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MANTOINET3's Photo MANTOINET3 SparkPoints: (4,806)
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5/19/14 3:15 A

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Hey everyone, I'm new to the forum, been sleeping with my mask for the last 10 months. I was allergic to the mask covering the mouth and nose - actually got a wound under my nose! The one just going in my nose is better. The tiredness didn't reduce but I found out later my blood-iron saturation was too low, even though my HB is bordering normal. So when I took supplements my GP subscribed it went a lot better. Once I loose the weight intended my sleep apnea should also, my doctor thinks it is due to the weight gain in the last years that are causing it. I made a fleece cover for the hose because the condensation drove me crazy and it helps a bit. The mask brings my apnea back to 1 time and hour from 14-16 times without. I have a CPAP machine and my cats are also getting adjusted to it, sometimes they would step on the off/on button in the middle of the night in the beginning.

"A ruffled mind, makes a restless pillow"


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MAMAMACK44's Photo MAMAMACK44 Posts: 433
12/28/13 7:53 A

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Hi Carla and Bob,

I am relatively new to this sleep apnea board. I just started using my machine in October. I really am not an expert but, just wanted to encourage you to continue using your machine. It will get better.

Kristyn

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Mini-goal 60 pounds gone by 10/07/14
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DANCESTAMP's Photo DANCESTAMP Posts: 718
12/27/13 10:37 P

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hi,

so I have been using the cpap for about 3 months, had my first followup with the cpap machine and pulmonary dr, told them I still don't like the machine, but I can deal with it, they said I was wearing it properly. I am trying my hardest to adjust it at night when it does move, I only have the nasal pillows, not a mask. the lady tried me with a mask and I told her I would not wear it. so she told me every 6 months I could get a new mask, so I am going to try a different one in 6 months. it is supposed to be smaller than the one I have and may not move as much.

I wanted to say to Renie, that my stomach was very gassy and not feeling well at all when I first started with the cpap and I said something and the lady told me that it could happen and to take gas x or Maalox or something like that. now my pressure is only set at 7, but I did that for the first week and I am okay now and not having that issue, I hope you can get it figured out.



carla
It never gets easier, you just get better.

Motivation is what gets you started, habit is what keeps you going!


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54JIMMY's Photo 54JIMMY SparkPoints: (17,578)
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12/26/13 11:35 A

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Hi Bob. Welcome to the Sleep Apnea team! We are glad to help in any way we can. I am fairly new to CPAP (6 months) but I have learned quite a bit in that time (no expert by far). If you could tell us more of the issues we can see where we can take this. It would also be helpful if you could let us know us what machine and mask you have and even what the settings are, this may also help.
Jerry

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BOB_IN_SC's Photo BOB_IN_SC SparkPoints: (12,437)
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12/24/13 9:14 P

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Greetings all I'm new to the team. I was diagnosed with both restrictive and central apnea. After three months of struggling with two different machines, my condition hasn't gotten any better at all. Very frustrating. Hoping getting to know all of you can help.

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N0_EQL's Photo N0_EQL Posts: 625
10/9/13 7:49 A

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Is this a situation where BiPAP would help?

What are you running from?

What are you running to?

What are you chasing?

What is chasing you?


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RENIESSPARKIN's Photo RENIESSPARKIN Posts: 8,697
10/11/12 12:50 A

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I'm trying to remember how long I've had my Cpap. I've tried over a dozen masks and still have problems, but I can do okay with the one I have now. My doc turned the pressure from 11 to 13 and I started having a very irritated stomach--totally red and very gassy. I've tried to convince the doc to give me a script for a lower setting--just to try and see if my tummy improves. She doesn't want to do it. I'm going to try again tomorrow, or at least have her explain why. I also have Gastroparesis. My tummy doc agrees that the high setting could be part of the irritation. Any suggestions or similar problems???

Renie

Irene
Co-Leader~I_Need_Sleep

Beauty is in the IQ of the beholder.

Good food, good sleep, good friends creates a Spark for Life!

Let's all have fun and encourage others while getting healthy!!


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WAVAIRENE's Photo WAVAIRENE SparkPoints: (7,655)
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8/11/12 12:50 P

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Cathy...I get this when I tried the link. "Our apologies – this page was not found"

There's no elevator to reach success...you have to use the stairs.


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BRAVEONE92's Photo BRAVEONE92 SparkPoints: (113,022)
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1/19/12 11:30 P

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I go to this site often Cathy. They send me emails on different topics.

Thank you for sharing.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,235
12/19/11 1:28 P

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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,235
12/19/11 1:26 P

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emoticon emoticon

See, you already are ahead of the game. Since my recent move in with the kids, I also don't have a dishwasher, but since I am retired, I wash whatever is in the sink whenever I walk past it. That way there are only a few dishes to deal with. I told the girls the kitchen was my domain. My daughter works long hours and my granddaughter needs to learn other household chores. When she was living with her Dad, the only chore she did was wash dishes. Now she is dusting, cleaning windows, polishing furniture, scrubbing toilet, etc. I am truly enjoying retirement and living with the girls.



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PRINCESSBEITER's Photo PRINCESSBEITER Posts: 395
12/18/11 5:21 P

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Everything is perspective, huh? I don't have a dishwasher since I've been living with my grandmother, so I have to do all the dishes by hand. I hate it. But, I love the way the kitchen looks and feels when it's clean, so...

I've already set my mind to "positive" on this CPAP thing. I've done a lot of research and I think I've seen a mask that may work for me. I hope I can get it.

