SparkPeople Fighting Fibromyalgia Team Messageboard

whoa.

Tue, 21 May 2013 18:57:03 EST

Wasn't sure where to put this, but I really wanted to share it...

A friend sent me this video--wow. This moved me to tears. I've totally been there on some of the things they touch on... my friend's message with it said that this was something everyone should see... and I agree!
Thought provoking...
www.youtube.com/watch?v=HcvA2pdpuSU

Kathy 407

Bifocals and fibro

Sun, 19 May 2013 01:15:42 EST

Hi all,

I just found out I need to have a separate reading prescription from my distance prescription. My fibromyalgia started in my neck and usually is worst there. I was reminded about pain from adjusting my neck yesterday while dealing with off kilter glasses (I broke them on the bridge and had to hold them together there with adhesive for a few hours til I could get to my spare ones). Instead of bifocals, I requested separate reading glasses. Can anyone tell me about any pr...

Hey Ya'll I'm a Newbie Here!

Sat, 18 May 2013 16:35:32 EST

I was first diagnosed with fibromyalgia when I was 19, but back then nobody really understood it! I had some pain and muscle tension, but for the most part was able to deal with it. Then in 2005, I had a major flare. I woke up one morning and could barely move. I ended up having to quit my full-time job and was bounced around from doctor to doctor. Then we ended up moving and I found a fibro-friendly doctor who took the time to explain all aspects of fibro to me and would really listen to me!...

Hello

Wed, 15 May 2013 15:45:02 EST

Hello, My name is Jennifer. I was diagnosed with Fibromyalgia in October of 2012 after a more than 2 year search for an answer. I had many symptoms for a long time before that, but I believe my last pregnancy in 2006/07 and some major stress in my marriage brought on a significant flare in 2010. This is what launched the search for answers. I am coming off of a flare now after a 6 month period of improved symptoms. During that time I began to question my diagnosis. After reading over a...

What do you do for pain?

Wed, 15 May 2013 12:11:43 EST

I'm curious to know what other people do for their pain...I take Lyrica (which does more for my mental and emotional wellbeing) and then either 6 aspirin or 6 ibuprofin in the morning, for the pain. Even then about half the time I can't function very well. In reading the article Spark had today I realized that maybe controlling my fibromyalgia will make me more active and not the other way around. If you're willing to share I'm willing to listen..........

Hello There

Wed, 15 May 2013 10:38:27 EST

My name is Shannon and I am 34 and have been suffering with Fibromyalgia for over 4 years now. I was glad to find this team to be able to interact with other people who are going through the same things I am. I'm getting started back into my fitness routine so I hope to learn a lot from others who have been here before!

All Or Nothing

Wed, 15 May 2013 08:44:34 EST

I'm one of those who think you should go all out and do all these exercises not thinking of the consquences. I had been involved in a MVA about 25 yrs ago and fractured the fifth vertebrae. It was a long recovery and it was all meds and no one including doctors knew what to do with me. The 5 yrs ago a pain specialist came in our area and he did what they call denervation where the nerves are burned. One side done 6 weeks apart with me a yr to 14 months pain free with my neck. However I also h...

parasites...

Sat, 11 May 2013 20:29:26 EST

With the help of a holistic physician it's been discovered that I have parasites. I have been undergoing treatments to kill them, (yes, I've seen them with my own eyes!) and as the treatment has progressed, I have felt my depression and brain fog lessen. I have also been able to pin point when my "flare-ups" (abdominal cramping and pain, bloating and ulcer like pain have been from the parasitic activity in my gut and colon. I know that this isn't something very well treated or known of in a ...

Hello there! Irish smiles!

Mon, 22 Apr 2013 11:37:53 EST

Hello everyone! I've come back and I'm under a new name (was "Excira"). Why? Because I've changed back to my old ways and I need your help.

The last 20lbs I lost on SP has found it's way to my hips, thighs and other areas I dare not speak. Heck, I can probably fly to Hawaii with the wings I now have! 211

But this time, I have realized that my weight problem is not with just losing the extra pounds. I have a severe relationship issue with food and feelings of...

BETTER THAN DANCING WITH THE STARS!

Sat, 20 Apr 2013 14:22:33 EST

www.youtube.com/watch_popup?v=8LOdmk
a4_90
I want to be like this--wow! LOL

ANOTHER UNEXPECTED RESCUE...

Sat, 20 Apr 2013 12:41:14 EST

video.futura-sciences.com/services/p
layer/bcpid1020658729001?bckey=AQ~~%2c
AAAA7tL7Jbk~%2cPIa4ylnDNbjnj7ZbiOV8kbv
ADabkL0oK&bclid=0&bctid=2115487651001

When this comes up, click on the screen enlargement--you're going to want to see the details!

Ventroloquism, anyone? Funny stuff!

Sun, 7 Apr 2013 15:33:05 EST

I'm STILL laughing! 246

www.videobash.com/video_show/ventril
oquisting-is-perfect-for-comedians-who
-can-t-iuml-raquo-iquest-st-298683#Gi7
Esbtlza3cvpGQ.01

Hello to a support group I really need.

Tue, 2 Apr 2013 13:29:55 EST

I just found out I have fibromyalgia and would like support in dealing with it. I have been on sparkspeople for years now and it has really helped me keep track of my health. Thank you for the team. 2

A WHALE OF A STORY

Tue, 2 Apr 2013 10:52:28 EST

Loved this, it made me cry! SO cool...

www.youtube.com/embed/EBYPlcSD490?re
l=0

Piercing pain

Tue, 2 Apr 2013 08:58:29 EST

I have piercing stabbing pain in my feet and legs especially my calves. It is preventing me from living a normal life. I am lying down in bed with the electric blanket too much!!!!
I have tried sn Rx at one point in time but it did nothing. I soak in hot water in the morning to try and loosen them and begin my day. I sometimes need to go in the hot water again at the end of the day. If I could live in hottub I would.

What have you done that had helped?

Hi! I am Jane

Tue, 2 Apr 2013 08:41:17 EST

I have such pain especially in my feet legs and calfs. Burning, piercing pain. I soak in the tub in hot water a lot. I could live there. I tried one Rx once. It did nothing. I take Aleve.

I need to work through this so I dont become 100% sedentary at this young age of 45!!!! Thus here I am looking for ideas and support.

Unusual sensations in extremities

Tue, 19 Mar 2013 20:03:01 EST

Hello, I am new and I have a question.

Lately I have had the strange sensation in my arms and legs. It is not a pain but like they are not my limbs. I feel like I have to think hard to make them work right and sometimes they don't respond exactly like I think they should. Holding a pile of magazines and my arms and they just let go or walking and my legs suddenly feel like noodles or like they weigh a thousand pounds. The other sensation is a tingling on my right side from shou...

Can I join you all?

Mon, 18 Mar 2013 22:12:46 EST

Hi everyone. My name is Melissa. I am so excited to have found this group on this site. I am now 36 years old and very out of shape and overweight. I was first diagnosed with fibromyalgia when I was 19 or 20. I didn't really understand it at the time. I just knew I never felt well. I also was diagnosed with Chronic Fatigue Syndrome around the same time.

I was able to deal with the pain and exhaustion through most of my 20's. I was very active and would be sore more often th...

Nice to meet you

Sat, 16 Mar 2013 09:47:39 EST

Hi there, nice to meet (or whatever this is called) you all I've been at SP for over a year but didn't realize how much my arthritis and myalgia (in addition to ADHD) was hindering my whole life, including attempts to get in shape, exercise, lose weight, and just get out of bed some mornings. I'm a wife of 14 years and mother to an 11 yr old son and 9 yr old boy/girl twins. Multiple surgeries and inactivity have made range of motion difficult, and now I am determined to get as much movement...

New

Sat, 9 Mar 2013 15:03:50 EST

I don't know if I have fibro or not. my grandma had it, great grandma had it, my great aunt does too and afraid I might have it.

not sure if I have it

Sat, 9 Mar 2013 15:03:04 EST

my grandma has it, my great aunt charlet (grandmas maternal half sister) has it, my great grandma had it

my husband claims that I have fibromyalgia because of my forgetfulness. i thought most women had it period from having kidz and having to keep track of so many things.

but anyways.

IF I do have it, and maybe have some EARLY signs of it, what are some things I can do, instill into my current routine to help myself or whatever?

Is Childhood Intelligence Linked to Pain Problems

Wed, 6 Mar 2013 12:42:40 EST

I don't know how accurate this article is, but I was in the top 5% in the intelligence tests all through school, and ended up with fibromyalgia. However, I was overweight and was a smoker for ten years as an adult, which was part of their statistics. I'd like to hear from others about this.

www.sparkpeople.com/resource/health_
news_detail.asp?health_day=671164

MUSIC BOX

Wed, 6 Mar 2013 09:31:08 EST

This has the look of a very classy animation project... real or virtual, it's pretty amazing--LOVE the music!

www.youtube.com/embed/XlyCLbt3Thk?re
l=0

Tempurature changes???

Wed, 27 Feb 2013 00:30:20 EST

My temperature has been really weird lately. At night I'll be too hot, so I'll throw off the covers only to be too cold3 minutes later. So I put 1 blanket onand 3 minutes later I'm too hot again. What's this all about? Any suggestions?

Pain, numbness and tingling...?

Wed, 27 Feb 2013 00:28:48 EST

Sometimes when I am really behind on sleep or have added stress the outside of my arms will hurt and I have sporadic tingling in my hands and arms. Recently I've just had a tingling sensation on the outside of my hands, only the pinky side. Anyone relate and have more info on this? I know it has to do with tightness and possibly something being pinched, but beyond that....

How do you deal with the fatigue?

Tue, 26 Feb 2013 17:55:16 EST

I am always so tired. Sometimes I can sleep for 12 hours straight and then need a 3 hour nap during the day. And of course, this makes it extremely difficult to exercise or do anything else. How do you deal with it?

What helps with your fibrofog?

Tue, 26 Feb 2013 17:49:58 EST

I am 25 and newly diagnosed. A lot of times, I will feel like I am in a daze or dreaming. I hope this makes sense! I heard this is called fibrofog. Is anyone else experiencing this and what has helped you? It is really hard to concentrate and sometimes I will totally space out and forget what I was doing. It is so embarrassing sometimes!

Hey, I'm new.

Fri, 22 Feb 2013 13:36:15 EST

Hey! I'm Toni.

I was diagnosed with fibromyalgia in June 2011. I'm not sure how long I've had fibromyalgia. It seems I had mild symptoms of it for a while, but thought my problems were just part of getting older. I went from extremely active to decrepit practically overnight, kinda like I got hit by a bus.

I used to study martial arts (Kung Fu, Aikido, kickboxing, and Tai Chi) 3 hours daily, 4 days a week. I was often stiff before class, so I arrived 30 minutes early to...

Hey

Thu, 21 Feb 2013 04:07:20 EST

I'm tired now from filling out my SparkPage stuff, and I've had another sleepless night, so I'm just gonna say hey! 213 I'm Toni.

A-Z Easter Basket

Fri, 1 Feb 2013 14:01:06 EST

We have a topic here that says "What is your goal for today?" Well, for February, I'd like to challenge you to make a goal for a week: drink 6 glasses of water each day; walk for 10 minutes five days this week, eat 2 veggies a day for a week, etc.

Once you've written your weekly goal here, come back at the end of the week and let us know how you did.

My weekly goal beginning Sunday is to eat one serving of fruit each day of the week.

Anyone want to join me in...

What's your thoughts on artificial sweetners?

Sun, 27 Jan 2013 15:25:52 EST

I was diagnosed with Fibro 8 yrs. ago, weighing approximately 180 lbs. Since then I have been doing yoga and light exercises plus really started watching what I was eating choosing lower fat, fat free, sugar free options along with fruits and vegetables. Plus I drank green tea, water, coffee w/splenda packet and creamer, diet mountain dew with lunch or dinner (only one 8 ounce glass). Pretty much everything in moderation. I ended up between 132-138 lbs.
Now fast forward to the p...

SO HAPPY TO FIND YOU ALL!

Wed, 23 Jan 2013 22:41:16 EST

My goodness....I am a newcomer to Spark (well, a returnee after 5 years away) and I have been in a real fog for the past few days...seems like no one really understands...my family thinks fibromyalgia is just the doctor's excuse for not really knowing what is wrong with me and my husband never takes my pain seriously. I know he could be more supportive, but I don't know how to make him understand why some days are wonderful and some are just crap! I have always been such a positive, motivated...

What are you proud of doing today?

Tue, 15 Jan 2013 16:44:56 EST

I rejoined Curves after being gone for a year.

How do you stay on track despite stupid fibro?

Tue, 15 Jan 2013 00:57:56 EST

When I come home from work exhausted and hurting, how do I muster the energy to take the dog for the walk we both need, before it's full dark outside? How do I not reach for food I really don't need, in an effort to capture some energy? Ten less pounds, that's all I'm asking for. Really. And it's not happening.

I'm stuck, plateau'd, scale hasn't moved in weeks except for bouncing up and down the same roughly one or two pounds. (Ok, I gained a bit over the holidays, but that is...

Hoping for friends who understand

Sat, 12 Jan 2013 19:58:17 EST

I am hoping to find others who have days where you feel like you're in pain and tired. It is so hard to explain how I feel to others.

Joanne

TWO MINUTE WORLD STORY

Fri, 11 Jan 2013 00:51:30 EST

i wasn't sure this fit into a 'delight' category, but it's certainly 'distracting!'--and interesting... It's a student video project... pretty amazing, but warning: includes some graphic war images etc...

marcbrecy.perso.neuf.fr/history.html

Hello all and Happy new year

Tue, 1 Jan 2013 20:24:41 EST

I am not one for New year Resolutions, but this year I am so ready to Fight this Fibro and get myself back!! I am tired of the meds and tired of feeling like crap! So I here i am!!

I am Liz!! I am a Mom of 3 awesome kiddos that try their hardest to take care of mommy!! that seems a bit backwards but we all try to take care of the ones we love!! The medication side effects vs the pain is my struggle i am fighting right now! What one is worse!!? What medication has the best...

What one thing would you like to do in 2013?

Tue, 1 Jan 2013 09:05:41 EST

I would like walk my dog on a more regular basis. Both she and I would benefit from it.

The Holiday

Tue, 1 Jan 2013 00:21:07 EST

For most of us, it's a very busy time of year, and I am no exception...

...it's also a time of year when most of us reflect on the past and consider what we want to do in the time ahead of us. I do it a bit earlier... my birthday is three days prior, so...

...but I do the same at the end of every month...

...and every week...

...and even every day.

Because EVERY DAY is a new chance to forge ahead, to track my progress toward my goals, to ...

Holiday Greetings...

Mon, 17 Dec 2012 19:09:37 EST

Have a happy time with loved ones this season...

