SparkPeople Lupus and Fibromyalgia Butterflies Team Messageboard http://www.sparkpeople.com/myspark/groups_individual.asp?gid=8449 People living with SLE and Fibromyalgia. Tips to endure flare up times and every day fatigue and pain symptoms. A safe, welcoming community together celebrating our small and large victories. SparkPeople Lupus and Fibromyalgia Butterflies Team Messageboard http://www.sparkpeople.com/assets/nav/nav_logo_v3.gif http://www.sparkpeople.com/myspark/groups_individual.asp?gid=8449 New here!!! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x56422994 Hello everyone. My name is Corrina. I've been on SparkPeople for some years now. Unfortunately, I'm still battling my weight loss goals. Why, you may ask? Because I suffer from several auto-immune diseases, and the chronic pain is what is keeping my from being active. I want to be more active but my body seems to me fighting me on this. <BR> <BR> I really need some support and help. To be specific, I suffer from Lupus, fibromyalgia and Rheumatoid Arthritis. Not to mention the non-chronic pai... Sun, 19 Jan 2014 03:52:02 EST Butterfly's Roller Coaster http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x54867028 I just wanted to say hello to everyone and see how teams doing. I guess I'm doing okay, I've had mini flare up. I try to avoid the Sun I still get these tiny blisters all over; I see the dermatologist on Monday I'll mention. I go outside early. <BR> Question has anybody get digestion flare ups? Wed, 11 Sep 2013 15:40:48 EST the enigma of a butterfly http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x54570537 I feel your pain; my path has been a similar one. My pain came so much earlier in life now that I look back in my childhood. The earliest episode as a baby they say, then a bad episode in 5th grade a talent show the excitement I guess brought on a server leg cramps in my shins, off and on the next few years we thought growing pains, at times rashes appeared thought to be allergies, first rash I remember, I had been at outdoor circus and ate raw peanuts so doctor thought she’s allergic or heat... Sun, 18 Aug 2013 17:34:08 EST New kid http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x54492003 Just wanted to say hi to all the members, before i forget. Gotta run but I'll be back later <em>253</em> Mon, 12 Aug 2013 08:36:55 EST Newbie from Biggest Loser http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x52608914 Hi! I just joined this team because I suffer from both fibromyalgia and lupus. I'm 56, married and have 3 sons (ages 38, 25 & 21). I started my diagnosis for SLE in 2003. I had been being treated for depression for several years and the psychiatrist monitoring my medicines thought I was becoming intolerant of Prozac. She switched my drugs 5 times in a year. The last one was the drug Effexor. It started to seem like my depression was lifting so she kept increasing my dosage. At the same... Tue, 19 Mar 2013 20:25:27 EST How do I keep exercising with an injury? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=9137x8449x46952984 I got so excited about starting a new workout routine, because I really REALLY want to finally lose the extra pounds for my children. However, the night before I started I hurt my hip, and now on day 2 I'm still too sore for any kind of exercising that involves the lower body. Does anyone have tips for what I can do to still burn some calories without my lower body?? <BR> <BR> Thank you! Wed, 7 Mar 2012 11:07:08 EST Hello??? Is anyone out there??? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x45841706 I haven't seen any recent posts from anyone and wonder if this group is still active??? Thu, 5 Jan 2012 13:49:21 EST What are you planning to do differently in 2012? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=9137x8449x45784925 Post your dreams, changes, goal, Inspirations here Remember this is our group...coming together to share is so very important! Mon, 2 Jan 2012 23:02:07 EST Hello Everyone http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x44016581 It's nice to find a group of folks that deal with Lupus AND Fibro. Aren't we lucky (sarcasm) <BR> I'm not really new to Spark, but I just recently started using it in earnest. <BR> I hope to find some 'buddies' so we can help keep each other stay motivated. <BR> <BR> Fatigue is the hardest symptom for me to deal with. I'm hoping to learn some better coping mechanisms besides eating when I'm not able to stop what I'm doing to take a nap. <BR> <BR> I look forward to chatting with everyone. <... Sat, 10 Sep 2011 22:08:15 EST Protein/Fiber Shakes??? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x41150257 Hello everyone, <BR> My name is Susie as you've probably figured out already. Like most of you I have SLE Lupus. I was just wondering if anyone has tried protein or Fiber Shakes to help along with their weightloss. I was on Prednisone for about a year which redistrubted fat in weird places. Oh the Joys of Prednisone!!! Then i got put on Methotrexate for a year which made me loose the 50lbs I gained with the prednisone. Now I have no appite barely at all. If I didnt have to eat with all the wo... Mon, 11 Apr 2011 10:35:41 EST World Lupus Day May 10th http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x40817952 World Lupus Day this Year is May 10th let us spread the awareness of Lupus around the world more than 5 million people worldwide have lupus 90% are women but this can also develop in men and children and can affect any organ <em>304</em> <em>88</em> Will you spread the word? Sun, 27 Mar 2011 04:30:25 EST Just some smiles for your day http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x40251099 As submitted by our Fibromyalgia Network Facebook friends for your shared amusement: <BR> the microwave beeps and I look in the freezer. <BR> I sprayed my hair with spray deodorant instead of hair spray. Both are blue spray bottles ... now I wonder if I have done that before and just didn't notice. <BR> I couldn't find the bagel I was preparing for lunch when I realized I had already split it and placed in toaster. <BR> I notice that most things I lose end up in the freezer. Now, that’s the f... Tue, 1 Mar 2011 09:55:41 EST Shingles Girl http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x39383764 That's my new nickname for myself, since my worn down immune system has led me to a battle with shingles in my ears and nose. YAY! <BR> <BR> Seriously though, as if there isn't enough pain to go around from the fibro and lupus. <BR> <BR> I have been diagnosed with lupus since 1998, and fibro for only a year. I am on multiple meds for the lupus and take savella for the fibro which seems to be ok, but not a magic bullet. <BR> <BR> I have been on a quest lately to fix the wrongs in my lif... Sun, 23 Jan 2011 15:02:42 EST Migraine trouble http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x39381045 Has anyone else had trouble with migraines when the weather changes? Here lately whenever it is going to snow about 2 days out I get the most nasty migraine and sometimes I can't get rid of the thing. It is VERY frustrating to wake up every other day with this migraine and would like my head to stop being taken over by horrible little men with ice picks trying to dig their way out of my head!! <em>40</em> Sun, 23 Jan 2011 12:53:15 EST Me and my wolf http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x39276291 Hello. I am just starting here on Spark and was finding a support system for people with Fibro and Lupus. Was very happy to see one with both so don't feel quite so odd.Have had Fibro for 20yrs. Haven't had the "formal" diagnosis of lupus yet but since my mother has it the Dr. Basically told me that was what I have. Am frustrated because he won't give me the formal "you have Lupus" yet but am working on it. <BR> Anyway, just wanted to connect with other people who are suffering with the same... Wed, 19 Jan 2011 00:35:46 EST New to the team http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x39048548 Hello im new to this team but not to Sparks i have had fibro for 18 years. Mon, 10 Jan 2011 16:53:02 EST Let us know your goals for 2011... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=9137x8449x38889129 Big or small, this is the place to finally get that image bouncing around your brain out and in print! Tue, 4 Jan 2011 21:57:49 EST Fighting an uphill battle with a dragon on my back http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x38862849 Hi everyone, <BR> <BR> I'm really glad to meet you and hope to get to know all of you better. It's great to see a place where people with our conditions can meet and support each other through the problems and pains. <BR> <BR> I have fibro and am obese..and it seems like I'm frustrated daily because of both. Tue, 4 Jan 2011 01:56:35 EST Update :/ http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x37807891 Hey everyone! <BR> Wanted to give you an update- I have been in the hospital for the last few days. I had a massive migraine which also caused a "mini stroke" in my left eye. I am mobile although I cannot run, jump, bend swiftly etc. I can see, but my eye tends to get tired and cross. :( But with all your support I will make it through all this and perservere Love you all! Mon, 8 Nov 2010 13:17:40 EST can anyone relate? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x37127029 first of all, I still don't have a definitive diagnosis of lupus though they've been treating me for it for over 3 years now. <BR> <BR> I'm feeling so lousy and I can't share with anyone here because they don't understand. I'm having sinus trouble (I think it's allergies worsening) and the blockage has started a migraine. Isn't it enough that I ache all over and have no energy? Just had a checkup yesterday and they've added yet another pill.... <BR> <BR> Does anyone else suffer from migr... Tue, 5 Oct 2010 14:34:17 EST Venting http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x36814731 Hello everybody: <BR> <BR> I have many medical prob. Some of them are thyroid, depression, CFS/Fibro...to name a few. I have been with my present endo for almost 2 years, with absolutely NO change (or feeling better). Actually, I think that I feel even worse now then I did 2 years ago. <em>39</em> Today I saw my PCP and told her that I am tired of dealing with my present Endo, as I feel that she does not care. The last time I saw her she asked me if I was sure that I was not feeling bet... Mon, 20 Sep 2010 20:09:18 EST message boards and lack of support http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x35804325 Hi! I'm new to this message board but already have the opinion that I'll get no support here. I put a long posting on under "Hello" and not one person responded. It's bad enough being newly diagnosed with lupus and even worse to know that no one cares. Tue, 3 Aug 2010 00:40:31 EST Hello http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x34995680 Hi all, I'm new to your team. I started being treated for lupus 3 years ago, though different doctors give me different opinions.....do I have it or not? Only God knows! I'm glad to have a team now. Wed, 23 Jun 2010 23:53:11 EST New, complicated, and throwing my hands up. http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x34374946 Hi! My name is Allison, and I'm a 26 year old living with Achondroplasia (the most common type of dwarfism), Lupus, Fibromyalgia, Hashimoto's Hypo-Thyroidism, Endometriosis, Depression, Occipital Neuralgia (severe headaches stemming from the bottom of the skull), Arthritis, Sub-Scapular Bursitis..I could go on! I have two big issues. One is obviously fitness. If I could, I would! The pain levels on a day to day basis are usually a 7-9 on a 1-10 scale and my fatigue is doubled. Does anyone hav... Tue, 25 May 2010 13:14:13 EST Always hungry! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x33997646 Can someone help me? I am hungry most of the time. Even after I have recently eaten. I try to get a lot protein in, but that does not seem to help. As soon as 15 minutes after I have eaten, my stomach is growling and I am feeling sick to my stomach. Does anyone have any ideas for me? I so much appreciate you all. Starr <em>39</em> Sat, 8 May 2010 10:46:50 EST Newbie http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x33830035 Hello. I am new to both lupus and fibromyalgia although not new to the symptoms. I have been seeing a rheumotologist and had one positive lupus test. She said that I will likely have more as the disease progresses. During my last visit she said she thinks I also have fibromyalgia, because of pain at the pressure points. <BR> <BR> I have had a lifelong battle with my weight. While I know genetically I come from overweight genes, I have decided to not give in to it. Type 2 diabetes is strong ... Sat, 1 May 2010 09:53:44 EST New kid on the block http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x33095241 Hello everyone! My name is Wendy and I am new to this website. I was diagnosed with Lupus 18 years ago. Everyday is a struggle since I am a single mom raising a teenager and working full-time. Along with the Lupus I have other major health problems like a blood clotting disorder. This disorder has caused many scary problems for me like pulmonary embolisms and blood clots in my legs. I had the lap band bariatric surgery in Nov. 2009 and have lost 65lbs, but still have about 80 more to go... Wed, 31 Mar 2010 07:30:16 EST Some Good Days http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x32957534 Hello all, <BR> <BR> My name is Charissa. In spite of my chronic health conditions I still would like to commit to a healthy lifestyle. Even though chronic pain and fatigue of lupus and fibromyalgia limit my activity. I was diagnosed with fibromyalgia in 2008, and with lupus in 2009. I am trying to remain as optimistic as I can with these chronic health conditions. I am a full-time graduate student majoring in Special Education, enjoy reading and music. Thu, 25 Mar 2010 12:23:33 EST feeling fat, and in pain http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x32692211 Okay, just joined this, and would like to be some encouragment as well as getting some. <BR> Lupus diagnosed 2000, I am 52,female, raised 3 sons now 21, 23, 24. <BR> Trying to keep up with life, following a diet, or not indulging challenging at times. <BR> I am determined to change though. Anyone have any good tips? Sun, 14 Mar 2010 20:33:05 EST I am new to spark -1/4/2010 http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x31875754 I am new to spark since 4 Jan - lost 14 pds - just diagnosed with early lupus nephritis- was diagnosed SLE in 2000. Had 6 great years of remission, now pleurisy, pleural effusion, percarditis and effusion and now Kidney- actually I think the Kidneys were the start of the rest. BUT feeling good- on Metho and steroids- better each day. I am a real estate broker in SW FL- so we have been very busy- YEAH- great buys and people are scooping them up- but busy days do kick me in the #@$)(. So the... Thu, 11 Feb 2010 10:30:11 EST Hey, Y'all! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x28926575 Hello! I just started this whole spark thing. I had a baby back in June. I've got Lupus (currently not active) and Fibromyalgia (lots of fatigue, especially with the new baby.) After I had my baby, he's my second, my first is 8, depression set in and I craved sweets like you wouldn't believe. I won't name them all b/c it'll just make us hungry! I ended up gaining weight instead of losing after the first ten lbs came off that first week. I feel like a cow. I've got to get this off. I'm too sho... Wed, 7 Oct 2009 18:15:05 EST Weekly Weigh In http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x28764348 I have to have accountability somewhere. I can't seem to find anyone in my life for that. I have been most dedicated (sad as it has been) to this group of sparkpeople then anything else in my weight loss journey. So I have decided to weigh in here every week. <BR> <BR> Current weight 277 lbs. Wed, 30 Sep 2009 14:43:37 EST Encouragement http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x28688767 Please everyone help me get back on the band wagon. I have lost several friends to lupus this month and as a result have been emotional eating like it will bring them back. I am going to florida in October and would like to lost 10 more by then so i can make a sidetrip to Richmond and do the walk for Lupus on Oct 31. I NEED some kudos! Thanks Sun, 27 Sep 2009 13:07:47 EST Today is great http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x27901943 After a week of very bad, today is very good. Not just a little good, it is very good. Pain is minimal, I have some energy and I don't have pneumonia. Yeah!!!!!! Sun, 23 Aug 2009 19:13:49 EST Colorado http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x27818354 I am back to my glorious Colorado after camping in very hot but nice New Mexico. But butterflies are not free. Now back to the routine. I want to learn basketweaving. Wed, 19 Aug 2009 18:33:35 EST TIPS FOR THE ROUGH DAYS... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x27611340 Share your tips and ideas for how you cope with the rough days... <BR> <BR> When I am in a lot of pain, I force myself to move...just a few minutes of effort and I usually feel better. But if things are really bad, a hot bath really helps...I also have found great relief with Glucosamine/Chondroitin. <BR> <BR> Let's here from you! <em>282</em> Mon, 10 Aug 2009 16:34:19 EST Welcome Kelly http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x27131057 Hi Kelly. I am so glad you are joining me in this. We can work together and not be with the other group where we usually see each other. <BR> <BR> shelley Mon, 20 Jul 2009 16:30:03 EST Checkin July 4th http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x26779571 Checking in at 1394 calories for the 4th, even with filet mignon and a ice cream sundae with a drizzle of strawberry and chocolate syrup (sugarfree, of course and I drank water all day!) Jetta438 <BR> Sun, 5 Jul 2009 09:24:14 EST First Friday night without metholteaxate http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x26606768 This is my first Friday night in 4 years without MTX. It is a milestone and very exciting. Sat, 27 Jun 2009 00:50:38 EST I've been looking for this and for all of YOU! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x25901075 Hi All! <BR> <BR> I've always wondered what people with Lupus, Fibromyalgia and their companion issues did for fitness. It's great to see all of the weight loss ads that add "exercise" into the program. Unfortunately, I'm in too much pain most of the time or too exhausted to even walk anymore that my daily routine requires me to. Have been in a almost constant flare up since LAST April (2008). Hospital several times - a few more visits to the ER and 3 ambulance rides later - I'm better bu... Fri, 29 May 2009 09:48:50 EST anyone taking cellcept http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x24869316 Doc is going to put me on this in a couple of weeks. Looking forward to it, read some things online. People who take it for lupus and have had great success. Wondering if there are any others here who take it? Mon, 20 Apr 2009 13:31:43 EST Its Starting to Look a lot like Spring! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x24869127 Hi there everyone. Hope this finds you well and moving. With spring in the air and the sun shining through, I wanted to remind everyone (lupies in particular) to keep the sunscreen handy and wear protective clothing and hats. You don't want to get a rash from the sun or an unwanted flare do to the sun. Plus the bonus of skin aging from the sun. <BR> We should all enjoy the sunshine, but take our precautions. Mon, 20 Apr 2009 13:25:43 EST Hello http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x24454349 Hi everyone. My name is Nechole and I am from Romeoville, Illinois about 25 miles outside of Chicago. I was diagnosed with SLE November of 2008. I was already having a hard time losing weight but have gained about 15lbs since then. Looking to network and see if I can find a workout buddy in my area. Also here to learn more about the disease. Look forward to chatting with you all. Sun, 5 Apr 2009 15:35:30 EST DAILY CHAT... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x24150315 Just a few words...or a question...anything that's on your mind... <BR> <BR> GabiRuszczak Thu, 26 Mar 2009 12:48:18 EST Welcome Chipomp http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x23558891 Hello my name is Suzi. I am so glad you joined our group! I look forward to getting to know you more and hope you have a wonderful weekend! Fri, 6 Mar 2009 20:50:57 EST Howdy http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x23226295 I am new to this team, but not new to spark. I have had a really hard time managing my health with my desire to shed pounds for my health. <BR> <BR> As of late though my health is rapidly deteriorating. I would like to think it is my dark spot just before the dawn. However honestly I don't know what God has planned. <BR> <BR> I have fibro and lupus along with newly diagnosed high blood pressure, and hypothyroid. My gyn also believes there is another dx lingering out there possibly PCOS, b... Tue, 24 Feb 2009 20:53:21 EST Another Newbie http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x22786655 Hello! <BR> New to this team. I am a member of backache smackache as I have chronic back pain. However not too long ago I found out I have Fibromyalgia. I don't know that much about it. Today, and I have no clue why but I feel so depressed and so stinkin tired. No matter what I do I can't seem to find the energy. I went to the gym and could not get into it. I am a personal trainer so this is a bit hard for me. <BR> What advice can you give. What do you do when your so tired. I've started ... Tue, 10 Feb 2009 17:45:57 EST EMOTICON your day... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=9137x8449x22604952 Borrowed this idea from a few of the other teams here on SparkPeople...NO WORDS NECESSARY...How is YOUR day going? <BR> <BR> GabiRuszczak <em>67</em> Thu, 5 Feb 2009 06:10:26 EST LOOKING BACK, MOVING AHEAD... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=9137x8449x21330066 I have re-taken my life in 2008...losing 31 pounds, greatly reducing my need for medication, feeling better than I have in years...and finding a sanctuary here at SparkPeople...HOW ABOUT YOU? <em>206</em> Wed, 31 Dec 2008 20:02:18 EST Introducing.... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x20901471 Hi Everyone! <BR> My name is Dianne, I currently live in Southern Utah and I have had Lupus SLE for about 8 years. Gained 100 lbs due to medications and depression. I'm down 30 lbs. so far and am just looking for some support, especially with the exercise stuff, from people who understand what it's like to be tired, achey and in pain all the time. :( My motivation level fluctuates considerably. I find that exercising consistently is quite a challenge. <BR> Anyone have any ideas? :) <B... Fri, 12 Dec 2008 15:11:59 EST Introduction http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x19107163 Hi, <BR> <BR> I'm Jen, I'm 24 and I've only recently been diagnosed with Lupus although I've had symptoms for 5 years. I'm so relieved to finally have someone believe how I'm feeling and to have a diagnosis, but so scared and confused at the same time. <BR> <BR> I don't really know where else to ask for advice on this... I have what I think is an undiagnosed eating disorder as well. I've weighed well over 200 pounds before and been addicted to food, but now I'm addicted to losing weight a... Mon, 6 Oct 2008 19:16:26 EST New group to check out http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x19025722 a group for the diseases known as dysautonomias. <BR> <BR> www.sparkpeople.com/myspark/groups_i <BR> ndividual.asp?gid=26267 <BR> <BR> check it out. Lots of support! Fri, 3 Oct 2008 10:28:55 EST Nicole paxson http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x18424987 