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FLUTTERFLYLADY's Photo FLUTTERFLYLADY Posts: 137
5/14/13 4:04 P

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Hi there I'm new here and not sure this is the Team for me, but I'm dealing with pretty severe back pain. My history is arthritis in my hips, knees, back and neck. I've had one knee and one hip replaced, and have the second hip scheduled for replacement in September.. The replaced knee was done about 7 1/2 years ago and is also bothering me, but not as bad as the other knee and hip. I was hoping that the hip replacement that I had would help the back issue, but of course I'm still dealing with walking very unevenly due to the above. My fear is the pain will never subside, even after the other hip surgery.


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LAWOMAN2's Photo LAWOMAN2 Posts: 367
5/6/13 12:36 P

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Great time for a REintroduction! I just got back on here after close to a year absence. I realized I need Spark People and my groups! Spine story....I have 4 herniated disks in my back (3 low and 1 mid), degenerative disc disease, Spinal stenosis. I had one disk removed in '04 but not much further they can do. I was on massive pain meds, anti-inflams, etc. About 3 months ago I got fed up with the drugged feeling and went off of it all! I am using natural living to relive my pain and to be honest am feeling better all around. Yoga 2x day, essential oils, meditation. Better than any drugs or surgery!!

Lori M.


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ICANLOSEMORE's Photo ICANLOSEMORE SparkPoints: (23,221)
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5/4/13 10:09 A

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Hi to all, just wanted to meet some people who have similar problems. Hard to stay motivated to exercise when you are in pain. I am slightly club footed, which I didn't discover until I was about 40. At that time it suddenly occurred to me, most people don't have feet that hurt all the time. So I went to a foot doc and he gave me custom inserts for my shoes. I felt like I was walking on clouds. what a difference! However all those years of poor base support did a number on the rest of my body, add to that scoliosis, and rolling my car on the interstate 4-5 times, my back is a mess, my knees are a mess and my hips as well. I have a home traction machine which helps when my neck gets really bothersome. I've been in therapy multiple times and try to keep doing all the different exercises. I also have lymphedema on the left side of my body. Now they are thinking it is possible I have Klippel Traunauney (not sure I spelled that right) Syndrome. All in all I just have poor design. I know losing weight will lessen the pain but seem to be stuck after losing about 60 pounds. So, yesterday I went to a dietician to see if she could help me jump start this old body. wish me luck.
Janet

Edited by: ICANLOSEMORE at: 5/5/2013 (10:59)
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MISSCUS's Photo MISSCUS Posts: 3,917
4/20/13 4:47 P

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Hi Erika,
Welcome to our little team. It's not real active, but if you post here, someone will get to you within a day or so. I was on the team playing the games yesterday and didn't notice that you posted , sorry.
Sorry to hear of your pain, and at such a young age. Pain sucks!! Sounds like if you start doing some of the exercises it could help maybe?? I know I would do them if it helped. I only knew one lady 40 years ago with scoliosis and she wore a confine type frame of a brace to correct the problem for many years when young. It did correct the problem, but then came back as she got older. And yep, the core muscles are the ones to strengthen. That is my problem area too. I get so very sore when I do those exercises too UGH.
I check the team each day, so come back and post, I'll find you!! Any problems or just a bad day, feel free to vent to us here. We're good listeners too!!
Phyllis

Phyllis
It turns out that an eerie type of chaos can lurk just behind a facade of order - and yet, deep inside the chaos lurks an even eerier type of order.


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4/17/13 3:01 P

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Hello, everyone! My name is Erika, and I'm 25 years old (26 next month). I've been experiencing upper back/shoulder/neck pain - particularly on my left side - at least since I was 19, though it probably started earlier. I went to physical therapy 2-3 years ago, and it really made a huge difference...but after it ended, I slacked off on my at-home exercises, and now I'm back where I started. I remember some of the old exercises, and I know the one my therapist said was particularly important was a left side plank, so I'm trying to get back into doing that. (I'd forgotten how hard it was to hold the plank position, too!) If I remember correctly, I need to work on core-building, strengthening my left side, and stretching out my neck muscles. Taping my back has also helped in the past, but my boyfriend complains every time I ask him to do it, and I'm not very good at getting the tape where I really need it when I do it myself.