445 460 500 446 447
... and a joyful and prosperous New Year...

Kathy 445

MURDER IN CONN.

Sat, 15 Dec 2012 22:07:58 EST

HELLO everyone. i hope you all have a great saturday & sunday.

28 families in Conn. are NOT having a good weekend.

such a HORRIFIC tragedy.

even though we are several states away from Conn. our schools went on lock down after the shootings yesterday.

when i heard about the shootings yesterday, my first thought was of Columbine massacre several years ago and the federal building bombing (killing almost 200 people) in Oklahoma City in 1995.

A State Photographer??

Fri, 14 Dec 2012 22:06:57 EST

West Texas, and the music is by a man who has never had music lessons, he plays by ear, from the heart...

player.vimeo.com/video/22132017?titl
e=0&byline=0&portrait=0

Another Sparkteam. Hi.

Mon, 10 Dec 2012 20:35:37 EST

I keep joining new Sparkteams for support for all of my problems, and I'm starting to wonder... oh never mind all those negative thoughts....

So hi I'm Kitty (yes that's a nickname not a real name) and I was recently diagnosed with fibromyalgia, although I've actually had it since I was 11. I also started having problems with rheumatoid arthritis at about the same time. Yup. 11. Nobody would believe me.

Actually I have had fibromyalgia, arthritis, hypoglcemia, hypothyroi...

Anyone out there tried Topamax?

Sat, 8 Dec 2012 22:08:37 EST

I am trying Topamax. So far my pain is really better and I am sleeping better. However, again (like everything else I have tried) there are unpleasant side effects. My doc said one "benefit" would be weight loss. That would have been great but I can't say that I haven't lost any from taking this. So far I notice that some foods are beginning to taste lousy. Unfortunately, so is toothpaste! I have just a generally bad taste and I suspect--bad breath along with it. My face is tingling,...

Energize63

Sat, 8 Dec 2012 08:26:06 EST

Hi everyone I don't know where to begin except I need help. A year ago I had a total knee replacement with complications of not healing properly. Thru various Drs. they concluded it was a pinched nerve in my back. So 16 days ago I had back surgery. So far the leg is still shaking.( I know give it time).
Meanwhile I gained 20# from the knee surgery and another 20# overnight in the hospital. How can that happen?

I need to get my eating habit under control. At least that...

Staying on track during a fibro flare??

Fri, 30 Nov 2012 23:43:59 EST

I'm having trouble staying on Spark Track while managing fibro symptoms. With increased fatigue and higher than usual pain levels, getting through the work day takes all the energy I can muster. When I get home in the afternoon I'm so desperate for relief that it's hard not to head for comfort food. (I am soooo grateful my kids are grown and on their own. I don't have the energy to take care of myself, let alone small children!) I do make sure I eat a good breakfast and lunch, and have be...

Hello Again!

Thu, 29 Nov 2012 21:02:51 EST

Hi All!
I have been on a "hiatus" from SparkPeople for the past two years and I am ready to jump back into it full force! I am from Kentucky and just had my second child. Its hard dealing with Fibro and having two kids (a two year old and a four week old) but I am ready to stick with it and do everything possible to be healthy and well. I hope to get to know some of you and be a source of encouragement on your journeys

Hi!

Sat, 24 Nov 2012 17:03:23 EST

I have had fibromyalgia for a number of years now. It got a lot worse a few years ago and now I am seeing a specialist and also getting pain management and sometimes PT in the pool. I do many things to help myself but I would like support as well. I look forward to checking out the group and looking forward to reading room material. I have bought a few books recently to help me on my journey. I haven't completely read them yet. I have browsed them. I have been occupied. I also suffered from c...

When Did Your Symptoms Start?

Wed, 21 Nov 2012 18:24:28 EST

I had symptoms build up over time, but I can pin point on the calendar "the day it all began". Would any of you be willing to share your background of how it started for you? I'm curious if emotional or physical trauma, military service, moving, grief, etc play a part...

I want to learn more, and if you're willing to share I'd greatly appreciate it.

Counting Down By 4s

Mon, 19 Nov 2012 16:48:36 EST

Let's count down from 500 by fours. Get those gray cells working. I'll start.

496

Fighting Back

Sun, 18 Nov 2012 00:40:15 EST

I don't know if I've introduced myself, but I've been a spark member and used it off and on for 6 years now. 2 years ago I was diagnosed with fibromyagia, but I think I've actually had it for about 25 years now. I'm 43. My symptoms used to be mostly chronic fatigue and difficulty exercising, but several years ago the pain that I was experienced very lightly and sporadically increased exponentially and I began having days and weeks of barely being able to get out of bed, much less do anything...

Howdy Doody from Utah.

Sat, 17 Nov 2012 21:51:08 EST

Hey all! I've had Fibro since I was in junior high. So from around age 14 and up, I've been fighting this and also been gaining weight. I have many other issues, but Fibro would be one of the main ones that keeps giving me excuses to not exercise. I was a very active and healthy child. Never gaining any weight until around age 14-16. Arthritis, Fibro, nerve damage from being hit by a drunk and other issues has made me very compliant with the 'no exercise, eat what makes you feel better' crowd...

Hi all, JUST STARTING TODAY and hoping this works.

Wed, 7 Nov 2012 15:52:29 EST

Hello, I have been trying to loose weight on my own but it is not working. My son is getting married in October 2013 and I will not be comfortable at all being 210 pounds! My daughter in laws Mother is petite and skinny and I know I know I sound snippy but I just want to be proud of myself on the day of the wedding and be able to dance.!TO TOP IT OFF I GOT MY CHOLESTEROL NUMBERS YESTERDAY AND THEY ARE NOT GOOD AT ALL!!!!!

Urinary Frequency

Fri, 2 Nov 2012 14:01:08 EST

This is a subject that not many people talk about. I'm just learning about it. As a matter of fact, I have an overactive bladder (spasms). (So that's what Depends are for!) 39 I've had UTIs before, but this is much worse. And there doesn't seem to be a cure. And I'm not THAT old!

Anyone care to comment about this very sensitive topic?

Anxiety attacks?

Mon, 22 Oct 2012 11:43:47 EST

Hi all! Hope you're feeling your best today. I am not 24 and am rather confused by the past few days. Thought maybe you'd have some insight!

For quite some time off and on I have what I can only describe as trouble breathing (even though it's really not). It's not asthma or anything like it. I've had a half dozen tests and my lung function, etc., is fine. And I AM getting enough air, it just feels sort of tight in my chest and actually tender to the touch right below my...

Hello from Florida!

Sat, 20 Oct 2012 11:49:22 EST

Hi! I'm here because I need to lose weight but it's so hard with fibro. Since I've joined here, I've started walking for an hour 3-4 days per week. I'm sore and tired but I'm slowly getting there. I've also lost 2 pounds.

Amazing Kites...

Sun, 14 Oct 2012 18:54:02 EST

www.youtube.com/watch_popup?v=nr9Krq
N_lIg

this has got to be one of the most amazing and PEACEFUL things to watch... wow, such a gift! 407

Hello from Orlando!

Sun, 14 Oct 2012 17:41:18 EST

Hello Everyone, My name is Margie and I'm 47 yrs old with 7 children and 3 grandchildren. Newly diagnosed with Fibro and major weight gain since June due many medical issues including being placed on life support for 9 days in June. I woke up on July 4th! I spent the majority of the first 6 months of this year in bed feeling sorry for myself and in severe pain. All I did was get sicker. Once I was placed on life support my family started planning my death. Thank God he had other plans fo...

Is it Fibro Fog?

Sat, 13 Oct 2012 11:45:47 EST

I'm new to Sparkpeople and all the message boards and couldn't remember if I introduced myself. After scrolling through the posts, I found I hadn't.

I'm 57 and have lived with FM since around the age of 35 and have osteoarthritis also and had a hip replacement 2 years ago.

I really need to exercise to keep my pain levels down and with the help of lyrica during the day and amitripyline for sleep have been doing pretty good this summer. I discovered cycling and just lo...

How Many Points Left 'Til Next Trophy?

Sun, 7 Oct 2012 09:40:37 EST

How many points do you have left to earn until you get to your next trophy? (If you don't know how to earn points, let me know and I'll explain.)

285

Fibromyalgia Diet

Thu, 4 Oct 2012 10:57:18 EST

I know that the foods fibro patients can eat vary person to person, but I wanted to get a general idea of what foods to avoid that help you.

In the past, my fibro wasn't so bad but just lately I am in so much pain every single day. Sleep is hard to come by because I am in pain and get achy after being in a position for long. Daily activity is tough.

I was on desipramine (I don't know if I spelled that right) but my Dr cut the dose by 2/3 for some reason. It wasn't help...

A - Z Vacations

Mon, 1 Oct 2012 07:41:10 EST

Whether you're planning a vacation this summer or not, tell us where you'd like to go.

A - Alaska

It's been a rough month

Fri, 21 Sep 2012 19:28:27 EST

September started with happy stress, added adventurous stress, and loaded on increased work stress. I pushed on through, ignored the increasing warning signs, until my body and brain finally reached a breaking point, I spent yesterday in bed, dealing with fever, body, muscle and joint pain, total brain fog, all the culmination of several weeks of ignoring ominous warnings. I should've taken to my bed long before yesterday... I could have saved myself some awful pain and distress. This may...

new med

Fri, 21 Sep 2012 16:36:39 EST

My Rhumatologist just started me on Savella. I am praying it works. I need something to change in life and control pain better. Right now my pain is not under control. ANyone here use Savella? I had not heard of it until he put me on it

Hello everyone, I am Renee and I am new to this.

Fri, 21 Sep 2012 14:58:43 EST

I am a 3 year breast cancer survivor, married to a wonderful man. I have a grown daughter and three grandsons. I used to be a labor and delivery registered charge nurse. I am going to lose my weight and be more healthy because I want to be rid of diabetes problems, back and neck disc problems, fibromyalgia, thyroid and high blood pressure problems. I have been clinically depressed most of the time since my dad passed away in 1968 but had dealt with it well up until I found I had breast cance...

leg cramps

Tue, 18 Sep 2012 17:41:15 EST

I get terrible leg cramps in my calf's and thighs at night when I go to bed. My Dr. said to drink pickle juice for this. Now I love pickle juice in small amounts once in a while but I'm not sure how this will help. Any suggestions ? 40

hello from TEXAS

Tue, 18 Sep 2012 12:35:19 EST

Hi there! Just a quick introduction. I am 32, was diagnosed at 28. Both my mother and grandfather have Lupus along with several other Autoimmune issues. I have three kids, ages 11,8 and 5. I have been married for 12ish years now, to the same man, lol. My pain comes and goes. When i have a "flare up" it seems as though that part of my body is on fire. I dont take regular medication because it doesnt seem to help. I take as needed. I have a REALLY hard time doing what i need to in order to keep...

Fibromyalgia Network

Thu, 13 Sep 2012 12:50:41 EST

Do any of you belong to the online Fibromyalgia Network and receive their magazines? I find the free articles online to be very informative, but I'm wondering if it's worth the $28 for a paid membership. Any feedback would be appreciated.
38

Needing support and encouragement

Wed, 12 Sep 2012 16:43:29 EST

I was diagnosed with fibromyalgia earlier this year. I've actually been struggling with fatigue and pain for several years, but was able to manage the symptoms pretty well with healthy living. I even had a couple symptom free years. The last couple years I saw my flare ups happening with increased duration and frequency.

Fortunately, I found a fantastic rheumatologist (Dr. Michael Powell in Sacramento), who diagnosed me and has been educating me and treating me with a multifac...

First time doing something like this

Tue, 11 Sep 2012 09:53:53 EST

Hello everyone, My name is Holly and this is the first time doing something like this. My goal is to lose atleast 35 pounds and I hope that I can achieve this goal with the help of this site. I am very excited to get started. I am 41 years old and it is getting harder to lose this weight. I love to read, spend time with my family, and love my frenchie, and anything to do with bulldogs. I would love to have someone to exercise with, as I think it would help me to reach my goals faster. I also...

Hello from Kentucky

Tue, 11 Sep 2012 09:28:23 EST

My name is Cathy. I belong to the Fibro Friends and Fibromyalgia & Exercise teams, but just discovered this one. Looks like you guys have a lot of activity and lots of good info. My fibro was diagnosed about 2-1/2 years ago. It took a massage therapist to tell me that my pain was NOT normal before my doctor took my complaints seriously. Anyway, here I am... ready to learn and to share. Thanks for being here!
213

Hello

Tue, 11 Sep 2012 02:30:51 EST

My name is Tasha. I'm a stay at home mother to a 2 year old girl. I just joined SparkPeople today in hopes of getting some motivation to lose this weight (which there is a lot of it). Not only am I battling the Fibromyalgia, but I also have PCOS which makes things even harder. I was just recently diagnosed, so I don't know to much about this condition. I just know that my symptoms are out of control, and this pain makes exercise next to impossible for me. Are there specific exercises out ther...

Cymbalta & Hair Loss

Mon, 10 Sep 2012 13:39:38 EST

Lyrica made my vision blurry. I don't mess with my eyesight so that med was out. Neurontin made my eye lids twich. Again, I don't mess with my eyes, so that med was out. Neither med really helped the pain anyway. I am having wonderful results with Cymbalta and needling therapy. I am even planning on gong back to horseback riding lessons this Friday after being out since April of 2012. However, I believe the Cymbalta is making my hair fall out. I don't know what to do. 24 ...

Graceful Hello

Fri, 7 Sep 2012 23:22:17 EST

I am in the starting stages some days are ok and others are not. I have inherited arthritis, and rheumatism. I need to start wearing lower heals due to my left foot swells. Things could be worse. I have accepted it and hoping it will all go away one day. I have two dogs who are a tremendous help who are my alarms clock and get me going and get my day started I don't know what I would do without them. This is a terrific website and great way to reach out to others. My prayers are sent out to a...

A gentle fibro hello

Fri, 31 Aug 2012 13:04:43 EST

Hi. I'm new here, but have been on Spark since April 20. I have fibro and osteoarthritis and degenerating spinal discs. How long? Forever, I think. I try to manage my life so I can function, but find I do feel better when I am not working. I'm hoping to retire in about 4 years. Something to look forward to! I work part time and have a part time job as an independent contractor, so my schedule is somewhat variable. That allows me occasional downtime, to recover from the uptime. Howeve...

Fibro Question

Fri, 31 Aug 2012 09:04:37 EST

I've not been diagnosed with Fibro, was just told they thought I might. I'm almost positive that I do with all the pain I have. Most of my tender spots are very tender. Anyway my question for you do any of you have neck pain. My right side of the neck is very tender and is hard to move in some directions. I've been doing therapy on it. Going to see Neurosurgeon Wednesday as I do have degenerating disc disease in my neck and spine. Though I have had the ddd for a long time and the MRI do...

