SparkPeople THE SPOONIES Team Messageboard Fibromyalgia is an often painful and lonely misunderstood experience;lets support one another in our journey to health SparkPeople THE SPOONIES Team Messageboard Share a smile or a hug <em>334</em> <em>247</em> Fri, 23 Feb 2018 17:22:58 EST Emoticon your exercise <em>311</em> Fri, 23 Feb 2018 17:21:36 EST Emoticon your day <em>334</em> Fri, 23 Feb 2018 17:13:52 EST FUN AND GAMES...DO YOU OWN Do you own a pet? yes, Two kittens <BR> <BR> Do you own a car? Fri, 16 Feb 2018 14:25:28 EST Dealing with a bad flare Even a month ago, if i ended up in this much pain, i would just stay in bed and do nothing trying to wish it away, relying only on the pain meds and heating pad. I am still using those (well the meds i can, i currently have an ulcer) but since this started a few days ago, yes i am resting more with a heating pad, but i am doing my home PT and doing at least 10 minutes of cardio and at least some cleaning. yesterday even made banana bread while in a flare! AND cooked a homemade meal instead of... Sun, 28 Jan 2018 14:48:43 EST DAILY CHECK IN How is everyone doing?I have been in a tremendous amount all over fibro pain lately. i was having side effects from the Gabapetin I was taking and had to go off of the meds. Went to extra-strength Tyelenol which is not doing anything for my pain. So my question is this...what are you doing for the pain and what are some of the things that you do that seem to work for you. Let's start a dialogue. Fri, 19 Jan 2018 20:05:47 EST New to the group but not to fibro or chronic pain! They say fibro is hereditary and i believe it! My mom has had it since a teenager and mine showed up when i was 18 after a car accident that also ruined my back. Between the two and depression i am disabled and hate it. I am going back to physical torture (therapy) tomorrow its been a few months and it hurts but it helps in the long run, they got me off my cane i was on for 4 years! Mon, 8 Jan 2018 16:32:39 EST Balancing with Fibromyalgia Finding Balance: Pushing Yourself, but Not Too Hard <BR> <BR> It’s that all-important word: balance. Here are four ways to make sure you push yourself — but not too hard. <BR> <BR> 1. Step Back and Re-Evaluate <BR> <BR> There’s no doubt about it, when you are diagnosed with fibromyalgia your life is going to change. It’s important to step back and think about what’s important to you. You can’t do it all, but that doesn’t mean you should do nothing. <BR> <BR> Think about what you want ... Sun, 22 Oct 2017 12:46:18 EST This or that summer or spring Sun, 22 Oct 2017 12:34:29 EST Stress Relief Stress relief <BR> <BR> Do you know anyone who isn't at times stressed out these days? The pace of modern life makes stress management a necessary skill for everyone. Many people juggle multiple responsibilities, work, home life, caregiving and relationships. Learning to identify problems and implement solutions is the key to successful stress reduction. <BR> <BR> The first step in successful stress relief is deciding to make stress management an ongoing goal, and to monitor your stress l... Sun, 22 Oct 2017 12:30:44 EST Beating Fibro Fog 4 steps to beating fibro fog <BR> <BR> Fibro fog" is the name commonly given to the cognitive problems that can go along with fibromyalgia syndrome and chronic fatigue syndrome. These problems with concentration and memory can lead to confusion, losing your train of thought, or forgetting or mixing up words or details. <BR> <BR> You can take steps to manage fibro fog. Try some of the following tips: <BR> <BR> Write it down. Making a note helps you get a thought more firmly in your mind. Yo... Sun, 22 Oct 2017 09:27:57 EST Diet and Fibromyalgia Many people with fibromyalgia also try lifestyle changes—such as diet and exercise.There is no such thing as a “fibromyalgia diet.” No food, or combination of foods, has been proven to relieve symptoms. Yet some people do claim that they feel better when they eat—or avoid—certain types of foods. You may need to keep a food diary to find out which foods seem to trigger or improve your symptoms.Eating a balanced diet is a good idea for anyone—whether or not you have fibromyalgia. That diet shou... Sun, 22 Oct 2017 09:16:37 EST How to Stay Positive In some situations it is quite hard to stay positive but you can definitely learn how to keep your positivity. <BR> <BR> There are some actions you can take to be able to remain positive no matter what situation you are facing. <BR> <BR> Firstly it is important to understand that when you stay positive all the time, you always keep your vibration high. <BR> <BR> This means that you will attract only positive events and people into your life. <BR> <BR> Therefore as soon as you notice t... Sun, 22 Oct 2017 09:14:36 EST Today i felt Successful ________ Standing in the inspiring vision of my future, I boldly take every step - large and small - with courage and intent.because i know that everything will be ok ....Walked to church and got fresh air and sunshine <BR> Sun, 22 Oct 2017 09:13:07 EST Share your Victories and Helpful tips We are warriors and overcomers and should be celebrating our victories together for it is not an easy battle but we do it which makes us special ..Feel free to share your victories and any helpful hints you may want to add Sun, 22 Oct 2017 09:06:49 EST Introduce yourself to the team Form to copy and paste : <BR> <BR> Sparkname: NJFAMILYOF OF 5 <BR> <BR> First name: Guy <BR> <BR> State you live in: New Jersey <BR> <BR> Hobbies: sports <BR> <BR> What do you do for a living: contractor services <BR> <BR> Pets: love dogs <BR> <BR> Married for: forever to the most wonderful woman in the world <BR> <BR> Children: 3 , <BR> <BR> Favorite exercise: walking <BR> <BR> Favorite food: italiano <BR> <BR> Favorite place: ocean with my family <BR> <BR> Favorite Scriptu... Sun, 22 Oct 2017 09:02:57 EST Battling the Emotional Side of Fibromyalgia Everyone talks about the physical side of fibromyalgia, but what a lot of non-sufferers and non-believers do not understand is how much we suffer emotionally as well. Going forward, I will refer to these people as the “nons.” <BR> <BR> Try having to live with a chronic illness that no one really understands and that some don’t even believe exist. Try living with the fact that even your own spouse, family, and friends are nons and don’t believe in you, or they feel you are a liar or hypochond... Sat, 21 Oct 2017 23:24:55 EST Spoonful of Strength You Find Your Inner Strength <BR> <BR> Chronic illness makes you realize just how strong you are. You will have moments when you will think you cannot take any more, when you feel that you just cannot go on. You will consider giving up and not fighting anymore. But the next morning you wake up and you start the fight all over again. You will find an inner strength you never knew you had. <BR> <BR> I found a quote several years ago that I love and that has been a true inspiration: “You never... Sat, 21 Oct 2017 22:33:14 EST Daily Dose of Positivity "Have a positive attitude." How many times have we heard that one? While our emotions can not cause fibromyalgia or chronic fatigue syndrome, they no doubt affect our symptoms. But how can we maintain good thoughts when our bodies feel so lousy? This challenge, of course, does not pertain exclusively to chronic illness, but to any time when things do not go as we wish. But in the case of ongoing illness, seeing the positive presents a continuous struggle. <BR> <BR> Yet our moods are not perf... Sat, 21 Oct 2017 22:16:59 EST Humor and Laughter For Fibromyalgia Most people feel better after a good laugh, and it has long been documented that sometimes laughter is the best medicine. This is because moods, emotions, and a person's belief system have a fundamental impact on the body's immune and healing mechanisms. Your body and your health respond positively to positive emotions (joy, laughter, humor love, hope, optimism, caring, and intimacy) and negatively to negative emotions (hate, shame, hopelessness, pessimism, indifference, anxiety, depression a... Sat, 21 Oct 2017 21:46:08 EST Hello! Hello everyone! I'm Saadia and while I'm not new to Sparkpeople I am newly diagnosed with fibro and chronic fatigue syndrome for the past year. I've found that there's a lot that I used to be able to do that I can't and while that can be frustrating, I'm learning and looking for new ways to stay active and not give up. <BR> <BR> I'm very happy to find this group on here and thankful. I hope this message finds everyone well! Thu, 23 Mar 2017 00:16:39 EST exercise I have a fibromyalgia it's really hard to work out I have found a 20 minute aerobic workout on Comcast I don't have the money to pay for swimming right now but does anybody else have any other workout ideas? The pain I get from my fibromyalgia it's just ridiculous if I go over 20 minutes but I'm willing to try... Wed, 8 Feb 2017 19:02:33 EST 9 Medications That Can Lead to Chronic Fatigue Do you feel weak or tired — sometimes to the point of exhaustion — much of the time? If so, you’re not alone. Chronic fatigue accounts for more than 10 million visits to family doctors every year. <BR> <BR> Chronic fatigue has many causes, including illnesses such as anemia and multiple sclerosis as well as depression and other psychiatric disorders. But it’s also often a side effect of drugs previously prescribed for other conditions. (I’m not talking here of the complicated disorder known ... Sun, 7 Aug 2016 10:26:21 EST Fibromyalgia and Fatigue Coping with the symptoms of fibromyalgia is difficult at best. And managing the chronic fatigue of fibromyalgia takes great effort and planning. You may feel like others don't believe you when you are forced to cancel family gatherings or luncheons with friends because of the chronic fatigue with fibromyalgia. That's why planning your schedule without making too many commitments may be helpful, especially when fibromyalgia symptoms flare. <BR> <BR> Most fibromyalgia experts recommend talking... Sat, 23 Jul 2016 10:43:22 EST Don't Postpond - Just Do It Now Hi Friends!!! <BR> <BR> Today is only real, so don't postpond, just do it now. Nothing is impossible in this world. Don't think too much about anything, just do it what you scare to do it. <BR> <BR> We have only one life, live to reach success. Everyday will not be the same day, some may be your day some may not be. Don't get upset for failure. As we all know "Failure is the stepping stone to success". Try until you get success. <BR> <BR> Here is a great collections of Just do it quotes f... Fri, 15 Jul 2016 05:29:24 EST Pushing Yourself With Fibromyalgia Finding Balance: Pushing Yourself, but Not Too Hard <BR> <BR> It’s that all-important word: balance. Here are four ways to make sure you push yourself — but not too hard. <BR> <BR> 1. Step Back and Re-Evaluate <BR> <BR> There’s no doubt about it, when you are diagnosed with fibromyalgia your life is going to change. It’s important to step back and think about what’s important to you. You can’t do it all, but that doesn’t mean you should do nothing. <BR> <BR> Think about what you want to s... Sat, 9 Jul 2016 11:06:12 EST Q&A Time This is a place to ask questions about anything pertaining to your health..and especially Fibro..sometimes we just want to know is it fibro or not..or if anyone has info about what they go through....if I do not know the answer someone else may or I will research it and get back to you..So..ask can also be a place to just share your knowledge of what you have learned. Fri, 8 Jul 2016 18:34:57 EST The Link Between Fibromyalgia and Drinking Water When you were little, you will probably have been told how important it is to drink lots of water, especially if you had been running around. As you grew older, you may have kicked the drinking water habit, in favor of sodas, coffees and alcohol. However, if you've been diagnosed with fibromyalgia and drinking water is no longer part of your daily routine, then you may be missing out on the healing benefits water can bring. <BR> <BR> To understand why you should drink water, you need to und... Sun, 26 Jun 2016 10:19:18 EST How To Stay Positive In some situations it is quite hard to stay positive but you can definitely learn how to keep your positivity. <BR> <BR> There are some actions you can take to be able to remain positive no matter what situation you are facing. <BR> <BR> Firstly it is important to understand that when you stay positive all the time, you always keep your vibration high. <BR> <BR> This means that you will attract only positive events and people into your life. <BR> <BR> Therefore as soon as you notice th... Tue, 21 Jun 2016 20:29:44 EST Get an Energy Boost-and More--by Drinking Water Military spouses, especially those maintaining the homefront during a deployment, have a tendency to put everyone and everything ahead of themselves. Energy depletion and increased fatigue are all-too-common side effects. Drinking water is a simple and inexpensive remedy that'll increase energy, fight fatigue, and help keep your body operating at prime efficiency. <BR> <BR> <BR> <BR> Symptoms of Dehydration <BR> <BR> According to the University of Florida, 75% of Americans are dehydrated... Sat, 18 Jun 2016 11:38:34 EST A NO JUDGEMENT ZONE...A PLACE TO VENT A safe place to vent or just be how we are feeling..feel free to share Tue, 31 May 2016 17:57:11 EST How to Eat Right to Reduce Stress During times of stress, we often turn to traditional "comfort" foods such as macaroni and cheese, pizza, and ice cream. Ironically, these high-fat foods are usually the worst possible choices because they can make us feel lethargic and less able to deal with stress. Not only that, but stress can drive up our blood pressure and raise serum cholesterol levels, wreaking havoc on our arteries and increasing our risk of heart attack. <BR> <BR> The best solution? Low-fat, high-fiber, carbohydrate-... Fri, 27 May 2016 06:31:28 EST FIBROMYALGIA AND EXERCISE The following is taken from a page regarding fibromyalgia from the University of Maryland Medical Center. <BR> <BR> EXERCISE. It may seem odd to suggest exercising when your muscles are sore and you are in pain, but a number of studies show that regular, low-intensity exercise is one of the most effective treatments for fibromyalgia. Although you may experience a slight increase in pain and soreness when you start, as you continue you will help lessen muscle tension and stiffness, improve s... Tue, 17 May 2016 17:22:12 EST HOW ARE YOU FEELING <em>30</em> today I am feeling pretty good Tue, 17 May 2016 13:06:19 EST Hello! Hi Everyone! I'm Elaine. I live in Denver, I'm 53, and I've had FM for about 12 years. <BR> <BR> I have had an account on SP for a long time but I just began to use it again today. I was using My Fitness Pal but their food database