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1/10/14 1:32 P

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I have had 3 level cervical fusion and a 2 level lumbar fusion. I have bone spurs and am in a lot of pain. What do I do on days when I can't exercise.

MBRANSON's Photo MBRANSON Posts: 353
11/10/13 2:10 A

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I had emergency surgery two years ago last August. I am never without pain, it varies from about 3 to 8. I spend most of my time in bed.
I do the vacuuming, dusting, baths, my laundry, cooking, and load the dishwasher. Nothing is fast, it took me three days this week to vacuum the house and it's only approx. 1300 sq feet. This is my exercise. My husband finds the vacuuming too hard, but he unloads the dishwasher and does his laundry and the towels. Between the two of us, we get everything done.
We went to a regatta this morning then out to lunch, I then slept about seven hours.
We're enjoying our retirement. I'm so happy that we live at home and on our own.



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6/23/13 11:20 A

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Hi, I was reading your post and was interested in that exercise book you mentioned but didn't see the link. I was wondering if you wouldn't mind sharing it with me emoticon . Thank you.

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6/13/13 4:50 P

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Hi: Just joined the group. I have not had any surgery as I am trying to avoid it completely. (Surgery is eminent -maybe) I have the same lumbar problems and disk problems as you guys. But life's a beach, just don't walk in the sand! emoticon

I exercise each and every day. Oh I have pain and take a handful of stuff every 4-5 hours, but that does not define me.

My exercises take place while lying in bed. emoticon

I have a love affair with my heating pad and my ice pack, and over the last 3 years I have come from bed ridden to being able to walk about 1/2 of a city block. It's not a miracle as it took a lot of hard work and determination on my part. I'll post the link where I got my physical therapy book free. I started with exercise 1 and didn't go to #2 for 8 weeks, but I did move on. The real benefit is a strong and muscular build that helps to support my torso. Brilliant!

I have debilitating pain with the drop of the barometric pressure, so I stay home. When it's over I get back on my horse and get moving. A body in motion stays in motion!

I hope this is the start of a very inspirational team! Talk to you soon.






I'm only light years away from my goal, or so it seems. After all we're not mapping the secrets of the universe.

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www.atlas.ch/


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3/29/13 2:27 P

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I had my surgery 2 yrs ago, and still hurt to this day and some people say I am lazy and I do not try to workout but I just can not it hurts a lot if I do to much then I can not even go up the step to the bathroom. wish everyone would know how hard it is.
prayer for all to recover, Happy Easter Flo

The mind that is anxious about future events is miserable.


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SARAHTAIT's Photo SARAHTAIT Posts: 25,963
2/11/13 6:56 P

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I am glad you are more cheery....I am too..but I got on the scale today and was shocked to see the number there...OUCH! I have done well with eating today tho..stir fry fresh veggies with chicken..yummy...
Your class sounds awesome.
Hang in there....we can cheer each other on....and YES..I am so excited winter is almost over.

My son is coming into town Friday and I am heading out of town to be with him and my 3 year old granddaughter so that will cheer me up greatly..it feels like I haven't seen them in forever......

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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2/11/13 6:39 P

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Thanks, Sarah...

My daughter gave me a good talking to today - it helped. We spur each other on. And yeah, I really understand that food-as-reward thing. Way too well. A half-century's worth.

May you fight your way out of your mental slump, and me, too. It has to be do-able. I teach a religion class to high-schoolers, and feel kind of hypocritical, talking to them about faith and trust, when I have so much trouble trusting that I can make a difference in myself.

And cheer up! Winter is on the run. Less than 3 weeks and it's already March!

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2/10/13 10:26 P

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I wish I knew what to advise you..I too am in a slump and have gained a bit of weight back and am disgusted with myself now....it is so hard to always eat the right things....and winter is hard for my pain level so I "reward" myself with food.
Basically my past success was staying on the plan....when I fell off I got right back on..instead of waiting till tomorrow....get back on now. I had plateaus that lasted long times but also felt I was fighting the scale....it took awhile for my body to catch up.
Stay with healthy food...avoid processed foods....you know the drill...get rid of all junk in your house.

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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2/9/13 11:47 A

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...sorry to hear that. the one good tip i got re lyrica was to give it at least 3 weeks for it to "take." most folks are so freaked out by the side effects that they give up too soon. just this past week i was chatting with a nurse in outpatient surgery (i had a trigger finger fixed) and she was saying she couldn't use it because of the fuzzy feeling it gave her...

...i am (happily) to the point now that flexeril is my drug of last resort. when i get muscle spasms that debilitate me, one of those and a rest makes me good as new in 3-8 hours... emoticon

...i see you have lost a huge amount of weight. that is wonderful for you! i am at a mentally low point right now, especially having to start insulin - you know that place where yes, you've been trying, and instead of seeing any progress at all, you feel like a slowly INFLATING balloon....i need to jump start myself somehow. any advise?

