Author: Sorting Last Post on Top ↓ Message:
LADYSHERRY's Photo LADYSHERRY Posts: 3,274
9/9/14 3:26 P

My SparkPage
Send Private Message
Reply
Jimmy- That's the mask I started with.
For me it was awful all the way around. The leaking never stopped. With the Liberty it's very easy to adjust to get a good sleep. It's very comfortable, Good Luck

 current weight: 180.0 
 
204.8
184.85
164.9
144.95
125
54JIMMY's Photo 54JIMMY SparkPoints: (23,012)
Fitness Minutes: (14,374)
Posts: 474
9/9/14 10:28 A

My SparkPage
Send Private Message
Reply
Sherry - I use a Mirage Quattro full face mask. I just got a new cushion and headgear so it is taking me some time to get everything dialed in so I will have fewer leaks. I have looked at the Liberty but that is as far as I have gotten with changing masks so far. Also, great job on standing up to your therapist and getting the mask that you wanted!

"If all your friends were named Cliff would you jump off of them?" Hugh Neutron

Resmed S9 Autoset, Mirage Quattro ffm, 12-15 cmh2o


 current weight: 296.0 
 
300
282.5
265
247.5
230
LADYSHERRY's Photo LADYSHERRY Posts: 3,274
9/8/14 5:19 P

My SparkPage
Send Private Message
Reply
Jimmy-I think it's the liberty. I am an open breather so, I choose that one to try. My next choice was going to be just the nose pillows with the chin strap. The therapist tried her best to change my mind about the nose pillows when I told her about switching to the liberty. I'm glad I stuck up for myself. What do you use?

 current weight: 180.0 
 
204.8
184.85
164.9
144.95
125
54JIMMY's Photo 54JIMMY SparkPoints: (23,012)
Fitness Minutes: (14,374)
Posts: 474
9/8/14 5:02 P

My SparkPage
Send Private Message
Reply
Sherry - I'm glad that you were able to find a mask that works for you. I have heard that some people go through quite a few masks before they find one that works for them. I'm curious, what mask do you have?

"If all your friends were named Cliff would you jump off of them?" Hugh Neutron

Resmed S9 Autoset, Mirage Quattro ffm, 12-15 cmh2o


 current weight: 296.0 
 
300
282.5
265
247.5
230
LADYSHERRY's Photo LADYSHERRY Posts: 3,274
9/8/14 4:55 P

My SparkPage
Send Private Message
Reply
Hi guys, Just joined the team. I hadn't even thought about a sleep apnea team. Glad you're here. I had a hard time at first. The mask kept leaving blisters across the bridge of my nose. When I talked to the therapist she said there was this gel cushion she would send me. It didn't work. I called her back. Mind of I gave it a couple of months. Healing up and trying again. When I called her back she said" you have to be willing to try hard and to learn to use it". I told her how I am trying that I don't want any more seizures. She finally listened to me after I had research different masks. She sent me the new one and I am still happy with it after at least a year.

 current weight: 180.0 
 
204.8
184.85
164.9
144.95
125
54JIMMY's Photo 54JIMMY SparkPoints: (23,012)
Fitness Minutes: (14,374)
Posts: 474
7/31/14 10:25 A

My SparkPage
Send Private Message
Reply
Lisa- I'm glad that you are doing so good on CPAP!!!!!! I believe that the 460 machine is fully data capable, so if you get SleepyHead on your pc you will be able to see every breath that you take and all of your events. I would like to recommend a website for you to look at that has additional help plus he has videos and links on SleepyHead. The price is right, it's free! This helps you to actually see the benefit that you are getting from this therapy. That site is: www.freecpapadvice.com (sorry, I don't know how to post a clickable link but I will learn how someday)

Jerry

Edited by: 54JIMMY at: 7/31/2014 (10:28)
"If all your friends were named Cliff would you jump off of them?" Hugh Neutron

Resmed S9 Autoset, Mirage Quattro ffm, 12-15 cmh2o


 current weight: 296.0 
 
300
282.5
265
247.5
230
LOVELYLILLADY's Photo LOVELYLILLADY Posts: 69
7/31/14 9:49 A

My SparkPage
Send Private Message
Reply
It is a REMSTAR PRO 460. Yeah. I had a ton of leaking last night, but I was able to keep the mask on the whole night. I started at my highest level and didn't even have to use the ramp! According to the "therapy time" I got about 6 and a half hours of quality sleep. Work has been running me ragged so I will take all the sleep I can get! :)

Thank you again for all your help. I really appreciate it!