has gotten so screwed up that just decided I had to make a change. <BR> <BR> I joined this team because I love the gentle challenges. I am constantly trying to get myself to "just do 10 minutes of exercise" so I figured I would fit right in! <BR> <BR> I'm ve... Mon, 9 May 2016 18:54:12 EST JOYFUL/THANKFUL So thankful the pain was not as severe today Sat, 30 Apr 2016 18:59:51 EST Maintaining a Positive Attitude With Fibro "Have a positive attitude." How many times have we heard that one? While our emotions can not cause fibromyalgia or chronic fatigue syndrome, they no doubt affect our symptoms. But how can we maintain good thoughts when our bodies feel so lousy? This challenge, of course, does not pertain exclusively to chronic illness, but to any time when things do not go as we wish. But in the case of ongoing illness, seeing the positive presents a continuous struggle. <BR> <BR> Yet our moods are not perf... Mon, 25 Apr 2016 13:03:53 EST JUST FOR TODAY I can eat healthy Fri, 22 Apr 2016 13:57:18 EST HAVE YOU HUDDLED WITH TOUR TEAM TODAY <em>224</em> Fri, 22 Apr 2016 13:54:46 EST EMOTICON YOUR MOVEMENT <em>311</em> Fri, 22 Apr 2016 13:48:30 EST Hello I am new here, just recently found out I have fibro needing suggestions on losing weight as far as exercising goes Thu, 21 Apr 2016 15:23:39 EST Linking Fibromyalgia to Depression and Anxiety Chronic, widespread muscular pain and tenderness, sleep problems and fatigue, morning stiffness and headaches, concentration and digestive irregularities: All of these symptoms can make daily functioning very difficult for those with fibromyalgia. But equally challenging are the depression and anxiety that often accompany the disorder. <BR> <BR> Over a lifetime, as many as 62 percent of fibromyalgia patients may experience symptoms of major depressive disorder, and 56 percent may experience ... Sat, 2 Apr 2016 11:13:29 EST 2 words change one Easter Sunday Sun, 27 Mar 2016 18:11:10 EST Six Ways to Love Yourself Through Fibromyalgia Let me ask you this… <BR> <BR> If you brought a puppy home from the shelter that has been traumatized and brutalized by his previous owner – so much so he cowers and whimpers at the slightest sound or movement – would you berate, ignore, or neglect him? No, of course you wouldn’t! I am guessing you would give him space, talk sweetly, be patient, and protect him. You would do everything you could to make sure that he felt safe and sound. You’d be eager to help ensure his little personality an... Sun, 27 Mar 2016 12:02:43 EST Fibro Fog Clouds Thinking and How to Break Thru Fibromyalgia patients often experience a loss of mental clarity and problems with memory. Dubbed "fibro fog," this side effect of the syndrome can have a significant impact on patients' lives. <BR> <BR> Carolyn Nuth, 65, holds down a demanding job as manager of a patient information center for the Baltimore-based American Pain Foundation. She loves her job because as a fibromyalgia sufferer, she knows what chronic pain feels like and is able to relate to those who get in touch. But while sh... Sun, 27 Mar 2016 11:59:25 EST Living with Fibromyalgia: What is Next? When asked, most individuals with chronic pain express their desire to feel “normal” and “to not feel stigmatized by their pain.” <BR> By: Lynne Kennedy Matallana, Founder &amp; Past President the NFA <BR> <BR> Then:Yes, I am a chronic pain patient, yet more importantly, I am a human being. And though my fibromyalgia (FM) forces me on a daily basis to deal with a constellation of chronic symptoms that causes both physical and mental anguish, like millions of others with FM, I have to live ... Sun, 27 Mar 2016 11:42:54 EST SLEEP BETTER WITH NEW TECHNOLOGY For periods of time in any given day, many people with fibromyalgia (FM) find themselves in a fog, unable to concentrate or to summon up energy. During the night instead of finding relief, they sleep fitfully with their rest interrupted by periods of wakefulness. Even more frustrating, it can be hard to show others that these episodes are recurring and valid symptoms of a disorder, not just ongoing complaints. <BR> <BR> But you do not need to convince Myra Preston, a Ph.D. in psychophysiol... Sun, 27 Mar 2016 11:38:38 EST daily goal to Empower to survive thru pain Day 1 <BR> 1. Seek out things that make you laugh—remember, laughter is the best medicine! <BR> Sun, 20 Mar 2016 12:30:55 EST DAILY GRATITUDE Today I am thankful for my best friend Sun, 20 Mar 2016 11:59:15 EST JUST SAY HI <em>213</em> Sun, 20 Mar 2016 11:57:52 EST WHEN IS YOUR BIRTHDAY AND WHERE ARE YOU FROM January 18th and I presently live in Wichita Kansas Sun, 20 Mar 2016 11:37:55 EST EVERYONE CAN USE A HUG....PASS YOURS ON <em>247</em> <em>220</em> Sun, 20 Mar 2016 11:35:24 EST Helpful Information Fibromyalgia <BR> Successful Management Of Symptoms <BR> David Nye, MD <BR> What is fibromyalgia? <BR> Fibromyalgia is a common and disabling disorder affecting 2-4% of the population, women more often than men. Despite the condition's frequency, the diagnosis is often missed. Patients with fibromyalgia usually ache all over, sleep poorly, are stiff on waking, and are tired all day. They are prone to headaches, memory and concentration problems, dizziness, numbness and tingling, itching, ... Sun, 20 Mar 2016 11:32:40 EST Hi and Welcomes introduce yourself here We are glad to have you join Fibro Friends. We want to encourage you and support you in your journey to better health and healthy weight loss. <BR> <BR> After you introduce yourself here, please join us on the Chat thread and get to know us. Ask questions, share concerns or anything you wish to talk about. <BR> <BR> Again, Welcome Welcome! <BR> Sun, 20 Mar 2016 11:28:10 EST One of the Best Videos I've Ever Seen Hi everyone, I'm new here. <BR> <BR> I just found this video on SparkVideos, and I sobbed all the way through it. This guy gets how hard it is to be sick and disabled and to have to do this almost completely on your own. We all have different medical situations, and not everyone will have that kind of progress that fast, but we can all reach for a little bit better tomorrow than what we had yesterday. <BR> Check it out! (plus, you can get points at the bottom for watching): <BR> http://www.s... Mon, 15 Feb 2016 11:43:42 EST Hi All Hi all, <BR> <BR> I'm Tammy.36,preschooler teacher,newly married and needing to drop 88lbs.I've always struggled with my weight and Fibromyalgia has hinder the process for the last 19 years.Determined to over come both struggles.Looking forward to making friends and helping others along their journey while learning to navigate my own Sat, 26 Dec 2015 23:41:35 EST Hi Everyone I'm not new to SparkPeople but just started using the Fitbit tracker & reset my account and goals. I am looking for new Spark Friends and other Fitbit users to buddy up with & work on my goals for a healthier lifestyle. Mon, 23 Nov 2015 17:04:50 EST Fibro Management Fibromyalgia <BR> Successful Management Of Symptoms <BR> David Nye, MD <BR> What is fibromyalgia? <BR> Fibromyalgia is a common and disabling disorder affecting 2-4% of the population, women more often than men. Despite the condition's frequency, the diagnosis is often missed. Patients with fibromyalgia usually ache all over, sleep poorly, are stiff on waking, and are tired all day. They are prone to headaches, memory and concentration problems, dizziness, numbness and tingling, itching, flui... Thu, 12 Nov 2015 10:23:34 EST Importance of staying positive Remember always that you not only have the right to be an individual, you have an obligation to be one. <BR> Staying Positive Despite Fibromyalgia Pain <BR> By Madeline Vann, MPH | Medically reviewed by Pat F. Bass III, MD, MPH <BR> Chronic pain coupled with fibromyalgia fatigue can do serious emotional damage over time. Learn about helpful strategies to maintain a positive outlook despite your fibromyalgia symptoms. <BR> <BR> <BR> <BR> If you're one of the 5 million Americans living with ... Thu, 12 Nov 2015 10:16:44 EST Hi! I'm in Ohio and the weather is starting to get colder. I'm hurting more as the weather changes. I know that I need to keep moving, so I'm more determined to meet my step goal every day. <em>465</em> Sat, 10 Oct 2015 00:24:26 EST Hello From Louisville Kentucky Hi, I am a 51 year old female living in Louisville Ky right now. I was diagnosed with Fibro last november. My lifestyle has gotten more and more seditary and I have started to eat more and more. I am trying to break that cycle and thus I am here. I just today got into water pysical therapy (I was on a wait list for a long time) so I am hoping that will help me to be more active, I cant do much in the gym itself, I tried and ended up with a 3 day flairup and that was a mild workout. i actualy ... Thu, 10 Sep 2015 14:13:09 EST New to team Hi everyone. Grateful to find others who also have fibromyalgia. I was diagnosed in September 2014. I have a great Rheumatologist that listens. I am happy to find a diagnosis however I still have to live day by day and do the best I can. I am 41 and I feel that with fibromyalgia and my other conditions, my life has stalled. Mon, 17 Aug 2015 11:39:05 EST Sorry for absence Hi everyone, <BR> <BR> I apologise for being scarce the last few weeks; and now this week I'm going to be away on a road trip. I've been busy packing up a house for sale and now with this vacation ... but after that I should have a lot more time to spend on here. I hope everyone is going well meanwhile <em>247</em> <BR> <BR> Also if anyone wants to help out with being a team leader we still need a co-leader so please let me know :-) Sun, 12 Jul 2015 10:21:46 EST New to the group I'm just joining with you all. I am 63, and live in Missouri. I've had Fibro for probably 25 yrs at least. I also have air of Arthritis, and I'm Diabetic. Other than that I'm great! Lol Oh yes, I'm fat. Have been all my life. We have 3 Bichons that keep us company. I crochet, and do a little gardening as I can. Love Iris, and collect different colors. I am interested in eating healthy to lower my blood sugar. I've held my weight steady for about 3 yrs now, for the first time in my life. Hope... Sun, 14 Jun 2015 21:49:41 EST Do you have any NSVs to share Big or small let's share our NSVs and encourage one another <em>244</em> Fri, 29 May 2015 17:38:22 EST Having a spark page helps Hi everyone, <BR> <BR> I notice a few new members who have joined without having a spark page ... I just wanted to let you know that it can be really helpful having one as it allows other members to send you encouraging goodies; leave you messages of support and follow your journey along and cheer you on <em>30</em> Wed, 27 May 2015 23:53:46 EST diet hi. my name is julie. i'm new here and still trying to figure it out so bare with me. i have had fibro for almost 5 years as a result of bad car accident. due to ulcers i cannot take alot of medications so i have become very used to pain. i am trying the whole30 diet for pain. drastic but it works. did it a year ago with some success. but 3 months ago i broke 2 bones in my foot. could not put weight on it so all i did was eat and watch tv. needless to say i'm back where i started from. does a... Sat, 16 May 2015 03:18:57 EST What's one positive thing you've done for yourself For me, today it was taking an extra walk at lunch time ... <BR> <BR> What was it for each of you? Fri, 15 May 2015 08:00:20 EST Energy levels? What helps you with having more energy? Tue, 12 May 2015 01:45:20 EST What exercise have you done today? What exercise have you done today? <em>237</em> <em>185</em> <em>319</em> <BR> <BR> Share with the team and lets encourage one another to get moving - safely and in our effort to get healthier Thu, 7 May 2015 23:57:17 EST Updated area - Please read This messageboard area has been updated to include challenges, exercise and miscellaneous items that don't fit other places on the team forums. <BR> <BR> I love some of the previous threads where exercise ideas and ways to nurture ourselves have been discussed and hope that we can do more of that as well <em>30</em> Thu, 7 May 2015 23:55:21 EST Special encouragement and sharing victories Do you need special encouragement while you deal with a difficult situation or time? <BR> or is there a particular victory you would like to share? <BR> Please use this messageboard for asking for extra support or to share your victories <em>247</em> Thu, 7 May 2015 23:47:54 EST Checking in with each other - 2015 Please use this thread to check in with each other daily, or as often as you can - let's encourage each other <em>244</em> Thu, 7 May 2015 23:43:19 EST Welcome to the team - Fibro Friends Hi everyone, <BR> <BR> Welcome to Fibro friends - or welcome back if you are a returning member <em>30</em> <BR> <BR> Please feel very welcome to share your introduction in this thread, or start your own topic within this messageboard area for other team members to welcome you and get to know you a little better. <BR> <BR> Glad you found us <em>104</em> Thu, 7 May 2015 23:36:24 EST Hi everyone I just joined the team and found there wasn't a leader so joined in that role because I'd love to see this team active <BR> I know I need the support and I'm sure others could use it as well <BR> <em>381</em> <BR> Please post your introductions and re-introductions in our introduction forum; and feel encouraged to share something of what you would like to see in this team as we move forward Thu, 7 May 2015 00:01:00 EST I FIGURED OUT MY FIBRO!!!! I hope. :) <BR> <BR> I have been on many ups and downs since my celiac diagnosis in 2006 - most of it I have blogged about here. When I started SP my brain was extremely foggy. I couldn't remember what I had for breakfast the same day I had it! I had a dietician help me and she didn't believe me when I told how much I ate, so then I started weighing my portions. When I'd weigh it, I'd write it on a post-it: it was so bad I had to re-look at the scale two or three times between looking and wr... Fri, 3 Apr 2015 23:14:21 EST Lyrica and fluid retention I am taking 200 mg of Lyrica daily and noticed I seem to be retaining fluid in my face. I am going to my doctor today to discuss either getting off the Lyrica and/or adding a diuretic pill. Does anyone else seem to have this issue? Wed, 11 Feb 2015 09:43:23 EST New Here Hello from The Central Coast of CA. I'm Sheri. I was a regular SP member several years ago but my Diagnosis of Fibromyalgia and the general illness got the best of me for a while. I'm entering a one year time frame when I can focus on me, so I'm gonna try to get more fit and healthy. I am dealing with chronic pain and swelling and depression/anxiety too. Nevertheless... I try to keep focused on the positive and what IS POSSIBLE JUST FOR TODAY. It is late in the day so tomorrow I will start tr... Sun, 8 Feb 