Hi There!

Wed, 29 Aug 2012 15:19:18 EST

Looking forward to getting to talk to you all and follow through with this new journey!

Howdy folks!

Thu, 23 Aug 2012 12:16:38 EST

Hello, I'm new to SparkPeople. I am a 40-something female, married 12 yrs to my high school sweetheart of 26yrs. We don't have any kids except Nannette, my 2yr old mixed terrier.

I am looking forward to being healthy & happy with myself again. I have too "many serious illnesses for someone my age" according to my doctor's, so I finally decided to get my rear in gear & lose some weight.

I have to lose at least 150 lbs. I know that's a lot of weight but I'm looking at it a...

Dealing With Feelings of Guilt & Failure

Thu, 23 Aug 2012 11:17:32 EST

I don't like feeling like a victim but I've had a long bout of acute symptoms lately that is really affecting my attitude and undermining my hope and optimism. I would be interested in how other people deal with this.

What do you do to make money?

Wed, 22 Aug 2012 09:13:22 EST

Hello fellow fibromites!

I've been on disability for almost 4 years now. I appreciate the check every month, but my husband recently had a pay cut and I'm trying to figure out what else I can do to try and bring more money in to pay bills, etc.

Have any of you come up with some way to make extra money? I guess it would have to be something "tax-free", but I"m not sure what that is. I dog sit here and there, but lost a lot of clients when I had a terrible flare over sp...

"100 Ways to Burn 100 Calories"...

Tue, 21 Aug 2012 07:49:03 EST

Good ideas... some of them mostly good for laughs, though, considering the fibro! LOL

fitbie.msn.com/lose-weight/tips/100-
ways-burn-100-calories/tip/3

Please Allow Me to Introduce Myself :)

Sun, 19 Aug 2012 00:16:21 EST

Hi everyone!

I just discovered this team on Spark People and I'm so glad I found it! I am looking forward to the tips, advice, and support that this team can offer. It's nice to finally know that I'm not alone.

My name is Becca. I have had fibromyalgia since 1996, when I was diagnosed after a car accident. I didn't know what it was back then since I was just a teenager, I just knew that my body hurt all the time. Then in 1998 I was in another car accident--this one was m...

hi there

Wed, 15 Aug 2012 22:22:37 EST

just want to introduce myself, my name is debbie and started the sparkpeople program this week. my doctor and i just found out that i do have fibromyalgia just last week. been having it for some time now and didnt know it...anyways i hope i can follow along with some of the exercises and follow the recipes for me to loose the weight...i walked on the treadmill today for 20 minutes slowly at 1,5 speed and it felt like my legs were full of lead...anyone else have this problem? planning on usin...

Best Exercises for Fibromyalgia

Wed, 15 Aug 2012 11:21:29 EST

I found this informative even though it leaves a lot unanswered
www.webmd.com/fibromyalgia/ss/slides
how-fibromyalgia-friendly-exercises?ec
d=wnl_fib_081412&ctr=wnl-fib-081412_ld-stry
Hope that it helps some people, Especially those just starting out.

Uncontrollable itching

Tue, 14 Aug 2012 13:33:09 EST

I'm wondering if anyone else might have experienced, or be experiencing, similar symptoms to what I've come down with. All of the logical causes have been ruled out so the possibility that it's a weird fibro symptom is my only hope. My rheumatologist has never heard of anything like this in connection with fibro so you folks are my only hope.

About six weeks ago I started developing body wide itching with no visible reason for it. There are no hives, no bites of any kind or any env...

A kid with all the right moves...

Tue, 14 Aug 2012 13:10:13 EST

This kid has amazing talent, both acting and dancing... a nice little film short...

ca.news.yahoo.com/blogs/daily-buzz/i
nspirational-12-old-breakdancer-story-
warms-heart-175252892.html

Hey! Blew my restart already!!

Mon, 13 Aug 2012 13:51:58 EST

39 TWO white chocolate chip crumb muffins for the first thing of the day!!!!

Glad to find this forum on Fibro within the Spark environment. Too much time already was spent split between Fibro support and logging here and other things.

Looking forward to restarting with a more wholistic (disease tempered nutrition for loss) approach.

I am /WAS an organic gardener, DIY type, Wildlife lover, hunter for food, Birdwatcher and Teacher and wife/mother. <...

Hello all

Fri, 10 Aug 2012 15:39:08 EST

Hello everyone. I just wanted to introduce myself. Dealing with fibro a CFS for past 21 years. I'm in the middle of dealing with spine issues for past 2 years. Has practically cut me out of life. I am asking any and all of you that have any advice regarding losing weight (or even maintaining weight at the moment) living with these issues? I feel like I have completely run out of ideas. The meds make me starved. I do great all day then come 4:30 - 9:00 it's over. I go crazy,and there is...

My daughter has Fibromyalgia

Sat, 4 Aug 2012 09:20:51 EST

I have joined this team to learn how best I can help her. She has been suffering from this for the last 3 years and has learned all she can about what to do to ease the many symptoms. She is not overweight and lives in South Africa. Through her I have learned quite a lot about this terrible condition, but I am always on the look out for more ways to help her. I will pop in to this forum everyday to see if there is anything I can feed back to her. Meanwhile I wish all you guys all the bes...

The Sleep Secret Audio

Sat, 28 Jul 2012 23:52:16 EST

I downloaded The Sleep Secret Audio by Trapper Sherwood & Claus Jensen because I was desperately trying to help a dear friend get a decent nights sleep.

I don't normally subscribe to self-help CDs, but this one worked on the first night, and it continues to work, night after night.

What can we do for chronic pain from Fibromyalgia?

Sat, 28 Jul 2012 23:14:28 EST

I have a dear friend who suffers with the daily "achyness" associated with Fibromyalgia. She's not a pill taker, or a candidate for the Chiropractor. Is there something out there that might help her? Any suggestions are welcomed.

Fitness Minutes on Name Tag??

Sat, 28 Jul 2012 03:43:53 EST

Hey, How do I remove my Fitness Minutes from my Name Tag / Profile Link Box Thingy?

I see some people have it showing, and some don't.

For me It's embarrassing! 198 40 134

~Sheri

WEIGH IN TODAY

Fri, 27 Jul 2012 18:14:23 EST

I'm thrilled. I lost 2.8 pounds this week! 244

Insomnia & Night Hour Issues!

Fri, 27 Jul 2012 11:12:33 EST

Good Friday Sparkfriends.

One of my biggest problems is having an irregular daily schedule. I tend to be awake / sleep in 4-5 hr intervals throughout a 24 hr cycle. Because I have a child in the home I get up and I go to bed at "normal" times, but I always wake up around 2:00 AM when my pain medication wears off. Then I'm up for at least 2 hrs because it takes about 60 minutes for me to get relief from my meds... by then I'm usually well into a movie, working on Jewelry, or online...

Bad Day

Wed, 25 Jul 2012 18:03:59 EST

I woke up really hurting today. I think some of it was muscle soreness from the increased activity, but did do my exercise anyway. I feel pretty good about that, but am still really hurting. 39

Diagnosed 2 years ago

Wed, 25 Jul 2012 16:35:15 EST

Hello I am a mother of 3 ... diagnosed 2 years ago. I am an avid facebooker and I am part of a fibromyalgia facebook community. I also started a facebook page called www.facebook.com/triangels for the three girls that were lost in our community recently. I currently attend Kaplan University for Psychology and I am proud of these things : my kids , my positive role I play in social media, and my academics.

I am looking to loose 50 lbs. I would like to loose more within a year but I...

So... If I eat a Snickers Bar At 1:00 AM,

Tue, 24 Jul 2012 05:40:48 EST

Should I add it to my Breakfast List for the next morning?

In other words: WHOOPS! 198 29 40

For Anyone Who's Ever Used a Typewriter...

Mon, 23 Jul 2012 23:36:31 EST

I'm still chuckling over this one!

www.youtube.com/watch_popup?v=G4nX0X
rn-wo&sns=em 246

Leg cramps

Mon, 23 Jul 2012 08:12:22 EST

Do any of you have issues with severe leg cramps? I'm talking 5 days later and still sore, stiff and twitching? This latest round started overnight Wednesday, I went to the doctor Thursday, but I can still feel it. The doctor suggested taking 2 vicodin, 1 muscle relaxer and 2 potassium pills at bedtime, and it is allowing me about 6 hours of sleep, but then I wake to tension in the calf again (which is much preferable to the literally screaming pain that woke me on Wednesday.) Just wonde...

SP Do-Over!

Sun, 22 Jul 2012 13:45:48 EST

Hello Friends I'm Sherileisa.

I'm a 51 y/o single mom to one adult daughter, and one preteen son. I was very active here at SP about 4-5 years ago then I was diagnosed with multiple illnesses, including Fibromyalgia, and now I've been on Disability for several years. Also, my son has behavioral issues that include Impulse Control Disorder, and Bipolar tendencies. He's been Hospitalized for rage and emotional issues several times since 2010. He's now in special-ed that supports his...

Japanese Synchronized Walking...??

Wed, 18 Jul 2012 14:37:12 EST

www.youtube.com/watch?v=HuQeN0rgXCo&
feature=related

wow. Takes me back to my highschool marching band experience... my director was an ex-army drill sergeant! LOL

I wish I could still do that--not that I'd WANT to, mind you, I just wish I COULD!!
Kathy 246 407

sore today

Tue, 17 Jul 2012 11:04:01 EST

I often tell people that my fibromyalgia isn't too bad; that I have more fatigue than pain, but that's slowly changing and I don't know why.

I actually have a bit more energy now (likely exercise and nutrition related) but I'm also hurting more. I have osteoarthritis in my feet - not my toes, but the joints in the feet - and they're really hurting. That I know is directly related to walking, etc, despite my good shoes. But I'm also hurting in my fingers, my muscles... it's discoura...

The never ending pain and fatigue

Wed, 11 Jul 2012 19:14:25 EST

Hi guys ....I've been away from SPARK for awhile. I have spent a lot of time turning my life around and exercising myself towards a new body. I am still working on the diet....I take a new step each day. I thought that I was making a great deal of progress....I know that I have.
Lately I can't tell if it's just a flare up. I know that I can barely keep my eyes open at work or when I am driving (I've had a couple close calls). My body is stronger but my pain level is very high. I'm clos...

Trying again

Wed, 11 Jul 2012 10:32:59 EST

Hi Folks,

I joined SP two years ago but didn't get very far; I wasn't motivated enough. Now I am. I've just joined the gym around the corner and I know I have to take it very easy lest my fibro fatigue overwhelm me. My pain isn't too much of an issue right now, but I know I have to be very careful about that.

It's hard to find people who understand what it is like to always be tired, always have pain. I've come a long way in terms of managing my mental health; now I have...

Will an Elimination Diet Help Your Fibro?

Wed, 11 Jul 2012 10:31:26 EST

Many people with fibro are food sensitive, especially to sugar, alcohol, Wheat, caffeine, artifical sweeteners and even dairy. Here's a link to a great article on how to try an elimination diet to see if specific foods cause you more pain. www.everydayhealth.com/fibromyalgia/
fibromyalgia-pain-and-elimination-diet
.aspx?xid=nl_EverydayHealthWomensHealt
h_20120710

Which exercises are best for fibro

Mon, 9 Jul 2012 20:04:36 EST

I'm curious as to which exercises you have used with fibro. I did a water aerobics class last week and I have been very sore ever since. Its frustrating, you know? Thanks.

Hello Everyone, Newbie Here :)

Sat, 7 Jul 2012 17:55:38 EST

HI,

I recently joined SparkPeople and am excited to learn how to use the site. My goals are ultimately to lose weight and gain health, but managing my pain and FMS better would satisfy many desires. I'm a medical researcher focusing on FMS and chronic pain disorders, who also happens to have FMS. I was diagnosed 2 years after a car accident (I told the MD what I suspected), but I'm curious about when and how others were diagnosed. If you have the time and are willing to share, I'm ...

Painful Hand

Sat, 7 Jul 2012 11:14:29 EST

Good morning to all my friends. I hope that you all are having a good start to the weekend.

I have a question that I would like to bounce off all of you, to see what your opinions are.

It's been a couple of years now, that I have been having pain mostly in my right hand (not wrist) and fingers. But as time goes by it happens more often, only at night when I am trying to sleep. It is a throbbing deep pain that can wake me up out of a sound sleep. Usually keeps me awak...

hi to you all

Thu, 5 Jul 2012 06:54:33 EST

hi
I was diagnosed with Fibromyalgia back in 95 and apart from some short lived flare ups have remained in control of this condition, with limited medication
that was until Feb 2011 when I began to gain weight and had nasty chest pains... heart screening clear, thankfully ... buy january this year I was on sick leave from work due to pain and I was struggling to walk, the pain was indescribable ... I am now back at work but weaker than before and not able to manage pain successfull...

Fireworks

Sat, 30 Jun 2012 18:48:13 EST

I think of fireworks when I think of July. For this month, lets post about our "fireworks", our motivation.

What sparks you to go further - in anything (weight loss, habits, exercise, sparkpoints, etc.)?

The SparkPeople Bonus spin sparks me to get more points than I normally would. I've started again posting my food eaten and my fitness minutes to get to 25 points so I can spin that Bonus Wheel.

New to this

Mon, 25 Jun 2012 16:29:09 EST

Hi All, my name is Julie and I am 43 years old, currently living in Scotland, just joined as I want to lose just over 2 stones, I suffer with fibromyalgia and IBS,

new

Mon, 25 Jun 2012 00:26:40 EST

I have been diagnosed with cfs and fibro. Been on disability for 2 years. Was extremely active and in great shape before this hit me. I am 38. Would love to talk to others who are dealing with this.

Exercise and Pain

Sun, 24 Jun 2012 16:55:55 EST

I've been an avid golfer for years. My question is "How do you enjoy your favorite activities without paying for it for days afterwards?" Yesterday I played a round of golf and have had severe pain ever since. I can hardly move. Any advice on how to deal with this or prepare myself better? I really don't want to give this up.

SMcKee32

Fri, 22 Jun 2012 14:58:56 EST

Hello all
I recently joined SparkPeople with a goal to loose 60 lbs. in one year. This is quite a challenge for me. The hardest part will be the exercise. I have a few health issues that work against me. But, I am determined and will accept all the encouragement I can get.
I am looking forward to getting to know everyone and making new friendships.

Day 36, I think

Wed, 20 Jun 2012 11:36:29 EST

I have still not weighed in and we have been traveling so much I have not been keeping my food tracker up to date. I have however been riding my bike and swimming quite a lot. I never feel like I have lost or gained weight even when I have so won't even hazard a guess. I have been careful about food choices so that should be a good thing. We shall see when I finally get weighed.

