SparkPeople Living with Psoriatic Arthritis Team Messageboard http://www.sparkpeople.com/myspark/groups_individual.asp?gid=42681 This is for those who have Psoriatic Arthritis and the family members. This is a painful condition that has no cure. SparkPeople Living with Psoriatic Arthritis Team Messageboard http://www.sparkpeople.com/assets/nav/nav_logo_v3.gif http://www.sparkpeople.com/myspark/groups_individual.asp?gid=42681 Do you have anything you would like to see here? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x42681x54803853 Like some challenges or goals? I do hope you enjoy this board & hope it helps. <BR> <BR> Tammy Fri, 6 Sep 2013 11:52:08 EST How is intimacy with your other? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x42681x47149990 Because of the skin, we only have intimacy about 2-4 years. This can effect your emotional status. <BR> <BR> Tammy Sun, 18 Mar 2012 23:30:42 EST Hope everyone had a good Christmas http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x42681x45697760 I know this cold weather makes your Psoriasis dry up and crack. About all you can do is to try to keep moisturized. <BR> <BR> Tammy Thu, 29 Dec 2011 11:57:05 EST Hi everyone http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x42681x43589182 Just checking in to see how our members are doing. I hope everything is alright. <BR> <BR> Tammy Wed, 17 Aug 2011 13:35:46 EST Hi all members. I hope you are enjoying this board http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x42681x43114383 I hope this board helps everyone. If you want to do something else or talk about it, just post or let me know. Thu, 21 Jul 2011 12:52:51 EST Sorry I have not been on here lately http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x42681x41910590 My mother had a craniotomy and I had to take care of her, but, I am back home and back here. Wed, 18 May 2011 22:43:42 EST Humira http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x42681x40410254 They took my husband off Humira every week to every other week, that did not work, so they told him to go back to using it every week. Mon, 7 Mar 2011 22:01:27 EST Questions http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x42681x40034335 Does anyone have any questions or input? I would like to hear them. <BR> <BR> Tammy Sat, 19 Feb 2011 21:11:44 EST Exercise http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x42681x39883723 Does anyone have any suggestions for any sort of exercise that can be done with this condidtion? I have been told to go swimming but I'm not ready for that yet. <BR> I have a spinning bike and am thinking of trying this, can anyone recommend it? Sun, 13 Feb 2011 06:21:14 EST Food and Psoriasis http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x42681x39540249 On rare occasions, if u eat the right foods, it can help your Psoriasis. Sat, 29 Jan 2011 19:43:22 EST Since Stelara . . . http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x42681x39460314 Stelara was not working, so, they put my husband back on Humira and now he is going to a rheumatologist and they have dropped his Humira down to 1 shot every other week and they want to put him on methotrexate with it. Methotrexate did not work years ago, but, hopefully, with the combination, it will work. <BR> <BR> More as we get it. <BR> <BR> Tammy <BR> <BR> Tell us about your experience. What works for you and what don't. Wed, 26 Jan 2011 11:06:16 EST Sorry, I have not posted, but . . . http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x42681x39027671 I have had some asthma problems for the last 3 months. <BR> <BR> I hope you all are well after the holidays. <BR> <BR> Tammy Sun, 9 Jan 2011 23:05:01 EST Hello All! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x42681x37808761 How is everyone? <BR> My name is Nicole and I just got a diagnosis of psoriatic arthritis about 2 months ago after a year and a half of misdiagnoses, unhelpful physical therapy sessions and generally being treated by medical professionals as though I was a hypochondriac who liked attention. Very relieved to know what it is, but still an uphill battle, both with pain and doctors. I am on Imuran and it seems to help somewhat but I don't really like being on such a strong immuno-suppressant medi... Mon, 8 Nov 2010 14:04:45 EST New medicine http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x42681x34759129 Well, since May 31, 2010, they have put my husband on Stalara. Looks like it might be improving some, so, we'll see. Sat, 12 Jun 2010 17:19:37 EST Welcome all new members! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x42681x34142866 Hi all. Welcome and join our board. We understand how you and your family feel. This condition not only <BR> effects you but the family suffers also. <BR> <BR> My husband had PA over 90% of his body until he started taking Humira. <BR> <BR> Please join if you or a family has PA so we can try and help you though it. If nothing else, just a friend. <BR> <BR> Tammy Wheeler <BR> Leader <BR> <BR> Fri, 14 May 2010 16:31:48 EST Research http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=15410x42681x34052423 <link>www.dermandvein.com/research.html </link> Mon, 10 May 2010 22:11:01 EST traditional systemic drugs http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=15410x42681x34044690 Systemics booklet: <BR> <link>www.psoriasis.org/NetCommunity/Docum<BR>ent.Doc?id=161 </link> <BR> <BR> Cyclosporine <BR> <BR> Cyclosporine is an immunosuppressive drug that is FDA-approved for treating psoriasis, and it may produce improvement in psoriatic arthritis. Periodic blood tests are required due to the possibility of kidney damage. <BR> Methotrexate <BR> <BR> Methotrexate, an immunosuppressive drug, is FDA-approved for treating psoriasis, and is used widely and successfully for... Mon, 10 May 2010 16:13:50 EST biologic drugs http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=15410x42681x34044273 