! I can't even use the same butter as the rest of my family (I am sure you all understand). I have two great kids, 4 and 1, who both have a few food allergies but have tested negative so far for CD. emoticon I am working hard at eating more fruits and veggies but I am a very picky eater, I would love ideas. Well thanks for the support.

Slow and steady wins the race!!


 
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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
11/10/07 9:46 A

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I love the picture of your dog in the costume. My wife does that to out little Maltese Puppy

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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MELZANYC's Photo MELZANYC Posts: 174
11/9/07 11:00 P

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Thanks Mark! That is helpful. I've experimented a bit with some of the bean flours and actually like them, so that was a nice surprise. I eat a ton of fish since I can't have any meat, but some of them are so high in fat! I'll get the hang of this soon enough I guess!

1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
10/31/07 2:32 P

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Hi Melissa,

Welcome to this team. Multiple food problems does make things harder for the diets they offer but it is easy to make your own. Being Glutin Free is not an easy task when it comes to dieting because we all ready have so much restrictions in what we can eat it is hard to let go of anyting else. I gained wight once I stopped eatting glutens. I was a skinny 125 lbs and since going gluten free have gained way to much weight that I now am fighting to get off. There are some really good recomendations in the low carb diets that are very benificial to those that are gluten free. Using been, nut and flax seed flours is a real good start instead of the carb loaded rice and potato flours. I had to stop dairy but since have been able to add it back to my diet. My Doctor told me to cut red meat so I eat a lot of chicken and some fish but still have pork about once a week. Chicken and fish are so much healthier any way.

Hope this helps some.

Mark


Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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MELZANYC's Photo MELZANYC Posts: 174
10/31/07 1:28 A

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Hi, my name is Melissa and I was just diagnosed last week. I'm still kind of in shock. I'm glad I live in NYC- I see that there are a lot of gluten-free products in the health food stores. I also can't eat dairy, sugar or meat so finding all of these limitations together is hard. Is there anyone else out there with so many limitations?

I'm single, 29 years old, live in Astoria and work in Manhattan doing Human Resources. I have a little Yorkie named Dimitri.

Edited by: MELZANYC at: 10/31/2007 (01:30)
1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
10/25/07 3:16 P

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Hello, My name is Mark and I am 51 years old and was diagnosed with Celiac Disease in 1995 after meany years of being told that I only had heartburn and other simply diagnoses. So I have been gluten free for twelve years. My sister and dad also have CD and I really believe my Grandmother had it also. So it runs in the family. I also have other severe health problems that I really think would not be as bad if I had been properly diagnosed many years befor.

I am married and have three step-daughters and four dogs. I am disabled because of all the health problems and spend my time doing stuff on the computer or reading.

I was refered to Spark Poeople by my Doctor who thought it would be good for me and joined about sick months ago but really did not start doing anything with it untill two weeks ago. I guess I was just to lazy to figure out how to do it.

Because of my other health problems exercise is very limited but I do try to walk every day.

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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MACDEMAN's Photo MACDEMAN Posts: 1,267
10/22/07 3:22 P

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Hi i'm new to this team but i've been with SP for a while, about 3 years ago i went to see a allergest because of some problems that i've been having since i was a teen i'm now 35, found out i have a censativity to wheat/Gluten all the same, I feel great when i eat what i should, when i don't it's not a good thing. Hope to get some new food ideas, if there are any people from windsor on this team and you know where the Market is they have a store and a bakery in there that is wheat free.

.Kristine.
KTBABE76's Photo KTBABE76 Posts: 53
9/19/07 5:58 P

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Hello everyone. I have been eating a gluten/casein free diet every since I was diagnosed with and allergy to both. My body also cannot process sugar. So I am looking for new ways to cook without using the ingredients my body cannot tolerate. It's a good thing I joined sparkpeople or else I would probably have a lot more work to do finding new recipes. So I am glad to be a part of this team.


Kate
Proud Navy wife

Goal:
Lose 10 lbs, by
7/12/08





 Pounds lost: 2.5 
 
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PAWSPAWS307 Posts: 29
9/5/07 11:02 A

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Hi, I have been trying to eat gluten free for about 6 months now. I diagnosed myself as being intolerant to dairy and read that alot of people that are intolerant to dairy are also intolerant to gluten. I am not very good at leaving either one of these alone. I do most of my baking gluten and dairy free but I eat alot of store bought stuff that I know I shouldn't. I just keep on trying hopig one day I will succeed.

