SparkPeople *SPARKING* with multiple sclerosis! Team Messageboard WELCOME! A place for *YOU* - affected because you've multiple sclerosis or someone you love has it - can come to grow, heal, find laughter and hope. This is your team & new ideas are always welcomed. SparkPeople *SPARKING* with multiple sclerosis! Team Messageboard Tysabri Have any of you taken Tysabri? What are your opinions and concerns with taking Tysabri? I had my first session with Tysabri this past Wednesday. What should I look for concerning side effects. I have had MS for the past 6 years. Sun, 5 Jun 2016 17:41:23 EST ::slinks in:: $%#* gaining weight <em>213</em> Hi. I was here a while ago.And then I disappeared. And then I came back but was embarrassed to post. And now I'm desperate. <BR> I did a blog post which can be seen here: <link><BR>urnal_individual.asp?blog_id=6078680 </link> <BR> The text is as follows if you don't want to go to the blog: <BR> "Monday, January 25, 2016 <BR> <BR> ***WARNING: WHINY POST AHEAD*** <BR> <BR> I am not sure if it is the meds I am on or due to the MS, but I c... Mon, 25 Jan 2016 13:06:54 EST Introduction Hi,I was diagnosed in 2002. My journey has been interesting. However I try to remain positive. Outside of the M.S.,I have high cholesterol, high blood pressure, and close too type 2 diabetes. I need to seriously consider taking care of myself. I figured this is the place to start. <BR> <BR> <BR> <BR> <BR> <BR> <BR> Fri, 1 Jan 2016 17:47:07 EST 7 Habits to adopt to ease MS flares <link><BR>clerosis-symptoms/ms-habits-now-ease-f<BR>lares-later-pictures/?xid=nl_EverydayH<BR>ealthLivingWithMultipleSclerosis_20151027 </link> Tue, 27 Oct 2015 06:50:20 EST TB vaccine maybe MS treatment <link><BR>ries/multiple-sclerosis-video-channel/<BR>?xid=nl_everydayhealthlivingwithmultip<BR>lesclerosis_20151017#/about-ms/tubercu<BR>losis-vaccine-treatment </link> Sun, 18 Oct 2015 10:02:27 EST Practical Strategies for MS Fatigue <link><BR>clerosis-symptoms/ms-related-fatigue-s<BR>tategies/?xid=nl_EverydayHealthLivingW<BR>ithMultipleSclerosis_20151013 </link> Thu, 15 Oct 2015 11:08:17 EST The Misdiagnosis of MS <link><BR>ries/multiple-sclerosis-video-channel/<BR>?xid=nl_everydayhealthlivingwithmultip<BR>lesclerosis_20151010#/about-ms/misdiagnosis </link> Sun, 11 Oct 2015 10:27:57 EST MS Symptoms That You Should Not Ignore <link><BR>ries/ms-expert-stark-schaefer-videos/?<BR>xid=nl_everydayhealthlivingwithmultipl<BR>esclerosis_20151006#/ms-symptoms/shouldnt-ignore </link> Fri, 9 Oct 2015 15:19:50 EST 12 ways to improve your memory with MS <link><BR>clerosis-symptoms/multiple-sclerosis-w<BR>ays-to-improve-memory/?xid=nl_Everyday<BR>HealthLivingWithMultipleSclerosis_20150929 </link> Tue, 29 Sep 2015 08:43:04 EST The Invisible Side to MS <link><BR>clerosis-symptoms/invisible-ms-others-<BR>cant-see-symptoms/?xid=nl_EverydayHeal<BR>thLivingWithMultipleSclerosis_20150922 </link> Wed, 23 Sep 2015 10:17:06 EST MS Sensory Overload <link><BR>ries/multiple-sclerosis-video-channel/<BR>?xid=nl_everydayhealthlivingwithmultip<BR>lesclerosis_20150919#/symptom-manageme<BR>nt/sensory-overload </link> Sat, 19 Sep 2015 09:02:44 EST Teaching kids about MS <link><BR>clerosis-symptoms/meredith-vieira-teac<BR>hing-kids/?xid=nl_EverydayHealthLiving<BR>WithMultipleSclerosis_20150915 </link> Tue, 15 Sep 2015 08:54:47 EST Whats up with the mood swings with MS <link><BR>clerosis-symptoms/mood-swings/?xid=nl_<BR>EverydayHealthLivingWithMultipleSclero<BR>sis_20150908 </link> Sun, 13 Sep 2015 10:50:14 EST Parenting with MS <link><BR>ries/multiple-sclerosis-video-channel/<BR>?xid=nl_everydayhealthlivingwithmultip<BR>lesclerosis_20150912#/personal-stories/parenting </link> Sat, 12 Sep 2015 14:44:11 EST Tecfidera Diagnosed with MS on 3/31/15...pending medication ..they suggested Tecfidera as my first medication to take. Any suggestions...i am scared of the one side affect ...the brain infection that could lead to death.... Tue, 28 Apr 2015 19:55:27 EST 30 Min indoor walking workout <link><BR>st=30minute_indoor_walking_workout&utm<BR>_source=sparkpeople&utm_medium=email&u<BR>tm_campaign=best-of-sparkpeople </link> Sat, 25 Apr 2015 10:07:56 EST Climbing Mountains with MS <link><BR>ls/multiple-sclerosis-symptoms/meredit<BR>h-vieira-interview-videos/?xid=nl_ever<BR>ydayhealthlivingwithmultiplesclerosis_20150425 </link> Sat, 25 Apr 2015 10:05:29 EST Botox may help tremors in MS patients <link><BR>/multiple-sclerosis-video/botox-may-st<BR>op-ms-tremors.aspx?xid=nl_everydayheal<BR>thlivingwithmultiplesclerosis_20150328 </link> Sat, 28 Mar 2015 14:27:12 EST 9 MS myths <link><BR>-sclerosis-myths/?xid=nl_EverydayHealt<BR>hLivingWithMultipleSclerosis_20150314 </link> Tue, 24 Mar 2015 05:12:44 EST Ways to improve memory with MS <link><BR>le-sclerosis-symptoms/multiple-scleros<BR>is-ways-to-improve-memory/ </link> Tue, 24 Mar 2015 05:10:58 EST Effected by the change in season ... This last week was a little tough. I was diagnosed with a sinus infection early in the week which still seems to be hanging on. I haven't been this sick in quite some time. I know I haven't been taking a lot of time to rest and take care of myself lately, and even my boss was telling me to go home from work. I am feeling better this weekend. Does anyone have suggestions about how to handle the seasonal changes? I was diagnosed 7 years ago, and every year I seem to be effected differently. Sat, 21 Mar 2015 22:34:55 EST Lying Abduction with Band <link><BR>es.asp?exercise=1&utm_source=sparkpeop<BR>le&utm_medium=email&utm_campaign=exerc<BR>ise-of-the-day </link> Thu, 12 Mar 2015 18:22:02 EST Tone ur Arms in 10 mins. <link><BR>detail.asp?video=37&utm_source=sparkpe<BR>ople&utm_medium=email&utm_campaign=exe<BR>rcise-of-the-day </link> Thu, 12 Mar 2015 18:06:49 EST Single leg hamstring flexion with ball <link><BR>es.asp?exercise=64&utm_source=sparkpeo<BR>ple&utm_medium=email&utm_campaign=exer<BR>cise-of-the-day </link> Thu, 5 Mar 2015 08:00:34 EST Easy ways to get in fitness <link><BR>_articles.asp?id=1442&utm_source=spark<BR>people&utm_medium=email&utm_campaign=b<BR>est-of-sparkpeople </link> Thu, 5 Mar 2015 07:55:12 EST Meredith Vieira's take on living with MS n her hub <link><BR>ls/managing-multiple-sclerosis-mind-bo<BR>dy/meredith-vieira-videos/?xid=nl_ever<BR>ydayhealthlivingwithmultiplesclerosis_20150303 </link> Thu, 5 Mar 2015 07:50:18 EST 7 common nutrient deficiencys <link><BR>/guide-to-essential-nutrients/common-n<BR>utrient-deficiencies.aspx?pos=1&xid=nl<BR>_everydayhealthdietandnutrition_20150117 </link> Wed, 25 Feb 2015 05:52:22 EST 6 easy fish recipes for Lent <link><BR>ish-recipes-for-lent/?pos=1&xid=nl_Eve<BR>rydayHealthDietandNutrition_20150224 </link> Wed, 25 Feb 2015 05:51:15 EST 5 exercises u should never do <link><BR>_articles.asp?id=1097&utm_source=spark<BR>people&utm_medium=email&utm_campaign=b<BR>est-of-sparkpeople </link> Tue, 24 Feb 2015 07:13:28 EST 5 min video for beginners for ab workout on ball <link><BR>detail.asp?video=68&utm_source=sparkpe<BR>ople&utm_medium=email&utm_campaign=exe<BR>rcise-of-the-day </link> Tue, 24 Feb 2015 07:01:27 EST Should ur boss know about ur MS <link><BR>/multiple-sclerosis-video/managing-ms-<BR>and-a-career.aspx?xid=nl_everydayhealt<BR>hlivingwithmultiplesclerosis_20150224 </link> Tue, 24 Feb 2015 06:57:25 EST modified pushup on the ball <link><BR>es.asp?exercise=39&utm_source=sparkpeo<BR>ple&utm_medium=email&utm_campaign=exer<BR>cise-of-the-day </link> Mon, 23 Feb 2015 12:43:28 EST Coffee and tea r they considered to b water? <link><BR>g-video/water-replacement.aspx?pos=1&x<BR>id=nl_EverydayHealthWomensHealth_20150222 </link> Mon, 23 Feb 2015 12:41:39 EST MS Energy: A surprising boost after a diagnosis <link><BR>s-gleason-life-with-multiple-sclerosis<BR>/ms-energy-surprising-boost-traumatic-<BR>diagnosis/?xid=nl_EverydayHealthLiving<BR>WithMultipleSclerosis_20150221 </link> Sun, 22 Feb 2015 06:56:01 EST Beyond fatigue coping with Lassitude <link><BR>/multiple-sclerosis/ms-related-fatigue<BR>-strategies.aspx?xid=nl_everydayhealth<BR>livingwithmultiplesclerosis_20150221 </link> Sun, 22 Feb 2015 06:53:46 EST 5 reasons protein is good for weight loss <link><BR>protein-is-good-for-weight-loss/?utm_s<BR>ource=mfp&utm_medium=email&utm_campaig<BR>n=weekly20150202&mkt_tok=3RkMMJWWfF9ws<BR>RokuazOZKXonjHpfsX%2B6%2B4lX66wlMI%2F0<BR>ER3fOvrPUfGjI4DTcZnI%2BSLDwEYGJlv6SgFSrTFMblm0LgLXhM%3D </link> Sun, 22 Feb 2015 06:48:20 EST easy ways to get protein in ur diet <link><BR>es/easy-ways-to-get-protein.aspx?pos=1<BR>&xid=nl_EverydayHealthDietandNutrition<BR>_20150221 </link> Sun, 22 Feb 2015 06:42:20 EST Do this stretch for a painful back <link><BR>es.asp?exercise=303&utm_source=sparkpe<BR>ople&utm_medium=email&utm_campaign=exe<BR>rcise-of-the-day </link> Sun, 22 Feb 2015 06:37:33 EST dumbbell chest flys on ball <link><BR>es.asp?exercise=187&utm_source=sparkpe<BR>ople&utm_medium=email&utm_campaign=exe<BR>rcise-of-the-day </link> Wed, 18 Feb 2015 10:05:29 EST triceps dips with a medicine ball <link><BR>es.asp?exercise=463&utm_source=sparkpe<BR>ople&utm_medium=email&utm_campaign=exe<BR>rcise-of-the-day </link> Tue, 17 Feb 2015 13:49:05 EST Life as a parent with MS <link><BR>/multiple-sclerosis-video/life-as-a-pa<BR>rent-with-ms.aspx?xid=nl_everydayhealt<BR>hlivingwithmultiplesclerosis_20150217 </link> Tue, 17 Feb 2015 13:43:20 EST 4 foods for a healthy brain <link> s- for-a-Healthy-Brain.html </link> Tue, 17 Feb 2015 13:40:52 EST 25 ways to get back on track right now <link><BR>ion_articles.asp?id=1062&utm_source=sp<BR>arkpeople&utm_medium=email&utm_campaig<BR>n=best-of-sparkpeople </link> Mon, 16 Feb 2015 15:54:36 EST strengthen the abs with the pendulum <link><BR>es.asp?exercise=144&utm_source=sparkpe<BR>ople&utm_medium=email&utm_campaign=exe<BR>rcise-of-the-day </link> Mon, 16 Feb 2015 13:59:52 EST Stock ur kitchen for weightloss <link><BR>n-pictures/how-to-stock-your-kitchen-f<BR>or-weight-loss.aspx?pos=1&xid=nl_Every<BR>dayHealthDietandNutrition_20150213 </link> Sun, 15 Feb 2015 14:00:10 EST A stretch to relieve the tension <link>"The tragedy in life doesn't lie in not reaching your goal. The tragedy lies in having no goal to reach." – Benjamin Mays </link> Sun, 15 Feb 2015 13:52:59 EST Difficulty swallowing? Tinnitus? Just wonder if anyone else with MS has difficulty swallowing - sometimes I just can't swallow - it's like my whole neck freezes and my brain can't tell it to unlock. I have to sit for a moment and try to relax... and try ...and try... to swallow then eventually it works again. Not sure if this is MS or something else? <BR> <BR> And tinnitus - anyone have tinnitus? Mine is mild so far - hoping maybe it will go away when I weigh less (or is that just wishful thinking?) Thu, 22 Jan 2015 10:07:47 EST Update I've joined water aerobics. I love it. It's building some ab muscles. I have none. Found out I CAN swim if I have a float belt around my middle. I've lost 13 lbs, and I'm down 1.5 pants sizes. I say 1.5 because I was in size 20. My 18's are too big, but my 16's are too small. I've been doing 60 min on elliptical at least every other day, plus using treadmill. I am walking better. I don't gimp so much on my right leg. I still drag my heel and catch it on things, which is why I usually fall. Bu... Tue, 13 Jan 2015 09:21:19 EST Tips for dealing with stressful situations. I took down my rant about the house-cleaning not getting done. I was having a very tough day. Still not sure how I'll be dealing with it all but I am leaning on God and not my own understanding. I have faith my family and I will make it through. <BR> <BR> Trust in the Lord <BR> My son, forget not my law; but let thine heart keep my commandments: <BR> For