SparkPeople Thyroid Cancer Team Messageboard This group is for those whose lives have been affected by thyroid cancer. Thyroid cancer affects more women and men and is the leading endocrine cancer. SparkPeople Thyroid Cancer Team Messageboard New here I've been a member of Sparks People for a few years but just last year was diagnosed with thyroid cancer. I had my thyroid removed 3 months ago and have put on 8 pounds :-(. I would love to loose 40 pounds or so and am looking for support! Looking forward to getting to know you all :-)! Tue, 19 Jan 2016 23:14:54 EST What is the Thyroid? "The thyroid is a gland at the base of the throat near the trachea (windpipe). It is shaped like a butterfly, with a right lobe and a left lobe. The isthmus, a thin piece of tissue, connects the two lobes. A healthy thyroid is a little larger than a quarter. It usually cannot be felt through the skin." - National Cancer Institute <link><BR>/thyroid-treatment-pdq </link> Mon, 28 Dec 2015 12:09:13 EST New I'm new around here. Anyone around??? Mon, 4 May 2015 10:18:41 EST New Here I am about 8 weeks out from having my thyroid removed. I was diagnosed with papillary thyroid cancer 9 days after having bunion surgery in January of this year. It was a total surprise, but it was caught early, for which I am grateful. <BR> <BR> I feel like there is a lot of gloom and doom to read online about life after a thyroidectomy, and I definitely have my share of issues at this point, but I'm hoping that there is hope that we can all return to a healthy, somewhat vibrant life! If... Wed, 22 Apr 2015 19:42:23 EST Don't know if I'm in the right area...but had FNA! I haven't been diagnosed with Cancer and I don't know if it's appropriate to post here. I just wanted some support which sounds selfish since I don't have a diagnosis so again my apologies. <BR> Today was my Thyroid Nodule FNA biopsy and it wasn't as bad as I thought it would be four different fine needles in four different areas around the nodule taking samples. The doctor also had pictures taken while she was doing the Ultrasound guided biopsy. <BR> I asked ... Fri, 11 Jul 2014 00:09:37 EST New to this Hello everyone! My name is Sam. I'm 27 years old, and I am four years cancer free. I have always had a hard time with my weight, and I'm finally ready for a change. Mostly my motivation comes from wanting to have a baby, but also I would like to become more healthy and do what I can to stop thyroid or any other kind of cancer from returning. I am looking forward to this journey and the friendships that I may gain along the way. :) Sat, 5 Apr 2014 15:17:31 EST Workout Question Good morning! I had a thyroidectomy just over a year ago, and I am fighting to get back to my previous fitness level. My meds and hormones have been balanced for a while, and I feel relatively good. However, I do have a few *down* days about once a month. I feel weak and tired, cold, I get headaches, depression, and brain fog. Nothing like when I first lost the thyroid, but the symptoms do still occasionally drop in. Is it better to rest when I feel this way, or to push through? In my ... Fri, 21 Feb 2014 13:14:33 EST Education Station Want to learn more about Thyroid Cancer? Here is a link to the article on the Spark. It's as good a place to start as any. <link><BR>a-z_detail.asp?AZ=467 </link> Mon, 17 Feb 2014 19:47:09 EST Team Leadership I just received an email that I've been made team captain.. somehow haha. I guess that is because the previous one has not been online in a while, I haven't either but I can be to help keep the team going. Unless someone else would like to take leadership. Let me know! Sun, 26 Jan 2014 11:17:00 EST Thyroid cancer and supplements Hi, I recently had my thyroid removed because of papillary thyroid cancer. I was just reading about "Thyroid Helper" and I'm wondering if any thyroid nutritional supports will actually help someone who has NO thyroid gland. The other thing I worry about is that anything that stimulates the thyroid (iodine, for example) could cause any remaining thyroid tissue that may have been left, to flare up and cause the cancer to spread. I previously had Hashimoto's and had some understanding of issu... Sun, 1 Dec 2013 13:27:23 EST Hello and here a little hello message from me. Hello to all, <BR> <BR> I really don't know where to start but I can say on Dec. 28, 2012 was the day I got my Thyroid out and yes it was cancer. Since then I have been on one h*** of a trip. I have been on one meds to the next. Now I'm on Armour. My Doctor doesn't listen to what I'm saying to him and if I tell him one more time I'm tried I'm going to yell. I like my doctor but for that one thing. Every 3 week is a blood test, you know the one to see what your TSH level are at. My been low. ... Fri, 9 Aug 2013 16:19:47 EST Currently day 5 out of 12 of my LID... Well, this is it. Hopefully the last hurdle. My cancer markers came up fine in my last blood test and now I'm just in the midst of the LID in preparation for my RAI next week. <BR> <BR> I've blogged about this experience so far here on SP: <link><BR>urnal_individual.asp?blog_id=5009033 </link> <BR> <BR> Please feel free to read, & comment with any tips or tricks to help get me through my at-home quarantine next week! :) <BR> <BR> Thanks everyone! Fri, 10 Aug 2012 13:40:35 EST Celiac question I had a total thyroidectomy due to papillary thyroid cancer about 3 or 4 years ago and have had follow up scans and blood work yearly since then. I have been taking synthroid since then and the dosage has remained relatively the same, although they decreased it a year or two ago after I started losing weight. I sometimes have random symptoms that I can't decide if they are related to thyroid issues or not, such as extreme itching and skin redness, pain in my legs, stomach issues, depression. ... Thu, 7 Jun 2012 23:09:07 EST Low Iodine Diet Recipes and Survival Guide I have not begun my LID yet but it's going to be in the next few months when I need to start. I'm sure some of these links have been posted before but just in case, here is some fabulous recipes, info, and a survival guide that I found for the LID. <BR> <BR><BR>/a/Low-Iodine-Diet-Recipes.htm <BR> <BR><BR>nd_milk.htm <BR> <BR><BR>ow-iodine-cookbook.pdf <BR> <BR> http:... Tue, 10 Apr 2012 11:34:33 EST anyone else????? struggling with hyper symptoms as result of being in a medically induced hyper state following treatment for hte cancer???? Sat, 31 Mar 2012 13:20:05 EST Happy Almost Spring! Happy Almost Spring!! This coming Tuesday marks the Spring Equinox and in preparation for the first day of the new season I would like to wish you a brand new start, never-ending moments of poise and balance and a joyful tip over on the scale to the side of light. I wish you a new dawn, an eternal youth and a morning star to wish on. Whatever battles you are fighting, whatever stresses may come your way, may they melt away with the winter and may you be granted a time of new light and a ne... Fri, 16 Mar 2012 16:00:55 EST Radiation Isolation I will be doing the isolation at my apt, no hospital, and my 11 y/o son will be staying in a hotel with his Grandfather. <BR> <BR> While in isolation, since I will be the only one in the apt, Can I use the phone or computer if I clean them with say a Clorox wipe? What about the living room furniture, microwave, etc.? I have a stack of magazines to read so I won't contaminate my Nook if I can't use that. <BR> <BR> Also I was told to clean the toilet and shower real good when the 72 hrs of is... Sat, 10 Mar 2012 17:33:32 EST Distilled Water The low-iodine water says to make tea and to drink distilled water. Should I buy the bottled distilled water or if I use the PUR water filtration system, is that the same as getting distilled water? Sun, 4 Mar 2012 09:34:13 EST News from Thyca . org Hi everyone, <BR> I am posting some information about upcoming regional Thyca . org meetings below. You will have to copy and paste the links into your browser. This info is all available at the website <BR> <BR> Upcoming Free Seminars and Workshops with Physicians <BR> <BR> Everyone interested in thyroid cancer is invited to attend. <BR> <BR> • Boston, Massachusetts— Saturday, January 21, 2012 <BR> <BR> Roy Phitayakorn, M.D., MHPE, Massachusetts General Hospital, will <BR> spea... Tue, 17 Jan 2012 01:23:11 EST new to this Hey i am 26 and have already had my second thyriod surger since September. From July to October i was told they are pretty sure it is not cancer and not to worry about it, The FNA came back with follicular cells. In october i received a call saying it was cancer but it shouldnt be something to worry about it and we should wait and see. I wanted to talk to someone else. I was refered to an endo. I did things backwards and was sent from my primary doctor straight to a surgen when a ultra sound ... Fri, 13 Jan 2012 20:58:02 EST Getting back in the game! Hi everyone! My name is Jill, I'm 20 years old, and it's been a little over a month since I had my thyroid and several of the lymph nodes in my neck removed due to papillary cancer. Before my diagnosis I had lost about 40 pounds using Spark and was living on campus at college. I have since moved back home to deal with the surgery and radiation treatment. Without getting too into the boring details, I had been very inactive for about a month before surgery (no school or job), then I was in the... Wed, 30 Nov 2011 11:35:48 EST Scar Tape I am having my surgery next week, and have read about "scar tape" used to help the scar heal faster and lighter/smaller. <BR> What is scar