She may simply be getting gluten or casein contamination. I started having symptoms mysteriously again last month, until I realized they started when one of doctors told me to double my intake of Tums per day (for the calcium). When I first went GF, Tums was saying all but their Smoothies were GF. I checked last month--their latest statement is that they can't control contamination from their vendors. I stopped taking them altogether and my symptoms disappeared.
Read the labels of everything she eats or puts on her skin, and also look them up online to see if anyone else is having problems with the product. Don't let her lick envelopes. Don't let her use the same toaster as non-GF people in your house and make sure the non-GF people don't leave crumbs around.
Goat milk doesn't contain casein, if your local stores have it.
Try substituting almond butter for peanut butter. (Peanut butter causes headaches and hives for me.) If you find a good way to make dairy free ice cream, I would like to know about it. I have children in my classroom who are GFCF and it is difficult at times when we celebrate birthdays and a parent wants to bring ice cream. I usually go and get Rice Dream. It is OK but not quite like ice cream.
Thank you both for your thoughts and prayers. We did keep a food journal prior to going CF and SF in addition to GF and when she was getting better, we stopped. I guess it could be something else or we are just missing something that she is eating that has GF hidden in it.
She does eat peanut butter - actually she LOVES pb. We avoid dairy entirely - no casein, no lactose, nothing. She uses Rice Milk in place of regular milk, which she doesn't necessarily like, but it is better than nothing. She is craving ice cream something terrible. I've tried coconut milk "ice cream", rice milk "ice cream", and almond milk "ice cream" and they are either too sweet or "tastes wierd". I have an ice cream maker and was thinking of trying to find a way to use rice milk and make my own - any suggestions?
There are a few GF groups around here but they all meet during the day when I am at work but I'll contact them and see if they have any other meeting options.
Thanks again, julie
"Unless You Puke, Faint or Die, Keep Going!" — Jillian Michaels
Have you tried keeping a food journal and even so far as eating one food at a time and waiting a few hours between? Does she eat peanutbutter? Any dairy definitely causes problems for me and it can be tricky to avoid as you need to avoid casein, whey and any lactose. Is there a support group near you for being gluten free? Maybe someone there would be helpful. You will both be in my prayers also. May answers be found to alleviate her pain and your frustration.
First of all, I have lifted you up in prayers and will continue to pray for you. Drs. just aren't God!!! They don't want to say they are wrong. I have a daughter that for years I took from Dr. to Dr. for chest pain and fast heart beat, always to be told nothing was wrong. After 10 years of Drs. I found one who listened. To make a story short she had heart surgery when she was 18 and he said it was a wonder that one of her attacks hadn't killed her. Hang in there and know you are being prayed for.
First, I must warn you that this is a very, very long post, but I feel that by giving more info, the better. Here it goes: I am a single mom to a wonderful 11 yo girl who has been GF for a little over a year, CFSF for 3 months. I am in deperate need of advice and have joined so many GFCF forums that I am hoping I can find an answer/suggestion here. For the past 2 years, my daughter has constantly complained of stomach aches (in the area around the belly button - not lower or upper stomach but the center) and headaches. I have taken her countless times to the pediatrician who every time said it was stress (due to her father and I divorcing). I have taken her to psychologiests and counselors - who only gave us stress relieving methods. The pediatrician just gave her xantac for acid issues. I have taken her to see a holistic practitioner who indicated that she should go GF and gave her enzymes to take for digestion. That seemed to help a little. This was all in 2007 and 2008. Things seemed to be rollercoaster with her health. I even took her to my chiropractor which helped a little with her headaches.
Finally, after countless nights of staying awake searchng what could be the cause her her headaches and stomachaches, and every night of hearing "I don't feel good, my head hurts and my stomach hurts" and it always in the same location - forhead for the headache and center of the belly for stomaches. I found a nutrition that could see her that within a few days of me calling.
The nutritionist indicated that we should go also go CF and SF. She was put on probiotics, glutamine, and enzymes twice a day and magnesium at night. That seemed to help. Things were going great. She started to feel alot better.
Fast forward to two weeks ago. Things have been going downhill. She has been complaining of headaches and stomacheaches and she has become very gassy - again. I have been getting very few hours of sleep because I don't know what else to do. I know that when she is with me she eats GFCFSF. But I'm afraid that maybe she came in contact with possibly a piece of candy or something that wasn't GFCFSF. I am not sure.
I hope I do not sound like a bad mom. I just don't know what else to do. I always ask her - just to make sure it isn't stress related - if anything is wrong and she always says no.
I must say that after reading a post on this forum, i was unaware that even ketchup had gluten in it. My daughter loves ketchup.
After spending countless money on doctors, chiropractors, nutritionists, time on websites and forums, I do not know what else to do. I hope and pray that someone out there can point me in the right direction.
"Unless You Puke, Faint or Die, Keep Going!" — Jillian Michaels
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