length of days, and long life, and peace, shall they add to thee. <BR> Let not mercy and truth forsake thee: bind them about thy neck; writ... Thu, 8 Jan 2015 18:32:00 EST Pedometer Choices? Hey, everyone. I have a question and am hoping for some help. <BR> <BR> I'd love to get a pedometer to wear each day to try and increase my walking. I had used one previously and was diligent when I wore one. I am having a problem, however, finding one that I can use as most pedometers are designed to clip to your belt or pockets. I wear dresses that have no belt-line and usually no pockets. I really don't feel like clipping it to my underclothes. I've tried clipping it the neckline... Tue, 6 Jan 2015 14:31:32 EST How is your MS today? Let us know how you're doing and which are of your MS symptoms are giving you the most trouble today or which ones are better today. Mon, 15 Dec 2014 00:15:19 EST Gabapentin Anybody else on this? My Neurologist says it doesn't cause weight gain, but anytime I take it, I either gain weight or absolutely cannot lose it. Maybe it's because when I'm taking it, I feel poorly and can't do as much? I know my walking pace/mile increases on "bad days." Tue, 30 Sep 2014 09:44:43 EST Traveling & MS I have a question I'm hoping someone can help with: I was diagnosed with MS in 2005 and in the past several years since, I have noticed that upon returning from a trip, even just a quick jaunt to Pennsylvania from Florida, I have a few days of complete and utter fatigue set in. It feels like my whole body just gives up on me. I've never had a problem with jet lag and, although, yes, I am a heavy person which doesn't help, this is beyond normal fatigue. I try to stay hydrated the entire ... Fri, 5 Sep 2014 10:58:35 EST energy boosting foods and drinks for MS <link><BR>gy-boosting-foods-ms-fatigue/?xid=sale<BR>snl_8444_20140826 </link> Mon, 1 Sep 2014 20:08:22 EST New here Hello! I am pretty new to sparkpeople and still learning how it all works though getting a much better handle on things. I quit for a month or so because of frustration of not being able to enter my homemade food ... however recently I learned how to enter my own recipes and get the nutrition info from that and I am SO EXCITED for this feature! <BR> <BR> I have been struggling with MS for about 3 years now and it has certainly taken its toll on my body. I used to be super fit and very activ... Fri, 27 Jun 2014 11:39:11 EST Finally found a doctor I trust I have finally found a MS doctor that I trust. <em>30</em> It seems like all the doctors want to do is say do this, do that, you aren't getting much worse, everything is good, there's nothing to worry about. All while not listening to what you say and not really going over your medical records. I hate that! Well Tuesday I went to a new doctor and she is wonderful! She actually listened to what I said and included me in treatment decisions. She treated me like I have a brain. It was s... Sat, 21 Jun 2014 21:34:52 EST What to do with old medicine I have just started a new medicine Tecfidera and have an entire months supply of Copaxone 40mg that came in the week before I started my new meds, does anyone know what to do with this month supply of meds ? Sun, 25 May 2014 08:14:44 EST MS going dormant I was at my neurologist's on my birthday, for my annual follow-up, and she asked when was the last time that I had an exacerbation. So I told her: "I don't remember". <BR> <BR> After doing her thing, the usual tests etc., we talked and she decided that since I've been on Avonex for almost 13 years, it was time for me to discontinue using it. Because in her words, "Avonex's efficacy is only two years, but if it is maintaining, and not allowing the MS to progress, we tend to leave you on it... Mon, 12 May 2014 17:33:34 EST Do you ever feel this way? Have you ever had this feeling, if so please share or reply to sonflowergammy": its like all the muscles and nerves in my body are "on" at the same time close to the point of overload. I wish I could explain the physical sensations better. " <BR> <BR> <BR> <link><BR>sageboard_thread.asp?board=22782x10755<BR>x57848959 </link> Mon, 12 May 2014 16:07:09 EST Do you have MS and at least 100 lbs to lose? If you have MS or any other medical condition that makes losing weight even more challenging and have a 100 lbs or more to lose we can use this topic thread to help support each other. You can also drop me a sparkmail if you could use some cheering on <em>321</em> Fri, 14 Mar 2014 17:43:08 EST New to the Team Hello all! I'm new to the team. I was diagnosed with MS this past Spring. I have lived with Fibromyalgia since 2001, Asthma, Allergies (food and environmental), Degenerative Disc Disorder of the Cervical Spine, Migraines, Neuropathy, GERD, Hiatal Hernia, Chronic Colitis, Cold Urtica, and the list just seems to keep growing. I have a goal of losing at least 70lbs. Mostly for health reasons. My husband is also working on losing weight. That does help when trying to eat healthy! <BR> <BR> I'm ... Sun, 23 Feb 2014 14:15:27 EST Sparkgoodie! Thank you, Victoria, for the sparkgoodie from the team, for my fitness minutes. <BR> <BR> I hope you all have a great week! Sun, 2 Feb 2014 20:00:22 EST Hi Hi. I'm new here and I am from Minneapolis, Minnesota which right now is more like Antarctica! I want to lose 10-15 pounds. I have had a hard time really maintaining motivation, because life seems too hard sometimes. I am an emotional eater. <BR> <BR> I was diagnosed with MS in 2005, although I had my first symptoms and round of testing in 1999. Pain,tingling/numbness and fatigue are my main symptoms. I still feel lucky though, 'cause it could be worse. <BR> <BR> I've heard all the great... Mon, 27 Jan 2014 09:46:32 EST Doctor Visit So I went to the doctor on Friday for this cough that I've had since about