As far as specific spinal/back issues go, I have scoliosis (I think it's relatively mild). My left shoulder is lower than my right, which is easily noticeable to me since I know it's there, but I don't think other people really see it unless they're looking for it. My right arm's range of motion - in terms of reaching behind me - is also limited, though I don't experience any pain with it. My pain is mainly on my left side, but it's not completely absent on the right. I have 'hot spots' along my spine, and I'm pretty sure my physical therapist said that those are places where my vertebrae have rotated. I don't have much in the way of lower back pain (or maybe I do and I just don't notice it because my upper back issues are so much more present), but back problems do run in my family: my dad threw his back out for the first time at age 23, I think. The more idle I am and the longer I've been awake, the more pain I feel. If I'm out running, I won't think about my back at all, but if I'm trying to get to sleep, it's all I can think about.

Anyway, that's me. Hello again to everyone else, and good luck to all on achieving your goals! :)

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4/15/13 6:43 P

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Hi. My name is Cathy, and I've dealt with chronic recurring back pain for 19 years. Most of my pain stems from bulging L4/L5 discs which began when I pulled the lawn mower start the wrong way (or too many times!), and maybe from fracturing my tailbone a couple of years earlier in a carnival slide. My pain is well-managed when I see my chiropractor once a month, but it has made it hard for me to do the workouts I need to lose weight. Diet alone isn't enough. I was 12 pounds from my goal 16 months ago when I injured my back & hip again. I had surgery on the left hip to remove a bone spur and repair a soft tissue tear, but I still have pain around that hip when I walk too much or too fast, or do too many stairs. I've been using Sparkpeople for a week now, and got a Fitbit to help track activities. I've been feeling much better for about 6 weeks now, doing my stretches, back to easy housework again and doing a beginner walking working twice a week. Thanks for having this resource for others dealing with similar issues -- I look forward to hearing your success stories!

MISSYELLER's Photo MISSYELLER Posts: 19
4/5/13 9:01 A

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Thanks for the welcome! My pain level is so much better than it was in the days after the surgery that I hate to even mention any pain now but...I guess I expected things to be much better, much faster. My doctor says it could take a year for everything to heal completely. In a way, that is encouraging. I remind myself that I am still healing and that the pain will get better with time. In a way, it's depressing to think that it will take that long to see real results. My biggest frustration is that the most severe area of pain is still there and possibly a bit worse. I have a burning, stabbing pain in my left inner thigh that radiates downward to my knee. It's been there for 15 years. It's the reason I initially sought treatment and I made it very clear that it was my worst area of pain. Now I am hearing that it is unrelated to the area of the spine where I had surgery. Sigh. At any rate, my greatest need right now is to hear which exercises are ok for me until the healing is complete. I ride my stationary recumbent bike daily or walk.

Dawn


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MZELLA5's Photo MZELLA5 SparkPoints: (9,154)
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4/3/13 11:08 A

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Hi, everyone.....

Missyeller, welcome...I am headed, one of these days, for the L5-S1 fusion. I am not looking forward to it - I have the rest fused, and the dr. says when that last is done he can make me stand up straight again (which WOULD be something to look forward to) by screwing the vertebrae farther down than normal. How's your pain level now? Good luck on your weight loss!

Misscus, thanks for welcoming me to your board. I have been checking in, if not posting. I have lost about 10 pounds, which is great, even though I haven't been able to increase my activity much at all due to increased neck and shoulder pain. It makes me feel like a failure to lay around so much. At least I've stayed close to my calorie intake goals.

But here we are, IT'S APRIL! Spring is in the air, it's getting warmer outside...and I just helped hatch 15 new baby chicks!

It's all good...

