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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,277
11/19/13 2:58 P

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Carla, You are making great progress. When I first got the machine I woke up about five times a night and had to put the mask back on. I was determined to be compliant. Also I felt better during the daytime even with the night waking and slapping the mask back on. It took six months to sleep the whole night through. I succeeded in training myself by tying an ace bandage around my head. Now they have chin straps, which I bought as soon as I found out they existed. Don't need it anymore. Can't sleep without the white nose and the straps all over my head and face.



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DANCESTAMP's Photo DANCESTAMP Posts: 726
11/18/13 10:22 P

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so much for being a natural, last night I couldn't get the nasal pillows to stay at all and by 1am I took them off. and then I received an email today to be able to track my sleeping, only 2 weeks after getting the machine, I thought they were going to set it up earlier, but I guess better now than never. so starting today, it will track my time and when I use it. I hope tonight goes better than last night, but I still ended up with 6 hours and 22 min of sleep.

carla
It never gets easier, you just get better.

Motivation is what gets you started, habit is what keeps you going!


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MAMAMACK44's Photo MAMAMACK44 Posts: 507
11/18/13 7:58 A

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Carla that is awesome! You are a natural. :) I hope that it continues to go well for you.

Kristyn

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DANCESTAMP's Photo DANCESTAMP Posts: 726
11/17/13 9:46 P

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well I was so tired playing at the computer last night, I went upstairs to bed. I set my alarm for 9am, I ended up getting 9 hours sleep wearing the mask, I didn't take it off until my alarm went off, so that wasn't too bad. we will try again tonight, I have to go upstairs now, I will only get 7 hours sleep tonight, I have to get up at 5:30am, I am still bringing a coworker to work because she cannot drive yet, she has really bad vertigo.

carla
It never gets easier, you just get better.

Motivation is what gets you started, habit is what keeps you going!


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54JIMMY's Photo 54JIMMY SparkPoints: (19,504)
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11/15/13 11:53 A

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Carla - Hang in there. It took me six weeks of perseverance and then a switch flipped inside me and things were then much easier. I was able to wear the mask for 7 or more hours a night, I wasn't nearly as drowsy, a much calmer attitude. Don't get me wrong, it is still work but it does help. Baby steps at first. Another newbie (Kristyn) seemed to take off on it like a rocket. If I remember, she was wearing the mask for 6 hours a night or more in the first week. I believe that I was like most and lucky to get just over an hour or so a night in my early stages. You will adjust. Just give it some time and don't give up

"If all your friends were named Cliff would you jump off of them?" Hugh Neutron

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DANCESTAMP's Photo DANCESTAMP Posts: 726
11/15/13 11:23 A

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i have been wearing the nasal pillows since tues night november 5th, i didn't wear them one night cuz i was highly frustrated, but i have worn since. i called today, i saw online where you can get gassy and bloaty. i thought it was something i ate and only to find out it is the cpap machine causing it. i haven't been able to lose weight in 2 weeks actually gaining weight. i am highly frustrated from this. i have been eating well. the nurse told me to take gas x and do some different stretching to relieve the wind, nice.
so i am a bit grumpy right now, the nurse told me i was being a champ, i sure hope this gets easier. i really need to lose weight and i have a goal by the end of the year and i would like to meet that goal. no one told me this would cause me to be bloaty and gassy and/or make me lose weight. sorry, but i am just highly frustrated and a bit irritable right now

carla
It never gets easier, you just get better.

Motivation is what gets you started, habit is what keeps you going!


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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,277
11/7/13 1:56 P

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Dance, Masks are still a pain ten years later, but some are certainly better than others. Underwire bras are miserable too, but we wear them. We even torture our feet with Jimmy Choos for the sake of beauty. So, the cpap and mask will make you look younger and more beautiful, because you will be rested and happy. Just keep trying and posting your results. We will do our best to support your efforts and give you tips to make it easier.



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TATASTHA's Photo TATASTHA Posts: 2,101
11/6/13 9:02 P

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They tell me the key to sleep apnea is to just keep using the cpap machine everyone has problems with them at first put they won't help you at all if you don't use it. The health care providers, people her & the information videos & other cpap site can help you get over some of the problems if you are having problem talk about them & maybe some one has the solution but keep using your machine.