Christmas. My doctor told me that I am wheezing (which I knew, I've had asthma my whole life). We always result to a Z-pack or some other form of steroid to help me get back to tip top shape.... <BR> <BR> Well, unfortunately since I now take Gilenya for my MS we are unable to do that. And now that Gilenya interacts with many of my asthma medications we had to spend awhile trying to find new medicines for me to take. I... Sun, 19 Jan 2014 11:42:29 EST JAN 11: QUESTION OF THE DAY What does awesome mean to you? <BR> <BR> For me, taking risks lately that are hard for me, and allowing my progress here in SP and the encouragement I get, to move me forward. It has been a very, very busy week for me with pre-employment classes, a very important job interview, dating again (yes, true!), preparing to teach Sunday School to kids ages 8-11, and on and on. BUT I am happy my life is moving forward and my MS is not stopping me! <em>104</em> Today will be very busy and I look fo... Sat, 11 Jan 2014 08:50:26 EST NOT BEING AFRAID TO BE HAPPY NOT BEING AFRAID TO BE HAPPY <em>67</em> <BR> <BR> “Think of all the beauty still left around you and be happy.” &#8213; Anne Frank <BR> <BR> “The real things haven't changed. It is still best to be honest and truthful; to make the most of what we have; to be happy with simple pleasures; and have courage when things go wrong.” &#8213; Laura Ingalls Wilder <BR> <BR> “Be believing, be happy, don't get discouraged. Things will work out.” &#8213; Gordon B. Hinckley Wed, 8 Jan 2014 06:53:24 EST WELCOME ECEMGIRGIN AND OLLIE-BEE <em>235</em> my new friends! This is a hopeful team where we don't believe MS has to keep us down. We can accomplish much together. <em>381</em> Make it a GREAT 2014! <em>244</em> <BR> LOVE, CHELSEA Wed, 8 Jan 2014 06:52:36 EST JAN 8: QUESTION OF THE DAY: What is one... What is one important thing that keeps you moving forward when nothing else seems to work? <BR> <BR> For me is my connection to others. I love to be with others, share, and I don't like to be alone too long.Others' motivation, thoughts for me, their sharing, my support of them, ALL add up to make my day great. And, for me, the friends can be in person or online, either one, but I need that people connection in my life. <em>247</em> Wed, 8 Jan 2014 06:50:41 EST WELCOME SHANNONY84, WILKSD, AND MRSKNITE! <em>235</em> to a wonderfully strong team. We all have MS but MS doesn't have us! We set goals, follow through and support each. <em>244</em> <BR> LOVE, CHELSEA <BR> <BR> <BR> Wed, 8 Jan 2014 06:49:53 EST WELCOME MRSKNITE, JENCOW24 and LINBRONTE! <em>235</em> to our wonderful team! You will find new friends and new hope here. Feel free to join in and participate. We are hear for each other. Upward and onward! <em>244</em> <em>244</em> <em>244</em> Tue, 7 Jan 2014 06:37:57 EST PERSEVERANCE QUOTES PERSEVERANCE QUOTES: <em>104</em> <BR> <BR> “If you are going through hell, keep going.” &#8213; Winston Churchill <BR> <BR> “A wise man will make more opportunities than he finds.” &#8213; Francis Bacon, The Essays <BR> <BR> “You may encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it.” &#8213; Maya Angelou <BR> <BR> Mon, 6 Jan 2014 07:03:42 EST JAN 6: QUESTION OF THE DAY Do you play a musical instrument? And whether you do or not, do you want to learn to play one? <BR> <BR> Well, I played the clarinet in high school and college, and the donated the clarinet to a 12 year old who needed one. I play the piano and guitar by ear and want to play better, learn more. And I would love to learn to play the violin and take singing lessons. <em>276</em> <em>335</em> <em>339</em> Mon, 6 Jan 2014 06:45:11 EST DEC. 30: QUESTION OF THE DAY What are you looking forward to most in 2014? <BR> <BR> For the first time in 5 years, I truly believe that i will be able to work FT for a while without getting really sick. I have more support around me in my new area so I don't have to do it alone. (I am single and live alone). I want to get out of debt, buy a car and, if I last long enough, buy a townhouse. It would be nice. I got MS when I was 22 so I haven't had a chance to be more secured financially. I am 50. <em>30</em> Sun, 29 Dec 2013 21:42:17 EST NEW BEGINNINGS - QUOTES “No, this is not the beginning of a new chapter in my life; this is the beginning of a new book! That first book is already closed, ended, and tossed into the seas; this new book is newly opened, has just begun! Look, it is the first page! And it is a beautiful one!” &#8213; C. JoyBell C. <BR> <BR> “Although no one can go back and make a brand new start, anyone can start from now and make a brand new ending.” &#8213; Carl Bard <BR> <BR> “I used to dream about escaping my ordinary life, but ... Fri, 27 Dec 2013 11:27:41 EST DEC. 26: QUESTION OF THE DAY Do you believe in New Year's resolutions? <BR> <BR> I do but I call them "goals". I love new beginnings and since starting SP, I like to see Sundays as my tweaking days so that I keep going even if the past week wasn't great. I love New Year's day too since I feel hope and I love hope. <em>67</em> Thu, 26 Dec 2013 08:15:14 EST DEC 23: QUESTION OF THE DAY What do you like most about the holidays? What do you like least about the holidays? <BR> <BR> What I don't like are the endless ads about what to get, buy, etc., and how they make me feel. Being human and financially strapped, at times they do affect me negatively and I don't like it. I don't like that I let them affect me that way too. I won't miss that when the holidays are over. <BR> <BR> I love getting together with friends and family, and sharing. I enjoy the games we play, the food s... Sun, 22 Dec 2013 17:36:32 EST DEC 20: QUESTION OF THE DAY QUESTION: What accomplishment are you most proud of? <BR> <BR> For me it would be graduating from college. I am learning disabled and that was a big