2015 19:31:56 EST mornings I wake up stiff every morning. It takes at least 2 hours before my muscles release. Has anyone faced this and how did you deal with it? <em>38</em> Thu, 29 Jan 2015 13:18:54 EST Identity Changes Hi All, <BR> <BR> I have been a watcher for a couple years now, but today I must come out from behind the curtain to ask for some support and suggestions. <BR> <BR> I am 49 and have had fibro for half a dozen yers or so. I have other health issues as well and am now facing the big move . . . ino assisted livinf. My doctor suggested this move some months ago, so I've had a while t think about it and prepare myself for this day. However, my options are far more limited than I imagined and... Sat, 13 Dec 2014 17:19:10 EST November Challenge: Reveal the Rich "The greatest good you can do for another is not just to share your own riches, but to reveal to him his own" ~ Benjamin Disraeli. <BR> <BR> Our challenge this month is to help one another realize the wealth within us through encouragement. Visit the pages of teammates each day you are able, look to see what you can learn of them there, and share the richness you see there. Perhaps a fresh perspective will help them realize what a great individual they are and their own great potential. <BR... Tue, 11 Nov 2014 13:15:35 EST FF November BLACKJACK Report Thread Post the template dates here and post your daily scores on the date of the day's earnings. I will watch the weekly tally for goodies earned. We can do it! <BR> <BR> REMEMBER: Control F will pull up a search box at the top of your browser. Type in your username for ease of finding your report post. Fri, 31 Oct 2014 13:16:37 EST November Game: BLACKJACK <em>227</em> So others may print this out, <em>303</em> DO NOT POST a reply here. <em>304</em> <BR> <BR> We are not shooting for 21. It got too complicated for the season. Just add the points up and post score for each day. 8 cups of water = 8 points, etc. Just go down the line and all you do in the day counts for the points as listed below. <BR> <BR> Points – Activity <BR> 1 – Drink 8 ounces of water. <BR> 2 –Give a teammate a Goodie or encouraging comment on their page. <BR> 3 – ... Fri, 31 Oct 2014 13:13:08 EST October BINGO: Week 4 Report Thread Week 4 is about ready to go. Check out the changes in the challenge goals on the instructions thread. Be sure to print it out. <BR> <BR> Week 4 BINGO Challenge instructions for October 2014: <BR> <BR> <link><BR>sageboard_thread.asp?board=27612x61971<BR>x59313029 </link> <BR> <BR> The game runs through October from Wednesday through Tuesday of each week, so if you miss one week, you can join in the next. Awards are given weekly. This is the report th... Tue, 21 Oct 2014 11:16:50 EST Cholesterol and Fibro! My trivia led me to read up on cholesterol today and I was intrigued by what I found. The article (linked below) says, "Cholesterol is a soft, fat-like substance. It is a building block of body cells and hormones, makes up 50 percent of your nervous system, and is necessary for metabolism." <BR> <BR> I think I did not realize what cholesterol was for in the body, but it stunned me to see that it is "50 percent" of our nervous system! Think about that. How many of us have cholesterol issues,... Thu, 16 Oct 2014 12:15:29 EST October Bingo Week 2 Results Nola and I tied again, but we also increased our score, from 210 - 270. That is a Woot! Woot! <BR> <BR> <em>243</em> Nola Wed, 15 Oct 2014 22:54:09 EST October Challenge: BINGO Report Week 3 Week 3 is ready to go. Check out the changes in the challenge goals on the instructions thread. Be sure to print it out. <BR> <BR> Week 2 BINGO Challenge instructions for October 2014: <BR> <BR> <link><BR>sageboard_thread.asp?board=27612x61971<BR>x59313029 </link> <BR> <BR> The game runs through October from Wednesday through Tuesday of each week, so if you miss one week, you can join in the next. Awards are given weekly. This is the report thread f... Wed, 15 Oct 2014 00:53:37 EST October BINGO Week 1 Results Just Nola and Darlene doing their best for this first week of BINGO, each getting 210 points. <em>244</em> <em>243</em> <em>345</em> <BR> <BR> Week 2 is going and it is not too late to join us. The goal is to do our personal best each week and try to improve our journey in the process. Come join the fun and let's BINGO even stronger this week. Fri, 10 Oct 2014 14:05:29 EST Trivia - Check in Play a game of SP Trivia - found on your SP Points page. Share your score and one thing you learned, Fri, 10 Oct 2014 13:19:09 EST October Challenge: BINGO! Report Week 2 We will continue the same challenge for week 2 as I am preparing to leave town and do not have time to change it up. Hopefully next week I will make a few changes for us to spice it up a little. <BR> <BR> Week 2 BINGO Challenge instructions for October 2014: <BR> <BR> <link><BR>sageboard_thread.asp?board=27612x61971<BR>x59313029 </link> <BR> <BR> The game runs through October from Wednesday through Tuesday of each week, so if you miss one week, you ... Wed, 8 Oct 2014 11:34:04 EST October Challenge – BINGO! <em>227</em> <em>303</em> DO NOT POST HERE. KEEP THIS PAGE PRINTER FRIENDLY. <em>304</em> <em>227</em> <BR> <BR> Here is the new Challenge for week 4, our final week of BINGO. Let's finish strong! <em>104</em> <em>381</em> <BR> <BR> October Challenge – BINGO! <BR> <BR> This game is meant to encourage progress, challenging us to do what we can, and spurring us on to personal increase. Don’t worry if you are not going to have the highest score. Consider the personal challen... Tue, 30 Sep 2014 12:49:45 EST Report thread - BINGO! Week 1. BINGO Challenge instructions for October 2014: <BR> <BR> <link><BR>sageboard_thread.asp?board=8570x22x593<BR>12651 </link> <BR> <BR> The game runs through October from Wednesday through Tuesday of each week, so if you miss one week, you can join in the next. Awards are given weekly. This is the report thread for week 1, the place to share your journey the first week of challenge, and to report your points earned at the end of the week. Points are: <BR... Tue, 30 Sep 2014 11:53:58 EST Fibro Chatter - Walking through it together. Tell us how you are today. Share things you learn about Fibro that is helpful. Ask your questions. Here we walk together through the journey of learning to live life and carry on even when pain and other such things threaten to stop us. Tue, 30 Sep 2014 11:23:26 EST October - November Chat Line This thread is for anything but Fibro talk! Tell us about your ups and downs and running arounds here. Let's have a great couple of months! Tue, 30 Sep 2014 11:17:30 EST Call to check in! Hey you guys! It is awfully quiet over here. How about you run by to this thread and tell us what you are up to. Are you in a special challenge here on Spark? How is life? Give us a shout out. We look forward to hearing from you! Thu, 25 Sep 2014 12:45:02 EST To Victory From Challenge What was your fibro challenge to overcome today (or this week)? How did you find victory for the journey? Thu, 4 Sep 2014 14:07:17 EST Report Thread: August 31 - Sept 6, 2014 Read Instructions, then copy and paste the report template and let's get going! <BR> <BR> <link><BR>sageboard_thread.asp#Anchor58991416 </link> <BR> <BR> \/ \/ Begin copy and paste (instruction for copy & paste at the bottom of this post) \/ \/ <BR> <BR> Goal 1: (replace brackets with description of goal) <BR> Sunday – <BR> Monday – <BR> Tuesday – <BR> Wednesday – <BR> Thursday – <BR> Friday – <BR> Saturday – <BR> <BR> Goal 2: (replace brackets ... Sat, 30 Aug 2014 13:22:21 EST Ongoing Team Challenge instructions <em>227</em> Please DO NOT post here! for information purposes only. <em>304</em> <BR> <BR> Challenge Instructions and Template <BR> <BR> Hey, gang. I have a desire in my head for a goal challenge to help us with our personal journeys and to add motivation to our efforts. It stems from some things done by the BLC challenge. I’ve been thinking about how to apply it here and have come up with a plan I hope will work. We will see. The only thing to do is to jump in to it and see how it g... Sat, 30 Aug 2014 13:19:01 EST Thyroid, anyone? I clicked an ad link on Spark that led to the following infomercial on thyroid issues. I have suspected for some time that I have an undiagnosed thyroid issue, but as I watched this, I realized how many of the symptoms I do have, and finding a lot of those to be the symptoms I am being told is Fibro, I have to wonder. I am not saying that you or I do not have fibro, but I am saying perhaps this is the underlying cause of our FMS. <BR> <BR> It is long, and I did not watch it all. But I am str... Tue, 26 Aug 2014 13:25:33 EST Mirror, Mirror... I titled this thread "Mirror, Mirror" because it REFLECTS our purpose in this thread: that is to REFLECT together on a subject, share insights, and REFLECT off of one another like a sun dog. <BR> <BR> A sun dog is seen when ice crystals in the air catch the light of the sun and reflect it out. The greater brilliance of a sun dog is seen as that reflected light is then bounced off of other ice crystals, so the ice reflects the direct light from the sun and the indirect light that comes off o... Thu, 21 Aug 2014 16:49:17 EST Encouraging another: 8/21/14 I heard from Carolian last night. Her health issues keep her from being able to do the things needful for fibro relief, aggravating it, which aggravates the health issues, which aggravate the fibro.... You get the picture. Run by and encourage her today, please! <BR> <BR> <link><BR>ROLIAN#comments </link> Thu, 21 Aug 2014 16:21:15 EST Encourage another: 8/20/14 Run by SUEFROMRI's page and encourage her. Let her know she is not alone in the struggle with Fibro symptoms and the emotional issues it can cause. <BR> <BR> <link><BR>EFROMRI </link> Wed, 20 Aug 2014 17:41:23 EST Sleep Deprived - Trigger to Overeat Found this as I did my research project for today's challenge on the Here for Change - Quarterly Habit Focus Team and thought it worth sharing: <BR> <BR> From the Spark article "Is Evening Eating Destroying Your Weight Loss Efforts" <BR> <BR> The Role of Sleep <BR> Consuming a large amount of food before bedtime can also result in indigestion and sleep problems, which can trigger you to eat more during the proceeding days. A growing body of research suggests a connection between obesity an... Fri, 15 Aug 2014 13:21:28 EST Aug-Sept 2014 Fibro guage People seem to like this format for reporting on their journey of coping with fibro, so go with the flow: <BR> <BR> Tell us about the following: <BR> <BR> Pain: <BR> Mood: <BR> Stress: <BR> Focus: <BR> Sleep: <BR> Environment: <BR> Other: <BR> <BR> Pain - list level on scale of 1 (least) to 10 (worst ever). <BR> Mood - emotional state <BR> Stress - What stressors are you dealing with for the day? <BR> Focus - 1 (Brain fog) to 10 (most alert ever and able to stay on track) <BR> ... Sat, 9 Aug 2014 13:57:14 EST August Challenge - One Good Each day in August, find one good and positive thing that tells you that you are making progress. Tell us about it. Fri, 1 Aug 2014 17:37:40 EST Aug-Sept - Emoticon it! <em>213</em> <em>381</em> <em>386</em> <em>220</em> <em>252</em> <em>247</em> Fri, 1 Aug 2014 17:36:05 EST August - September - How's your day? Tell us about it here. How are you doing? What are you doing? What challenges are you facing today? Fri, 1 Aug 2014 17:35:05 EST Today's victories One way we can encourage one another is sharing victories. I am encouraged to press on by the victories others share. Share yours here. Tue, 22 Jul 2014 12:26:51 EST Some unusual causes of Migraines Migraines can be caused by some things that are normally good practices, like trying to catch up on sleep deprivation. Since we have a tendency to have headaches, it might be good to realize some things that can cause it. <BR> <BR> <link><BR>s_articles.asp?id=1824 </link> Sat, 19 Jul 2014 18:01:24 EST Spark Guy's Blog Be sure to read Spark Guy Chris' blog and be encouraged. <BR> <BR> <link><BR>urnal_individual.asp?blog_id=5738162 </link> Mon, 14 Jul 2014 12:29:19 EST Greatest Challenge? As we seek to encourage one another to press past Fibro to make the healthy lifestyle changes that will help us, let's share our greatest challenges. What is the greatest challenge to your journey today? And what are you doing to address the issue? If you struggle in the same area as another of us, be sure to encourage one another with your experiences that have helped you to overcome. Sat, 5 Jul 2014 15:17:17 EST July-xercise Exercise and activity are vital to helping with fibro symptoms. I don't know about you, but the heat of summer has a tendency to get to me and slow me down. I have to work at moving. Let's help one another by sharing progress through this month. Report each days activity and lets keep moving in July. Wed, 2 Jul 2014 00:43:50 EST July Fibro Gauge Tell us about the following: <BR> <BR> Pain: <BR> Mood: <BR> Stress: <BR> Focus: <BR> Sleep: <BR> Environment: <BR> Other: <BR> <BR> Pain - list level on scale of 1 (least) to 10 (worst ever). <BR> Mood - emotional state <BR> Stress - What stressors are you dealing with for the day? <BR> Focus - 1 (Brain fog) to 10 (most alert ever and able to stay on track) <BR> Sleep - time slept, quality of sleep, quality of restfulness. <BR> Environment - Temps, weather systems, and other stressors in ... Wed, 2 Jul 2014 00:34:00 EST General FMS Info Following is an article from Harvard Health Publications covering general info on FMS. It is good info for someone recently diagnosed, and a good review for the veteran to the syndrome. <BR> <BR> <link><BR>a-z_detail.asp?AZ=182 </link> Fri, 6 Jun 2014 18:09:02 EST Quick Q&A Have a quick question regarding FMS, Spark Community, Health, or other things that go along with or affect FMS symptoms? Ask it here. Sun, 1 Jun 2014 13:58:04 EST About this Forum <em>227</em> <em>303</em> do not post here. For information purposes only. <BR> <BR> Hey, gang. Since no one is playing games or interested in leading them, I have changed this forum to a FYI and Q&A sharing forum. All are welcome to share here by clicking the "Create New Topic" and posting the info or question you have. This is the place to share links to articles you find helpful regarding FMS or other maladies many of us have, as well as articles on healthy living. <BR> <BR> Do me ... Sun, 1 Jun 2014 13:49:08 EST FF - June: Personal Goal Challenge Post at least one goal you are working on through this month: <BR> <BR> It can be weight loss; a dietary goal; or movement / activity goal. <BR> <BR> You may also post other personal goals you want some encouragement and accountability for: <BR> <BR> A household chore you need to tend to. <BR> A habit you are working to change. <BR> Etc. <BR> <BR> If you post it, please be accountable to update us on it. Be sure to