SparkPeople Losing weight with ESRD - Kidney Failure Team Messageboard Whether you' re pre-dialysis, currently on dialysis or have a transplant, health is very important. If you need to lose weight with ESRD, here is a group that understands you! Let's do it together! SparkPeople Losing weight with ESRD - Kidney Failure Team Messageboard Effect of food on CKD Right now I am reading 'How not to die' by Michael Greger. It's a very interesting read about the effect of a plant-based diet on the most common causes of death. <BR> I found out that a lot of what he says in the chapter about kidney disease is online, too. See this video (there is a transcript available, look for a button on the left side). <BR> <BR> <link><BR>ronic-kidney-disease-with-food/ </link> Fri, 27 Apr 2018 07:42:05 EST Thank a Blood Donor <em>282</em> I have been donating Plasma which I can do every 28 days. But they talked me into trying to add platelets .... It did not go well. I got light-headed and nauseous. They stopped the machine for about 5 minutes and fed me a handful of Tums (calcium) then were able to restart and finish up. <BR> <BR> On the bright side: ........they prescribed buying a milk shake (more calcium) as soon as I left them <em>468</em> Thu, 26 Apr 2018 11:50:00 EST Here for support ..hubby in kidney failure Married to Lee for 45 years. Raised 6 kids...I am still working part time. We knew his kidneys were failing but ER visit today ran a lab of GFR 30 and he is admitted for observation and stabilizing. <BR> My thoughts and emotions are just all over the place. I plan to spend time looking through the information here...but not tonight. <BR> My name is Joyce. I know J_Hennington from another team. Sun, 8 Apr 2018 19:31:46 EST How did I miss this team? But boy am I glad I finally found it. <BR> <BR> When I got my CKD diagnosis I searched for a team about kidney disease and I know I didn't find this! I had a bad summer-health wise. After a medication which was too large a dose caused me to have Leaky Capillary Syndrome I finally had a complete physical that I had put off a few years and was diagnosed with Stage3B CKD (GFR-38). After years of carefully avoiding the diabetes that plaqued my maternal aunts and cousins, my mom and siblings, I g... Mon, 1 Jan 2018 01:37:25 EST My Renal Diet Deleted Message Tue, 12 Dec 2017 06:15:04 EST HOLIDAY GREETINGS 2017 <link><BR>history-of-thanksgiving/videos/kids-hi<BR>story-the-first-thanksgiving?m=528e394<BR>da93ae&amp;s=undefined&amp;f=1&amp;free=false </link> <BR> <BR> *****HAPPY THANKSGIVING, EVERYONE!***** <BR> <em>465</em> <em>426</em> <em>429</em> <em>426</em> <em>428</em> Wed, 22 Nov 2017 16:38:32 EST RECRUITING IDEAS, ANYONE? We used to have a large and very active group... We've lost so many of our really good posters, partly because some are no longer with us, and partly because the progression of disease tends to make any activity harder... Fatigue levels increase, the time with doctors and treatments increases, and time with loved ones becomes more and more precious... I'd like to find ways to put our group out there so people know we're still here, and see how we can help each other. <BR> I'm open to ideas, i... Fri, 17 Nov 2017 08:40:39 EST Vinegar With all the research and reading I've been doing regarding my stage 3 CKD, I've come across some sites that talk about the detoxification benefits of apple cider vinegar. Is there any truth to the claims that drinking some apple cider vinegar can help the kidneys function 'better'. I take these sites with the proverbial "grain of salt" and stick with the site for the facts but would like to hear from others regarding the benefits of a.c. vinegar, if any. Mon, 3 Apr 2017 05:21:10 EST Hello and my story Hello everyone I was on sparkpeople a very long time ago to lose weight but I decided now that I am on hemodialysis and have to lose alot of weight just to be 1/2 way considered eligible for on the bottom of the transplant list I would rejoin and find a like minded group to help. <BR> Here is my story. <BR> Well in June 2013 I had been feeling really poorly for a couple of weeks and on the 16th I decided that I had had enough of the shortness of breath (barely walking 5 feet without gas... Mon, 27 Feb 2017 11:25:47 EST Sleep... ......or lack thereof This is a question I will pose to the Nephrologist when I see him but I'd like to put it out to the Team. My family doctor had prescribed Xanax for nighttime use to calm my head. When I didn't take the Xanax (didn't take it every night) I sometimes had to take a shot of Nyquil to get myself to fall asleep. Those days are gone (happily) since I was diagnosed with CKD. I've been researching sleep aids for Stage 3 CKD and have had some success with Melatonin - 2.5 mg. The past 2 nights have ... Tue, 21 Feb 2017 03:45:09 EST New to all this Kidney 'stuff' Good Morning everyone - While I haven't been diagnosed as having renal disease, my GFR has dropped from 75 to 57 over the past 4 years. I know my increased drinking and use of alprazolam at night cannot have helped. I'm on the road to changing a lot of very bad habits and learning to have more respect for my kidneys - and body - in general. <BR> <BR> I've already discovered what a wonderful resource this team is and thank you for allowing me to join. Have a beautiful day, Bella Wed, 15 Feb 2017 05:31:35 EST Protein Issues I'm not so new to ESRD. I joined, left because the name scared me, and have returned. I've been on dialysis since Feb. 2015. I have had an ongoing problem with my protein levels. We are supposed to have protein levels at 4.0. I have never had a 4.0. My first labs had my protein at 3.8 and over the months, the numbers dropped to 3.1. I take Liqua-Cel at the center and at home but my protein numbers are all over the place. I also use Nepro and a kidney vitamin. <BR> <BR> I eat plenty of protei... Mon, 17 Oct 2016 17:29:04 EST April 16, weekly check in How are you doing? <BR> <BR> Have you been working on health goals in the past week? How did it go? <BR> <BR> Fri, 15 Apr 2016 11:53:12 EST April 9, weekly check in How was your week? <BR> Did you work on goals? How did it go? Sat, 9 Apr 2016 02:53:14 EST April 2, Weekly Check In How was your past week? How is it going? Sat, 2 Apr 2016 03:57:23 EST Chronic Rejection Hello Everyone. I just recently rejoined SP. I haven't been on in a few years. I'm a 2x kidney transplant survivor working on my 3rd transplant. I've been in a chronic rejection for the last 2 years. The kidney is hanging in there with a GFR of 18%. Still dialysis free for the time being. I am feeling the symptoms though. Extreme fatigue, constant itching, achy muscles and the ever loving muscle spasms! I'm about 40 lbs overweight and would like to get down to a healthier weight. I'... Fri, 1 Apr 2016 14:20:10 EST Weekly Check in, March 25, 2016 How are you doing? <BR> <BR> Are you working on health goals? What are they? How is it going? Sun, 27 Mar 2016 06:21:15 EST Weekly check in, March 19, 2016 How have you been doing in the past week? Sun, 20 Mar 2016 04:34:04 EST Weekly Check In - March 12, 2016 How are you doing? How is it going with your goals? <BR> <BR> What has been going well in the past week, what could be better? Sat, 12 Mar 2016 01:28:00 EST This made me smile! <link>/ </link> <BR> <BR> Thankfully little kids can be so sure of WHAT they are! Tue, 8 Mar 2016 02:55:41 EST How to help... One of the members of this team asked how we can help each other so I thought I'd post a few ideas: <BR> <BR> There are all kinds of things we can do to help each other. My mom always advocated searching for your own answers by asking questions, researching in the library, etc, and sharing it. If your doctor tells you something to try, share your info and experience with the team, whether it works or not, on the team forums. Do the same if you have a question or if you just need someone to l... Mon, 7 Mar 2016 19:46:46 EST Tool Estimates Likelihood of Kidney Failure <link><BR>nlid=97523_1842&amp;src=wnl_edit_medp_<BR>wir&amp;uac=239711BZ&amp;spon=17&amp;i<BR>mpID=960342&amp;faf=1 </link> <BR> <BR> Not sure if you can see this article without subscribing... I thought it was interesting. <BR> <BR> "An online tool that uses two kidney failure risk equations appears to accurately predict the probability of kidney failure at 2 and 5 years in individuals with chronic kidney disease (CKD) across a wide range of geograph... Wed, 20 Jan 2016 10:11:31 EST hiya hi I don't think i even made an intro post. I am Beth , stage 3 , lost a good bit of weight , still pushing , but slowly I am making it Wed, 6 Jan 2016 18:43:51 EST hello (again) Hi, I used to be a member of this team using the account 'ChristaSP'. I closed that but I would like to come back to this team. <BR> <BR> I am a 50 year old vegetarian who lives in Europe. <BR> <BR> Due to use of lithium for 12 years my kidneys were damaged. I stopped using lithium in 2002 but the damage was not reversed as the doctor promised. <BR> <BR> My creatinine (spelling?) is 96 now and the RDMD (spelling?!) is 53. I want to ask 'is that bad'? Someone said that this means I have... Sat, 5 Dec 2015 04:36:07 EST It's just sooooo hard!!! I am soon to be on hemoedialysis for 11 years. <BR> <BR> Control my fluids just got a LOT harder bcoz I have practically stopped urinating. Lately, my dry weight has kept increasing. This is very bad news bcoz it means I am gaining weight! <BR> <BR> I menopaused abt 3 years ago, so maybe my metabolism has slowed down etc. These days I can't even achieve my dry weight! I am feeling frantic! I feel I must be the worst dialysis patient ever! I just can't keep my weight from increasing! I feel... Tue, 24 Nov 2015 21:50:32 EST Menopaused and not liking the changes! I just keep gaining and gaining! I menopaused at 40 and I haven't had a period for 3 years. My waist used to be 28inches, now it's more like 33. My arms look bigger too! And my shorts are getting tight. <BR> <BR> I am also on dialysis. So I really need to watch my water weight. I have reached an all time high of 5kg water weight gain this weekend and I am frantic! There is no running away from it, I am getting fat! <BR> <BR> I know what I have to do and I keep trying but nothing seems to ... Sun, 22 Nov 2015 15:57:38 EST Help! I'm in deep deep trouble!!!! Lately, I've been increasing my exercise, namely doing more HIIT to get the cardio up to burn more fat. I have a bit of definition on my upper abs now where previously there was none. <BR> <BR> I have a cheongsam (traditional chinese dress) that I bought last Chinese New Year season, well, I tried it on yesterday and it still fit but I'm aiming to lose 1 or 2 inches in 2 weeks because I have a party to go to. If it's still not very comfy, I will wear something else and keep on trying. <BR> ... Sun, 13 Sep 2015 10:37:50 EST Did I make the right call? I saw my kidney Dr yesterday to get my lab results and such. I've moved from three to the start of four. Literally a 2% difference right now. <BR> <BR> I'm still working on losing weight, which seems to be stuck at 198, I do my best to keep my calories between 1200-1600 as well as my protein at or below 90 grams. Exercise wise I do need to do better but I'm working on that in hopes it will go backwards. <BR> <BR> When he told me I hit stage 4, instead of going dialysis I don't think I'm at ... Thu, 20 Aug 2015 17:08:45 EST I hate my life! I am on dialysis, thus, I have to limit my fluids to 500ml a day. As you can see, I am not allowed to drink much. To make matters worse, I hardly urinate now. My weight has been climbing up and up and up, esp during weekends. <BR> <BR> I go for dialysis on Mondays, Wednesdays and Fridays. Which means the weekends are 2 days dialysis free. I normally weigh abt 61kgs plus on Mondays. Lately, though, I weigh 63kgs plus on Mondays. My main problem is Mondays. Currently, my target weigh after di... Mon, 10 Aug 2015 01:11:49 EST Newbie - Hemo patient Hello, I'm from IL. I'm a soon to be 6 year dialysis patient. I finally found a transplant program that would accept me at my weight, but I'm on a mission to lose weight for myself. Thu, 26 Feb 2015 15:55:13 EST Newbie Hello, all.I am new to the team.I was just discharged from the hospital a day ago.I am in stage 5 kidney failure.At first I just wanted to give up laying there in the hospital being poked and prodded 24/7.Getting vitals checked all day and throughout the night, laying there for hours going through dialysis,hearing all the horror stories of what could happen -it was too much but I'm back home now and determined to live.I am happy to have found a group of upbeat people that I can count on <... Wed, 17 Dec 2014 22:27:37 EST A Message to my team! First, I'm glad I can at least get to the library now and then, but they limit the time so it has to be short spurts. Me, I'm LOOONG winded! LOL <BR> <BR> Missing you all. <BR> <BR> A few