GRAMMACATHY's Photo GRAMMACATHY Posts: 19,419
7/30/14 6:53 P

My SparkPage
Send Private Message
Reply
Jimmy's advice is sound. Thank you for keeping up with the posts and inquiries.



 Pounds lost: 4.0 
 
0
2.5
5
7.5
10
54JIMMY's Photo 54JIMMY SparkPoints: (23,012)
Fitness Minutes: (14,374)
Posts: 474
7/30/14 10:17 A

My SparkPage
Send Private Message
Reply
I am still curious what model of machine is that you have. To find this out, take out the water chamber (very important). The number should be on the bottom of the unit. It should be something like 250, or 560, or some other three digit number. This way I can look up some of the specs on your specific unit. I'm glad that you were able to get 5 HOURS! That is fantastic! It took me six weeks to get there. You may be playing with your straps for a week or two to quell the leaks. How the DME fits the mask at the office is a far cry from what actually works when you are actually using it.

"If all your friends were named Cliff would you jump off of them?" Hugh Neutron

Resmed S9 Autoset, Mirage Quattro ffm, 12-15 cmh2o


 current weight: 296.0 
 
300
282.5
265
247.5
230
LOVELYLILLADY's Photo LOVELYLILLADY Posts: 69
7/30/14 9:29 A

My SparkPage
Send Private Message
Reply
I think the mask straps were sitting too high on my head, I lowered them last night and it seemed a bunch better. I slept for about 5 hours straight with the cpap. Also, while I was doing my bedtime routine I decided to leave it on the highest pressure level which is 13 (for now they said I need it to be higher but I kept waking up during the sleep study when the pressure was higher). I think it helped me get acclimated, so I didn't wake up like the night before. I have a RemStar pro C Flex. I didn't look to see if there was a model number. I did find something called "Therapy Time" which I didn't fully understand. I worked really late yesterday so I didn't get a chance to look at the booklet of information I was given. I will absolutely look into Sleepyhead. I know there is an app for it called SleepMappers, but the reviews weren't great. I did wake up a bit more alert, which is always a nice change!

ARMATTHAEI's Photo ARMATTHAEI Posts: 1,960
7/29/14 5:33 P

My SparkPage
Send Private Message
Reply
Welcome to the group Lisa. I hope you can come to love your CPAP as much as I love my BiPAP. I went from hallucinations and falling asleep at work & when driving to working full-time in my job as a hospital nurse again.

Blessings,
Amanda, RN

Team Leader of Night Shift Nurses
Team Leader of Nurses Everywhere


 current weight: 200.6 
 
220
200
180
160
140
54JIMMY's Photo 54JIMMY SparkPoints: (23,012)
Fitness Minutes: (14,374)
Posts: 474
7/29/14 2:44 P

My SparkPage
Send Private Message
Reply
For the first 30 days your equipment provider will work with you on getting the right mask and proper fit, so if you are having trouble be the squeaky wheel and get them to take care of the issue. What is the make and model of the machine you have? There is some free computer software out there that (depending on machine) will let you see every breath that you take at night. It will show and categorize events and leaks, show your pressure(s) and more. I found this very useful when starting out because this would give me a visual such as leakage and I could adjust for it. If you get a chance check out Sleepyhead software. There are some Youtube videos out there on it too.

"If all your friends were named Cliff would you jump off of them?" Hugh Neutron

Resmed S9 Autoset, Mirage Quattro ffm, 12-15 cmh2o


 current weight: 296.0 
 
300
282.5
265
247.5
230
LOVELYLILLADY's Photo LOVELYLILLADY Posts: 69
7/29/14 1:29 P

My SparkPage
Send Private Message
Reply
Thank you for replying so promptly! When I did the split sleep study, I slept pretty well once they hooked me up to the cpap machine. I have the nose pillow mask and I think the holes may be too small. During the sleep study they had me in one size bigger, so I think that is why I feel a little suffocated. I think I slept about an hour and a half the first time with my mask. I kept having to mess with it to get it back in a good position. Then I think I slept for another couple hours until my cat woke me up (JERK!). When I tried to call him up on the bed a rush of air went through my mouth and that is when I took the mask off completely. I ended up putting it back on about an hour or so later and slept another half hour(ish).
When I get home I am going to look at how long I actually slept with the mask on. I was trying to do it this morning but I didn't know how to get back to the menu and didn't have time to mess with it.
Again thank you so much for the support, it is so helpful talking to people who know what I am going through!!!

