SparkPeople DISABLED/FIBROMYALGIA AND MORE Team Messageboard http://www.sparkpeople.com/myspark/groups_individual.asp?gid=11879 Wow! I am hoping to find persons who have similar problems. ?Feel worthless ?Cannot contribute to household/spouse/kids SparkPeople DISABLED/FIBROMYALGIA AND MORE Team Messageboard http://www.sparkpeople.com/assets/nav/nav_logo_v3.gif http://www.sparkpeople.com/myspark/groups_individual.asp?gid=11879 NEW_ HELP_ NEED SUPPORT http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x54157724 Hi everyone, <BR> <BR> I have been struggling for 12 years now. I am NOT in good shape. A friend was supposed to drive me the 50 minutes to the new primary care doctor yesterday but she cancelled so I drove myself and another friend rode with me. I was really in NO SHAPE to drive. Made it there okay but was exhausted after leaving 2 hour visit with doctor and had to run errand and drive home. OMG I was woozy and exhausted and it was scary but Thank God made it okay. <BR> <BR> It will take m... Wed, 17 Jul 2013 00:07:50 EST Me and My Fibro http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x53382470 Hi there, I am new to this site and hope that I can get your help and advise regarding managing my fibro. <BR> I live in Waterloo, Ontario, Canada. <BR> I have a passion for acrylic painting, gardening, sewing (learning to quilt), cooking and baking. <BR> <BR> I love to walk, but sadly I can only manage 10 to 15 minutes before I have to sit down. I also have to listen to my Mother- In - Law telling me what great physical shape she is in for her age,87, and how far she can walk, 3 - 5 miles d... Fri, 17 May 2013 22:34:17 EST hello http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x52702000 hello all, <BR> I'm new hear and just wanted to introduce my self. <BR> i'm 40 years old and have finally decided instead of yo yo dieting I am going to decide a lifestyle change. <BR> I have fibromyalgia, arthritis, and residual damages from a traumatic brain injury. traditional exercise does not work so modifications are needed. <BR> hope to meet people and maybe even someone I can learn new ideas from. <BR> a new sparkie saying happy sparks :) Tue, 26 Mar 2013 13:34:02 EST Fibromyalgia Is an Immunilogical Disease http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x11879x52522855 NfnCAP's magazine NfnCAP Life headline article "Fibromyalgia as a Real Medical Disease." <BR> <BR> Now there is a blood test that can be given: The FM/a® Test - <BR> <BR> Fibro is an immunological disorder. <BR> <BR> <BR> Order FM/a® test here http://thefmtest.com/order-fma/ <BR> <BR> Wed, 13 Mar 2013 21:24:09 EST Exercise 10 min twice a day any ecercise http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=23197x11879x50184358 i try to do at leat 10 mins on exercise bike at least twica a day.How about you <em>381</em> Mon, 1 Oct 2012 07:06:35 EST chronic pain for a lifetime? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x49433024 How are we supposed to deal with chronic pain for the rest of our lives. Are we supposed to just smile and act like nothing is wrong? People who know me well can tell when I am in pain when I am not concious of it. Mon, 13 Aug 2012 01:57:00 EST Hello, I am a newbie. http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x49406156 <em>41</em> Hi I am all new to this blogging thing. I usually just IM with my friends. I was considered disabled about 2 years ago when I got my diagnosis of the FMS. I have several chronic illnesses besides the FMS. I am here to hopefully find some things that other people find helpful for FMS and Weight loss while trying to deal with all the symptoms of FMS. Sat, 11 Aug 2012 04:28:47 EST Did you Huddle today http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=23599x11879x48546815 <em>250</em> Sat, 16 Jun 2012 02:45:52 EST What do you do for fun http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=23599x11879x48335618 How do you get your fun/fitness I like meeting up with friends for a drink and a walk Sat, 2 Jun 2012 03:56:52 EST Just calling to say Hi http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x11879x48177332 How are you today on here you can let us know your ups and downs and share anything that is bothering you.It does you good to get things off your chest and to share the good and the notso good times <em>247</em> Tue, 22 May 2012 03:04:35 EST Hi i am very new to this site. http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x47958532 Hello my name is Amanda and i live in Derbyshire U.K. I have had fibromyalgia for nearly 6 years. I got it after the trauma of losing my son. It took nearly three years to get a diagnosis, which was so hard as i looked perfectly alright, and no one believes what your saying. It was so frustrating. I was a constant visitor at my G.Ps and the phlebotomy clinic. I saw a senior consultant in Rheumatology and he just looked at me like i was making it up, he didn't even see me for a second time ju... Mon, 7 May 2012 16:09:28 EST Where do you come from? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x47832002 I live in a little village called Penny Bridge which is in the Lake district of Cumbria UK <em>247</em> Mon, 30 Apr 2012 01:24:48 EST What didyou do for Exercise today? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x11879x47802364 I walked 1 mile and did 10 mins on ex.bike Sat, 28 Apr 2012 03:27:13 EST Did you walk today? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=23197x11879x47626635 2 mile but at a slow pace Tue, 17 Apr 2012 13:29:25 EST How is life treating you at the moment http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x11879x47399806 Let us share the good and bad days,I know we all have these some more than others So this is the place to get it of your chest.Maybe it's just the weather.or you are in pain.Don't bottle it up inside write about it here and hopefully you will feel better <em>247</em> Tue, 3 Apr 2012 02:23:32 EST INTRODUCE YOURSELF TO THE TEAM http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x47399774 HI I'm Carol <BR> coming up to 57 this month. I live in the UK and have been sparking coming up to three years, I live on the outskirts of a small village in the lake district of Cumbria. <BR> I enjoy walking when i am able,birdwatching.knitting,cardmaking,baki<BR>ng,photography, <BR> I do voluntarry work with homeless and fundraising for various charities. <BR> I am aiming to loose 60lb but due to medications it will be a slow process.Also i have have had several foot operations which at ti... Tue, 3 Apr 2012 02:15:38 EST having a rough time http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x46930160 I have fibromyalgia, CFS, IBS, & all the other things that go with it. I'm new to this site & I'm having a tough time trying to do exercises & eat right when I feel like crap. I live in Maine & the cold, wet weather is no help. I can do some on my treadmill but now I have bursitis on my left side which makes doing this every day difficult. Yesterday I started beginning strength training & I can't believe how much back, neck & arm pain it caused me. I could only do these for about 15 minu... Tue, 6 Mar 2012 07:49:25 EST I'm sorry, this site is too difficult http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x11879x46745873 I'm sorry guys, but I just can't do this site. I've tried working with the nutrition tracker and it's driving me nuts! I've manually placed recipes and they disappear. I've tried putting recipes into favorites from one area of this site to another and it doesn't work. All the time and energy for nothing. I don't have the patience or the time to spend on it. I'm going to have to find a simpler site to work with to reach my goals. Thank you for allowing me to be on team but this is just ... Fri, 24 Feb 2012 11:04:33 EST Obesity related to Fibro http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x11879x46530945 I just received the newest Fibromyalgia Network newsletter. There's an article entitled "Are Metabolic Changes Causing Your Symptoms to Spiral?" The article is about fibro people's weak adrenal systems being fatigued and no longer listening to the hypothalamus signaling the pituitary to release the ACTH hormone telling the adrenals to put out cortisol. The adrenal glands are no longer listening to the ACTH signal and produce weak cortisol responses. This is 1 sign that the adrenals are fa... Sat, 11 Feb 2012 09:55:12 EST Hello http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x46446227 Hi all. Just want to say hello. I've been checking out all the teams to see where I fit it. I am very impressed with your team and am hoping I'll fit in. I'm in my 50s and have had fibro since childhood. I also have Sjogrens and other related auto immunde