days ago, I attended another Kidney Class sponsored by the local Franciscan hospital, St. Joseph. I'm sorting out the info, and plan on reporting any additional information when I'm done. Well worth my time--and hopefully yours! <BR> <BR> I may be moving soon too, so I'll keep you posted--and will contin... Fri, 7 Nov 2014 20:02:31 EST Tears and smiles.... A very special little boy, and a precious gift... <BR> <BR> <link><BR>-turns-20-into-priceless-gift/ </link> Sun, 27 Apr 2014 21:18:02 EST TEAM PAGE CHANGES! There are some changes coming to the team page that you may want to look at!... it's happening next week... <BR> <BR> <link><BR> </link> Fri, 25 Apr 2014 19:49:59 EST Web MD quiz... Just to test how much we know... <BR> <BR> <BR> <link><BR>kidneys?ecd=wnl_men_041814&ctr=wnl-men<BR>-041814_ld-stry&mb=4z%40HUcU8XaMNNZfQg<BR>7vePeHnVev1imbCEcJtP3bgZLU%3d </link> <BR> Kathy <em>407</em> <BR> <BR> P.S. I aced it--surprised, I figured there'd be something there I hadn't heard... but that's cool! LOL Check it out-- and post your results if you like... Tue, 22 Apr 2014 22:25:49 EST Hello from WNY Hello there, little about my self ...Life was good i was getting into better shape and working out and that all changed about 5 and a half years ago taking out the trash 1 cold March evening i slipped on some ice and fell in the door jam of my house landing on my kidney side, i stood up and shook it off not realizing what i had just done, 8 months later..i was hospitalized & have been a Dialysis patient ever since.had 7 surgical procedures done to my left arm just trying to create a Dialysis ... Sun, 20 Apr 2014 22:48:24 EST Some music for the soul... Amazing group of men singing on Britain's Got Talent (can you say, "goosebumps"?): <BR> <BR> <link> </link> <BR> Kathy <em>407</em> <em>247</em> <BR> <BR> P.S. Happy Easter! Sat, 19 Apr 2014 14:32:11 EST Hello from Malaysia! Hi, I'm Elaine from Malaysia and I've been on dialysis for 10 years. I would like to lose about 7 to 13kg, depending on what is a good weight for me. I have a huge belly problem, I would like washboard abs, not necessarily a 6 pack, but I just want to be buff and fit! <BR> <BR> I'm petite : 4 feet 11 and currently I weigh 57kgs. I'm in my early 40s, single, Chinese and a Methodist. <BR> <BR> I hope to make lots of new friends here who understand what I'm going through. I really need better ... Wed, 16 Apr 2014 13:35:01 EST The power of words... My niece sent this to me. She's a mom with six kids, two of whom have CF, and she is a full time nurse, putting her husband through school. And she still has time to look for the bright things in life... <BR> <BR> <BR> <link><BR>3/Mormon-young-men-bring-smiles-to-36-<BR>girls-faces-video-reaches-thousands.html </link> Sat, 29 Mar 2014 02:20:51 EST My apologies... My router and/or modem has an issue, so I'm at a friend's house right now... I'll be back in business soon, don't miss me too much, ok" <BR> <em>247</em> Mon, 10 Feb 2014 22:04:01 EST Another Year begins... Look carefully, then move the mouse over the picture... <BR> <BR> <link> </link> Sat, 28 Dec 2013 17:38:36 EST Beautiful poem... The best thing about this time of year <BR> Is the wonderful stories you get to hear, <BR> ..of courage and caring, <BR> ...of love and more, <BR> ...of opportunities <BR> Right at your door... <BR> <BR> Loved this. <BR> <BR> <link><BR>l=0 </link> Sat, 21 Dec 2013 19:08:01 EST Hello, I am new I have so many problems, and now CKD is on the list. I have been eating low sodium for over a year now and learning about phosphorus. The neph Dr. I see told me not to worry about protein, but I am not getting any better. At least I am not worse! <BR> I have Hyperaldosteronism, Diabetes, CKD and heart stent. Plus I need to lose 50 pounds. <BR> It is hard to balance all of this and I just need help, I guess. <BR> <BR> <BR> Fri, 6 Dec 2013 10:32:27 EST SO CUTE!... <link><BR>ed/vDa0z0gEvI4?rel=0 </link> Mon, 18 Nov 2013 01:19:01 EST The BIG BLUE MARBLE?... A different point of view... <BR> <BR> <link><BR>-are-happening-to-astronauts-returning<BR>-to-earth?g=2 </link> Sat, 16 Nov 2013 17:28:37 EST Jackie Evancho meets her match! Wow. <BR> <BR> <link><BR>-opera-on-hollands-got-talent.htm </link> Wed, 13 Nov 2013 18:15:29 EST talked with doctor's assistant (I'm continueing, more or less, the conversation from the thread in which I introduced myself...). <BR> <BR> I talked to my GP's assistent and she said the MDRD is 60 now, and that it has been lower in the past: 56, 51. Since 2011. Before that she doesn't have the numbers for some reason. (??? My kidney function has been lower than it should be since the year 2000). <BR> She said that below 45 is a problem and that one gets complaints at 20 or 30. <BR> <BR> It's pretty vague to me. She a... Sun, 10 Nov 2013 03:53:52 EST Hi A shy hello... I'm Christina, I'm Dutch, I live in the Netherlands; English is not my mother's tongue so sometimes I am searching for the right words and expressions. <BR> I'm not sure if I'm in the right place... I was told that my kidneys do not function 'as they should' and I am finding it VERY hard to get more information. So that's why I joined this team. <BR> I took medications for many years that apparently have cause this 'lesser functioning'. I got off the medications but the fun... Mon, 4 Nov 2013 03:22:15 EST A NEW START PAGE FORMAT! Starting Monday, the 21st, we'll have a new start page-- here's the announcement, check it out! <BR> It's going to make things a lot easier especially for newcomers!... <BR> <BR> <link><BR>st=introducing_a_brand_new_sparkpeople<BR>_experience </link> Mon, 21 Oct 2013 00:47:50 EST Remember when? <link><BR>layful-siberian-husky-does-the-most-ad<BR>orable-thing-in-a-pile-of-leaves-video </link> <BR> <BR> This pup KNOWS exercise can be fun! LOL Sun, 20 Oct 2013 15:48:48 EST Hoping you can all teach me to teach! Hello! <BR> <BR> I hope it's okay that I joined the team - I don't have ESRD, but am a dietitian working with a population with a very high prevalence of kidney failure in various stages, and it is increasing of a rate of about 18% per year (I am in Saipan, a small US Territory -- we have the 2nd or 3rd highest rates of diabetes in the united states - and it goes uncontrolled into kidney failure.) <BR> <BR> And I'm looking for ideas from real people, about the best ways for them to learn ab... Tue, 15 Oct 2013 02:59:57 EST Hello to all..... yes I am NEW Hello to all..... I dont know any of you but I do understand kidney failure..... I did dialysis for two years and I did it at home nocturnally... I did everything my self..... that was challenging for sure..... Heck the who thing is challenging..... I received a transplant two years ago and I a still struggling with weight.... I gain about 40 lbs after transplant and I gain wt while on dialysis..... I became diabetic and shoot insulin... that was new for me..... But I know I can ... Tue, 8 Oct 2013 22:08:41 EST Happy tears Just a beautiful moment... <BR> <BR> <link><BR>ra-captures-firefighter-bringing-a-tin<BR>y-kitten-back-to-life/ </link> Wed, 2 Oct 2013 14:51:28 EST More of Johanna... Amazing 86 yr old... take a look! <BR> <BR> <link> </link> Wed, 18 Sep 2013 08:55:41 EST Cute and crazy... I've had days when I know how this feels!... LOL <BR> <BR> <BR> <link> </link> Sat, 31 Aug 2013 23:49:50 EST The OWL AND THE PUSSYCAT <link><BR>c6Fmg&vq=large </link> <BR> The beginning startled me a bit.. but it's worth it!--SO cool... Mon, 5 Aug 2013 11:54:38 EST SAN FRANCISCO MIST This amazing little film was sent to me by a friend... wow. Beautiful... <BR> <BR> <link><BR>62 </link> Sun, 28 Jul 2013 20:10:01 EST Interesting question for you all... I met this really charming lady at the store one day a few weeks ago, and she invited me to have a free facial (she does Mary Kay...) and it kind of sounded like it might be fun since I hadn't done anything like that in a very long time... things kept getting in the way, (a rash, a minor flood in my house, that sort of thing) but last night we finally managed to get together at one of the "functions"... <BR> <BR> With the exception of the exfoliating cream (which I luckily put on the back of... Mon, 22 Jul 2013 10:30:53 EST Hello everyone! Hey everyone! My name is Jen. I am 35 years old, married with 3 children. I have FSGS and I am preparing for dialysis next month (or transplant <em>30</em> ) My brother is getting tested to donate his kidney to me as we speak...bless his heart! I am super nervous about asking him to hand over a body organ...does anyone else feel this way?? I am joining because I have noticed significant weight gain over the past year. I am hoping to get insight and motivation from all of you!! My goal is 1... Sun, 16 Jun 2013 11:01:40 EST How Is Everyone? I am new to the group, but have not seen much discussion. How is everyone doing with their kidneys? My doctor says the Creatine level has went down but still in the 400s (It was 600s), so she is hoping it is working on correcting some of it. Tue, 4 Jun 2013 20:56:05 EST Whoa. Wasn't sure where to put this, but I really wanted to share it... <BR> <BR> A friend sent me this video--wow. This moved me to tears. I've totally been there on some of the things they touch on... my friend's message with it said that this was something everyone should see... and I agree! <BR> Thought provoking... <BR> <link> </link> <BR> <BR> Kathy <em>407</em> <BR> Tue, 21 May 2013 18:55:06 EST New to this forum hi!, my name is sharon and i am new to this forum.......:) <BR> I am not yet in stge 5 of rel failure......but am midway i stage 4...GFR 20-22 <BR> i am a real cancer survivor of 27 years <em>30</em> <BR> 2008 brought me to the kidney failure stages...(had knees replaced) was doing pretty good until 2012 put me in stage 3 and diabetes (type 2) presented. <em>24</em> 2013 saw me slip into stage well here i am! <em>334</em> <BR> Sun, 19 May 2013 16:12:05 EST BETTER THAN DANCING WITH THE STARS! <link><BR>a4_90 </link> <BR> <BR> I want to be like her!--A real zest for living! LOL Sat, 20 Apr 2013 14:21:41 EST ANOTHER UNEXPECTED RESCUE... <link><BR>layer/bcpid1020658729001?bckey=AQ~~%2c<BR>AAAA7tL7Jbk~%2cPIa4ylnDNbjnj7ZbiOV8kbv<BR>ADabkL0oK&bclid=0&bctid=2115487651001 </link> Sat, 20 Apr 2013 12:39:37 EST Metformin and Kidney Failure My kidney doc recently told my PCP and me that I should not be taking Metformin at all as it was very bad for CKD. I have been on Metformin for years and my A1c's have been very good - right at 6 since I went on insulin. Well, since I changed oral meds, my blood sugars have been totally whacked no matter how carefully I watch my diet <em>46</em> We tried Glyburide but I had a severe shortness of breath reaction to it. Now I'm on Tradjenta and it seems to do okay during the morning and ... Fri, 12 Apr 2013 18:44:33 EST Ventriloquism?? LOL I'm still laughing! <em>246</em> <BR> <BR> <link><BR>oquisting-is-perfect-for-comedians-who<BR>-can-t-iuml-raquo-iquest-st-298683#Gi7<BR>Esbtlza3cvpGQ.01 </link> Sun, 7 Apr 2013 15:31:28 EST lifescan meter recall lifescan one touch meter recall <BR> ONE TOUCH VERIO IQ <BR> ONE TOUCH VERIO PRO <BR> ONE TOUCH VERIOPROPLUS <BR> just meter not strips <BR> 800.717.0276 for lifescan service <BR> the lady mary posseing though Wed, 3 Apr 2013 15:19:37 EST A WHALE OF A STORY... This made me cry--SO cool! <BR> <BR> <link><BR>l=0 </link> Tue, 2 Apr 2013 10:51:07 EST SPORTSMANSHIP AT ITS BEST Smile? Cry? A little of both! LOL <BR> <BR> <link><BR>60391552&set=vb.139641396188202&type=2<BR>&theater </link> Sun, 10 Mar 2013 13:01:26 EST Keeping the brain healthy too My DH is suffering brain effects from his kidney failure. His case worker suggested he do brain teasers and other games to make his brain work harder, just as it helps people as they age and/or with dementia. The same goes for brain injuries, which is my situation. <BR> <BR> In 1994, I suffered my third serious concussion; complicated by cervical spinal damage, I became physically and mentally impaired. It's been a long road back, and I still suffer effects; but I'm doing very well now,... Sun, 10 Mar 2013 04:34:13 EST MUSIC BOX It kind of looks like an animation project on close inspection--but real or virtual, it's still pretty amazing! <BR> <BR> <link><BR>l=0 </link> Wed, 6 Mar 2013 09:25:40 EST Gives a whole new meaning to casting a big shadow. I don't even know if I can do this, but I thought it was worth trying... it's from a friend's facebook posting, the video was from Germany... amazing... <BR> <BR> <link><BR>480081&set=vb.509010949145541&type=2&t<BR>heater </link> Sat, 2 Mar 2013 03:29:54 EST Protein I know I am suppose to be following a lower protein diet for the chronic kidney disease, but what range should I be staying ve within or below? My doctor wants me on a diabetic diet right now because my kidney disease is "stable". But I do want to keep things in perspective with my kidneys. Any