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  FORUM:   Introduce Yourself to Team Forum
TOPIC:   Still trying to wrap my head around this. 


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KIMBERLY19732
KIMBERLY19732's Photo Posts: 270
2/21/13 9:50 P

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Hi! My name is also Kim. I will be 40 this year. I've recently found SP and it just occured to me to look for this group. Your thread title caught my attention.

I was diagnosed with Mitral Valve Prolapse in elementary school. I was assured that this would only become a problem in my 60's. And that medical advancements might make surgery uneccesary.

My MVP was never an issue. I took antibiotics at the dentist and that was it. I married, had two children and lived my life.

At age 28 I had to have a full work up with my cardiologist before my hysterectomy. Even then I was told I'd be ok until I was in my 60's.

Fast forward --2010 I'm 37 and feeling pretty bad. My weight is too high but I have no energy or motivation. I grow weaker and more worn out. I have constant "cold" symptoms.

It honestly did not occur to me that this was related to my heart. I was going to the walk in clinic about once a month. In Nov 2010 I had an echocardiogram.
I could tell by the tech's reactions and questions that something was *off*. He explained that I DID NOT have MVP, instead it was aortic stenosis--pretty severe. and an aortic aneyurism!
My walk in clinic dr was not very helpful and I had to be very aggressive about getting to a cardiologist. But I did. By January I was meeting with a surgeon.
I *could* wait to deal with this but my symptoms would get worse pretty fast. I hoped I would be able to have a non invasive surgery. That did not happen.

Jan 24, 2011 I go in for full OPEN HEART surgery. The plan is to replace my valve with a ST. Jude artificial valve and repair the aneyurism.

It took 6-7 hours but it was "textbook perfect" according to the Dr. We expected 3 days in ICU, it was only 24 hours. I believe they thought I would be in the hospital about 10 days but I was able to leave on Friday afternoon.

So that's some background on me. Let me say that you WILL feel soo much better afterward.

All of your running and cardio will benifit you greatly. It's a BUMP, not the end of this road. It's very likely that you will start cardiac rehab within weeks of surgery. They will teach you how to build your endurance back up.

I would say that it was about six months from surgery and I was better than before.

It IS scarey, and there is pain but improves the quality of your life.

Happy to answer any questions emoticon


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TOMWAMP
TOMWAMP's Photo SparkPoints: (35,277)
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1/19/13 10:19 P

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Kim, Sorry your BAV has made it hard to keep your regular workouts and you have to cut down on your running. Your valve replacement surgery will make you feel so much better and you should be able to get back to your regular routine as you heal. God's blessings to you.

Giving God the glory each day for the all the bounty in my life

Co-Leader Spark Wisconsin-The Official Team

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CRAZYFORFOOD
CRAZYFORFOOD's Photo Posts: 141
1/19/13 8:34 P

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Hi everyone. My name is Kim and I'll be 50 in Feb. I've known I've had a bicuspid aortic valve since I was around 25 but I was given the impression at that time it was really nothing to worry about and that many people walk around with it and don't even know it.
2 years ago I started getting serious about losing weight and exercising. I joined a local fitness center and I lost 30 lbs and even ran in 4 different 5K's. I've felt better than I have in years. I especially enjoyed running. Last year however I started feeling pain in my chest and shortness of breath. I also feel like blacking out on a regular basis.
I found out through my cardiologist that my BAV has progressed and I also have regurgitation where the blood flows back into my heart. He told me from this point on I'm only soposed to keep my heart rate no higher than 130 and I can not lift anything that will cause me to strain. He also said that I will be needing a heart valve replacement in the comng future. That part will depend on how quickly it continues to weaken.
This totally took the wind right out of my sails. This means I am not soposed to run anymore. It means I have to back off of alot of the exercise that I helped me get to where I finally felt good about myself.
I'm working with a trainer to try and find a happy medium in all this and I do confess that I do still run a little. At one point I was up to 8 miles of running/walking and I know that is out of the question. But I still run up to a mile. Then I walk and feel guilty and then I'm in tears the rest of the way. I don't want to be stupid about all of this. But it's like a tug of war for me right now.
I will be seeing my cardiologist in March and will find out if the surgery will be in the near future or if I'll be rechecked again later.
I'm so glad to have found this group and it's helpful to know I'm not alone.


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