CL0V3R's Photo CL0V3R Posts: 581
8/27/07 4:10 P

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Hi Sparkies,
My name is Anel, and I'm living in the UK. I'm not diagnosed wheat intollerant, but have been avoiding wheat and gluten for the past 2 months. My hubby realised that I have a problem eating wheat products. I'm waiting for an appointment with the GP for the tests, but am sure it will show. I also found that some "hidden" gluten problems exist, but I'm learning quick!!
Since cutting wheat products, i've lost 14cm and a total of 10kg's.
Good luck to you all on your paths to shed the pounds and live healthier.


My weight in kg's


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SIMPLYISH's Photo SIMPLYISH Posts: 690
8/17/07 8:34 A

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Thanks Thinner! I really appreciate any resources anyone can recommend. My naturopath has told me which grains to avoid and thats about it. I know that there are hidden glutens everywhere so I need to learn how to read labels, etc. I appreciate your help! Thank you so much!
Melissa

Always challenge yourself!

Don't live to eat, eat to LIVE!

Don't feel deprived... feel ALIVE!
4MYDB37's Photo 4MYDB37 Posts: 324
8/17/07 6:00 A

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Welcome Melissa!

Even though it has taken me ages, I have compiled a listing of websites and books that I have come across and I'm trying to get a web page set up for people to reference. I do hope that I have some information that could be beneficial to you.

Have you been given any information from your doctor on where to begin and what to do? I found a website that was sort of a gluten-free starter guide, so I will post a link to that later on today (it's at work, unfortunately *g*).

I wish my much luck and success and keep up the wonderful work on your weight loss!

Cam
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S/W: 287 -- C/W: 282 -- G/W: 199

1st Mini-Goal: 279
Pounds Lost: 5
Pounds to Lose: 83


 
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4MYDB37's Photo 4MYDB37 Posts: 324
8/17/07 5:58 A

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Good morning, Dot!!!

I'm so happy that you have focused on YOU and your health.

I have been so busy, I haven't had the time to be on this board like I want to, but I am looking a things to even out in the next couple of weeks.

I want to thank you for sharing your story here. I know that others can read it and it can give them some sort of hope!! I know that a number of my symptoms went away when I removed the gluten from my diet, including gallbladder attacks and horrible menstrual cycles. But eating gluten-free is honestly the best thing I have ever discovered and I am so happy about it!!

I'm glad that you are here because your experience is so valuable!

Have a great day and good luck to you!

Cam
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S/W: 287 -- C/W: 282 -- G/W: 199

1st Mini-Goal: 279
Pounds Lost: 5
Pounds to Lose: 83


 
229
207.5
186
164.5
143
SIMPLYISH's Photo SIMPLYISH Posts: 690
8/16/07 9:55 P

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Hello everyone! My name is Melissa I am 40 years old. Over the last 8 months I've tried to get to the bottom (the underlying causes) of all my health problems and finally saw a naturopath this week who confirmed that I am allergic to particular grains (wheat, gluten, etc.) So now after 40 years of destroying my intestines and immune system I have to learn how to be gluten free... I figured this was a good place to start. So, I hope I can find the help I need to learn how to live gluten free and the strength and support that its going to take to do this!

Always challenge yourself!

Don't live to eat, eat to LIVE!

Don't feel deprived... feel ALIVE!
DOTSLADY's Photo DOTSLADY Posts: 10,019
8/6/07 11:35 A

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Hey Cam!!! I quit all but a couple of my other teams so I can focus more on my own health instead of sharing my info with others (who really don't want to hear it? Not sure about that one, but it's hard to convince people they should consider reading more about it ... I'm all about celiac/gluten intolerance awareness but am giving it a rest - except the MS forum ...)

A N Y W A Y!! I wanted to check up on ya and say HOWDY! I'm gluten free and love to talk about it, so I thought I'd join!
emoticon

My story is a long one cause I like to talk about it. I can't believe in this day and age that doctors do not diagnose this more often. My life could have been so much BETTER!
emoticon I could have been happy and not just "surviving" and wanting to die for the love of gluten?! oy.
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When I was young I had trichotillomania (I learned this from a therapist for depression later in life). I pulled my hair between my fingers, specifically, I liked feeling the knots in my hair helped ease the anxiety knots in my gut (NUTRITIONAL DEFICIENCY). I also sucked my thumb at home until I was 12. My anxiety was compounded by living with an alcoholic rageaholic father who nagged and hit me to stop my "habit." I also had achy legs and arms and was told this was "growing pains" which I now think was low iron.

We also moved a lot. I bit my nails because of anxiety also. I stopped when I was 17 or 18. I was the daughter with the quick temper. Sometimes I seemed to tire sooner than others. I was depressed/irritable, yet I also had a happy side who liked to laugh (probably to get out of depression!). At school I was happy, a bit insecure, but at home I was depressed. I was a leader at school and well-liked despite my home life.