tape... I googled but I get all these different products. <BR> What kind worked for you?? Any other ideas? Wed, 26 Oct 2011 18:30:01 EST I'm still waiting on diagnosis I have an enlarged thyroid even thought my thyroid test came back normal. So they put me on a low dose of thyroid medication and told me they didn't THINK it was cancer and sent me on my way. <BR> Here we are a year later and the thyroid has continued to grow. 2x4 inches on the right side of my neck. <BR> NOW they want a biopsy and seemed i had it done about 12 days ago and they said it would take two weeks to get the results back. the lab is very sticky though and if there... Mon, 10 Oct 2011 04:25:30 EST WooHoo! I posted my first blog! Hi everyone, <BR> <BR> I've posted my first blog entry. I hope you like it. If you get a chance to read it, please let me know what you think! <BR> <BR> Mad <BR> Fri, 7 Oct 2011 12:32:00 EST Challenges Hi everyone, I hope that each of you enjoys, and participates in our challenges! Thu, 6 Oct 2011 17:27:12 EST Introducing the new Co-Leader Hi everyone, <BR> <BR> I would like to introduce myself as the new co-leader for our group. I am a five year survivor! I have been a member of this group for several years, and am excited to step up to a position of leadership. I hope we can have a truly productive group! <BR> <BR> Mad Thu, 6 Oct 2011 15:35:10 EST's my story. Hi. I've been on and off spark people for years. Last summer I dropped 40 pounds easier then ever before thought I was doing good for once. However after extensive allergy pills and medications for the constant clearing of my throat, i found a lump in my throat. I asked my family doctor for an ultrasound which came back there was something there. One dr said it's thyroid another dr said it's my throat not my thyroid. Finally a surgeon agreed it was thyroid and did a biopsy. the biopsy came ba... Tue, 30 Aug 2011 10:24:31 EST New parathyroid problem! Hi all! I was diagnosed for papillary in 2004, TT, RAI, clear for 7 years. July 2010 I had high calcium levels and labs showed it's my parathyroids acting up. Supposed to be totally not related to my cancer but I am not believing that 100%! Just had my last baby and now have been going to Cleveland Clinic. Nuke scans scheduled for October (when I am done breastfeeding) and then surgery to removed the bad parathyroids! I am trying to lose the 20 lbs I have still from all the kids I've ha... Wed, 6 Jul 2011 09:57:59 EST Hello Fellow Thycan People! Hi everyone! <BR> <BR> My name is Rachel, and I'm new to Spark People. I'm 31 years old and an elementary school teacher in Minnesota. I was diagnosed with papillary thyroid cancer 5.5 years ago, and had a total thyroidectomy. Weight has been a struggle with me since then, but I'm not blaming my thyroid (or lack thereof) for it... I got really stressed and anxious, and turned to food to make myself feel better and give myself some comfort. I gained quite a bit of weight, and have since t... Wed, 22 Jun 2011 17:58:40 EST No weight loss I have been on a diet and I am keeping track of my food intake for 2 weeks and have not lost an ounce. I walk everyday and on Saturday my husband and I walk 7 miles!! I am at a loss on what to do with losing the weight. I so much water that I am always going to the bathroom. I have an appointment with the Endo next month and a blood test for the thyroid in two weeks. I know that she'll say that the dosage is a little high and she can't increase it and blah, blah, blah ... I have heard it... Wed, 22 Jun 2011 07:56:25 EST Where is everyone? There isn't much activity on this list lately. One or two messages. I see that we also have no activity from the team leader according to the front page. I do hope that means we are all doing well. <BR> <BR> Me, I'm doing pretty well, but seem to be gaining weight even while trying to diet. But the thyca seems to be gone thankfully. <BR> <BR> <em>30</em> Mon, 13 Jun 2011 12:40:32 EST 6 year thyroid cancer survivor Hi all, <BR> <BR> It's great to find a site with people that have experienced going through the effects of thyroid cancer. I have gained weight over the past 2 years. My doctor lowered the Synthroid dosage because the TSH was elevated to 112 mmg from 125 mmg. She said it's still slightly elevated to prevent the cancer from coming back. However, I have gained weight and have tried every diet there is - I have a library in my I also tried weight watchers and it worked but then... Fri, 10 Jun 2011 12:39:37 EST Anxiety Hello, everyone. <BR> I'd like some feedback. I'm 5-6 years post diagnosis with papillary. Had a full thyroidectomy and RAI. I'm having a lot of problems with anxiety and insomnia lately. My endo just up-ed my synthroid from 116 to 125. I felt fine on the 116 but my tsh wasn't as low (below one) as they want to keep it for suppression. <BR> <BR> Oddly enough, my levels have been lower before (so low i got a phone call from the doctor the next day upping my dosage) and I FELT fine. <BR> <BR... Wed, 18 May 2011 10:24:23 EST Dx: Papillary cancer Hi everyone! <BR> I am new to this team but not new to Spark People - I used the site to lose ~20lbs a few years back and have since gained some of it back - probably in part due to being way less active on SP. <BR> <BR> A month ago my doctor found that my thyroid was enlarged, and a u/s revealed a 2.5 cm nodule. On Tuesday, I had a FNA and they immediately identified it as papillary thyroid cancer. I am meeting with a surgeon next Tuesday to discuss the thyroidectomy, which will hopeful... Sat, 12 Mar 2011 13:57:39 EST Doing the Low Iodine Diet for the Third Time Well, this is my third time for this rodeo. Every time that I did the low iodine diet before I gaine weight. Why? Because I ate a lot of grains, oatmeal, whole wheat pasta, the insides of baked potatoes. Well this time is different. I have been seeing a dietician every month to help control my weight and really for an accountability partner, it is working out well, I like her. I have already made good progress, and I will not let this low iodine diet derail my success. This time I went out... Tue, 8 Mar 2011 22:29:42 EST New here Hi, <BR> My name is Jenny. I was diagnosed with Stage II Papillary Cancer in the fall of 2008. My thyroid was removed 10/31/2008 and I had Radioactive Iodine treatment 12/04/2008. During my recovery I was weak and fell off my back steps injuring my right knee and I had to have surgery on that. II also became diabetic after the surgery. I have not worked since the cancer surgery. I did manage to finish my B.A.S. Degree online while I was home...but I can't find work and its frustrating. I was ... Sat, 19 Feb 2011 09:00:37 EST gaining weight <BR> Hi, <BR> I have had a thyroidectomy in Aug. of 2009 because of a large tumor which was cancer. I also went thru the RAI. Since then I have been on a very large dose of thyroid replacement meds to keep my TSH low. It seems that I am no longer in control of my weight. I am constantly craving carbs and gaining weight. Has anyone else experienced this post surgery? <BR> <BR> <BR> Wed, 16 Feb 2011 08:59:20 EST new to forum Hi, <BR> I have had a thyroidectomy in Aug. of 2009 because of a large tumor which was cancer. I also went thru the RAI. Since then I have been on a very large dose of thyroid replacement meds to keep my TSH low. It seems that I am no longer in control of my weight. I am constantly craving carbs and gaining weight. Has anyone else experienced this post surgery? Tue, 15 Feb 2011 16:09:41 EST Newly diagnosed with papillary carcinoma..... Hi all! My name is Morgan and I have been diagnosed with papillary thyroid cancer. I have been using the ThyCa website and support group. I have 3 young only 31. I have a 10 week old, a 2.5 year old, and almost 4 year old. I'm busy. They found a goiter after I had a virus during my 3rd trimester. Did a biopsy...inconclusive results. Decided needed a total thyroidectomy...had that 7 weeks post-partum...1 week later...diagnosis. I am still breastfeeding and am about to start the w... Mon, 7 Feb 2011 23:10:24 EST Not Losing Weight This is my first time posting to site and am hoping for some insight from others. I am coming up on my one year anniversary on treatment for stage 2 thyroid cancer (total thyroidectomy and RAI). My endocrinologist is great and very thorough. I currently take 200 mcg of levothyroxine, my recent blood work showed that my levels were a bit low so my doc recommended that I take 1 extra pill per week. I've been working really hard to lose weight - tracking everything I eat, exercising (cardio ev... Wed, 2 Feb 2011 20:10:33 EST Sensitive subject. ..Please help. Hello Everyone, <BR> My name is Nicole. I don't think I've actually posted on this forum before, but I'm desperate for some helpful advice. Every since my thyroid was removed and I had RAI in 2008, I have had some problems with irregular bleeding. The last few months it has been the worst. Last month I had my period two weeks early, and I bled for 15 days. (Sometimes very heavy.) There was a week and a half break and then I got my period again and I'm on day 8, and bleeding very heavily. So I... Thu, 27 Jan 2011 01:50:19 EST New look for Spark pages! Hello my fellow survivors! Hope you all had a wonderful new year and are working on the goals. I know its late but I wanted to see what you all thought about the look of the team page. Do you like it? Is it easier to use or the same? Keep up the fantastic work! <BR> <BR> <em>306</em> Thu, 20 Jan 2011 00:29:03 EST Med adjustment I have been reading more and more about docs who adjust meds based on how