I apparently have both fibro and RA. Lately, I am unbearably tired many days. Nothing helps. N...

Can't find motivation to start up again

Wed, 20 Jun 2012 09:09:27 EST

I have lost a good bit of weight. But I hit a plateau and quit for a while. I am starting to put weight back on so I want to start up again. So I start up again, do good for a couple days, then the food cravings come and I give in to them. I don't know what is wrong with me! Also, I am having a hard time finding time and energy to exercise. When I lost the weight, I wasn't working. But when I hit the plateau, I had recently went back to working full time. So I think that is why I stopped losi...

Day 32 check-in -- On the road again

Sat, 16 Jun 2012 14:57:19 EST

We are making an overnight trip cross state to get my partner's glider moved to its new home. I am really, really ready for a few weeks at home. Might happen in August. We will be in Tarpon Springs tonight and then back to Merritt Island tomorrow. The upside is supper at Rusty Belly's in Tarpon. Awesome seafood in my future! I will post in more detail when we get home.

Hope you are all having a great day!

My first day

Fri, 15 Jun 2012 17:42:11 EST

Hi everyone,
My name is Tina. I have decided it is time to stop letting Fibro rule my life and take action:) I have started using a supplement called Reliv. It has put me in a remission in one month. It is an amazing product. I call it miracle in a can. I had no other choice but to spend the money for some kind of relief. My fatigue is gone and that is huge for me as I do in-home care. My job in itself is very stressful as I care for dying patients. My pain is down 75% and I am ...

Day 3O check-in

Thu, 14 Jun 2012 09:14:30 EST

My trainer is ill so I will not be seeing her today which is fine cuz I am frankly still not totally over the bug I had yet. I will swim tonight with my partner and get in a bike ride this afternoon. My fibro symptoms have been amazingly minimal during this bug so that is a blessing. Calories will come in around 2OOO today. Have not planned dinner yet cuz I am not entirely sure of our evening schedule. I would like to go someplace for salad bar but there may not be time for eating out. ...

New Here Today

Wed, 13 Jun 2012 23:12:19 EST

Hello. I'm Melissa, looking to lose weight and feel better. I do have to deal with fibromyalgia (nearly two years now), the rain and cold are the hardest times for me. Stress caused me to develop fibro and now I need to control my stress and my eating. I am not able to do what I want to do anymore, I have to make sure I do not overdo things - I am not saying anything that everyone else here doesn't already know and understand.

I have a weight loss goal of 160 pounds, that 70 pound...

Day 29

Wed, 13 Jun 2012 12:22:39 EST

Dragging some today and not entirely sure why. Maybe just the hat getting to me, Still coughing some from the big I had so maybe that is still hanging on a bit too. Will most likely take a nap this afternoon.

I biked to the gym this morning. There I took a 45 minute water aerobics class that included some ST and stretching. All told calories will come in around 2OOO though supper is in the air. Again. New plan to be made when I call my partner in a few minutes. I imagine ...

New Member---Sciatic Nerve, Fibromiagia etc.

Tue, 12 Jun 2012 20:42:32 EST

Hi Everyone-- I would love to hear from someone that can lose weight and not be able to exercise much for I have Lots of Back Pain from a Sciatic nerve problem and Fibromyalgia etc. Lose sleep and cant walk far. I have everything a Doctor can give me. Any help would be wonderful. Joan

Hello

Tue, 12 Jun 2012 18:58:08 EST

Hello, My name is Jen 35, from Pittsburgh, PA. I have been diagnosed with Fibromyalgia since 1997. I have pretty much been through it all. I am just starting to eat differently and exercise more and bite the bullet for the pain. I actually feel great. It is a lot better than laying in bed and sleeping all of the time. :)

Day 28

Tue, 12 Jun 2012 15:03:47 EST

FINALLY able to get back at this. After a week of traveling and a week of being sick, I was able to work out today. I rode my bike to and from the gym, where I met with my trainer for a 45 minute session that included a lot of ST and stretching as well as some cardio. Calories will come in around 2OOO today. I am still a little draggy so plan to take a nap this afternoon and be happy I can fit that in. I was amazed at how little I ached after so long without a real workout.

Top 10 Things NOT to Say to a Fibromyalgia Patient

Mon, 11 Jun 2012 21:05:54 EST

I found this site while browsing the web today, and boy!, does it ever hit the nail on the head!!

www.healthcentral.com/chronic-pain/c
f/slideshows/top-10-things-not-to-say-
to-a-fibromyalgia-patient/we-all-get-m
ore-aches-and-pains-as-we-get-older/?ap=825

Amazing Photography... "in the Garden..."

Sun, 10 Jun 2012 08:10:50 EST

www.youtube-nocookie.com/embed/xHkq1
edcbk4?rel=0

I think This is Day 23

Thu, 7 Jun 2012 12:51:27 EST

We are back from our trip to Ohio and I am sick as a dog. The train and car rides were NOT good for my fibro or RH. To make matters even more interesting, I have some sort of nasty upper respiratory thing for which I am to see the doc in an hour or so because it sure acts like pneumonia. The trip was successful and my daughter is here for the summer now. It would be nice not to cough for a few minutes though. Better updates when I am better.

Just for Laughs...

Wed, 6 Jun 2012 13:05:00 EST

a new training technique... *giggle*
www.bing.com/videos/watch/video/cat-
motivates-during-workout/20woyva1?q=vi
ral+animals&rel=msn&from=en-us_msnhp&f
orm=MSNRLL

Fighting Fibro with Diet

Wed, 6 Jun 2012 12:07:24 EST

Just stumbled upon SparkPeople again after years away. I've been dealing with Fibro for about 3 years now, however I can honestly say that the last couple of months I have felt almost normal again.

January 1 I made a major change to my diet. I'd spent the last half of 2011 with terrible IBS and I was ready to do anything to make it go away. I'd had many people try to suggest that a diet change might help but I just ignored them. After watching the documentary "Fat, Sick & Nearly De...

Merry Meet and Hello

Wed, 6 Jun 2012 07:08:42 EST

Merry Meet and hello my name is Sherry and I suffer from Fibromyagia, It really rules my life and causes me to be less active as I normally would. I take medication and it does cause weight gain, so I am in in between a rock and hard place. I also suffer from migraine headaches

Glad I found this site.

Blessed be,
Sherry AKA cooper1971

Fibro & Other Things

Tue, 5 Jun 2012 12:35:15 EST

Hey Everyone,

I have been struggling with Fibromyalgia since August 2011 and depression since 2005. The two together means that I frequently have little or no energy. I am currently on 30mg of Cymbalta in addition to diet and exercise. I'm excited to meet all of you! Feel free to add me and say hello!

Leah

Hi all!

Thu, 31 May 2012 19:36:44 EST

Im so exited to have found spark people, I have truly felt alone in my weight loss journey, being the only one in my family with weight issues I have had no one to turn to. I'm hoping I can find inspiration an guidance from all of you.

Day 15 check-in

Wed, 30 May 2012 08:58:01 EST

Slowwwww start this morning. No aches and pains, thank God. Just seriously dragging because we stayed up way too late making trip preparations and watching TV. I knew I shoulda gone to bed at 1O or before but noooooooooooo, just had to stay up for The Hatfields and McCoys and then we started talking and before I knew it, it was almost 1 am. So today is off to a slow start. Eventually, there will be a long bike ride. First work and chores.

The total calories should come in a...

Day 14 check-in

Tue, 29 May 2012 07:27:00 EST

Back to the pool today! I have an appointment with my aquatic trainer in just under an hour so am scurrying about to be ready. I will bike there and back with a couple of stops en route home, one for "second breakfast" at the bookstore and another at the market.

The remainder of the day will be spent tangling with a poem that is giving me hassles and doing some prep work for vacation which starts Thursday afternoon.

I am pretty much pain free this morning so the da...

Happy Memorial Day! Day 14 check-in

Mon, 28 May 2012 14:17:36 EST

Happy Holiday to all! Got an early start today and have been busy getting the house straightened away. We leave for Ohio Thursday and will be bringing my daughter back with us for summer. I don't want to come home to a messy house so the scouring has begun. We did take a break to have brunch out. Supper will be at home, but I hope to make it to the beach late for a water walk. There will for sure be a bike ride to the book store for a break in an hour or two. The day's calories should...

Hello New Today

Mon, 28 May 2012 09:13:43 EST

Hi: I am new to sparkpeople as of today. So happy to find a fibro group, desparately need people to talk to that understand the pain. Gave up on Dr.s, none could help, getting very depressed fighting pain all the time. Would love some friends to talk to; don't get me wrong, I'm not a person that is a downer all the time. Had fibro about 16 yrs. now, after getting Lyme disease and not getting the proper treatment.

D-ribose, pain, fatigue, ATP, mitochondria...

Sun, 27 May 2012 15:23:54 EST

The book From Fatigued to Fantastic was suggested to me by my Physical Therapist. Teitelbaum is the author. (spelling?) The first thing this Dr. suggests is D-ribose.

I have been taking the D-ribose for 3 weeks. My pain is much less. It feels like a miracle! For maybe 2 years, I was using round the clock 8 hr. Tylenol. If I had a bad flare, that was not even enough help. Now, about once a day I take the 4 hour Tylenol.

Dare I hope something is actually helping me...

Day 13 check-in

Sun, 27 May 2012 10:58:00 EST

I slept really late today and woke up feeling crappy. My throat really hurts and pretty much EVERYthing is sore. I have managed to have a healthy breakfast though I did not finish everything on my plate but have not planned the whole day yet as I usually do. Gonna take some pain killer and have a warm drink in a few and see if that takes care of what is either onset of a bug or a fibro flareup. I would like to get in a bike ride to the pool and 45 minutes or so of exercise in the pool. W...

Bonus Spin

Sun, 27 May 2012 07:35:44 EST

Do you earn at least 25 points each day and get a spin on the bonus wheel? If you do, tell us how you earned your points.

I record the food I eat and get one point for each food.

TRYING TO PIECE THE PUZZLES TOGETHER

Sun, 27 May 2012 01:48:16 EST

I have be diagnosed with a probable FMS. After years of thinking that maybe I was going crazy it has come down to this. I have been very proactive never giving up on the quest to gain more knowledge about what may be happening to me. I have been reading more & more information about small fiber neuropathy & how it may be mistaken for FMS or how FMS could actually be just small fiber neuropathy. I was curious to find out if anyone else has any information on this. The information that I have b...

New Fibro Pain?

Sat, 26 May 2012 22:03:38 EST

Hello everyone, I was diagnosed with fibro & CFS just over 2 years ago, but have just discovered a "new" pain this week. And it just about has me unable to walk. It is a really bad pain in my left knee. As far as I know, I have not done anything bad or "weird" to my knee, but it sure does feel that way.........most of the time. But I don't understand how it can be killing me with pain one minute and be fine the next and then an hour later be fine again. Or one day hurt all day, and very...

Day 12 check-in

Sat, 26 May 2012 18:53:10 EST

Late checking in today because we slept in and then had theater tickets this afternoon. Just wanted to say that all is well and we are headed out for supper somewhere in the shade. LOL. It's HOT!

Headaches and tight neck and shoulder muscles

Fri, 25 May 2012 16:41:20 EST

I have constant headaches for days on end. The muscles in my neck and shoulders are always tight. I've recently begun getting massages from students at the local massage therapy school and it helps tremendously. I get a professional massage every two months and it leaves me pain free all over for at least three weeks. i do my stretches and get plenty of water and rest/ I read an article recently when they mentioned that this is a side effect of fibro. I had never seen nor heard that. S...

Fibromyalgia and depression

Fri, 25 May 2012 11:09:25 EST

Moved to Vancouver, WA in Aug 2011, gained 20 lbs. Suffer also with depression and so the weight gain has not helped. I and 54 and disabled. All our family is on the east coast. I have 2 children, 3 step-daughters and 7 grandchildren, We miss them alot. My husband just got me a dog (lab mix) who has gotten me out to walk at least 1 mile a day (when it is not raining). I hope to meet some wonderful and encouraging people..

Day 11 check-in

Fri, 25 May 2012 10:47:08 EST

So today will be a little tougher than usual because I am eating out TWICE. Meeting an old college friend for lunch at applebees where we plan to have cocktails and having supper out with my partner and some of his engineering buddies at Friday's. So, pre armed seems to be the best way to go. I have been through both restaurants menus and nutrition facts and decided exactly what to order. In Applebee's case, there were LOTS of acceptable choices and they include calories in their menu so ...

dealing with heat

Thu, 24 May 2012 11:40:14 EST

How do you deal with the heat?

I swell and ache so much already and it's just 80ish. I can't even think about what I'll be like when it gets hotter.

My head feels like it's floating. My knees, hips, back and neck ache so bad. My feet are swollen. I just don't know what to do.

My friends keep asking me to walk with them, but just walking to my car in this heat drains the life right out of me. They just don't understand and think I'm a complainer. They don't ...

Day 1O Check-in

Thu, 24 May 2012 08:00:53 EST

I had a minor flareup of pain in legs yesterday afternoon and evening. Luckily, all the days mandatory running around and chores were already done so I took a pain killer and fell into my recliner for several hours of reading. My partner came home and finished supper preparations. By morning, I am much better. Yay!

Today will include a ride to the gym for an aquatic trainer session. Sessions with her include ST, water aerobics and water jogging. Then, I will probably stop ...

Underwater Magic!

Thu, 24 May 2012 02:16:54 EST

www.youtube.com/embed/mcbHKAWIk3I
An underwater garden full of delightful life!...

New here but not new to fibro!

Wed, 23 May 2012 12:44:24 EST

Hi everyone! Name is Mindy and I've had fibro (officially) for 6 years, but I think I've had for closer to 15. I'm 36, married, a mother of 5, a stay at home mom, and I also do freelance art. My youngest (and last!) is now 3 and a 1/2 months old and my postpartum weight loss has stalled so I need to get back on track and focused in my efforts. My highest weight was 262lbs. in 2009. I'm currently at about 230. (my scale fluctuates from day to day give or take a lb or two) My goal is to b...

Day 9 check-in

Wed, 23 May 2012 08:16:05 EST

Yesterday's dinner ended up NOT being the spaghetti I had planned for because we were out running errands when starvation hit. We went to Sonny's for ribs. I have to adjust yesterday's tracker to reflect the change. I may not get to the trackers til after water aerobics though.

The plan for today is so far on target. Got up early and had breakfast with my partner, Mike. BIG breakfast cuz he has brain fog issues in the mornings if he does not have a seriously good breakfast. ...