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MISSYELLER's Photo MISSYELLER Posts: 19
4/3/13 9:28 A

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Hi Everyone,
I have been an inactive member of Sparkpeople for a long time. I had a transforaminal lumbar fusion of L4, L5 and S1 on January 7. I am 50 years old and weigh 236 pounds. I weighed 243 at the time of my surgery. Recovery is slow, but I'm sure that is not news to those of you with back issues. My goal is to weigh 135 by March 23, 2014. I hope to give and receive encouragement and advice in this forum.

Dawn


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BRERRABBIT1's Photo BRERRABBIT1 Posts: 107
3/12/13 12:07 P

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Hi Beth, and Team,
:) I hope you are feeling better by now, Beth. Thank you for the warm welcome.

emoticon

**Pick stuff up. Put em down. Repeat.**

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MISSCUS's Photo MISSCUS Posts: 3,917
2/26/13 1:46 P

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I see there are 4 new people on this team!! WELCOME!! Our group is sometimes quiet, but we all make it here sooner or later. I'm just happy to see there are new people here!! Nice to meet you all. I recommend the Biggest Loser team and also their Challenge Teams as well. The Spring Melt Off Challenge is already full, but the main team is a big help too. I also recommend Team Indygirl. That's a motivating team that is quite active as well. I do check into this team everyday for new posts, usually, the past week I have not been here too often.

SHYR I hope things get better and weight loss helps with your back issues! I am trying to do the same. Welcome!

Heather, Welcome to you too!! I wish you success with the weight loss. Try a couple of the teams I mentioned to help you focus on weight loss.

DENI, welcome to you too!!! All of us here have been through similar back issues. You are in the right place, we vent here about our pain, and the rest of us listen and give support. I have done both. I vent a lot though.

Michele, it's been a few days since you were on here. Please update us with how you are doing.

If I've missed anyone, give me a holler!!! Hope you all are having a great week.

Phyllis
It turns out that an eerie type of chaos can lurk just behind a facade of order - and yet, deep inside the chaos lurks an even eerier type of order.


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-SHYR-'s Photo -SHYR- Posts: 36
2/25/13 4:45 P

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Hi,
I am not really sure on how to use the message boards but here it goes, :D I am 25 years old and completely against having back surgery for myself, My doctor says that i have a low chance of weight loss helping with my chronic back pain. Because of my ruptured disk i also have chronic sciatica, And with all that they said i will need to have back surgery and possibly getting the fusion surgery, I am at a loss really the last thing i want to have is back surgery, I would much rather try all other possibility's first. So here i am i want to loose alot of weight and become more healthy with the chance that it will ultimately help my back. I came to this group thinking maybe some one here could help me with support and encouragement while knowing how difficult it can be to even move some days, I am very determined to loose weight to save my back as hard as it might be......Thanks :D (I think this turned more into a rant sorry)

"When you have a sense of your own identity and a vision of where you want to go in your life, you then have the basis for reaching out to the world and going after your dreams for a better life."


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RSLIPPERS's Photo RSLIPPERS SparkPoints: (827)
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2/19/13 3:39 P

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Hi, Iím Heather! Iím 31, partially disabled (not on disability though, have been denyed and have no dr..so I cant get a lawer..no insurance..no dr no money its depressing) with several ruptured disc in my spine and nerve damage. Iím a full time college student at University of Phoenix online and a full time mommy to an almost 3 year old. I am under doctorsí orders to lose weight but I am not allowed to work hard enough to break a sweat because of my spine and nerve damage. I need a miracle. Being home all day every day I am tempted to eat, and even eating too many carrot sticks and dip can make me over weight. I have gained back all of the 60 pounds I lost the first time I used spark PLUS 13 pounds. I donít even own a scale now. But my fat pants and my maternity pants pants do not fit and thatís enough for me to know, that and the double chin. I need to break the snacking on chips and other carbs habit. I love salty food, but I have high blood pressure. I also am high risk for diabetes. Looking for support and someone who might know what Iím going through! Seeking a buddy!!


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KIDDEN04's Photo KIDDEN04 Posts: 1,113
2/7/13 10:03 A

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Hello!! My name is Deni...not sure if I introduced myself or not, but here I am!!! I've had back pain off and on for 27 years. The last 6 months have been really bad. Had to have emergency back surgery in 01...so, I've been dealing with chronic pain since...