encourage and check on one another through the month. <BR> <BR> Let's p... Sun, 1 Jun 2014 13:14:48 EST June: Daily fibro gauge How is your FMS symptoms today? Sun, 1 Jun 2014 13:04:22 EST June-July: Fibro Friends Chat Place Hey, friends. It is a new day in a new month; we have a lot of new members, so we need some new threads. I love getting acquainted with each of you. Share your day and interests with us here. Sun, 1 Jun 2014 12:59:49 EST FMS Awareness Day: 5/12/14 Today is FMS awareness day. Post facts about Fibro to your status and blogs today and let's educate the public. You would be surprised the number of people out there who have it but do not know of it. Here is a link of interest: <BR> <BR> <link><BR>s-day-2014.html </link> <BR> <BR> Thanks for the heads up, loopylou0363 - Linda! Mon, 12 May 2014 16:53:21 EST Trouble Sleeping? Here are 12 foods to avoid: <BR> <BR> <link><BR>nfo-2014/foods-that-disrupt-sleep-phot<BR>o.html?cmp=NLC-WBLTR-DSO-MCTRL-050914-<BR>F1-339789#slide1 </link> Mon, 12 May 2014 14:23:55 EST Today I felt successful _____ Success is a journey, not a destination. Goals are good, but even small progress often gets missed because of failing to meet what we see as the goal. Looking at your day, what is some small or great thing you can fill in the blank with? <BR> <BR> Today I felt successful ______ . Thu, 1 May 2014 20:24:01 EST Fibro Friends,Today I am... <em>334</em> Great <BR> <em>30</em> Good <BR> <em>41</em> Ok <BR> <em>20</em> Non-functional <BR> <em>40</em> HURTING! <BR> <em>46</em> Emotional <BR> <em>198</em> Stressed <BR> <em>102</em> Tired <BR> <em>104</em> Going strong <BR> <BR> How's your day? Pick those that apply, and let us know. Thu, 1 May 2014 20:17:57 EST May Goals Every small change makes a difference for our healthy journey. What is one goal you have this month toward your healthy lifestyle. Tell us what you will do and how you will measure progress. Check back at least once a week to let us know how you are doing. Thu, 1 May 2014 18:00:26 EST Hi I'm new to this group. I've been on spark people for about one month. I just found your group today. Just wanted to introduce myself and say hello. Looking forward to getting to know you all :) Jen Wed, 30 Apr 2014 16:07:02 EST Team Page Changes Hey, gang. Following is a link to a U-tube video put up by Coach Jen that explains all the team page changes. <BR> <BR> <link> </link> Wed, 30 Apr 2014 15:48:18 EST Tracking Pain Because most people don't think in terms of tracking daily pain levels, it is not an offering on the site. To me, pain is stress, so I have adopted the stress level tracker to track pain. I am at a 8-9 today and have been for several weeks, which reduced my physical activity to nil. <BR> <BR> I was given a prescription for Vicadin back in October and still have half the bottle left. So afraid of addiction. lol Apparently that is not an issue for me. I"m going to start taking it today. It m... Mon, 28 Apr 2014 13:19:14 EST Challenge: I made a dent! I don't know about all of you, but I walk through the house trying to do what I can to keep it homey, and I see one thing after another that needs to be done. I have three closets I have wanted to reorganize for 2 months now. Every time I get close to starting it, something happens to pull me away from it. The kitchen cabinets need some cleaning done. My daddy passed away in November and I have had 3 boxes of papers sitting on a chair in the entry waiting on me to weed through them and shred ... Mon, 21 Apr 2014 16:57:48 EST JOY! Name one thing that brings joy to your life that you will seek after today. Mon, 21 Apr 2014 11:43:32 EST Planning for success Hey, Gang. The weekend is upon us and, this being a holiday weekend for many, planning is important for us to get through it with strength and to a successful completion. What are you plans for this weekend? What will be a challenge for you this weekend? How are you planning ahead for facing that challenge? Fri, 18 Apr 2014 13:21:54 EST Gabapentin Yesterday I started gabapentin for my fibromyalgia. I feel like this stuff is kicking my behind! I'm so drowsy, that I slept through my alarm this morning and so did not go to work today. I feel confused and lightheaded and still so very sleepy. Even typing this post is a challenge - I'm having to make corrections on every other word it seems. Anyway, has anyone else had experience wirh gabapentin? Thank you, <BR> Susan Thu, 17 Apr 2014 17:19:23 EST Ped it! In my struggle to get up and move this bod, knowing that in doing so I will feel better, one of my best friends and sources of support has been my pedometer. It has given me a goal to strive for that has visible proof of progress. <BR> <BR> When I started, I was barely able to do 2000 steps per day because of tiredness and pain. As I have worked to increase that, though my pain is not always less, it is not worse, and I feel better because my body is getting good things it needs: movement. <... Wed, 16 Apr 2014 12:20:33 EST Progress, not perfection One thing I have learned as I have come into routines that help me keep up with life without overdoing all the time is that progress is the goal, not perfection. One thing that helps me is learning the little things that FlyLady teaches ( <link> </link> ). <BR> <BR> She has become a source of support in keeping up with things while not kicking myself if all is not perfect. There are FlyLady teams on Spark that support and help as well. This is the one I am on: <link>www.s... Wed, 16 Apr 2014 10:52:31 EST Ideas when support is lacking My husband understands my issues and helps where he can, but he is so busy right now at work that he is unable to be the support I sometimes need. On another thread, BunnaBaby mentioned not having support. So let's help one another in this area. <BR> <BR> What do you do when things need to be done and there is no one to help? <BR> <BR> What do you do to help yourself to make and have good dietary choices available on bad days? <BR> <BR> What resources have you found to help you and give s... Tue, 15 Apr 2014 11:04:15 EST Live like ?? I was watching the video, "Proof you can be a talented dancer at any size." The girl sharing her journey in the video talked about when she found her weight was health related and she began to accept her situation. She said, "But by then I had already begun to live like a fat person." ( <link><BR>ark-videos-detail.asp?video=66 </link> ) <BR> <BR> Her words got me to wondering, am I to allow life to be defined by my health issues and the struggle it bring... Mon, 14 Apr 2014 11:34:19 EST Games, anyone Hey, gang. I am not one who likes to give a lot of time to gaming on SP, but since this team has a game forum, I have posted one for us and will participate as I can. However, I have to pray long and hard to get ideas and inspiration for games, so if you have a game idea, please spark mail the details to me. Or, better still, if you are one who loves gaming on SP and would like to lead out in this area, at least until Carolian is able to return, let Carolian and me know that by SP message as ... Sat, 12 Apr 2014 14:36:36 EST Jacks Wild Game Rules <em>227</em> <em>303</em> Do not post here. Post on the game thread linked at the bottom of this post. This will allow those who want to play to print this out so they have the rules available. Do not post <em>303</em> <em>227</em> <BR> <BR> Game rules: <BR> <BR> I will post a beginning word. Those who follow post a word that either begins or ends with the last letter in the last word posted. <BR> <BR> Points earned: <BR> <BR> 1 point: for posting a word either beginning or en... Sat, 12 Apr 2014 14:29:10 EST Jacks Wild Game Thread See the rules on Sticky 1 of this forum Sat, 12 Apr 2014 14:28:34 EST Getting to know one another: 4/12/14 What brought you to SparkPeople? <BR> <BR> I first joined years ago--2009--when I was working to lose weight, joining a club was not an option, and I was praying for a support system for the journey that was something I could do when a friend mentioned SP to me. Since then I have been on and off, this being my third time here after several months of SP-break. The reality of my life is that I need support and accountability from others who know the struggle I am in. When I don't have that, I ... Sat, 12 Apr 2014 13:50:53 EST Getting to know one another: 4/11/14 Hey, gang. I thought it might be good to get acquainted with one another on a personal level. To help us do that, I will post a thread every few days with a new topic for discussion. This is the first: <BR> <BR> Since our team is focused on helping one another on this Spark Journey as friends who all struggle with fibromyalgia, let's start there. I know that Fibro is often more of a symptom of other underlying disorders. Mine is arthritis and long term stress related. Share with us any issue... Fri, 11 Apr 2014 16:58:24 EST Be there for Carolian Our leader, Carolian, is in a difficult season. Let's make sure we show her we are here for her while she goes through many difficult waters in life. <BR> <BR> <link><BR>ROLIAN </link> Fri, 11 Apr 2014 16:46:00 EST Needing Encouragement Forum Focus <em>227</em> <em>303</em> Do not post here. <em>303</em> <em>227</em> <BR> <BR> This forum is the place to come when you or someone on Spark needs a little extra encouragement. Click "create topic" and share what is going on. If you are sharing with regard to someone on Spark other than yourself, be sure to put a link to their page so we can encourage them. Also make sure you have their permission to share before you give any details. Fri, 11 Apr 2014 16:44:10 EST Nutrition Watch Proper nutrition is vital to healing and strength for those with FMS. So many foods exacerbate the symptoms of fibromyalgia. Getting control of our eating so we can figure out what helps and what hurts is vital. Let's begin by accounting for our nutrition. Are we getting good nutrition? <BR> <BR> If you keep the Spark Tracker, and you should, post your nutrition values here. Be sure to tell us what your goal range is. <BR> <BR> If you do not keep the SP food tracker, tell us what you are do... Thu, 10 Apr 2014 15:25:28 EST Move that Body A sedentary lifestyle is not good for anyone, fibro or no. But for us who already have pain to deal with, sitting all day is a sure way to worse pain. One thing I have learned, and continue to learn, is to move this bod, however slow, several times per day. So here is the challenge, set a goal that will get you moving each day. <BR> <BR> It does not have to be big. In fact, the best way to sabotage your efforts is to set a lofty goal, force your body to it, feel more pain because of over ex... Thu, 10 Apr 2014 14:58:09 EST Newbies Hello and <em>235</em> <BR> <BR> We would like to know a little about you. There are two ways you can do that: post a reply here, or click "Create Topic" and make a new thread for your post. We look forward to walking this journey with you. Thu, 10 Apr 2014 14:35:58 EST Just your name please Hi! I am Darlene. Please just post the name we can call you here. It helps me to get to know you to have a place to go and be reminded until it sticks with me who you are. <em>304</em> Thu, 10 Apr 2014 14:31:40 EST Pain level today? On a scale of 0 - 10, zero, of course, being no pain, and 10 being the most pain ever, tell us how things are today. <BR> <BR> Use this as opportunity to encourage and get to know one another by visiting the page of those that stand out to you. Rejoice with those having a good day and encourage those who are struggling. Thu, 10 Apr 2014 14:27:27 EST Worth Rejoicing Over Okay, Gang. I am communicating with Carolian and getting my bearings as I join her on this journey of directing the course of our team here. For those I have not yet met, my name is Darlene, and I am excited to be here with you. If we have to walk this journey with fibro, better to have good friends who understand the journey to walk alongside. <BR> <BR> I have grown a lot through learning to be an overcomer despite fibro symptoms. One thing I have learned is that a negative mindset adds to... Thu, 10 Apr 2014 14:18:56 EST Are you there? Hi. I just joined this team and looking at some of the posts, I wonder if it is still active. So I thought I would post these questions and see if there is any response: <BR> <BR> How long have you been on this team? <BR> Are you an active member here? <BR> <BR> No sense in being on a team where support is needed if you are the only one here, right? <em>30</em> <BR> <BR> Thanks for your response. <BR> Darlene <em>220</em> <em>381</em> Wed, 9 Apr 2014 11:26:50 EST Looking for fibro support Hi, team. I am Darlene. I was diagnosed with fibro several years ago. After a couple of months on Nopalea early summer of last year, I went into remission for several months. The past couple of months it has flared back up, so I have been looking for a group that would not be one to sit and whine about it but help to cope and press on with life. This looks to be that group, so I thought I would give it a try. <BR> <BR> I am sorry to see that the leader is inactive. Has anyone put in for the... Wed, 9 Apr 2014 10:55:32 EST Anyone tried Lyrica? Hi guys and girls, <BR> <BR> I have been on Lyrica since 2008 and LOVED these meds. <BR> <BR> They make the PAIN go away, <BR> They make ANXIETY and DEPRESSION go away. <BR> They make me SLEEP better and deeper. <BR> They make me HAPPIER <BR> <BR> For me this has been a true rescue med. Unfortunately i have to stop with them cause they are too expensive. <BR> Fri, 28 Mar 2014 23:28:31 EST I'm a newbie Hi guys and girls, <BR> <BR> I am new to this website and to the USA AND to this new group too! <BR> I'm a 38 year old woman and just moved from Holland Europe to Florida cause I met my husband there. <BR> <BR> Now I'm ready to loose some desired pounds. The first week on this website i only put weight ON cause I was more then normally focused on food. <BR> <BR> From tomorrow on a new start for me though. Haha.....that's a simple life to be always allow yourself to start again. <BR> ... Mon, 24 Mar 2014 23:47:14 EST FDA Public Meeting for Fibromyalgia The FDA is having a public meeting in a few days about Patient-Focused Drug Development. They are taking public comments about this on their website here:!documentDetai<BR>l;D=FDA-2013-N-1041-0004 I really recommend everyone go and tell them their experiences with medications and how they think fibromyalgia treatment development could be improved. Sat, 22 Mar 2014 04:57:41 EST Ayone tried Savella I tried it for a little bit. It really helped the fibro pain but I had some other issues going at the same time, (big surprise) and they took me off of it. I am thinking about asking my gp for another try on it. Mon, 17 Mar 2014 14:50:23 EST Hello from Illinois! Hello everyone! I have been a member on here for a