Just diagnosed with fibromyalgia

Tue, 22 May 2012 11:38:03 EST

Hi everyone ~ I was diagnosed yrs ago with RA and have taken many different meds to see what works etc. Currently, I am taking Enbrel & Methotrexate weekly. Around 2 months ago I began experiencing severe pain in my neck shoulders and upper arms. In a 3 week time frame the pain also developed into muscle weakness that left me feeling so debilitated. My entire life I have been blessed with good health and energy. Finally, last week I was seen by a new Rhumatologist that examined me thorough...

Day 8 check-in

Tue, 22 May 2012 11:01:39 EST

Ok so this is one of those days when, at 10 a.m., I already felt like I had put in a full day. It started at 3:30 a.m. when the alarm went off. Ugh. I wanted so badly to go back to sleep. I cursed a lot. But this stuff is important to my partner so I got up. From the yard, we were able to see the launch of Spacex' Dragon Capsule all the way into orbit about half way across the Atlantic! The noise was, well, loud, but not as deafening as I expected nor as loud as shuttle launches or land...

Day 7 Check-in

Mon, 21 May 2012 08:44:39 EST

Yesterday was a good day though I got very little of my actual work done. That's because I got very sleepy midday and took a nap before heading to the pool. I also had some pain last night, I mean more than the usual low-grade pain that is constant. Was surprised to find a rum drink at dinner cleared that right up. Not gonna make a habit of THAT but very good to know.

Today will include a longish bike outing, about 7 miles total and some time in the pool. That will all be af...

Fibro Poem

Sun, 20 May 2012 14:09:59 EST

Shell posted this on the Fibro Friends forum. She got this from the fibromyalgia network. This is a good explanation so I thought I would share this with you.

NO COPYRIGHT INFRINGEMENT IS INTENDED ALL CREDIT GOES TO MARCKOLYN DILLON

F is for the Finding we always have to do; we've found our keys again, but now where is my shoe?
I is for the Impact on our family and friends; we're so grateful to them for a love that never ends.
B if for Breaks, we must ta...

Day 6 check-in

Sun, 20 May 2012 08:02:03 EST

Morning All!

I feel great this morning! There is a little pain in knuckles and knees but nothing major. So I plan to capitalize on that and the fact the sun is shining by riding my bike to and from the gym, where I will do ST and spend about an hour working out in the pool. Somewhere along the way I will need to stop at the grocery story and the pharmacy. I imagine we will have lunch out. I will need to be careful what I order then because supper is going to be a major calor...

Bakers Cyst slowing me down

Sun, 20 May 2012 05:32:04 EST

I was on vacation when I got out of my van and couldn't walk on my right knee. The knee was so painful that I couldn't bend it or completely straighten it, I had to go to Walgreens and buy a cane in order to walk through the planned museums. Even though it took much longer to maneuver I did go to most of the tourist attractions I had planned on going to. My knee is at least twice the size of my other knee. I am now home and am babying it. Continueing to take extra Oxycodone for pain, Nap...

Day 5 check-in

Sat, 19 May 2012 13:50:31 EST

I am dragging some today because we got up at 4:3O a.m. to watch the launch of the Spacex Dragon Capsule which was aborted after the engines were ignited. We live just far enough away that we heard via radio that the lauch was aborted about 2O seconds before the sounds of the engines igniting reached us. This is too bad for a lot of reasons, not the least of which being it was a clear and only slightly breezy night, so the launch would have been gorgeous to see. The next possible attempt w...

Pain: treatments for Chronic Pain

Fri, 18 May 2012 19:29:42 EST

I thought this was an excellent overview of current treatments for pain. Read it and share your thoughts. It's only flaw was that it relies totally on conventional medicine and has no information on alternative modalities to help with pain. www.lifescript.com/health/centers/pa
in/articles/chronic_pain_treatment_a_z
.aspx

Bad day

Fri, 18 May 2012 17:53:25 EST

Such a bad day today. tried some stretching yesterday, in pain today. Think thats why I made bad decsions about food today. I am so sick of feeling sick. So sick of fighting,, any inspiration out there please 46

Muscles nodules/bumps??

Fri, 18 May 2012 11:22:15 EST

I am waiting to get the formal diagnosis, but I'm 99% sure it's fibro that I have. This started last summer with painful overuse injuries (tendonitis) from running, which is what I think triggered the fibro. I have these bumps and lumps all over the muscles in my calves - some hurt - when I have a bad flare they are painful and it seems that they are more pronouced. Now I've noticed I have some in my thighs and just yesterday in my arms behind my elbows. I've tried massaging them out, usi...

Day 4 check-in

Fri, 18 May 2012 10:42:04 EST

Yesterday was fabulous and today is looking good too, even though I did not hear my alarm go off and overslept by 2 hours. There are worse things than getting some extra sleep, I think. I have had a decent breakfast and done my stretches, started some chores. Today will include a bike ride, some water aerobics and water jogging, coffeee with a gal pal, and a date tonight with my partner. I think we might see a movie so this will be an opportunity NOT to order the large popcorn and soda po...

Day 3 check-in

Thu, 17 May 2012 11:58:01 EST

I don't think I introduced myself in this forum when I joined two days ago. I am Steph, a fifty year old mom of one teen who lives in Ohio with her father. I moved to Florida about a year ago and on with my partner about 6 months ago. I am a full time author. I have a heart condition, which has required several surgeries in my lifetime. I also have FM and RA. Had the roughest time ever this past winter with pain. Now, I am feeling much better. I work with my GP and cardiologist who ar...

Back & Hip Pain

Wed, 16 May 2012 23:30:08 EST

I have been getting a lot of low back and hip pain lately. I have been doing a lot of outside yard work for about 3 hrs. a day. My pelvic and hips and upper thighs feel like they want to break. I have been taking more vicoden then normal which I do not like to do. What I want to know since I am a belly sleeper would an egg create pad help or make it worst on my pressure points. Please help. 46 234

Vitamin D deficiancy

Wed, 16 May 2012 20:24:16 EST

Has anyone else been diagnosed with Vitamin D deficiancy? My level is low and my doctor prescribed 50,000 units/week. I looked up the symptoms and they sound just like fibro. I am hoping the high dose D helps the pain in my spine, hips, and legs. 38

Just another quick little smile-maker...

Wed, 16 May 2012 09:38:54 EST

www.bing.com/videos/watch/video/happ
y-kid-chased-by-puppy-pack/1jrub2tpl?q
=viral%20kids%20animals&from=en-us_msn
hp&rel=msn&cpkey=54bae3cd-6fbb-4a5e-82
05-6507110ad028%7cviral+kids+animals%7cmsn%7c%7c

334

Fibro Fog

Wed, 16 May 2012 09:35:44 EST

The fibro fog is pretty thick for me most days. Being at home, it isn't that much of a problem. But trying to work when every task takes 3 times as long because I have to concentrate so hard on each detail and the not being able to remember the simple things that should be second-nature like what form to use or what fields I need to enter is stressful and exhausting. Any suggestions as to things you have found to clear the fog????? :)

Me and My Fibro

Tue, 15 May 2012 16:59:20 EST

Hey all! I'm new around here. Well, been here for about week now. I was diagnosed in 2006 with Fibromyalgia. I am coming up on my "7 year anniversary". I celebrate my anniversary cause that is when my life changed completely. My fibro gets in the way of my life sometimes for sure, but I have a positive attitude most days. Glad to be here and looking forward to making some friends and positive influences.

Hello

Tue, 15 May 2012 08:19:57 EST

Hi, I just joined sparkspeople yesterday, Its great to see a group fighting FibromyalgIa. I have a number of conditions including Fibro but I find the pain very hard to deal with. One day at a time I know. I have about 100 pound and then some to lose. Your support and encouragement would be appreciated.

Any natural things help with symptoms?

Mon, 14 May 2012 08:46:25 EST

I cannot afford Lyrica or Cymbalta. No insurance and it is very expensive and I don't make much money! Anything natural help your symptoms? Or any foods or exercises help? I am always tired and I always hurt, especially my shoulders, neck, and back. I used to be able to work out 6 days a week for about an hour each time. But now, I am lucky if I can walk 2 days a week. I used to do the elliptical and run and everything. Now walking is all I can do.

Recently Diagnosed with Fibromyalgia

Sun, 13 May 2012 09:17:03 EST

I just found out I have fibromyalgia. I have a lot of questions like what kind of exercising works the best to help keep me active and moving? I've always been active and the last year has been a struggle just to get out of bed. Also does nutrition play a role? How long does it take for Lyrica to start working. Please help me to figure this out.

Thanks,
Lisa

Won't let fibro own me

Fri, 11 May 2012 18:39:16 EST

Hi! I was diagnosed with fibromyalgia back in 2003. The combination of meds and stopping all activity caused me to gain about 70 pounds. I managed to lose 80 after quitting most of the meds, eating according to the Six Week body MakeOver plan, and working out. Unfortunately, as we all know, those pesky pounds have a way of creeping up and I have gained some back. It was been more than half, but I have been steady around the weight I am now for about 2 years.

I have been to th...

Hello from a newbie

Wed, 9 May 2012 11:33:11 EST

I'm new! I need friends and a support team. I am ubber lazy and require tons of motivation. My kids were enough to get me started, but I don't have anyone to be accountable to. I have a great boyfriend, and he tries to help, but he needs to lose weight also. We have talked and talked and talked about losing weight together but nothing is actually happening. We are getting married in a few months and it would be nice to buy a new dress that is a few sizes smaller than what I'm in right now. I ...

Tammy

Mon, 7 May 2012 12:32:15 EST

Hello my name is Tammy. I've been on a very long scale of being very over wieght and need all the help and support I can get. I want to finally look good and be healthy.

Not Quite Diagnosed but pretty sure...

Sun, 6 May 2012 10:35:06 EST

Hi Everyone! My name is Karen and I'm 50 years old. I'm still waiting for blood work results but after reading about fibromyalgia and the doctor saying she thinks that is probably what it is, I'm pretty sure. I have osteoarthritis in every joint and about to have my first joint replacement--in my jaw--on July 10th. Evidentally it takes awhile to make a well-fitting jaw joint! I try to use humor to get through things but it has been harder and harder to do that lately. I had lost 109 lbs. and ...

Hello

Sat, 5 May 2012 09:38:12 EST

I was diagnosed with fibromyalgia (they used to call it cervical radiculopathy way back when in the 1980's). So, I have learned to live with the pain. I have been kicked out of so many PT facilities, being told "to learn how to live with the pain" because they couldn't cure me than I can count. It has been discouraging to say the least, but I keep persevering regardless. I have had bad reactions to many of the treatments pharmacological for this disorder (Lyrica, Cymbalta and the like), so...

Savella

Fri, 4 May 2012 14:08:52 EST

My doctor is switching me from Cymbalta to Savella, since the Cymbalta doesn't seem to be working. Anyone on Savella? And if so.... opinions of it... good or bad?

Diagnosed with Fibro in 2000 and new to Spark

Fri, 4 May 2012 13:44:54 EST

Hello,
I was diagnosed with fibro and chronic myofascial pain syndrome in 2000. I have tried many different therapies, some have worked some haven't but as I get older it becomes more difficult to deal with the horrible daily pain. I use a fentanyl patch and oxycodone for pain due to high blood pressure that wouldn't respond to other therapies. I am hoping to use as many alternative therapies and healthy living to try to feel better.

Constant urinary tract infections?

Fri, 4 May 2012 07:06:15 EST

It seems like I ALWAYS have a UTI. I am currently on my 5th round of antibiotics trying to get rid of this for good. I read in a fibromyalgia book that chronic UTIs can happen to us women with fibro. Anyone else have this happen?
What's weird about it is I do not get the usual symptoms... I do not get the burning when I go or the feeling of having to go bad and not being able to go when I get to the bathroom. The only way I know I have it is I get a pain in my back and I feel nauseous.

feeling anti social?

Wed, 2 May 2012 14:47:18 EST

Does anyone have this issue? Somedays just the thought running into the store is so overwhelming I almost cry. I have become so anti social over the last few years. I go to work, but after that just head home where I am comfortable and don't go out much. I don't make plans to see family or frineds. I spend time with my kids and my boyfriend...but usually at home. Anyone going through this???

Hello!

Tue, 1 May 2012 10:25:53 EST

Hello everyone! I am new to SparkPeople and was diagnosed with Fibromyalgia about 5 years ago. I am trying to lose weight (alot!) and get healthy. Any help and support is greatly appreciated!

Have a great Day!

How much do you exercise?

Tue, 1 May 2012 08:45:19 EST

At first, I was exercising 6 days week and burning 2000 calories a week through exercise! I was also strength training twice a week. But now I am lucky if I burn 1000 calories a week through exercise. And strength training is impossible. I am just too stiff and hurting. How much exercise are you all able to do a week?

new to spark people and just diagnosed

Thu, 26 Apr 2012 16:29:38 EST

Hi there, I'm Katie. I am 20 years old and I was just diagnosed with fibromyalgia. I have been suffering from chronic pain for years and no one ever took me seriously. Doctors treated my life I was trying to get drugs and family treated me like a drama queen. I also struggle with depression, anxiety and weight gain. My doctor is treating my fibromyalgia with Zoloft, which I was already on for depression. She is also giving me osteopathic manipulation therapy (OMT) to help with the pain and ha...

i'm new

Wed, 25 Apr 2012 08:30:33 EST

well, i'm 21 years old... and i weigh just under 300 lbs.i'm looking for a support network as i don't have one. i have a problem with self issues and motivation. i'd love to make some new friends.

Fellow Fibromite New to Spark

Tue, 24 Apr 2012 18:39:58 EST

Hi there! Just wanted to stop in and introduce myself. I joined Spark b/c I not only need to lose weight, but I need to live healthier as well. I have several chronic conditions (won't bore you here), but the main one I deal with is fibromyalgia. I was diagnosed 20 years ago (when I was 18). Back then other drs. didn't know what it is! Now, it seems everyone knows someone who has it, but it's still not well understood, is it?

I've been on disability for almost 4 years. I use...

Time to change

Mon, 23 Apr 2012 12:21:12 EST

Hi all! I am 31, have been diagnosed with fibromyalgia for approximately 3 and a half years, and am now living gluten free. I'm not currently happy with my meds for fibro, but I keep coming back to the idea that if there was less of me, there would be less of me to hurt.

I'm looking to lose about 30 lbs, but I'm having some difficulty with working out. I used to be a college athlete, and am used to working out HARD. It is very difficult for me to go to the gym and not put 100...

FRUIT OR VEG

Mon, 23 Apr 2012 03:34:01 EST

What is your favourite f/v mine is blueberries/onion

Hi everyone!

Sun, 22 Apr 2012 20:35:39 EST

Hi everyone,

I saw your team listed on the community pages - I've been on Sparkpeople.com for several years, but never thought to check for Fibro teams here!

My Fibro seems to have developed from chronic Lyme Disease - three different episodes from 2008-2010.