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2/9/13 11:10 A

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No...tried both it and neurontin a similar drug...did not help. Also tried cymbalta for a long long time but that didn't help either....you name it I think I have tried it. I take zanaflex tho..a muscle relaxer that helps me relax at night so I can sleep. It works well for me.

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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2/9/13 11:08 A

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Question:

Do you use Lyrica?

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2/8/13 7:24 P

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I am worried that my doctor will be retiring soon and I will have to start all over. I am on fantanyl patch which helps keep me from having to take narcotics often. I have been investigating other things that might help....I can't tolerate massage....have a tens unit. I think I am in need of a MRI to see what is going on.

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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2/8/13 6:59 P

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Oh, Sarah,

I am sorry for you. I've been there. It's pretty amazing just how much our spines control. I never realized; from the tips of our fingers to the tips of our toes; from bicep pain to uncontrollable bowels. You should be commended for learning how to tolerate it.

Do you see a physiatrist? A pain doc? If you can find a good one, your narcotics might be supplemented with steroid injections, radiofrequency intervention, a tens unit, pain patches or - ick - another surgery. I was lucky and kept searching until I found good doctors. Of course, when we're to the place where just surviving is our main goal, mounting a doctor search is pretty daunting...

I was pretty amazed at the effects of oxycontin and lyrica...

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2/7/13 8:51 P

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I have severe pain....radiates from my back and makes me hurt everywhere...I am on strong narcotics to control it...tried to come off of them but discovered my life would be lying on the sofa in agony....no life at all.

Tried everything I can and am at the end of my rope as to what do do but continue narcotics.

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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2/7/13 11:42 A

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Sarah...

Your fusion was at C6-7? What problems are you having now?

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2/7/13 11:37 A

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Hi, Sarah...

The surgery took me from a constant 9+ (where you are pretty sure you are going mad) w/o oxycontin to now - a 1 or 2 sitting still to 4-5 trying to walk or stand unsupported. And I need to lay down every so often or my neck does its burning thing until I listen to it.

This is my main frustration. And yes, I know getting going all on its own cranks out endorphins; it's just finding that balance between doing enough and too much...

I take Lyrica, (300 mg/day at the moment) which is such a godsend, and an occasional vicodin. I stopped Cymbalta a few months ago because of the cost. Meds are eating my budget alive...

So, if I could live like Jabba the Hutt, stretched out all the time, it would be great, pain-wise.

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2/6/13 9:37 P

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Michelle..my question to you is how is your pain now?

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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2/6/13 2:44 P

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Hello, everyone….

I just found this team yesterday, after being on sparkpeople for a couple of years… I’ve never looked deeply enough for a chronic pain group – partly because I’d rather deny that I have it. It was kind of comforting to read your posts – others like me! I operate on the premise everyone hurts to one degree or another. Nothing to do but to soldier on…

But I am 3.5 years out from my last spinal surgery and have just started insulin; I am finally acknowledging that if there is a way to lose weight and get stronger, I need to find it and do it.

Otherwise, I should just sit down and close up shop and wait to die. And I have 2 tiny grandchildren, 3 grown wonderful children and a husband I still love, after knowing him for over 40 years. We were each other’s first dates, and he deserves more than what my disabled body and subdued spirit can give him. And parenting, as most of you probably know, goes on FOREVER.

After the surgery and recovery, I really was impressed with my survival skills. After 17 hours in surgery and flatlining twice in ICU, a month in the hospital, surviving MRSA and another surgery to clean it out of my spine, and then another week in the hospital getting over a sudden reaction to narcotics (after 5 years of using them), I think I’d better go with fighting to become the best “me” I can be, even if getting there is outside my comfort zone.

And I love my comfort zone. I am fortunate that my husband makes enough money for both of us, since I am on a piddling disabilitiy and just am too physically inconsistent to work. But I'm alive! I thank God each morning for letting me wake up again. No one was very sure I was going to survive that chapter of my life, and I need to justify it by accomplishing SOMETHING, even if it’s just to pay back in some way all those taxpayer dollars that Medicare shelled out to keep me alive. emoticon

So, yes, back to why I looked for you. In becoming serious about eating right and exercising, I have found that it hurts more than I am willing to tolerate. Just living causes enough pain; after finally getting to a place where I am able to inhabit my life, expanding my abilities means dealing with the sciatica and nerve-caused pain more often and intensely.

I can use some motivation and support. I am willing to share what’s helped me on this journey, too. Can I join you?

Michelle
Seriously pursuing the loss of 50 pounds

Scoliosis since 1968, DDD, stenosis, spondo, multiple fractured vertebrae, nerve damage at all levels

C4-7 fusion 2005
C4-7 revision fusion 2007
L4-5 decompression 2008 (after bending over to kiss the Blarney Stone)
T3-L5 fusion 2009, followed by MRSA cleanout
Future surgery L5-S1 and more cervical/thoracic when I can’t stand my current status anymore…
TSA alert (got to love those scanners): 2 - 24 in. rods, 36 2in screws, 1 plate, 1 cable and 2 internal vertebral spacers.