little while but haven't been active on here. I usually am on my phone and it's so hard to navigate spark from it. I have had fibro for 2 years now. I've put on 40 lbs pretty much since and I really need to get it gone. I hate getting dressed, none of my clothes fit and the ones I do wear just don't feel comfortable. I hate looking in the mirror. I've been pretty tired and achy lately. My daughter, job and relationship are being affected. I'v... Thu, 20 Feb 2014 11:06:15 EST Hi from VA Hi! My name is Jennie. I am the stay at home mom to 3 amazing kids. Been married 20 years in March. <BR> <BR> I was diagnosed with fibro 6 1/2 years. I also have arthritis and was recently diagnosed with diabetes, neuropathy in my feet and high blood pressure. The doctors have me on a heart healthy diabetic diet. I found out about my high blood pressure when I almost passed out in a store and I had to be rushed to the hospital. The doctor said that my pressure was so high I could have had a ... Sun, 2 Feb 2014 07:12:18 EST How to Get Regular Pain Rx Why won't the doctors prescribe us a regular pain medication to take daily ??? Any ideas how I can convince my doctor to do so ? I am able to function so much better when I take my pain medication but I am only allowed two refills a year which is about 60 total days. I have to pick and choose which days I am most desperate to be able to function. <BR> My current pain medication is called Esgic Plus. It is mainly prescribed for severe headaches but it helps the whole body pain too. Fri, 24 Jan 2014 18:18:33 EST Pain when exercising: how do you deal? <em>198</em> OMG I just walked home from the bus stop, it was less than a mile but my calves and shins and ankles hurt bad! I kept telling myself it was fat and weakness leaching out of my muscles lmfao. My fibro was already pretty bad, but it got worse when I took valproic acid (which was for migraine prophylaxis, and the side effects just sucked too much to be worth it). I know I gotta talk to my new doctor when I see him about better pain control, but until then, all I have is tramadol a... Wed, 22 Jan 2014 19:38:32 EST Employment suggestions I need to get back to work one of these days. I've been helping with my grandchildren for a couple of years. I was working part time as a home health caregiver but that work has become way too physically impossible for me with my Fibro issues. <BR> I have an Associates degree in General studies. I previously worked in Health Care and as a Secretary. I love office work but sitting in a chair too long causes pain and spasms. <BR> <BR> I applied for Social Security Disability and my case is... Wed, 22 Jan 2014 09:35:40 EST Hi from So Ca Hi, <BR> My doctor thinks I have fibromyalgia. She is running blood work and I go back and see her in about 3 weeks. I started havering really achey,muscles after my knee replacement last Feb that has just gotten worse. Lucky I have tramadol to take in the morning or I am miserable. I was taking Celebrex for my knee but stopped and then had a real issue with my muscles hurting. They ached no matter,what,I took unless,it was a heavy,duty pain pill. Even the shower water,hitting my skin hurt... Mon, 23 Dec 2013 10:41:06 EST Newbie Tells All ; ) <em>524</em> My name is BertaLynn or just Berta. I have fibromyalgia and I'm finding as I get older I have more symptoms and it seems more chronic. A friend recommended spark to me. Since July 2009 I've lost 201 pounds in a 12 step program for compulsive overeaters. I realized that I was eating in the same was alcoholics drink. So, even though I'm not longer in a wheelchair and the transformations in my life are amazing - I still struggle with this fibro challenge. I've started track... Sat, 26 Oct 2013 10:24:40 EST i've been away for awhile,but glad to b back!!! the fibro support I always got from this group seemed to always keep me going with this terrible disease. lets face it,we all need it!! :) Sun, 29 Sep 2013 04:08:37 EST Stevia experience Can I get opinions about using Stevia sweetener. <BR> One of my doctors has recommended it but I've been told otherwise by different doctors. Sun, 15 Sep 2013 11:01:33 EST my experience with Cymbalta At first Cymbalta 30mg a day worked very well for me. I thought it was the miracle drug. It decreased my pain about 50% and decreased the muscle spasms about 90%. Then it stopped working after 3 months. I've taken it about 6 months now. It started causing severe headaches, skull itching, different types of life altering tinnitus, and this is crazy but I swear the ticking of the clock now sounds like the clock is talking to me. <BR> Cymbalta does still help my anxiety and depression. It... Sun, 15 Sep 2013 10:59:08 EST Do you remember: Treehouses (In the wrong place) I have a brain injury so have lost a lot of memories but I do remember nailing boards into tree trunks so we could make a very sketchy (and looking back) unsafe treehouse. I have four sisters so finding my own secret tree was awesome. I grew up on 13 acres of property so we had lots of places to run about. <BR> <BR> My dad used to build model planes he would fly and some gliders and THAT was so cool, until he crashed into a tree. He had a well groomed runway so we constantly had ultra-lites... Sun, 8 Sep 2013 23:44:51 EST Do you remember When summer seemed to go on forever long days and late nights playing out till after 10pm and it still was light. The games we used to play hopscotch. hide and seek What are your childhood memories <em>260</em> <em>409</em> Thu, 5 Sep 2013 14:26:45 EST I am new here and fighting fibro with exercise My name is Lisa and I am 38. I have had fibro since 1999 when I was hit head on by a drunk driver. It also left me with other chronic pain, a brain injury (so now insomnia and balance problems and memory loss) and of course the fibro. I have some mental disorders too since the accident. <BR> <BR> About three weeks ago, i had an epiphany which is sort of a long story so I will go into it some other time, so I started exercising heavily doing the couch to 5k training. I used to be a cutter to ... Wed, 28 Aug 2013 03:50:15 EST Let's Chat it Up! Hi. Bri (long "I") from Colorado. I don't see a chat thread so I thought I'd start one. <BR> <BR> Did y'all have a nice weekend? Hubby works 4 10-hr days so always gets a 3 day weekend. Friday he wanted to relax so I went to the park by myself. I ended up getting my car stuck in mud. He relaxed some once he pulled it out. <BR> <BR> Saturday we shopped. Farmer's market, then the commissary. Lot's of healthy food in the house now. <BR> <BR> Sun, not so good here. I go sick in the aft... Mon, 26 Aug 2013 09:29:26 EST the enigma of a butterfly I feel your pain; my path has been a similar one. My pain came so much earlier in life now that I look back in my childhood. The earliest episode as a baby they say, then a bad episode in 5th grade a talent show the excitement I guess brought on a server leg cramps in my shins, off and on the next few years we thought growing pains, at times rashes appeared thought to be allergies, first rash I remember, I had been at outdoor circus and ate raw peanuts so doctor thought she’s allergic or heat... Sun, 18 Aug 2013 17:31:24 EST Let's Chit Chat <em>213</em> Hope you are having a blessed day. <BR> <BR> Just a couple more of July. It's been a month, that's for sure. I'm trying to make the most of what's left of the month. Cleaning 5 minutes at a time. Better than nothing, but that's life with the monster. <BR> <BR> Once a month there Is a huge yard sale at Fort Carson the first Saturday. It's incentive to get rid of more clutter. <em>244</em> <BR> <BR> What are you all doing today? Tue, 30 Jul 2013 09:42:57 EST One-Liners Don't let your worries get the best of you; remember, Moses started out as a basket case. Fri, 19 Jul 2013 03:44:39 EST Start of a new week I gained since my last weigh in. Today is my the first day of my new week. Going to do the best I can. It is like the start of the new Going to be tough since WW doesnt' count veggies and fruit and FB and SP do. <BR> <BR> Last week was a fibro flare and when I hurt like that I eat.....anyone one else like that? Suggestions on how to stop that would be great. <BR> <BR> I always drink all my water, quit drinking Diet Pepsi last November so all I drink is water and the occas... Sat, 13 Jul 2013 08:43:42 EST Emotitcon your day <em>104</em> Feeling positive today! Fri, 12 Jul 2013 12:42:49 EST Uh...bad day:( Bad news, flare from hell from yesterday still here. Tomorrow will be a slug day. <BR> Bad news, grocery shopping today and two other stops. <BR> Good news (?) so far today over 5000 steps. My goal is 3500. <BR> Thu, 11 Jul 2013 15:47:00 EST anyone here have a FitBit? I just got one about a week ago and love it. It really helps me see how much I am doing everyday. In 6 days I have walked 5.68 miles:) I have a goal set of 3500 steps a day but if I don't reach that I don't. I have the FitBit Zip. Mon, 8 Jul 2013 08:12:12 EST Hot weather and exercise I was looking at the "Does hot weather affect your fibro" discussion. I am indeed, one of those people who has a difficult time with swelling and pain in the hot weather. The combination of those two things makes exercise really difficult. Does anyone have any suggestions or insights into how to exercise in hot weather when it increases your pain level? Tue, 2 Jul 2013 20:10:52 EST New to the group, old to Fibro Hi everyone! Just throwing my two cents in and saying hello. I live in Washington DC and suffer from Fibro too. I've had the symptoms for years, but dealt with the doctors' "I don't know what's wrong with you!" testing and medication cycle I am sure we are all familiar with. But I am happy to see there is a group with people who know what I am talking about when I say "my trigger points hurt" or "I feel so awful today". My reason for joining to get to healthier and deal with my fibro better s... Mon, 17 Jun 2013 13:27:38 EST hi Hi my names Barb and I live in the Uk its taken me awhile to introduce myself as I keep forgetting my login details. (Fibro fog)I've had FM for 15yrs but it took about 7yrs to be diagnosed. I have eventually learnt how to manage my condition. I swim at least 3 times aweek anything from 10 to 30 minutes, I pace myself in anything I do by breaking it up into sections. I have a positive attitude towards FM I always repeat I have FM but FM doesnt have me. On bad days I allow myself todo very lit... Mon, 3 Jun 2013 10:08:41 EST Great to see this Group Hi, I've had Fibro for about 15 years and have learned that water exercise works best for me. Walking and Tai Chi are also good. I'd be interested in looking at the video of modified Yoga. On good days I try to do more, but hope to build up some better tolerance and hoping weight loss will also help the chronic pain. Mon, 3 Jun 2013 00:46:05 EST How do you stay motivated? How do you stay motivated? I really want to lose this weight. However, I take two medications that cause weight gain. So, sometimes I just feel like I'm doing good to stay at the same weight. I have exercised three days in a row this week. This is the longest I have exercised since getting sick. I just need some ideas of how to push myself to lose this weight. I want to be skinny again! <em>46</em> Sat, 25 May 2013 17:09:17 EST A very good resource I've found a web site that finally provides in depth information and ideas about how to deal with fibro. The University of Michigan Health System now has a Chronic Pain and Fatigue Research Center. The site addresses a number of issues, like fatigue, sleeplessness. Here's the link: <BR> <BR><BR>x.htm Sun, 12 May 2013 16:18:29 EST Is IBS common with Fibromyalgia? I was diagnosed with Fibromyalgia 11 years ago. Collagenous Colitis in November 2011. This seems to be a common thing. Meds? Fri, 3 May 2013 05:59:51 EST Hi, I'm Donna Need exercises that don't hurt So glad to find so many fibro Teams. I hope to find out what works for others that doesn't cause flare-ups. I tend to go all out thinking I can do things the way I use to and then I am laid flat for a week recuperating. How do you do it safely? After 20 yrs. of having fibro you would think I would have learned how, but I confess I haven't. It never feels like I am overdoing it at the time but 2 days later I can't get out of bed I am so sore. What am I doing wrong? Mon, 8 Apr 2013 16:27:55 EST a bit of me Hello! <BR> I'm Kaitlyn. I was diagnosed with fibro in october of my senior year of highschool. I was also diagnosed with arthritis in my knees and hands, as well as a possible IBS and some other stuff. a few months later I had a kidney stone followed by another a few months after that. So needless to say I'm working hard to get myself back to being healthy. <BR> <BR> Since then I was diagnosed with gluten intolerance. I miss regular food a lot, butits made such a huge difference in my life... Thu, 4 Apr 2013 13:12:22 EST Medication Hi all! I have recently been prescribed Nortriptlyne (sp?) for chronic pain.. I was wondering if anyone esle has been given this and if it helped.. Tue, 2 Apr 2013 12:05:56 EST Just joined! Hi! Just joined the team and SP today. Now need to dust off the weights as I joined the weight challenge. Mon, 18 Mar 2013 23:12:25 EST Just joined your group today! Hi Everyone! My name is Jane and I'm from Ontario, Canada. I have Fibromyalgia as well. I also suffer from chronic neuropathic back pain due to several fractures, and nerve damage, and Rotator Cuff Tendinitis, due to several shoulder injuries. <BR> I'm becoming frustrated trying to exercise because I'm in so much pain all the time. Mon, 18 Mar 2013 21:29:05 EST mattress topper? What works for you? I have Fibro and a chronic bad back along with a host of other ailments. My spring mattress is about 7-8 years old and is getting hard to sleep on and I am waking up hurting more than when I went to bed. <BR> <BR> I read that a memory foam mattress topper may be the way to go so my husband and I researched the heck out of it and decided to go with one. We got a 4 inch, 4 pound density memory foam. We had it on our bed for the last two nights. I was pleasantly surprised that the odor was not... Mon, 11 Mar 2013 09:53:22 EST exercise Ugh,after all the reading I've done about how much exercise can help those of us with fibro, feel better, I joined a fitness center. I've been going there since the middle of December. There is a heated pool,yoga, etc. I've tried going 4 times a week. Total pain. I cut it down to 3 times a week.Still total pain. Even at two times a week total pain. I'm starting to think exercise is far from any kind of help to me. What do you think and what have you found that works for you? Mon, 25 Feb 2013 14:12:41 EST Hello :) I'm new here. Hello all, I'm Kara, <BR> <BR> I'm not new to Sparkpeople, but I have deleted my old account and