While I no longer test positive for Lyme and am not bedridden like I used to be, the Fibro remains.

I just try to stay positive, and do what I can do with the energy that I have each day. <...

Let's Delight Ourselves!

Sun, 22 Apr 2012 12:17:25 EST

For the week beginning today Sunday, April 22 and ending Saturday, April 28th, who's going to lose at least 1/2 pound?

Tell us if you're going to join this "de-light-ful" challenge; then at the end of the week, tell us if you succeeded losing at least 1/2 pound.

306

Explaining to your kids your condition

Sat, 21 Apr 2012 08:30:53 EST

How have any of you explained to your kids what you are going through so they don't think you are ignoring them or not wanting to play? I'm so tired and in so much pain that I have maybe enough energy to make sure they are fed, taken care of but when it comes to taking them places I just can't. Its heartbreaking. THey are 3, 7 who is autistic, and 9 who suffers from extreme exczema. I try to do crafts and other things but my husband isn't home during the week. So by the weekend I'm so ex...

Hello just been diagnosed, and very frustrated!!!

Sat, 21 Apr 2012 08:17:58 EST

Hello-
Ive just been diagnosed with fibromyalgia and chronic fatigue. I had it for a long time but was always told I was depressed. I'm still confused on a lot of things. Frustrated is more like it. The docter just gave me a few pages to define what fibromyalgia is. I don't have any meds yet because he wants to wait till I have a sleep test. Then he can prescribe me something. In the mean time I'm supposed to wait here. Did I mention I'm frustrated? lol
I am glad to have jo...

Say Something Positive About Food

Thu, 19 Apr 2012 19:41:54 EST

Summer is the best time to get fresh vegetables.

Do You Want to Pay More for Your Mefication.

Wed, 18 Apr 2012 22:38:29 EST

A number of health insurance companies throughout

the country are adopting a new specialty tier pricing system for expensive drugs, requiring patients to pay much more for life-saving and disease-stabilizing medications. Insurers are abandoning the traditional arrangement where patients pay a fixed co-pay amount and instead charging patients a percentage of the cost of certain high-priced drugs, usually 25 to 33 percent, which can amount to thousands of dollars a month for ...

Changes to the DMS V May Label You a Hypochondriac

Wed, 18 Apr 2012 22:17:53 EST

Sharecare fibromyalgia expert Celeste Cooper warns about the recommended changes to the DSM V. "Why should we be concerned? Because of the broad criteria proposed in the CSSD, just about any painful condition could be considered a psychiatric disease. The lack of focus on objective assessment of comorbid conditions in the proposed criteria for FM, and ignoring the need for a physical assessment of tenderness or the presence of palpable myofascial trigger points will easily allow FM to fall ...

Pain and Fatigue

Sun, 15 Apr 2012 15:26:27 EST

I am not sure which is worse for me, the pain or the fatigue. I have tried all sorts of things... some work for a while and then stop, others never make me feel any better. What are your best "weapons" that you have found to fight the pain and the fatigue?

Hi everyone, new to Spark

Sat, 14 Apr 2012 23:43:47 EST

I just signed in today on the advice of my healthcare provider. I look forward to learning stuff here and participating in the community, two things I'm in need of. Hope you're all doing well and achieving your goals :)

hello

Sat, 14 Apr 2012 10:13:39 EST

Hi, Im Samantha, Im 39 and a wife, mother, step mother, hairstylist, i have 2 children living at home. And i may have 2 more here soon. I am a step mother to a total of 14 kids and have one of my own. YES ITS ALOT!!!!!!! but I wouldnt change a thing... I am wanting to lose the weight for myself, my husband who I love with all my heart and is supporting me, and for the 2 children that may be moving in come June. I need to be able to keep up with a very VERY
active10, and 11 year old.
...

Back and Ready to Go!

Tue, 10 Apr 2012 07:29:56 EST

Hello all!

I was on Spark for over a year, met all my goals and then deleted my account. That was around 2 years ago and my weight has started to creep back up - so here I am!

My Fibro was diagnosed in April 2010 - after 12 years of not being diagnosed. It was hard and I'm still learning so... between losing 15+ lbs and handling my Fibro... I'm back and ready to hit the ground running!

Looking forward to connecting with you all!

Irish smiles!
...

Hello guys

Sun, 8 Apr 2012 22:25:11 EST

My name is Jacqueline and I have fibromyalgia. I tried about 10 years ago to start a forum for people to come together and find out how to heal. It didn't work. My story, I was diagnosed about 10 years ago, while off work for carpal tunnel and tendonitis. I hope to meet some like minded people who are interested in healing.

Last Letter Begins Next Word

Sat, 7 Apr 2012 08:30:37 EST

For example: if the previous word was

weatheR, you'd post a word beginning with R

rainY (This is my word; what begins with "y"?)

Has anyone had to go on disability?

Wed, 4 Apr 2012 19:19:36 EST

They have been pushing me at work to go on disability because I have missed so much time and I am out of FMLA, vacation and sick time. However, when I went to see my doctor today and get her to fill out the forms she refused, saying she doesn't know enough about the condition to be able to say whether I can work or not. So now I am in a tight spot.... they are going to start disciplinary action at work and start working towards the process of terminating me, but she won't sign the forms. A...

Breathtaking...

Wed, 4 Apr 2012 10:57:42 EST

Ever heard of starlings? In spite of the fact that dwindling nesting habitat has severely reduced their numbers in the UK, you should see the artistry of these beautiful birds in flight... take a look!

vimeo.com/31158841

Over halfway there!!!

Mon, 2 Apr 2012 23:08:32 EST

I am Kimberly (39 y/o), a mother to 4 wonderful children and a full-time student. I have already lost about 40 pounds but hope to lose another 35. I plan on increasing my daily activity by walking more and cutting back on sweets. I love sugar and eat when bored or stressed. I am going to consciously think about what I am eating before I eat it.

Hello from Florida

Mon, 2 Apr 2012 15:31:39 EST

I live in Indian Rocks Beach, FL. 9 years ago I was diagnosed with MS and Fybromyalgia. After trying every prescription medicine known to man (at one time I was taking 12 a day, Neurontin, Lyrica, Cymbalta, you name it, I tried it) I talked my Doctors into a different approach. Nutrition, and water aerobics. I have no pain when I'm in the water! Last year at this time I couldn't walk 200 feet without a cane and couldn't stay awake for more than 5 hours. Now I eat healthy, and do one hour of ...

What's your CRP or hsCRP level?

Mon, 2 Apr 2012 12:26:14 EST

I'm thinking the higher your C-reactive protein level, the more pain you're in?

Mine's been as high as 10-12, now it's down to 3.9 which is still too high (I've read you want way under 3 as much as possible). I read that it's associated with inflammation and infection, but not pain per-se. But with inflammation comes pain, so duh.

Mayo Clinic doesn't think it's related, and it's articles like this which have swayed my research into NOT thinking about it that way. ...

Fibro and Weight Gain

Sun, 1 Apr 2012 20:35:54 EST

For years I subscribed to the Fibromyalgia Newsletter. I recently let my membership lapse, but received an online bulletin from them last week stating that they've just found that those of us with Fibro have a certain genetic marker that makes us gain weight. I'm going to have to renew my subscription in order to get more information on this topic, but was wondering if any of you are aware of this.

My life starts at 60!

Sat, 31 Mar 2012 21:05:22 EST

I hope that this is a great addition to my new healthier life style. Would like to hear from others. I have done well by myself but am sure it would be fun to have others along for the journey.

Dancing out loud...

Fri, 30 Mar 2012 02:11:14 EST

This little guy sure had ME smiling!... LOL
www.youtube.com/watch?v=4wt824D1Bqg

LYRICA

Wed, 28 Mar 2012 17:29:02 EST

I have had such great results being on Lyrica. The weight gain has been difficult and trying to get the weight to drop even harder. I used to be at 300 mg total a day then 450 and NOW to control fibro, neuropathy and tremors I am at 600.Well my breath changed, then my mouth both teeth and gums started to hurt. Find out Lyrica has a little know side effects of oral problems. I have has an infection that I have gone through three different antibiotics and now wait for appointment with an Oral s...

Hoping to keep well

Tue, 27 Mar 2012 09:36:25 EST

Hi fellow 'Sparkies'
tried this site a few years ago for a few months and drifted off. Recently having had an abnormal result on my kidney function Sparkworld was the one place I knew where I can hope to control my protein intake, also check potassium, sodium and other elements I must avoid or curtail. I remembered before that when I used Sparkpeople my diet was erring on the protein side and the thing is even bread contains it, especially oat bread, trying to be healthy needs rethinking...

Brain Wave app

Sun, 25 Mar 2012 10:40:54 EST

I downloaded an app called brain wave. It uses binaural brainwaves to help your brain line up with desired outcome. I have used the deep sleep function for two nights now and have woke up refreshed and ready to get up before I had to. I'm afraid it is a fluke so I thought some of you can try it so we can see if it just me. I researched it and it looks good. the reviews are great but I'd like to hear from you since I know fibro has specific challenges in this area.

April

For CAT and DOLPHIN Lovers...

Sat, 24 Mar 2012 21:03:04 EST

www.wimp.com/catdolphins/

Amazing- SO cool!

Kathy 334

BABY STEPS: YOUR PERSONAL MINI CHALLENGES

Sat, 24 Mar 2012 20:26:08 EST

Every doctor I've ever seen says that fibromyalgia isn't curable but that it is manageable. The 20 years I've spent fighting, arguing, appealing to and cajoling this problem has led me to believe that we really can manage it - MOST of the time. We manage it with baby steps - with small achievable goals that we set every week. We build on the baby steps until they turn into steps, strides, leaps and bounds. There ARE fibro people bounding out there and I've been one of them (and will be again)...

Word Association

Sat, 24 Mar 2012 16:19:45 EST

When you read the word below, what one word comes to your mind? Post it.

weather

New and not diagnosed ... yet

Sat, 24 Mar 2012 14:12:47 EST

Hi, my name is Laurie I'm a 36yr old mother of two. Up until Christmas Day I was a very healthy pain free person, other than reflux I really had no health issues. Christmas day I had the Stomach Flu, and due to a stomach surgery I am not physically able to throw up. So for 10.5 hrs I heaved, the whole time complaining how it was killing my chest. Well from the force of the heaving I sprained my chest, I have Costco Chondritis which is the inflamation of the cartiledge between the ribs and...

Sharing a Quote!

Sat, 24 Mar 2012 13:47:45 EST

For many of us with fibro life can be tough when we think in terms of what others accomplish around us. I just thought I would share this quote:

"I don't believe you have to be better than everybody else. I believe you have to be better than you ever thought you could be."
~Ken Venturi

not a medical mystery after all

Fri, 23 Mar 2012 19:40:18 EST

Hi all it has been an interesting 8 years for me. I have spent thousands and am now in debt big time and have had doctors and tests by the dozen, I have listened as they told me one cockamammy story after another and offered little actual help or advice.
A simple operation 3 years ago took me out of action for ages and nearly had me die on the table, and then afterwards everything was still "bad" but a couple of years ago a naturopath , a chiropratctor and an acupuncturist all mentioned...

Advice? Share your thoughts?

Thu, 22 Mar 2012 19:56:31 EST

Hi, I have noticed my fibro symptoms worsen when I am on my period as well as a very low tolerance to stress. Has anyone else experienced that? If so would you share your experiences with it? If you have any advice or have found something that works for you (other than exercise and vitamins because I do that already and extra rest is not an option at this point in my life). Thanks! Looking forward to your responses even it is just to share your feelings about it in your own life, etc. Also if...

Need your travel tips

Sun, 18 Mar 2012 16:48:41 EST

I had to spend 7 hrs on the road Friday & 7+ on Saturday. Fri did pretty well, but yesterday was misery and I have to pretty much repeat the process next weekend so thought I'd look for some insight on things I might be able to try to make it more tolerable. THANKS!

newly diagnosed with fibro but no pain?

Fri, 16 Mar 2012 07:38:02 EST

One of the things that I've always loved about SP is that no matter what type of group/support you are looking for, you can certainly find it!

Hello team,
My Dr has just told me that I have fibromyalgia. I am not in any pain, which seems to be the MAIN symptom, so I'm not really sure that I agree with her BUT she did a full blood workup and everything else is fine. I went in to complain about a sudden, extreme case of fatigue. I'm a runner and usually run 4-5 days a week...

Fibro and Gluten Intolerance

Fri, 16 Mar 2012 06:45:22 EST

Hello everyone...just curious if anyone here has fibro along with a gluten intolerance or even celiac? Or if you haven't been diagnosed as such, do you follow a GF diet and has it helped at all (specifically with joint pain and or skin problems such as eczema). I am interested in ANY information or insight you can give me on this topic. Thank you all so much in advance :)

New to Team, Saying Hello :)

Thu, 15 Mar 2012 17:48:55 EST

hi everyone, I am new to this team so I wanted to post a quick message to say hello. I was diagnosed with fibro about a year or so ago after a roller coaster of tests which included multiple mri's, a spinal tap, bloodwork.....you all know the drill. Good days and bad but thankfully my pain is mostly managed. I look forward to sharing information with you all, and perhaps some laughs and maybe even some tears. I send you strength and hope....

New to sparkteams and fibro

Tue, 13 Mar 2012 20:09:31 EST

Hi there, I'm Melissa and I' m a 35 year old teacher. I was diagnosised about a year ago. My current meds are tramadol and soma for flare-ups and savella daily. I was on Lycria but it really didnt do anything for me. The savella seems to be working most days. With my job, I deal with a lot of stress, and most days I am exhausted when I get home. But I am trying to add yoga to my life as well as lose weight and quit smoking. I'm sure having the extra pounds on as well as the smoking can't help...

New here, working with Fibro

Tue, 13 Mar 2012 14:15:50 EST

I'm not used to using forums, but I'll try. I was diagnosed with fibro many years ago. I have learned to work through it and use easy stretches to help with the problems it causes. Recently I had a major flare up. It started with Sciatica and triggered a flair up in my left hip, to the point it was hard to sit, stand or walk. I went to urgent care locally, the dr there gave me meds to help with the pain and muscle relaxers. He also redid the test for fibro and rediagnosed, then showed me the ...

Fibro for a while, working on overall health

Mon, 12 Mar 2012 16:52:12 EST

Hi, all - SO cool that there's a board for us here!

I'm Katie, age 44 (today - woot woot - survived another year!). I've been diagnosed w/fibro for a few years (3ish?), and it was such a relief to give my "issues" a name. I have a pretty good rheumatologist, and I'm currently on amitriptyline 50mg, which seems to be working for the most part (i.e. I'm functional almost every day, and my flares don't last as long - not running marathons, but getting in some activity/exercise).
...