Edited by: MZELLA5 at: 2/6/2013 (14:46)
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1/31/13 8:47 P

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I had a Cervical spine fusion at C6-7 about 20 years ago...for about the past year I have had horrible pain...and now I am fearful that I have more issues....
I have fibromyalgia as well...and the pain is unbearable now.
John..it sounds like your back did not heal after surgery which is common....I would suggest a MRI to see what is going on...Bless your heart....it is not fun dealing with back pain...it is the worst.

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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12/20/12 8:18 A

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a post script to my last email.
Now I have serious nerve pain in my lower right back, the SI joint,I think, is the culprit. All I did was turn to my right while sitting and wham!. I felt a searing hot pain to that area,from the top on my pelvic bone to the bottom of the sacrum. It burns the right hip bone too, but that's a side effect to the SI joint pain.
Here's some weird logic from my Neurologist,she wants me to get an operation on my neck,it would be a three to four level spinal fusion with removal of osteophytes,(bone spurs),
O told her my lumbar feels worse. Needless to say, she is no longer my neurologist.
John in search of a good one this time around.

MBRANSON's Photo MBRANSON Posts: 353
11/13/12 12:30 P

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My last posting here was in June. Heart attack a week later, and strokes. Dropped weight very fast, so I was down 105 lbs. I since gained 37 lbs back, I don't feel too bad about this as I was looking pretty bad. I 'm now trying to lose again, but the right way. I gave up all drugs ( July 9th, they were not helping). I put up with the pain, and began withdrawal and recovery.

I accept that I will have all the hardware in my back from now on (screws, spacers, wiring). I am so happy with the results of the surgery. I had no back pain until everything collapsed, one day I'm jogging the next I'm in excruciating pain and unable to move. I no longer have pain but I do have hurt (I differentiate). I'm so uncomfortable with all the gear in my back that I laugh about it, and know that I have to accept it.

The benefits of surgery (I had ignored, thinking I'm just getting old).
Legs no longer painful
Legs no longer swollen, discolored, red blood blisters.
Feet no longer blue or unusually white
Loss of feeling in saddle area and thighs gone
Incontinence of urine and bowel gone, also unusual retention gone
The ground has a new hardness and stability
I do not feel that extreme tiredness, nor any tiredness when I walk or stand
I can step up and down curbs
Strangers no longer offer me their arms getting up from sitting
I am proud to walk as a normal person, which I strive for each day
All of the above I ignored, and like an old dog I just put up with them as often they came and went. The pain and inability to move my legs was what finally made me take notice. I hope this alerts anyone out there that ignores the signs as I did.

It's been 15 months since my spinal fusion.


Edited by: MBRANSON at: 11/13/2012 (12:35)
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11/11/12 8:27 A

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Hello Cindy, my name is John and I'm from NY. I had a cortisone shot to my lower right side of my back. It was for a very strong sciatica pain to the right leg,well, I had the shot in Feb./2007 and haven't had any sciatica pain to the right leg and sporadic sciatica pain to the left side of my lumbar spine.
I think that is fantastic,no pain to the lower right side of my back, there is serious pain to my left side though and I made an appointment to get my neck and lumbar some more cortisone,or epidural as my doctor likes to call it. John/NY

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10/7/12 9:46 P

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I don't know about shoe info - sorry. I have my spine injury plus had both knees replaced so I do know about the challenge of walking.

I bought walking poles off of ebay and they are wonderful!!! I love them & highly recommend them.

Google them and if you are interested (this offer is for anyone) in getting a pair let me know. I will point you in the right direction for the ones that have different end tips and that are the cheapest but still good quality.

I am poor too ;) I think I paid aprox 30.00 for my set & after having them for 3+ yrs they are still in great condition.

I can walk much further with NO pain using these, even walking with my cane is miserable for me.

PS: Mine also have "gloves" for your hands so no worries about dropping them & having to bend over (which kills my back) to pick them up.

Edited by: BETH150 at: 10/7/2012 (22:01)
I Am Becoming - Ƹ̴Ӂ̴Ʒ All That I Am Ƹ̴Ӂ̴Ʒ



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9/3/12 5:02 A

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Jeff where can one find those shoes and how much do they cost? I cant run even if I were being chased by zombies but i try to walk alot but i just have a pair of converse (im poor) and a pair of danskin version of shape-ups which my surgeon told me would be good cuz forces you to have proper posture cuz if you slouch you will fall over but for long walks ect they start to get uncomfortable or maybe i am just out of shape idk

JEFF_F Posts: 6
8/30/12 12:50 P

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Same boat here. I was injured in a car accident in March 2011. Started having pain and dysfunction in elbow and then right hand starting in early June 2011 from cervical disc compression against cord. Did injections which did nothing and physical therapy which made it so bad, I walked out of a physical therapy session straight into the surgeon's office and asked him to put me on the schedule for a C4-C6 fusion in mid-Dec 2011.

