SparkPeople Myasthenia Gravis Team Messageboard If you suffer MG or are a loved one or friend and would like to lend support and give knowledge this team is for you. SparkPeople Myasthenia Gravis Team Messageboard Welcome Marilyn It's prett quiet group here. <BR> I ahve Myasthenia Gravis but have been stable. How about you? Wed, 16 Aug 2017 20:18:20 EST HeatWave I sure hope you all are doing well in this heat. I'm realy having a diffi cult time of it. The BC Canada fires are just awful and the smoke is blowing to oregon and it is so ahrd to breathe. My Pulmonologist has tried me on new inhalers and I'm doing all I can to stay out of the hospital. Uggggghhhh. Fri, 11 Aug 2017 00:58:54 EST Welcome Twolittl emonkeys I want to let you know our group/team has been pretty inactive. I'm here if you need anything. I have Myasthenia Gravis and am in Oregon. <BR> <BR> Have a wonderful dy. Mon, 7 Aug 2017 12:55:14 EST New Members... Welcome New Members! Feel free to post or reply and ask any questions and/or give support. Tue, 15 Sep 2015 23:15:37 EST August already Happy August everyone. How has your MG been behaving? <BR> <BR> I jusut finished up with 3 das of IVIG and have had a headache and low fever and chills. It is still working for me after a few years. <BR> <BR> Have a great weekend. <BR> Sat, 1 Aug 2015 18:44:18 EST February... Part way through the month and how are you all doing? <BR> <BR> I had IVIG last week and I've been bouncing off the walls with so much energy. I've literally been walking miles and that's not like me. Well, hey, I also ahve a new pair of new Balance shoes and that helps. <BR> <BR> Today I am having my 2nd PFT done. (Pulmonary Function Test) <BR> <BR> Have a great day. Wed, 18 Feb 2015 11:42:56 EST Happy New Year What have you got planned for the upcoming year? Anything at all? <BR> <BR> I'm hopin my daughter and I can take either a cruise or a week in Hawaii. <BR> <BR> I wanted to wish you all a Healthy, Safe and prosperous New Year. Sun, 28 Dec 2014 23:31:08 EST December Chat Welcome VanillaNutMeg. It's a pleasure to meet you. <BR> <BR> Would you like to tell us a little about yourself? Tue, 2 Dec 2014 01:23:12 EST Happy thanksgiving to everyone I have a lot to be thankful for not just now but all the time. <BR> <BR> Today marks the anniversary of being diagnosed with MG. It shocked me. I went into a big depression because I am healthy. the healthiest of my entire fmily. But came out of it. I moved on. I do things to stay busy. I exercise and attend support meetings. It's still only in my eyes today so I am so blessed. Others ahyve this diseae so much worst than I do. <BR> <BR> I'm thankful for ny fur babies. Guide dog ... Wed, 26 Nov 2014 10:42:59 EST Welcome Living Free You probably already know that MG is a rare disease. I have mostly Ocular MG. It's not progressed beyond that.I was diagnosed with Sero positive achr by blood test. Sat, 22 Nov 2014 23:22:27 EST New Leader? I received a notification from spark people someone wanted to be a leader with me because the team ahs been inactive. I could not find the link they spoke of to click o9n just above the huddle If i click that link i should be able to accept or deny the request. Gladly I'd accept but i cn't find the link or even the team huddle. Help! Mon, 17 Nov 2014 17:30:24 EST November and I'm feeling Cold Here we are in November and it's been below freezing. I apologize for bbeing inactive in this team. I ahven't been notified of any postings so let's get this one going. <BR> <BR> I have new symptomes that hav come up and I normally just ahve Ocular MG (in the eyes) But In the past month I've developed severe nec pain and around the same time I have noticed Head only Tremors. Like my head is too heavy for my neck. Constant shaking and bobbing. Except for when my head is all the way bac... Sun, 16 Nov 2014 12:18:41 EST November Chat Good morning all. <BR> Just a note to get us going for November. <BR> Leona Fri, 7 Nov 2014 11:07:29 EST September Chat Good morning. <BR> I am starting a new topic for September. <BR> <BR> On September 28 (Sunday) the myasthenia gravis groups will get together in Shoreview, Minnesota for an all day conference. <BR> Shoreview is near Minneapolis/St. Paul. <BR> There will be speakers, vendors and a silent auction. <BR> <BR> Leona Wed, 3 Sep 2014 09:46:23 EST June is Myasthenia Gravis Awareness month I thought I'd share this with you. This is me. <BR> <BR> <link><BR>e.104 </link> Wed, 4 Jun 2014 20:23:41 EST Happy May! It's hard to believe it's May already. <BR> <BR> I hope everyone has a safe, healthy month. <BR> <BR> Today this 2nd day of may I spent at my Doctors office and a Pharmacy guy helped teach me how to inject myself with insulin. I ahd them laughing by making "Blind" jokes. Because there was a hot guy