I went to college and worked at Blimpies: I ate a sandwich daily. I craved and cooked cheese tortillas almost daily. I gained the freshman 40 easily (yeah, 40, not 15). I was stressed out. My eczema was exaccerbated and went from my hands up my arms. I ended up quitting college because of stress I would get a headache associated with my TOM.

I got married at 20. DH said I was constipated. Never thought about it cause that's all I knew. I took the pill my first year and gained 80 pounds. (I'd been on a 500 cal/day diet to fit in my wedding dress and lost 40 lbs - and then quit that diet and also quit Jazzercize).

COLD HANDS & FEET (thyroid). Slept with a heating pad on my feet and awakened with a burn. It wouldn't heal for 9 months and was getting gangrenous. Not diabetes (POOR WOUND HEALING - thyroid/celiac and/or zinc & iron deficiency). No doctor ever checked my vitamins or mineral levels.

Moved. Suffered worse depression (attributed at the time to my thyroid, but now I know it was celiac). Got food poisoning. Moved again. Got PG my 7th yr of marriage. Had to sleep 2 hrs a day. Felty woozy. Felt spacey and slow moving like a sloth on the inside. People thought I was so calm, but on the inside I was riddled with anxiety.

Moved again. Injured my hip by sitting too long on concrete, and I couldn't get up. I couldn't walk, when I did it was painful and like an 80 yr old. That pain would come and go for 13 more years. I asked doctors to check me for osteoporosis (no, you're too young), take an xray to ck for osteoarthritis (nothing showed). Sometimes my feet would hurt after walking/cleaning the house all day (wooden floors). Better with tennis shoes. Bent over to give kid a bath and when I got up felt like I was having a heart attack - doc said it was GERD I did not understand heart feeling for a supposed gut problem. Feeling very tired; haven't slept since baby was born (5 years). Craved salt

Diagnosed hypothyroid. Went on wheat and sugar free diet and felt awesome (the irony does not escape me). That left little to eat but veggies and fruits and some rice crackers I found; I wasn't a big meat eater. DH not on board with this, nobody else ate this way, so as I'm always stressed/we were moving again, I go off this type diet. I think I had a few bouts of diarrhea.

I go into deeper depression. My marriage is a challenge. I'm tired of moving! I'm just so tired! Doc just ups my dose of Synthroid and gives me Prozac. I cannot shake off my brain fog. I'm a whiner. I cannot take stress. I seem to be so dependant and I hate it. I have a few more bouts of diarrhea I associated with flu or something I ate.

We move and I go off Prozac. My insomnia is worse, my body aches and pains. Psychiatrist prescribes Provigil, an anti-narcoleptic. I would fall asleep in the hairdresser's chair. (Once I almost fell asleep while driving home from college - I looked back to see a train behind me!)

Headaches are getting worse and more often. Diet and exercise does not help me. Doc gives me copies of "SAD" - standard American diet. It does not work. There would be days all I'd want to do is chew ice and eat sunflower seeds (medical term is PICA, from not getting enough minerals/vitamins). If I ate only sunflower seeds and/or ice-cream I would get diarrhea (FAT MALABSORPTION).

We move and I get a trainer. I start walking the dogs and working again. I'm so tired and complaining about not being able to keep up. My hair seems to be falling out. I'm "going" after every meal, so 3x/day. When DH brings up my constipation I'm frustrated telling him ONCE AGAIN that all my whole grains and Kashi cereal have helped, and I'm not constipated anymore. Sheesh!

I can't relax. There's so much to do and no energy to enjoy anything. DH is never home. Can't keep eyes open. Cannot drive long distances for fear of falling asleep. DD is a handful with her own issues (ADD, ODD, Aspie?). Depression hurts, but is this fibromyalgia I'm feeling? Slept on the floor before moving, and cried the night away from pain.

Move again and tell doc how tired I am. Headaches have grown to about 4x/week. Taking up to 800mg ibuprofen (creating more leaky gut). He does a full iron panel and suggests I get a colonscopy to check for internal bleeding or cancer (low serum ferritin: 5). I, repeat, *I* am the one who googled anemia and asked the gastro doc for an endoscopy not knowing he would find celiac. THEN it was confirmed with a comprehensive celiac panel blood test.