When I woke from surgery, right arm pain and dysfunction was totally gone. I still have pain in my neck near the cervical / thoracic junction, but most days are pretty good. The fusion is trussed up with a titanium bridge and the inter-cervical spaces are filled with bone. Fusion is still soft as it takes a year for these things to harden up.

All in all, I feel worse than I did before the accident and will never be quite the same. I'm glad that I had the surgery. I am far healthier than before the accident having lost 30+ lbs, eating like I care about my body, and getting real and regular exercise.

Currently on 4th week of couch to 5k program. Last night's run was brisk walk, 0.25 mile run, brisk walk, 0.5 mile run, repeat, cool down. I was amazed last week that I could run 0.25 mi without stopping. Freaked out last night that I could do 0.5 mi. I push through any spine pain I have when doing this, only taking a break if I have knee discomfort.

While the running seems to be helping reduce the spine pain, it wasn't when I had the wrong shoes. Every step resulted in pain in my knees and neck. Got a pair of New Balance Minimus which have almost no heel lift. So, I land on balls of feet, getting nice cushioning rather than slamming down heals and exploding up my spine with every step.

-Jeff



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SEGUSR1 Posts: 5
8/28/12 2:02 P

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Cindy I am here, just joined. Have you had the injections before? I had them done back in 2010 they made it better for a day or two then it actually got worse. I have since then had a triple lumbar fusion and am struggling to recover and move on. Good luck with your appointment, I hope it goes well for you!

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6/14/12 2:29 A

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I wish that I could have some of the metal removed from my back also, I wonder if there would be some improvement. On y\the x-ray it looks like a 3 inch flat head wood screw and a 2 7/8 flat head wood screw. I also have two titanium disks, at C-4 and 5.

A recent MRI showed protruding disks at C-3, 2, and 1. I now have convex curvature of the spine. I'm also, now having numerous leg and shoulder problems with some numbness in my left hand. Before the surgery last August 10th, 2011, I had no leg problems. The ortho doctors asked what happened, they said they were surprised that I could take a step at all, and if I could move my legs at all. I said nothing happened and I had no problem with my legs, it was my back. Three ligaments had snapped away from my spine on August 4th. I was fine as far as I knew Aug 3rd (jogging up hills and talking), after doing 100 wide stance squats, 100 reverse crunches, 300 hip abductions, and going to Curves. Unknown to me I had pulverized disks 4 and 5 long ago and had been walking bone on bone with no pain.

I'm in a lot of pain most of the time, even though I am on Morphine (liquid and tablet, Ibruprofen, Gabapentin, Cymbalta, Diazepam, Cyclobenzaprine. All are once a day except for the liquid Morphine, Ibruprofin, and Gabapentin which are 3 times per day.

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CWPRAISINJC1's Photo CWPRAISINJC1 Posts: 383
3/5/12 2:40 P

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Cannot believe that no one has responded since I last wrote this. Where is everyone?
Anyway, I am going in for cortizone injections for my lower back on Wednesday. I dread it but want to move on a little bit.
Anyone out there?
Cindy

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2/10/12 5:52 P

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Went to see the doctor that I had seen many years ago. His bedside manners suck but he is the BEST of the best back doctors out here! He also has a son that I hear has better bedside manners. lol
Anyway...we are trying to avoid the fusion as much as possible...but it is 3rd on the list.
I can't remember all of the medical terms (sorry) but to put it short, I have a bundle of nerves wrapped around a bone that is causing all the pain. We are opting to do steroid injections again. I am told that they are better than they were 20 years ago...ANYONE know any different? So, that is the next step. I have gone through all of the steps except the 'big' one and reading your posts, I am really, really hesitate to have that fusion done esp it would be around my tail bone. I am praying for all of us to have better days. This is not good. I have the adrenal fatigue as well and I really don't know which is worse; I think the adrenal is because I have nothing in me to fight it. God bless you all. Love you-Cindy

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1/9/12 1:00 P

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I had an ACDF for a single level, C5/C6, done on 10/28/11 and other than a few hiccups, it's been a definite improvement. My C5/C6 disc had completely collapsed and my C6 nerve was being impinged in 3 different places. I had pain in my arm and numbness in my fingers, along with neck and shoulder pain. Unfortunately, I developed cellulitis on my neck 3 days post-op and was unable to wear my cervical (soft) collar due to the inability to also wear a bandage. On the plus side, my incision closed very quickly with the exposure to air. We're not entirely sure the nerve damage on the right side will ever heal fully - I still have some residual tingling in my fingers - but the pain is gone. The only other side effect that I notice is that swallowing isn't quite right, sometimes I have to work harder, and from about 6-9 weeks post-op, it felt like a pill was continually stuck in my throat. Thankfully, the stuck pill feeling is subsiding.