made a new one to start fresh. None of the stigma of my past failures to get me in a rut. <BR> <BR> This march will mark the 8 year mark for my "Fibro anniversary". I've had fibro since I was 15, and honestly it's a pain the butt! <BR> <BR> I'm pretty good at ignoring the foggy view on life that I have that makes it seem like someone else is moving my body. Sometimes, though, I just want to g... Mon, 25 Feb 2013 00:44:46 EST Hey I'm tired now from filling out my SparkPage stuff, and I've had another sleepless night, so I'm just gonna say hey! <em>213</em> I'm Toni. Thu, 21 Feb 2013 03:48:16 EST Hello from Ohio Hello all! I have been a Sparker for a long time, off and on. I have fibromyalgia, psoriatic arthritis, degenerative disc disease, and Hashimoto's disease. I had symptoms of fibro in grade school, and I remember the pediatrician telling my mom that I obviously had something, but he had no idea what. He said maybe someday medicine would advance enough to figure it out. I was on medicine for my stomach by the time I was 10, from all the meds to control my pain. I was finally diagnosed with fibr... Sun, 17 Feb 2013 18:14:37 EST Hello all and Happy new year I am Liz!! I am a Mom of 3 <em>345</em> kiddos that try their hardest to take care of mommy!! that seems a bit backwards but we all try to take care of the ones we love!! The medication side effects vs the pain is my struggle i am fighting right now! What one is worse!!? What medication has the best results vs the worst side effects? I am so tired of being a test dummy!! This new year is going to be a great year, it has to be!! I am going to work hard for it to be! I hope for the best!!! ... Tue, 1 Jan 2013 20:35:44 EST Good morning from a North Central state I am grateful for all the interesting people on this team. <BR> I have been battling fibromyalgia symptoms longer than I imagined, once I heard the name for it I realized that I had these symptoms in 1st grade. No wonder I was so sickly in school, I was allergic to it. <BR> I had back surgery in 2011 and I was allergic to so many meds that I just had to hurt and live through it. It was a very long road. <BR> I just finished with another round of physical therapy and the wonderful care tha... Thu, 27 Dec 2012 11:45:54 EST WORN OUT FROM LIFE STRUGGLES I am feeling just worn out from life, struggles, illness and physical and emotional pain and conflicts. I probably did not tell you that I called Vicki(Vicki has been a good friend for 22 years but she has said very harsh, unsupportive things to me and has not been there for me since I moved 2 years ago and am still ill) 2 weeks ago and told her on my message that I hoped her hubby's surgery went well and that she should call me when she has a chance since I want to talk to her. I only heard ... Mon, 19 Nov 2012 00:25:58 EST Fibro in Kansas City If you're from anywhere near the Kansas City area, you've probably heard the saying that if you don't like the weather just wait 10 minutes and it will change. This so true it hurts! <BR> <BR> I'm sure many of you are plagued by the weather changes and how it makes your muscles tense, your joint aches, and can be really depressed by the grey, cloudy skies. On Saturday it was in the high 80's (beautiful day for my brother's wedding). Sunday morning when I woke up it was 36 out. A 40 degre... Tue, 13 Nov 2012 10:53:18 EST Where do you sleep? I have a memory foam mattress topper that I have folded into 4ths (longwise), on a couch in my craft studio. I can't sleep with my husband in our beautiful king-sized bed because we both wake each other up snoring, plus I toss and turn, talk in my sleep, and moan and cry from pain. And then there are the many nights when I have to deal with restless leg syndrome and/or leg cramps. He never complained, but we both slept better when I tried sleeping in the other room, so now I do it all the ti... Sat, 3 Nov 2012 16:30:42 EST Does anyone have trouble with housework? I mean more than just not liking it. I find between the fatigue and aches, there is a lot that doesn't get done. So on Saturdays, after a long week at work, hubby helps me do housework. At least that's the plan! <em>20</em> Sat, 3 Nov 2012 09:34:54 EST Weekend Plans? Do you have plans for the weekend? <BR> <BR> Joann's crafts is having a big sale so I will be there when the doors open today. I am stocking up on all I can to do my craft booth crafts. That will take up half the morning. I am preparing myself now to be able to deal with the crowd that is sure to be there. <BR> <BR> <BR> Not sure what will be happening after church tomorrow. Hope to do something with hubby. <BR> <BR> <em>465</em> Sat, 3 Nov 2012 07:10:07 EST Hello from the NorthWest Hi all! <BR> Working mother of 2. Thought I would join this team for ideas/support from fellow fibro sufferers. <em>2</em> Wed, 31 Oct 2012 10:53:18 EST Fibro Fog Came in Handy When..... I hid my chocolate on myself in a fog. Today I wanted chocolate so bad, battling myself because this is day one of my streak, and couldn't find it! <BR> <BR> Something good happen to you while in "the fog"? Mon, 22 Oct 2012 18:57:36 EST Not Certain I Belong Here? Hi, Everyone. My name is Carol and I've been a member of Spark, on and off, for years. I came back in May of this year and have doing pretty well - heading towards my goal weight. What I have not been doing very well with is constant chronic pain - everywhere <em>39</em> I may have had pain for a long time but it wasn't until a year ago that it got so bad I couldn't just ignore it. I have a high threshold for pain but this is getting to me. I saw something on symptoms of Fibromyalgia and r... Thu, 18 Oct 2012 16:41:57 EST New to sparkpeople, but not to fibro Hey, y'all. I'm a good, old-fashioned Southern gal who was diagnosed with FM about 27 years ago, but know that I've had it all my life. (My dad used to call me a baby when he'd squeeze my knee and I'd complain that it hurt.) A couple of years ago, when I was teaching preschool, there was a little girl who complained of pain whenever I'd touch her. I told her parents to check out FM, but I don't think they did. I am sad to think of this precious little one living the kind of life I did growing... Wed, 17 Oct 2012 12:23:49 EST Hello from Orlando! Hello Everyone, My name is Margie and I'm 47 yrs old with 7 children and 3 grandchildren. Newly diagnosed with Fibro and major weight gain since June due to many medical issues including being placed on life support for 9 days in June. I woke up on July 4th! I spent the majority of the first 6 months of this year in bed feeling sorry for myself and in severe pain. All I did was get sicker. Once I was placed on life support my family started planning my death. Thank God he had other plans for ... Sun, 14 Oct 2012 20:02:33 EST I'm bummed <em>2</em> The Dr's weigh in on Fri. was 204. So I'm discouraged! I'm eating right, & I'm walking again...I did have a med change, Maybe that's why I gained. Mon, 24 Sep 2012 18:12:24 EST how do you bail how do you bail (again) on plans with good friends because you just don't have the energy/are in way too much pain? people in my life are just learning that i have fibro and don't really understand it. i've had 'convenient' excuses recently (a couple family members died and there were funerals and such to attend), but i have nothing this time. i just can't do it... i'm stressed out about having to tell them that we're not going to the cabin. my husband won't help breaking the news. all i ... Sat, 22 Sep 2012 10:59:23 EST New Resolve Hi everyone. I'm still exploring this awesome site! I'm 53 yrs. old, a widow of 3 yrs. I have 2 daughter's, who've given me 6 beautiful grandchildren! I have been disabled for 7 yrs. I believe I've had FMS since childhood, or at least by 20. I remember telling my elementary teacher that I hurt, & her response was "Oh, it's just growing pains". In my 20's I would tell the Dr. I hurt all over. After all diagnostic tests didn't show anything, the Dr. said "it's all in head, or, it's psych... Wed, 19 Sep 2012 11:16:42 EST Medical questions Okay - I was diagnosed basically by my primary care doctor who went over my list of symptoms, medical records, and such over the past 33 years. He has since referred me to a neurologist regarding my neuropathy and I was told by this neurologist that my previous neurologist in another state was a quack and that I don't really feel what I am feeling and that I am a waste of a doctor's time. Then I got another referral to a different neurologist who confirmed what the neurologist in Missouri fou... Tue, 18 Sep 2012 21:32:31 EST new to the condition and team :) hi folks! <BR> <BR> my doc and i are currently in the process of getting a definitive fibro dx. we've been working on it for the past two months, during which i've been in a constant flare. i don't get to go for my sleep study until the end of november, but fortunately, my insurance was talked into letting me start cymbalta for depression (yay!). i'm currently tapering my prozac so i can start on the cymbalta in about 2 weeks. <BR> <BR> even prior to dealing with this fun, i've been work... Tue, 18 Sep 2012 12:16:26 EST love to travel but can't i had a really nice trip planned today,but had to cancel out because of this fibro,does anyone else here suffer from flare ups after traveling? <em>46</em> Thu, 13 Sep 2012 00:04:58 EST Menstrual Cycle + Fibro = FLARE UP!??!!?!?! I am new to this diagnosis and I swear i can tell you that I will start my period with in a week because I will FLARE up! My skin hurts, my scalp hurts, my legs are on fire and all my joints feel like they have sand paper in them! <BR> <BR> Has any of you dealt with this? <BR> What did you do to help this? <BR> <BR> I am trying not to take more meds but i need help because its hard on my family! I am a GS mom and a Volleyball mom and my son is going to People to People! I can't let ... Sat, 1 Sep 2012 11:43:01 EST I love the team pic!! Hi, I am Ro. I have officially been diagnosed with fibro for 8 yrs, but I think I have had it since about 16. It got called everything from growing pains to hypochondria. Then I had a nervous breakdown in 2004 and my mother who is in a wheelchair part of the year from her fibromyalgia, looked at me and said, you have fibro, go get checked by a rheumatologist. I did, and after this tiny, harmless looking doctor got through trying to turn me into a pretzel, she said “You have fibromyalgia”. It... Sun, 26 Aug 2012 11:24:52 EST Hello All I have been recently diagnosed with Fibro and the med have made me blow up to my PREGO weight! I really just wanna get healthy and stay there! I am only 30 years old and have 3 kids, a husband, 3 cats, and dog! I love my family and know that this is affecting them as well!! I just want to feel like me again!! Thanks for having me in your group!! Thu, 23 Aug 2012 11:54:20 EST Just joined Hi all, have had fb for over 20 years now, looking forward to meeting others with this problem and getting new suggestions. Mon, 13 Aug 2012 20:21:28 EST tendinitis Are any of you particularly prone to tendinitis? I get it a LOT, mostly in my left wrist and left foot, just at the top where all the bones seem to meet. I get it other places, but those are the most common spots. <BR> <BR> I had a scare a few months ago when I developed very bad hip pain, again, the left side (maybe the left side doesn't like me?). I was worried that something was wrong with my hip but my rheumatologist found it was "just" tendinitis. That was good news, actually. I'd rathe... Wed, 8 Aug 2012 17:22:28 EST The good news, so-so news and blah news The good news is that I'm not feeling quite as fatigued as before. I'd rate my fatigue about at 5 now, as opposed to the 7 or 8 it can be. I have been going to the gym faithfully - 25 days out of the past 26. I don't do too much: 20 minutes on the elliptical and then 3 upper body weight exercises. That's all I can do and that is enough! <BR> <BR> My so-so news is the article that I wrote for USA Today's health supplement on fibromyalgia isn't being published right now. They scrapped the supp... Mon, 6 Aug 2012 07:59:47 EST Throw the Beachball - Tag Game Choose any member of the team. Using the beach ball goodie, "throw" it to them. That person then throws it to any other member of the team. <BR> <BR> Have fun! Fri, 3 Aug 2012 05:49:48 EST Hello Fibro Friends Hi, 35 y/o female here with Fibro, Panic disorder, Depression, PCOS, PMDD, SVT, and a host of other issues. <BR> <BR> First Weight: 287 <BR> Current Weight: 223.1 <BR> STG: 199 <BR> LTG: 160 <BR> <BR> Love to connect with others that understand that sometimes exercise is TOO hard to do. While hurting and dealing with Fibro Fog it's hard to get motivated to move much. I need to move more. Anyone else out there like me? <BR> <BR> ((Also, I really want a nifty weight tracker!)) Wed, 25 Jul 2012 23:17:01 EST What are you Grateful for Today? Today I am grateful for... <BR> <BR> 1. The weather was not exhaustingly hot today. <BR> <BR> 2. I found a good job lead. <BR> <BR> 3. I had good energy today, which has been rare lately. Fri, 13 Jul 2012 01:15:57 EST another new team member Hi all, <BR> <BR> I've rejoined SP since trying it two years ago. I have more motivation now, so hopefully I will be able to take advantage of what SP offers. <BR> <BR> I've had FM all my life, but was only diagnosed with it a year and a half ago. I can trace back my pain and fatigue to my teen years and I'm now 51, so you can do the math to see how long I've been feeling crappy a lot of the time! <BR> <BR> I work from home, I'm a health writer, so this is great. It allows me to work at my... Wed, 11 Jul 2012 10:41:58 EST Truisms to Live By ~Another Sue Falkner-Wood blog~ <BR> <BR> Renewal in a Life of Chronic Pain: Truisms to Live By <BR> Ask anyone who has lived a daily life of chronic pain, and they will tell you: <BR> <BR> Cats aren’t the only creatures with nine lives. <BR> Human life tries to renew itself if we give it half a chance. <BR> Pain doesn’t kill you, even though you think it will or wish it would. <BR> If you’re bleeding, make it stop. <BR> If you’re laughing, it’s a good day. <BR> If you’re crying, it will ev... Sat, 9 Jun 2012 10:39:36 EST where is everyone?? <em>24</em> Seems like everyone pooped out around here?? <BR> Is everyone on vacation from Sparkpeople?? Hope not, cuz I know your not on vacation from "FIBRO" <em>198</em> <BR> Lets keep eachother posted as to how we're doin!! <em>104</em> <BR> And let's have a "POSITIVE" report... so everyone can feel good! <em>306</em> <BR> Daily we all have some thing to be positive about, even if it's healthy food on our tables <em>267</em> and being able to move, even if just a little <em>31... Mon, 4 Jun 2012 13:22:52 EST Needed: Tips for Flying I came to San Diego this week. The plane ride was