help would be appreciated! <BR> <BR> Thanks, <BR> <BR> Jenn Sun, 24 Feb 2013 15:35:53 EST Quotes that make you smile! "A Smile is the Most Beautiful curve on a woman's body!!" <BR> Author Unknown Sun, 24 Feb 2013 15:18:04 EST Hoping to lose these bad kidneys Hi my name is Flo. I've been surfing around this site for a bit over an hour trying to find some direction on how to go about losing weight in a healthy manner. I was doing really good when I was doing in center dialysis but I switched to home hemo and started feeling really good and before I knew it I gained over 10 pounds. I'm being kind cause I really gained a lot more than that. I really should know more about proper nutrition for people with esrd, but I don't have a clue what is safe for... Tue, 5 Feb 2013 20:01:03 EST New here Hello, <BR> <BR> Thanks to Lady Mary for the invite! <BR> <BR> My name is Jenn. I went into acute renal failure when I was 19 years old. My nephro thought it was from NSAIDS/medication that directly metabolizes in the kidneys. The acute renal failure has reversed, however, I now have the diagnosis of stage 3 chronic kidney disease. For the most part, it is controlled. I recently had surgery, so before surgery it was 0.80. After it went up to 1.0. <BR> <BR> Anyways, I struggle with a few d... Mon, 28 Jan 2013 14:27:24 EST New Member Using NxStage HHD Hi everyone! I'm new to the team but for be it from renal failure. My name is Janet, I'm from South Mississippi and I'm 41. At the age of 15 I found out that I had a kidney disease. By the time I was 20, I was on dialysis (PD) and I turned 21 in the hospital after my transplant. That beautiful blessing lasted 16 years. In 2009 I found myself faced with dialysis again. I chose PD again but it failed this time around. So, hemo it was. I was NOT a happy camper as I had watched my dad go through ... Fri, 18 Jan 2013 01:53:33 EST Interesting RealAge Article re: high blood pressur <link><BR>creases-ldl-cholesterol-sad-and-heart-<BR>attacks?eid=1010676609&memberid=5312128 </link> Tue, 15 Jan 2013 03:58:48 EST ... an international version of "Stand By Me"... <link><BR>741 </link> Tue, 15 Jan 2013 02:52:30 EST Want to keep transplant healthy Hi, I'm Amy and new to sparkpeople but I'm loving the site! I had a transplant 2 years ago and wanted to get in shape but had problems with osteonecrosis in my right knee and had a lot of pain. 3 weeks ago I had my knee replaced and I am pain free finally after many years. (other than some muscle pain from my exercise program :-) it's nice to hear from people who understand the challenges of ESRD. Fri, 11 Jan 2013 19:25:46 EST WORLD STORY i wasn't sure this fit into a 'smiles' category, but it's certainly interesting... It's a student video project... pretty amazing, but warning: includes some graphic war images etc... <BR> <BR> <link> </link> Fri, 11 Jan 2013 00:46:44 EST HAPPY NEW YEAR! For most of us, it's a very busy time of year, and I am no exception... <BR> <BR>'s also a time of year when most of us reflect on the past and consider what we want to do in the time ahead of us. I do it a bit earlier... my birthday is three days prior, so... <BR> <BR> ...but I do the same at the end of every month... <BR> <BR> ...and every week... <BR> <BR> ...and even every day. <BR> <BR> Because EVERY DAY is a new chance to forge ahead, to track my progress toward my goa... Tue, 1 Jan 2013 00:15:29 EST A State Photogra her??... West Texas... and the music is by a man who was paralyzed in an accident and learned to play again--but he's never had a music lesson, he just plays by ear, from the heart... <BR> <BR> <link><BR>e=0&byline=0&portrait=0 </link> Fri, 14 Dec 2012 22:05:11 EST Thanks for the invite! I am new to this forum but have been on Spark People for about 5 years in the Managing Diabetes Group. Thanks to the Lady Mary for telling me about your forum, and to Kathy for inviting me to join. I too visited a kidney specialist for the first time just 3 months ago, only to learn I have Stage 3 ESRD. It totally shocked me! And with Type 2 Diabetes, insulin dependent, I was totally lost about how I can manage low carbs as well as low protein. Thanks to Kathy for assuring me I can't! LO... Sun, 9 Dec 2012 04:37:00 EST Not forgotten... I haven't forgotten you guys, believe me! <BR> <BR> Sorry if it seems like it's been a long time--it HAS! lol It has been a wild month but it's almost over. We're spending one last Thanksgiving with his parents, then my ex is on his way to Texas and I will FINALLY be on my own again--can hardly wait! He's all packed except for the clothes and a few odds and ends, and he checked and the deposit for his paycheck should go in on Black Friday. <BR> <BR> A bit scary, but exhilarating too,... Sun, 18 Nov 2012 11:13:33 EST New COOKBOOK for Kidney patients! The American Association of Kidney Patients has a holiday offering, a new 16 recipe cookbook, and they are taking pre-sale orders... if anyone wants to check it out, here's the link: <BR> <link><BR>der?llr=zvvbcrbab&v=001kzo9741iy2rZbp2<BR>11RXEZ5zYSdfqQhw1y8BXNFKi9Vm3H-xd5wkPK<BR>660aUsq820LxOGS9eKZLn38s5kq8XeIlGxsyIT<BR>vfFr69I1jkHZDha54LEMzhHHfRg%3D%3D </link> Tue, 13 Nov 2012 01:29:54 EST Hi! from BC, Canada Joined this team not only for myself but for my Mother, we have Polycystic Kidney Disease with liver involvement. I"ve know since I was 21 that I had PKD but now that I am approaching 40 my labs are really starting to throw wonky numbers and an facing the fact I need to step up and do some lifestyle changes necessary to slow the progression and preserve my kidney function Running at GFR of 45 right now. My mom is gearing up for peritoneal dialysis as she's running at GFR 10. Wanted to say hi!... Sat, 27 Oct 2012 12:14:03 EST Beautiful... a MASTER KITE FLYER <link><BR>N_lIg </link> <BR> <BR> This is absolutely amazing and beautiful to watch... so restful, peaceful, too... wow <em>407</em> Sun, 14 Oct 2012 18:52:21 EST My doctor appointment Hi, <BR> I am finally getting somewhere with my new doctor. My previous health care providers kept me in the dark and would not give me any information about my kidney problem. Other than I had kidney damage. <BR> <BR> I have an atrophic kidney. Which means one of my kidneys is shrinking and not working much anymore. I am scheduled to go to a renal center Nov. 6th and I will get more information as to where I go from here. My last test for creatine level was 1.9 It is more now than at ... Tue, 9 Oct 2012 15:05:09 EST Rekindling the Spark I was a member of SparkPeople from more than 7 years ago. In 2005, I had kidney failure and somehow lost the Spark. I would now like to return and really need help with my exercise. Since being on dialysis, I have lost a bit of weight (but still need to lose more). I really appreciated the times when I was a consistent Spark person. I hope to be that again. My big problem is phosphorus. I will start a thread concerning that.. <BR> Looking forward to getting to know the members of this t... Sun, 7 Oct 2012 11:18:13 EST Hi Hello, <BR> My name is Tammy. I have recently been diagnosed with stage 2 chronic kidney failure. <BR> It is a lot to take in and leaves me worried and scared about the unknown. My mom has ckd as well and she goes to dialysis 3 times a week. I have watched her suffer with the needles and cry and say how much she hates going to dialysis. I am scared. I do not want this. I am sure everyone else is scared too having this. <BR> <BR> I have COPD. When they put me on steroids for my lung... Fri, 28 Sep 2012 06:20:59 EST Joining the team for my husband My husband was diagnosed with ESRD last week. He has started dialysis and we intend to enjoy his company for a long time. But this is new territory and we keep hearing conflicting information on his diet. We have gone online to the Kidney Foundation site, my sister in law is a nurse and brought us in a diet they use where she works and the hospital gave us a handout with some information. We still haven't seen a dietician. We have read he should get up to 2000 mg sodium and potassium, 1000 mg... Wed, 12 Sep 2012 11:18:07 EST Transplants <link><BR>der?llr=zvvbcrbab&v=001rFp1utu-80wIirn<BR>XpcIunegq0unPWkRcrX12Sp9yPGW6_OCGkrb1E<BR>FlJzX50tpcVY0eCwN0a65VMeusyDlrDqsgK5uR<BR>psncoqRcMfnUZyWD3Ktm22PY77A%3D%3D </link> <BR> <BR> This link may be helpful for those who are now facing possible transplant issues... Wed, 5 Sep 2012 16:29:59 EST Potatoes, Anyone? Here is a link to an article I found regarding the leaching of potassium from potatoes, for those who like and miss them because of potassium restrictions... <BR> <BR> <link><BR>nd-nutrition/diet-basics/lowering-pota<BR>ssium-in-potatoes/e/5323 </link> <em>4</em> Sun, 2 Sep 2012 08:17:00 EST "100 Ways to Burn 100 Calories" For anyone who's out of ideas... I laughed at some of this, trying to picture myself doing them, but there are some interesting ideas here... <BR> <BR> <link><BR>ways-burn-100-calories/tip/3 </link> Tue, 21 Aug 2012 07:46:18 EST Senior Moments Set to Music.... <em>246</em> <link><BR>l=0 </link> Tue, 14 Aug 2012 19:38:43 EST Senior Moments set to music?? I LOVED this, I can't stop laughing when I think about it! <em>246</em> My roommate had to come out and see why I was cracking up! ... <BR> <BR> <link><BR>l=0 </link> Tue, 14 Aug 2012 19:16:51 EST Great moves... This little boy has SO much talent, acting and dancing his heart out... really cool! <BR> <BR> <link><BR>nspirational-12-old-breakdancer-story-<BR>warms-heart-175252892.html </link> Tue, 14 Aug 2012 13:07:33 EST A New Use for the Typewriter... I'm still giggling over this--very funny, for those who've ever used one of these! LOL <link><BR>rn-wo&sns=em </link> <em>334</em> Mon, 23 Jul 2012 23:32:03 EST Japanese "synchronized walking"...?? I came across this by sheer accident. At first I thought, what in the world am I looking at... Reminds me a tiny bit of my highschool marching band experience--our band director was an ex-drill sergeant! LOL <BR> Think army drills... with business suits and a sense of humor! LOL <BR> <BR> Pretty amazing... <BR> <link><BR>feature=related </link> <em>40</em> Wed, 18 Jul 2012 14:30:04 EST new team member. Hi my name is Cheryl, I was recently hospitalized and told I may have 6 months before dialysis. I am 33yo with 4 wonderful kids. My husband is a diabetic with 3 amputations. I have been there with him through his trials. We have only been married for 2yrs and I have known him for 16yrs. He decides that my situation is to much so he leaves. I am trying to handle all this by myself and stay strong. It is hard. My diet has changed, my personal life is hell, and I worry will I be able to handle a... Mon, 9 Jul 2012 08:59:25 EST Some Amazing Videography!... Or I should say, photograpy... either way. LOL <BR> <BR> A friend of mine sent me this... gorgeous! <BR> <BR> <link><BR>edcbk4?rel=0 </link> <BR> Sun, 10 Jun 2012 08:09:23 EST Wow. Underwater Garden... <link> </link> <BR> <BR> Five minutes of GORGEOUS!... Thu, 24 May 2012 02:07:19 EST Weight Loss surgery/gastric bypass and CKD This a little information of a study of Weight loss surgery and CKD <BR> <BR> <link><BR>Surgery/31462 </link> Mon, 9 Apr 2012 12:22:22 EST Beautiful... moving. Ever heard of starlings? Their population in the UK is dwindling, mostly due to man reducing their suitable nesting habitats... but you should take a look at this, these girls experienced something so breathtaking... <BR> <BR> <link> </link> Wed, 4 Apr 2012 10:52:59 EST New Member Hi, I'm Bob. I was diagnosed with ESRD in February 2011, and have been on Peritoneal Dialysis since June 2011. They say it's going really well, and my labs are usually good, but I've been steadily gaining weight. <BR> <BR> My application for a kidney transplant was submitted. The nephrologist and all my doctors say I'm a good candidate, but I need to lose at least 10-15 pounds before I go for my first interview at the Transplant Center. <BR> <BR> My wife says the best way to make sure I'... Wed, 4 Apr 2012 00:10:42 EST DANCING OUT LOUD... At last, someone in the younger generation who really appreciates the "KING OF ROCK!"