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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
8/1/12 3:23 P

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Alexis, Celiac.com has some great listing of medication, makeup, shampoo and food that is safe to use. You should look at them.

Mark
Leader: Gluten Free and Healthy
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Co Leader: Ankylosing spondylitis is anky-losing bad habits!
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DJ4HEALTH's Photo DJ4HEALTH Posts: 39,801
7/30/12 11:21 P

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Welcome to the team

Dorothy





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ALEXIS_LYNN SparkPoints: (251)
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7/30/12 10:54 P

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I'm not sure if I want to be tested if I have to eat gluten again... It makes me violently ill now and my throat has even started to close. Is there any other way to be tested? I don't want to feel like I did before again. Just from eating a tiny bit of gluten that was in a teriyaki sauce yesterday, I still have a killer headache and feel icky today.

Also, the last time I ate oats I felt really bad so I haven't eaten them since. Should I try again to see if I have a reaction? My aunt cannot eat oats, either, and she is also intolerant to buckwheat and a lot of the other gluten free alternatives. I don't have any problems with the the others like her, but she didn't figure out she had a problem with gluten until she was 30 something, so maybe she just developed the other intolerance because of that.

Okay, I will tell my mom that.

Yes, my face will get all bumpy if I use a shampoo or other product that I have a problem with. Its been a great process of trial and error. I have went through how many different kinds of makeup, lotion, lipbalm, and other things before I found stuff that didn't hurt me. With lotion, I have even had my hands break out in a red rash before.

We have been trying to convince my sister to go gluten free, but she just won't. She says it is too expense (she is in college right now). Plus, she doesn't want to give up those foods. How could I convince her?

1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
7/30/12 5:47 P

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Alexis, Welcome to the group. Your symptoms sure sound like you have it but, As Crystal Said, You can only know for sure if you are tested. Especially the endoscopy. But you have to be eating gluten for several weeks before you have the tests done or they well not show the signs they look for, It is also very common for the blood tests to give a false negative so they are not 100% reliable. It is possible that you have a wheat and nut Allergy as well.

It is also very common to develop other sensitivities after you go gluten free. Your body is still damaged from the gluten and it can take up to a year for you to completely heal. And then is if you stay 100% gluten free, I was told to avoid Dairy, especially, the first 6 months because dairy is naturally hard to digest. I would also recommend that you avoid oats during that time period. Oats used to have been on the Bad list but they have found that only .75% of Celiacs are still Oat Intolerant. (I am part of that small number). Also Oats, Unless certified Gluten Free have an 85% chance of being contaminated with wheat.

Being Diagnosed with Celiac Disease usually does not cause insurance rates to go up. It is because there are no medications to pay for it and the insurance is not concerned about the increased cost of gluten free foods although they can be used as a tax exemption which is a helpful thing at taking off some of that cost.

There is a form of Gluten Sensitivity called Dermatitis Herpetiformis which some of us Celiacs also display. I was always told I had Eczema until I was diagnosed with Celiac and then that went away. It still might pop up with accidental gluten exposures and or stress. But it is a gluten reaction to either internal or external exposure of wheat.

I can tell you from personal experience, that the longer you go continuing to eat gluten the higher chance you are of developing other major diseases. It is no fun to live with other severe problems that all all associated with Celiac Disease. So try to convince your sister and the rest of your family that it is important that you follow the diet carefully.

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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ALEXIS_LYNN SparkPoints: (251)
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7/30/12 2:41 P

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I see. My parents don't want me to get tested, though, because they are afraid it will raise our insurance rate which is already through the roof (and we only have a major disaster plan). Yes, I have problems with all of those. I can use very few lotions, shampoos, and other beauty/health products and the only chap stick I can use is Eos or Green by Nature. I found out I was allergic to the one toothpaste because when I put it on my pimples overnight (you do that to make them come out, you are only to use plain white toothpaste), I got a red rash/burn in the places where it was. It was extremely painful and then started to peel. Yes, I've started having problems with nuts (already full blown with walnuts) and I also get sick from certain Dairy. I can't eat any Yoplait yogurt, but I can eat greek yogurt of different brands. It is really odd. My older sister (the one that shows all the symptoms) is also allergic to all nuts now except for peanuts and cashews, plus she is intolerant of eggs. She can only eat one before she gets sick.

I see, that makes sense. I don't normally cheat (I even bought gluten free soy sauce) but my mom made the teriyaki chicken and didn't make it from scratch with my soy sauce -.-

Thank you for your reply! It makes a lot of sense. I hope my parents will let me get tested.

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7/30/12 7:29 A

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I'm a celiac, to truly tell if you have celiac you need to have a blood test and an endoscopy. You could have a severe form, some people have topical allergies to gluten; shampoo, lotions, toothpaste; anything that goes on the outside of the body. A good friend of mine gets sores due to gluten and she is still trying to figure out if she's allergic or not. One thing to note is that people with celiac normally will follow up with an intolerance to nuts, dairy, and egg due to a domino effect. This is caused due to the fact your body (with celiac) is not absorbing the nutrients it needs if gluten is involved. The villa are knocked off in the intestines and cannot absorb the nutrients. Hold up your hand and waive around your fingers, that would imitate your villa grabbing nutrients and absorbing them into your body. When gluten enters it starts to break off those "fingers" so all you have is a fist which is unable to reach out and grab nutrients. When you cheat and have soy sauce it can knock off any of the villa that have grown back. When you do not have villa in your intestines it can't absorb nutrients which in the long run affects how you can properly digest dairy, nuts and eggs and can in turn cause an intolerance in folks, some people even have allergies to corn!!

ALEXIS_LYNN SparkPoints: (251)
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7/30/12 1:18 A

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Hi, I just joined SP today.

I have been gluten free for half a year now. I tried going gluten free because my Aunt is gluten intolerant and she said she thought I was, too. I was constantly sick from everything and got stomach aches every time I ate, chronic headaches, joint inflamation (that I remember even having in 2nd grade), and all the other joys of symptoms. It got to the point where I missed literally over 2 months of school from being sick last school year (yes, I'm young so I'm in school). Needless to say, when I went gluten free, most of these symptoms disappeared. I tried eating gluten after a month of that, and I got an attack: diarrhea, severe stomach cramps, severe headache, and nausea, so I definitely have a problem with gluten. Now I just have the problem when I accidentally eat something that has minute traces of gluten.

I am wondering if I have celiacs, though, because my throat literally starts to close now if I eat gluten (I found out in church by eating hosts at communion. It was hard to breath, I start coughing, and I have to keep swallowing. Each week it is worse when I eat it, so I am not going to take it anymore). I also ate teriyaki today (yes, I was being bad...) and my throat is still throbbing even though I took papaya supplements. I know celiacs runs in families, and my aunt is GI, my one sister most likely is as she shows all the symptoms but refuses to go gluten free, and my other relatives show signs of Gluten sensitivity.

Also, I have become allergic to more things now when I wasn't allergic to anything in the past. It seems that every week I discover something new that I am allergic to. Ex) walnuts, shampoo, toothpaste, hair products, face products, ... The list just goes on and on. It would be very helpful if anyone had any pertinent information that would help me with this roller coaster ride called being Gluten Free or any of my other problems addressed. Thank you!

Edited by: ALEXIS_LYNN at: 7/30/2012 (01:27)
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