excruciating. Any tips - I'm headed to Charlotte next week and that will be an even longer flight. Wed, 30 May 2012 16:07:57 EST Happy Memorial Day! Military Family Members? <em>232</em> <em>232</em> <em>232</em> <em>232</em> <em>232</em> <em>232</em> <em>232</em> <em>232</em> <BR> <BR> There are too many to count in my family. I ask that you remember the family members as well as the service men & women! <BR> <BR> <BR> <BR> <BR> Mon, 28 May 2012 05:54:15 EST from the fibro network By Constance Burel <BR> <BR> YOU came in my life without asking, <BR> made me do things I didnt want to do <BR> YOU steal my sleep, YOU make me eat, <BR> With YOU, it difficult to stand to my feet. <BR> <BR> I press my way each and everyday <BR> A price I pay for being this way, <BR> I pray and cry and ask God why, <BR> Somedays I think I going to die. <BR> <BR> Like the weatherman, I can predict the rain <BR> You cant have my life, YOU DEMON NAMED PAIN!!!!!!! Fri, 25 May 2012 07:49:09 EST It is OK to Laugh I found this on Sue Falkner-Wood's Blog- <link><BR>h-chronic-pain/you-know-you-have-chron<BR>ic-fatigue-when/ </link> <BR> "Life with Chronic Pain: A How-to Guide" <BR> She believes in finding the humor in our pain struggles. <BR> <BR> YOU KNOW YOU HAVE CHRONIC FATIGUE WHEN… <BR> <BR> You can’t lift off from the bedside in the morning without feeling like someone has tied your feet to the floor. <BR> <BR> Your trip into the bathroom is as arduous as c... Thu, 24 May 2012 11:12:54 EST fibromyalgia I got this from the fibromyalgia network. This is a good explanation so I thought I would share this. <BR> <BR> NO COPYRIGHT INFRINGEMENT IS INTENDED ALL CREDIT GOES TO MARCKOLYN DILLON <BR> <BR> <BR> F is for the Finding we always have to do; we've found out keys again, but now where is my shoe? <BR> I is for the Impact on our family and friends; we're so grateful to them for a love that never ends. <BR> B if for Breaks, we must take a lot each day; it's hard for us to work or watch ... Sat, 19 May 2012 15:22:08 EST FIBRO-EASY EXERCISING ! List "yours" ! <em>33</em> Morning... I've just found a very very good/positive video series at my library called "Its Never Too Late" for "healthy aging". It's designed for senior fitness, but I believe it's also excellent for fibromyalgia sufferers. She hits all types of movements, her being a fellow senior, and she is so positive and upbeat. I think she a wonderful instructor. <BR> <em>185</em> Her website is and she has three videos to offer! <BR> Anyway that's my little tidbit fo... Fri, 18 May 2012 14:04:59 EST FEELIN GOOD TODAY !!! <em>334</em> Don't ask me why some days are better than others... they just are! I'm taken advantage of this day immediately before it changes. Thats what happens with my fibro... you just never know?? <em>24</em> <BR> Did my strength training and now off to my treadmill... gonna try for 20 minutes today, since I'm feeling like it.... YOU GO GIRL!!! <em>224</em> <BR> Hope you have a good morning and talk to you soon.... Soft fibro hugs to you all! <BR> <em>253</em> <em>247</em>... Thu, 17 May 2012 14:32:23 EST Have you ever...... (crazy experiences with fibro ...Woke up and not known where you are? I had a rough night of pain and finally slept out of exhaustion. I woke up to a rooster under my window. I knew I was in my bed, but I didn't know where I was. I couldn't remember where I lived. I was yelling to my husband asking him where I was. He kept telling me I was in bed next to him. I was so scared and angry. That much I had figured out. I wanted to know what town I was in. It took several minutes to get oriented. <BR> <BR> <BR> <... Tue, 15 May 2012 11:09:05 EST Hello Hi. I'm glad to meet all of you. I was diagnosed with fibro about 14 years ago along with the diagnosis of Lupus. I'm ready to lose weight and become healthier. I know that my weight has some baring on how I feel daily. I also know that the fibro effects how I feel daily. I recently lost weight going to a weight loss clinic but I haven't lost a pound in 2 months and it is discouraging. I bought the Zumba series but to be honest, by the time I get home from work, I'm to tired to exercise. I fo... Mon, 7 May 2012 19:50:43 EST 100 Tips for Coping with Fibromyalgia & Insomnia Dominie Soo Bush offers many great tips on dealing with our Fibro. <BR> I thought it might be worth checking out. <BR> <link> </link> Wed, 2 May 2012 11:11:00 EST The Spoon Theory - "But You Don't Look Sick" This is an amazing peice. Many of you may be familiar with it. It's worth reading every once and awhile, and certainly worth sharing to your family, fibro friends and others with chronic issues. <BR> <BR> It is copywrited, so please be considerate and pass the link rather than cut and paste. <BR> <BR><BR>es/written-by-christine/the-spoon-theo<BR>ry-written-by-christine-miserandino/ Fri, 27 Apr 2012 09:00:31 EST 10 Best Things about Fibromyalgia I couldn't resist. <em>334</em> <BR> <BR> (from <BR> ________________________________________<BR>_____________________________ <BR> <BR> I save money on magazines. With brain fog, I can’t remember what I just read! <BR> <BR> I am a cheap date. No alcohol, no dessert and I still feel drunk or hungover. <BR> <BR> On ‘good day’s I feel wonderful. Other people need a much better day to feel that way. <BR> <BR> I am easy to find…I’m either at the Dr’s office or at home. <BR> <... Wed, 25 Apr 2012 14:29:05 EST Tell Us What is Special About Where You Live I live on the plains of Colorado. I am blessed to enjoy gorgeous sunrises to the east. In the evening, to the west, I get to watch the sun set over the mountains. <BR> <BR> I live in the Colorado Springs area. There is something and then some for everyone. There are mountains to climb and hike, rivers and lakes to fish and water sport in, and multiple parks. <BR> <BR> There are many places to visit. Garden of the Gods, the Air Force Academy, Pro Rodeo Hall of Fame, Focus on the Family, ... Wed, 25 Apr 2012 08:26:29 EST Intro Hi, my name is Barbara. I am 47 years old and very overweight. I started exercise and diet 3 weeks ago with the assistance of a wellness center at my doctors office. I fell on my basement steps on Easter Sunday and had to cease exercise ( although I consider getting around on crutches exercise ). I injured my ankle and have spent a lot of time on the couch propping it up. I return to water aerobics on wednesday and some hand bike for cardio. I was impressed with myself when I went to the doct... Mon, 23 Apr 2012 20:16:08 EST Hi, I'm Jen Hi, I'm Jen. <BR> I was diagnosed with Fibro about 4 1/2 years ago. I haven't yet been able to find a combination of meds that let me manage this thing. <BR> <BR> Over the years I've gone from a lean 130 lbs to almost 190. I know a lot of it was due to the meds I was on. But most is from me inability to move a lot of the time. I'm here (again) because I NEED to make a change. Whatever I can do to keep this from keeping me bed-bound. <BR> <BR> I am hoping to get back to my pre-Fibro w... Sun, 22 Apr 2012 16:10:41 EST Feeling discouraged today. Today was horrible for me as far as my diet and exercise. I had to go with my cousin to take our grandmother to have her pace maker battery replaced. <BR> <BR> We left the house at 8 this morning, it's an hours drive to the hospital. We got there, got her checked in and waited to be put in her room. Meanwhile, I am the designated wheelchair pusher. lol Which is fine with me. They finally get her in her room. Her procedure was to be around 10, it was 1:30 before they took her back. Possible t... Wed, 11 Apr 2012 23:49:54 EST Alt. pain relief I am a stress and pain eater, and I have been scheduled for surgery---no NSAIDS for a couple weeks prior to surgery. Anyone have a reccomendation (besides Tylenol) to help? I have a lot of arm and shoulder, hip and knee pain, as well as headaches. Bad waether makes it much worse. <BR> <BR> Thanks <BR> <BR> Lis <em>24</em> Mon, 9 Apr 2012 10:15:01 EST Cravings when you hurt? I have had alot of back pain today, not able to do much. I have noticed that I have craved more today, than any other day, when I dont have as much pain. <BR> <BR> Anyone else? Mon, 9 Apr 2012 01:00:16 EST Fibro in Colorado Hi everyone! I'm new to SparkPeople and this team. I was diagnosed with fibro in 1996 and have been working at controlling it through diabetes, cancer and life in general since. Looking forward to getting to know others here and finding out tips and information. Have a wonderful evening <em>41</em> Sun, 8 Apr 2012 18:23:47 EST Deep tissue massage? For Mother's Day I have decided to use a coupon to a day spa that I have had for years. I love full-body treatments and am considering the deep tissue massage, but I'm not sure if it will help or aggravate my fibro. Has anyone had some experience with this? If not the deep tissue, are there other treatments you would recommend? Sat, 7 Apr 2012 15:01:58 EST new to the spark Hello i am a 22 year old musician just diagnosed with fibromyalgia so its gotten hard for me to move around on ad off the stage i hope to loose 44 lbs to make it easier and to look better Thu, 5 Apr 2012 15:44:24 EST Having a bad pain day Woke up this morning with really severe pain in my left leg. I think the workout I did yesterday aggravated it. I also have OA in my left knee, so, it's a double whammy. <BR> <BR> Hope everyone else is having a better start to their day. Thu, 5 Apr 2012 08:06:51 EST A LETTER FROM FIBROMYALGIA A LETTER FROM FIBROMYALGIA <BR> <BR> Dear Miserable Human Being, <BR> <BR> Hi, my name is Fibromyalgia, and I’m an invisible chronic illness. I am now ‘velcroed’ to you for life. Others around you can’t see me or hear me, but YOUR body feels me. I can attack you anywhere and anyway I please. I can cause severe pain, or if I am in a good mood, I can just cause you to ache all over. <BR> <BR> Remember when you and Energy ran around together and had fun? I took Energy from you and gave you Ex... Wed, 4 Apr 2012 11:21:55 EST Hoping to keep well Hi fellow 'Sparkies' <BR> tried this site a few years ago for a few months and drifted off. Recently having had an abnormal result on my kidney function Sparkworld was the one place I knew where I can hope to control my protein intake, also check potassium, sodium and other elements I must avoid or curtail. I remembered before that when I used Sparkpeople my diet was erring on the protein side and the thing is even bread contains it, especially oat bread, trying to be healthy needs rethinking... Tue, 27 Mar 2012 09:36:25 EST I have Fibro and Im new to site Hi my name is Sarah and I am new to this site I have had Fibromyalgia for a yr now (that is when I was diagnosed). I am sure Ive had it longer. I am inconstant pain and the med they have me on takes care of some I need to learn to "deal with it" Mon, 26 Mar 2012 16:32:50 EST Hello from Oregon Hi, I just wanted to stop by and say hello and introduce myself. My name is Shana and I am a mother of 4 and wife of almost 20 years. We moved back to Oregon this past year after living in Kentucky for 13 years and we love it here. I was diagnosed with Fibro a few months ago after living years with unexplainable pain. Since my DX I have decided to become more in charge of my body, I still have those days where even getting out of bed isn't a option but I still try watching what I eat and 5 ... Mon, 26 Mar 2012 14:28:11 EST Doctor Won't Diagnose Has anyone had the issue where your family doctor won't give you a diagnose of "Fibro" ?? I've mentioned this at least twice before and he just passed it on so this week-end I've tried to compose a letter which I'm going to leave with his nurse tomorrow morning and hopefully something more will be done and he'll at least give me a diagnose. <BR> ************************************** <BR> 3/21/12 <BR> Dr. : <BR> I have questioned you on this in the past and I still feel it’s a valid cause fo... Sun, 25 Mar 2012 23:18:56 EST Have any quotes to share? A successful man is one who can lay a firm foundation with the bricks others have thrown at him. <BR> David Brinkley Sun, 25 Mar 2012 15:23:11 EST website link. This blog is to tell us how apple cider vinegar helps relive fibro pain. Check it out for yourself and share your thoughts here. I'm curious as to what everyone will think.<BR>pple-cider-vinegar-and-fibromyalgia/ Thu, 22 Mar 2012 20:20:52 EST Intro Hi! My name is Stephanie. I'm 36 and was diagnosed with Fibromyalgia in March 0f 2011. I have been suffering from chronic pain for the last six years which has become progressively worse. It's mostly centered around my mid-section - my hips and lower back, but, affects all the tissues around all my joints off and on. It feels like I guess arthritis must feel, but, I've been tested for every kind of arthritis and that's not it. It's difficult to walk for long periods, sit for long period... Tue, 20 Mar 2012 20:51:11 EST New Hi, my name is Sunny and i am 41yrs old, i am a nurse and i have fibromyalgia. Have had it for 15 years now. A family member told me about this site, i am loving it so far. I need to lose 50 lbs. Today is day 1 so here i go! Mon, 19 Mar 2012 15:12:02 EST Hi from Canada Hi everybody. I'm new and am working at making a commitment to losing my weight and getting healthier. I'm so glad to have a place where people understand what I'm talking about when I speak of Fibro. <BR> <BR> In the past, I always had a little bit of doubt in my mind when I heard someone talk about Fibro. Well, now I know it's real and it's awful. Is this forum for mostly positive posts or is crabbing about having a bad day allowed? I live alone and sometimes I need a little extra support... Sun, 18 Mar 2012 14:11:37 EST additional support site I have joined on facebook. It seems like a great site. It's a little difficult for me to navigate because I'm not computer savvy but you can put your conditions in, treatments, lab results, weight, height and much more. The best part is you can connect with other patients that have the same illnesses. So far I like it, and thought I would pass the info along. Sun, 18 Mar 2012 10:06:00 EST Introduction Hello! I am glad that there is a Fibro Team! I logged on this am to start my Spark and to work toward a healthier lifestyle this year. I am a married mom of 4 kids ages 22,19,14,7. My family and I live in NH. I am ready to make some changes. The main is weight and smoking. Two tough battles, I know. As I age, I accumulate autoimmune disorders LOL. Hypothyroid, Celiac and now the new Dx last Friday of Fibromyalgia after two years of test and researching why I have random pain and weakness for ... Fri, 16 Mar 2012 12:30:19 EST need some laughter I changed the pic for the group hoping that some will get a laugh or even a small chuckle out of it. I know with this disease there is little to laugh about. Mon, 12 Mar 2012 11:40:12 EST