My biggest tricks:

- Not sitting in the same position for very long
- Sleeping with lots of pillows to help prop me into a comfortable position
- Staying ahead of the pain with my meds and continuing to see my pain specialist

I may end up having another fusion - my C4/C5 was in an earlier stage of degeneration - so we'll see how that goes. Now I'm just struggling with my myofascial pain syndrome.

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12/6/11 1:26 A

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I am 4 weeks out from an anterior 4 disc fusion on c3-c7, they aren't even done. They go back in and complete a posterior fusion within the next 5 weeks. I have some nerve damage along my left side. But I have noticed a remarkable improvement in just 4 weeks. I do still have tingling and numbness, but I know its getting better instead of worse. Whereas 6 weeks ago I was in constant pain and agony, I can feel myself getting better daily. Praise the Lord.

I wear my hard plastic cervical collar all the time. Especially while I am sleeping. Without it, I slouch and am positioning my spine incorrectly, causing numbness, tingling and pain. How long I choose to wear the collar? I don't know. I just know it's helping me. Even a simple seat adjustment/posture readjustment helps with the pain.

No matter what you're feeling on the inside, if your outward appearance looks good, people will give you positive comments. These positive comments will help you on the inside.


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CANDYSMOM1 Posts: 1,053
6/7/11 4:49 P

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I don't come by here too often anymore. most have heard my story. My fusion was done in 2004 after the original injury occurred in 2001. I have been in constant pain and spend most of my time laying down because of it. The reason is because instead of the small amount of bone that is supposed to form around the fusion; I grew solid bone throughout the entire section of my back L3 - S2 (I have an extra vertebrae). There is nothing they can do for me. If they cut, they will damage the nerves that control movement and I don't want to become paralyzed on top of everything else. (Okay I'll admit there is the occassional day when I think it might be better than the pain)

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1/2/11 11:01 A

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I had a fusion a year ago and I am still in pain everyday. SUCKS! I have had test after test. All kinds of injections and blocks and now they don't know why I am still in pain. Does anyone have anything that makes them feel better?

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7/21/10 4:13 P

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actually, if you look it up, for post surgical pain, nicotine products have been used in the reduction of pain. and helped patients pain numbers reduce with the help of pain meds, as well.


If you love this site...you'll like me. well, maybe... i don't really know: if you like potty mouths and truck driver trash-talkin', then i'm a shoe-in. www.regretsy.com/


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i had a spinal fusion too. after continuous pain, 1 year later they rmoved the big damn screws from the surgery. a year later, doing much better. ask ur surgeon about it.
hth

-ami


If you love this site...you'll like me. well, maybe... i don't really know: if you like potty mouths and truck driver trash-talkin', then i'm a shoe-in. www.regretsy.com/


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EMBERSIDHE's Photo EMBERSIDHE Posts: 383
5/25/10 1:52 A

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Hi Kelgram

OH NO I am so sorry first of all, not sure which here. Both not great news at all. I hope you find a job soon enough. I work for myself, and there are NO jobs here whatsoever, so in reality, I am lucky to be self employed.
I am sorry about your mom, I know this is a tough subject, I'm glad you are there for her, and if you ever want to chat private, you can send me a message, I check in once a week or so.

HUGS and XO
Embersidhe

~I have spread my dreams under your feet-
tread softly, for you tread on my dreams~-

~W.B. Yeats~
KELGRAM1's Photo KELGRAM1 Posts: 8
5/14/10 10:41 P

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Unfortunately, I was a casualty of the states budget issues. So after working for 3 months, I am jobless again. I just hope it doesn't take me another year to find a job (like last time.)

The meds seem to be slowing the progression - in fact Mom saw the doc today - but she is still having memory issues and doesn't even realize it. She also gets confused real easily and, of course, frustrated. We'll see it through though. WE ARE FAMILY!
emoticon

EMBERSIDHE's Photo EMBERSIDHE Posts: 383
5/14/10 1:26 A

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Sorry for the looooong time reply Kelgram, but I am super glad you've found a job. Sciatica UGH the pitts of life. That pain is SO bad. 3 years in bed, both legs, 3 discs, my L5/S1 was pretty smashed so I had it removed with my fusion and had a bone put in between the hardware where the disc once lived. LOL

Anyhow, I hope your mom is ok, altzheimers is a bad disease, but, with medication hopefully it will be stable. I have a friend whos mom has it also, and her medication has stopped the progression. I hope this is the case with your mom.