Ironically, my MIL was diagnosed with celiac 7 months before me. She only told me she couldn't eat bread, that it gave her gut pains and gas. I had gas, but certainly I couldn't have *her* disease - I emoticon bread!! What a lost opportunity to have been diagnosed a little sooner. We also shared depression as a symptom, but that's about it (except maybe cardiomyopathy, which everyone attributes to her smoking). What's my excuse? I say gluten made me too tired to excersize.

Also, I have osteopenia. I was right to have asked my doctor. So even if you're insurance doesn't pay, do it so you have a baseline for later, esp after diagnosis. JMHO.

I was diagnosed at 44.10 yrs old.

Another note re my FIL: he and I shared many symptoms: depression, hypothyroidism (though he had his removed), pernicious anemia (I didn't know I was low in B12 until after dx), eczema (if you google eczema you'll see many references to giving up wheat and dairy ... but I didn't know). He was also alcoholic (I've read that there is an alcoholic gene and it's close to the celiac gene, which makes me think of my DF). He died of what you die of with undiganosed celiac: non-Hodgkin's lymphoma. He did all the classic "end-stage" celiac stuff: lost a lot of weight and they couldn't figure out what was wrong. I just know he had undiagnosed celiac. He died months before my diagnosis. It just kills me.



Edited by: DOTSLADY at: 8/6/2007 (11:50)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


3,150 Days since:  gluten
 
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4MYDB37's Photo 4MYDB37 Posts: 324
8/5/07 11:42 A

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Hello to you Heather!!

Just posting here and telling your story is certainly the first step in working at getting healthier and making better decisions.

It's amazing the drastic changes that food can bring about in ones life! I am glad that you are listening to your body and seeing what affects you in what manner. That will truly aid you in your quest for better health.

Feel free to create a new thread if you want to discuss a topic (under the General Team Discussion Thread). There's nothing wrong with more threads on the board!

I hope that these changes will help you feel better. I'm tired of weighing more than my mother (who is almost 60) and of having more health problems. It's time to do something about it!

Good luck to you!

Cam
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S/W: 287 -- C/W: 282 -- G/W: 199

1st Mini-Goal: 279
Pounds Lost: 5
Pounds to Lose: 83


 
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MRSLEVITE's Photo MRSLEVITE Posts: 39
8/4/07 7:12 P

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Welcome to this group and to Sparkpeople, Heather.

A lot of your symptoms sound just like mine. Even the part about the Atkins diet. I stuck to it pretty closely for about a year several years ago and lost weight, felt better, and general was doing well. I made some life changes and then started adding wheat back into my diet and that's when I started having problems. And after going to doctors for 2 1/2 years, it was my husband that put the pieces together and saw the relationship between my symptoms and how I felt and what I was eating.

Best wishes to you and good health!



 current weight: 214.0 
 
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CAMOFLAUGE Posts: 14
8/4/07 6:51 P

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not sure if this is the right place to post, or if i should have started my own thread, but i just signed up a few days ago.

i am self diagnosed-i began having problems (that i noticed) while pregnant with my 2nd child -he was born-3 years ago. i really didn't make the connection. at the time i was pregnant with him i had bad "morning" sickness-which was actually in the evening. i could only eat chix noodle soup most nights and still ended up in the bathroom sicker than a dog. thought i had sinus problems-did everything i could prescription wise, etc. that you can do while pregnant... nothing helped.

fast forward 1 year-i was trying to lose weight. did the "atkins" diet-but not "strict"-mostly the giving up wheat/bread etc. type items. i lost #10 in 2 weeks. then waited a month, did it again, lost 10#s again.. well, a bunch of health problems got in the way of me exercising until now...

about 6 months ago i stopped eating wheat-except occassionally. i found some substitutes that were ok, and i didn't lose weight, but i didn't gain any more either.

well, i recently started my exercise/eating well progam 3 weeks ago and was doing good on weight loss-until i had a piece of bread and then had some cereal i didn't realize had wheat in it-i gained 5#'s....

i get bad stomach cramps, gas, diarrhea, gain weight, and i also get "irritable/angry" for no reason at all. I also seem to get the grumbly tummy like i'm hungry. i can't ever seem to get enough food-which is probably why i gained all this extra weight. i was eating when my body really didn't need any food-my brain was just sending the wrong signal.

I also suffer from seasonal depression which i'm beginning to realize that carbs create the serotonin that keeps you "happy" and by avoiding them, i was avoiding what makes you feel good.

so, this has been fun, to say the least. but, i need to feel better-i'm 33 and have suffered from more health problems than my mother who is 52!! that's pathetic. i don't want to end up with a heart attack or something like that. so, i'm here to get healthy and hopefully to learn new things-especially from those of you who are gluten free.

if anyone has some good gluten free websites where you can order from-i live in a small town that doesn't carry anything like that. I was ordering from a really awesome online place-but they went out of business.

sorry, this was so long... just wanted to get everything off my chest. i've been so frustrated that i can't eat the same foods everyone else does, and i find it extremely difficult to lose weight. so, hopefully this place will give me some motivation to become the healthy person i want to become.