...this little guy sure had ME smiling... LOL <BR> <BR> <BR> <link> </link> Fri, 30 Mar 2012 02:16:11 EST For All Animal Lovers... Check it out-- pretty cool! <BR> <BR> <link> </link> Sat, 24 Mar 2012 21:07:36 EST Transplant survivor Hi I have had a transplant since November of 2008. So far so good. I have been back and forth on dialysis since 1998. I recieved my first transplant on June of 1999. I am well. And i would like to say if anyone needs help with dialysis or just wants to talk just let me know. I am having loads of trouble keeping the weight off. And people on dialysis might say I am ok now that I have a transplant. You still have to watch. I need friends to help me also. I am available to talk about this ESRD. Mon, 12 Mar 2012 13:50:12 EST Health news on Sparks re Dialysis interesting article Sparks News today re Dialysis. <link><BR>news_detail.asp?health_day=662067 </link> Thu, 23 Feb 2012 18:03:48 EST VALENTINE'S DAY GREETINGS! It's been a lovely year so far, and this is a perfect occasion to share our feelings--I have SO enjoyed the time spent on line with all of you, my friends and helpers... you have no idea the impact it has had on my life in general since I started posting here... all positive. <BR> <BR> So many kind, intelligent and inquisitive people, who have held up a mirror to me and shown me things about myself that I'd never been aware of before-- and for that... <BR> <em>304</em> <BR> <BR> HAPPY VAL... Tue, 14 Feb 2012 12:14:07 EST I am alive Evening lovelies, <BR> <BR> Just letting you all know that I'm alive and well for the most part. <BR> <BR> I got scolded by my diabetes doctor for not having taken any of my meds for about a month.. I fell off the wagon HARD. But I'm back on them now so things should even back out. I got off of them just for the sheer fact I didn't want to risk losing my hair again.. <BR> <BR> Vain reason I know but it's the only one I've got. <BR> <BR> *hugs ladies* <BR> <BR> witchy. Wed, 8 Feb 2012 18:29:27 EST Hi! Hello all! I just wanted to introduce myself. I have just crossed over into stage 5 ESRD and awaiting my 3rd transplant. My current kidney began rejecting last year and was antibody related. An attempt was made to save it with plamapheresis, chemo,etc., but it did not work. I am going Thursday to discuss dialysis options and the procedure to get on the donor list, but for now the doc wants me to lose around 30 pounds prior to surgery. i do not think I will have too much of a problem since I f... Tue, 24 Jan 2012 21:51:44 EST Kootenay Mountains in British Columbia My friend was raised near these mountains, and sent me this lovely slide show-- enjoy! <link> </link> Wed, 18 Jan 2012 14:39:50 EST Hi New to this team as I was told yesterday that I am in stage 3 with a last GFR of 33.5. Also a diabetic with high blood pressure. One of the meds I am on does cause problems with the kidneys, however the doctor also told me this med also protects the kidneys. Need to learn again what I can and can't eat to try to help the kidneys a little. Wed, 18 Jan 2012 08:56:59 EST SEASON'S GREETINGS! I just wanted to take the opportunity to say how much I have appreciated working, living, and learning with all of you this last year. It has been a privilege and pure joy! <BR> <BR> I wish you all a wonderful and prosperous New Year! May 2012 bring you all you are wishing for... <BR> <BR> Be well... <BR> Love, <BR> <BR> Kathy <em>407</em> Sat, 31 Dec 2011 21:25:58 EST My Intro Hi! I'm Susan, diagnosed with PKD and ESRD last August. No history of kidney disease in the family, so go figure. I have come to this site and this team because I want a kidney transplant and have to lose weight to get it. Wanting to leave in-center hemo is a big motivator! Hope to learn a lot from others in the same situation of dieting within the limits of the kidney diet! Sat, 31 Dec 2011 18:33:19 EST Jingle Bell Baby Goats This is just fun! SSOOOO cute! LOL <link><BR>J-XkUA?rel=0 </link> Wed, 28 Dec 2011 20:58:17 EST INSPIRED... Just the other day, I wrote a blog with this title. I'd encourage any of you out there who haven't, to read it, AND to read the blog by Coach Nicole that started it--and to join us who are committing to keeping the promises we made to ourselves over the year, to make this coming NEW YEAR--and everything between now and then!-- a better and healthier celebration. <BR> <BR> I'm going to try and report in on this discussion thread (as often as I can remember! LOL) and let you all know how I'm ... Sat, 12 Nov 2011 11:21:22 EST i need help. hi, I'm on the my tracker for foods, im a diabetic with 4th stage kidney disesae, and high bp my question is my plan comes up for a diabetic diet ,i want to add renal diet to it too. maybe it s me ,but i can't see to find how to do it anywhere.can someone guide me in the right direction,thank you Wed, 9 Nov 2011 13:35:48 EST New to team Hi, I am new to this team. My name is Wanda. I just found out that I am in early stage 4. I have had kidney issues all my life. CKD reared it's ugly head about 4 years ago. <BR> My sister and I were both born with the same problem (Nephritis). <BR> She also was type 1 diabetic. She passed away 3 years ago. I think it makes this different for me because I know what she went through and I was a nurse. <BR> I am trying hard to lose weight. i am on a crazy lo purine and lo phosphate diet. <BR>... Sun, 6 Nov 2011 16:42:27 EST Caregiver for CKD-Congestive Heart patient Hello Friends, <BR> My husband is a diabetic with stage 4 (almost 5) renal disease and heart failure. I was thrilled to receive an invitation to this group. He is rather thin and frail (age 73). I want to learn more and to share with him your insights. I will be taking our hospital's cardiac failure classes. I already did the diabetic and renal disease classes. <BR> <BR> I'm open to new ideas and suggestions. I believe a community gives strength to all. <BR> Sandy Becker Sun, 6 Nov 2011 11:40:04 EST Smoothies Have any of you tried any of the Green Smoothies out there? I know that there is a very thin line that has to be walked with potassium but I am going to give it a try and see if I can lose some of this weight that way. <BR> <BR> My doctor is going to monitor my numbers through my blood work every two weeks and I will naturally reach out to my medical team if there are any difficulties. <BR> <BR> I just need to find a more natural way to keep my blood sugars and blood pressure in check. I do... Mon, 31 Oct 2011 15:43:26 EST New to team Hey! I'm new to the team. Looking forward to sharing ideas, information and a mutual commitment to a healthy goal! Tue, 20 Sep 2011 18:11:44 EST Newbie/pd dialysis Hi! My name is Dawn, 44 yr old type 1 currently on pd dialysis. I have only been on for 3 months but feeling much better. I have 4 children (8, 11, 15 and 25) and a granddaughter. I have used sparkpeople before and decided to try again now that I'm feeling better. Losing weight is a goal,, but I want to be the healthiest I can as I start the process for trying for a dual transplant. Tue, 30 Aug 2011 11:16:39 EST Inaccurate Quiz Answers! I took an SP Quiz this morning on blood pressure... and was a bit surprised! Some of the "correct" answers... well. <BR> <BR> I think they must have been using some old material when they made up the quiz, and the one thing that really stood out was the "optimum" blood pressure reading of 120/80. But... <BR> People vary. That's as it should be, right? LOL Blood pressures vary too, and even for one person, it can vary considerably in a matter of minutes and throughout the day. Nothing ... Sat, 27 Aug 2011 10:34:57 EST new to this team I am not stage 5 yet but I would like to know what I can do to stop losing function so rapidly and what I can expect. I've lost 6% function since June 2011 and GFR from lab done on Tuesday this week was 50. <BR> <BR> I am diabetic. I've been having a lot of trouble with my blood pressure ever since my doctor cut my metformin from 2000mg/day to 500mg twice a day. He was going to start me on humulin along with my lantus but "forgot". It took me 6 months to get back in to see him because of... Thu, 11 Aug 2011 19:53:14 EST Newbie hello my name is Anita. i just had a kidney transplant in March 2011 after rejecting the kidney i received in Oct 2000. weight has been a constant issue with me. i am currently recuperating from C-Diff. i am hoping that after the infection is clear that they will start lowering the doses of my meds. most of the meds cause weight gain. i am married to a wonderful and supportive man and i have 2 boys and 2 girls all grown. i reside in Denver Colorado. Wed, 10 Aug 2011 16:31:33 EST need diet buddy in Ft.Smith or Spiro area I am 44 years old and had a kidney transplant in 95. I have lots of problems losing weight because I have acute gout as well as other problems which makes exercise a big problem. I am currently disabled because of the gout problems and cannot afford a gym membership. If anyone out there can help I would greatly like to hear feom you. Sun, 31 Jul 2011 09:27:48 EST Hello Everyone Hello all you beautiful people! <BR> I am introducing myself, I am Lacey Wood. <BR> I currently live in Chicago, IL finishing up my undergraduate degree at DePaul Unviersity. <BR> I have been struggling with my weight ever since I had a kidney transplant 5 years ago. <BR> I also had a heart transplant 20 years ago but I never had an issue with weight until I got sick with kidney failure. <BR> I am just hear to try and lose this stubborn weight that doesn't want to stay off me. <BR> Looking fo... Sat, 30 Jul 2011 18:05:12 EST SMILES I borrowed this idea from another team I belong to, and created a forum specifically for the purpose of creating smiles. <BR> <BR> Life with this disease can seem isolating and scary at times, and we can all use a reason now and again to find pleasure in other things. Here is a place to provide comfort and inspiration, amusement and laughter, fun, joy... any article or link or good clean joke that can evoke those feelings is appropriate here. <BR> <BR> I wish I'd thought of this forum wh... Mon, 18 Jul 2011 20:18:39 EST Hello out there! My name is Nord and I'm trying not to panic about my lab results so that I take positive action to eat better and exercise. Fear and panic tend to paralyze. I think action counteracts worry. How about you? <em>40</em> <em>30</em> Mon, 18 Jul 2011 17:11:30 EST NEW TO THE TEAM Hello to Everyone, <BR> <BR> My name is Pat and I am 72 years young. I have been a diabetic for 20 years. When I was diagnosed my doctor told me I had had diabetes for some time, but I did not feel bad and had no symptoms that were noticeable to me. As a result, O have heart disease and had a bypass graft on my heart about 2003. Then I started losing weight and very poor appetite (not like me at all). My primary care doctor sent me to a nephrologist and after looking at all my labs, I was di... Sat, 16 Jul 2011 19:01:25 EST Gaining weight for no reason! Low urination? Does anyone else experience weight gain while on a low calorie intake, knowing that you should be loosing. I wonder if it is dew to low urination? Is that possible? Any other suggestions? Thanks for your help. <BR> Mon, 11 Jul 2011 12:44:18 EST BEAUTIFUL... The Butterfly Circus My best friend sends me jokes and pictures and cute little videos all the time and then every now and then she finds something like this... <BR> <BR> <link><BR>erflyCircus?lsid=421f8269838390f3a7514<BR>d4e166f22ba </link> Thu, 7 Jul 2011 01:57:46 EST Just told I'm in Stage 5... totally lost! I'm 27 now and when I was 18 I was told I had kidney disease. I was immediately put on Zestril to control my blood pressure. I've been watching my salt since then, but other than that, nothing. I went from just thinking I had kidney disease to my last physical.... I'm in Stage 5!! My BUN is 51, CREATININE is 4.3, and my GFR is 12.... <BR> <BR> This is all from my regular doctor. I don't see my nephrologist until August 4th. My regular physician told me to not eat any added salt and st... Wed, 22 Jun 2011 11:22:16 EST Painful Toes Somehow I have infected both my toes. The doc gave me antibiotic (which is giving me heartburn) but the pain and oozing hasnt stopped. I dont remember what or how both got infected. Am scared as well <em>39</em> . Wed, 8 Jun 2011 13:01:49 EST Just to Make us SMILE... <link><BR>-kid-and-cute-otter-are-really-cute-to<BR>gether/20nyznn8?rel=msn&cpkey=f59614ee<BR>-fbe7-40cc-bf5f-7acd023d0f4b%7Cbaby%7Cmsn%7C </link> <BR> <BR> I fell in love with this and just had to share it... *giggle* <BR> Kathy <em>407</em> Tue, 31 May 2011 19:39:45 EST Breast Cancer Video The Susan G Komen organization for fighting breast cancer receives a donation every time someone views this video... thought you'd all like to take a look at some cheerleaders doing their bit for the cause... and make a contribution in doing so! Besides, it's fun to watch! LOL <BR> <BR> <link><BR>ture=mhsn#p/a/u/0/cfRSDbV8Adw </link> Wed, 4 May 2011 10:41:06 EST Food for kidneys I have been trying to research the foods that I should be eating with CKD. I have gathered little bits of information on this site. Been on the DaVito? site but the few recipes I looked at was high in calories. <BR> <BR> Kathy in a message of yours you say potatoes and pumpkin is a no-no. Is this because of the potassium? My potassium is OK at present. I have never had a problem with it. I do with phosphate, although it is only slightly up. <BR> <BR> It has not been easy to find out the in... Mon, 2 May 2011 00:39:33 EST Can't have a transplant without weight loss :( Hi everyone, I haven't been around in a while, but I need to renew my "Spark" for losing weight once