Great to be back
Will check in again, real soon
HUGS Ember

~I have spread my dreams under your feet-
tread softly, for you tread on my dreams~-

~W.B. Yeats~
BRAVEONE92's Photo BRAVEONE92 SparkPoints: (113,049)
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3/26/10 2:10 P

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I am so glad that your mom is no longer in that awful pain. But so sorry that she has the beginning of alzs. So pitiful. I feel for you. I just hope that she doesn't get too bad with it. Oh, and it took me almost two years ago to completely heal.
Good to hear from you.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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KELGRAM1's Photo KELGRAM1 Posts: 8
3/23/10 11:10 P

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TY, BraveOne92... Mom's back is better than it was, but she is not doing as good as I had hoped. She is not in the excruciating pain any more and is able to move around - as long as she doesn't try to do too much. Mom also has beginning Alzs, so doesn't remember how bad she was before and has a hard time understanding why her back is not in perfect condition. emoticon I hope all is going well with you and your mother.

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3/21/10 10:55 P

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KELGRAM, I was reading some of the posts on here and the last post you made, that I can see, was when your mom had spinal fusion. How is she doing? I hope that she feels much better and has lots less pain. It took me almost 2 years to completely heal. I don't have the excrusiating pain that I used to have, but I will experience some pain every day the rest of my life. I am also the only caretaker of my 90 year old Mom.

"I lift up my eyes to the hills-where does my help come from?
My help comes from the Lord, the Maker of Heaven and Earth."
Psalm 121: 1-2 (NIV)


 
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KELGRAM1's Photo KELGRAM1 Posts: 8
2/26/10 12:08 A

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Hi Ember. Nice meeting you also.

Mom is doing okay - the weather pretty much dictates how she feels. She has also been diagnosed with mild Alzheimer, so is now on medication for that as well.

After being unemployed for almost a year, I just started a new job Feb 1st. I am going for walks on my breaks and although the rest of my body feels better, the sciatic just won't shut up. I'm gonna keep walking anyway.


EMBERSIDHE's Photo EMBERSIDHE Posts: 383
2/25/10 11:51 P

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Nice to meet you Kelgram. It sounds like you are doing a super job with your mom with your own injuries going on also.

I hope to see you and everyone more often as I come by the group as time permits.

HUGS Embersidhe

~I have spread my dreams under your feet-
tread softly, for you tread on my dreams~-

~W.B. Yeats~
KELGRAM1's Photo KELGRAM1 Posts: 8
12/1/09 3:27 P

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I am caregiver for my 77 yr old mother. She had spinal fusion on 12/24/09. Docs expected her to be in surgery ward for 2 wks and PT ward for another 5 wks, minimum. Instead, she was home 2 wks to the day of her surgery! She continues to have pain and was on Darvocet. Talked to her doctor and he tried her on Neurontin and Flexeril and she has not needed the pain meds since.
I am also dealing with a back/hip/pelvis injury and prior neck injuries. I take neurotin, flexeril, baclofen and pain meds as needed. They don't fully end the pain (sciatic screamed at me for a full week before Thanksgiving) but they make it tolerable. Also on meds for depression and anxiety which doesn't help matters any...lol... I'll be ok...

EMBERSIDHE's Photo EMBERSIDHE Posts: 383
9/22/09 2:49 A

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JMar, any change, are you still here sweetie?

~I have spread my dreams under your feet-
tread softly, for you tread on my dreams~-

~W.B. Yeats~
EMBERSIDHE's Photo EMBERSIDHE Posts: 383
8/7/09 1:55 A

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Hi Jmar
Good to see you....I quit totally,(smoking that is) it took me 10 times and then once I knew my fusion was good to go, I started smoking again. Not a good thing. I started back up as I had quit my meds, I was on oxycontin and felt I needed something to take off the edge of the coming off. Now, once I lose 10lbs I have promised everyone LOL I am going to quit again for good.

What smoking actually does, is it stops your bones from healing properly - I would have to look in my yahoo files and see what exactly that entails, but its not a good thing, I will say that. It puts negatives in the bone for healing.
Same thing for smokers who break bones actually. I did tons of research when I had my fusion too. I have L3 - S1 done.
When did you last have a checkup with your surgeon?
Also, when did you last have your last x-rays done. I don't mean MRI or anything intricate, I am talking see the bones, plain old x-ray.
It's very important for your progress with a fusion to know what is growing and where.
Mine took fully, 19 months to grow.
What you also have to remember is that your body could think the fusion is foreign, it actually is, but it should have adjusted by now.
Give me a holler via email if you want to chat more. It's not that I am uncomfortable chatting here, I don't come every day, and I feel you possibly need a bit more support that is one on one?
Also, I have a yahoo group, and many of the ladies (well 4) are there also from here I mean.
We are a great group, so if you want to come there as well, I think it would be great and of benefit to you.

I do hope you are ok at this point, but I would definately check with your doc ok.

I will tell you, still to this day I get terrific pain, some days I don't even want to get out of bed, I have to, no choice. I rest when I can through the day and go from there.