accomplishment for me. <em>30</em> And recently, my biggest accomplishment is not giving up on my goals because I am struggling. I am living my life a day at the time. <em>521</em> Fri, 20 Dec 2013 06:31:52 EST DEC 18: QUESTION OF THE DAY What is your most favorite holiday of the year? <BR> <BR> For me, it is Christmas and New Year's because I feel hope. I love hope! I need hope. <em>459</em> Wed, 18 Dec 2013 14:43:53 EST Everyday resource for MS knowledge <link><BR>rosis-pictures/life-with-multiple-scle<BR>rosis.aspx?xid=salesnl_7619_20131213#/<BR>slide-11 </link> Mon, 16 Dec 2013 06:52:20 EST DEC 14: QUESTION OF THE DAY What is one thing your can't end you day without? Why? <BR> <BR> For me, I feel like I need some time for myself, quite time for myself, whether it is reading something fun or music or a fun movie. I sleep better that way. <em>30</em> Sat, 14 Dec 2013 11:03:52 EST DEC 12: QUESTION OF THE DAY QUESTION OF THE DAY: If you could be invisible for a day, what would you do and why? <BR> <BR> <BR> <BR> Thu, 12 Dec 2013 10:39:36 EST DEC. 10: Question of the day QUESTION: Are there foods that you didn't like when you were young that you really enjoy now? <BR> <BR> Vegetable soup! I really hated it as a kid and now, I enjoy homemade vegetable soup. Tue, 10 Dec 2013 00:52:32 EST DEC. 9 QUESTION OF THE DAY Yesterday just passed me by.... <em>334</em> <BR> <BR> QUESTION: If you were an animal, which one would you be, where would you live and why?....." <BR> <BR> I love cats and thought about that but if I were to be an animal, I would be an eagle or another bird in that family. I would like to SOAR in the skies! I would live in Alaska and enjoy its beauty and wildness without freezing to death. <em>246</em> Mon, 9 Dec 2013 08:16:48 EST DEC. 7: QUESTION OF THE DAY QUESTION: What's one thing you took for granted as a kid but have learned to value? <BR> <BR> Aside from being able to do more physical things, the ability to love life and learning new things. Making mistakes was normal and acceptable since I was young so now I am working on having that youthful feeling again and not being upset when I make mistakes. Upward and onward! <em>530</em> Sat, 7 Dec 2013 09:34:05 EST SENDING POSITIVE VIBES <BR> <em>213</em> <BR> <BR> HELLO EVERYONE <BR> <BR> I FEEL REALLY POSITIVE TODAY, SO I WANT TO SEND YOU ALL SOME ENCOURAGING VIBES. <BR> <BR> MY FRIEND AND ADOPTED SISTER IS AN INSPIRATION TO ME SO EACH DAY I START IT WITH GREAT GRATITUDE. <BR> <BR> SENDING YOU ALL A BIG SMILE <BR> <BR> TOGETHER WE CAN DO IT...SMALL STEPS BUT IMPORTANT TO KEEP MOVING HOWEVER YOU CAN <BR> <BR> MY FRIEND NO LONGER WALKS OR HAS USE OF HER LEFT ARM, BUT NOTHING STOPS HER. I HOPE ONE DAY SHE WILL WRITE... Tue, 19 Nov 2013 05:57:14 EST Dealing with being housebound and often bedridden. Are there any members on the team who are housebound ? Mine has affected my spine and when I am up I get so dizzy, shaky and pain I spend the majority of my time in bed. Battling obesity is tough enough then throw in MS and it sure makes me grateful I was already a believer before all this happened because I have moments where the thought of throwing the towel tries to creep into my thoughts. I had to give up driving as it just wasn't safe anymore, then bouts of bladder and bowel incontinenc... Sat, 9 Nov 2013 09:42:46 EST The use of Marijuana Does the use of marijuana affect MS negatively or postively or not at all? I've heard conflicting stories. I've heard that it will loosen u up and alleviate some pain and I've also heard that it speeds up MS symptoms. Just wondering. They use medicinal marijuana for many things just a thought. Fri, 8 Nov 2013 06:19:42 EST period and MS every month i get dizzy and its usually around my period this never before but after MS my period has gone wonky its longer harsher cramps and i get dizzy. is all of this MS related or what Tue, 5 Nov 2013 15:40:38 EST HOW IS EVERYONE THIS MORNING? Good morning everyone, <BR> <BR> I was wondering how you are all doing. I always reflect and give gratitude in the morning and think of others who struggle out of bed, like my dear friend, who can not walk and not use her left arm. Yet she is determined to get herself out of bed, and on her scooter before her carer arrives. She is a real inspiration, and humbles me daily! <BR> <BR> Tue, 5 Nov 2013 01:34:42 EST Anger I was feeling good this morning before I got of bed and actually started trying to do things around the house. I had planned to go out on my back patio as the weather had cooled enough I felt I could pull off going outside for a while. Well by the time I got dressed, fed my son, fed the dog and cats and ate my breakfast. Oh and I folded a load of laundry. I am down with a headache, pain shooting through my right thigh and I could go on and on but I choose not to. <BR> At times like this I ge... Mon, 4 Nov 2013 11:11:18 EST Sparkgoodie! Thank you for the sparkgoodie from the team. <BR> I hope everybody is having a great week! <BR> <BR> ~Denise Tue, 29 Oct 2013 21:13:02 EST Neurologist appointment I just got my results from my brain MRI this last week, on Thursday, and found out I had no new lesions, Woo Hoo! <BR> I am taking Tsybri, and although PML scares the crap out of me, I have stuck with the Tsybri. <BR> I have had the neurologist talk me out of not quitting the Tsybri so many times, more than I can count. <BR> Even though the Tsybri scares me, I have been lucky to not have acquired any more lesions. I guess I have to give credit, where credit is due, the Tsybri is a very good ... Tue, 29 Oct 2013 21:04:27 EST Jack Osbourne on Dancing with the Stars You may know Jack Osbourne was diagnosed with M.S. in 2012. He is currently on Dancing with the stars speaking candidly about his M.S. journey. This is precisely why I have decided to watch this season to support him. Tue, 