"The past can hurt. You can either run from it or learn from it.' - The Lion King



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MZELLA5's Photo MZELLA5 SparkPoints: (9,154)
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2/6/13 2:49 P

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Hello, everyoneÖ.

I just found this team yesterday, after being on sparkpeople for a couple of yearsÖ Iíve never looked deeply enough for a chronic pain group Ė partly because Iíd rather deny that I have it. It was kind of comforting to read your posts Ė others like me! I operate on the premise everyone hurts to one degree or another. Nothing to do but to soldier onÖ

But I am 3.5 years out from my last spinal surgery and have just started insulin; I am finally acknowledging that if there is a way to lose weight and get stronger, I need to find it and do it.

Otherwise, I should just sit down and close up shop and wait to die. And I have 2 tiny grandchildren, 3 grown wonderful children and a husband I still love, after knowing him for over 40 years. We were each otherís first dates, and he deserves more than what my disabled body and subdued spirit can give him. And parenting, as most of you probably know, goes on FOREVER.

After the surgery and recovery, I really was impressed with my survival skills. After 17 hours in surgery and flatlining twice in ICU, a month in the hospital, surviving MRSA and another surgery to clean it out of my spine, and then another week in the hospital getting over a sudden reaction to narcotics (after 5 years of using them), I think Iíd better go with fighting to become the best ďmeĒ I can be, even if getting there is outside my comfort zone.

And I love my comfort zone. I am fortunate that my husband makes enough money for both of us, since I am on a piddling disabilitiy and just am too physically inconsistent to work. But I'm alive! I thank God each morning for letting me wake up again. No one was very sure I was going to survive that chapter of my life, and I need to justify it by accomplishing SOMETHING, even if itís just to pay back in some way all those taxpayer dollars that Medicare shelled out to keep me alive.

So, yes, back to why I looked for you. In becoming serious about eating right and exercising, I have found that it hurts more than I am willing to tolerate. Just living causes enough pain; after finally getting to a place where I am able to inhabit my life, expanding my abilities means dealing with the sciatica and nerve-caused pain more often and intensely.

I can use some motivation and support. I am willing to share whatís helped me on this journey, too. Can I join you?

Michelle
Seriously pursuing the loss of 50 pounds

Scoliosis since 1968, DDD, stenosis, spondo, multiple fractured vertebrae, nerve damage at all levels

C4-7 fusion 2005
C4-7 revision fusion 2007
L4-5 decompression 2008 (after bending over to kiss the Blarney Stone)
T3-L5 fusion 2009, followed by MRSA cleanout
Future surgery L5-S1 and more cervical/thoracic when I canít stand my current status anymoreÖ
TSA alert (got to love those scanners): 2 - 24 in. rods, 36 2in screws, 1 plate, 1 cable and 2 internal vertebral spacers.




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1/26/13 3:43 P

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Hello all, I'm Marje. My user name brakes out "to be ageless". In February, 2007, I fell on my back.
My right side hit the pavement, my left side was in the garden. April 15, "07, I was in to see a spinal specialist. Diagnosis: cyst in lower lumbar between L4 and L5, over the sciatic nerve for the right side. Good news: the cyst was arthritic, not malignant. Bad news: It left my spine compressed with the right side impacted. And there is arthritis in the lumbar spine. Go Figure.

In short: sciatic pain if I fall or any other injury to lumbar spine. Glad to be here.
I fell New Years Eve

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MARTHA_JEAN's Photo MARTHA_JEAN Posts: 407
1/4/13 11:47 A

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Hello everyone! :)

My name is Martha and I took an ill fated ride down a zipline. I'm blessed to be walking and have had amazing support. (I've regained a lot of range of motion too.)

I love to photograph nature, read, spend time with my hubby and would love to get back into dancing. I am currently underemployed but am happy to work where I do. Grad school is in my future but the specifics are still a work in progress.