A fusion remember, is not a fix. it's to fix what would potentially get worst, and I think many folk go into the surgery hoping this is the fix they need and all the pain will go away. It's not for that, nor like that for many, butfor me, my lifeline - I was suicidal due to the amount of pain I was enduring each day. I had severe sciatica - both legs, I was in bed 3 years, so for me to be able to sit at a computer and type, even if it's in short spats is a huge acomplishment.
my email is
embersidhe@telus.net

Let me know if you want to come to the yahoo group and or to chat some more ok....

Take care
Embersidhe

~I have spread my dreams under your feet-
tread softly, for you tread on my dreams~-

~W.B. Yeats~
LITTLEMAMMA123's Photo LITTLEMAMMA123 Posts: 801
8/2/09 2:45 A

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jmr63 i am in the same way that you are maybe we need to talk

i am makeing blankets to donate to the homeless shelter because everybody needs a little love and kindness.


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LITTLEMAMMA123's Photo LITTLEMAMMA123 Posts: 801
8/2/09 2:42 A

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iam in the same boat as the lady that said she has to lay down all the time.

i am makeing blankets to donate to the homeless shelter because everybody needs a little love and kindness.


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CANDYSMOM1 Posts: 1,053
12/27/08 7:54 P

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Allegra is an allergy med. Celexa is an antidepressant. dilaudid is a narcotic pain med neurontin is for nerve pain Darvocet again is a narcotic pain med. Voltarin is an anti- inflamitory pain med(NSAID) Elavil is a antidepressant. Flexaril is an antispasmodic- for muscle spasms. Xanax is for anxiety. I still have the medical knowledge. can't do much with it. I was a nurse until a fall on the ice took a 22 year career away. I loved working with the elderly but now live life laying down. I hope you find a better solution to your pain as time passes from your surgery.

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JMAR63 Posts: 30
12/27/08 2:47 P

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I guess I am in a turtle shell brace. That's what it feels like. I have finished my PT and the PT told me I could start using a cane. I really feel like I still need the walker. I go to the surgeon again on 1/12. I really thought I would be doing better than I am. I have taken my first stand up shower but it kind of made me feel uneasy and unstable. I am also using the Electro Magenetic whatever devise for 4 hours a day also. I go back to my pain management doctor on 1/5 to start backing off on the pain meds. I am currently taking an (excuse the words) butt load of meds. I take in addition to my regular meds of Xanax, Allegra and Celexa, and the additional meds of Dilaudid (6 1/2 mg) 4x day, 300 mg Neurontin x 3, 650 mg Darvocet 3 x day, Flexaril 10 mg 3 x day, Voltaren twice a day and 100 mg of Elavil at night. I feel like a walking pharmacy. None of these meds makes me drowsy but I know that my reaction time is slower. DUH! I am not driving very far if at all. And am now getting ready to prepare myself for January 9th. This is the day that my company will no longer employee me. On the good side, they did leave it open for a year. This above all is really, really hard to me. I love my job. But there is no way that this major corporation is going to let me come back with the meds I am taking, not to mention that I know in my heart of hearts that I just physically can't do it. This breaks my heart. Also, I am waiting on SSD to let me know if I am eligible for disability payments. Although I do have a company called Allsup that is the go between for me and SSD, I still am unhappy. On a brighter side, my LTD insurance company is providing my my checks every month and I no longer have to "Prove" my disability. According to the them, I am. Period. This has been such a trying time, but with the help of a wonderful husband that does everything from cooking, to cleaning, to laundry to taking care of me, I have been blessed. I thank God (literally) for him. Without him I wouldn't be where I am now.
This just feels like and ongoing saga or soap opera. I am tired now and need to go, but God bless everyone on this site and I hope that he keeps us all protected in his arms.
Jeannie

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CANDYSMOM1 Posts: 1,053
12/25/08 11:18 P

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I don't know if you were referring to me or someone else but I'm having a hell of a time. While Jordan is staying at my MILs I have to be over there all day and it is taking a toll on my back. She just doesn't understand my needed to lay down so much and Jordan wants attention. My back pain is getting worse by the day.

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KMCDOWELL12's Photo KMCDOWELL12 Posts: 4,184
12/25/08 9:27 A

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How are things going now?

Kaye


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CANDYSMOM1 Posts: 1,053
12/19/08 6:02 P

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I was in a turtle shell brace also and I give it partial credit for my losing the 130 pounds in 2005. I just could not eat when I was in it. I lived on liquid yogurt. I was in it so long because of my sons hospitalization and I wasn't able to lay down as much as I should have. We spent 5 months sitting at his bedside starting only 5 months after my surgery. I also went back to my brace when my pain came back. I found as bad as it was, it did make my back feel better. There are times now that I think about using it only I had it made smaller after the weight lose and I have since gained some of that weight back.