15 Oct 2013 14:30:26 EST hair and MS my hair is breaking and i dont know why is it because i been diagnosed with MS if it is is there anything i can do to make my hair grow i dont want to cut it- help Fri, 27 Sep 2013 19:38:59 EST Kon-Tiki by Thor Heyerdahl (Expanded edition) Six men in search of a mythical hero journey from Peru to Polynesia in this classic account of nautical adventure. This enriched classic edition includes: <BR> <BR> **Detailed explanatory notes <BR> **Critical analysis, including contemporary and modern perspectives on the work <BR> **A unique visual essay of the voyage <BR> <BR> What a great adventure!! What makes the book even more interesting to me is that it was written in 1947 when he challenged some "known" ideas about how the Polynes... Sat, 24 Aug 2013 10:27:10 EST POSITIVE THOUGHTS FOR TODAY This is not a joke but a beautiful quote I want to share. <BR> <BR> “Breath by breath, let go of fear, expectation, anger, regret, cravings, frustration, fatigue. Let go of the need for approval. Let go of old judgments and opinions. Die to all that, and fly free. Soar in the freedom of desirelessness. <BR> <BR> Let go. Let Be. See through everything and be free, complete, luminous, at home -- at ease.” <BR> &#8213; Lama Surya Das, Awakening the Buddha Within: Tibetan Wisdom for the Western... Thu, 22 Aug 2013 09:06:14 EST ms help hi I'm stevani i have been diagnosed with MS. i have been for 2 years.its affecting the way i walk i have to use a walker. is there any one who have MS how did you cope and what exercises do you do to help you with your MS. <BR> Thu, 15 Aug 2013 01:09:29 EST Tecfidera anyone? Hi :) <BR> So... I just switched over from 3+ years of Betaseron to this new one - Tecfidera (BG-12). Just wondering if any of my fellow group members are on this new treatment as well. <BR> <BR> Thanks! <BR> Kate Tue, 18 Jun 2013 10:04:56 EST Would like your help I've bee given a school assignment to come up with websites that are giving out false information. I thought I'd check in with my MS sisters and brothers, for any websites that you might know of that have false or misleading information about MS. <BR> <BR> Also, I haven't been checking in lately, but thought I'd bring you all up to date. <BR> <BR> In November, I graduated with my AA in Medical Assisting, with a minor in phlebotomy, and received my phlebotomy license in March of this year. ... Wed, 12 Jun 2013 20:42:30 EST FREE Amazon APP for June 10 only: SparkPeople APP! <link><BR>SparkP eople/dp/B009T9RV2I/ref=sr_1_1?s=mobil e-apps&ie=UTF8&qid=1370880199&sr=1-1&k eywords=sparkpeople+app </link> Mon, 10 Jun 2013 13:13:25 EST Acthar anyone? I will begin a series if Acthar injections tomorrow for this exacerbation that began more than six weeks ago. I cannot use solumedrol due to psychotic breaks that put me in the hospital multiple times a few years go. Has anyone used Acthar? It is sooooo expensive. One series is more expensive than my beta seron for a year. Ouch! Thank goodness for insurance! Thanks. Wed, 29 May 2013 14:33:18 EST News about BG-12 <link><BR>rosis/0425/ingredient-in-new-ms-drug-l<BR>inked-to-serious-brain-disease.aspx?xi<BR>d=nl_EverydayHealthLivingWithMultipleS<BR>clerosis_20130427 </link> <BR> <BR> <BR> This came in one of my mailings...just thought I would pass it along...Just remember not everything on the Internet is for real.... Sat, 27 Apr 2013 10:05:24 EST sugar For those of us with a sweet tooth, read this: <BR> <BR> Can sugar impact MS progression? <BR> <BR> Results from a small study suggest that people with higher blood sugar levels may be more likely to develop higher levels of MS-related disability. These early findings were among 500+ MS studies reported in March at the annual American Academy of Neurology meeting in San Diego. Sun, 21 Apr 2013 21:43:24 EST Introductions Hello, I'm Patsy and I'm pretty new to this site and most of all forums. Married with 2 teenagers. MS dx in 2006. Was on Copaxone for 18 months but didn't work for me and I got worse. From a sporadic cane to a walker to a wheelchair in a month. Now on Gilenya for the last year. I'm now doing better. Fri, 19 Apr 2013 20:03:55 EST FYI: success with fampyra My new neuro wanted me to try Fampyra. It helps with nerve conductivity. <BR> It only works for 25% of people, and the potential side effects are pretty scary. <BR> However, I've been on it a couple of weeks and I'm doing well. I haven't experienced the side effects, and my legs are no longer 'humming'. As well, I feel stronger, for longer in the day. When I take my cane with me I find I carry it more than I use it. <BR> march Wed, 17 Apr 2013 09:16:31 EST THANK YOU for the Birthday goodies and wishes <em>304</em> for the Spark Goodie and birthday wishes. I really appreciate it. I wish you all a wonderful day! Love, Chelsea <em>223</em> Thu, 11 Apr 2013 09:15:06 EST Ottawa Citizen on MS CURE! Ottawa doctors behind breakthrough MS report <BR> <BR> <BR> BY DEREK SPALDING AND CHARLIE FIDELMAN, OTTAWA CITIZEN APRIL 3, 2013 <BR> <BR> 0 <BR> <BR> STORYPHOTOS ( 2 ) <BR> <BR> <BR> <BR> Alex Normandin was in 3rd year medical school when he underwent a risky treatment for aggressive multiple sclerosis as part of an experimental trial led by the Neuro. He’s photographed at home on March 29, 2013. Scans show no new brain lesions and a marked improvements of symptoms associated ... Fri, 5 Apr 2013 15:09:20 EST real simple magazine Hi all-- <BR> there is a great interview in this month's Real Simple Magazine with a couple who s living with MS. Nicely done! Sun, 17 Mar 2013 15:59:58 EST new HI new to sparking not new to ms !! <em>213</em> Sun, 3 Mar 2013 14:59:53 EST Informing New Employer of MS Hi - <BR> <BR> I just had an interview yesterday and skipped the part where I told them about having MS. I read in a pamphlet that the MSIF