Enbrel - <BR> fact sheet: <BR> <link>www.psoriasis.org/NetCommunity/Docum<BR>ent.Doc?id=217 </link> <BR> <BR> The drug Enbrel (also know by its generic name etanercept) was approved for individuals with moderate to severe psoriatic arthritis in January 2002 and for psoriasis in April 2004. It is also approved for treating rheumatoid arthritis, ankylosing spondylitis and juvenile idiopathic arthritis. <BR> <BR> Studies have shown that Enbrel reduced the progression of joint damage for t... Mon, 10 May 2010 15:51:48 EST antimalarial and other DMARD drugs http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=15410x42681x34044266 Antimalarials <BR> <BR> Antimalarial treatment, commonly used with success in rheumatoid arthritis, has sometimes been used to treat psoriatic arthritis. <BR> <BR> Antimalarials are usually given as one or two pills, once a day. It may take many months before seeing benefits. Side effects include vision changes (blurring, halos around lights and sensitivity to light), headache, dizziness, nausea and vomiting. Individuals taking an antimalarial should have eye examinations periodically. <BR>... Mon, 10 May 2010 15:51:31 EST other options http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=15410x42681x34044264 Diet and climate <BR> <BR> Manipulating the diet has not been found to be useful for psoriatic arthritis. However, a warm, stable climate may have some influence on the disease symptoms. <BR> <BR> Various dietary supplements have been reported to help some people with arthritis. Some of these include glucosamine, chondroitin, methylsulfonylmethane (MSM) and S-adenosylmethionine (SAM-e). <BR> <BR> Exercise <BR> <BR> Exercise is essential to preserve strength and maintain range of motion. I... Mon, 10 May 2010 15:51:12 EST disease- odifying antirheumatic drugs (DMARDs) http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=15410x42681x34044166 Disease-modifying antirheumatic drugs (DMARDs) may relieve more severe symptoms and attempt to slow or stop joint and tissue damage and progression of psoriatic arthritis. <BR> <BR> Biologics, such as Enbrel, Humira and Remicade, are also considered DMARDs. They are highly selective agents that target specific internal events in the body that cause psoriasis and psoriatic arthritis. <BR> <BR> It is important to work closely with your rheumatologist or other health care provider. Each case o... Mon, 10 May 2010 15:46:02 EST nonsteroidal anti-inf ammatory drugs (NSAIDS) http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=15410x42681x34044129 Nonsteroidal anti-inflammatory drugs (NSAIDs), including over-the-counter medications such as aspirin and ibuprofen as well as prescription products, help to decrease inflammation, joint pain and stiffness. Aspirin can help reduce pain, swelling and stiffness. <BR> <BR> Prescription and nonprescription NSAIDs are effective for many people with psoriatic arthritis in controlling swelling, pain and morning stiffness, and in improving range of motion to joints. They can help reduce the limitati... Mon, 10 May 2010 15:44:25 EST Arthritis mutilans http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=15411x42681x34043982 is a severe, deforming and destructive arthritis that affects fewer than 5 percent of people with psoriatic arthritis. It principally affects the small joints of the hands and feet, though there is frequently associated neck or lower back pain. Mon, 10 May 2010 15:37:47 EST Spondylitis http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=15411x42681x34043965 is inflammation of the spinal column. In about 5 percent of individuals with psoriatic arthritis, spondylitis is the predominant symptom. Inflammation with stiffness of the neck, lower back, sacroiliac or spinal vertebrae are common symptoms in a larger number of patients, making motion painful and difficult. Peripheral disease can be present in the hands, arms, hips, legs and feet. Mon, 10 May 2010 15:36:44 EST Distal interphalangeal predominant (DIP) http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=15411x42681x34043944 although the "classic" type, occurs in only about 5 percent of people with psoriatic arthritis. Primarily, it involves the distal joints of the fingers and toes (the joint closest to the nail). Sometimes it is confused with osteoarthritis, but nail changes are usually prominent. Mon, 10 May 2010 15:35:48 EST Asymmetric arthritis http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=15411x42681x34043922 can involve a few or many joints and does not occur in the same joints on both sides of the body. It can affect any joint, such as the knee, hip, ankle or wrist. The hands and feet may have enlarged "sausage" digits. The joints may also be warm, tender and red. Individuals may experience periodic joint pain which is usually responsive to medical therapy. This form is generally mild, although some people might develop disabling disease. Mon, 10 May 2010 15:34:44 EST Asymmetric arthritis http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=15411x42681x34043871 can involve a few or many joints and does not occur in the same joints on both sides of the body. It can affect any joint, such as the knee, hip, ankle or wrist. The hands and feet may have enlarged "sausage" digits. The joints may also be warm, tender and red. Individuals may experience periodic joint pain which is usually responsive to medical therapy. This form is generally mild, although some people might develop disabling disease. Mon, 10 May 2010 15:32:26 EST Symmetric arthritis http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=15411x42681x34043836 is much like rheumatoid arthritis but generally milder with less deformity. It usually affects multiple symmetric pairs of joints (occurs in the same joints on both sides of the body) and can be disabling. Mon, 10 May 2010 15:30:46 EST