Nicole Paxson has lupus and was diagnosed back when she was 12. She created a makeup line dedicated to those with lupus. And she named everything after a butterfly! How cool yet crazy neat is that! Check it out. Prices vary. And I believe she donates money to lupus research with some of the profits. Cool beans! SPF 30! Check it out. Fri, 12 Sep 2008 13:35:43 EST Another Sufferer Looking for Support http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x16587947 new here <em>46</em> Thu, 10 Jul 2008 20:12:41 EST question http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x14849229 This may be a silly question and is totally unrelated to having lupus. I've noticed on this group and others that people have a bar across their posts that show where their weight was when they started, where it is now and what their goal is. I've looked through the site trying to find out how to get one, I can't figure it out. Thought maybe you'd be able to give me some direction. Thanks. Mon, 12 May 2008 09:59:14 EST Introducing myself http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x14848572 Hi my name is Tami. I was diagnosed w/lupus 5 years ago. I have a lot of pain. So far no body systems have been affected. I'm at the point of being just plain sick of hurting all the time. While my family is supportive in some ways, in many they are not. I think it is because I'm functioning and they can't "see" anything wrong with me. I go to bed hurting and wake up hurting. And with this disease, there is no end in sight. Over the years I've gained weight. I'm at 216 now. During the... Mon, 12 May 2008 09:40:35 EST Anyone ever thought of this? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x13341088 Has anyone ever thought of going on a water diet? I'm not sure how long I could do it but I'd like to try for 7 days.I think it is basically a fast but I am not sure. Sun, 23 Mar 2008 15:05:00 EST Hello http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x13236266 My name is Raynene. I am a 33 yr old mother of 1.I was recently dx with Lupus on 2/15/08.I am going to work on the weight loss slowly and hopefully healthfully but I have been nervously eating. I am going to commit to drinking the 96 ounces of water a day that my doc wants me to drink for now. Wed, 19 Mar 2008 07:49:59 EST Prednisone http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x11997937 I have lost 14lbs so far and yesterday my Dr put me back on prednisone and I'm so scared that I will not be able to lose any weight. Is anyone else on prednisone? Tue, 5 Feb 2008 12:14:29 EST New kinda http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x11564052 Hey there fellow lupies! I am here trying to lose some weight... I'm sure you all know what a battle that can be with lupus. I currently can't walk without a cane, sometimes I'm in a chair. Also, other exercises are really tough, so I'm trying to toughen up my body, loosen up, and lose weight. I have been having a tough time of it lately. Seems like life is more against me losing weight than I know. Also, I have a lot of friends and family members who want me to know that I am "great just lik... Tue, 22 Jan 2008 15:43:15 EST New http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x11398822 Hi I am Destiny and i am new. I look forward to a new journey and meeting you. Thu, 17 Jan 2008 10:53:26 EST Lyrica http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x11269922 My doctor started me on this medication last week. Anyone else on it??? Sun, 13 Jan 2008 20:40:44 EST someone out there like me? cool http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x8449x9467072 hey i am bobbi jo and i am 29. in the last few years i have been diagnosed with thyroid cancer, polycystic ovary disease, lupus, narcolepsy, sleep apnea, ect, ect , ect. they occ. say i am getting fibromyalgia. i am a nurse and i still know nothing about it really. i never really believed in it (not that it is not real) just that that is what docters say when they don't know. anyway , i am having worsening episodes that come and go with muscle burning, extreme fatigue, and sometimes aching al... Fri, 12 Oct 2007 22:23:37 EST Diet Soda Warning, my sister sent me this http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x9329073 SWEET POISON - A MUST READ <BR> <BR> <BR> In October of 2001, my sister started getting very sick. She had stomach spasms and she was having a hard time getting around. Walking was a major chore. It took everything she had just to get out of bed; she was in so much pain. <BR> <BR> <BR> By March 2002, she had undergone several tissue and muscle biopsies and was on 24 various prescription medications. The doctors could not determine what was wrong with her. She was in so much pain, and... Fri, 5 Oct 2007 12:03:20 EST In search of the "perfect" recipe..... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x9092955 I apologize if this becomes repetative to anyone who is on more than one team with me, but I intend to place this on all my teams to stretch my question as far as it will go. <BR> <BR> We are having a baby shower for a friend of mine October 13th, with a Halloween theme. I have offered to make the cake (in an attempt to make it something I can enjoy, and not feel bad about eating). <BR> <BR> This is a "jack and jill" baby shower at a sports bar. The cakes will be decorated like jack o lan... Mon, 24 Sep 2007 09:53:04 EST Help me...I'm going down for the last time...<em>4 http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x7623230 I have SLE and MS and Fibro and osteoporosis and bipolar disorder and I'm sick of being fat! I'm new here, and I really hope I can get some help with my health issues. Weight loss is really difficult with the meds you have to take for these issues...but I'm sure it CAN be done...I just don't know how right now. Hopefully, just having people to talk to about things will make it easier. Hoping to meet y'all here in Cyberland. Wed, 11 Jul 2007 15:32:45 EST Newbies Check in! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x6490154 Hello to all of our new fellow lupies here! Write a little about yourself, and what your goals are. Love to hear from you all!! <BR> Blessings and success to you all!! <BR> Desiree <em>88</em> Fri, 11 May 2007 15:01:15 EST On Demand workouts http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x6470891 Does anyone do those on demand workouts from comcast? They are great!! And some burn over 400 calories!! check them out. I like the star trainer workouts and the turbo jam ones. Thu, 10 May 2007 15:28:19 EST new kid on the block in Ann Arbor, Mich. http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x5967745 Need to meet more people; who suffer daily like me. Fri, 13 Apr 2007 12:41:12 EST Lupus Events in October http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x5519805 I went to the doc the other day and he informed me about the Lupus Loop walk in October. Is anyone going to sign up? This is in PA. But there are other events around the country to help raise awarness and money for Lupus. Have we all connected with our local chapter? I belong to the NW chapter in Washington State., but now I need to change it to the one out here on the East Coast. Lots of info and support at your local chapters. Go to Lupus Now.com and you can check for your chapters. <BR> T... Wed, 21 Mar 2007 12:50:00 EST This sucks http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x5495727 The other day, I had 2 yup I said it, 2 Moolates!! And went to the doctor to get my check up with my lupus. All ok. But his scale, said that I am 15 pounds heavier than the one here. WHAT!! Now I can see a couple of pounds more because of my clothing and coat, shoes the whole gettup on. Maybe a couple of ounces for the coffee and breakfast. But 15!! Dear God!! Just shoot me now. <BR> I am really thinking of joining Weight Watchers or that new one that I heard about called Inches away. What d... Tue, 20 Mar 2007 10:54:17 EST Anna Nicole Had Lupus?? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x5143719 Hey girls what do you think?? If she did have it, then why didn't she tell the world. Was she ashamed? Why though? I know that her life was public to the world. But I think that if she was forward with the issue, she could have helped raise more awareness. <BR> And they need to bury her already!!! Give her some peace! Wed, 28 Feb 2007 16:21:15 EST Positivity Is Key http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x4926315 Hello my fellow Lupies. Hope everyone had a wonderful Valentines day! <BR> I was reading some articles and I found one thing in common in them all. DEPRESSING!! Why?? Don't we have enough on our plates already?? Why worry. Yes, we have lupus. Its not the other way around. When it rears its ugly head, fight back with positivity. <BR> We need to venture out of our comfort zones and have a good time with life. Just because they say that you have lupus doesnt' mean that your life is over. Its j... Thu, 15 Feb 2007 16:42:34 EST Hello and welcome http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x8449x4889073 Hello to all! <BR> I have been diagnosed with Lupus for 3 years now. I wanted to see if others are out there with this problem, and how they are coping. I find that exercise is my solitude. It tends to help with the arthritis, and achy joints for the most part. I used to waste my life worring about the small stuff. But now that this lupiness has reared its ugly head to my life, I am now looking at the glass half full. Life is wonderful and I want to enjoy every moment of it. Live it to the f... Tue, 13 Feb 2007 14:45:11 EST