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NANCYLEE46's Photo NANCYLEE46 SparkPoints: (96,448)
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6/14/10 11:13 A

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I am also very sensitive to medications, thankfully I finally found a good P-doctor and am now taking effexor, still looking for something to work for anxiety. I belong to the stress Relief team here on spark which helps a lot and I practice daily meditation exercises.

Of course the hardest thing for me is to continue sticking to my gluten-free diet, but thanks to the support of this group and the christian celiac group I get by nicely emoticon

Have a great week,

Nancy

“Friendship is born at that moment when one person says to another: ‘What! You, too? Thought I was the only one.’” (C.S. Lewis)

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ASTRALIS2012's Photo ASTRALIS2012 Posts: 20
6/14/10 9:15 A

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Thanks everyone!
I have never really taken daily drugs aside from the clonazepam and trying a few anti-depressants when I was younger. I really hate medications. I didn't take IBprofen until I was about 16 and still only take it maybe once or twice a year (for inflammation or high fevers). I have always been really sensitive to medications (maybe it's in part the gluten!). Oh, and I have been on birth control. Which I am discontinuing because of the recent menstrual problems. I'm a little iffy about holistic doctors, from meeting too many quacks. I'd love to find one that will admit that some natural things can be harmful as well. Don't get me wrong I believe in natural remedies/cures, I just think there are a lot of people that don't do their research. I worked as a PCA (personal care attendant) to many people with Autoimmune diseases. One was told to make certain teas and take certain supplements in place of her medication by a holistic doctor. Unfortunately some of the ingredients in the herbal teas were worse for her liver than the medication. She wouldn't listen to me. Her liver has been steadily going downhill since (she gets her liver tested often)but she won't make the connection because she believes that natural things can't be bad. But like I said I'm not knocking the whole idea.
Thanks again everyone.

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ILLINITEACHER52 Posts: 7,257
6/12/10 3:09 P

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Thank you for the name of the book. Maybe I can get a copy for someone who has been struggling with depression for years (and won't listen to me about changing eating habits).

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JENCORINNE's Photo JENCORINNE Posts: 1,933
6/12/10 2:39 P

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emoticon to the group! Sounds like your body is detoxing, sometimes you get worse before getting better.
Have you thought about seeing a Naturopathic Dr? They try to figure out the cause of your problems instead of covering it up with drugs. Speaking of if you are on any check that they are GF this is a good place to check. www.glutenfreedrugs.com/

I hear you on the beer, I couldn't figure out why I never liked it and only had one that was OK. It was the gluten and the OK one was rice based.



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A10TIVTRTL's Photo A10TIVTRTL Posts: 1,861
6/12/10 2:39 P

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Same story here - sick for years and branded a hypochondriac just because none of the numerous doctors I went to did the right tests. Figured it out myself, with help from a relative who also suffers, and now I feel dramatically better. I'm angry about all the wasted years. Wish there was some way we could get the word out, as I'm sure there are a lot of other gluten sensitive people who are not receiving proper medical advice.

NANCYLEE46's Photo NANCYLEE46 SparkPoints: (96,448)
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6/12/10 11:59 A

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emoticon emoticon I respect your position and I totally hear you. I have had similar situations myself. I just let my family physician of 20 years go as he attributed the celiac to depression first, then an eating disorder, etc..

I am glad you have a positive outlook and that you now have Spark to come on and share emoticon

emoticon for the name of the book and author. I will make a trip to the library Monday.

Happy Saturday!!!

Nancy

“Friendship is born at that moment when one person says to another: ‘What! You, too? Thought I was the only one.’” (C.S. Lewis)

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ASTRALIS2012's Photo ASTRALIS2012 Posts: 20
6/12/10 11:42 A