Do, or do not. There is no 'try." -Yoda (Star Wars)


DANCESTAMP's Photo DANCESTAMP Posts: 726
11/5/13 9:02 A

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hi,

I am finally getting my machine today. I pick it up after work. I found out a lady at work has one, she has the mask and she hates it, and ends up not wearing it much of the night. she starts out with it, but then takes it off during the night. so we will see. she keeps telling me i won't like the nose piece, we will see. she has not been so positive about the whole thing.

i called last thursday and they had it there, i am not sure why they didn't call me, i have a followup appt with my pulmonology dr in dec, so i guess i better have tried the machine. I am really working on my food, have lots of fruits and veggies and have been cooking. i exercise all the time, i just need to be consistent as my personal trainer told me yesterday, to stay consistent. so we will see how tonight goes. it may take some time to get used to, but i would love to have more energy. i woke up this morning and wanted to go back to sleep for the rest of the day, but i am taking a friend to work right now, we work in the same building. she is paying me for the ride, we figured out a charge for each ride, so i will take her every morning and in the afternoons i only take her once or twice. so it works out. and i am on time for work which helps. cuz i get lazy.

i will check back in later this week to tell how i am doing.

carla
It never gets easier, you just get better.

Motivation is what gets you started, habit is what keeps you going!


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MAMAMACK44's Photo MAMAMACK44 Posts: 507
11/2/13 7:58 A

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Hi Carla,

Welcome to the team! I'm curious if you've gotten your machine yet and how it's going? I've only been using my machine about 3 weeks so, I'm pretty new also. So far it's going okay. I will say that every night hasn't been perfect but, I feel like I'm getting the hang of it. Please let us know how you're doing.

Kristyn



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Mini-goal 60 pounds gone by 10/16/14
Goal #3 - 71 pounds gone by 12/31/14


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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,277
10/26/13 5:33 P

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Carla, Welcome to the team. I got my equipment over ten years ago and it took two months. That is not acceptable anymore. I am with Jerry in that I think you are doing a great job of advocating for yourself. One thing about getting my cpap is that I felt better overnight.

You can start working on your dad slowly. Be totally enthusiastic about your equipment and how much more energy you have. Then start giving him the statistics about how apnea kills and you want him around for grandkids. You know your dad best. You will know how to work on him. My mom had that asthmatic wiffly snore too. She lived to 90. My skinny dad who only ground his teeth lived to 92.

Regarding losing weight, I lost 50 pounds and was able to bring my pressure down to 10. That makes living with the cpap easier. Natural foods, palate exercises and exercise in general will help firm up the flabby palate. Best of luck in your health and wellness journey.



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54JIMMY's Photo 54JIMMY SparkPoints: (19,504)
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10/25/13 3:55 P

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Carla - It sounds like you are doing it right. With this treatment you will soon learn that you are your best advocate! So hopefully soon you will be off to better sleep.
Some are able to take right off with treatment, others like myself take a while to adjust. When you do get your machine, keep us posted on your progress and if you have any questions don't be shy, ASK.

"If all your friends were named Cliff would you jump off of them?" Hugh Neutron

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DANCESTAMP's Photo DANCESTAMP Posts: 726
10/25/13 12:55 P

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so I called my pulmonary dr today and they said the cpap machine had been ordered on the 22nd of october, but i had to call another place. Called them and they haven't received any orders yet, so I called dr back to have them refax everything, I guess I won't get my machine until next week, oh well.

carla
It never gets easier, you just get better.

Motivation is what gets you started, habit is what keeps you going!


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54JIMMY's Photo 54JIMMY SparkPoints: (19,504)
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10/24/13 9:00 P

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Welcome to the Sleep Apnea Team!

The day after my follow up at the Sleep Dr. I had a call from the the equipment provider to come down for a mask fitting and instructions on how to use the machine. So for me it was only one day. Other equipment providers may have to order in a machine and it may take three days to a week. I don't think that it would go much longer than that.
If I may make a suggestion, ask for a 'fully data capable' machine. This way when you download software on your computer you can view your nightly results. This is great information that you are able to see your progress. You may need to have the Dr. change your prescription in order to get that type of a machine.

I hope you get your call soon!

