SparkPeople Ankylosing spondylitis is anky-losing bad habits! Team Messageboard http://www.sparkpeople.com/myspark/groups_individual.asp?gid=24962 Our goal is to make AS a household name & we're a team that will help each other in anyway possible. "We will not dwell in negativity but move into positive living". Erin SparkPeople Ankylosing spondylitis is anky-losing bad habits! Team Messageboard http://www.sparkpeople.com/assets/nav/nav_logo_v3.gif http://www.sparkpeople.com/myspark/groups_individual.asp?gid=24962 is anyone still around http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x56871070 Hi there just found this team and wondered if anyone is still around? Sat, 22 Feb 2014 10:36:29 EST The importance of a hobby http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x56415453 I know I haven't been here in way too long so I hope there is still some readers. I decided to go back to my old hobby of playing the guitar. It hurt my fingers and shoulders but it's not damaging them, It's actually better for us to use our muscles. I've never felt better. I feel stronger an prouder than I have in years. <BR> What are you doing today for yourself? Sat, 18 Jan 2014 13:26:59 EST Depression from Chronic Fatigue http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x55451699 I was speaking with a colleague earlier who is doing so much better after receiving multiple cortisone shots. I said I was very happy to hear the news that she is feeling so much better and that it can change your whole perspective. She said that she had been suffering from mild depression as well and didn't even know it. I absolutely believe that we all fight depression everyday because we know this is never going away but that we have made it another day and we can and we will do it again t... Wed, 30 Oct 2013 14:25:08 EST Diagnosed about 1 year ago... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x54892503 Hi everyone, <BR> <BR> My name is Lynda. I was diagnosed with moderate to severe AS about a year ago. This was after almost 20 years of doctors telling me that they didn't know what was wrong with me, asking me if I had been in a car accident, and pretty much putting me on a pill until it got better. Until the next flare up, anyway. <BR> <BR> Since my diagnosis, I have had to change a few things about fitness. I was practicing Olympic weight lifting for a while, but the doctor thought it wo... Fri, 13 Sep 2013 19:33:56 EST zumba vs yoga http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x51526171 I have always wanted to try both zumba and yoga...so I tried both, yesterday I did the yoga, I had a hard time doing the floor exercises... today I tried a very begiining zumba routine using free you- tube vidoes, modifying the moves as needed... I had a blast and since I did it alone in my bedroom I did not care if I looked silly or messed up the move! My knees hurt a little now but I feel so good for trying it, I'll probably do it again. <BR> Mon, 7 Jan 2013 19:54:58 EST new to spark and AS http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x51504571 Hi, <BR> I was just diagnosed about a month ago with atypical AS and was started on prednisone to manage my pain until a plan for a DMARD is finalized after lab work ect... I also started a weight loss plan using sparkpeople as I have gained weight due to inactivity over the last six months secondary to my pain issues (the prednisone is not helping much either in the weight gain department) My biggest challenge seems to be getting in the physical actvity as I have been having pain flares.... Sun, 6 Jan 2013 16:16:43 EST Depression/A nger/Fatigue http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=24066x24962x49350007 I could go on & on but am hoping for some dialogue amongst team mates. Who is doing great or not so great today? We're here to help, and I am very grateful for that today. <BR> <BR> <BR> <BR> Erin <em>220</em> Tue, 7 Aug 2012 12:05:47 EST Hello! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x47611842 I was diagnosed with AS last November after years of back and joint pain. I was supposed to start Humira and made it to my first injection. That was five weeks ago. I can't get back on it because I keep getting sinus infections. I'm not in pain right now though, so that's good. I'm also suffering from ulcerative colitis. <BR> Mon, 16 Apr 2012 16:02:16 EST Healthy Alternatives for Pain http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x47287201 Google this for everyday healthy alternatives for arthritis pain relief: <BR> 9 Strange Arthritis Home Remedies - Arthritis Center - Everyday Health <BR> <BR> I tried to copy the link to no avail but this is an article from "Everyday Health". It is so neat and definitely worth reading! <BR> <BR> Erin <BR> <em>223</em> Tue, 27 Mar 2012 10:02:02 EST Hello! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x45915808 I just signed up again with Spark. I'll be 40 this year and I want to reach my fitness goals before! I was diagnosed with AS 2 years ago after about 12 years of back and hip pain that 3 doctors could not find a reason for. It took my second opthamologist and a third round of iritis to finally get a diagnosis! I don't think the AS had much to do with my weight gain. I've had times where my hip pain prevented me from exercising, but I can usually just push through the pain. I became self-emplo... Mon, 9 Jan 2012 01:58:07 EST Hello! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x45686033 I am glad to find others dealing with AS. It's been hard for me to find others with the disease or any support groups. I'm 25 and my name is Nikki. I was diagnosed with AS about a year and a half ago after I randomly ended up with Iritis and it continued for nine months. I was immediately put on methotrexate and first Simponi then Humira. I hate both methotrexate and Humira. The side affects are pretty lame not to mention the Humira burns sooo bad. Anyone else out there feel me pain? <em>46</... Wed, 28 Dec 2011 17:03:16 EST Nice to meet you! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x45656429 Hi! <BR> How's it going? How were your holidays? <BR> I'm a woman, in my 40s, a wife, a mom...and I have axial spondyloarthritis, aka undifferentiated spondylitis aka pre-AS. I've had flare ups of iritis, but thankfully right now my eyes are "quiet" as my doctor would say. <BR> Goals: My goal is to eat healthier, and by recording what I eat each day, my hope is that I'll be more mindful of what I'm eating. I follow a gluten free diet. My other goal is to get out and move each day, exercise! ... Mon, 26 Dec 2011 17:10:50 EST -here is what I tried http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x44273282 here is what I tried-may you all find the answer specific to you. NOTE-I had a DX of Sjogren's and Fibro and EMphysema and Arthritis and and and... <BR> <BR> I went on DHEA (100 mg a day) I went on Fish Oil 3, 000 mg a day, Vit C, 5,000 mg a day plus a regular vitamin (high quality) and extra b-12, I also took a digestive enzyme (Superenzymes by NOW) and AND-I went on short term minocycline/doxycycline 100 mg 2X a day. I made my own DHEA 'eyedrops' with genteal tears type eyesolution, with 1... Sun, 25 Sep 2011 23:26:42 EST I'm new here http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x44197777 Hi everyone, I'm new to this board, been on sparkpeople for a few months though. I am 30 and received this diagnosis of AS at age 21. My neck is partially fused and has been for 8+ years. My shoulders, hips and back are, by far the worst. We actually recently relocated from MD to TX to help with my arthrits. I just feel SO much better in warm weather. The MD crazy weather just wasn't working for me an the pain I would deal with was unreal. I love living in TX and the pain has drastical... Wed, 21 Sep 2011 09:45:05 EST Eager to find other AS people to connect with http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x43946679 Hello everyone! I am new to SparkPeople (thanks to my amazing older sister, who introduced me). <BR> <BR> She suggested I look for a team of fellow AS people and here you are :) <BR> <BR> My name is Tiffani and I was diagnosed in 2008 with AS, just after my 18th birthday. At the time, I had mild chronic pain that I figured was normal. In the last 4 years, due to poor eating habits and high stress, I've found my symptoms have increased immensely. <BR> <BR> I now suffer with almost immobiliz... Tue, 6 Sep 2011 23:55:15 EST Daily Discussion http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x43846009 First, I am sorry that I have not been around. I have let my health issues drag me down. The doctor gave me a lecture last week that I have not been doing what I need to do with my exercises and that I need to be regular with them no mater how I feel. Spark People provides a great motivation and encouragement so I need to get involved again. Thu, 1 Sep 2011 08:30:16 EST Woohoo - 10 days countdown to rehab! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x42632468 Oh im sooo glad. <BR> I choose a clinic where i can return home the evening (was afraid of letting my buisiness rid). <BR> I hope thing will go well there and i will loose at least 10 lbs within these 3 weeks. <BR> Wish me luck ! Sat, 25 Jun 2011 12:28:07 EST Yoga http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x41824604 Would Yoga be a good for AS since it involves stretching and breathing? Sat, 14 May 2011 19:30:02 EST Exercise Question http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x41784665 My rheum. has suggested water exercise. I am very curious what kind of exercise other AS people do? <BR> <BR> Thanks! <em>30</em> Thu, 12 May 2011 14:41:05 EST Hi! So glad I found you! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x41763012 Hi, my name is Nisa (pronounced neesa). I am a 39 yr old mother of 2, and I have been married for 16 yrs. My kids are 5 & 3, and I am a SAHM. I was dx with AS back in '08, but I went into remission and chose to ignore it for lack of better words. In the last 6 months it has come back with a vengeance. Which I suspect may be correlated to my weight gain putting extra stress on my back, bones, and health in general. I am taking treatments now, and I am waiting to see some results and get some r... Wed, 11 May 2011 14:25:36 EST Found Ya! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x41663520 Hi all! I am 26 years old and was diagnosed with AS in 2007. I'm trying to lose weight to ease some of the joint pain and stiffness I have. This year I was diagnosed with Crohn's Disease so I am also eating better to hopefully get off the meds for that. I am finally putting myself and my health first. I'm really optimistic that I will reach and maintain my goal weight. Fri, 6 May 2011 11:06:26 EST Newly Diagnosed http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x41396654 Hello! I was diagnosed as probable ankylosing spondylitis several months ago. After years of chronic pain by process of elimination my doctor has said this is the probable cause even though the MRI of my spine did not exhibit typical findings for the disease. It is all very confusing to me. I have done some research and the symptoms do fit. I have been struggling with mental and physical issues that chronic pain causes. I have two young boys and want to run and play with them and feel awful t... Sat, 23 Apr 2011 11:14:56 EST NEW MEMBER http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x41215339 Hi all, <BR> <BR> I am a new member. I've had AS for a couple of years now. Learning to deal with all the pain. <em>30</em> Thu, 14 Apr 2011 08:25:26 EST Hey (coming out of my shell...) http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x40668395 Hi everyone, my name's Nikki. I've been a member of Sparkpeople for awhile but have not done much. Well..I've decided to come out of my shell and participate a bit more. I was diagnosed with ankylosing spondylitis when I was around 17. This was when I began experiencing immense hip pains. The pain came quite sudden and I was unable to walk for about a year. I'm 19 turning 20 next month, and things have been getting better very slowly. The specialist gave me 3 cortisone injections altogether i... Sun, 20 Mar 2011 02:39:54 EST Simponi & Methotrexate http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x40642019 I am curious, out of us all, who is using the Simponi and Methotrexate combo? I have been since September 2010 and have seen many improvements! <BR> <BR> <em>220</em> <BR> <BR> Erin Fri, 18 Mar 2011 15:03:28 EST Low Carb diet? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x38676896 I've been trying out the low carb diet, and I think it's helping. I checked out this website: http://www.kickas.org/guide.shtml <BR> <BR> Have anyone else tried it? What do you all think about it? <BR> <BR> Basically I've been eating a lot of veggies, fruits (all sorts), nuts (mostly almonds and pistachios), fish, meats (reduce red meat). I don't eat dairy. And I haven't been eating bread, rice, potatoes, cakes, cookies etc. I find I feel better in general. Mon, 27 Dec 2010 13:28:22 EST Coming out of a flare up http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x38201755 Hello! I'm new and about the time I started, I was put in the hospital and Thanksgiving started! I feel better, but must start a regular exercise program. I have bad knees so, does anyone have suggestions? Thanks!! Tue, 30 Nov 2010 11:33:09 EST How will you treat yourself on Halloween http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x37643940 Apples are a good start! They're part of the seasonal spirit and healthy too! If you buy the carmel dip a little bit