54JIMMY's Photo 54JIMMY SparkPoints: (23,012)
Fitness Minutes: (14,374)
Posts: 474
7/29/14 11:57 A

My SparkPage
Send Private Message
Reply
We have similar OSA numbers, mine was 117. Its hard to believe that a person can stop breathing twice a minute, no wonder we were tired! There are a few people who take to CPAP therapy right away, the rest are like us. It took me about six weeks until I was able to sleep a full night with the mask on. At first I struggled with an hour a night. Then in the second week I go two hours. by the third week I was at four hours a night. This was when I started playing with the mask more to subdue the leaks. At six weeks I finally decided that I didn't like the ramp feature. I felt like I was suffocating until the machine came up to my recommended pressure. I shut this feature down and went to 'Bring It On' mode. Now I can't imaging trying to go to sleep without the machine, I like that continual boost of air.

Keep posting your questions for us to help you with. Don't give up! Keep it going.
Jerry

"If all your friends were named Cliff would you jump off of them?" Hugh Neutron

Resmed S9 Autoset, Mirage Quattro ffm, 12-15 cmh2o


 current weight: 296.0 
 
300
282.5
265
247.5
230
LOVELYLILLADY's Photo LOVELYLILLADY Posts: 69
7/29/14 11:32 A

My SparkPage
Send Private Message
Reply
I joined the team a couple weeks ago right after I got diagnosed with OSA I have 120 apneas an hour. I just started my treatment last night. Overall, I think it went pretty well. I did end up taking my mask off because I felt like I was suffocating. Is that a common feeling? I do feel more alert overall, like I don't have to try so hard to function. I am still EXHAUSTED, but I am guessing that is because I have a lot of sleepless nights to make up for!

GRAMMACATHY's Photo GRAMMACATHY Posts: 19,419
8/2/13 3:11 P

My SparkPage
Send Private Message
Reply
Sorry, for missing your post.

I am glad you made it to the doctors in time to embrace this life saving machine. My number was 60 in an hour and even though I fought the mask all night long, I still woke healthier and more alert than I ever had even as a skinny teen. I hope despite the fight with the mask you are noticing an immediate improvement in energy.

When you post again, start a new thread to alert our other members you have joined the team. I look forward to hearing how your first night went. Best of Luck.



 Pounds lost: 4.0 
 
0
2.5
5
7.5
10
54JIMMY's Photo 54JIMMY SparkPoints: (23,012)
Fitness Minutes: (14,374)
Posts: 474
7/31/13 2:37 P

My SparkPage
Send Private Message
Reply
I was diagnosed at the beginning of this month with severe OSA. I didn't realize how bad it was until yesterday when I picked up my CPAP machine. From the numbers presented at my follow-up I had 111 apneas in an hour. I was told that 35 was severe and I am three times severe. Since I got home late last night I didn't have time to set up the machine so I will start tonight. I am kind of excited to be on the road to recovery but a little apprehensive on how I will adjust to wearing the mask and the continuous air.
I am sure that I will be referring to the expertise of the team to help me along the way especially during this transformation period. So thanks in advance for all of your advice.

"If all your friends were named Cliff would you jump off of them?" Hugh Neutron

Resmed S9 Autoset, Mirage Quattro ffm, 12-15 cmh2o


 current weight: 296.0 
 
300
282.5
265
247.5
230
GRAMMACATHY's Photo GRAMMACATHY Posts: 19,419
7/29/13 6:20 P

My SparkPage
Send Private Message
Reply
Call the advice nurse immediately. This might not be related to the cpap. I am concerned about your heart.

Please post and let us know how you are doing.

The only time I experienced the breath shortness was after the two major apnea events. One hospitalized me for four days. Can you check your machine to see if you had a prolonged apnea event?

Take it easy until you talk to a medical professional. Maybe take an aspirin too. You aren't getting enough oxygen somewhere.

Edited by: GRAMMACATHY at: 7/29/2013 (18:23)

 Pounds lost: 4.0 
 
0
2.5
5
7.5
10
GIANNI26's Photo GIANNI26 SparkPoints: (3,661)
Fitness Minutes: (1,160)
Posts: 262
7/29/13 11:20 A

My SparkPage
Send Private Message
Reply
Some one please help... tell me i"m not crazy...well at least tell me if you have heard about or had this problem. I feel so short of breath today I feel like its hard to breath never ever had this before the cpap machine what do I do.