sent me was that if I was still able to function and/or didn't need any special requirements that I didn't have to tell a potential employer that I have MS. What have you guys done in the past? Should I be upfront with new companies I interview with? <BR> <BR> Thanks much! Sat, 2 Mar 2013 14:28:57 EST Aubagio anyone? So, my neuro said he would write me a prescription for one of the oral drugs after seeing MRI results. I am tired of Avonex, even though it's been "only" a year and a half of regular use (tried Rebif, Copaxone, and Tysabri already). <BR> <BR> Is anyone taking Aubagio here? Or is everyone waiting for BG-12? <BR> <BR> Tue, 26 Feb 2013 11:11:15 EST Newbie Hi! I am brand new to all of this. Please feel free to offer sugestions! <BR> <BR> Introducing myself....49 years old. Diagnosed w/ MS in 1998. On Tysabri since 4/2008. Live on coast in California. Peri-menopause and MS heat intolerance mean swimming in outdoor pool is the best excercise for me. Glad to find a team of MSers (if that description is not offensive) that are focused on the POSITIVE! Sat, 23 Feb 2013 12:07:58 EST 'Nutrional Therapy Succesfully Used to Reverse MS' I have made tremendous changes in my health when I changed the foods I eat. <BR> I provide this link to explain some of the thinking behind it. This may be of benefit to some of us, to others, not so much. However, knowing and choosing is better than not knowing at all. <BR> Best <BR> March <BR> <BR><BR>ritional-therapy-successfully-used-to-<BR>reverse-ms Tue, 12 Feb 2013 14:37:12 EST Issues with hands Good morning-- <BR> This past week i have been having an increasingly annoying problem with my hands. I struggle to make a fist. First it was just stiff and now I can not close my hand completely. I dropped a table I was moving yesterday becasue I could not grip it and I did not have the strength to continue to hold it. Has anyone experienced anything like this? What did you do? Sun, 10 Feb 2013 06:51:18 EST Diabetes So my neurologist is sending me in for a diabetes test, she believes my bladder issues may be due to diabetes (my whole extended family has diabetes). Does anyone have to manage both diabetes and MS? <BR> <BR> I did read an article that MS and Type I diabetes are commonly linked. I may identify with alot of the symptoms and just chuck it up to my MS...but you can't believe everything you read on a google search. Sat, 19 Jan 2013 15:31:05 EST intro have had ms for 19 years. rrms. on gilenya for 14 mo. now. last relapse around 18 months ago. on ssd. am able to still walk. Sun, 30 Dec 2012 19:14:07 EST To our leaders of this group... I would love to say how you two, HIKETOHEIGHTS and GOALOFLOSING do such a great job of keeping this group going throughout the year. I just really wanted to mention how you do such a great job! <BR> I hope you both have a very Merry Christmas! <BR> <em>247</em> Sun, 9 Dec 2012 17:39:19 EST Medical ID Bracelets Okay I have another question. I saw somewhere about medical ID bracelets and cute little ones. How many of you have a medical ID bracelet? Is it silly to get one? <BR> <BR> The reason I am asking is that I am doing this with myself and a few close friends (my family just doesn't understand and that's old news) and my friends can't be there all the time. I will also be attending real school next semester..and in case something happens..which I highly doubt it will. <BR> <BR> I'm rambling, ... Tue, 4 Dec 2012 21:14:12 EST Eye Care Has anyone had issues with trying to explain that you have MS to an eye doctor? Last year Eyeglass World swore I had glaucoma, I let them know that the pressure around my eyes was from my MS. This year, the doctor at Nationwide Vision told me that my prescription was wrong and he couldn't fathom that I had MS because I was so young. <BR> <BR> Truth be told, I went to a medical eye doctor to make sure that Gilenya hadn't given me macular edema (which it hasn't). I didn't know that I had to as... Sun, 2 Dec 2012 23:05:01 EST Sparkgoodie! Thank you for the sparkgoodie from the team! <BR> I hope everybody has an awesome Christmas! Sat, 1 Dec 2012 11:35:38 EST My MS Walk Day Hi Team - <BR> <BR> I've been meaning to post about my experience with Gilenya thus far but haven't really had the time to sit and write about it. Yes, I wrote the blog but I'll just post it here. <BR> <BR> Gilenya was scary, sitting in observation for 6 hours while they took my blood pressure every 30 minutes was boring. But I made it through, my heart rate didn't change sufficiently at all. Okay this one time after I made a homemade muffin, but that was probably because of the sugar cont... Sat, 10 Nov 2012 12:55:36 EST Sparkgoodie Thank you for the sparkgoodie from the team for my blogs. <BR> I hope everybody has a great weekend! Thu, 8 Nov 2012 07:17:05 EST Hi, I'm new. Hi. I'm Kat. <BR> I was diagnosed with MS in 2010 while I was about five months pregnant. The next day I had an exacerbation so bad it paralyzed my entire right side. By the time my daughter was two weeks old, I could move again and even walk a little bit with my walker. <BR> <BR> I walk now, but most people who see me walking think I'm drunk. I can't run, ride a non-stationary bike, drive, walk in heels, move quickly, or even look up. Vertigo, bad balance, and right-side slowness are my s... Tue, 11 Sep 2012 13:32:16 EST Getting testing done As I mentioned a few weeks ago, I'm still in the process of finding out for sure if I have MS or not. I had MRI's of both my head and neck last Tuesday. And I'm scheduled to have the lumbar puncture done on Sept. 14. <BR> I've been told that it will take several weeks to get the entire results back from the spinal tap. But as soon as I get final word, I'll be sure to post the results. Sat, 1 Sep 2012 12:42:54 EST Sparkgoodie for blog. Thank you for giving me a sparkgoodie