more. I could use lots of encouragement. I got a rejection letter last week from the transplant docs. They say I have to lose 40 lbs. before I can be considered. That letter was like a punch in the gut! So, I have been slowly losing weight and have already lost around 40 lbs., so I know I can do it. I just have to keep it going! Mon, 18 Apr 2011 10:18:29 EST New to Team Hi! I'm anthembiker, and I am in kidney decline for a while now - 2% a month for no reason, or so the Doc's say. Frustrating. Looks like I'm going to end up a Vegan. Started out weight at 184, I'm down to 148 and still losing. Any encouragement or help with diet planning would REALLY be appreciated as I'm in a rut as far as dinners go. Thanks to anyone who replies that has been down this road before - - - <em>24</em> Sun, 17 Apr 2011 23:18:46 EST new to this site hi, I just found this site from a friend and looking foward to learn a lot more than i do about kidney disease.I m 62 yrs old women with 4th stage kidney disease, diabetes,high bp..I have had this for 3years,I have only 1 kidney and it is failing.Looking for a diet that I can have because Im limit to protein and other things.I big hello from me .thank you Tue, 22 Mar 2011 11:04:22 EST Hi from Southern Ontario Hi! I'm Deborah. I've had a kidney transplant after 6 years on dialysis. I've experienced and overcome a vast array of hurdles and problems and am thrilled to discover that there is a team for us. I would love to talk with and help anyone in any way that I can. Making friends with others who know what you are going through and trying to achieve is a grand blessing. Thanks to everyone for making this group - I'm very for the opportunity to participate. <em>213</em> Sun, 20 Mar 2011 11:31:46 EST blood test Hi <BR> I have written about this on my blog. But wanted to add extra info on this <BR> <BR> The kidney function is worse that last blood test, it is back to 329 <BR> The eGFR is still the same at 13 <BR> the urea has increased 27.3 <BR> the haemegloblin is way down now. Now I know why I am so tired all the time. <BR> Phosphate is still up <BR> Iron is down <BR> <BR> In the last week or two I have been so tired, more than usual and aching all the time. This has gotten worse. I am tired ... Wed, 2 Mar 2011 18:56:23 EST On my way! THought I would take a few minutes to introduce myself.:) I've been on here for a little while, and have almost reached my weight loss goals (14lb to go!). Now it time to rev things up and look at my overall health, which between a bout with cancer, diabetes, and a recent diagnosis of early stage renal failure isn't the greatest. Its time to really get proactive though! I'm quitting smoking today, been doing yoga and strength training, and am starting a 5K training program. I have also dramat... Tue, 1 Mar 2011 09:07:37 EST Hello everyone! I can't tell you all how much I appreciate the advice that you have posted on this site. I myself do not have CKD but my boyfriend does. He was just recently told that he has been referred for kidney transplant and to be perfectly honest, we are both freaking out. His GFR has fluctuated between 21 and now 19. About a year and a half ago he did have to have dialysis 3 times after being on Vancomycin due to a bad infection but his kidneys bounced back. Right now I am searching for any and ... Wed, 23 Feb 2011 08:15:32 EST Saying Hey! Hello Ladies and Gentlemen. <BR> I thought this would be a good group to join in hopes it will help me figure out exactly what type of craziness is going on with my body. <BR> <BR> A little bit of background info on my situation: <BR> <BR> I am a 24 year old female and have been having issues with my kidneys for the past month or so. It all started back in late November/ early December with a visit to my primary dr for a yearly check up. Everything came back fine except that m... Sun, 13 Feb 2011 17:36:29 EST Oh BOY! Great news! <BR> <BR> I don't know how many of you follow my blogs... <BR> <BR> I started a new set of goals this week, and they are coming along nicely--and one of them I am so PLEASED with the way it's going, I had to share it here. <BR> <BR> I called and left a message for my renal nutrition specialist because there are some new parameters in the news and it's been a while since I had an updated consultation--I got the call back today, and I was invited to attend a free class called LIV... Tue, 8 Feb 2011 20:16:45 EST Phosphate Hi <BR> I got my blood results and my phosphate levels are high. I am wondering what make this levels rise? Is it something that I am eating such as summer fruit? This level was high in the last blood test also (about 4 weeks ago). <BR> Wendy Tue, 1 Feb 2011 22:40:52 EST Need lots of positive thoughts! I am stage 4 ESRD and on dialysis. I put it off as long as I could and now finally got a fistula. It is ready now and they plan to use it TOMORROW!! My problem is: I'm absolutely terrified of needles! I'm not sure if anybody is taking me seriously about this (except my husband who says he'll take off to take me & be with me if needed). Does anyone else feel this way? How did you cope? As much as I dislike the inconvienence of the port, at least they aren't sticking me with needles! Wed, 5 Jan 2011 21:23:32 EST need help Hi <BR> Thought I would put more information here from last blood test <BR> Calcium high <BR> Sodium high <BR> Vit D low. <BR> Creatinine 299 <BR> Urea 25.8 <BR> Haemogloblin low <BR> Phospate normal <BR> Potasium normal <BR> eGFR 14% Stage 5 <BR> <BR> I am on a low salt diet, watching the fat contents, fibre contents and calorie intake and exercising. <BR> I have finally been told I am suffering with Alports. <BR> I have also lost some of my kidney due to kidney cancer in March 2010. <BR>... Thu, 9 Dec 2010 23:02:37 EST newbie to ESRD Hi just found the ESRD site so I have joined. I am pre-dialisis and at stage 5 which is end stage. I have been around in other groups since Sept 10. <BR> I have a blog that has more info on it where I have written about my kidney disease if you can check out it out. <BR> Wendy from South Australia Thu, 9 Dec 2010 22:31:55 EST Been a While... I owe you folks an apology... It's been a while since I posted here with this team. I've been really active on the Managing Diabetes team, and have neglected my special friends here-- plus I have a bad habit of over-booking my time and I RUN OUT! lol <BR> <BR> I'm still living in the hotel and my funds are dwindling, I have all kinds of weird health things going on, including a HUGE weight gain (AAGGH!) of 2-4 pounds per week, even though I'm not eating any differently. My drs have me run... Tue, 9 Nov 2010 12:18:13 EST WHOA! I am realizing just how hard it is to stay in compliance when you aren't living 'normally'! LOL <BR> <BR> I'm waiting for approval from the mobile home park to move in to the place I just bought (on contigency of approval) Meanwhile, I'm staying in an extended living motel. I can't keep produce fresh here, it freezes solid if it's in the fridge for more than an hour or two... and living on such highly processed foods as are available is driving me NUTS! I'm ending up eating out most days... Tue, 24 Aug 2010 19:01:52 EST Going the Alport Syndrome symposium Saturday? I'm just curious if any of you will be there. It would be nice to meet some of you. <BR> <BR> Jamie Mon, 23 Aug 2010 15:30:08 EST What I've Been Waiting For Just Saw This <BR> <BR><BR>bioartificial_kidney.aspx?utm_campaign<BR>=ccfacts+fb&utm_medium=link&utm_source<BR>=facebook&utm_content=artificial+kidney <BR> <BR> Here's hoping - and in my lifetime! <BR> <em>244</em> Sun, 22 Aug 2010 00:19:31 EST This is so very cool! Hi All, <BR> <BR> My name is Genna and I am a kidney transplant recipient and now a dialysis patient again. My kidney lasted 13 years, and I am now on a quest for weight loss for my second transplant. I am super-excited to see this team on here! I have battled my weight since my first transplant. (Thank you, Prednisone.) I am looking forward to getting to know you all! <BR> Mon, 7 Jun 2010 20:22:32 EST The No No list... I have about 3 different lists of foods to avoid but I am confused about what the no no's are. <BR> Like cream cheese..on one on my lists it says it is ok others no. <BR> So I would like to see the list for no no's and why they are not recommended. Is it safe to assume if it isn't on the list it is ok? <BR> Are there different lists for people on dialysis or transplants rather than folks that are in stage 3 or 4 for example? I sure appreciate your help. <BR> <BR> Fri, 23 Apr 2010 11:57:08 EST Kidney Transplant x 2 I've had two kidney transplants and have gained a lot of weight. I want/need to lose weight and get in control of my body and not have it control me. It doesn't look like I'm going to keep this kidney much longer and I want to know from today on I've done everything possible to prolong the life of my kidney for as long as I can. Mon, 5 Apr 2010 21:44:00 EST Checkin in Havent' been here for a while. Had a lot of things going on. Family members ill and as it turns out I had to be the one taking care of everybody. Didn't leave enough time for me. Been trying to work out consistently for the last couple of months, still not losing any weight. I just wanted to say hi to everyone. Can anyone tell me how to lose weight while on CAPD? I have been going to the gym at least 5 days per week doing cardio and 2 times per week with weights since about feb.and eating be... Fri, 12 Mar 2010 10:40:48 EST Type 2 Diabetic & new CKD Hi Everyone, <BR> -I currently live in Michigan <BR> -Moving the end of the month to Middleburg, OH where friends are <BR> -Out of work and looking <BR> -61 years young <BR> -Have been on SP logging and counting for about 6 months or more <BR> -Found out I should NOT be trying to eat more Potassium based on the average nutritional goals on SP <BR> -Talked with a dietician yesterday and think I have better plan now <BR> -Need to SPREAD OUT my carbs into 3 meals and 3 snacks <BR> -Cut back pro... Sat, 6 Mar 2010 10:35:36 EST QUESTION about NON DAIRY CREAMER I am so new to this. I was reading the diet and recipes and have a question. When they say Non Dairy Creamer, especially for a recipe, or not, are they talking about the liquid or powder, or doesn't it matter. I found a really good sounding recipe and it calls for it. Thanks for any and all responses Fri, 26 Feb 2010 15:51:34 EST Newly Diagnosed I am new to this forum and have just been diagnosed with chronic kidney disease and the nephrologist gave me a low protein diet, and I am having a hard time understanding that. To make it worse I feel so alone. My husband passed away 15 months ago after 25 years of being married, and my mom passed away 6 months ago. Fri, 26 Feb 2010 14:54:55 EST New To the Kidney Diet and NEED HELP Hi everyone. My name is Leslie and I was put on the kidney diet about 3 weeks ago. I've got all the literature, saw the diatician and did research on the internet, but could use some help on menu ideas. A limited budget and diabetes complicates things even more, so any help would be appreciated. My last AC1 was 5.5 but my counts have been going up since they took away my metforum because it's too hard on the kidneys. Just taking one Actos and 1 glyberide right now. Going to the Dr. today to s... Mon, 8 Feb 2010 12:27:42 EST We need a group Icon All the other groups have icons for them and we don't have one. Let's see if we can find something. Any ideas? Mon, 11 Jan 2010 14:13:40 EST hi, I'm new! I'm trying to get motivated. Broke my arm and now I'm a 'one-finger' typer. Sat, 9 Jan 2010 18:21:42 EST CAPD= weight gain Hi out there, my name is Janet and I just recently joined sparkpeople. I am currently on peritoneal dialysis and have been for a year now. I wish someone had told me about the seemingly massive weight gain that accompanies peritoneal dialysis. Have been struggling for a few months now trying to get a routine going (and sticking with it) to lose the weight that I have gained. Anyone got any ideas how to stay on the correct path, when appetite waxes and wanes. Somedays are better than others, I... Mon, 4 Jan 2010 16:40:06 EST Hello Again! It's been a while since I've posted here... I'm currently "homeless" and staying where there's limited access to internet! LOL <BR> <BR> The holidays are coming up too fast for me, I'm not ready for Thanksgiving yet, can still barely believe Halloween came and went!... My relationship issues are up in the air at the moment(*sigh*) but I'll still be sharing the holiday with my DH and his parents again this year... I have no clue where this will go, but for now... <BR> <BR> I just had a visi... Mon, 23 Nov 2009 12:44:13 EST Questions about dialysis Hi Everyone! I haven't posted in is busy, we all know how that goes. Anyway, I have PKD and my kidney function is slowly declining...well quickly declining these days. My current function