the patient feels instead of relying on lab tests. I'm wondering if any of you have one of thse docs. I am due to have my levels checked on Monday and I believe that my meds need increased based on how I feel. I'm just not to sure my doc will be on board with that if my labs are normal. I am considering finding one of the docs in my area who uses the newer philosophy of med adjustment, but I'd love to hear from someone ... Sat, 15 Jan 2011 10:17:20 EST Ouch! Hi everyone! I'm am not new to SP but new to this team. I just had a thyroidectomy on Wednesday and I am at home recovering. Everything happened so quickly and now I am just trying to absorb everything that has happened in the past two months. It is very helpful to read others' experiences, gives me some idea of what to expect. One thing seems to be very individual, though, and that is weight loss. Some seem to drop weight after surgery, others seem to put it on. Is this simply a matter of ad... Sun, 12 Dec 2010 09:46:04 EST Hello HI all. My name is suzi and I am 3 weeks new to sparkpeople. I am so glad to find a group of people to share my struggles with. I am 38 years old. I was diagnosed with thyroid cancer 8 years ago. Thank goodness my Dr was amazing. He wasted no time in removing my thyroid and doing radiation. I would like to say that I am still cancer free but i am not sure. The thought of subjecting myself to the weeks leading up to a full body scan again scares me. Just the thought of going off my meds for t... Sun, 14 Nov 2010 14:30:12 EST cancer free!! body scan today showed only minimal uptake, and the lymph node that was so suspicious earlier this year is no longer lighting up. It really isn't sinking in yet, but I am relieved. Fri, 29 Oct 2010 21:32:08 EST Hi All! Had Thyroid Cancer in 2005 also..... Still battling the 30 lbs I put on. The MDs say "Don't worry - as long as you are healthy and cancer-free". I say "How would you like your wife/girlfriend/sister/mother to blow up with extra pounds. " They say "not to worry". And now - 2 weeks ago -- I discovered SparkPeople. Ojala! Mon, 25 Oct 2010 12:40:11 EST Hi My name is Chris and I'm new to SparkPeople and the Thyroid cancer team. I've read a lot of posts and understand. Its hard to explain what it feels like to live without a thyroid and worry about cancer coming back. <BR> <BR> I was diagnosed with Papillary Carcinoma in May of '08 - Surgery in June of '08 and high dose RAI following. Getting to the RAI was a horrible experience. Its hard to explain to others what its like to go hypo. In '09 I dreaded the thought of going thru the testing ... Mon, 25 Oct 2010 11:31:11 EST thyrogen injections tomorrow, body scan friday hi all. <BR> <BR> I've been pretty quiet lately. Been on the low iodine diet for the last 11 days (ugh!) and will continue it through the end of the week. I start thyrogen injections tomorrow (3rd time in a year) and have the body scan on Friday. Depending on what these tests show I'll probably end up redoing RAI treatment. <BR> <BR> Not so sure how I feel about that, because I'm worried that another dose of RAI will trigger thyroid eye disease. I've got lots of questions, but I am ju... Sun, 24 Oct 2010 21:24:20 EST Energy Okay, I am trying to get more weight off, and after seeing a specialist for 2 years now, I have got 26 of those gained with the thyroid cancer off. <BR> <BR> My problem is my energy is up then its down, up then down. I feel like a yo yo. I begin to wonder is it me? Is it my mind? Or is this still from having to take synthyroid and type 2 diabetic stuff and cholesterol, etc. I have been taking a b complex....but just want to know if any others are having the same type of energy spikes. ... Fri, 8 Oct 2010 19:04:41 EST What does that mean?! Hello everyone, <BR> I have not been on in awhile for many reasons. My family and I recently had to move....again, it is so frustrating! Also because I have switched endocrinologists and of course I am back to doing more lab work. As of late though I have become new endo has me doing labs for the next 4 months. His words to me were " I need more labs to establish a pattern. I have to have a pattern to determine if your meds are or aren't working OR if something else is going on"... Wed, 6 Oct 2010 00:28:45 EST Thyroid Cancer in 2005 Hi there, <BR> <BR> I was finally diagnosed with thyroid cancer after 2 years of being ill. Didn't know thyroid could cause carpal tunnel syndrome, had to have a hysterectomy, etc.etc., well, finally thyroid surgery, cancer, surgery to take it all out and radiation. My regular doctor tried to control my synthroid medication, but my body was telling me that was wrong and after the first year and I was taken off my meds for over 6 weeks to do a pet scan...I found a thyroid and diabetes speci... Sun, 3 Oct 2010 20:36:18 EST Hi all I'm a Papillacy CA survivor. Six months ago my endocrinologist switched me to Syndroid as it is better than the generic. Recently I went to a diet doctor who ran some tests and found that although my T4 levels are normal, my T3 are pretty low. I am struggling to lose weight and have zero energy by the end of the day. If any of this is resonating with the group please reply. For newbies newly diagnosed, hang in there and God bless. Thu, 23 Sep 2010 21:12:12 EST Iodine in Vitamin Water Zero? How can I find out if there is iodine in Vitamin Water Zero? I looked at the website and pulled up nutritional information and can't find anything about iodine. I've looked at the labels of my bottles and again, nothing about iodine. Is there anything else that could disguise iodine or some other word I should be looking for? Should I just assume it is okay since I can have coffee, tea, sodas on the low-iodine diet? I have one every afternoon and don't want to give it up..... unless I have to... Mon, 20 Sep 2010 15:25:17 EST ultrasound Tuesday some of you may remember a few months back that I went through a "is my cancer back or not" period involving several tests. The biopsy came back negative (only test that was negative for spread) and my doc is being overly cautious with this and is having me redo a neck ultrasound to see if there have been any changes in my lymph nodes. Most likely I'll repeat RAI but am going to try to postpone it until 12/9 because I will be done with school for the semester then and I really can't afford ... Sun, 29 Aug 2010 23:13:15 EST Health issues... This may not be the place to post about this, but I was wondering if anyone has had, or knows of anyone who has had issues with their thyroid gland? Specifically having had a mass which has had to be removed? <BR> I found out about 2 weeks ago that I have a mass on my thyroid. It's 5 centimeters in length. I will have surgery next Tuesday to have it removed and check it for cancer. My doctor doesn't seem to think it will be cancerous but will have a pathologist in surgery with me to have ... Sat, 14 Aug 2010 13:14:45 EST RAI and Low Iodine Diet I've been reading some older threads about peoples' experiences with LID and RAI, and just wondering if anyone else is doing this right now? <BR> <BR> My thyroidectomy surgery was May 17, and things have been really rough since then. I couldn't figure out why I kept feeling worse and worse instead of better following surgery, even WITH thyroid replacement hormone. When my TSH was tested, it was 54.72 - which explains a lot. But it wasn't adjusted, so that I'd be ready when I could be sche... Tue, 10 Aug 2010 12:33:23 EST Hi Everyone! My name is Kristen and I am 22 years old. When I was 14 I was diagnosed with thyroid cancer and it has always been hard to talk to people who haven't been through it. I was wondering if anyone else on here had the disease at a youngish age? It has been 8 and a half years since I was first diagnosed and there is a small reoccurance right now. The problem with me is that I am petrified of the biopsies. Any suggestions? Wed, 14 Jul 2010 20:19:21 EST Hello fellow Thycans My name is Staci and I was diagnosed with metastatic papillary carcinoma January 2010, had a TT 2/15/10 and RAI 4/22/10. I currently am taking 150mg of brand Synthroid and 10mcg of Cytomel. <BR> <BR> Since surgery I have gained almost 30 pounds. 3 weeks ago I joined a local gym and work with a trainer once a week. I found this website by accident looking for quick easy workout snacks - this has helped me so much to see if I am on track daily with the calorie guidlines that the trainer has... Thu, 1 Jul 2010 04:56:00 EST Summertime BBQ's, Cookouts, Picnics!! Hey team! <BR> <BR> How is everyone doing this first month of summer? One of the best things about this time of year is that fresh fruit and veggies are in abundance! I am going to make a trip to the local farmers market this weekend to get stocked up again. <BR> <BR> The downside of this time of year is staying motivated to make good food choices at all of the cookouts,BBQ's, and picnics. With Independence day coming up, there are many things to think about when it comes to food cho... Thu, 24 Jun 2010 10:40:01 EST Joining the team I'm hoping to lose weight despite the set back of thyroid cancer. Sun, 30 May 2010 16:29:23 EST Have U heard: Thyroid Cancer is the GOOD cancer? Hi everyone, <em>247</em> <BR> <BR> <BR> <BR> <BR> <em>282</em> **** Have you been told by people and/or the medical staff that "Thyroid Cancer" is the BEST CANCER kind of cancer you can get or is the GOOD cancer? <BR> <BR> <BR> <BR> <BR> <em>24</em> Some people MAY feel like NO kind of cancer is a good cancer. <BR> <BR> <em>24</em> Some people MAY wonder HOW is thyroid cancer the BEST cancer to get if one was going to get cancer? <BR> <BR> <em>24</em> Some people MAY ... Thu, 27 May 2010 15:02:29 EST Tumor Benign! No Cancer! 