"If all your friends were named Cliff would you jump off of them?" Hugh Neutron

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DANCESTAMP's Photo DANCESTAMP Posts: 726
10/24/13 4:07 P

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I was just diagnosed with mild sleep apnea and had my fitting sleep study done last week. I am waiting to hear back from the dr. I will only have to wear the nose mask I guess is what it is called. I do not have to wear a full mask. it was difficult for me to fall asleep with it on.

I know my dad doesn't breathe when he sleeps at night and snores very loudly. my mom snores but hers is a weird snore, more like a stuttering snore with a high pitch. I told my mom that my dad should get tested but he is very stubborn and won't.

I am curious to know how long it should take for your dr to call you when the machine is in and ready to test. I have a followup in December so that I have worn it for at least 4-6 weeks I suppose. my pulmonologist also highly suggests I lose weight, so I am really trying to, just a really hard time of the year to do that. I will be lucky to stay the same for the next 3 months.

Thanks for the info about sleep apnea, very helpful!

carla
It never gets easier, you just get better.

Motivation is what gets you started, habit is what keeps you going!


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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,277
10/20/13 12:56 P

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I hope the cpap works as well for you as it did for me. It sounds like your family could have benefited from a cpap. The blessing is that you will be able to set a good healthy example for your younger family members.



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TATASTHA's Photo TATASTHA Posts: 2,101
10/4/13 8:52 P

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Had my first night last night with the "test" CPAP machine. I woke up once (had to take dogs for a walk) but I had a good night sleep before & after the walk.

I am also thinking this may be inherited I remember as a child my grandmother (she stayed with us & slept in my room)every night she would wake up in the middle of the night screaming unable to breath. My mother said it was because her thyroid there was never any testing back in the 60's like there is now. She later developed dementia, she had high blood pressure & diabetes & later died of what everyone thought was a stroke.

The story was similar with my mother she never slept well & when she developed dementia I thought Alzheimer's & took her to be tested although the signs & symptoms are the same she never responded to the Alzheimer's medications.

Both of my mother's sister pasted away with strokes with in a few years of her.

Years ago one of my brothers was diagnosed with sleep apnea & has been on CPAP since although he suggested I may also have sleep apnea I rejected the notion. I don't snore & I thought I was getting a good night sleep.

while I was getting the test machine I learned about a new sleepmapper a new app you can get to help monitor how you CPAP is working for you does any one here use sleep mapper?

Do, or do not. There is no 'try." -Yoda (Star Wars)


GRAMMACATHY's Photo GRAMMACATHY Posts: 19,277
9/28/13 1:01 P

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Our food is so modified and the ground sterile, we are not getting the D or other nutrients in our food like we did a hundred years ago. It is amazing the difference in my back yard tomatoes vs store tomatoes. They taste better and I am satisfied after about four cherry sized tomatoes.

That is why juicing or eating organic helps with weight loss. We don't have to eat so much to get what our bodies need. I also live in a rain belt. The docs had me on 50,000 iu's of D for six months. It helps with the energy levels. Which brings up an interesting thought for new cpap users who don't get instantaneous relief the first night of use. They may have other health issues going on too.



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KPA1B2 SparkPoints: (44,463)
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9/27/13 5:01 P

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I too was diagnosed with vitamin d deficiency. I've been taking vit. d 3 for almost 3 months now. Next month,not sure when, I go & have another blood test to see how I'm doing.

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TRACYDUKA's Photo TRACYDUKA Posts: 951
9/27/13 10:09 A

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They say that there is a form of sleep apnea that could be genetic. For instance, my gramma had it (untreated), my mom has it (she literally will stop breathing in her sleep), I have it ( I never stop breathing, I just FIGHT HARD for it. My AHI levels were 120 before my machine. Now they are 4 per NIGHT.), and they are having me keep an eye on my son who's 4. He's already had to have his adenoids removed.