is 12%. I've already gotten a fistula and it's ready to go for dialysis. My doctor has pretty much left it up to me as to when I want to get started. Even though my function is low, I'm not showing any bad symptoms other than fatigue. I know at this point it's probably just a matter of a f... Sun, 20 Sep 2009 10:48:12 EST Coming Back to Rejoin the Team I was a member of this team and then got out of it, because I stayed so tired all the time. I feel I can handle all the emails this time. My blood sugars are still not normal, but they are almost there. I just saw my Nephrologist and I am still in Stage 3. She was also pleased with my 20 pound weight loss. So here I come, ready for more. <BR> Sat, 19 Sep 2009 19:23:57 EST Hello I am a 48 year old female from Hurst Texas. I am seeking a weight loss buddy. I am in need of motivation and in turn can help motivate some one. Sat, 12 Sep 2009 00:37:13 EST Hello from California Hello. I just joined sparks to loose a "few" pounds and saw that there are people in the same boat as myself. I am in renal failure and currently waiting since february to get a transplant. I know and am prepared to wait years because I know the wait will be worth it. My GFR is 15 and I have had 2 fistula surgerys. January and April. The one in April was a success. I am holding my own as my doctors says. <BR> Anyway... just a quick note. thank you for listening. Mon, 27 Jul 2009 12:23:40 EST Living Kidney Donor's Network Workshop Living Kidney Donor’s Network Workshop <BR> <BR> <BR> With more than 78,000 people on the transplant list waiting for a deceased donor kidney, the Milwaukee Chapter and the Living Kidney Donors Network’s have teamed up to bring you an important Educational and Communications Training Workshop. <BR> <BR> Tuesday, August 4th, 2009 <BR> <BR> 6:00pm until 9:00pm <BR> (Please arrive 15 minutes early to check in) <BR> <BR> Froedtert/Medical College of Wisconsin <BR> Community Conference ... Mon, 27 Jul 2009 07:08:33 EST Hi Hi - I am new to this team, but not to spark. <BR> I am in 3rd stage kidney failure. I am still learning about kidney disease and what it means for my life. <BR> I walk 2 miles 4-5 times a week on my treadmill. <BR> I have turned my diet upside down with eating 6-8 servings of fruits and veggies everyday. <BR> See you on the boards! <BR> jeanla Thu, 16 Jul 2009 08:35:22 EST Anyone know about IVIG treatment? My daughter & I have been accepted into the paired kidney exchange program and my kidney team wants me to do the IVIG treatments to try to lower my antibodies. I will start the next trail run in August. It is a desensitization process which is done by IV for about 4 wks. and then a test to see if this lowers the antibodies. If anyone has done this I would love to hear from you....thanks Wed, 15 Jul 2009 19:29:01 EST My husband is on dialysis Hello <BR> My husband is 63 years old and just came home after a month long stay in hospital. I need to plan his menus with an eye on fluids, potassium and phosphorus especially. <BR> He goes to the clinic for dialysis three times a week, just started as an outpatient yesterday. <BR> I am hoping Spark People will help me track his nutrition and maybe get some tips from people with the same challenges. He is also diabetic and has high blood pressure. <em>249</em> Sat, 11 Jul 2009 13:26:31 EST ESRD friendly recipes anyone? I'm new and just checking things out. My kidneys were damaged from chemo when I was 18, I'm now 26 and things have been fairly stable. I have about 20% of my kidney function so no dialysis yet but I have a hard time keeping my potassium low and also working out. If anyone has healthy recipes for low potassium meals I would love to read them. I was raised a meat and potato girl so low potassium is very difficult:) Thu, 9 Jul 2009 16:49:44 EST Hello from Georgia! I am ESRD but not trying to lose weight. This is the only team I could find to join. Lately my potassium levels are through the roof. Doc has me on some type of liquid I take every other day and it is coming down slowly but I am to avoid foods with high potassium. I never realized how many of my favorite foods are high in potassium. Sat, 20 Jun 2009 12:23:25 EST ride a horse? Does anyone ride horses after transplant? If so any problems? Tue, 26 May 2009 09:08:05 EST GOD BLESS I want to wish you all a happy memorial day while you are grilling,swimming or whatever your plans remeber freedom is not free. GOD BLESS OUR TROOPS Fri, 22 May 2009 18:28:14 EST Sorry and Welcome Sorry I have not welcomed everyone so here is a big welcome to you all. I have had ESRD since the 80s. And Nov 08 I got a transplant. I was on dialysis since March. I live in Holland Texas with my hubby, horses,dogs,macaw,fish and cat. I hope you all had a great weekend and have a wonderful week. Mon, 18 May 2009 09:16:04 EST esrd Hi, I'm new, just trying to figure where all the links go to,I had a transplant 11-22-96, gained a lot of weight. But finally I'n trying to do something about already lost 11 lb. Be patient w/me till I can figure everything out. <em>198</em> Fri, 8 May 2009 22:14:30 EST im new just checking things out hi everyone, im new i have been on dialysis since 1977. my weight has gone up and down but know that im getting older i would like to try to lose some and stay down at that weight. i never new this website was here. Thu, 7 May 2009 15:13:26 EST Recipe Challenge Hello team members. I have a challenge for us all. We all know that a renal diet is a challenge to follow. I can also tell that several of our team members are trying to follow a diabetic diet as well. I thought it would be nice to share some of our favorite recipes that are kidney friendly for us all to share. Please post your favorite kidney friendly recipe! <BR> <BR> This is one of my all time favorite foods. I found this recipe on the Davita website. It's fabulous, and I make it al... Sun, 3 May 2009 10:45:29 EST Hi from Texas Hi guys Im new to the team. I had a transplant Nov last year. Wed, 22 Apr 2009 08:58:24 EST Hi, I Am New To This Team Hello Everyone. I am new to this team. This team was recommended to me by another Spark Person. I am 70 years old with a history of hypertension, diabetes, heart disease, arthritis and Stage 3 kidney failure. My blood sugars have been so out of control. We keep upping my insulin Levemir and Novolog and am improving little by little. I am unable to take anything but Tylenol Arthritis Strength for my arthritis because NSAID's are bad for my kidneys. During the winter when my joints really hurt,... Mon, 20 Apr 2009 20:42:27 EST Advice about Fistula surgery Hi everybody, I have a question that I was hoping someone could help me with. I am going to have a fistula surgery sometime soon. I have already had one consultation with the surgeon, we decided which arm to use. I go on Tuesday to have the vein mapping. Nothing else has been scheduled to my knowledge. All the office girls could tell me is after the mapping, I should come back and see the surgeon in the office, then will have the surgery. So I'm just wandering what kind of time frame th... Sun, 19 Apr 2009 18:43:35 EST BRIEF 'VACATION' FROM TEAMS Hi, Everyone! <BR> <BR> Moving day is tomorrow, and I wanted my SP friends to know I won't be posting for a day or two, so we can get things sorted out. I didn't want any of you to worry! LOL <BR> <BR> As many of you are aware, the place we had lined up fell through. We've found a place that may work, but it isn't available for a week or two. However, we have been invited to stay with DH's sister for a week maybe two: she doesn't have a lot of room inside the house, but has a detached ga... Mon, 30 Mar 2009 15:54:59 EST Denial, De Nile..... Hi fellow groupies, <BR> <BR> I'm a infrequent visitor here, altho I shouldn't be. I have been diagnosed with CKD but not on dialysis yet. I just turned the big 6-0 and I've realized that some big changes need to be made and only I can make them. I understand; or not. I don't know. <BR> <BR> I have a renal dietitian and a list of food do's and dont's, but there are so many difficult challenges eating wise that we all have to face. I know this. The bottom line is this; I think I'm in denial... Wed, 4 Mar 2009 20:50:51 EST Has an;yone ever had their fistula surgery fail? I had my surgery on my left wrist on Friday and it didn't work. The surgeon was very upset and has already rescheduled my right wrist for feb 28. Just curious if anyone else has had this happen to them, it is very frustrating. <BR> Thanks Carolyn Sun, 15 Feb 2009 16:52:59 EST just want to say thanks Hey there everyone...I just wanted to thank all of you for your prayers and thoughts for my husband and I...he is doing pretty well.. he had his access put in yesterday...I feel a little mean because I yelled at him today (not really yelled...but)...He said he was just going to stay in bed all day and I told him "oh no you are not!! Let's go...We have stuff to do"...I made him get up, get a shower and go to the store with me...turns out I had to pull HIM out of the store cuz I was getting tir... Sun, 25 Jan 2009 15:02:13 EST Can someone PLEASE help me.... name is Cindy and I am new here to your team...I don't have ESRD but my husband does...I am trying so hard to be strong for him...I am scared though...this is the first time I am admitting this... <BR> <BR> Jeff's Creat is 7.4 which is down from 7.9 last week...his doctor said yesterday that she wants him to go on dialysis if he stays in the 7's... <BR> <BR> We have an appointment at Pinnacle Health for a transplant evaluation soon..I am going to be tested (we have the same blood... Thu, 15 Jan 2009 07:46:18 EST More Help For Us Happy New Year Everyone~ <BR> <BR> Go to and put in your prescription (grams)from your nutritionist/doctor (protein, sodium, phosphorus, potassium) and they will show you diet plans and recipes for the prescribed amount. <BR> Between the Spark Team and DaVita it sure makes our way of life easier. <BR> I hope this helps a lot of you - I know I was having a hard time figuring out what I should and should not eat. <BR> Jo Fri, 2 Jan 2009 19:01:34 EST Joint Pain after Dialysis Drinking tea with ginger lessens joint pain after dialysis. Mon, 29 Dec 2008 08:14:55 EST The Christ Hospital Advertisement Christ Hospital is where I am on the transplant list here in Cincinnati, OH....It is amazing to me to see them advertise here, maybe it's a good omen! I hope so.....the transplant team is wonderful at Christ Hospital and every person we have met in any department seem to be so truly caring and's a great hospital. Phyl Thu, 11 Dec 2008 08:25:53 EST Yep, another 'newbie' LOL Just thought I'd take a look at if there was a team for CKD, and there you all were... <BR> <BR> I was stage 4 (35%) when I was first diagnosed, and am now stage 3 (44%~YAY!) but as you are all aware, staying that way is an ongoing battle, never mind losing the weight!... <BR> <BR> Check out my sparkpage if you want, there's more that I don't have time to explain this am (have to get DH up in a few minutes! LOL) <BR> <BR> I may not post a lot on this team, since the FM team takes up a grea... Mon, 24 Nov 2008 06:48:20 EST Hi I'm new to this board. I've had kidney failure. I'm at 25 percent.I have kept off dialysis for 3 years. But its getting harder and harder. It's really hard to find low sodium foods and recipes. I've really been down lately not taking care of myself. I've multiple problems. Diabetes,overweight. Am on ozygen for heart problems. Any support would be appreciated. Sat, 22 Nov 2008 10:21:28 EST i'm so scared..need advice!! I am on 2 lists for a kidney transplant, and I have heard so many horrible things about prednisone. My mother had a kidney transplant ten years ago and didn't gain too much weight at all until recently from menopause. I have battled weight problems for the last ten years. I get up to 190 then down to 130 over and over again! I'm scared that with the prednisone I will BLOW UP! does anyone have any advice on what they did or could have done differently to avoid weight gain????? oh and I just st... Sun, 2 Nov 2008 23:36:27 EST new to it all! name is Boni I'm 26 years old and have had kidney failure for about 5 years now. I am currently trying my best to avoid dialysis, and am on total disability. 