Goal 1-350
Goal 2-330
Goal 3-300
Goal 4-285
Goal 5-270
*Gianni*


 Pounds lost: 17.0 
 
0
17.5
35
52.5
70
GRAMMACATHY's Photo GRAMMACATHY Posts: 19,419
5/28/13 1:58 A

My SparkPage
Send Private Message
Reply
Yes, the nasal pillows are rough at a lower pressure too. Anyway, I had dried out sinuses and a headache from them.

I understand why you can't use a nasal mask. Leaking is fairly common. Most people tighten their masks too tight trying to stop the leaking and create other problems. A looser mask will leak when you move and then stop when you are still. Loose is better. I roll over and reset my mask on my face and hardly wake to do that anymore. It has become a reflex.



 Pounds lost: 4.0 
 
0
2.5
5
7.5
10
TRACYDUKA's Photo TRACYDUKA Posts: 951
5/27/13 10:38 A

My SparkPage
Send Private Message
Reply
I have cysts in my upper lip from a surgery that blocked some salivary glands and the doctor thinks that a nasal mask might irritate it because of the pressure from the mask. I also asked about possibly getting the pillows because that's what my Mom uses, but he said that at that high a pressure, it would be painful. :( I asked him about the leaks, he said according to my sd card, the leaks apparently weren't too bad because it cut my events down so much. He said that most all masks leak a little, it's just a matter of finding one that doesn't leak as bad that is also comfortable.


Tricky Tracy


 Pounds lost: 50.0 
 
0
54.25
108.5
162.75
217
GRAMMACATHY's Photo GRAMMACATHY Posts: 19,419
5/24/13 12:29 A

My SparkPage
Send Private Message
Reply
Welcome to the team. I am glad the cpap has been a miracle for you too. Two stops a minute is a lot. 18 is really high pressure. Don't be afraid to try other types of masks. I have a full face mask for allergies and colds, but much prefer my nasal mask. A good nights sleep is like a miracle.



 Pounds lost: 4.0 
 
0
2.5
5
7.5
10
TRACYDUKA's Photo TRACYDUKA Posts: 951
5/23/13 9:01 P

My SparkPage
Send Private Message
Reply
I am newly diagnosed with sleep apnea. But I wasn't surprised with the diagnosis. My gramma had it, my Mom has it, my son even had it until they removed his adenoids (he's 4). I felt narcoleptic, I would drop asleep anytime I sat down, and I was told I snored something fierce. Though I'd sleep a solid 8 hours a night and felt like it was good sleep. I had my study done and found out I had 120 events per HOUR. 30 events was labeled severe. Good thing was, I never STOPPED breathing, I just FOUGHT to breathe. I have a smart machine. It was set on auto-adjust at first, then at the 6 week visit he set it to my usual spot (18), and I can hit a ramp button so it doesn't take my breath away at first. I have a full mask and honestly, I don't like it. It's constantly leaking somewhere, making a pooty noise and waking me up. However, I feel a sight better during the day for having used it. At my 6 week visit, my events went from 2/minute to 1 every other hour. WHOOHOO! I'll take it! Since having my cpap machine, I've lost 10lbs. Sleeping has been my ONLY change. (well that and having energy so I can do more.)

Tricky Tracy


 Pounds lost: 50.0 
 
0
54.25
108.5
162.75
217
GRAMMACATHY's Photo GRAMMACATHY Posts: 19,419
9/16/12 4:34 A

My SparkPage
Send Private Message
Reply
Welcome to the team. I am so sorry I am late in responding. Just finally getting caught up with the spark mail. We have had a few inquiries about dental appliances over the years. It will be nice having you here with actual experience. I have mixed apnea. I also forget to breath sometimes, so I need the cpap.

I think I will start a new thread with your question about the dental appliance to see if we can get a little more attention to this topic. Thanks for the idea.



 Pounds lost: 4.0 
 
0
2.5
5
7.5
10
TORTISE110's Photo TORTISE110 Posts: 4,708
9/11/12 5:57 A

Community Team Member

My SparkPage
Send Private Message
Reply
Hi. I just joined and was glad to find a group dealing with apnea. I used cpap for several months and got results, but am trying a dental appliance now. I hope it will be more portable. I have had to adjust it a few times--special dentist--and so far it seems to be working. Anyone else using a dental appliance?