Hello Hello fellow Sparkers I'm excited and hope to stay motivated to reach my goals:) Sat, 10 Mar 2012 10:46:48 EST Do you feel guilty? Hi, I started Sparkpeople almost a month ago and have had good luck with the tracking and have lost 5 pounds so far. :) I am 42 and was diagnosed with Fibro 2 years ago after becoming very sick with Tummy issues and having to have part of my colon removed. I have a good doctor that explains I will never be pain free but works to make sure I can function well. Currently, I take 30 mg of oxycodone a day. It not only helps with the pain, but keeps my blood pressure down and takes care of the IBS... Wed, 7 Mar 2012 14:44:45 EST Hi Hi, I started Sparkpeople almost a month ago and have had good luck with the tracking and have lost 5 pounds so far. :) I am 42 and was diagnosed with Fibro 2 years ago after becoming very sick with Tummy issues and having to have part of my colon removed. I have a good doctor that explains I will never be pain free but works to make sure I can function well. Currently, I take 30 mg of oxycodone a day. It not only helps with the pain, but keeps my blood pressure down and takes care of the... Wed, 7 Mar 2012 12:35:41 EST I want to get to know you I am a 60+ grandmother who has been overweight for years. What finally caught my attention was developing health problems and not being able to keep up with my grandchildren. I am four months into a physician-monitored weight management program and hope you all will be the extra support I need to keep going. I have learned enough to know that I need others to help me stay on task. <BR> Having fibro doesn't help me lose weight, but I feel so much better with every 5 pounds I lose. As I know... Mon, 5 Mar 2012 18:54:46 EST ty I have fibryo and am new to this site,Thanks for making me feel welcome. <BR> Michele Sun, 4 Mar 2012 18:52:38 EST Glad to be here Hi Everyone, <BR> I am new to this site and am happy to be a part of this group.It is difficult for anyone who does not have this disease to understand it's complexity. Here I can share with you and you can share with me.Together we can do what we cannot do alone. <BR> Thanks, <BR> michele <em>247</em> Sat, 3 Mar 2012 13:50:50 EST Looking for a fibro group Hello, Fibro-Friends! <BR> <BR> First let me say that I am sad to hear that you have Fibro, but I am glad to have this opportunity to know you and to walk together to be the best we can be despite this horrid health issue. <BR> <BR> I am looking for a fibro group where there is good participation and where I fit in. I not only need help in learning to live life to the full despite fibro, but I want a place where I can be a help to others. <BR> <BR> My diagnoses was not quite a year ago. ... Fri, 2 Mar 2012 13:51:05 EST fibromyalgia chronic pain I have had fibromyalgia for 4 years now I am going to physicial therapy and doing massage therapy. I have pain all over some days i can barely walk or go to app. i am trying to watch everything i eat and i try to walk alittle. I have alot of inflammation through my body. I am 46 married and have 3 children 2 are grown adults and 1 graduating this year. Tue, 21 Feb 2012 11:11:41 EST Hello :) Hi all, I'm Tanya. I'm 26 from BC Canada and I have fibromyalgia (of course). I was diagnosed at 22 but I've had it forever really... I was 20ish before I learned that something ALWAYS hurting ISN'T normal! (Seriously, I thought I was terrible at handling my pain...). I'm currently in a bit of a battle with my doctors as I'm hoping to be put on disability. I understand their fears since I'm only 26, but I'm unable to get through the day without tears. I can barely move lots of time, and I do ... Wed, 15 Feb 2012 17:26:22 EST what areas of the body give you the most pain? i have all over pain. Lately the pain has been the worst in my lower back , ankles, and hip. The rain does not help and neither does the cold and snow this time or year. Thu, 2 Feb 2012 16:44:20 EST How do you manage pain and fatigue? Hi, I am new to this group. My name is Denise I have had fibromyalgia for 21 years. I do not use any medication for it. I have taken Two Malic Acids from Puritan Pride everyday. I try to pace myself on my bad days. Moving even ten minutes a day really helps. I find if I don't exercise that the pain is even worse. It also helps to take warm baths when the pain really flares. I desinate household chores also when my boy's are home from college. My Husband helps out also. Trying to keep the str... Thu, 2 Feb 2012 14:57:52 EST does the hot weather affect your fibro? I am affected by the hot and cold weather both. The humidity and heat in the hot weather put pains in my joints. The extreme cold temperatures in the winter months are just as bad for me. I also have arthritis and find it difficult to put the balme on either one but always tend to blame this fibromyalgia more. I also find that the temperature changes affect my sleep patterns also. Does anyone else feel the same way? Thu, 2 Feb 2012 14:37:24 EST is it true Don't know if it is true or not but I too notice that when I eat more protein I feel better. also. Thu, 2 Feb 2012 14:31:23 EST hoe do you feel today? <em>24</em> Thu, 2 Feb 2012 14:27:19 EST introduce yourself Hi my name is Denise and I have had fibromyalgia for 21 years now. It has been a struggle at times to get my exercise in in the past due to flairups. I am constantly in pain everyday of my life throughout my whole body. There are times when the pain is so bad and the fluid in my spinal column is high. I push myself to exercise at Curves 3 times a week. I see your team goal is 4 times a week but it is hard. I joined this group because I have struggled for years to lose my weight and looking f... Thu, 2 Feb 2012 14:22:44 EST Is it true Been trying to help myself by being more informative about fibro. I read that a person with fibro should eat more protien...What is more and would the adkins diet be good? why and why not? Thu, 26 Jan 2012 15:49:02 EST Hello :) I'm an almost-33 year old mom living in BC with my husband and two boys (11 & 14). I work an hour a day at an elementary school and I'm taking classes online part time. I've learned to pace myself, but exercise is still a major issue for me. <BR> <BR> I've been diagnosed with FM for two years now, and the worse my symptoms get, the more difficult weight loss becomes. I needed to lose quite a bit before my diagnosis and I've gained considerably since then. I weighed myself a few days ago ... Tue, 17 Jan 2012 16:46:05 EST FIBRO AND NEW YEAR'S RESOLUTIONS! Even before I was diagnosed, I struggled with my weight and wanting to work out more than my body was allowing me to. After diagnosed, between the side effects of the fibro meds and the physical pain I was into, made it that much harder. <BR> <BR> I've found that a natural supplement of magnesium and malic acid helps with the symptoms as recommended by a chiropractor from NJ I consulted online (since the options for fibro patients in Puerto Rico are almost non existent). Obviously, it will ... Thu, 5 Jan 2012 23:59:41 EST HI! Hi there. My name is Mitzi and I have had fibromyalgia for 10 years and rheumatoid arthritis for 17 years. I joined SparkPeople after seeing a link on the Arthritis Foundation website. Currently I am taking the max dosage of Lyrica and still have pain and fatigue. When I started the Lyrica, I gained 30 lbs in 2 months - which I did not need. I have read many of the posts below and can relate to so many of you. I don't talk about my disorders either - because people who have not gone thr... Thu, 5 Jan 2012 15:56:48 EST Hoosier with Fibro I'm Heidi. I've had fibro for 13 years (properly diagnosed 3 years ago). <BR> <BR> I've been on SP for over 7 months now, but have to drop out of or greatly modify nearly every SP challenge I've joined due to fibro flare-ups. <BR> <BR> Winter is my worst and I'm fighting back to keep from getting discouraged, so I'm joining more fibro teams to help me get through winter. Thu, 29 Dec 2011 20:55:55 EST How do you manage pain and fatigue? Fibro makes each day a challenge just to participate in normal daily activities. Pain and fatigue and the sense of isolation can be overwhelming. Please share how you manage your symptoms on a daily basis. Has anyone tried yoga? How does food affect you? Are you taking pain medication? Any tips for managing your symptoms? Mon, 26 Dec 2011 12:29:19 EST new member - no motivation Hi all....I'm kind of new here. I am soon to have another birthday making me more middle aged. I just can't seem to get motivated even though I know I need to be. My weight keeps creeping up all the time, but I guess I am sort of delusional in thinking I am doing the right things. <BR> <BR> I try to exercise 30 minutes a day by walking. I try to eat healthy. I am hypoglycemic and have IBS, fibromyalgia, and hypothyroidism too. I get on a role and workout steadily and then fall off the wagon.... Sun, 27 Nov 2011 14:50:54 EST stomach issues I have been having problems with digestion off and on for over a year now. I'm convinced it's part of the fibro because there doesn't seem to be anything that really sets it off, similar to the pain, plus they both cycle together somewhat. All day today every time I eat I get very nauseous shortly after, then soon I have to throw up. What do others with these problems do to help ease the nausea? My doctor gave me promethazine to help, but it makes me so drowsy that I feel like a zombie wh... Thu, 17 Nov 2011 21:18:03 EST What do you use for pain? I am not able to use any medications for my fibro because of other medications that I need daily. I have tried heating pads, exercise, and I sleep with a lot of pillows around me. There are times that nothing seems to help, anyone have any ideas? Wed, 16 Nov 2011 14:09:58 EST Cymbalta - who's taking it, good or bad reviews? My doctor wants me to take Cymbalta. Has anyone taken it? Still on it? Anything good or bad to report? Thanks for any information. Wed, 9 Nov 2011 19:35:46 EST Fibro-pretender disorders, any ideas? Hey everyone! Hope y'all don't mind me picking your brains. My mother and I have some sort of wonky disorder that behaves a great deal like fibro (she does have a fibro diagnosis from a while ago), but we're both convinced it's not ACTUALLY fibromyalgia for a number of reasons. One of the big discrepancies is that the best way for us to find relief (beyond avoiding our triggers), is to APPLY pressure. For example, when my leg pain flares up, I will wrap whatever regions are hurting and I'm ... Wed, 9 Nov 2011 09:51:42 EST Do I have Fibro? My RA Dr just gave me this diagnosis of fibro yesterday. I have been to my regular Dr who had me get blood work, xrays, nerve tests, and then he sent me to an orthopedic. He saw me for 5 minutes and told me he couldn't help me & referred me to an RA Dr. The ortho Dr thought I may of had RA. The RA Doctor gave me antiflammatory meds and gave me more blood tests. I just got the results yesterday and he told me he thinks I have fibromyalgia because everything else came out negative. I am 26 and ... Thu, 27 Oct 2011 16:48:14 EST Weaning off of Cymbalta Hi there! This is my first post. I have been living the spark lifestyle for about 4 months now and seeing a doctor who specializes in weight loss. After an initial loss of about 8.5 lbs, nothing has budged. My doctor is certain that it is due to the Cymbalta and I am (VERY) slowly weaning off of it. Does anyone have any experience with weaning off of Cymbalta and whether this has an effect on your weight? I would love to hear anyone's experiences! Thu, 27 Oct 2011 13:14:21 EST Kidney problems I feel like I have pain in my kidney area. Could this be caused by medication? Currently on tramadol, cymbalta, and gabapentin. We switched lyrica to gabapentin and don't see any benefits from this medication and lyrica was too much money for me. I looked into medication assistance but we do not qualify. <em>38</em> <BR> I do not see a help emoticon! I am going in for an epidural and will ask my pain management physician. Tue, 18 Oct 2011 08:43:44 EST Article by Dr Stan Gardner Meridian Magazine <BR> Fibromyalgia: Fears, Facts, and Feeling Better <BR> By Stan M. Gardner MD, CNS <BR> <BR> In my office practice, I frequently offer complementary lectures on various topics. But many people live out of state and would like to learn more about these topics from an alternative/ integrative medicine point of view. So, for all you Meridian readers that live outside of Utah, here’s my take on fibromyalgia. <BR> <BR> Fibromyalgia is not only a pain in the neck [pun inten... Sun, 16 Oct 2011 16:39:23 EST Brand new Hi, everyone! I am living through a flare-up even as we speak, so I need support like this. I am glad I found you. <em>39</em> Fri, 14 Oct 2011 19:03:28 EST Chorella - has anyone tried it? In the Natural Health Breakthrough flyer is an advertisement for Chorella. It is Japan's top selling health food supplement. The research has won 2 nobel prizes and is hailed by NASA as a superfood to keep astronauts healthy. <BR> <BR> Its used for: <BR> healthy cholesterol and BP <BR> easy digeston and regularity <BR> to sharpen memory <BR> weight loss <BR> abundant energy <BR> healthy vision <BR> and much more. <BR> <BR> Life expectancy by Country Source: United Nation Population Program... Thu, 13 Oct 2011 15:06:33 EST New "fibro blog" - working through challenges Just letting folks know about a new weblog (posting since 9/23) I've created as a coping strategy for living with my own fibromyalgia and multiple other chronic illnesses. Some tips and tricks there people might find helpful. <BR> <BR> Right now I am focusing on establishing a bedtime ritual in an effort to improve the quality of my sleep and to get more done during the day. Sleep quality is still a long way off - I figure that is a 3-6 month project - but it's definitely improving other pa... Thu, 13 Oct 2011 10:55:24 EST New "fibro blog" - working through challenges Just letting folks know about a new weblog (posting since 9/23) I've created as a coping strategy for living with my own fibromyalgia and multiple other chronic illnesses. Some tips and tricks there people might find helpful. <BR> <BR> Right now I am focusing on establishing a bedtime ritual in an effort to improve the quality of my sleep and to get more done during the day. Sleep quality is still a long way off - I figure that is a 3-6 month project - but it's definitely improving other pa... Thu, 13 Oct 2011 10:54:53 EST Newbie I'm so happy to find this site. I'm a 50 year old night shift nurse who has about 40 lbs to lose to get back to my "feel good" weight. The 12 hour shifts have really taken a toll on my body and I also have fibromyalgia to deal with. I am looking forward to returning to a healthy lifestyle and feeling great. Wed, 12 Oct 2011 16:43:07 EST