2008 has been a crazy ride and along the way I've lost several of my closest friends. Anyway, I'm looking to make some new friends who understand what I am going thru. Any advice would be greatly appreciated! thanks! <BR> <BR> Boni Wed, 29 Oct 2008 18:51:38 EST To member Barnhill181 I am a Barnhill myself and was wondering what your background is. i.e. where you live, relatives, etc. Is it a coindidence? Hope to hear from you soon. <BR> Janina Mon, 13 Oct 2008 21:45:52 EST Cold medicine?? I was just wandering what everyone takes when they have a cold, or flu. Something you wouldn't go to the dr. for, but would like relief! My dr. stresses that they only thing he wants me to take for pain/fever releif is Tylenol. Last time I was feeling sick I was taking some Sudafed...but it actually reduced my kidney function a little. So, I have a cold this weekend and bought some Tylenol Cold and Sinus, but was just curious if anyone has any other remedies that are kidney friendly. Sat, 13 Sep 2008 18:28:43 EST Feeling down? Here's a little thread, for anyone to post on that's feeling down due to life's stresses and their problems dealing with ESRD. Its a common thing and you're not alone if you feel this way. Write and let it out, if you're feeling depressed. We care. <BR> Leyla <BR> <em>247</em> <em>220</em> <em>245</em> Fri, 12 Sep 2008 02:09:20 EST Hi from southwestern PA Hi. I'm Helen, age 54 for a couple more weeks, in Stage 3 with diabetes and other issues. I have been very ill this week with a fever of 104.7 but no idea what the problem was. Fever today is down to 101 so I was able to walk, weed in the flower beds and mowed some of the lawn, but I am very tired at the moment. All I can move right now is my fingers and they are very slow. lol Hi Mary and Marla, I am a little slow but I finally made it here. <BR> God bless. <BR> Hugs, <BR> Helen Mon, 8 Sep 2008 00:18:46 EST Sparking off the Pounds Hi all <BR> I received a kidney transplant in March 1999. My initial weight gain was due to the prednisone that I take. But I have realized that I am using the medication as an excuse. Being able to eat all other foods that I was unable to eat while on dialysis. Now my weight has become a problem. So I am going to Spark it off. Sat, 23 Aug 2008 23:54:09 EST Hi - New to all of this Hi Everyone, <BR> <BR> My name is Erika. I'm 27, and just found out last week I have kidney disease. It's so new that I just had a kidney biopsy on Monday, and don't know which disease yet, but there is definite nephrotic syndrome. <BR> <BR> Right now I'm losing protein by the bucketload (over 6g/24 hours) and therefore have low blood protein, as well as low hematocrit due to persistent hematuria. Everything else is looking good for now. <BR> <BR> Once the test results come back, we'll be ... Thu, 14 Aug 2008 15:13:08 EST Hi My name is Stacy and I am 34 years old from Kansas. I actually have a disease called Minimal Change (which means I lose a whole bunch of protein)but it usually does not result in kidney failure if treated. It is an autoimmune, so I take many of the same medications including one for transplant patients and I have high blood pressure as well. I wanted to find a kidney group because if I don't watch my diet, Etc, I am heading for kidney failure as well. I find it hard for people to relate t... Sun, 10 Aug 2008 01:45:50 EST Bones Hello all! <BR> <BR> I thought I'd start a new topic since it's in the forefront of my life at the moment and it's something all of you on dialysis or heading that way should be aware of. <BR> <BR> My kidney disease has caused hyper parathyroid ism. I had it while on dialysis. Usually is gets under control after transplant, but mine did not. It is not severe enough to warrant surgery to remove the glands, but the elevated PTH (parathyroid hormone) has caused significant bone loss. <BR> ... Tue, 5 Aug 2008 11:20:01 EST Hi from Colorado. I'm Janina. I'm 32 years old. I am on my second kidney tranplant which I received 3 years and 2 months ago (but who's counting). I was on peritoneal dialysis then had to switch to Hemo. Made me crazy. I was 115 pound at my sickest point, but I don't want to go back there. At my transplant I was 135, now I'm 180. My labs were out of whack so I had to eat extra food to help them out (of course, I didn't mind at the time). I just had a baby in May (my 2nd) and gained a little extra with h... Wed, 30 Jul 2008 18:12:21 EST Found a Salt-Free cookbook at Big Lots I was browsing at Big Lots and found an American Heart Association Low-Salt cookbook. I'm going to look at it in the next few days and see if the recipes can be adapted to low salt, low potassium, low phosphorus, low protein eating. <BR> Hugs, <BR> Cathy Tue, 29 Jul 2008 07:44:33 EST What keeps you motivated? I've had a rough day today, just not feeling well. I've stayed busy running errands and doing laundry, and puttering around the house, cooking and cleaning up the kitchen. But I could not get myself motivated to get any real exercise done. What keeps you motivated when your not feeling well? Wed, 23 Jul 2008 22:59:48 EST cramps after treatment AFTER MY TREATMENT I SOMETIME GET CRAMPS AND I HAVE DISCOVERED IF I EAT AT LEAST 2 DILL PICKLES MY CRAMPS WILL STOP. I HOPE THIS WILL HELP I KNOW THAT IT WILL NOT CURE THE CRAMPS. Sun, 20 Jul 2008 21:31:55 EST Hi! I'm so excited! Hi everyone! I'm C.D. and I'm so excited to find a group of people that I can relate to with my health issues! I'm 31, married and mom to 3 kids. I was diagnosed with Polycystic Kidney disease back in Feb of 2006. For the last 2 years I have been holding pretty steady around 35% function. However, during a dr. appt. 2 weeks ago my function had dropped to 27%. Doesn't sound big, but my dr. is concerned and that concerns me. I feel very frustrated because the dr. tells me he is unhappy with... Sun, 20 Jul 2008 20:32:01 EST hunger on dailysis I have noticed that on days that I have treatment I am extremely hungry. I try to eat healthy foods on those days but I eat a tremendous amount of foods. The next day I eat very little food or get by on my protien shake. I need help. Sun, 20 Jul 2008 12:32:51 EST RANDOM QUESTION <em>67</em> <BR> <BR> I bought a book, "Coping with Kidney Disease",which I just started. The author talks about all the people walking around with undiagnosed kidney disease. <BR> <BR> My question is- how did you get diagnosed? Random urine tests,genetic disorder,routine labs? <BR> <BR> I read somewhere that when you were diagnosed with diabetes,that you were supposed to be checked for protein in your urine,which I hadn' was like a hunch. I asked <BR> the Dr.if it would be appro... Sun, 13 Jul 2008 10:01:03 EST Newbie Hi everyone. Just wanted to introduce myself. I am new to this group. I joined SP about two years ago, and just recently got back involved. I was diagnosed with Polycystic kidney disease about eighteen years ago. I am pre-dialysis, and have been doing fair. It is always good to have support, not only with weight loss and healthy living, but also when facing something such as ESRD or organ failure. Looking forward to meeting some great people here. Thanks in advance. <BR> Tracy Thu, 10 Jul 2008 03:59:33 EST D.M. 2 with CKD, and ???'s Hi. My name is Sandy,and last year I was diagnosed with Nephropathy secondary to Diabetes, and was also diagnosed with hypertension...big surprise,huh? I also have Fatty Liver Disease,just to make things a bit more interesting,diet-wise,medication-wise,etc. <BR> <BR> I was diagnosed with diabetes in 2003. They did not check my urine for protein like they were supposed to. Last year,they found albumin in my urine which suggested that my diabetes was starting to affect my kidneys. <BR> <BR>... Thu, 3 Jul 2008 23:20:47 EST Eliminating Foods was difficult with Weight Watche Hi, <BR> Has anyone else had the experience with Weight Watchers that they emphasize substitution instead of elimination of foods? I tried to keep to my Renal Diet with WW and I didn't have much success with support for eliminating foods that I shouldn't have. Sat, 21 Jun 2008 23:07:51 EST Starting Weight Loss Journey I have stage III chronic kidney disease, and I am about 100 lbs. overweight. I am at high risk for diabetes because of a family history. I have plantar tendon that is hurting really bad because of the weight. <BR> <BR> I would like to start swimming for exercise, but think that I have to start slow because I have chronic fatigue, Epstein-Barr. <BR> <BR> I have hypothyroidism as well. <BR> <BR> My excuse has been that I take care of my elderly parents, one with Parkinson's and the other, a... Wed, 18 Jun 2008 11:31:54 EST Hello from newbie I just joined this team. I am not ESRD, but hope it is still okay to join. I donated a kidney to my husband in October 07, so only have one kidney left. I had to lose weight to donate, and I am determined to keep the weight off that I lost and, hopefully, lose a few pounds more. I want to take the best care I can of myself and my remaining kidney (it needs to last a while!) <BR> <BR> Seems to be a lot of encouragement on this team and hope I can help others and that you can keep me motivated... Fri, 6 Jun 2008 20:26:35 EST Hey ya'll...this is a first for me! Hey ya'll...this is the first time I have EVER posted anything on the web. My nale is Ashley and I had a kidney transplant on Dec. 19, 2006. I had a little trouble adjusting to my meds but other than that I too am a poster child. I just turned 44 last week. I was diagnosed with IGA Nephrapathy in 2004, did peritoneal at home, got a hernia and was put on hemo. for about a year and a half. I cannot seem to lose any weight. I play on a tennis team in the South (which means I sweat a lot)and I... Mon, 12 May 2008 17:49:05 EST Surgery Well, I have to go in on the 21st for laparoscopic fundoplication surgery. It's a surgery for GERD (Acid Reflux) that I have had for the last 14 years. They are telling me I will lose between 15-20lbs. I'm not gonna complain <em>246</em> I guess not the best way to lose weight huh? Wish me luck! Wed, 7 May 2008 15:39:23 EST I would like to join?! Hello everyone. I have been a part of spark people for awhile but haven't used it till just recently. I found this group & thought it would be awesome to join since I am a post kidney transplant patient. My transplant was March 31, 2006. My name is Missie & I am 39 years old & my family has a history of ESRD going back to my grandfather who passed it down to all 4 daughters who in turn have passed it down to some offspring. My brother & I just found out that my father had some sort of kidney ... Fri, 2 May 2008 13:03:41 EST ESRD with 15% and new to group Hey I'm Amy J.. I am 45, have 15% kidney function,just had venograms done to determine the best site for an access and I really should try to shed 75 pounds. I am looking for others dealing with similar issues. The weight is coming off faster since changing to a mostly vegetarian pre-dialysis diet. <BR> Thu, 24 Apr 2008 00:11:35 EST Ok to Join? Hi everyone. I am Stacy. I am 30 years old as of a couple days ago and have 2 kids. I dont have ESRD as of yet. I am at stage 4. MY kidney function is 20% and my gfr is 21. I have gained quite a bit of weight since I dont have the energy to do alot, and when I do I get alot of swelling. I was just recently put on metalozone to help with the swelling, so I am wanting to lose some of this weight. I was wondering if its ok to join even though I am not at end stage yet. I would really like to be ... Tue, 25 Mar 2008 12:29:13 EST Hello - I have dirty blood :-) Hi everyone, <BR> <BR> My name is Mike and well. Thought I would say hello introduce myself and ask a question in one posting. <BR> <BR> Last month I went to the doctor for my annual physical and my doctor did my normal blood work. When my test results came back I was pretty surprised.The following was in my test: <BR> <BR> Urea Hyrogen: 34mg <BR> EGFR: 44mL <BR> Creatinine:1.7mg <BR> <BR> My doc said my kidneys were basically not functioning right and said to follow a renal diet for a ... Tue, 18 Mar 2008 12:05:02 EST NFD MRI Contrast Please pay attention to this suggestion. Before having any test that require contrast especially if it is an MRI using Galilium check it out. <BR> <BR> Those of us with ESRD are more susceptable to a condition that is caused by thus drug. The FDA has put a warning out on it but not all MDs MRI locations may be paying attention. The warning was put on a month after I had the test. To late for me but NOT to late for you. The fact that the first 10 sites that come up when you google it are law... Mon, 17 Mar 2008 21:12:15 EST HELLO-I HAVE STAGE 4 CKD I AM NOT ON DIALYSIS AND AM SEEING A NEW KIDNEY DOC IN A FEW WEEKS AS MY OLD KIDNEY DOC I HAD BEEN SEEING FOR OVER 7 YRS AND HE REALLY DID NOT DO MUCH FOR ME--MY KIDNEYS ARE WORKING AT 57% CURRENTLY AND I AM SPILLING PROTEIN AT 3+ THIS GOES UP AND DOWN-MY NAME IS SUSIE SMITH AND I LIVE IN PA AND I AM 45--MARRIED WITH NO KIDS. i AM DIABETIC AND ON AN INSULIN PUMP TYPE 2 INSULIN DEPENDENT & LAST YR I HAD WEIGHT LOSS SURGERY--AND I HAVE LOST A TOTAL OF 185 LBS AND NOW I NEED TO LOSE 67 MORE AND... Sun, 16 Mar 2008 19:22:29 EST Has anyone used fluid retention as an excuse? I had a kidney transplant a few years ago and even at it's best I didn't have a lot of kidney function, only enough that it kept me from being on dialysis. In order for the kidney to work it seemed that I had to have some level of fluid on me and also take water pills to get the kidney going. I used to