Newly Diagnosed - need info and support

Mon, 12 Mar 2012 09:01:21 EST

Good morning!

I have been on Spark off and on for several years, but was just diagnosed with fibro last week. I am feeling pretty overwhelmed, but have more motivation to lose weight and find a way to exercise. I am 38 and don't want to keep feeling like I'm 88. I will look through the info here - I really don't even know where to start.

Thanks for being here!

advise

Sun, 11 Mar 2012 23:15:07 EST

hey all!
i am only 21 years old and i suffer from fibromyalgia on a daily basis. it is very very hard to live a normal life of a 21 year old, going out with friends, working and going to school, when there are so many days when i cant get out of bed. i also really struggle with the fact that no one around me understands what is like to live with this. most of the people closest to me think that i am full of it. the doctor that i have is not very good, it is the only place that i can aff...

today is the first day

Fri, 9 Mar 2012 11:08:39 EST

I have just joined this today because I really need a lot of help to get a lot of weight off. I am 59 years old and I weigh 425, so you see I am at a very dangerous stage right now. I have tried to get the bariatric surgery at many places but have been turned because of my weight or my addictive personality as they say orother reasons, so I guess I need to do it this way, if I can, cuz I really feel if I don`t I won`t be around much longer.
I am not a very organized person at all so keep...

starting Savella tomorrow

Thu, 8 Mar 2012 10:05:50 EST

Need everyones thoughts ads info on Savella

Equipment

Tue, 6 Mar 2012 22:16:02 EST

This may not seem like much but I recently bought a heated mattress pad. This thing helps quite a bit!!! Whenever I am hurting i turn on the pad and let it get hot and climb in for a little while.

new here but an old hat to fibro

Mon, 5 Mar 2012 12:35:55 EST

Hi I'm 33 and have had fibro for years, I'm so tired of being tired and hurting all the time.
I get so mad because I can never get anything done!
It's almost imposable to exercise but I'm told to exercise isn't that a little unrealistic?
I don't know anymore -- sometimes I feel like just giving up.

Larissa

to run or not to run??

Mon, 5 Mar 2012 01:43:29 EST

my Dr has told me no high impact exercise. no running. I LOVE running and miss it terribly. gave it up back in Sept. I've been feeling pretty good lately, I think I have a good thing going with my supplements & herbs. I really want to try running!! I know there are some of you that do, do you have the OK from your Dr?? I don't have an appt scheduled, I just want to go do it. Anyone run against Dr's orders??

Bladder Spasms

Mon, 5 Mar 2012 00:13:19 EST

Does anyone get bladder spasms? I guess they would be considered part of Bladder Irritability? I have been getting them the last few months - the Urologist said you usually get them when you have an infection. I don't want to be taking antibiotics all the time so take a specimen in to be tested. The last three have been after spasms and all three were clear. I am going to take one in tomorrow.
The spasms yesterday were the worst and lasted the longest - about three hours. I took a muscl...

old fatty new dieter

Mon, 27 Feb 2012 22:04:57 EST

Hi, I have been fighting this weight thing since I was a baby. I weighed 35 lbs. at 9 months old and now at 56 I have decided to get rid of all my baby fat. It's been around long enough.

Newbie - when you can't walk, you crawl

Wed, 22 Feb 2012 10:35:06 EST

Hi! I'm new to the Fighting Fibromyalgia team! I've struggled with fibromyalgia for over a decade without knowing what it was. I'm also struggling with another disability that limits my mobility. In the last three years I've gained over 45 pounds and my body doesn't feel like my own any more.

I'm eager and committed to losing weight, gain strength and flexibility and increasing my vitality. However, I've noticed that my goals and plans usually turn out to be more than I'm physicall...

To medicate or not to medicate, any answers?

Mon, 20 Feb 2012 10:36:38 EST

I was diagnosed with Fibromyalgia 25 years ago. I have been through more pills than I could ever count. My weight makes it worse but not taking meds to get some relief seems not an option. Lyrica helped tremendously but the dosage/taking it in the day makes me sleepy and cannot keep a job. Unfortunately I was turned down for SS disability in 1990 when they thought it was all in my head. I now cannot get it because I went the past 20 years not making enough to qualify. So I am trying to work b...

Week 3 - can't get going

Thu, 16 Feb 2012 16:52:12 EST

I'm at Level 1 - I like what I've seen so far on the Website, but I'm struggling the life getting in the way challenge among other things. I've printed a shopping list to help me get an idea of the types of food I need to include in my shopping that I may not be. However, I do have the concern of working within my budget. I'm viewing this as a lifestyle change and would like to loose some weight as well - my doctor's would also like to see me lose some weight.

New on Sparkpeople

Wed, 15 Feb 2012 18:41:46 EST

Hi, I am Jackie. I joined this site to lose weight and open my mind to a new way of living. My main goals are to stay positive, eat healthier, and exercise more. Hopefully, with these combined and with some of your help, I can finally know myself as being healthy inside and out. :)

Follow Up Report on Senate Hearing

Wed, 15 Feb 2012 13:42:30 EST

From Karen Lee Richards on Chronic Pain Connection:
This was an important hearing for those of us who live with chronic pain. Only 4 of the 22 senators on the committee attended but they seemed genuinely interested in what they, as lawmakers, could do to help improve chronic pain treatment.
Four of the five witnesses emphasized the need for more research to increase understanding of the mechanisms of pain and to develop effective new treatment options. They pointed out the dispa...

Senate Hearing on Chronic Pain

Mon, 13 Feb 2012 12:14:45 EST

Tomorrow the U.S. Senate Health, Education, Labor and Pensions will hold a Committee Hearing February 14 @ 2:30 about having the Institute of Medicine study and make recommendations about the treatment of Chronic Pain. If your Senator is
Arizona – Senator John McCain
Alaska – Senator Lisa Murkowski
Colorado – Senator Michael Bennet
Connecticut – Senator Richard Blumenthal
Georgia – Senator Johnny Isakson
Illinois – Senator Mark Kirk
Kansas – Senator Pat Rob...

CYMBALTA

Thu, 9 Feb 2012 09:51:39 EST

Can anyone give me info on cymbalta my friends swears by it. I have got to try something new.

Greetings everyone!

Sun, 5 Feb 2012 00:01:50 EST

Hi all!

Just joined SparkPeople today with my husband. Though we have separate goals, I am sure we can motivate each other and make each of us accountable.

I am a Psych Major at Post University after transferring from Kaplan. I find it challenging to exercise between school, work, and family. Not only that, but to actually eat healthier and get enough sleep. Most of the time it all comes together somehow...and there are sometimes when it all blows up.

We live ...

Hello, hello!

Thu, 2 Feb 2012 22:31:06 EST

Hello everyone, I'm Tanya :) I'm 26 from BC, Canada. I was diagnosed with Fibromyalgia about four years ago but I've experienced pain for my entire life. (It wasn't until I was about 20 that I learned people don't ALWAYS have some sort of aches or random pain.)

Anyways... I live with my boyfriend and our two kitties. I'm currently off work because of a different medical issue - so I'm hoping it might give me the time and energy to work on weight loss. Hope this group can help me st...

Newbie Here & Need Some Suggestions

Wed, 1 Feb 2012 08:37:35 EST

Hi, I'm new to this forum, but not to fibromyalgia. I was "diagnosed" with fibro. about twenty years ago, after suffering from horrible neck strain & a terrible headache that "never went away". I had every test imaginable done to try to find out the cause of the pain, went from doctor to doctor to doctor (I'm sure you all know how that goes), and they couldn't find the exact cause of my pain. In the years since, I've suffered from "allover" muscle pain (burning & numbing type pain), from the ...

Excessive Thirst?!

Tue, 31 Jan 2012 22:29:05 EST

I read this in one book that I read about FMS, but I am always so thirsty. I will go through 3-4 liters of water and will still feel thirsty. Has anyone else come across this and, if so, how do you combat it? Or am I SOL and just have to drink tons and tons and tons of water?

Exercising with fibro

Tue, 31 Jan 2012 11:36:51 EST

Do any fellow fibro sufferers have tips for low impact, renewing-type exercises when one is too tired, sore and/or unmotivated for exercise?

I think that if I did at least mild exercise, it would be better than thinking, "But I can't." However, it's not happening, except for slow walking and stretching.

Help...

Sat, 28 Jan 2012 09:02:18 EST

Good morning to all I am new to Fighting Fibromyalgia and I could really use some help in dealing with this pain.I was given med's but I am that one in a million that gets all the side affects.So I live on motrin it helps a little but having such an active life makes it worst.
Come night fall I am in alot of pain, does anyone else feel that way?
Thank you '
Have a blessed weekend to all.

Medicare & State Sytem Changes May Affect You

Wed, 25 Jan 2012 21:49:36 EST

The NFMCPA encourages you to learn what your state's legislators are planning for Medicaid coverage. Does your state health department allow health insurance providers to exclude patients with FM from coverage? We know that many physicians do not diagnose their patients with FM to protect the patients from discrimination.

The time is short to act. We anticipate most states will define their Medicaid programs and determine Essential Health Benefits for their state's citizens by ...

How to weigh-in when dealing w/ med side effects?

Wed, 25 Jan 2012 12:11:08 EST

This is definitely an embarrassing question, but I'm not sure who else I can ask. I would really like to use weekly weigh-ins to see how my weight loss is progressing, but I'm having a lot of trouble with constipation due to pain meds. I sometimes go 3 or more days at a stretch without "going," even when I start taking a daily laxative after the first day. I'm currently on my third day of taking a laxative and my scale says I've gained 2 pounds. How do you handle it? Should I just pick a...

hows it going??

Sat, 21 Jan 2012 22:42:49 EST

last week I actually felt pretty good! I woke up feeling better than normal and had some enegry at the end of the day. I had been eating better since the begining of the year and I think it finally kicked in. I especially paid attention to sugar. Also been doing a little (very little) excersise (walking and yogo) Well. I am lacking in will power, so a few days ago I started eating poorly again. went to fast food, had some sweet tea, even a soda one day. And stupidly bought a bag of can...

Hi..newbie here.

Sat, 21 Jan 2012 18:09:58 EST

Hi my name is pat..im a newbie to sp and fibro..glad I found this group because I feel like im on a neverending ride..wanna lose weight but the pain and fatigue seem to be winning the battle...looking forward to getting to kno all of you.

Greetings From Kalamazoo Michigan!!

Sat, 21 Jan 2012 12:55:53 EST

Good Morning,

I am new to the Sparks site and this group.

I was diagnosed 3 years ago with Fibromyalgia after a bunch of testings, blood draws, so and so forth. So I am stuck in this mysterous diagnoses like the rest of you.

I hear so many different things that are suppose to help Fibromyalgia...mostly coming from my mom and her holestic approach to life. It would amuse you the things I have ate, drank, applied to my body to "help" the Fibro flares and daily ...

Getting Fit in Georgia!

Sat, 21 Jan 2012 10:49:56 EST

I am planning to change my life this year, one step at a time. I got a new excercise bike for Christmas and have begun using it every day. I owned a treadmill but I kept injuring my knees so hopefully this will be better. I am a nurse and I stand all day and I am drained alt night. I wanted something that I could do that I could gradually increase time and intensity on so that I could get the blood flow going! It might even make me sleep better at night!

New to this group

Fri, 20 Jan 2012 20:22:52 EST

Hi my name is Roxanne, Have been fighting fibro since my 30's and now I am 46. I have only had the diagnosis for 2 years. Lately it's all I can do to move, but I have recently had a lot of stress in my life and the doctor says that that is a causing me to have so much pain. He told me I needed to relax. Sometimes this is easier said than done. I am glad I have revisited this site and have found this forum, I have already gotten a lot of information and don't feel so alone. So thank you!

New to group and site

Fri, 20 Jan 2012 16:30:00 EST

Hi everyone - I suffer from fibromyalgia too. You probably know how hard it is to work out when you hurt. And it's hard to make good food when you're in pain all over. At this point I'm just excited I'm not in bed, so hopefully this group can help me find some beginner exercises that won't make me hurt too bad the next day!

Support question

Fri, 20 Jan 2012 11:41:12 EST

What do you do when your family is tired of you being tired? All of a sudden, my husband doesn't believe this conditon exists anymore and my (adult) daughters all think this is in my head apparently.
I am at a lost now...

New Here Not Much Info on Fibro....

Thu, 19 Jan 2012 23:20:04 EST

Hello Everyone. I am new to this site and this group. I don't know very much about fibro except what my own experience has been for the last 2 years. It has been horrible and the only type of exercise I can tolerate is water therapy. I do have a YMCA membership and they have a special pool called "The Well" which is 11 feet deep and that is warm and it works really well for me to work with my body otherwise I don't have any other options realistically. I do strech at home every day of co...

"Arm Chair Travel"

Wed, 18 Jan 2012 14:44:38 EST

A friend of mine sends me these lovely videos or slide shows from time to time, along with jokes, stories, etc... this I had to share... it's from the area of British Columbia, Canada, that she grew up in.

www.youtube.com/watch?v=U8cj1H1ND_o

Hello :)

Tue, 17 Jan 2012 16:59:24 EST

I'm new to the group and looking for ideas on how I can lose weight and become more active, without setting off flares. I was diagnosed with FM two years ago. Because of my symptoms, I only work one hour a day/five days a week and I go to school part time. I try to volunteer two hours a week (one at each of my children's schools) and I take as many of my classes online as possible. By Friday afternoon, I'm usually in bad enough shape that DH and the kids (11 & 14) are on their own for the...

Web Seminar: Fibro & Neck Pain

Mon, 16 Jan 2012 14:54:23 EST

ASK THE EXPERT WEBINAR: Neck Pain & Fibromyalgia
Tuesday, January 17, 2012 - 3:30 pm PST/6:30 pm EST
WHAT: ASK THE EXPERT WEBINAR: Neck Pain & Fibromyalgia
WHEN: Tuesday, January 17, 2012
3:30 pm - 4:15 pm PST /6:30 - 7:15 pm EST
REGISTER: http://www.fmcpaware.org/ask-the-expert/as
k-the-expert-juvenile-fibromyalgia
RSVP: asktheexpert@fmcpaware.org
Email your questions: info@fmcpaware.org

Web Seminar: Fibro and Your Brain

Mon, 16 Jan 2012 14:52:05 EST

Exercise and Brain Function in People with Fibromyalgia
Live radio podcast
Friday, January 13, 2012 - 9:00 am PST/12:00 pm EST
The National Fibromyalgia & Chronic Pain Association will be hosting its first podcast and webinar of 2012 with both online events focusing on research aimed at helping to relieve fibromyalgia and chronic pain.
WHAT: "Exercise and Brain Function in People with Fibromyalgia"
WHEN: Friday, January 13, 2012
...

33 and ready to be fit.

