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DOBERMAMA Posts: 1
7/19/14 8:18 A

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Hi all... I am a born and raised southern California girl.

I'm not sure if I should sum things up from past or present. Let's go from the past first.

I was diagnosed with 2 cancers @ 3 almost 4 yrs old. I was put in a very aggressive treatment trial that consisted of 6 months radiation therapy and 1 1/2 yrs very strong chemo. My dad abandoned our family about 10yrs later, which was the time that my docs had said we need to watch out for leukemia.... no dad, no insurance. I was always sick, but luckily no leuk.

I was told @ 19 that I had cardiomyopathy and was in end stage heart failure. I received my gift of life @ 22 when my time had just about run out. I was hospitalized on a weekly basis and had to be on "the drip" in order to buy time.

I've been in tremendous pain and feeling completely drained since my 20s( I'm 38 ). I've been told it was a cold or flu, hormone imbalance, depression (they really pushed that one,even put me on drugs), then it was "if you lost weight, you'd feel better". When the pain and fatigue increased, my activities decreased. I gained 80 pounds and just about gave up.

I finally got a rheumatologist 2 years ago and got some real answers. She put me on a fentanyl patch with pain pills as needed. I've lost some weight over the past year, but now the pain & fatigue has got me spending days in bed again. I don't know anybody else with fibro, arthritis & osteoporosis. The other women I've met @ my docs have arthritis, but they always talk about how after their infusions they feel so much better & can get things done for months. I come home from mine and spend days in bed. I don't know if my experience is the norm or if it's just one more thing I'm on my own with.

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CAROLIAN's Photo CAROLIAN SparkPoints: (107,000)
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7/15/14 5:07 A

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What part of Scotland I used to live near Edinburgh but go to Berwick and Dumfries are a lot
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My name is Carol I live in UK Leader of DISABLED/FIBROMYALGIA & MORE
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Northwest England
Co Leader Fibro Friends
Fighting Fibromyalgia
FMS support


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7/1/14 5:15 P

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Hi everyone,

I was born in South Africa and lived there for 50 years. I then immigrated to Scotland in the Uk and have been here for 6 years.

I have Fibromyalgia and osteoarthritis and am in a wheelchair.

I sometimes hate where I am in life but I shake up myself and live another day and another and another.

I would love to have friends in the same or similar circumstances so that we can chat, it would be good to speak to someone that understands what it is like to have Fibromyalgia as I know no-one else that has.

Speak soon

Pam

AGED-CRYSTAL's Photo AGED-CRYSTAL Posts: 76
5/7/13 9:42 P

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I live in a tiny town called Dundee in central Oregon. Nice to "meet" you.

I have accepted fear as a part of life, specifically the fear of change, the fear of the unknown. I have gone ahead despite the pounding in my heart that says: Turn back, turn back; you'll die if you venture too far."
Erica Jong

Janean

SW: 245 (3-30-13)
CW: 227.4 (5-1-13)
STG 1: 220.0 (5-31-13)
STG 2: 210
STG 3: 200
STG 4: 190
STG 5: 180
STG 6: 170
GW: 160


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LADYLARAN's Photo LADYLARAN SparkPoints: (17,365)
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4/12/13 1:08 A

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Little town called Anahuac in Texas

I seldom think about my limitations, and they never make me sad. Perhaps there is just a touch of yearning at times; but it is vague, like a breeze among flowers. -- Helen Keller


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MAGGZD's Photo MAGGZD Posts: 63
4/10/13 7:42 P

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I was born & raised in Youngstown, Mahoning Co., OH

I married a GI & have taken "the road less traveled."

I fell off the wagon. I backslid a few pounds. It became apparent that I need to watch what I'm eating, especially during the holidays. FORWARD!

I slid back to goal #2 - 170. I've reached my second goal & am on my way to goal #3, 165 lbs again.


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SMIDGON's Photo SMIDGON Posts: 4,239
4/7/13 4:13 P

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Maggz
I actually live in Preble co.. About 16 miles from the state line!

Are you from Ohio? I was born and raised in the same co.. From the way it looks, I will probably die here!

What shopping I don't do here in town, I go to Richmond, In.. Only once in a while do I go to Dayton.

Janet

Edited by: SMIDGON at: 4/7/2013 (16:14)
"All things work together for the good of those who love the Lord, and are called according to His purpose."

Romans 8:28

~+~ Janet


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MAGGZD's Photo MAGGZD Posts: 63
4/6/13 9:50 P

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Smidgon,

I live close to Cols. now. Used to go to Wright-Patt for shopping, but now we're not far from Costco & gas is so much more expensive now.


I fell off the wagon. I backslid a few pounds. It became apparent that I need to watch what I'm eating, especially during the holidays. FORWARD!

I slid back to goal #2 - 170. I've reached my second goal & am on my way to goal #3, 165 lbs again.


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SMIDGON's Photo SMIDGON Posts: 4,239
4/6/13 10:24 A

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Hey, Maggzd I live near Dayton, Ohio!

~+~

"All things work together for the good of those who love the Lord, and are called according to His purpose."

Romans 8:28

~+~ Janet


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MAGGZD's Photo MAGGZD Posts: 63
3/14/13 4:44 P

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Do you mean originally, formerly or currently. I've had 16 mailing addresses in the last 40+ years.

Originally, I'm from Youngstown, OH.

I have lived in IN, Philippines, west TX, OH, NH, LA, OH, MO, IL, OH...

I currently reside in central OH.

I fell off the wagon. I backslid a few pounds. It became apparent that I need to watch what I'm eating, especially during the holidays. FORWARD!

I slid back to goal #2 - 170. I've reached my second goal & am on my way to goal #3, 165 lbs again.


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HORSLOVR69's Photo HORSLOVR69 SparkPoints: (94)
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8/13/12 1:59 A

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I come from a little town called Harrisburg, Oregon.

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JAE_HENNINGTON Posts: 6,577
7/28/12 10:07 A

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I live in Kansas



Where there is no struggle, there is no strength.




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CAROLIAN's Photo CAROLIAN SparkPoints: (107,000)
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4/30/12 1:24 A

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I live in a little village called Penny Bridge which is in the Lake district of Cumbria UK emoticon

My name is Carol I live in UK Leader of DISABLED/FIBROMYALGIA & MORE
Northern English Lassess
Northwest England
Co Leader Fibro Friends
Fighting Fibromyalgia
FMS support


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