goes a long way. I just have to remember... all in moderation! Happy Halloween Team! Love you guys!! <BR> <em>431</em> Sun, 31 Oct 2010 14:06:25 EST Glad i found you.. http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x37380649 Hi there ..i ´m Khelia <BR> <BR> Noob to sparkpeople, i joined yesterday. <BR> <BR> AS newbie too, as i´ve been diagnosed only 5 months ago. Glad that this kid got finally a name and i´m no longer named as "Too sensitive" "Too lazy to move, no wonder she has backpain" "Shouldn´t we take her to a psychiatrist?" or "pain med abuse, blahblah" - i´m sure many of you know these silly sayings... <BR> Im glad its over, even if this diagnosis isn´t pure joy ;-) <BR> <BR> I gained lot of weight the... Mon, 18 Oct 2010 09:54:56 EST Fatigued? How do you stay up? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x36064433 Since fatigue is a huge side effect I am wondering how everyone stays "up", emotionally and physically. I try to keep moving, I take vitamins, B-12 works somewhat too. The more I move the better I feel & the more energy I have. What about you? Sun, 15 Aug 2010 11:32:13 EST Name Your Symptoms http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x35931541 Hi Everyone! <BR> <BR> My name is Kerry and I'm new to this team and to the A.S. diagnosis. I have a very complicated case and they can't say for sure that I have A.S. because a lot of the diagnosis is evaluative. The worst health issue I have right now is ankle pain, which limits me to ~90 minutes of activity for the whole day. Hip, knee and ankle pain are associated with A.S., but my doctor said that they aren't really sure how they're linked. <BR> <BR> I was wondering if people coul... Mon, 9 Aug 2010 03:32:38 EST Co-Leader http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x35686246 Hello all, <BR> <BR> Our sweet and lovely team leader, Erin, has asked me to become co-leader of this team. I would like to introduce myself for those who do not know me. My name is Mark. I am a Horticulturist and worked in wholesale nurseries for many years and then had my own landscape business for ten years before I was forced to retire and go on disability because of my health issues. <BR> <BR> I was diagnosed with AS in 1999 along with four other forms of arthirtis. It was all ready s... Wed, 28 Jul 2010 11:07:52 EST Tailbone http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x34457659 Has anyone on this team ever experienced pain around their tailbone. <BR> All of a sudden I started to develop pain in that area. Was wondering if that might be linked to AS.??? Sat, 29 May 2010 12:54:08 EST Hi everyone http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x33234497 Just wanted to introduce myself. I'm new to Spark and have been diagnosed with A.S. for about a year now. I've had fibromyalgia for about 20 years too. I'm on methotrexate and Enbrel shots for the A.S. and just got off a "Prednisone wash" - which is what my doc calls a week of decreasing by 1 mg doses starting with 6 mg. I'm very stiff and sore today. I've walked a mile per day the past two days and am just starting my healthy eating today. Have been eating poorly with Easter candy and ... Tue, 6 Apr 2010 09:02:21 EST spondolyosis http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x32514338 I thought I had spondylitis instead I have spondolyosis. I do have a lot of the same symptoms. I have trouble with C 2 & C 3. <BR> <BR> Ann Sun, 7 Mar 2010 21:29:40 EST spondolyosis http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x32514322 I thought I had spondylitis instead I have spondolyosis. I do have a lot of the same symptoms. I have trouble with C 2 & C 3. <BR> <BR> Ann Sun, 7 Mar 2010 21:29:06 EST Married to A.S. http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x30856674 Hello, <BR> <BR> I decided to join this team because the person I love most in the world, my very best friend & husband, was diagnosed in March with AS. <BR> He just started on Humira last month. <BR> <BR> We live in Germany and there aren't many support groups here, it is hard to get information / find people who know what you are talking about or can offer advice. It was hard enough to find a competent doctor - it took us almost 7 years to get the right diagnosis. <BR> <BR> I want to sup... Thu, 7 Jan 2010 11:28:30 EST osteoarthritis of the neck http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x28690866 I have just been diagnosed with arthritis of the neck. I am going in for a bone scan to see what is going on with C-1. The tips of my cervical spine