Mon, 16 Jan 2012 10:40:08 EST

Hi,
I am a 33 yo mother of a 14yo boy, 5yo girl and 2yo girl. I am also a full time student studying a degree in History. I also have fibromyalgia which can make training very difficult.

What's your weather forecast for today?

Sun, 15 Jan 2012 07:58:12 EST

Here in upstate New York, it's going to be sunny and cold. A high of 19°. Brrr!!

My name is Shelley

Sat, 14 Jan 2012 21:05:23 EST

My name is Shelley. I design and make miniature teddy bears, jewelry and knitted bags. I also teach what I do. I love my job, but in that last few years multiple serious health issues have made it nearly impossible to do my job without excruciating pain. I suffer from chronic nerve pain very like fibromyalgia. All of my health problems are exacerbated by my weight problems. Due to my pain, most days I have limited mobility. Regular exercise is impossible for me. Some days a walk from...

Fibro and Men

Sat, 14 Jan 2012 15:30:26 EST

Even though it is not as common men can get fibro. Do you know any ? My best friend and I have similar health issues and he has finally been diagnosed with fibro,So far he is getting the same sort of treatment.

Running??

Fri, 13 Jan 2012 11:19:22 EST

I was a big runner until overuse injuries (tendonitis and bad shin splints) forced me to stop last summer...as time went on the pain got worse and traveled up into my whole body. I FINALLY got an unofficial dx of fibro this week. I am wondering if anyone runs?? I know I will never be able to return to my 120+ miles/month that I was doing last year at this time, but I'd love to be able to just do an easy couple of miles. I love running and miss it terribly.

Newbie, and flaring all over the place!

Fri, 13 Jan 2012 03:51:00 EST

Hi! My name is Ruanda and I was diagnosed with Fibro in 1999. And I still don't have any answers! So that's why I'm here.

Happy

Thu, 12 Jan 2012 12:08:47 EST

I'm in better mood today. I have a different outlook on things today. I wrote everything on my page. Question: If I took my check of the box where it said * only your sparkfriends can see your page * . Does that mean nobody can see my page or everybody can see my page? 29

medications

Thu, 12 Jan 2012 09:58:25 EST

So I have a question about medications. My doctor absolutely REFUSES to give me ANYTHING for pain and I was wondering, is this a normal thing? Or is my doctor just an a-hole. Because I see a lot of people on different types of medication but my doc downright REFUSES me any type of pain killer or the like.. and popping ibuprofen like candy doesn't do anything.

Inflammatory Foods

Wed, 11 Jan 2012 13:35:54 EST

Hi Everyone,

I have never been a Natural Health Nut about the food I eat except for eating a well balance meal according to the Old health pyramid - hmmmm - another topic. Well recently the subject of inflammatory foods keeps coming up.

I have been doing a little research on this and what food to eliminate. One group of these are the nightshade plants which include two of my favorite plants - tomatoes and egg plant. This really puts a kink in my diet to lose weight. ...

My zoo keeps me going

Wed, 11 Jan 2012 13:24:07 EST

My name is Brandy and I am a 30-something married woman in the Philadeliphia suburbs. My husband's name is Joshua. I adore animals and rescue all my babies:
Victoria Elizabeth- 11 year old tortiseshell cat
Andre Pascal- 4 year old turkish angora cat
Rebecca Lynn- 4 year old mini lop rabbit
Ghirardelli Square- 6 month old mini rex rabbit
Cinderella Lu- 5 year old mini satin rabbit
Houdini Muppet 1 year old english angora rabbit
Barnum & Baily- 4 year old gerb...

2 1/2 years and it still no long term solutions

Tue, 10 Jan 2012 13:32:13 EST

Hi Everyone,

I was diagnosed with Fibro 2 1/2 years ago and then Lupus after a car accident.

I most likely had Fibro and Lupus for longer but just lived with it thinking everyone had these pains. After the car accident to injured my neck (6 herniated disc) and back (3 herniated disc), everything changed and became more difficult.

Every few months meds change, then when i find one that works a new issue crops up like weight gain - no excuses I have been ove...

New member

Tue, 10 Jan 2012 12:53:56 EST

Hello, my name is Laura (waits for the chorus of "hi Laura"s). I actually don't have fibro but someone I love does and I'm trying to help her get a handle on it. She can't take medication so I've been doing a lot of research on alternatives for her.

Her major symptoms are sleep issues, occasional loss of appetite/nausea, obviously the pains, the occasional rash. Those are the big ones. She takes about 3 hot baths a day to keep herself warm to help with the pain as well.

Still confused and searching

Mon, 9 Jan 2012 15:54:59 EST

Hi everyone, I'm new here and as you can see from my title, I'm still confused and searching for answers about my Fibromyalgia. I was diagnosed a couple years ago, but still have yet to fully grasp what it means. I still think every pain is something "serious" or "life threatening", I havent figured out that alot of it is from Fibro. So I will be spending some time here trying to learn for everyone elses experiences, all while knowing everyone is different, its still nice to stumble upon some...

Nervous

Mon, 9 Jan 2012 15:31:25 EST

Never joined anything like this. Seems complicated!! 33 24

Fibro Relief !

Sun, 8 Jan 2012 16:00:29 EST

Hello my name is Brianna SOria and I do not have Fibromyalgia but my mom does. She was diagnosed with it last year and it was probably the worst thing I had seen in my life because she was in so much pain. I was there with her through every step of the way! We were trying to find a cure that would actually stop her pain instead of just giving her pain medicine that knocked her out for a couple of hours just to wake up from the pain. Finally my aunt found out about this doctor who claimed he t...

So I'm back to making progress. And annual goals.

Sun, 8 Jan 2012 00:52:31 EST

You might remember that back in December I had a huge flare up caused by something I did wrong in exercising. It took me a while to figure out what I did wrong, but I think it's because I was outside in the garage working out, and got cold during the workout. I even had to go to my doc to get an injection for pain (Forget what it is she gives me), just so I could make it thru the holidays without staying in bed the entire time. The shot did the trick and broke the cycle of pain, so I'm bac...

Myofascial Pain Syndrome

Sat, 7 Jan 2012 18:59:50 EST

I was wondering if anyone has been diagnosed with myofascial pain syndrome along with thier fibro and what things have you tried to help ease the pain..

Joined in Nov 2011, but committed to myself today!

Thu, 5 Jan 2012 17:29:38 EST

Hi everyone. I've committed to taking control of my life and health. Looking forward to the journey.

Joined in Nov 2011, but committed to myself today!

Thu, 5 Jan 2012 17:29:37 EST

Hi everyone. I've committed to taking control of my life and health. Looking forward to the journey.

Help!

Wed, 4 Jan 2012 13:05:25 EST

Hello everybody! I have been fighting this stuff for close to a year now and I'm tired. Seriously tired. I've been thru the ringer and so has my bank account. Sleep study, mri on my brain, blood, blood and more blood, prescriptions that I get and cannot tolerate once I have paid for them, And now the tiredness is so bad that I can hardly keep my eyes open and work Mon-Fri 8:30 to 5. It seems once I finally get off work and head home and attempt to cook dinner (which is rare lately) and ...

Lyrica

Tue, 3 Jan 2012 17:55:36 EST

Just curious is anyone on or has anyone tried Lyrica? and how has it worked for you if you have? My doctor is starting me on it. I've tried savella and couldn't stand the constant sweating

weigh in/ticker info

Tue, 3 Jan 2012 10:28:59 EST

Hi ladies.
Ok, how do you do the ticker? I went into the help page but it was not clear.
Thanks-Cindy

WORKING OUT.. NEW YEAR'S RESOLUTIONS AND FIBRO

Mon, 2 Jan 2012 15:02:51 EST

Even before I was diagnosed, I struggled with my weight and wanting to work out more than my body was allowing me to. After diagnosed, between the side effects of the fibro meds and the physical pain I was into, made it that much harder.

I've found that a natural supplement of magnesium and malic acid helps with the symptoms as recommended by a chiropractor from NJ I consulted online (since the options for fibro patients in Puerto Rico are almost non existent). Obviously, it wi...

confused about flares

Sun, 1 Jan 2012 17:09:20 EST

ok, so I'm a little confused about what a flare up actually means, because I pretty much feel rotten all the time. over the last year I did have ups and downs with the 'pain' part of it, it was mostly in my feet/legs hips and I would have good weeks and bad weeks, and the bad kept getting worse and worse. I believe that was the plantar faciatis, so now that that is under control I haven't been having those ups and downs. I wake up every morning in pain, my hands tingle and ache, my back is...

Hello All!

Sun, 1 Jan 2012 12:11:10 EST

Today is the day that I start managing my condition instead of it managing me. I don't want to over obsess about it. I am starting Savella today (I have had it in my possession for two months). I just want to learn what others experience with the condition and learn management techniques. I want to continue to live and enjoy my life to the fullest!

New Year/New Member :)

Sun, 1 Jan 2012 12:04:09 EST

Hello, I too am a new member. It was so encouraging to just get on here and realize that there are others who are dealing with the same issues as myself. Please do not take that wrong, I definitely do not WISH the pain and inconvenience Fibro. adds to life on anyone. Just a comfort to know that there are others out there that can truly understand. This disease is one that unless you deal with it, you cannot understand it. After years of health issues and a 2011 that was full of nothing but sp...

yoga anyone?

Sun, 1 Jan 2012 01:38:35 EST

so, I have read that yoga is great for fibro. I did a bit of it when I tried P90X last year. I've always stayed away because I have never been flexible, so it was difficult, but I learned to like it. My best friend is a Yoga instructor (on the side) I have been to some of her classes (also last year) well, she invited me to a free class offered every Sunday at the mall, so I thought it would be good for me to try. This was back in Nov. I did the class, pushed myself like I was used to d...

Fibro and Alcohol

Sat, 31 Dec 2011 20:08:24 EST

I drink alcoholic beverages sparingly because of the amount of medication that my liver already has to process. At parties, weddings or dinner with friends, I will occasionally have a glass of wine or champagne.
BUT
Alcohol and fibro do not mix.Most patients wi fibro. Chronic fatigue and ME are alcohol intolerant. When the liver breaks down alcohol, enzymes produce toxins which people with FM and ME/CFS do not process well. One of those toxins is acetaldehyde, which is known to co...

hi from the new girl :)

Sat, 31 Dec 2011 14:44:19 EST

Hi everyone, I'm Rebekah. Been around Spark People for quite a few years. Back when I began I lost 40 lbs and kept if off until I got prego with my 3rd child (who is now 2), since then havent been able to loose weight. I tried coming back a few times, but about a year ago started to struggle with pain and extreeme fatigue. My husband finally convinced me to go see a Dr in Oct and after a few visits and lots of testing, he "sort of" diagnosed me with fibromyalgia. I then went to a Reumato...

Hello, I am Karen.. A new year = a new me!

Fri, 30 Dec 2011 22:47:39 EST

Hello Everyone

I just wanted to drop in and say hello to everyone. On Jan 1st I will offically be starting my new menu plan for a new me. I am a married stay at home mom of 4 kids ages 12, 8, 5 and 4. Until recently I was working as home daycare provider as well but due to a back injury I have been unable to work or exerices. My goal for 2011 is for me to start focusing more on me ( I always am putting other before myself and my health) to lose 1.5 lbs a week and by Dec 25, 2012 I...

New to THIS fibro team

Thu, 29 Dec 2011 20:31:19 EST

Hi, I am Heidi. I'm a Hoosier who has had fibro for 13 years now. Winter is my worst time and all the exercise I've been doing to lose weight is causing more frequent flare-ups, so I am looking for more information, wisdom, and support. I hope I can be of some support to this team as well.

Jingle Bell Baby Goats

Wed, 28 Dec 2011 21:01:31 EST

Just for fun--SOOO CUTE, I had to share! LOL www.youtube-nocookie.com/embed/b4_Ed
J-XkUA?rel=0

New to the group & still learning how to use this!

Wed, 28 Dec 2011 12:28:29 EST

Happy Holidays to everyone! I am new to this group and the entire website so I'm still trying to figure out how to use it! LOL A friend of mine told me about this website and recommended it to me! So I thought I would try it. I have Fibro, Chronic Fatigue and a crapload of other issues. I've been Dx since 2006 but have had it since I was a child (most likely born with it due to complications in the womb we think). I've gained about 20 lbs since June and I'm not happy about it. I'm trying to s...

Newly Diagnosed

Wed, 28 Dec 2011 11:17:08 EST

Hi, my name is Amanda and I am a 33 year old wife and mother. I was diagnosed with fibromyalgia 2 weeks ago. I was told by my doctor that becoming active and losing weight were two keys to controlling pain. So, here I am trying to find a way to enjoy life again and become more physically functional. I have to start a new medication that can cause weight gain; that is a bit intimidating, but as the doctor said, I do control what goes into my mouth. I hope that with the support of this group I ...

Hi. Another "newbie"

Tue, 27 Dec 2011 20:48:46 EST

Hello! I believe I may have been a part of this team before. My Dr went back and forth saying I have fibromyalgia, then I didn't, now I do, etc. So yeah, here I am.

Anyway. I'm Tina. I'm 38 years old and from NY. I have kids ranging from 3 - 21 and 2 grand-daughters (aged 3weeks and 18 months) I'm happily married to my soulmate (yes, it's corny but true) He's my English gentleman. I currently stay at home with my little girl, but am a Certified Nurses Assistant and will go back to...

A really dumb question.

Tue, 20 Dec 2011 23:47:37 EST

How do I remove "teams"? No, I don't want to remove this one - this one I want to keep. :) When I signed up, I just kinda clicked on them, not knowing it would be a problem later, but I can't figure out for the life of me how to remove the ones I don't want! Any suggestions?

switching meds again. This time Lyrica.

Mon, 19 Dec 2011 22:14:51 EST

I've been on Paxil, Zoloft, Lexopro, .Cymbalta, and .Savella . I've avoided Lyrica because of the side effects I've read about. For those of you on Lyrica, is it helping you? what about side effects? I will be starting on 75 mg for the first five days then 75mg twice a day. Any tips welcome.
Barb

Portion Control

Mon, 19 Dec 2011 18:52:50 EST

Okay, folks, let's see how much you know about portion control. Pick one food, list it here and tell us what one portion equals. For example,

banana = the length of a pencil ( about 8")

Iodine quandary

Sun, 18 Dec 2011 20:06:06 EST

No wheat? No iodine, too? Where are the wheat iodine quotes?
Given up wheat? Contemplating a switch from common table or kosher salt to the popular fine milled sea salt varieties? Has it been suggested to cut back on dairy foods? The motives can be commercial additives prussiate of soda, sodium silicate, and dextrose in almost every brand of table salt. These irritation causing additives have prompted a few people to take a plunge in salt. IBS migraines and arthritis are a few signs of i...