In any case I love sleeping well and think it has contributed to my weight loss on Spark. Happy to be here and looking forward to getting to know this team!

Toni
Go slow to go fast.
Maintaining since September 15, 2012


 current weight: 149.0 
 
151
149.5
148
146.5
145
GRAMMACATHY's Photo GRAMMACATHY Posts: 19,419
9/8/12 12:35 A

My SparkPage
Send Private Message
Reply
Here is the poem, but this is the rough draft. I can't seem to find the finished version. I know I edited out the snake and added a different verse. Oh well. At least you will get an idea how to have fun with the cpap. The child I wrote it for went to the sleep study, but they decided to remove his tonsils and adenoids and see if that helped before putting him on a cpap. He did have a cousin who was encouraging him. I haven't heard back from his mother, so am assuming he did not have to go on the cpap.

*****

I went to the hospital and what did I see
A doctor with stethoscope looking at me.

A probe on my head, a probe on my wrist
A probe on my leg and a probe on my chest

I’m wired and taped and covered in goo.
How do they expect me to sleep with this too.

The room has a mirror and a very big bed
I’m suppose to lay down with this stuff on my head.

The lights are turned down and I can’t hear a sound
Hopefully, sleep will soon come around.

I toss and I turn and I kick at the sheet
While Mom sits beside me in her very own seat.

She smiles and sings a soft lullaby,
Next thing I know the night has gone by.

They say I’m not breathing during the night
The cpap machine will make that all right.

There’s a mask for my face and a hose for the air
A tank for some water and the machine if I dare.

I don’t want to try it. It scares me you see
My cousin says “silly, there’s lots you can be.

The little brave elephant shows lots of spunk
When the mask and the hose are used for a trunk.

He raises his hose nose and lets our a roar
But that isn’t all, there is so much more.

Slithering snake from the hose I can make
To glide in the water of the bathtub lake.

Aviator scarf and aviator mask
When flying my plane is not much to ask

Listen in one end and talk in the other
It’s fun to make noises at one another

Black robes and helmet and add a light saber
Talking through mask makes me sound like Darth Vader

But the fireman suit is the very best thing
Mom made it for me to sleep in and dream

The humming machine on my night stand sits.
Around the cpap the fire engine fits.

The blue lights are on . I’m ready to roll
The hose is draped carefully over a pole.

The mask fits snuggly on top of my face
I’m ready for dreamland and my fireman’s race.



 Pounds lost: 4.0 
 
0
2.5
5
7.5
10
GRAMMACATHY's Photo GRAMMACATHY Posts: 19,419
9/8/12 12:22 A

My SparkPage
Send Private Message
Reply
www.resmed.com/us/assets/documents/p
ro
duct/s8_elite/user_guide/338116_s8-eR>lite_user-guide_amer_eng.pdf
Here is your product manual and I can't find anything about an AHI readout. When you go to the doctors, have your card read and ask them to show you if it is possible to check your AHI on the digital read out.

I have never tried the masks with the foam cushions. I believe Merri has one similar to yours. I bet you get a better seal and less kitty whiskers on your face. (lines and creases)

Hang in there. I highly recommend meditation to put yourself back to sleep. www.youtube.com/watch?v=NmA-dWdaI5k&
li
st=FLNXi5mwPsLeLJWlTHmAq4Ag&index=6&R>feature=plpp_video
Shut your eyes. It is the waves or harmonics in the music that is soothing. Just keep it turned down really low. Make the positive affirmation one of relaxation and restful sleep for another couple of hours.



 Pounds lost: 4.0 
 
0
2.5
5
7.5
10
NOREGRET2010's Photo NOREGRET2010 SparkPoints: (49,833)
Fitness Minutes: (69,221)
Posts: 927
9/7/12 7:25 A

My SparkPage
Send Private Message
Reply
the link is VERY helpful, thank you! I see the one I use - Flex Fit 470 - would only be $57 through that site, wow!

made an appointment with my sleep doc - September 19th.

Machine is a Resmed Elite S8 (http://www.resmed.com/us/products/s8_elit
e/s8-elite.html?nc=patients). I have looked at it a bit, there is not a lot in the menu and I didn't see apnea events listed - just hours used, etc.