I have chronic pain but have learned to laugh about it, well most of the time anyway. To help myself with the pain I use meditation, exercise, music and acupuncture. [I've had really great luck with acupuncture but haven't done this in a while because it is soo pricey.]

Still learning to deal with limitations and listening to my body/my body not being the enemy.


More clinical explanation
L2 replacement, L1 to L3 fusion,
nerve damage resulting in chronic pain.
injury occurred 4+ years ago.


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SLIMGRAM2's Photo SLIMGRAM2 SparkPoints: (13,231)
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12/28/12 8:52 P

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Hello team, I'm Maureen. I'm not sure what is contributing to my low back pain. The past 3 years I have had different pains all over my body. I know I have arthritis, in my hands and im sure some other places. I'm seeing my chriopractor sparingly lately since i have no insurance. He thinks im having pain due to either a pinched nerve from narrowing of my disc. Ot maybe stonosis. And untill i can afford an MRI there is no real way of knowing for sure. I get pain in my low back and it radiates into my buttocks and into my thighs. Really gets me in my buttocks though. So im looking for some support and some help with diet and exercise and motivation from this team. I know a lot of you suffer from far worse pain than I have. I will give you moral support as well!

Eastern Standard Time!


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SARAHTAIT's Photo SARAHTAIT Posts: 25,984
12/6/12 11:13 A

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Hi team..My name is Sarah and I had disc fusion surgery many moons ago and have been dealing with chronic pain for the past 20 years...I suffer from fibromyalgia and am on disability. I worked as a NICU sick and preterm babies)RN for 30 years and had to give it up due to pain and fibro fog (unclear thoughts)

I hope to be able to offer some helpful tips and to read yours......

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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BETH150's Photo BETH150 SparkPoints: (1,826)
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11/30/12 11:50 P

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Hi Tabitha & John & MsLynn :)

I am so sorry that you need to be here, but sure am happy you found us. I hope that in some small way this team is of help to lighten your load.

Edited by: BETH150 at: 11/30/2012 (23:51)
I Am Becoming - Ƹ̴Ӂ̴Ʒ All That I Am Ƹ̴Ӂ̴Ʒ



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11/30/12 10:32 A

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Hi Tabitha,
My name is John and I had a construction accident 17 years ago. I now have a myelopathy in my cervical spine(bad news), and C3,4,C5,6,C6,7 AND C7-T1 all central herniations and a few bone spurs touching the spinal cord. I'm very shaky these days due to the nerve damage in my neck. I'm way off balance too.
I also have four herniated disc's in my thoracic spine,T7-8,T8,-9,T9-10,T11-12,They too have osteophytes also known as bone spurs,touching the thecal sac near the spine itself. AND
if that wasn't enough I also have three herniated discs in my lumbar,L4-5,L5,S1 and SI joint is fractured. All from an on sight fall from one roof to another while working in Manhattan,NY
The only exercise that I can do are the stretching workout my physical therapy doctor gave me. and also walking, when I'm able to. John

Edited by: JOCKO56BEER2 at: 11/30/2012 (10:33)
MSLYNNEY's Photo MSLYNNEY Posts: 35
11/22/12 10:23 P

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Hi emoticon , I have been with Sparkpeople for a few years. I lost 60lbs, then took what was supposed to be a small hiatus last year this time. Now a year later, I have done rather well with no weight gain but in March was diagnosed with a bulging and ruptured disck in my lumbar spine. The issue had apparently been there and reached it's peak with no turning back! I had to stop running and exercising all together, which led to a shift in my body. I am now trying to deal with my disc issues, get back to excercising and lose more weight.

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BETH150's Photo BETH150 SparkPoints: (1,826)
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10/15/12 10:32 P

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Hi Everyone!!! emoticon

Thank you all for sharing your back/pain story.

If you have any specific questions, requests or anything else please ask them in a different thread so that I am sure not to over look them among other posts here - I would feel so bad if that happened!

Dave, If you don't mind sharing how did your back get injured? Was it from your weight issues?