demonstrating to me he had another nurse witnessing. Ha! I offered to demonstrate on the nurse. <BR> <BR> I did good considering my aim is bad. I have to do everything by touch but I did ... Fri, 2 May 2014 18:20:33 EST April Today is the third of April. I thought I'd stop in and say hello to all of you. How is life treating you? Is everyone doing well? Whether you have MG or not. <BR> <BR> Thought for today: I'll just keep moving. Thu, 3 Apr 2014 12:51:00 EST New to this team Hello all. <BR> I went to a support group today for MG and was going to start a team but see there is already one. My husband has MG and has his ups and downs. I will read the messages and respond later. <BR> Leona Sat, 18 Jan 2014 20:55:51 EST 6 month check up w/Neurologist That was today. He feels I'm over medicated. I take Mestinon 3 X a day and CellCept 2 tabs twice daily plus the ivig. I'm tapering off the mestinon to twice daily and IVIG will be every 6 weeks rather than 4 weeks. Thursday I have albs done because of the CellCept. It's an immunosuppressant. I'm doing good and have lsot 8 lbs. Tue, 25 Jun 2013 20:27:33 EST May IVIg Yesterday I finished a round of IVIg. 3 days once a month for me. Literally... I ahd a bad stick this time and it appears this was my first problematic IV. Normally the IV's are on my upper arm anywhere between the wrist and below the elbow on top I mean lower arm. this one was on top of my hand and owwiieeeeeee. I was not able to type on my computer..Taking off the tape was not bad at all though because that is an area where i ahve very little hair. on my arm I have hair.. <BR> <BR... Fri, 10 May 2013 15:37:45 EST prednisone mg and weight loss hi all. im about to hit my one year mark of being diagnosed. ive had a thymoma removed with full sternal thymectomy. am weaning off of prednisone very very slowly and would love to get back to a normal weight. ive been using something called the game on diet since nov. with pretty good results so far. 17 lbs down. i really could use some encouragement though from folks who understand mg. this is really hard. i feel bad always venting to my husband. anyhow. i was on spark people a few years ba... Thu, 25 Apr 2013 15:05:37 EST New to all this Hello, my name is Kim and I am obese! I have been sick for 3 1/2 years and not able to do any kind of working out. I have lupus, fibro, myasthenia gravis and some other health issues. I recently had my thymus removed which they did by opening my chest like open heart surgery. This has made me feel better. I started working out in the pool yesterday. I was tired after 15 minutes but pushed myself to do 30 minutes. Today I returned and was able to do 38 minutes in my pool workout. Hoping to inc... Fri, 19 Apr 2013 13:00:41 EST Call from regular Dr. It came yesterday afternoon. My kidneys are doing quite well. normal even. Remember that contrast dye can be dangerous on the Kidneys. I ahve had so much water this week it is simply ridiculous. It worked though. In flushing the dye out of my system and she gave me the go ahead to start back on my diabetes meds. (metformin and Glyburide) <BR> <BR> Need I say my numbers ahve been high over 300. Normal is 80-120. I've been tired, thirsty. Not to mention the leg cramping in the calves... Sat, 3 Dec 2011 14:44:55 EST CT SCAN This was yesterday afternoon. <BR> It was with contrast dye given through an IV. <BR> When asked by the woman if I ahve ever had this done before i was so sure i had. How wrong I was. <BR> <BR> IV went in right arm around elbow area she drew blod nd tested it first for my kidney function to see how my kidneys are and that turned out ood/normal so she proceeded. I went in the donut tunnel knees up on a pillow and I was freezing when i entered the room at first because there was a/c on. she... Wed, 30 Nov 2011 17:30:09 EST Hello new members Please introduce yourself in an introduction thread and tell us a little bit about yourself. Thanks bunches Wed, 16 Nov 2011 18:59:19 EST General Info And Common Treatments, so far... I found these links and thought that they might help those of us that want to learn more about what this disease really means and what may be in store for those that have it. <BR> <BR> <link><BR>c=s&source=web&cd=2&ved=0CC8QFjAB&url=<BR><BR>ders%2Fmyasthenia_gravis%2Fdetail_myas<BR>thenia_gravis.htm&ei=dEzETsS9G-ag2gX9l<BR>s22Dg&usg=AFQjCNEnGeS-TdIYyIOb5TjVWdZ0<BR>OpuaIw&sig2=ftzc9oZIofh8IseVxI_zfA </link> <BR> <B... Wed, 16 Nov 2011 18:55:06 EST Newly diagnosed It was the change in my vision and the droopy eye first in left then in right and botha re almost fully closed. I see my neurologist for the first time tomorrow. I'd love support here I hope everyone would be able to offer me and others a ray of light. Here I'll discuss my journey. Wed, 16 Nov 2011 11:59:50 EST