Last night, I again made it from around 10 pm to 3 am. Haven't been able to go back to sleep since. I have some longstanding insomnia issues on top of the apnea - I can get to sleep but then I wake up in the middle of the night for an hour or two. Interestingly, that had sort of stopped when I wasn't using the CPAP...I could get 5-6 hours "sleep" without waking. I say "sleep" because I was definitely having apnea events and snoring my head off.

I'm committed that this is a long-term project. Getting used to the CPAP and resolving my sleep issues (and sleep debt, because I am quite sure there is one) is going to take time. Thanks SO MUCH for your encouragement along the way!

 Pounds lost: 10.5 
 
0
12.5
25
37.5
50
GRAMMACATHY's Photo GRAMMACATHY Posts: 19,419
9/7/12 3:09 A

My SparkPage
Send Private Message
Reply
Sorry about the old mask. What type of mask and machine do you have?
www.cpap.com/productpage/comfortgel-
ma
sk-phillips-respironics.html
I like this website. It gives you an idea of what is available out there and how much it costs. The mask I clicked on is my mask. It has been my go to mask although I do want to try a cloth mask too. Notice the price. You might check with your provider to see if they offer discounts when you don't have insurance coverage.

Boy, I don't see my machine anywhere. I was going to try to describe how to read the readout. Let me know what your machine is. Then, I can do a little research. www.cpap.com/cpap-machines/cpap-mach
in
e.php




 Pounds lost: 4.0 
 
0
2.5
5
7.5
10
NOREGRET2010's Photo NOREGRET2010 SparkPoints: (49,833)
Fitness Minutes: (69,221)
Posts: 927
9/6/12 11:00 A

My SparkPage
Send Private Message
Reply
Just called insurance. Must clear deductibe, 1500 before they will chip in 70% of the mask.

Am I frustrated? Yes.

 Pounds lost: 10.5 
 
0
12.5
25
37.5
50
GOLDDUSTTWIN's Photo GOLDDUSTTWIN SparkPoints: (79,932)
Fitness Minutes: (61,881)
Posts: 13,663
9/6/12 10:53 A

My SparkPage
Send Private Message
Reply
I am confused...your mask is 6 years old? Mine get replaced every 6 months? How can they not replace it? Also if it should tear within the 6 months it is replaced at no charge...I would ask more questions and talk to your Doctor about it not working for you and how old it is! Good Luck and let us know how this works for you! emoticon

´¨¨)) -:¦:-
¸.•´ .•´¨¨))May you have Butterfly Mornings and Wildflower Afternoons!
((¸¸.•´ .•´ -:¦:-
-:¦:- ((¸¸.•´* Dusty



 Pounds lost: 8.7 
 
0
14
28
42
56
NOREGRET2010's Photo NOREGRET2010 SparkPoints: (49,833)
Fitness Minutes: (69,221)
Posts: 927
9/6/12 8:48 A

My SparkPage
Send Private Message
Reply
Wow, GRAMMACATHY, thank you SO much for the information and concern!

The first night was good. Slept like a rock, didn't move. Six hours on the machine.

Last night, not so much. About 3.5 to 4 hours on the machine.

1) It took me a long time to go to sleep - at least 45 minutes. I had put on the CPAP at 10 pm, trying to begin a habit for good sleep hygiene. I could not settle down tho (probably due to the second issue below).
2) I realized the air was really COLD about midnight, in fact I think that woke me up. Apparently I'd forgotten to turn on the heater/humidifier. Fixed that, in a few minutes the air was warmer and I could go back to sleep. i don't recall turning it off, but may have done so when I finished using it in the morning.
3) Around 3 a.m, I ripped the mask off. I don't remember much but feeling irritated. Partner said I'd been moving around before that, tossing and turning a little.

Mask: Mask will likely need to be replaced and I know it. However, my insurance won't pay till I've reached my deductible, which I haven't (I know this from calling last time I was on a CPAP kick). However, I'm going to try to call again and see where I am. The hose/tube is in excellent shape, the mask appears okay, but it's 6 years old and I'm aware it probably is not in the best of shape simply due to age. I also realize thinking about it this a.m., I think I had the mask too tight as well.

Settings: I have no idea. :( They set it up for me to hit start and go. Never mentioned anything about adjusting etc. I went to one followup appointment where he looked at my results and lectured me on compliance and unfortunately, rather than taking it to heart, I allowed it to encourage me to be even MORE non-compliant. Sigh. I did look online at info on the machine, and I'm going to look more at the info that came with the machine as well to better understand how it works, etc.

