SparkPeople Myasthenia Gravis Team Messageboard http://www.sparkpeople.com/myspark/groups_individual.asp?gid=54013 If you suffer MG or are a loved one or friend and would like to lend support and give knowledge this team is for you. SparkPeople Myasthenia Gravis Team Messageboard http://www.sparkpeople.com/assets/nav/nav_logo_v3.gif http://www.sparkpeople.com/myspark/groups_individual.asp?gid=54013 June is Myasthenia Gravis Awareness month http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x54013x58111982 I thought I'd share this with you. This is me. <BR> <BR> <link>https://www.facebook.com/deborah.col<BR>e.104 </link> Wed, 4 Jun 2014 20:23:41 EST Happy May! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x54013x57733906 It's hard to believe it's May already. <BR> <BR> I hope everyone has a safe, healthy month. <BR> <BR> Today this 2nd day of may I spent at my Doctors office and a Pharmacy guy helped teach me how to inject myself with insulin. I ahd them laughing by making "Blind" jokes. Because there was a hot guy demonstrating to me he had another nurse witnessing. Ha! I offered to demonstrate on the nurse. <BR> <BR> I did good considering my aim is bad. I have to do everything by touch but I did ... Fri, 2 May 2014 18:20:33 EST April http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x54013x57372088 Today is the third of April. I thought I'd stop in and say hello to all of you. How is life treating you? Is everyone doing well? Whether you have MG or not. <BR> <BR> Thought for today: I'll just keep moving. Thu, 3 Apr 2014 12:51:00 EST New to this team http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x54013x56419837 Hello all. <BR> I went to a support group today for MG and was going to start a team but see there is already one. My husband has MG and has his ups and downs. I will read the messages and respond later. <BR> Leona Sat, 18 Jan 2014 20:55:51 EST 6 month check up w/Neurologist http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x54013x53887509 That was today. He feels I'm over medicated. I take Mestinon 3 X a day and CellCept 2 tabs twice daily plus the ivig. I'm tapering off the mestinon to twice daily and IVIG will be every 6 weeks rather than 4 weeks. Thursday I have albs done because of the CellCept. It's an immunosuppressant. I'm doing good and have lsot 8 lbs. Tue, 25 Jun 2013 20:27:33 EST May IVIg http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x54013x53294741 Yesterday I finished a round of IVIg. 3 days once a month for me. Literally... I ahd a bad stick this time and it appears this was my first problematic IV. Normally the IV's are on my upper arm anywhere between the wrist and below the elbow on top I mean lower arm. this one was on top of my hand and owwiieeeeeee. I was not able to type on my computer..Taking off the tape was not bad at all though because that is an area where i ahve very little hair. on my arm I have hair.. <BR> <BR... Fri, 10 May 2013 15:37:45 EST prednisone mg and weight loss http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x54013x53106791 hi all. im about to hit my one year mark of being diagnosed. ive had a thymoma removed with full sternal thymectomy. am weaning off of prednisone very very slowly and would love to get back to a normal weight. ive been using something called the game on diet since nov. with pretty good results so far. 17 lbs down. i really could use some encouragement though from folks who understand mg. this is really hard. i feel bad always venting to my husband. anyhow. i was on spark people a few years ba... Thu, 25 Apr 2013 15:05:37 EST New to all this http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x54013x53030601 Hello, my name is Kim and I am obese! I have been sick for 3 1/2 years and not able to do any kind of working out. I have lupus, fibro, myasthenia gravis and some other health issues. I recently had my thymus removed which they did by opening my chest like open heart surgery. This has made me feel better. I started working out in the pool yesterday. I was tired after 15 minutes but pushed myself to do 30 minutes. Today I returned and was able to do 38 minutes in my pool workout. Hoping to inc... Fri, 19 Apr 2013 13:00:41 EST Call from regular Dr. http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x54013x45354203 It came yesterday afternoon. My kidneys are doing quite well. normal even. Remember that contrast dye can be dangerous on the Kidneys. I ahve had so much water this week it is simply ridiculous. It worked though. In flushing the dye out of my system and she gave me the go ahead to start back on my diabetes meds. (metformin and Glyburide) <BR> <BR> Need I say my numbers ahve been high over 300. Normal is 80-120. I've been tired, thirsty. Not to mention the leg cramping in the calves... Sat, 3 Dec 2011 14:44:55 EST CT SCAN http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x54013x45309408 This was yesterday afternoon. <BR> It was with contrast dye given through an IV. <BR> When asked by the woman if I ahve ever had this done before i was so sure i had. How wrong I was. <BR> <BR> IV went in right arm around elbow area she drew blod nd tested it first for my kidney function to see how my kidneys are and that turned out ood/normal so she proceeded. I went in the donut tunnel knees up on a pillow and I was freezing when i entered the room at first because there was a/c on. she... Wed, 30 Nov 2011 17:30:09 EST Hello new members http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x54013x45115571 Please introduce yourself in an introduction thread and tell us a little bit about yourself. Thanks bunches Wed, 16 Nov 2011 18:59:19 EST General Info And Common Treatments, so far... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x54013x45115511 I found these links and thought that they might help those of us that want to learn more about what this disease really means and what may be in store for those that have it. <BR> <BR> <link>www.google.com/url?sa=t&rct=j&q=&esr<BR>c=s&source=web&cd=2&ved=0CC8QFjAB&url=<BR>http%3A%2F%2Fwww.ninds.nih.gov%2Fdisor<BR>ders%2Fmyasthenia_gravis%2Fdetail_myas<BR>thenia_gravis.htm&ei=dEzETsS9G-ag2gX9l<BR>s22Dg&usg=AFQjCNEnGeS-TdIYyIOb5TjVWdZ0<BR>OpuaIw&sig2=ftzc9oZIofh8IseVxI_zfA </link> <BR> <B... Wed, 16 Nov 2011 18:55:06 EST Newly diagnosed http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x54013x45109789 It was the change in my vision and the droopy eye first in left then in right and botha re almost fully closed. I see my neurologist for the first time tomorrow. I'd love support here I hope everyone would be able to offer me and others a ray of light. Here I'll discuss my journey. Wed, 16 Nov 2011 11:59:50 EST