or deterioating. <BR> <BR> I am a nurse and work with my neck being stiff and painful. When I work I can not take my muscle relaxer around the clock. My neck feel so much better with the muscle relaxer. My husband wants me to medically retire. I feel it is better to continue to work to keep my self mobile. <BR> <BR> I have to see what th... Sun, 27 Sep 2009 15:19:46 EST I'm New to A.S. and to SparkPeople http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x28656064 I found SparkPeople and was interested in it, then was diagnosed with A.S. and joined because of the A.S. Team. I was so happy to have someone to talk to who has this terrible infirmity! I was diagnosed with AS a couple of months ago, and am new to what is good to help and what isn't. I have been put on Humira and would like to ask some questions about it. I have arthritis in my joints also and am treated for that with several other medications which were working pretty well, when my back ... Fri, 25 Sep 2009 15:37:24 EST Surgery http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x28292723 As you all know we are sometimes having to have surgery. Our dear friend and team mate DJCARR is about to go in and I'm hoping we could share some special thoughts and advice for her. Good Luck DJ! Thanks team!! <em>220</em> Wed, 9 Sep 2009 15:45:57 EST Checking in....... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x27667713 Hi All, <BR> <BR> Just thought I would check in. Hope you all are well. Summer has gone by too quickly. <BR> <BR> Exercise has gone out the window for me with some further health problems. Will have some surgeries on Sept. 30 - so keep me in your thoughts. Nothing too serious. <BR> <BR> Please no pity as I have been having an excellent pity party for myself and now need to "buck up." <BR> <BR> Wish me luck, <BR> <BR> Dahna <BR> <BR> P.S. Will have to go off Humira and Medrol two w... Wed, 12 Aug 2009 22:27:00 EST Hello, what a great team to find http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x27578923 Hi, I'm Gail and have had spondyloarthropathy that was diagnosed in 1999. <BR> I'm on humira, methotrexate and clinoril I just went off 2 years of maintence predisone 10 mg per day.... it's taken months to wean from that as every mg. caused flair up's (I had to wean 1/2 mg at a time). <BR> I'm 51 yrs old and work in a cube, on a queue line that doesn't allow for leaving except scheduled breaks and emergent trips! Needless to say I like that I don't have to stand long but get stif... Sun, 9 Aug 2009 09:35:00 EST Self Propelled Mower http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x26680876 I knew I made a mistake when I bought a new "all electric" lawn mower. Although I don't need to service it with gas or oil. And neither do I need to pull start it. However, I should have put up with those things for a "self-propelled" mower. There was one on sale, and the best part of it is that it walked at your own pace. <BR> Where is this all leading? Well, I cut the grass today. Don't really have a big yard. But during cutting it I had to stop cause my right hip stiffened up on me t... Tue, 30 Jun 2009 16:03:25 EST Hey people! Glad to have found you! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x26424968 Hey everyone. I'm so excited there's an AS group. (-: Thanks to whoever told me... I was so excited I went to the group right away and failed to notice your name! haha. You know who you are: thanks! <BR> <BR> <BR> Here's my AS story, in brief (-: I took ballet when I was 12 and had to stop after a year because of severe ankle pain. I went undiagnosed for several years. The pain was mild usually; some days I'd ache for no reason but often I'd only feel it if I ran around a lot or jumped down... Fri, 19 Jun 2009 00:20:36 EST Pain starting to subside http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x26183485 Hi everybody, <BR> The pain on my left side is finally subsiding. As the doctor said it would. I take another HUMIRA shot tomorrow, that should really reduce the pain even more. Lester Tue, 9 Jun 2009 09:42:08 EST Exercise http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x26037260 I thought exercise was supposed to help AS. I guess it depends on what kind of exercise you do? I tried swimming yesterday and ouch did that hurt. Just on my left side. I am really depressed today because it went so poorly. Well, wait a minute, I walked 15 min. on the treadmill, so I guess it wasn't a total loss. <BR> This chronic pain is really a terrible thing to have. <BR> But, I guess I don't need to tell