Hi all... I am a born and raised southern California girl.
I'm not sure if I should sum things up from past or present. Let's go from the past first.
I was diagnosed with 2 cancers @ 3 almost 4 yrs old. I was put in a very aggressive treatment trial that consisted of 6 months radiation therapy and 1 1/2 yrs very strong chemo. My dad abandoned our family about 10yrs later, which was the time that my docs had said we need to watch out for leukemia.... no dad, no insurance. I was always sick, but luckily no leuk.
I was told @ 19 that I had cardiomyopathy and was in end stage heart failure. I received my gift of life @ 22 when my time had just about run out. I was hospitalized on a weekly basis and had to be on "the drip" in order to buy time.
I've been in tremendous pain and feeling completely drained since my 20s( I'm 38 ). I've been told it was a cold or flu, hormone imbalance, depression (they really pushed that one,even put me on drugs), then it was "if you lost weight, you'd feel better". When the pain and fatigue increased, my activities decreased. I gained 80 pounds and just about gave up.
I finally got a rheumatologist 2 years ago and got some real answers. She put me on a fentanyl patch with pain pills as needed. I've lost some weight over the past year, but now the pain & fatigue has got me spending days in bed again. I don't know anybody else with fibro, arthritis & osteoporosis. The other women I've met @ my docs have arthritis, but they always talk about how after their infusions they feel so much better & can get things done for months. I come home from mine and spend days in bed. I don't know if my experience is the norm or if it's just one more thing I'm on my own with.
current weight: 169.6
Fitness Minutes: (126,659) Posts: 5,561 7/15/14 5:07 A
I was born in South Africa and lived there for 50 years. I then immigrated to Scotland in the Uk and have been here for 6 years.
I have Fibromyalgia and osteoarthritis and am in a wheelchair.
I sometimes hate where I am in life but I shake up myself and live another day and another and another.
I would love to have friends in the same or similar circumstances so that we can chat, it would be good to speak to someone that understands what it is like to have Fibromyalgia as I know no-one else that has.
I live in a tiny town called Dundee in central Oregon. Nice to "meet" you.
I have accepted fear as a part of life, specifically the fear of change, the fear of the unknown. I have gone ahead despite the pounding in my heart that says: Turn back, turn back; you'll die if you venture too far." – Erica Jong
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