05/27/10 Thursday, 05/27/10 <BR> <BR> <BR> <em>244</em> <em>43</em> <em>43</em> Miracles DO Happen <em>43</em> <em>43</em> <em>244</em> <BR> <BR> <BR> <BR> <BR> <em>282</em> I saw my Surgeon today 05/27/10 IN person for a follow-up from the thyroid surgery that was believed to be cancereous. <BR> <BR> PRIOR to the surgical removal of HALF of my thyroid on 05/13/10, the doctor had me take a ultrasound which showed a Mass, then the doctor had me go to take a biopsy which the test result... Thu, 27 May 2010 14:12:14 EST biopsy I have my biopsy set up for Tuesday. I'm hoping they are able to pinpoint the lymph nodes that need to be removed because surgery is preferable to RAI. My endo is worried about side effects from another high dose of RAI so soon. keeping my fingers crossed. oh yeah, also hoping that I can get the surgery scheduled at a time when it will have the least impact on school. I just started back to college today to get my second degree, I'm doing the prerequisites to get into nursing school. Wed, 26 May 2010 20:32:56 EST A Sparkpeople Veteran but New to Thyroid Cancer Hi there! I've been sparking for 3 years - lost 90 pounds but gained some back over the winter due to a knee injury and a blue funk. <BR> <BR> Started back on track and the weight began to move in the right direction again, and then I was diagnosed with thyroid cancer mid-April. I had surgery last week - a total thyroidectomy and radical neck dissection (because it spread into my lymph nodes and neck tissue), and now I'm waiting for the next stage which I think is radiation. <BR> <BR> I... Mon, 24 May 2010 20:37:43 EST Hello Just wanted to say Hello to the group. For me it has been almost 5 years since I had my thyroid out. Since then I have been dealing with lots of weight issues and my doctor having trouble regulating my Synthroid. Has anyone been able to loose weight since their surgery? Mon, 24 May 2010 19:59:21 EST new and just found out my cancer is back Hi all, <BR> <BR> My name is Kerri and I'm from Atlanta, Ga. I just turned 31 and found out last week that my thyroid cancer is indeed back. My nodule was first discovered at the end of my preganancy nearly 2 years ago. I didn't follow up on it for about a year because I thought it was a weird preganancy symptom. Found out about the cancer in July 2009, had surgery to remove my thyroid and 3 lymph nodes (had spread) in October 2009. Underwent iodine radiation in November 2009. Had my f... Sat, 22 May 2010 15:34:29 EST 2 days after surgery, TRIED to go hiking! Lawrd! 05/16/10 Saturday = 2 days after surgery, tried to go HIKING!!!!!!!! <BR> <BR> <BR> Surgery date: 05/14/10 Thursday <BR> <BR> <BR> <BR> No joke, I literally TRIED to get back to my normal life as QUICKLY as possible. I remember the doctors nurse saying NO lifting or straining... but that I would WALK.... so NATURALLY because I was PAIN FREE, I naturally wanted to go hiking as soon as I could on my routine which is EVERY saturday, and this saturday was 2 days after surgery. <BR> <BR... Tue, 18 May 2010 07:21:41 EST 05/13/10 Thyroid Surgery fist size, I am home 5/14 Thyroid Surgery size of a fist,and I am back home now <BR> <BR> <BR> I will write more this weekwend hopefully. <BR> <BR> right now I am sleepy and drugged by prescriptions... going back to bed, hugssssssssssssss <BR> <BR> Surgeon upon my release stated that he took out a Massive growth from my neck area the SIZE OF HIS FIST!!!!!!!!!!!!!!!!!!!! and that this mass was hiding behind the collar bone and he dug deep and took it ALL out and it looks pretty good, results of the lab test will ... Fri, 14 May 2010 22:34:45 EST Just joined and saw this group! I wsa diagnosed with Thyroid Cancer last year (2009). Stage one one pap one side stage two follicular on the other. I had RAI in September. I have been gaining about 1 or 3 pounds a month Since have thyroid removed in June. So I need to loose about 37 pounds. 2 months ago I started exercising and stopped gaining but I am not loosing! Found this website and figured why not??? I have nothing to loose but weight right! <BR> I am currantly taking synthroid 175. Any tips on loosing would b... Tue, 4 May 2010 12:05:03 EST Sunsets Thyroid Cancer Journey thus far 05/01/10 05/01/10 <BR> <BR> <BR> <em>282</em> "MY" symptoms that something was wrong and the journey thus far with being diagnosed with Thyroid Cancer ..... <BR> <BR> <BR> I am writing this because I want a record of my journey thru Thyroid Cancer for myself. <BR> Because I want to be able to look back and see the journey from Start to Finish. <BR> <BR> <BR> <em>282</em> PERSISTANT and Long Term COUGHING with Mucus = Mind you, I have always been coughing because I was a smoker until 2 day... Sat, 1 May 2010 22:04:21 EST Upcoming THYCA conference in Dallas Tx THYCA is holding the 13th International Thyroid Cancer Survivors’ Conference October 15-17, 2010 <BR> <BR> For more info click on the link! I went several years ago and it was well worth it! I learned so much. <BR> <BR> <link> </link> Thu, 8 Apr 2010 22:41:19 EST Facebook Connect Hey guys- I might be behind the times (or maybe not) but I just discovered that you can connect your spark page with your facebook page! Just type in "Facebook" in the search bar at the top of your page and there will be instructions on how to do this. It was super easy and it connects all of your spark updates (of your choosing) with your FB status updates. Enjoy! Wed, 24 Mar 2010 08:39:44 EST Hello Sisters and Brothers! I was diagnosed last year at about this time, had very successful surgery and follow-up. Since that time I have gained 27 pounds and was heavy to begin. Prior to diagnosis, I'd lost 67 pounds with hard work, but I am finding this challenging now. I appreciate this group and thank you for letting me join! <BR> <BR> Onward to new and healthy lives! <BR> <BR> Ellie <em>220</em> Sat, 13 Mar 2010 14:06:29 EST confused Okay, <BR> So since I have been out of germany I have finally found a great endo dr. However I am so confused at all the tests that they have been running on me when everything seems to always come back still negitive. Anyway. Today i have another ultra sound on my thyroid area only to be told yet again that the only thing that is there is scar tissue. I am almost being interested in the tests at all. <BR> Since I have been here in Colorado, I am not sure why I am not losing this weight. I... Thu, 25 Feb 2010 20:02:30 EST The Spark is Spreading Spark people is definitely spreading in popularity and becoming more familiar to every day people. My doctor's office plays "Everwell" TV as many do- and I saw a spot on there about the sparkpeople site, book, and community. This is exciting! Mon, 22 Feb 2010 22:58:27 EST Lent Hey team. <BR> <BR> So I am am trying REALLY hard to get myself back on the road to eating healthy. In order to sort of help me along the way I gave up "excess calories" for lent - basically I am dieting via counting calories. I am using sparkpeople, and my diet analysis software to help calculate and track, but does anyone know of any good websites that have reliable calorie information for ... basically anything and everything? This is a new approach for me as I have never really done... Mon, 22 Feb 2010 22:55:22 EST 2nd Annual Thyroid Cancer Fundraiser Just wanted to let you all know that people are raising money SPECIFICALLY dedicated to thyroid cancer research! Over the weekend I attended the 2nd annual Strike out Thyroid Cancer Bowling fundraiser in Columbus Ohio. Just like last year, there was a really great turnout and all the money that was raised will be donated to the Ohio State University Medical Center - James Cancer Center (which is a comprehensive cancer center in the United States). I don't know what the totals were for this ... Mon, 22 Feb 2010 22:52:13 EST Question about symptoms Hi - <BR> I don't know if this is a cancer related question or a synthroid question. <BR> I had thyroid cancer 2 years ago. I just had my dosage changed because of symptoms I was having (like quite severe anxiety & some dizziness). <BR> I've been on the new dose for 1 month now & am feeling good. But, yesterday, I had feelings of depression just about all day. By, the evening they were gone & today I feel good again. <BR> I'd like to know if this is "normal" & if any of you have these kind... Mon, 22 Feb 2010 10:58:06 EST Hello! I was diagnosed with Thyroid Cancer in May 2007. That is also when I had my throidectomy. In July 2007, I had an RAI. Almost 3 years later, so far so good. My endo just put me on yearly body scans. Up until last month I was having them every 6 months, with the thyrogen shots...such a better way to go. Looking forward to getting to know people on the team. <BR> <BR> Have a great week! Sun, 21 Feb 2010 22:07:29 EST My Story of Thyroid Cancer My thyroid problem was discovered by accident in Oct. 2007. I was told I had hyperthyroidism - the funny thing is, I never had any symptoms. I had all the usual tests & the Oncologist gave me 3 choices - take pills for the rest of my life, radioactive iodine treatment or surgery. <BR> I didn't want to take pills forever. I sure didn't want radioactive treatment & surgery was at the bottom of my list. <BR> In the end, I was talked into having the surgery, which was the surest way of finding th... Thu, 11 Feb 2010 19:07:01 EST my thyca story im 54 years old , about 5 years ago i had my thyroid removed. they still play around with the dosage. my family doctor