I Am Becoming - Ƹ̴Ӂ̴Ʒ All That I Am Ƹ̴Ӂ̴Ʒ



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BADKITTY73 Posts: 3
10/15/12 4:05 P

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Hi

My name is Tabatha. I was in a car accident about two months ago which resulted in 2 herniated discs in my neck. I've had headaches since I was 7 so I'he always thought I could handle pain. Wow was I wrong. A headache has never caused me to wake up in the middle of the night crying. I just had second steroids shot today. Hoping this is it. Just looking for some people who can relate.

Good thing is I have refound yoga and am eating super healthy. I'm doing everything I can to get better quickly.

BADKITTY73 Posts: 3
10/15/12 3:55 P

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Hi

My name is Tabatha. I was in a car accident about two months ago which resulted in 2 herniated discs in my neck. I've had headaches since I was 7 so I'he always thought I could handle pain. Wow was I wrong. A headache has never caused me to wake up in the middle of the night crying. I just had second steroids shot today. Hoping this is it. Just looking for some people who can relate.

Good thing is I have refound yoga and am eating super healthy. I'm doing everything I can to get better quickly.

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9/22/12 7:32 A

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Hi Beth!

I'm Vanessa. I had a car accident about 10 years ago where we hit a deer like a meat speed bump and destroyed both the chassi of the car and as I discovered a few weeks later my L4-L5, L5-S1. I have had surgery on one of the discs but the other one is still giving me trouble. Although it really does get better with every pound I loose!

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IAMTGOOD's Photo IAMTGOOD Posts: 35
9/16/12 1:49 A

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Hi Beth,

I'm Jen and my major problems started in March of this year. My L4/L5 discs ruptured and were cutting into my nerves and spinal cord, causing stenosis, back pain, leg pain. I had surgery 12 days ago. The thing is I thought I was ok the first week or so except for being a little stiff, but now I feel just as bad as I did before the surgery, so I don't know if it actually helped me at all. When my surgery was over and I was still asleep, the surgeon told my mother that one of my discs was "hard" and there would probably be more work down the road, whatever that means. I guess I'll find out monday at my first post-op appointment. I was pretty active before, going to the gym, bowling a lot, etc. I miss it so much, but except for working out, and being off work right now, I can't say it's affecting my day to day life too much as far as pain goes. I just stress over not knowing when I can be active again.

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FIREMOM31's Photo FIREMOM31 SparkPoints: (15,697)
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9/15/12 11:19 A

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Hi Beth,

I have degenerative disc disease, lumbar scoliosis, and subluxated vertebra at L5-S1. Along with that I have Hashimotos and psoriatic arthritis. All of this has made it very hard to keep moving. I am currently sidelined after pulling an intercostal muscle, which has apparently made my thoracic vertebra unstable. I refuse to give up, period.

http://downsreality.blogspot.com/

http://morelivingwithlesscash.blogspot .com/


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WSPDAVE's Photo WSPDAVE SparkPoints: (44,162)
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9/12/12 10:12 P

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Hi Beth,

They used to call me Big Dave and I've decided to keep that forever to remind me of what can be.

Approximately 20 months ago I weighed in at 491 lbs. I dropped down to 250 lbs. In 20 months using SparkPeople, sensible eating and exercise. My primary motivation initially to lose the weight, was to facilitate the replacement of both of my knees and relieve the pressure and pain on my spine.

In February of 2011 I had an MRI done of my spine. When my doctor read the results to me, all of the descriptors from the shoulder blades down started with severe. I knew at that point that I had a very serious challenge ahead of me.

I have lost a lot of weight. I have spent a great deal of time in the gym. I have been in the operating room 3 times this year and expect to be one the table at least one more time before the end of the year.

How do I feel? All things considered, not too bad. I just got a knew knee 3 weeks ago and I think that I have bounced back pretty well. I start pre-hab for a knee and hip replacement in a month. The loss of weight and removal of excess abdominal tissue has helped to alleviate some of the lower back pain, but the truth of the matter is that the damage is done. When I stand for even a short period of time the pain in the small of my back is crippling and I need to sit or lay down. A 6" weightlifting belt cinched up really tight does offer some relief, but this is not something that can be or should be worn all day long.