Heather

 
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MRSLEVITE's Photo MRSLEVITE Posts: 39
8/3/07 6:50 P

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Thanks for th welcome! :D



 current weight: 214.0 
 
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4MYDB37's Photo 4MYDB37 Posts: 324
8/3/07 6:04 P

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Hello MRSLEVITE!

I truly hope that a reduction/elimination of wheat/gluten will help you feel better. I, too, am self-diagnosed and I can't tell you all of the wonderful changes that have taken place since I have removed it from my diet. And it sounds like things have gotten better for you as well.

Good luck with your photography business! I hope that you're feeling better in the upcoming months and you're able to do more of what it is you love.

Good luck to you!

Cam
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S/W: 287 -- C/W: 282 -- G/W: 199

1st Mini-Goal: 279
Pounds Lost: 5
Pounds to Lose: 83


 
215
198.75
182.5
166.25
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4MYDB37's Photo 4MYDB37 Posts: 324
8/3/07 5:57 P

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Hello Kali!! Welcome to the group!

It's very interesting to find out about people having the same intolerance that you have. I've not been officially diagnosed, but discovered my intolerance by process of elimination. It's surprising how many people actually have the same issues!

I'm glad that you're feeling better and I occasionally slip off as well, but I mostly stick to fresh fruits and vegetables and lean meat (mostly chicken and fish). It's not so bad really!

Good luck to you! And don't think of it as a diet. You're making better and healthier food choices that will help you feel better. Diets have an ending date. You are making a change for the better that will give you good results in the long run.

Cam
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S/W: 287 -- C/W: 282 -- G/W: 199

1st Mini-Goal: 279
Pounds Lost: 5
Pounds to Lose: 83


 
215
198.75
182.5
166.25
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MRSLEVITE's Photo MRSLEVITE Posts: 39
8/3/07 5:31 P

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hello. I just found this team today. I joined SparkPeople 2 weeks ago. Several months ago I began to suspect that I was wheat/gluten intolerant. I cut way back on the wheat. But every time I ate a piece of bread I would hurt all over and usually end up pretty much in bed for the next few days. So I guess I'm self-diagnosed. Now I'm trying to go completely gluten free. The last time I had a few bites of bread it was really bad - not just the pain, but the emotional rollercoaster, too. I can't go through that again.

Anyway, I'm a 47 yo former special education teacher. I've been home for the past 2 years due to pain that has been diagnosed as 'possible fibromyalgia'. I've taken up photography and work when I feel up to it. I'm working toward building this into a real business. I'm married and have 3 grown children on their own from my first marriage and have 2 stepdaughters in high school and college. There's always something going on at our house, it seems, and I need to feel better so I can be in the middle of it all. :)



 current weight: 214.0 
 
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KALIHALL's Photo KALIHALL Posts: 131
7/25/07 11:50 A

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Hi! I just joined this group. I'm 22 and live in Denver. (Great city for Gluten-Free people!) Anyway, I was diagnosed when I was 18, at my first year of college. Wanna talk about a tough transition!? Haha. Anyway, I was diagnosed along with my Grandma, my Mom and my sister. After I began dating my present boyfriend, I shared about my Celiac Disease with his sister, his mom, and his Grandma who had all suffered with stomach problems in the past. Turns out they all had CD as well! So now we're one big happy gluten-free family! (my boyfriend, his dad and my stepdad all eat gluten-free as well) Anyway, I have struggled following the diet. Now that I'm doing better, I figure I need to find healthier choices, rather than simply justifying my choices with a "well, at least it's gluten-free" attitude. Wow, I wrote a lot! Anyway, hi!

Start weight - 137 (12/1/6), NOW - 114.5 lbs

Goals Remaining:
112.5 (9/15) - Bottle of wine
110 (9/30) - New workout outfit
107.5 (10/15) - Nice dinner
105 (10/30) - New jeans!


 
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4MYDB37's Photo 4MYDB37 Posts: 324
6/20/07 8:57 P

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Pull up a chair and make yourself comfortable!

Don't be shy! Introduce yourself to the group.

We're all here for the same reason - to get healthy!

Cam
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S/W: 287 -- C/W: 282 -- G/W: 199

1st Mini-Goal: 279
Pounds Lost: 5
Pounds to Lose: 83


 
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