kept the dosage so low and wouldnt listen to me ,so i went to an endocrinoligist with better results but i still dont feel like i did before the surgery. gained lots of weight. before my RAIs i did the iodine diet thing, and the awful gowing off your syntrhoid thing. last year i had the thyrogen shots and no diet. it was great! now my 5 year body scan is coming up and i wonde... Mon, 1 Feb 2010 11:50:15 EST Motivational movie by Dr. Wayne Dyer Thursday Well if you are looking for a lift, this Thursday nationwide will be the cinema premier by the father of motivation, Dr. Wayne Dyer. If this interests you go to for a list of theaters in your area. Also for those that attend you receive a free download of one of his programs. <em>306</em> Tue, 26 Jan 2010 09:39:46 EST Jan2010 Cancer update Now that the holidays are over I wanted to finally give everyone an update regarding my post-op labs and what is going on with me and the C- word. <BR> <BR> When I saw my Endo in the middle of December the results were not exactly what I had hoped for. I still have a detectable thyroglobulin, even though it is slightly lower than it was before surgery. So basically I have metastatic cancer but the location is unknown. In March my Endo is going to do another round of tests and an Ultrasound t... Wed, 13 Jan 2010 22:46:06 EST New to Team Hello everyone! I was diagnosed in Apr 09 with papillary cancer, TT and RAI May/Jun 09. Still trying to get my meds right and as a result I have gained some weight. I am active duty military so fitness is a pretty big deal. Hopefully I can just learn how to eat healthier and do a better job of tracking my fitness goals. Sat, 9 Jan 2010 19:48:43 EST 6 weeks post surgery noticing some issues Hi all~ My name is Vicki and I live in Ohio, I'm new to this forum and want to thank you all for welcoming me! I had my thyroid surgery about 7 weeks ago and everything seemed to be going fine.. about a week ago I started noticing alot of tingling and numbness type feelings in my hands.. then my forearms, my face, chin, cheeks, lips, eye twitching, I go see my endo for the first time since my surgery next week, I know all my calcium levels were fine when immediately post surgery in the hospit... Thu, 7 Jan 2010 12:41:51 EST Just Starting Hello, I am rusandroc <BR> I weighed a healthy 145 lbs, 7 years ago. Then I develop Thyroid problems, which turned out to be Thyroid cancer. I went downhill from there. I have ballooned to 209!! I have not had the motivation to lose the weight. The few times I tried, I would lose a little, but not fast enough and would give up. I am hoping Sparkpeople will give me the motivation and support that I need! Thu, 7 Jan 2010 00:15:45 EST Hi there! I am somewhat new to SP and am thrilled to have a place to connect with others who have dealt with Thyroid Cancer. I had my thyroid removed in November 2007. The pathology report came back showing cancer. I was treated with RAI in February 2008. I have just gone through testing, and been on the Low-Iodine Diet because my doctor found a spot on a routine ultra-sound that she needed to make sure there are no remaining cancer cells. I am waiting for my results. We finally have my hormone l... Tue, 15 Dec 2009 14:42:48 EST Hey guys, sorry I've been missing in action :) Hey team- <BR> Sorry I haven't been on lately. I sort of fell off the wagon completely so to speak and haven't been tracking my diet or exercising since my surgery 2 months ago. Things are still unknown at the moment as far as cancer is concerned. My levels are all out of whack and I feel "off". Anyway didn't want you guys to think I just vanished. I am here- even though I am not posting very much :) Hope everyone else is doing well! Fri, 11 Dec 2009 18:17:17 EST New beginnings Hi everybody. Iam back after finishing my 1st radiation ablation treatment. I have gained about 20 Lbs in the process of TT + being hypo for over a month + RAI on the 24th of November. Iam feeling more like myself after 4 days of 100 mg of Synthyroid but not quite there yet. I have decided to get back to Spark people and tracking my diet etc, That is the only chance I have of losing the weight and keeping on track with my fitness goals, which are just to get to where I can walk normally ... Wed, 2 Dec 2009 09:02:46 EST New to the team Hi all! I am a survivor of thyroid cancer. I had my thyroid removed last December. I am still getting the meds regulated and such. I am looking forward to getting to know you. <BR> <BR> Trish Thu, 5 Nov 2009 23:34:31 EST Has anyone had more than one type of cancer? Last summer I had my thyroid removed due to cancer and then this summer my husband had open heart surgery to repair an aortic aneurysm. Then, last month I went for my routine mammo, had to go back for some more pics, then this morning had to go and have a biopsy due to some calcifications clustered in there. My question is this - has anyone had cancer in multiple places? And how do you feel when they state the statistics of it being cancer? Because how I feel is this - now that I've had cance... Tue, 27 Oct 2009 14:32:12 EST Sparkpeople Book Hey everyone- check your spark mail for information regarding the very first sparkpeople book. I believe if you pre-order the book before the end of this week you will get 1000 spark points, a gift certificate, and some other freebies. If anyone has already done this and can share with us your experience that would be wonderful! I am excited to see what this book has in store. Tue, 6 Oct 2009 15:12:04 EST New Hi everyone, <BR> <BR> I am new to this group and to sparks people. I was diagnosed with Papillary Thyroid Cancer in August 2008. I had a Total Thyroidectomy on October 31st 2008.Its beena tough year for me medically as I also developed insulin dependent diabetes after my surgery. I fell three times and I am having knee surgery from the first fall October 14th. <BR> <BR> I am here to lose weight and get healthy, but I was told I can't exercise my knee until after surgery. So I need to at le... Sun, 27 Sep 2009 10:23:32 EST Hello!!! My name is Neabby, i am 24 yrs old, i am from texas. I was diagnosed with papillary thyroid carcinoma last year and had TT in September 2008, thourgh out the process i gained over 40 lbs, now i cant seem to loose any, no matter what i try. Wed, 9 Sep 2009 14:55:17 EST Small Update Hey everyone. I am in the home stretch with this quarter and after this weekend microbiology will be history! I am taking Fall/Winter quarter off so I have a feeling I will be on here a little more. I can't remember if I posted about this already so I apologize if this is a repeat. I had an U/S back in June (I think) after an elevated TG came back in my labs. I have had some chronic lymphadenopathy in 2 nodes they have been watching for the last year, and after the labs came back and th... Fri, 21 Aug 2009 10:03:15 EST can anyone tell me i had a total throidectomy due to cancer does any one know can you have a recurrence of cancer and am i at a higher risk for other cancers my endo doesn't want to answer me Mon, 10 Aug 2009 17:29:01 EST Thyroid Cancer reoccurence Does anyone have any advice or info on Thyroid cancer coming back after surgery? I am scheduled for an ultrasound on Wed because my one year check up full body scan showed something lighting up in the back of my esophagus. My blood work was fine so they don't have an explanation. I'm just wondering if anyone has gone through this? Fri, 31 Jul 2009 20:11:26 EST Needing some spark Hello All, I am new to the group. I am 4 months post total thyroidectomy and 2-1/2 months past my RAI. I work 2 jobs and am seeking energy, time mangement, and proper diet motivation. I look forward to getting to know others with similar goals. Sun, 26 Jul 2009 16:19:54 EST New to the team Hi everyone! <BR> My name is Nicole, I'm 28 (as of tomorrow!)and I'm new to the thyroid cancer team, but not to sparkpeople. I lost about 60 pounds through sparkpeople a couple of years ago. Since my diagnosis and treatment for my thyroid cancer this past year, I've gained a little bit of the weight back. (I need to lose about 15 pounds.) <BR> <BR> I have a LID and body scan coming up in a couple of weeks, and then I'm going on vacation to the Dells with my family, so I plan on getting se... Thu, 2 Jul 2009 20:18:45 EST It's been a long time, but I'm back Hello to my SparkTeam family!! It has been a while since I have been on here...but I am back now for a spell. <BR> <BR> Latest update on my health situation. I was off of work for close to 8 weeks after my TT....when I finally managed to get in to see an Endocriologist, my TSH was 116!!!! Needless to say I was very ill. and then after all the work of following the LID and being without hormone replacement, my Endo said that in my case the RAI treatment would be of minimal benefit, since... Mon, 29 Jun 2009 22:38:09 EST does yr endo keep your tsh level very low for fear cancer returning, making it impossible to have normal energy level or lose weight? <BR> This is my first time contributing to any msg board or group. I am writing because I have read only one post where the hypothyroidism is due to thyroid cancer,which I suffered from almost 6 years ago. My entire e thyroid was also remove,given radiation thru a pill to blast it all out and I am clear of cancer since. <BR> <BR> I had always had a yo-yo weight problem since childhood, started strength train... Fri, 12 Jun 2009 17:25:00 EST Sodium intake Anybody have any suggestions to lower sodium intake? I don't use salt or anything but I was quite shocked at the amount of sodium I am taking in