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Hi Nancy and ILLINITEACHER52. Thanks for the welcome! The book is called "life after bread" by Dr. Eydi Bauer, D.C. It is a short book but is a GREAT read and is packed with information. I highly recommend it. I have spoken with people who have been gluten-free for years that learned a lot from the book just by flipping through it.
Unfortunately I have been seeing doctors for years with no real help. My primary has done blood tests, MRI's, cat scans, ultrasounds, etc. Has referred me to neurologists, gastroenterologists, urologists, psychiatrists, OBGYN and other specialty doctors and they all tell me there's nothing wrong. I was recently having major OBGYN issues and eventually the OBGYN refused to make appointments for me anymore saying there was nothing they could do. When I was a teen is when I developed my major anxiety problems and instead of looking into causes they decided to "drug me up" like most of america and put me on a strong sedative, clonazepam. I took it for three months before I noticed that I wasn't remembering anything, like what I had done the day before and things like that. I had long blackout periods. My doctor didn't believe me and said there wasn't an alternative (because we had tried anti-depressants and they made me suicidal, which is another story). I took myself off of the medication. To this day I still have memory problems. So doctors really have not been any help, if anything they have done detriment. And most of them end up acting like I'm crazy which doesn't help the depression. But hopefully through diet I can alleviate at least some of my symptoms and feel somewhat normal again (I barely remember what that feels like).
I have hope! My attitude naturally leans toward the positive which is what has kept me going for so long. So at least I have that.

Edited by: ASTRALIS2012 at: 6/12/2010 (11:43)
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NANCYLEE46's Photo NANCYLEE46 SparkPoints: (96,448)
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6/12/10 11:01 A

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emoticon ASTRALIS2012,

Glad you joined us and don't ever worry about making long posts - sometimes just venting helps.

What a wonderful, caring mom you have and so glad she has stood by you. Would love the name of that book if you can find it. I bought the one by the woman who found out she was allergic to gluten by being on the reality tv show "SURVIVOR". Haven't read it all yet though.

I hear you about seeing a doctor. I went through being misdiagnosed due to depression I deal with. Maybe now you can find a dr. that understands celiac disease, with all the medical conditions you have mentioned I sure hope someone is following up with you.

I look forward to hearing more from you and if you need additional support there is a great Dealing With Depression team that I am a co-moderator on. Come check us out - the link is below in red in my signature area.

Nancy



“Friendship is born at that moment when one person says to another: ‘What! You, too? Thought I was the only one.’” (C.S. Lewis)

Leader - SparkPeople's Official Virtual Walk/Run Challenge www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=33492

Leader SP CLASS of November 8-14 www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=34800

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ndividual.asp?gid=953
ILLINITEACHER52 Posts: 7,257
6/12/10 10:29 A

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Welcome to the team! Keep eating gf and I think you will see a difference in a few days for some symptoms and in a few weeks for others. (My skin cleared up in a few weeks but my stomach problems cleared up much more quickly.) I can really relate to anger related to eating gluten. I am 100% certain that it affects my brain in addition to every other part of my body. I'm glad that you read a lot and get information. Check out other threads on this team and on the Celiac and gluten free team. There is a wealth of information, recipes and answers to many questions. Glad you are a part of Spark People too! (Maybe some day they will have a GF eating plan.)

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ASTRALIS2012's Photo ASTRALIS2012 Posts: 20
6/12/10 10:19 A

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New to the forum and new to being gluten-free. I've suffered from a long list of health problems my whole life (I'm only 22 years old). Depression, chronic anxiety (has prevented me from living a normal life), stomach ailments (IBS, perforated ulcers), hypoglycemia, anemia, migraines, easily snapped tendons/ligaments (doctors never believed me that I was sitting down when a ligament snapped in my ankle), unusual joint pain and swelling (knee swelling that has prevented me from walking when it flares), menstrual problems (irregular bleeding, intense cramping for months at a time), urinary problems (many urinary and kidney infections, kidney pain, kidney stones), Anger problems (I was unable to control it as a child, as an adult I still experience it but keep it more bottled up), sleep disorders, heart arrhythmia, and neurological symptoms (numbness and tingling). I think Hypochondriac is permanently posted on my medical chart. I can't even see a doctor anymore. The only person who has really understood has been my mother (having suffered with undiagnosed fibromyalgia for years). She recently got a book from the library that was recommended to her and immediately called me and said "you need to read this". It was a book written by a doctor about celiacs and gluten sensitivity. I cried as I read it. And both of us were appalled that there isn't more information about it in mainstream (we both read a lot). Everything in it seemed to be word for word what I've been experiencing since I was very young. I had always wondered why I was so sensitive to beer, I would be sick after one and always chalked it up to being "light weight". Needless to say I immediately emptied my house of anything gluten and went gluten-free shopping. I am on day three now. But I feel like I am experiencing withdrawal symptoms. I have been feverish (sweating, clammy, excessively hot), having my brain fogs worse than usual, feel tired, and my anxiety and shakiness seems to be peaking. Is this normal?

P.S. sorry for such a long post.

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