I try to go into any new therapy or medication believing it WILL work.

Carrie


I have diabetes, diabetes does not have me!

A day without humor is not worth living.

I THINK this will be a good day, therefore it WILL be a good day!


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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,235
12/15/11 2:30 P

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Carrie, This is for your eyes only. Adapting to the mask is like adapting to an underwire bra it takes forever to find the perfect fit, but so worth the effort. It takes work. Just keep trying. You will reap health benefits in so many ways.

I use to mentally fight washing dishes. It was a back breaking chore. Then I had a shift of perspective and enjoy the clean kitchen so the few minutes of back pain make it all worth while. Shifting attitude helps adapt and then it is like wearing your most comfortable pair of sweat pants. Just an extension of your body.



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PRINCESSBEITER's Photo PRINCESSBEITER Posts: 395
12/14/11 2:50 P

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Thank you. I'm getting my titration study done on the 27th and I'm really nervous about getting a machine. My mother had one, needs one, but sent it back because she could not get the right mask for her.

I'm hoping I do better. I really need to sleep!

Carrie


I have diabetes, diabetes does not have me!

A day without humor is not worth living.

I THINK this will be a good day, therefore it WILL be a good day!


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CATSFERRETSKIDS SparkPoints: (1,067)
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12/14/11 9:28 A

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Very helpful, thanks!


GRAMMACATHY's Photo GRAMMACATHY Posts: 19,235
5/3/11 2:27 A

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Joan we hope they have answers for you too!



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SHASTA11's Photo SHASTA11 SparkPoints: (54,084)
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5/3/11 12:05 A

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This is just in time. I've had a CPAP for yrs and tried 4 masks and still can't use the machine. I'm establishing myself with drs here in Shreveport and I see a sleep consultant tomorrow. Hope I can get squared away and start getting the rest I need.

Thanks.

Hugs, Joan

Loved ones are the threads in the fabric of our soul...author unkown to me

No one ever yet so fortunate as you have been, nor ever will be, for you have been adored by us all..Homer

Nothing Happens Unless First a Dream...
Carl Sandburg

Even our most profound losses are survivable...
Author unknown to me

First we form habits, then they form us. Conquer your bad habits or they will conquer you...
Rob Gilbert - Posted by DEE107


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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,235
5/1/11 8:47 P

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Thank you. Wish I had known some of this years ago.



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BRAVEONE92's Photo BRAVEONE92 SparkPoints: (113,022)
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5/1/11 8:45 P

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Thanks so much Cathy. This was great information. I appreciate it lots.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,235
5/1/11 12:33 A

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Thanks! The link is good too. The person who wrote this called it "free domain" and encouraged everyone to share it.



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DONB52's Photo DONB52 SparkPoints: (9,131)
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4/30/11 10:39 P

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Great info, Cathy!

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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,235
4/30/11 8:55 P

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www.sleepguide.com/forum/topi
cs/top-fi
ve-things-new-pap-users


1. DOCUMENT AND RESEARCH: It is your life, so get complete copies of your sleep tests and your prescription so that you can study them and research the specifics of your condition. Then contact your insurance company to find out exactly what is covered and how.

2. FIND THE RIGHT MASK: The mask is the key to successful therapy, so either use mask insurance if you buy online or only deal with a local DME that will let you trade in a mask that you can’t make work for you within 30 days, at no cost to you. The first mask you get may not necessarily be the perfect one for you, so don’t judge the therapy based on your first mask. Even with the right mask, you may need to practice putting it on, and it may take several nights for you to get comfortable with wearing it all night.

3. GET A FULL-DATA MACHINE: Your having a machine that can give you leak and apnea-hypopnea index (or, AHI) data will allow you and your medical team to make sure your therapy is as effective and comfortable as possible. Your local durable medical equipment company (or, DME) may not understand that concept (or may pretend not to, for financial reasons), so be sure to get a list of in-network DMEs from your insurance before you speak to any DME. That may allow you to push for a full-data machine, or perhaps allow you to shop around in the interests of fostering healthy competition among businesses. Some users have found it cheaper for them in the long run, and less frustrating, simply to buy their own equipment online instead of paying their insurance co-payments at local-DME prices. Some users have even found ways to get reimbursed from their insurance for online purchases.

4. GET THE RIGHT KIND OF MACHINE FOR YOU: Straight pressure as delivered by a regular continuous positive airway pressure machine (or, CPAP) does fine for most people with obstructive sleep apnea (or, OSA). But many have found great benefit in the use of an APAP (auto-adjusting machine), and many with high-pressure prescriptions (over 15 cm H2O, for example) have benefited from the use of a bilevel machine (also called Bi-PAP or VPAP). Also, machine users with a high number of significant central apneas may do better on specialized machines designed to deal with that problem.

5. DON’T THINK YOU HAVE TO GO IT ALONE IF YOU HAVE DIFFICULTIES: Your doctor works for you. Your DME works for you. They can’t help you if you aren’t being sufficiently vocal and specific about your needs. Furthermore, online forums exist for you to get quick help from fellow patients any time you need it. Please don’t give up without reaching out to (1) the professionals you have paid to be there for you or (2) the fellow patients who pride themselves on being helpful to other patients in the forums. Online, you can find helpful hints such as this one: “Don’t set your ramp setting too low (or set your starting minimum pressure too low on an APAP), since that might make you feel starved for air or even keep your machine from taking care of your apneas as well as it otherwise could.”



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