on a daily basis. (in the range of 200-300% the recommended amount!). I don't eat fast food and have been cooking at home more and more lately. Any suggestions would be appreciated :) Thanks! Thu, 4 Jun 2009 11:27:01 EST Hello Thyroid Cancer team! Hey gang - I have not had the time to get on SP as much as I would have liked to lately, due to my coursework and job. However I would like to say that the quarter is nearly over (finals are next week), and I learned quite a bit pertaining to weight loss, cancer, thyroid functioning, and tons of other stuff. (my classes this quarter were "nutrition" and "pathophysiology"). Anyway in the past I had some trouble with the SP tracking system and opted to do WW instead. HOWEVER... during the ... Tue, 2 Jun 2009 21:34:59 EST New to the team I had thyroid surgery (half removed), On may 19. I felt pretty good after the surgery but now a feel weak and my legs feel like jelly. I am still at home resting and getting a blood test on monday. How long does it take for the other half of the thyroid to take over? Sun, 31 May 2009 01:19:50 EST Hello All. New member here. Just wanted to say hello. I was diagnosed with THyroid cancer in 06 when I gained a huge amount of weight in a small amount of time. I had a goiter on my neck and as I chose to have it removed after the biopsy showed benign, found out after surgery. THe doctor had only taken 3/4 of it out at the time. Came back after surgery to tell me it was cancer and we would have to remove the remainder. I'm doing good except all this weight that I have found is making me unhappy. I am currently at 181 an... Sun, 24 May 2009 14:48:45 EST Hi.. Hi everyone...I have been on SP for about a month now and love it. I am cancer free for two years (after having my throid removed, and my $700 pill ) <BR> <em>40</em> and am really feeling good. I hope to give any help to anyone, as I know what it is like. Fri, 1 May 2009 23:23:26 EST Does anyone take propranolol Just wondering if anyone takes propranolo and what your experience has been. Tue, 28 Apr 2009 12:30:33 EST does anyone take antidepressants Recently, <BR> <BR> I have been suffering with depression. I was wondering if anyone else has this problem and if they are on meds for it. Tue, 28 Apr 2009 09:18:27 EST LID Pizza to die for!!!!!!!!!!!!! !!!!!!!!!!!!!!!! Crust: make any you love: <BR> <BR> Mine was 2 1/2 c flour 1/2 whole wheat <BR> 2 1/2 tsp yeast <BR> 1 TBS honey <BR> 2 1/2 TBS oil <BR> 1 tsp chopped garlic <BR> 1/2 tsponion powder (no salt) <BR> 1 c warm water <BR> 2 tsp Italian seasoning (no salt) <BR> <BR> disolve yeast in water <BR> add the rest ingredients mix by hand (with oil on your hands) <BR> <BR> set aside with a towel over it in a glass bowl (I forgot to mention this) let rise for 15 minutes in a warm place. <BR> <BR> punch ... Wed, 22 Apr 2009 18:19:37 EST Does anyone take armour thyroid I'm new to the board and I was wondering if anyone takes armour thyroid instead of synthroid? If so, how do you like it, how long have you been taking it, and how much do you take? Thanks.. Thu, 16 Apr 2009 19:59:22 EST Nutrition class Hey everyone. Winter quarter classes ended finally and I made it out with a 4.0 once again. I think this quarter will be difficult and interesting at the same time. I am taking pathophysiology (so I get to learn about things like cancer) and a Human Nutrition course. This is a particularly of interest because I have never taken a nutrition course before (though I have been through a whole slew of diet programs). I am interested to see the different reasons behind what motivates us to eat... Wed, 8 Apr 2009 16:20:11 EST Upcoming Regional THYCA workshops! Here's a copy of an email I received today: <BR> <BR> From: <BR> ThyCa: Thyroid Cancer Survivors' Association, Inc. <BR> <BR> Dear Friends, <BR> <BR> We're proud to announce that SIX FREE regional Thyroid Cancer <BR> Survivors' Workshops are scheduled around the United States for Spring <BR> 2009. <BR> <BR> Below are details about the workshops, speakers, and topics. You'll <BR> find further details on <BR> <BR> Please forward this message to everyo... Tue, 7 Apr 2009 00:39:07 EST Update Hello all, <BR> <BR> I am now three weeks out from my TT. I had my first follow-up appointment with the surgeon on Thursday the 16th. Everything looked good except for my calcium level....I've been having a bit of an issue with that, but not a major one. <BR> <BR> My first appointment with the Endo is April 8th. I have been active on the thyca messageboard, and some memebers there suggested I put myself of the LID before I see my Endo, then ask my PCP to do a TSH level before hand and ... Tue, 31 Mar 2009 05:27:35 EST I 131 diet Is anyone able to find a food list on iodine content? I had a list off the internet last time I had to do this diet, I have missplaced it! I have searched the net all over. The web site is conflicting. Page 12 says The following foods and ingredients are fine to eat. You do not need to limit the quantity, except <BR> as noted. <BR> • Fresh fruits and fruit juices, except rhubarb, maraschino cherries (if they contain Red Dye #3 or <BR> E127 in the UK), and fruit cocktail with marasch... Sat, 21 Mar 2009 22:53:14 EST After surgery questions Hi, I had my thyroidectomy on Wednesday and am feeling really good. However, I keep getting this tickle in my throat - I had it occassionally when I had my thyroid still intact and thought that it was the nodules causing the tickle which would make me cough to the point that my voice would get really hoarse. However, since the surgery, this tickle keeps occurring and I was wondering if anyone else has had experience this...or know what it is? thanks as always! Sun, 8 Mar 2009 18:29:44 EST I'M MOVING!!!! Just an fyi that we finally have recieved notice of where home will be next... we will be moving to Colorado springs in about 6-8 weeks! I am so excited! Fri, 6 Mar 2009 10:33:34 EST begin Synthroid withdraw 3/15/09 I begin my Synthroid withdraw 3/15/09. Check -up 4/26. Went off Cytomel, internist said it would awaken and definatly cause cancer to get active. If there are any cells. I had been on it for 2 1/2 months. Wish doc's would talk straight to their patients & each other. <BR> Going back to Houston. I get to stay till 5/19 with a dear friend to get warmer as I come back on my meds. I miss her dearly, she is an elderly lady I will be teaching her to quilt. If my brain isn't too fuzzy.LOL <BR> stay ... Fri, 6 Mar 2009 10:12:04 EST Surgery scheduled I had my first consultation with the surgeon yesterday, and my surgery is scheduled for this coming Tuesday at 2 pm. I am glad they were able to get me in so quickly. I am nervous but gald to be making this first step. Fri, 6 Mar 2009 07:49:16 EST Hello Everyone! I was diagnosed with Thyroid cancer in February 2006, had my thyroid removed in March of 2006. So far all of my tests for recurrance have been negative. I'm now up to checking in with my endocrinologist every 6 months. It was every three and then every four and now we are at six. He says that if all my tests come back normal again this year that I will only need to see him once a year. So heres hoping... Sun, 1 Mar 2009 18:20:37 EST Back on meds tomorrow - YAY!!! I am SO happy! Re-start meds tomorrow - 3 little words have made my day :) I had RAI this morning. My doc said my scan from last week looked very good, just a small bit of action in the thyroid bed where it was expected. I can go off diet tomorrow, although I honestly didn't have too tough of a time with that. DH gave me a bread machine for Valentine's Day. Normally NOT the kind of gift I'd want for that but this year - the greatest gift ever!! <BR> <BR> To encourage those who have yet to g... Tue, 24 Feb 2009 11:06:30 EST hair loss i knew to expect some hair loss from the RAI, I still thought it would be less - and would have stopped by now. What experiences have you all had with it? Mon, 16 Feb 2009 18:30:50 EST I131 and iodine foods Hi <BR> i am new to this so bear with me. <BR> I was just wondering if anyone knows what happens or if there is any information anywhere about this. <BR> I was in the hospital several years ago and received I131 and they gave me a meal with iodine in the food. Will this impact my health later? Sun, 15 Feb 2009 10:44:26 EST Newly diagnosed I was just diagnosed with thyroid cancer (papillary carcinoma) on Friday last week. I had had a fine needle biopsy on Friday the week before, and by Wednesday last week, my PCP's office called wanting me to come in. I knew then that it was bad news, though my the office makes it a policy of not giving test results over the phone. <BR> <BR> My PCP has told me not to "freak out" but I am very nervous. What really gets me is that when I went to the radiologist to have the biopsy done, he a... Mon, 9 Feb 2009 07:31:51 EST New kid on the block :-) Hi everyone, <BR> <BR> I am new here. I was diagnosed last week with thyroid cancer. I was so excited to find this message board. <BR> <BR> It's crazy the way everything was found out but here is what happened to me in a nutshell(sorry if it is longer than a nutshell!!)