Due to the high pressures I have, the doctor won't let me have anything other than a face mask. For me, a fit is hard because I am very short from forehead to chin. The smallest mask with a forehead bar, fits in the nose/mouth area, but the forehead bar almost comes off my head. BUT the quattro mask that is a full mask without the forehead bar leaked like CRAZY around the bridge of my nose. But right now, my mask does ok. I still get leaks, but I've found myself waking up with my hand against my mask holding it to my face. So apparently in my sleep I've figured out how to get it to "shut up", *L*

Tricky Tracy


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TATASTHA's Photo TATASTHA Posts: 2,101
9/24/13 6:48 P

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Thanks for the great suggestions I have been checking out the videos & web sites. I am especially interested in the information that suggests that vitamin D deficiency may be linked to sleep apnea. I was also just told I am deficient in vitamin D too. So I want to get my D levels up before the next time I have a sleep apnea test & see if anything improves.


Do, or do not. There is no 'try." -Yoda (Star Wars)


GRAMMACATHY's Photo GRAMMACATHY Posts: 19,277
9/19/13 12:55 P

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Jimmy, great answer and great link. www.apneaboard.com/

Tatatstha, Your doctor will ask you questions and advise you. You don't have to do anything right now if you don't want, but, I would get familiar with all the types of masks so you can intelligently to your doctor. Watch you tube videos. www.youtube.com/watch?v=aSk7dP0UFQI Here is one that has a brief overview of several masks at the beginning. Also, make you you lay down while trying on masks. Sitting up fit is not the same. Curl up into what ever position you sleep in. I am a side sleeper and the first mask was too big. I could not stop the leaks. I personally prefer a nasal mask, but you have to do a lot of training to keep the mouth closed. A chin strap helps with that.

Again we have thrown a lot of information at you. Keep studying. Your health depends on a good experience.



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54JIMMY's Photo 54JIMMY SparkPoints: (19,504)
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9/19/13 11:33 A

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I am also fairly new to being diagnosed and now to CPAP therapy. I have been using a machine for 7 weeks now. I have been to many sites on the web and have learned lots and lots. What I have found out is that YOU are your best advocate! Read up, follow this group for help and support. I also view and participate in www.apneaboard.com There is lots of help and advice there.

Did you get a report from your Dr. on how many events per hour (AHI) that you had? My AHI was 112, almost two times per minute. With my severity, my Dr. prescribed a data recording machine that would vary pressures to keep my airway open. Also I am a mouth breather (nose is blocked most of the time) so I use a full face mask. Being a mouth breather the humidifier is a MUST. I have a friend who wears a nasal mask and he claims he doesn't need or use a humidifier. Even if you are able to go with a nasal mask or nasal pillows my thought would be that the humidifier would make it more comfortable.

I may have jumped too far ahead for you but hopefully some of this will make some sense.

"If all your friends were named Cliff would you jump off of them?" Hugh Neutron

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TATASTHA's Photo TATASTHA Posts: 2,101
9/19/13 10:09 A

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I have not been fitted with a mask or machine yet. That should happen latter this week or early next. That's what I was wondering is there something I should be looking for in a mask or machine or do they just tell you which one you get based on your needs?

Do, or do not. There is no 'try." -Yoda (Star Wars)


GRAMMACATHY's Photo GRAMMACATHY Posts: 19,277
9/18/13 10:28 P

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Welcome to the team. I have been on the cpap or over ten years and it has saved my life, sanity and health.

The type of machine you will get depends on the type and severity of your apnea. The first time around the doctor will usually choose for you.

Have you had your titration study yet, where they fit you with a machine and mask and adjust pressure to determine your needs?

Here are links, so you can start getting familiar with the different masks www.cpap.com/cpap-masks.php

and machines www.cpap.com/cpap-machines.php

Masks are the trickiest to get the right fit. So think about your needs. Check out masks on you tube. lots of good vids there.



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PLUSNOMORE5 Posts: 5,355
9/18/13 10:26 P

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Hi,
If you read past posts you will get tons of information. Welcome to the group!

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9/18/13 8:22 P

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I've had my machine for less then a month. I wasn't given a choice in my machine. It's what my doctor prescribed.

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TATASTHA's Photo TATASTHA Posts: 2,101
9/18/13 8:17 P

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Hi I was just diagnosed with sleep apnea. I was a bit surprised because I never snore (although I have been known to sing from time to time) I am new to all this, any suggestions on what I need to ask, or features I should be looking for in a CPAP machine would be appreciated.

Do, or do not. There is no 'try." -Yoda (Star Wars)


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