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LMANNE's Photo LMANNE Posts: 502
12/19/08 1:10 A

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What kind of brace are you in? I ask because I was in a turtle shell brace, and it was awful!! I was in it twice, since I've had two surgeries. I hope you aren't in one, but if you are, I have something I wrote that you may relate to. I have been where you are today, and I feel for you.

I can't take anything for my arthritis, since it messes up my stomach so bad. It's very cold here now, so I am just miserable. It's in my low back, where I had my surgeries. If anyone knows anything I can do for it, please let me know.

Leila

Have a happy, and excuse me while I be strange!


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JMAR63 Posts: 30
12/18/08 2:06 P

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My surgeon says that everything is going fine. Incision looks good, using the walker, and doing PT. I will admit that i have smoked 5 cigarettes a day. (Neither PT or surgeon know. Trying to taper off as best as i can from where I was before surgery. I am working hard on wearing the brace, using the walker, wearing some kind of Electric magnetic kind of device for 4 hours a day. Getting rest. Getting out of the house on short trips, with someone else driving. He said I could drive now. Just on some many meds it's ridiculous. I go back the see the pain specialist to start reducing the medicine and on January 12th to see the surgeon again.
Know in my heart how I feel physically, emotionally and mentally, that there is not way that I can get back to work by January 9th. I know a lot kind happen but this was just one of the issues with my back. Between the Fibro and arthritis (a serious amount) we still have to work on those problems. The ruptured disc came 8 months after I had already been out of work. But you know, life goes on. If I can stand long enough to give me some quality of life, then I think that it was worth it.
And as far as the cigarettes, I'm trying. I have the patch. Guess it wouldn't hurt to use it now. My smoking has reduced significantly since before the surgery. I'm trying. emoticon

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EMBERSIDHE's Photo EMBERSIDHE Posts: 383
12/16/08 2:48 A

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JMAR I just re-read your post. Honey, you should not smoke at all. I don't know if you were told by your surgeon, but anyone who smokes after a fusion should be told, even with a broken bone, no smoking. The bones won't heal. I quit with my surgery, it is hard, yes, but you will have a successful fusion if you don't smoke. Let us know what happened today ok
HUGS Ember

~I have spread my dreams under your feet-
tread softly, for you tread on my dreams~-

~W.B. Yeats~
EMBERSIDHE's Photo EMBERSIDHE Posts: 383
12/16/08 2:46 A

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HI JMAR
I would definately go check this out ASAP. However, I am 2 years today from my surgery. I do remember the first 3 months being hell. LITERALLY. I had the same levels as you, and well, you have thr same hardwear I would imagine. 8 screws, rods, and a cage. along with a bone graft. Where was the bonegraft taken from hun?
I do hope you get seen too, and hope there isn't anytihng to worry about, and in time, with the healing process, over next few months, the pain will get better. Let us know,
HUGS Ember

~I have spread my dreams under your feet-
tread softly, for you tread on my dreams~-

~W.B. Yeats~
LMANNE's Photo LMANNE Posts: 502
12/11/08 4:05 A

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Yes, let us know what he says!! We are here for you!

Leila

Have a happy, and excuse me while I be strange!


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NEEDTOLOSE22's Photo NEEDTOLOSE22 SparkPoints: (13,829)
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12/10/08 7:39 P

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So glad to hear that you are getting in earlier. Please do keep us posted.

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JMAR63 Posts: 30
12/10/08 9:51 A

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I called the surgeon's office again. They moved my appointment from 12/22 to this coming monday (the 15th I think). I will be updating once I know more. Maybe I am trying to make it hurry up and mend. I appreciate your support!
Jeannie

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CANDYSMOM1 Posts: 1,053
12/8/08 8:11 P

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I agree Please call your doctor. You need to make sure there is nothing seriously wrong!!

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12/8/08 5:27 P

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I agree with LMANNE. Doctors take pride in their work just like anyone else does and he doesn't want you bad mouthing him all over town! So, give him a call and tell the nurse it's an emergency and get it taken care of. It's probably something minor, so please go see the Doc. Dodie

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LMANNE's Photo LMANNE Posts: 502
12/8/08 3:32 P

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I would call your surgeon! There could be something wrong, or it could just be post surgery pain. You really need to know. Your surgeon will know what to do. I had some things go wrong with my first surgery, so it needs to be figured out. You will rest easier if you find out this is normal, and if it isn't, you will get closer to finding out what is causing it.

Good luck to you!!

Leila

Have a happy, and excuse me while I be strange!


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JMAR63 Posts: 30
12/8/08 3:07 P

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L5-S1 done on 11/12/08. Still having the pain that I had before. This is hard to explain. It hurts in the back and legs like before but it is a different type of pain. The other pain didnt' make me cry. This one does. Does ANYONE know, what if anything, that I am doing wrong? Could it possibly be caused by smoking a cigarette or two? Or have a really done something wrong, or is this just part of the healing process? Please Help

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