-in 2007 I had a physical done to make sure that I didn't have the issues that run in my family (hypothyroidism, diabetes and high cholesterol) and everything was normal. I went again in 2008 because I wasn't feeling well(b... Wed, 28 Jan 2009 15:54:03 EST Howdy! October 2008 was a life changing month. I was diagnosed with thyroid cancer and underwent two surgeries in 1.5 weeks. I am now on the positive side of my recovery and ready to "get healthy". As of January 09, I have 30 lbs to lose and I want to glow at my stepson's upcoming wedding -- I have seven months! Wed, 14 Jan 2009 20:20:26 EST Cytomel dosage? Just curious as to what dosage others have taken of this med in between surgery and RAI?? Thu, 8 Jan 2009 18:04:58 EST Happy New Year! Hello everyone. <BR> I thought since we are embarking on a brand new year we could post some ideas to get re-committed or stay committed to our weight loss journey. Any ideas on team challenges? I would like to get some going for us to give us an added boost of support. You can post your ideas or email me on my spark account. <BR> <BR> There are so many new members on the team now and for that I am overjoyed. When I started this team last year there were only a handful of us for so lon... Tue, 6 Jan 2009 12:40:09 EST Hi, I'm new Wanted to say hello. I've been with SP for quite a while and had reached my goal weight back in October. Right about then is when my Dr. found the nodule on my thyroid. Had the ultrasound, then the fna - which came back suspicious. My surgeon opted, and I agreed to just remove the whole thyroid - thanking God I did. Surgery was done 12/15, just got the path report yesterday. Stage 2 Papillary cancer, well encapsulated, lymph nodes were clear - cancer was on opposite side from the suspicious n... Wed, 31 Dec 2008 09:52:37 EST Cytomel & swelling anyone? I have been on only Synthroid since April 2003. about 1 month ago I went on Cytomel/synthroid combo. in hopes my leg swelling would go down.I have been HYPO since before the cancer diagnosis in 2003. I am not seeing any difference in swelling but I seem to be a bit warmer.Any help is so appreciated! :) <BR> Anyone out there have swelling and spongy legs? <BR> Have a great evening & day tomorrow, <BR> Sunshine Mon, 29 Dec 2008 03:07:26 EST hello. I'm new here Merry Christmas!!! <BR> I am new here on Spark. I 1st. had thyroid cancer in April of 2003. My journey has been long but I have also learned a lot! If you are new to your diagnosis hopefully my expierences will help you navigate through it all. It sure can be so over whelming. I need to lose about 40 pounds and I am hoping the computer will be a help instead of a hindrance. I am not good at computers that is putting it mildly! LOL Just figuring out how to post this was a task I almost gave up... Fri, 26 Dec 2008 12:40:35 EST looking for support Ok so I have decided to take on a challenge that may help me break this silly flat line. So yes I am one of those silly people that watch the biggest looser so that's where I got the idea. When everyone came back to try to get back onto the ranch the challenge was to step 1000 steps on an arobic stepper. So tonight I decided to try what I could do in the 15 minutes that my little one was playing in the tub. Believe it or not in that short amonut of time I stepped up 600 times and I am already... Thu, 18 Dec 2008 12:01:35 EST Hi Everyone! My name is Griz and I'm new to this site. I also just had surgery to get my thyroid removed 6 days ago. I had a nodule found on my thyroid about a month ago. A biopsy determined that it was highly suspicious for carcinoma. Las Monday, they went in in hopes to only remove half of my thyroid. But once there, the surgeon felt it was best to remove it all. So far, I feel pretty good, but I fear the unknown. I know I will have to take that Radioactive pill, and I will be on medication for the rest... Sun, 30 Nov 2008 13:25:13 EST bite size So I know this sounds a bit weird, but I read it in a magazine so I thought that I would try it. One really good way to control taking smaller bites of food at a time is to use a toddler size spoon or fork. Lucky for me I have a toddler in the house so it wasn't a big thing for me to have to go out and buy, I already have them in the house. <BR> It really does help you take smaller bites and enjoy what you are eating a littel longer. You should try it! Tue, 25 Nov 2008 05:19:42 EST Relapse? Three years ago I was diagnosed with papillary thyroid cancer. I was only 27. It was no surprise to me. I had been so tired and sick and I had lost 10 lbs in about a month. My BP was 160/100 and my pulse was 130. My normal was 100/70! I had been treated as "a crazy woman" for a long time, but of course the antidepressants didn't cure my cancer that one of my instructors (I was in nurse practitioner school at the time) finally found. It was so good just to get someone to listen to me an... Mon, 24 Nov 2008 12:07:03 EST weight watcher items Has anyone else tryed the new line of weight watchers food like the cheese sticks and the potioned size bags of cheese? I was so excited about them, but they sure don't do nice things to your body. Wed, 19 Nov 2008 11:20:21 EST sick So the day we left Cali, my little one flew home with the the tummy virus that my niece started while we were home. I thought since I didn't get it like everyone else in the family did that I would of been ok. WRONG. I have tried everything but ginger ale because it's a 20 minute drive to go and get some and I have been at this since 5 am this morning and it's now 1pm in the afternoon. Do you think it would be rude to ask my neighbors hubby to stop and pick some up on the way home since he li... Mon, 17 Nov 2008 06:57:52 EST Need Motivation? For those who may be just starting out, or need to get a little pick me up in the motivation department I decided to post the link to a section of sparkpeople that is a wonderful tool to get you going. <BR> <BR> If you have the time to explore the site in detail I highly recommend it. This particular link comes from the section "motivation" which can be found under the healthy lifestyle tab at the top of the page. Enjoy! <BR> <BR><BR>asp <BR> <B... Thu, 13 Nov 2008 08:55:43 EST I am back Hi everyone. I just thought that I would let you all know that I am back from vacation. Can't wait to start chatting again. Mon, 10 Nov 2008 04:24:15 EST Egg Whites Ok so I admit I was a little skeptical all these years about Egg whites. I have always had great cholesterol and I figured the yolk wasn't going to hurt me. Not that I particularly enjoyed the yolk I just never thought to take it out. Anyway I was at the store and decided on a whim to try a prepackaged carton of egg whites. I was pleasantly surprised when I ate them- I didn't miss the yolk at all and it was a much healthier way to eat eggs. These also work for the Low Iodine diet so if y... Thu, 6 Nov 2008 09:19:13 EST Thyrogen Things aren't going well with the logistics of my care lately and I am a bit frustrated. I have been waiting for a couple of weeks to get my thyrogen delivered to my endo's office. Apparently my speciality pharmacy dropped the ball(to say the least)in processing the drug order. As in they didn't. Even after my doctors office called them to see what the hold up was. Not that I am gung ho about having needles shoved in my behind but I just want to get it over with already and know once and... Mon, 27 Oct 2008 21:45:55 EST TSH levels I have been changing my dosages around for months trying to get on a stable dose of synthroid. Just had a TSH yesterday and it's still a bit lower than the normal range. Wouldn't you know I got my refill (of the wrong dosage again) just today. 3 month supply - oh well. I'm getting kind of discouraged with this. <BR> <BR> yes i take it on an empty stomach <BR> yes it's synthroid brand name <BR> Yes i avoid calcium with it <BR> <BR> Maybe my increased exercise is affecting this? I would think... Sat, 25 Oct 2008 02:23:55 EST Radioactive Iodine (I-131) Got comments or questions on Radioactive Iodine (RAI) treatment? leave 'em here :) Mon, 13 Oct 2008 11:23:45 EST Low Iodine Diet Questions or comments on Low Iodine Diet (LID) - leave 'em here :) Mon, 13 Oct 2008 11:22:33 EST any suggestions?? So as you all know I am getting ready to fly home to surprise my parents. However, I always pack junk to take on the plane with me. I have some raw almonds already but I am not sure what else to get so that I am not eating nothing but junk food on the way home. Please help me with this!!!! Wed, 8 Oct 2008 06:54:00 EST Help - I can't lose weight Hi, <BR> <BR> I am having a very hard time losing weight. If I eat like a Weight Watchers diet I don't lose weight I can. I just don't know if it is from being suppressed having no thyroid or what. Is anyone having his problem. Would appreciate help in this area. Any suggestions would be appreciated. <BR> <BR> Lainie Mon, 6 Oct 2008 08:43:21 EST It's already Friday Ok so I mentioned before that I was going to pretty much start playing a mind game with myself and start increasing my workouts once a week. This week I started the changes on Monday. Monday seemed like an intense workout and today it just felt brisk so I can't wait to increase it again on Sunday. This week I am really starting to notice the differences in the way my body looks. I am not sure that my numbers are going to be that much lower weight wise this week but I am hoping to see more inc... Fri, 3 Oct 2008 15:18:51 EST Want to talk thyca specific stuff? Ok gang. I am at it again creating another forum that deals with thyroid cancer specifically. Anything goes here. Share your cancer stories - good and bad. This is a discussion forum that is really a medium of support. We are cancer beating ROCKSTARS! If you need support - ask :) If you can lend support - be a shoulder. This is really your forum so post away! <BR> <BR> Spread the spark :) <BR> <BR> Shelly (Belle) Wed, 24 Sep 2008 22:19:45 EST New formum for weight issues I thought I would step it up a notch now that we have a few more