deficiencies. My mom has fibro as does my daughter. We think my grand daughter has Sjogrens. My son, who will be 30 in May, is displaying signs of fibro now. We're a walking test tube family! BTW, I really enjoyed the article on ange... Mon, 6 Feb 2012 10:37:18 EST Exercises for "us" http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x11879x45842565 Exercises for fibromites is hard enough. Now throw in dysequilebrium & dizziness and exercise could be hazardous to one's health. <BR> <BR> However I've found some seated exercises... For starters... <BR> <BR> Seated Resistance Band Exercises: <link> <link>www.sparkpeople.com/resource/fitness<BR>_articles.asp?id=982 </link> </link> <BR> <BR> Now all I have to do is find the seated cardio exercises again. Thu, 5 Jan 2012 14:39:06 EST Good Morning to all! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x45697607 Hi everyone. I am new (again) and hope to find some buddies who understand and will not judge me for having a hard time exercising due to Fibro flare ups. I have a long way to go, and am finally understanding that it takes more time for me to lose 75 lbs than the Biggest Loser contestants! I am 44, have kids at home, homeschool a 7th grader and love to read. If you think we can be motivational to one another, please send me a message. Hoping you all have a blessed day, Kelly Thu, 29 Dec 2011 11:48:28 EST Fibro Among Other Things http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x45689533 25 years of fibro then in 2002 my Sick Sinus Syndrome (Heart problem, not sinus infections.) started making me faint. <BR> <BR> Finally got SSDI in 2005. This past June I fainted, fell, and broke both ankles plus a Le Franc fracture to my left foot. Thanks to the ER sending me to a nursing home for rehab instead of calling in an orthopedic surgeon the fractures weren't discovered for a month. At that point the ortho I went to said it was too late for the needed surgery to work. Second opini... Wed, 28 Dec 2011 21:40:20 EST ASD (Artificial Sweetener Disease) http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x45525487 Shortly after starting Spark People i kicked the diet pepsi thing. I ahd no idea it was so bad for us. this was some 3 or 4 years ago. Since then I ahve learned of the demons of Artificial Sweeteners. It's better to go a La natural. I might have a small spoon of honey in hot tea but that's as far as I go. <BR> <BR> Read on: <BR> <BR> <link>www.naturalnews.com/034378_artificia<BR>l_sweetener_disease_ASD_aspartame.html </link> Thu, 15 Dec 2011 14:51:47 EST Hello from a new member but old hand with fibro http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x45524266 Hello. I'm MaggzD. I live in central Ohio, USA. I've had FMS in one form or another since I was a young child with "growing pains." <em>39</em> <BR> <BR> I retired on SSD a few years ago. I'm, a wife, mother, sister, aunt, cousin, and friend. <BR> <BR> My fibro has manifested itself in various forms in the past 65+ years. Sometimes it was pain, sometimes it was IBS, mild depression, pain, fibro fog, and the list goes on... Now the fibro is manifesting itself as complete exhaustion &... Thu, 15 Dec 2011 12:50:24 EST New diagnosis of MG http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x45112726 I'm Debbie and the Leader of Emotional Eaters and Managing Diabetes 50+ and was diagnosed last week with MG. (Myasthenia Gravis. So far the only symptoms I ahve are my eyelids have virtually closed up and the muscles are refusing to work. I see my neurologist tomorrow afternoon. I am keeping a positive frame of mind here. <BR> Blessings. Wed, 16 Nov 2011 15:35:59 EST Newbie with Fibro and others http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x45101721 Hi. I am relatively new to Sparkpeople and have not been successful in losing weight because of repeated Fibromyalgia flare-ups that make me feel frustrated, useless, and discouraged. I am 53, married, and have three children. I love cats, waterfalls, scrapbooking, and soft music. Not necessarily in that order! <em>24</em> Tue, 15 Nov 2011 22:57:37 EST so bored, want to eat everything in sight! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x11879x44664260 Hi, <BR> I think this might be my first post here! I've been on SP for three weeks now and have lost 5 pounds so far. Not too bad, since I can't really exercise. So, today is rainy, I am tired, and I have a cold. For me, this means I want to EAT! This is the first day I've had trouble with cravings, and I really don't know what to do. <BR> <BR> Wed, 19 Oct 2011 12:12:56 EST hello I am new http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x44474761 hi, I am fairly new to spark people, I believe I am on week 3 day 3. I have a list of ailments, I have lupus, fibromyalgia, osteoarthritis, copd, gastric paresis, and the new disease I was diagnosed with type 2 diabetes. Someone told me about spark people and I joined. I try and stay as positive as I can. The way I work my excercise program is to start small then build gradually. Remember you are worth all of this, and you can do small amounts. And you will feel better. Fri, 7 Oct 2011 11:24:35 EST What hobbies do you have http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x11879x43772891 I am into most craft work i also like gardening and cooking walking when i am able. fundraising for charity Sun, 28 Aug 2011 09:34:14 EST Sorry You Are Here, Together We CAN Make It http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x39162457 <em>334</em> <BR> I am called Ugidahli, in Cherokee means Three Feathers..if to hard to rememeber just call me Cherokee. I am 62 thank goodness an have a loving Christian husband. Live in Missouri not far from Springfield, in 2000 came from California. Pray we can support each other in this becoming less weight type person. <em>29</em> Fri, 14 Jan 2011 16:40:20 EST Hi, new here http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x34010128 I'm not sure if this is the right group but I think we'll all understand each other here. Recently I was diagnosed with a rare type of joint hypermobility syndrome. It has stripped me of my active lifestyle and I am now dealing with chronic pain in my joints (primarily hips, knees, shoulders and back) and over-all instability. <BR> <BR> I am at a loss as to how I am supposed to be active as, some days, even walking is difficult. I am hoping to get on a bike soon but I am terrified of a majo... Sat, 8 May 2010 23:17:04 EST Hi There http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x33246017 I am new to the Spark experience and am looking for friends who have the same complications as I do. I am in a power wheelchair so excercising is difficult for me except for upper strength. I have a great number of health problems which sometimes keep me a little of balance. There are some days I am in so much pain that I can hardly cope, however I try. Anyway as I said I am looking for friends with like conditions. Tue, 6 Apr 2010 16:10:04 EST Too much pain, can't exercise http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x11879x25514188 <em>198</em> <em>39</em> <em>46</em> if these are for describing pain, then I choose these. I want so bad to lose this extra weight but I love to eat and I like a lot of things that are very fattening. I need some encouraging words to help me get through this pain-filled day. It is so hard to exercise when I feel this way. <BR> Is their anyone out there from South Louisiana, who needs a buddy to chat with for help and encouragement? I need all the help I can get. Wed, 13 May 2009 17:36:07 EST SS Disability & Fibromyalg ia/Fatigue - Help! http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x22614891 SS Disability & Fibromyalgia/Fatigue - Help! <BR> <BR> Hi - I didn't know what the heck was wrong with me in 2006 (even though the fatigue started in 2005) and finally applied for SS Disability in August 2007 as I was in such severe pain that I couldn't function. I was finally put on some medication that has made it a little better - but I still suffer from whole body pain, muscle spasms - fatigue - the whole thing associated with fibromyalgia and chronic fatigue syndrome which I was finall... Thu, 5 Feb 2009 11:51:57 EST Desperate Newbie here... http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x21986630 Glad to see that I am not the only one in the world :-) <BR> <BR> Well, hi! <BR> <BR> My name is Bridget. I am 15 and have had an extreme case of FM'S for about 2 and a half years now. It is really controlling my life. Just today, I dropped out of high school because I could not go often enough and am continuing online. I have also just applied for DB so, wish me luck! <BR> <BR> I feel like I am a waste of resources, a waste of skin, a