I sort of had a plan I would use it consistently for two weeks and get an appointment so they could look at what's going on, see if it needs adjustment, etc. I know I need an appointment soon, I need the mask, etc. However, money is an issue (isn't it always?).

That said, it's my life and my sanity at stake here. Thinking the last couple days how I am always tired. Always. I have to have a nap almost every day, because I am exhausted.

My very first thought when I woke up this a.m., tired and groggy was "damn it I'm not doing that anymore, I hate that thing!"

But I'm over myself, LOL. When I thought about all the reasons I need it, I know I'm not giving up.

Thanks for your time and concern, and all the help. I appreciate it!

 Pounds lost: 10.5 
 
0
12.5
25
37.5
50
GRAMMACATHY's Photo GRAMMACATHY Posts: 19,419
9/6/12 1:26 A

My SparkPage
Send Private Message
Reply
Howdy Neighbor, I live in St. Helens, north of Portland. I have a brother in law in La Pine and a niece in Sisters. Small world.

Compliance was easy for me as I had immediate overnight results. Getting used to the machine took six months to a year.

Some things need to be adapted and changed, but think of it like wearing glasses, contact lens, high heeled shoes underwire undergarments etc. The benefits outweigh the discomfort as long as each of those things fits correctly.

So, it has been a few years. Do you have a good fit with your cpap? Do you have a memory card or a digital read out? Has your weight changed? Is your mask still viable?

If you have a digital read out and a memory card, check your readout nightly for a couple of weeks for your AHI score. After two weeks take the memory card into your tech or supplier. They generally read them for free. Make sure your AHI is in normal range. You can also get a read out on your compliance.

My AHI was 60 in an hour, now it is .8 I don't know how the machine calculates that. But I guess I had half an apnea event or maybe I had three events over an 8 hour period.

This link says normal AHI is under 5. That seems like a lot to me. Duration is important too.
www.entandallergy.com/nad/media/pdfs
/J
OHN_DOEpsg-PRINT.pdf



Lanky Lefty is my go to internet tech. He has some great info on getting good fits on masks and strategies for working though adjustment issues. If you are looking for something specific, just ask and I can find you a link to it. The sight is big.
freecpapadvice.com/

Let me know how last night went for you. How many hours were you able to keep the mask on? What were the issues that made it uncomfortable?

Best of luck with this. Sleep apnea almost killed me. I spent four days in the hospital. You do not want to do that.



 Pounds lost: 4.0 
 
0
2.5
5
7.5
10
NOREGRET2010's Photo NOREGRET2010 SparkPoints: (49,833)
Fitness Minutes: (69,221)
Posts: 927
9/5/12 12:21 P

My SparkPage
Send Private Message
Reply
I'm Lisa, from Bend, Oregon.

yep....my sleep study was ...um....in oh, 2006? Maybe 2007? I got my diagnosis of sleep apnea and subsequently a CPAP....and then failed in complaince.

Failed in a big way. Hated the darn thing, it was a hassle, blah blah blah. Used it sparingly and sporadically.

And...every time I went to my family doc and complained, "i don't feel good! I'm tired all the time! I can't lose weight!!" he said, "how's your CPAP compliance?"

Needless to say, I didn't wanna hear it.

Mostly, I just took it with me when we were going places where we'd be sharing space with others so I didn't snore and drive everyone crazy.

Last night, I made up my mind....I'm going to be compliant. PERIOD. Dragged it out, wiped it all off, set it up and USED IT.

Joined this team so I could reinforce my compliance with associating with others who are being compliant!!

So, here I am. Ready to take my apnea seriously.

 Pounds lost: 10.5 
 
0
12.5
25
37.5
50
Page: 1 of (1)  

Report Innappropriate Post

Other Sleep Apnea Introduce Yourself to Team Forum Posts

Topics: Last Post:
Great hopes for CPAP! 12/27/2013 6:42:24 PM
New to the Team, Not to OSA or CPAP 12/30/2013 10:06:12 AM
Howdy from New Mexico 8/8/2014 3:17:34 PM
REALLY stupid question!!!! 5/1/2014 12:10:52 AM
sleep apnea causes depression. . 11/28/2014 10:04:17 PM

Thread URL: http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x10648x49781890

Review our Community Guidelines