people and add the other 2 forums. Here is a place we can rant and rave or sing praises regarding weight loss with the special circumstance of being "thycans" :) Enjoy everyone and post, post, post! <BR> Shelly (Belle) Wed, 24 Sep 2008 22:14:58 EST Chime in Team Thyroid Cancer! Just wondering how everyone is doing. I didn't have power for half of last week and the other half I spent trying to get my house back in order. I am starting classes again tomorrow and spent the better part of today getting all of my things together for that. Anyway I have to make arrangements with my specialty pharmacy for my thyrogen and then once it gets shipped to my endo she will coordinate everything with the hospital. WOOHOO. Anyway I attended my first local Thyca meeting and it ... Tue, 23 Sep 2008 20:45:32 EST CANCER FREE 2 years in a row :-) Just wanted to let you lovely ladies know that I got my results back today and I am still officially cancer free. My tsh levels were higher than they would have liked but they want me to stick with 300 mcg's for now and get re-checked in 3 months. <BR> Anyway - yipee :-) Thanks for all your thoughts and prayers! Thu, 18 Sep 2008 21:44:19 EST Wish me luck! Well ladies, I went for my bloodwork last week for my 2 year post-cancer check up. I'm supposed to get the results back day after tomorrow (Thursday). Hopefully all is still well and I will remain cancer-free! <BR> Thanks - hope all is well with everyone! <BR> <BR> <em>247</em> Tue, 16 Sep 2008 18:53:11 EST a quick hello Hello everyone. I will make this quick. I have been without power for the last 3 days due to a windstorm that hit Ohio (hurricane Ike residual) Anyway just wanted to let you know in case you were wondering why I wasn't on the site for a while. I am at my moms borrowing her computer so I thought Iwould say a quick hello. Hoping you are all well. Finals went well. 4.0 this quarter! WOOHOO! <BR> <BR> Take care <BR> <BR> Tue, 16 Sep 2008 15:39:32 EST Please Help! I was doing so good and than I am not really sure what happened but I have been so discouraged with the whole process. I think I have discovered what it is that I need. I have a little gym set up in my basement but that's all I do is the same things everyday. Anyway. I think that I have found a sitter for my little one so that I can actually start going to the gym. I think that this will help a lot. I think that I am starting to feel a little stressed about life right now with my hubby being ... Wed, 10 Sep 2008 01:46:00 EST newbie on the block! My name is Mary Ellen. I had a total thyroidectmy june 18 and have since had 150 millicuries of rai on august 16th. dx was papillary cancer w one node positive and ete extenstion. At 61 years young that puts me at a stage 3. I was on the spark diet a year or so ago and did lose weight. Now though I don't seem to be able to get focused again. Any thoughts on how to do that???? Seems I can't focus on anything except maybe the couch or my bed lol..... Mon, 8 Sep 2008 18:12:06 EST just fyi I don't know why it's taken me so long to do this but my name is Stephanie. You are all more than welcome to call me by name!! <BR> <BR> "All of our dreams can come true, if we have the courage to pursue them." <BR> Walt Disney <BR> <BR> Mon, 8 Sep 2008 02:18:23 EST Newbie here Hi - I have no clue what I'm doing. I came across spark people by doing an internet search, created a page and now I'm joining this group! <BR> I was diagnosed with thyroid cancer 2 years ago. Actually, in less than a month, I go in for my 2 year appointment to see how things are going. <BR> I have a lot of weight to lose - around 65 pounds. I'm just getting started this week. <BR> I'm a Mom of 2. I have a 15 year old daughter and a 12 year old son. I've been happily married for over 16 ... Sun, 7 Sep 2008 18:53:31 EST Still no news So I still haven't heard from my endo about the biopsy results. It has been two weeks (yesterday) and I am getting a little anxious to say the least. I am pretty crazed as finals are coming next week and this is only adding to my stress level. Just needed to vent :) Hopefully I will get my results tomorrow. I did call the office and the results are back but I guess my doctor hasn't had the chance to review them since she got back from vacation yet. I know I am not her only patient, nor am... Thu, 4 Sep 2008 20:22:53 EST HI! New here! HI everyone! My name is Morgan and I was diagnosed with follicular thyca just this past Feb. I had two surgeries and radioactive iodine. I am having a hard time getting my body back to normal and my thyroid levels have been all over the place! I look forward to the support of this group! <BR> <BR> I am 27 years old and have two babies at home :0) Mon, 1 Sep 2008 23:41:13 EST Proud of myself!! I know that this has nothing to do with thyroid business.. but I thought that since this is really the lonly message group that talks back that I would share that I have met a mile stone. I have officially gone over my 20 pound loss!!! I am so excited that I am half way there! Sun, 31 Aug 2008 11:48:35 EST Want something fun to eat? I know this hoas nothing to do with thyroid cancer but I thought that I would share with you something that I dicovered was actually very good. <BR> Spaghetti squash. I have never eaten before yeterday and it was fantastic! Fri, 29 Aug 2008 01:28:32 EST Thyroid Cancer Survivor I just wanted to join the team and introduce myself. My name is Diane and my main problem is I gained 75 pounds 5 years ago and am stuck at 40 or so more lbs to go. I am frustrated due to some physical spine problems that limit exercise and do feel that I am very frustrated that I have not figured out how to use this site. Are members allowed to give out phone numbers to talk live? If so 408-274-7302. Any help would be greatly appreciated. My endo. Doc. said I must use this site and must s... Thu, 28 Aug 2008 17:03:05 EST good news Ok so this isn't really thyca related but I was so excited I thought I would share. I got my official acceptance letter for nursing school yesterday in the mail and I get to start my classes in 5 weeks! Sun, 24 Aug 2008 12:57:43 EST Biopsy Yesterday I went in for my biopsy and a recheck of thyroglublin yesterday. My endo biopsied 2 lymph nodes for metastasis and I should know something next week or so. It wasn't as bad as I had anticipated although getting yourself worked up is pretty easy thing to do when people are jabbing sharp pointy things in your neck! (4 pokes this time). Anyway. Feeling sore. Just thought I would update. Thu, 21 Aug 2008 21:30:00 EST Meds Hello again all- <BR> I wanted to let everyone know that I was taken off my cydemil today and was put back on just sythroid. However, I was previously on .75mg total and he wants to see what happens with .5mg.. <BR> I am going to journal my feeling and my moods everyday to see what happens/.. maybe it's what I need to loose weight. Thu, 14 Aug 2008 08:25:49 EST Thyroid Cancer Awareness Hey everyone <BR> I just thought I would put this out there- <BR> September is Thyroid Cancer Awareness Month. You can get information/ flyers relating to this from Thyca's website. <em>213</em> Sun, 10 Aug 2008 10:00:24 EST New HI, <BR> I am a survivor of thyroid cancer but seem to still be dealing wiht a lot of issues with the whole thing so what a better place to get support with it all. <BR> Can anyone tell me if there are other options for the life long meds? <BR> Sat, 9 Aug 2008 11:35:17 EST Dry Eyes oops, duplicate post, sorry <BR> <BR> <BR> Wed, 6 Aug 2008 14:46:50 EST Dry Eyes Do any of you have problems with dry eyes? I have had this issue for about 15 years but it got worse after my I-131 TEST (not from the treatment). I suppose it could be a coincidence. <BR> <BR> I visited my eye doc today and he put plugs in my tear ducts! It was painless and we shall see if it helps (i hope, i hope) <BR> <BR> I know I-131 can wreck havoc with salivary glands but I've never heard about tear glands being affected. Eye doc said it doesn't affect tear glands. <BR> <BR> I hope... Wed, 6 Aug 2008 14:40:35 EST Endo appt today So I wrote all of you last week about the impact of my weight loss and my medication. My TSH was only .02 but he said if I am feeling good ( which I am feeling better than I have in a long time) we would just lower the dose by half pill on Sunday to see how that works. <BR> I am so excited!!! I thought he was going to tell me we would have to go off the meds to do the scan again ( I had hear that before) but he said since my cancer was so localized he was going to wait until February to s... Tue, 5 Aug 2008 13:30:50 EST Shopping for awareness items I found a couple of really neat websites to buy awareness jewelry and apparel if anyone is interested in that sort of thing. <BR> sells apparel and they have some really diverse designs (and a lot to choose from). For jewelry and wristbands you might want to check out and I have purchased items from all three places. If anyone knows of any other places to shop please post! Sun, 3 Aug 2008 21:35:42 EST Free Online Resources about Thyroid Cancer <link> </link> <BR> <BR> Thyca is a national organization for people with thyroid cancer and their loved ones. There is a lot of information available at this website, including a Low Iodine Cookbook for pre-radiation diagnostic testing and treatment. <BR> <BR> From one of the webpages titled, "new patient packet": <BR> <BR> "Free Packet for New Patients <BR> <BR> We will be happy to mail you a free packet of educational materials. <BR> <BR> To request your free packet, p... Thu, 31 Jul 2008 12:27:35 EST