waste of breath. <BR> <BR> My dream is to open a free... Sun, 18 Jan 2009 03:13:15 EST Exercise program for upper body? http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x17827491 Howdy !!! <BR> <BR> I am a new member to this team - can someone please help me or direct me to an exercise program for the upper body only ? <BR> <BR> I have been going to a podiatrist for over a year now, can't clean house, wash dishes, etc. Thank God for my awesome husband !!!! I also have fibromyalgia, and several other medical problems.... <BR> <BR> We live in the foot hills of the Rocky Mountains and I want to be able to get outside and enjoy life again !!!! <BR> <BR> bullwinkle54... Wed, 20 Aug 2008 12:02:26 EST New to this Team http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x16915617 I'm so glad I found this team. I should have looked more when I first joined SP, but I didn't. <BR> <BR> I am 58 yrs. old, from North East Tennessee and was diagnosed 8 yrs. ago. I will be married 40 yrs on Aug 2. We have 2 sons, ages 32 and 36, 2 wonderful daughter-in-laws and one precious Grandson 2 1/2. <BR> <BR> I also have Hypthyroidism, High Blood Pressure, Sleep Apnes, Restless Legs, Asthma, OA, etc. and am on 10 medications a day, several of which cause weight gain. <BR> <BR> I ... Mon, 21 Jul 2008 19:45:29 EST Stop Eating Your Anger http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x11879x13536942 Stop Eating Your Anger <BR> By Sally Shannon <BR> Four years ago, Barbara Konwinski of Wyoming, Michigan, weighed 268 pounds. "I was so angry — just angry at my life in general," the 54-year-old teacher, mother and wife recalls. "I felt I had no control over anything." <BR> Although she's normally cheerful and outgoing, a series of events that would challenge anyone — her husband's job loss when his company relocated, a house fire and a serious accident involving her oldest son — brought B... Sun, 30 Mar 2008 16:39:45 EST Hi! Well, here I am. http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x10998091 I am disabled by Fibromyalgia, Osteoarthritis, Rheumatoid Arthritis, Herniated Discs and Nerve damage - all stemming from falling down the stairs at my home. Since then, we have moved to a new state, (away from my family and support system), and since I rarely leave the house, well, it's lonely. Feeling worthless, you bet! The weight thing is only part of the problem. The narcotics I take for pain keep me nauseaous enough to keep me from eating. I really need a friend to encourage me. Th... Sat, 5 Jan 2008 19:04:03 EST I, too, am a newbie http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x9690758 <em>249</em> I am almost 62 (next month) and I have had confirmed fibro for 15 years. I am disabled because of cardiac and pulmonary problems, but having fibro has been the worst ubtil 2 weeks ago. I saw an artical where FDA had approved Lyrica for fibro. The dosage was 300 to 450 mg. My doc was out of town so I took it up on myself to start 300mg and the next day I had no pain. I would not suggest this way for anyone else but ask your Doc about this. I just tyoed in lyrica on google searc... Thu, 25 Oct 2007 02:16:09 EST I'm a newbie w/fibro http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x11879x8322703 Hi, I have 3 grandchildren & another one on the way, been married to my childhood sweetheart for 42+ yrs. I love cross stitching,reading and checking out things on the internet. I am participating on WebMD's chronic pain/fibromyalgia site and am on WW online plan (which I will discontinue in Sept). I have been disabled w/fibro since 5/2004. I would like a place to talk about losing weight with others having fibro. I have a hard time exercising and certainly suffer for days/weeks when I do. I ... Wed, 15 Aug 2007 17:40:09 EST Osteoporosis http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x11879x6990752 Hi my name is Kim. I'm 34 and about 2 years ago I was diagnosed with the beginnings of Osteoporosis. I've already lost 2 inches in height. This is due to medication that I need to take to control my seizure disorder. I have a partial complex seizure disorder since I was 18. Right now I'm taking a calcium supplement along with my multivitamin but at the same time I'm hoping that maybe the exercise will help to prevent it from getting worse. I don't even want to know what will happen once... Thu, 7 Jun 2007 13:37:42 EST