you guys that? <BR> Lester Wed, 3 Jun 2009 11:43:15 EST Intro http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x26015286 Wanted to introduce myself. My name is Lester, I'm 59, and was recently diagnosed with AS. Today I went to the gym and wanted to try swimming. I heard that it's great for arthritis. Well, I couldn't do it. The first kick I made with my left leg caused such pain in my back (left side) that I had to quit. Then I went and walked on the treadmill for 15 minutes. I was so disappointed. But at least I tried. <BR> Lester Tue, 2 Jun 2009 16:52:34 EST Favorite Slogans / Motivations http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x25595769 Do you have any favorite slogans that keep you moving or help you control your appetite? <BR> <BR> Here is one that I need to repeat regularly. <BR> "We must eat to live and not live to eat." <BR> Sun, 17 May 2009 06:43:58 EST Fatigue http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x25296347 Hi Everyone, <BR> <BR> Does anyone have fatigue? I read it is a common symptom of AS. Also after I started HUMIRA, my fatigue worsened. Anyone have this problem? <BR> <BR> Cindy Tue, 5 May 2009 14:13:20 EST AS noob doing the introduction thing! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x25134913 Hi everybody! My name's Noni. I was just diagnosed with AS. This morning, actually. I've been in almost constant pain for most of my adult life, really, but the last few years were really bad. I was going to see a chiropractor 2 times a week just to ease the pain a little! Finally my new GP suggested I go see a rheumatologist (after only one session.. my old GP who had been treating me since I was six never mentioned it) and he diagnosed me with AS. I'm going to start Enbrel, provided ... Wed, 29 Apr 2009 16:38:31 EST The low starch diet http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x24831479 Hi Everyone <BR> <BR> A couple of years ago I came across a book by Carol Sinclair called "The IBS Low-Starch Diet". In the book it describes how IBS may actually be a symptom of AS. The book explains one theory of the mechanics of AS and claims that eating a low-starch diet can relieve symptoms (the author has AS and takes no medication and has no pain). <BR> <BR> I am eating a fairly low starch diet and also avoid too much gluten but was wondering if anyone else had success with these kin... Sat, 18 Apr 2009 22:45:33 EST Thank goodness you are here http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x24818917 Hi Everyone, I have just been diagnosed with AS after 10+ years of not knowing why I was always in pain and having a multitude of medical problems. I was diagnosed with Chronic Fatigue Syndrome in 1997 and IBS in 2006 but it turns out that AS is a much better fit with the clinical history. I am positive for HLA-B27 and have had more tests than most people can comprehend. <BR> <BR> I am currently not on any medication but am seeing the Rheumatologist this coming Wednesday so that might chang... Sat, 18 Apr 2009 11:18:44 EST Explaining Chronic Pain http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x24577342 I just shared this with another group and felt it might be helpful here also. <BR> <BR> This article provides two letters to send to others who just think that we are lazy when we are in to much pain to do anything. <BR> <BR> <link>www.healthcentral.com/chronic-pain/c<BR>/5949/66364/understand?ic=6042 </link> Thu, 9 Apr 2009 11:42:19 EST Personal Challenge for April http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x24558051 It was good to have a personal challenge for March to loose three pounds by the April Fools Day. We should have this challenge every month. So I hereby make the challenge that we all will lose at least 1 pound a week for the month of April. Hopefully I will break through my spell of staying the same. Wed, 8 Apr 2009 18:42:34 EST What is your favorite April Fools Day Joke? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x24239662 I told my boyfriend that an adoption agency I interviewed with a few years ago called and found a baby for me!! He honestly believed me! hee hee <BR> <BR> Maybe one day, after a lot of planning I actually will... <em>170</em> Sun, 29 Mar 2009 17:55:10 EST Be Aware of Possible Scammers on SP http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x23948716 Members have been getting scammed by an ad for <BR> AcaiPure/Bromalite <BR> <BR> Do not order anything from any company that sounds similar. <BR> They are draining peoples bank accounts. <BR> <BR> This did not happen to me, but I met a newbie on the boards that is having trouble over this. Thu, 19 Mar 2009 16:28:09 EST Personal Challenge to lose 3 by April Fools Day http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x23931373 There. I have announced it. Now I have to do it. <BR> Spring is arriving. I can get outside. <BR> I need to do some fitness to achieve this goal. It is only 12 days. But I have lost 3 in a week before, although 1 a week is easier. <BR> <BR> Anybody want to set a goal for April fools Day? Thu, 19 Mar 2009 05:15:32 EST Happy St. Patrick's Day http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x23874597 In honor of the Irish out there, I found this quote: <BR> <BR> Dance as if no one's watching, sing as if no one's listening, and live everyday as if it were your last. —Irish Proverb Tue, 17 Mar 2009 09:52:57 EST Might change team name- http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x23764994 I am thinking of changing the team name to Anky-losing Weight. What do you guys think? Fri, 13 Mar 2009 12:45:14 EST What will you do to stay on track this weekend? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=10721x24962x23764091 For me it's the food tracker and small goals. Fri, 13 Mar 2009 12:16:54 EST If-?- was my trainer, I'd exercise everyday! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=10721x24962x23763602 Kevin Costner <em>216</em> Fri, 13 Mar 2009 12:02:12 EST So Amazed to Find Other People Like Me! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x23687601 Thank you, thank you, thank you to the organizers of this team! My name is Vali and I was diagnosed with AS almost twenty-five years ago now. In all that time, I have never found another woman with this condition so I was just blown away when I was looking at all the available teams to join and found this one, and not only was there an AS team, but there are other women that suffer from this! <BR> <BR> My AS has progressed fairly slowly, however, the steroid use has racketed up my weight to ... Wed, 11 Mar 2009 00:09:34 EST Medication or not? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x23194534 I'm currently taking methotrexate. Before that, Humira. What is everyone else using that has worked or what side effects are you experiencing? One fantasctic lady here said she just put her foot down one day and stopped all medication! I do not believe that's for me though. yikes... <BR> So, just a general poll here. <em>223</em> Mon, 23 Feb 2009 22:28:13 EST Health Insurance? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x23145256 Wondering if anybody has issues with health insurance because of this diagnosis. <BR> <BR> I will only be able to carry my present policy until October. I am worried about getting a new policy because of pre-existing conditions. We are hoping that the same company will continue to carry me for the next four years. It is Anthem Blue Cross and we already have a general idea of the cost. Sun, 22 Feb 2009 13:50:44 EST Favorite colors http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x22960454 Anyone want to play a game? Favorite color, or any color if you like from A-Z. Mon, 16 Feb 2009 14:04:24 EST Have you experienced bouts of eye inflammation? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x20066098 I recently went to the eye doctor because I have been having a slight blurring of vision in one eye with a sharp pain and the eye looking bloodshot.He gave me antibiotics the first time this happened, but now he said it may be due to AS. Has anyone else had this told to them? Sun, 9 Nov 2008 19:28:52 EST Introduction http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x24962x18871402 Hi, my name is Pam, I'm 61. I also was diagnosed with RA/ankylosing spondylitis about 3 years ago. I've always been so active, biking, walking anything outdoors that was physical. Even my job was physical. I had to stop working 3 years ago. What a challenge this has been. I don't want to complain to my husband or family anymore, so I thought I could find others that understand. Hope to hear from anyone that would listen & give me some insight as to what they are going through or what th... Sun, 28 Sep 2008 11:16:33 EST Welcome! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x24962x18086217 Welcome member! Now that you know a little about me I'd love to hear more about you. I've also added a link for the Spondylitis Foundation for those looking to learn more. Its a great website that I found very helpful! <link>www.spondylitis.org/ </link> Sat, 30 Aug 2008 14:39:36 EST