My plan is to continue my journey and lose some more weight. As for more surgery, we'll see what happens. For now, I think I'll look for resolutions to my back problems in the gym with exercise, because I don't feel to good about surgery on my spine.

Stay Healthy and Stay In Touch.

Regards,
Big Dave
We're In It For The Finish,
I Can Go The Distance


Stay Healthy and Stay In Touch,

'Big' Dave,

We're In It For The Finish,
I Can Go The Distance,
The Goal Is In Sight.


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SMANISMELL's Photo SMANISMELL SparkPoints: (62,052)
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9/10/12 6:26 P

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I am Dini and I have a spinal injury. I have two compression fractures, at L1 and T12 and thorocolumbar dislocation. I am listed as an incomplete paraplegic because I am ambulatory (not very well), but I have a lot of nerve damage.

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CHERYL20121 Posts: 38
9/10/12 2:34 A

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Hi, my name is Cheryl & I have to deal with Spina Bifida (a birth-defect). As far as I know, it affects my lumbar spine. I think it's L5 that's affected & I have gone from using my forearm crutches full-time to get around, to using either my manual wheelchair (occasionally, if my upper back doesn't hurt too much), but mostly I get around using my powerchair. I'm tired of trying PT because the last people I saw a few months ago were just going to give me exercises to do at home with what I felt was minimal help. Are there other options out there for a person dealing with our various types of spinal injuries? Thanks. emoticon

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BETH150's Photo BETH150 SparkPoints: (1,826)
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9/9/12 10:41 P

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About me:

My spine injury is a part of every single thing I do in life. In my sleep, while I am awake, walking, talking , eating, taking a shower etc. There is not one single area of my life that my spine injury does not in some way effect.

A few examples: I have to sit down everywhere with a small pillow behind my lower back. If I sit without a pillow within 2 or 3 minutes my back starts to spasm. I don't mean little flutter byes. I mean people think I am having a seizure. My whole body jerks.

I can't roll over in bed/or couch etc like before. I have to have a grasp on something to pull my body weight. When I wake up in the middle of the night and "have" to roll over (due to pain) I am like "GRRRRRRR" as I know it will take awhile.

My right leg is "dead" as in it can't support me very well & has very little feeling in it. I have foot drop. I have massive nerve pain. My spine condition is deteriorating to the point I am losing my hand grip/strength quickly. A 1 gallon jug of milk is now too heavy for me to carry. I walk with a cane, some days a walker & really bad days I use my wheel chair.

People think I was hit by an 18 wheeler or something when they realize how messed up I am lol Nope I fell down by tripping over a elec cord. It was just the way I landed that did all the disk/nerve damage.

BUT I have came a LONGGGGGG way. I use to have to be dressed, walked, showered, hair brushed & everything by someone else. Over the 7 yrs since my injury I have learned how to do most things myself as well as what things I can no longer do (safely).

All my L & S disks are "gone" - blown out (the reason for the pillow when I sit as I have nothing inside me to support my lower/middle spine). My T disks are starting to go. I have RA, DDD, SS, bone spurs.

No surgeon will touch me as the spine nerves are (their words) "like a ball of yarn played with by a kitten" and they fear (as I do) I will come out much worse.

I gained a LOT of weight after my injury. I was over weight before and this did not help.

I am learning new ways to exercise and will be sharing all I have learned (from PT & Drs) with the team.

NO MATTER WHAT I SAY PLEASE ALWAYS REMEMBER I AM NOT A DR. ANYTHING I SAY IS MY PERSONAL OPINION, BELIEF, EXPERIENCE. ALWAYS CHECK WITH YOUR OWN DR!!!