use it as an excuse. Thinking when I weighed myself that the number couldn't possibly be accurate, it must just be fluid. Eventually I came to terms with my self that if I actually had 25 lbs o... Mon, 25 Feb 2008 09:08:46 EST Ever hear of .....Achalasia It is a condition that means I am having a hard time swallowing which sounds like an instant weight loss solution but my metabolism has just slowed down with it. I am on dialysis, and with those meds also take coumadin (blood thinner). My protein levels are falling. Any ideas for high protein, low cal things that also get the metabolism going and it all comes in small quantities so it does not stay in my throat? I am not asking alot this point I will take a good joke as laughter is... Sun, 24 Feb 2008 19:40:17 EST Recipes Good for ESRD Hi Folks - I noticed on the introduction threads that some people are asking for recipes, so I thought I'd start this new thread as an invitation to anyone to write in their favorite recipes good for ESRD or the name of a recipe under the Spark recipes that would work. I saw a low fat Broccoli Soup on the Spark recipes, would Broccoli Soup be low in potassium? What types of cheeses are bad for kidney disease? /aprilmay1956 Fri, 15 Feb 2008 00:13:32 EST Just new wanted to say Hi, Hello everyone, My Name is Gordon, Gordie for friends and anyone who will take the time to talk to me. Only kidding. I have polysystic kidney disease PKD. I am 6 monthly monitored at the renal clinic, I'm on Blood pressure pills and am trying to loss some weight and get healthy so if I do have to have a transplant I will be up for it. Sun, 10 Feb 2008 05:17:10 EST Hi I just joined SparkPeople a few weeks ago. It's really nice to see the variety of Groups that the site has. This is the first time I've taken a look at the Spark Teams part of the site. <BR> <BR> I received a combined kidney/liver transplant about 3 1/2 years ago. I'm not currently on dialysis but I am waiting for another kidney since my creatinine is 4.5. I'm trying to get in better shape before it's time to have the surgery and I want to continue with a healthy lifestyle afterwards. Fri, 8 Feb 2008 23:26:53 EST Weight gain Hello! I have been on dialysis for two months.During the past two weeks I have been exercising and watching calories everyday my calories are within the range of of 1200-1500 or less but I am not losing weight instead I went from 69.5 to 69.9. Has this happened to anyone else? Mon, 4 Feb 2008 12:58:32 EST I'm a newbe Hello! I am a Diabetic who has just been told that I'm in the pre stages of Kidney Failure. so I've been put on a renal diet , now I don't mind that my problem is that every morning I have to weigh myself, now I must tell you that my true weight is 325, but every morning I've been fluxuating between 329-235, and it's driving me crazy!!!! I can't seem to make any progress in weight loss, and I'm supposed to lose 200lbs as quick and as safe as possible. My physical activity consistes of , Da... Mon, 28 Jan 2008 07:57:43 EST Hello from the Seattle, Washington area I am new...I went into kidney and liver failure just about a year ago after taking tylenol. I am very lucky to have survived. I was on dialysis for a month. I am off and if I take good care of myself my kidneys should be I do the low sodium, low protein, take procrit shots and medication for high blood pressure. Since I got sick I have had restless leg syndrome which has just about driven me crazy. With meds it is manageable but still there. I am soooo grateful for a second chance a... Sun, 20 Jan 2008 20:33:21 EST What do you do for exercise? With lack of energy an issue with kidney disease, what does everyone on this team do for regular exercise? I am doing some strength training for my legs, walking and using my exercise bike. How about everyone else?/ am Sat, 12 Jan 2008 01:35:56 EST Hanging onto stage 4 by a thread Hi - I am new to this team. I have had one kidney removed and the other one is hanging in by a thread. I know I will have to go on dialysis soon. My Dr. wont talk to me about what that entails. Right now I live from one blood test to the other. I would appreciate any help and support I can get. <BR> Deb <em>198</em> Thu, 10 Jan 2008 12:38:53 EST Greetings I must say I'm excited to see an ESRD group. I had a kidney/pancreas transplant in 2003 at UW Transplant Clinic. I was truly blessed only having to wait 6 weeks on "the list." <BR> <BR> Two things led to my weight gain - everybody's favorite steroid, prednisone and the fact that I had been diabetic for 30 years and then was cured after the transplant with no diet restrictions. <BR> <BR> 40 pounds later I decided I did not need to collect every type of diabetes and would start trying to av... Sun, 16 Dec 2007 21:08:46 EST Shaking from transplant medicines? Has anyone else experienced shaking of their hands or head from their transplant medicines? I'm on Prograf, Cellcept and Prednisone. Like to hear from anyone about their experiences. AM Thu, 29 Nov 2007 16:18:31 EST Hello Hi. I am almost ten years post transplant, 1/98, with a kidney and pancreas. For the most part lfe has been great snce then. The worst for me is all the weight I gained following my transplant and I have had terrible long term success losing and keeping it off. I'm going slowly this time and have support from a wonderful partner. Would love to hear from anyone who is also living with a kidney-pancreas transplant. Thu, 22 Nov 2007 21:10:14 EST Low Prograf Levels (Transplanted Patients) Today my lab results showed my prograf levels to be low, 3.9, and my doctor increased my dosage of prograf. <BR> Can you tell me what happens to the immun. system when the prograf level gets too low? <BR> I have to return in one week for lab again and will present this question to my Doctor. <BR> My transplant was 9/10/06 and my levels have been running good until todays visit. Wed, 21 Nov 2007 00:59:07 EST Tips & Tricks on Renal Diet... Fluids...etc... I have a tip to share. I'm restricted to 40 oz. of fluids a day. I love cold water. So, I take two 20 oz. bottles of water ( I first pour a little water out...making it about 16 oz.) then I freeze them. <BR> <BR> I'll take one frozen bottle out early in the day & fill it to the top with the water I poured out making it a 20 oz. bottle. I'll sip on that all morning into the stays nice & cool as the ice melts. When it's gone & I'm thirsty I'll take the second bottle out of... Sun, 4 Nov 2007 04:45:37 EST Salad bars after transplant? I read where you should avoid salad bars after having a kidney transplant. Anyone else hear of this? Tue, 23 Oct 2007 05:26:26 EST Ammonia taste in mouth? Has anyone experienced an ammonia like taste in the mouth? I am. Ugh. It also feels like ammonia vapors coming from my eyes. <BR> <BR> I had this when I first went into kidney failure at the hospital. They said it was the toxins. Well, I've been on dialysis for 11 months now & have been having this problem for a few days now. I go for labs today (during dialysis) & I'm going to ask the doc about it if I see him. Just wondering if anyone else noticed it on them? Tue, 16 Oct 2007 04:47:24 EST Hi, New and in need of friends! <em>39</em> <BR> Hell there all. My name is Kim and I just found out that I have CKD and it scares me. I don't know anything at all about this. I have been doing alot of reading and stuff and it scares me more. I know that I have to change my entire life style and eating habits. Is there any good sights to go on where I can get information on proper nutrition? Maybe do's and don't's? Any information would be helpful and greatly apprecitated... <BR> Thanks all.. <BR> KIM Wed, 19 Sep 2007 01:24:40 EST Hi! I'm new to the team thing. I've been a member of SparkPeolpe for a few months now, and still haven't explored all they have to offer! <BR> <BR> I'm excited to find an ESRD team! I was on hemodialysis for 31/2 years before my transplant in 1996. I've been blessed for 11 years now with minimal problems. Mon, 17 Sep 2007 12:19:03 EST Patient Resources Info I saw these two sites on of all places a banner ad right on this site! Check them out and see if they'll be helpful. <BR> <BR> <BR> Sun, 9 Sep 2007 19:35:25 EST Transplant recipients, unite! Hi my name is Shari Rogers. I received my kidney transplant on December 7, 2004. Before that I had both kidneys removed (less than a year apart) and I was on 3 times weekly dialysis for 2 hours 45 minutes each treatment. It was tough going, but lucky for me I tolerated treatments reasonably well. I'm thankful that my donor family had the presence of mind to think of the health and well-being of others in their time of enormous grief. They could just as easily have said no when the doctor... Sat, 1 Sep 2007 23:16:57 EST Hang in there over the holiday! I just wanted to say good luck to all of you over the long weekend! hang in there and stick to your hoals over the long weekend! this is a tough one for me because i am going away for the holiday.. but i hope to stick to my goals! good luck everyone and ill see you all next week. <BR> Dee Thu, 30 Aug 2007 11:39:14 EST Anyone else missing french fries? Hi All.. <BR> just having a tough weekend trying to avoid the evils of frech fries *potassium* i miss them like crazy!! anyhow thats all i have to say right now i needed to get that out though ...thanks for letting me vent!! <BR> Dee Sun, 26 Aug 2007 21:51:14 EST Introducing Robin Hi everyone. My name is Robin. I am a 52 year old female and I live in Victoria BC Canada. I was diagnosed with chronic kidney disease about 3 years ago and I currently have 30% kidney function. I follow a very restricted diet so I can hang on to what kidney function I have and keep off dialysis for as long as possible. <BR> <BR> I am happy to find this group; it will be nice to talk to folks who don't have to have the ins and outs of kidney disease explained to them! <BR> <BR> Robin Sat, 25 Aug 2007 16:22:11 EST Meet & Greet With new members ariving almost daily, I thought that it would be nice to possibly have a meet & greet sometime in the future. I think that would be so cool! <em>250</em> Tue, 21 Aug 2007 23:35:39 EST HI Lean & Shorty~ <BR> <BR> Come join in...I think these gals are getting tired of answering my questions. J/K! Hope to hear from you soon! <BR> <BR> Sandy <em>235</em> Sat, 18 Aug 2007 21:03:12 EST DIABETIC KIDNEY DISEASE My name is Sandy. I was "diagnosed" with Diabetes in 2003, but not the docs are saying I had it quite some time before that. How many diabetecs have heard that one??? <BR> <BR> So my A1c's have been "acceptable", but I tell them I think they should be better.My theory is that Blood sugar control is PARAMOUNT to ward off those nasty complications that diabetes can cause. <BR> <BR> I've been conducting a little of my own research, and the material says that Diabetec Nephropathy is the #1 caus... Mon, 13 Aug 2007 22:50:45 EST Greetings to All! I would just like to introduce myself to this group. my name is Dee i am a dialysis patient and have already had one kidney/pancreas transplant and i am on the waiting list for my second kidney. I have been using the sparkpeople site for almost 5 or 6 months now and have found some great things including being able to count my potassium and phosphurous in my diet. As well as a ton of great recipes! i would love to talk to some other dialysis and transplant people so gimme a holler if you woul... Fri, 10 Aug 2007 23:41:18 EST Prayer I ask that all that read this message pray for our friend, Jess, during this time. She is facing some complications and she needs our support. <BR> <BR> <BR> Dear Father, <BR> <BR> In you name, I pray that you be with my new friend and allow the blessings of miracles to be upon her. Give her strength that she never knew that she has. Keep her Lord and remind her that this battle is not her, but YOURS. All these things I ask in your son Jesus name....AMEN <BR> <BR> Thu, 26 Jul 2007 18:38:48 EST What is going on with you right now? I had a challenging Drs appointment. A change in my meds means I can look forward to an upset stomach while my system adjusts. My weight is up 238 to 243, my legs are a bit puffed and my Dr thinks it may be water weight. I have a new water pill (lasix, I am sure you are familiar with it). I hate Lasix; it makes me feel weird (I am allergic to sulfur) <BR> <BR> <BR> It is just frustrating to see a weight gain. My Dr also said think I look good and everything else is good - sugar,BUN, crea... Fri, 13 Jul 2007 12:00:28 EST Hi! My name is Jess. I am 34yo/married with ESRD. I got a transplant in 2002, but have had 2 rejection episodes with this kidney and had to take massive amounts of prednisone, so I gained about 100 pounds in the past 5 years. My blood pressure and other labs are off and I need to get healthy. I also had ecoli in Dec, so I had a lot of excuses to over eat, but not any more! Tue, 10 Jul 2007 13:44:15 EST