That is my back story in as brief as I can share while still trying to give you an idea of why I signed up to be a team leader :)

PS: In case you have not received emails or read the new sticky, I am this teams new leader :)

Edited by: BETH150 at: 9/9/2012 (23:01)
I Am Becoming - Ƹ̴Ӂ̴Ʒ All That I Am Ƹ̴Ӂ̴Ʒ



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SLIMMERKIWI's Photo SLIMMERKIWI SparkPoints: (125,900)
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8/30/12 6:34 P

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Hi - I'm Kris. I was diagnosed with the usual aging degenerative disc disease, arthritis of the spine and hips and scoliosis in my early 40's after having x-rays because of severe on-going pain after hurting my back mopping a floor. I have had a fair bit of input from an Orthopedic Surgeon, Physiotherapists and Dr's re pain relief. This last year I have also suffered from severe sciatic which hasn't responded to a normal cocktail of pain relief, and at times needs morphine. There are a lot of types of exercises I have been strongly advised to avoid, and some of the ones I can do have to be done with extreme care - as we all know doing them incorrectly can make the problems worse.

I have been advised to not have surgery (for the scoliosis) because it can cause even more problems. Surgery for this for an adult is not as successful as it is for younger, still developing bones.

Kris

Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
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ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


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GLCHURCHILL's Photo GLCHURCHILL SparkPoints: (6,815)
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8/30/12 5:34 P

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Hi Beth, I'm Georgia. I have had herniated discs several times. I always have a moderated amount of pain. When I am working in the yard, house, mowing, or shoveling I know my limits. ore often than not I have to stop and take care of myself. Since Feb. I have had severe back pain. The Dr said I have a bulging disc and severe spinal stenosis up and down my spine, especially the lower back. I am getting injections now and am having PT. The first 3-4 days after the shot I hurt badly. I rated my pain an 8/10. I am doing a little better today. But it definitely is debilitating. I want to walk but am unable to. I get a1/4 mile and that is it. Sometimes I do that severall times a day. I take my walker (which really isn't tall enough for me) so I can sit down when I need to.

Walk, Walk, Walk
Goal Setting SMART way
Never quit, Never give up
Georgia


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MS_SWEETHEART's Photo MS_SWEETHEART SparkPoints: (48,134)
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8/30/12 5:22 P

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Hi Beth, my name is Tonya. I suffer from Early Degenerative Disc Disease. I also suffer from an autoimmune condition called Mixed Connective Tissue Disease, that causes pain and swelling in the joints, especially in the back and shoulders.

Never undermine your worth, by comparing yourself to others. ~Tonya J.

Confidence comes not from always being right, but from not fearing being wrong. ~Peter T. Mcintyre
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8/30/12 4:41 P

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Hi Beth,
I started having back pain five years ago. The doctors still don't know exactly what it is from. I have pretty sever facet joint arthritis. I have had plenty of steroid injections, and even a couple of facet joint rhizotomies. Physical therapy, acupuncture, chiropractors, nothing really helps.

I saw the surgeon last week. He said he could do a fusion, but that since they are not sure that is the source of my pain, there would only be a 50% success rate. It may be my sacroiliac joints causing the pain.... It gets depressing; I wish there were a cause and a cure.

Sandy

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BETH150's Photo BETH150 SparkPoints: (1,826)
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8/30/12 4:30 P

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Since I am new to this team and to being the leader, I would love to know more about you & your spine health.

I know there is a intro thread already but a lot of it is general chit chat (which is fine of course). But I would like to know about your back/spine health.

Not only will it help me to get to know many of you, it will also help with setting goals & challenges for the team.

If you want to know more about me & my back injury please go to the 1st sticky under General Discussions. I am also requesting ideas at that post for what YOU want to see this team do emoticon

Edited by: BETH150 at: 8/30/2012 (16:32)
I Am Becoming - Ƹ̴Ӂ̴Ʒ All That I Am Ƹ̴Ӂ̴Ʒ



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Other Spine Injuries And General Back Pain Introduce Yourself to Team Forum Posts

Topics: Last Post:
exercise and back pain 7/8/2013 1:30:37 PM
lower back pain 1/16/2014 3:39:39 PM
Just getting started 6/16/2013 5:53:44 AM
Hi Y'all!!!! 6/29/2014 12:27:51 AM
Chronic low back pain 9/1/2013 11:39:27 PM

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