from the team for my blog with the cats with the bikinis! <BR> I'm glad you liked it! <BR> This is the blog: <BR> <link><BR>urnal_individual.asp?blog_id=5038635 </link> Fri, 31 Aug 2012 14:37:05 EST Hello! I was formally re-diagnosed in December 2008 after getting proof of MS by way of a spinal tap, and after a couple years of no change, new lesions in my brain. My symptoms started with a 'visual event' where I lost a lot of vision in my right eye (which has never returned.) I have been fortunate in that I have had no major episodes since. I have chosen not to go on medication/shots. I have instead tried (and failed and tried again) to control my diet, have given up dairy, and take lots of vita... Tue, 28 Aug 2012 10:56:18 EST I'm New :-) Hi everyone. My name is Wendy and I live in Georgia. Great to get to know all of you. I was diagnosed with MS three years ago, but according to my MS doctor, judging from the number of lesions I have had it pretty much my whole life. I am a Biogen Idec/Tysabri Mentor-Advocate, and work as a mentor with Active Voices. I love meeting and talking to people with MS. I hope this group can help get me serious about exercise and losing weight. Sat, 25 Aug 2012 00:59:01 EST Update: Saw Neurologist yesterday Just thought I'd let you all know how my appointment with the Neurologist went yesterday... <BR> It went well. I'm going to have another MRI (it's been 3 years since my last one) and I'm waiting for a call to schedule the lumbar puncture ASAP. The Dr said that my first MRI looked "cloudy" (whatever that means) which he says is not indicative of MS.. but there was a lesion too. So, he agreed with me, that I really should have the spinal tap to check the fluid. I wasn't surprised he wants a... Fri, 24 Aug 2012 10:56:55 EST "Why don't you show any symptoms?" Hey everyone! <BR> Have you ever had anyone say something like this to you? "Why don't you show any symptoms?" or, "You don't LOOK like you have MS". <BR> <BR> I have... I tried to respond the best I could, to describe what many of my symptoms are.... People just don't get it... That someone can be in remission and not have any noticeable problems (to other people anyway). <BR> <BR> It's a little aggravating, isn't it? Tue, 21 Aug 2012 11:28:34 EST Hi! I'm new to this Team. Hello! <BR> I have been a member of SP for several years. I've had a few ups and downs in my weight along the way. Back in 2009, after many years experiencing symptoms that I discovered were consistent with MS (bladder infections, bowel problems, but mainly dizziness), I asked my Dr if I could have an MRI to check for MS. The MRI showed that my brain showed signs that I could have MS. I saw a couple of different Neurologists.. the first one wanted to do a spinal fluid test... I decided to ... Mon, 13 Aug 2012 13:00:16 EST Has anyone tried exercising in the water? I go to a gym that has a water aerobics class. I can not do the class--halfway through I give out becasue it is really strenuous. But, I have found that doing some of the exercises on my own at my own pace seems to be ok! I am not losing weight but I feel like I am getting stronger. Any feedback?? Any one else try this route? Sat, 11 Aug 2012 11:37:55 EST Hi I'm New! Hi All!! <BR> I'm 27 years old and I have been doing Spark People since January and I think I have been doing pretty good. I was just diagnosed in June with Multiple Sclerosis and thought it would be a good idea to join a team that knows a little about what people with MS go through. All of my symptoms over the years now make sense and I understand my stuggles a little better now. I thought that by joining a group like this, I can get a little insight as to what others go through as well. I w... Fri, 10 Aug 2012 13:06:39 EST to this team, and MS. After several "not fun" tests in the last couple of weeks, I received the official diagnosis yesterday. MS. Gee, thanks. <BR> <BR> I am glad I found this team as I am hoping to read insight, tips, and support from others that might be more used to living their life with the addition of MS...ugh. I may only have a few pounds to lose, but I know a healthy diet and exercise are highly important, especially with MS, and I seem to struggle staying on track with these things. I am going to get ba... Wed, 8 Aug 2012 15:19:09 EST Lipatrophy and Copaxone I've been using Copaxone for approximately three years now and have experienced pretty bad fat loss on my arm injection sites (lipatrophy). I think this is because those sites are not as large as the others, so I can't move around as frequently. I'm hoping with my intended weight loss (and fat loss), this area will tighten, and the skin will smooth. <BR> <BR> Have any of you other Copaxone users experienced this, and anyone that has lost the weight, has the lipatrophy gotten better? I wish ... Wed, 8 Aug 2012 11:07:30 EST I'm ready to go back to the gym but is my MS? So I quit the gym last year after being diagnosed with MS. I started working out @ home but haven't really been doing it at all. I'm ready to go back to the gym, but is my MS ready to go back to the gym? <BR> <BR> How many of my fellow MSers have a membership to the gym? <BR> Have you told them about your MS? <BR> What do you do differently? <BR> <BR> I have a few emails out to a couple gyms to see about a month to month membership and what they can offer me (no I haven't mentioned the MS ... Wed, 25 Jul 2012 14:49:56 EST Facebook "Like" for MS You may have seen the ad for Pure Protein products here on SP. If you go to their Facebook page and Like them, they will donate $1.00 to the National MS Society. An easy, cheap way to donate! <BR> <BR> <em>345</em> Mon, 23 Jul 2012 00:29:00 EST I TOO JUST STARTED MY COPAXONE I HAVE BEEN ON MANY MEDICINES AND AM HOPING THIS ONE PUT A HALT ON MY 2 NEW LESIONS AND MAKE NO NEW ONES. Sun, 8 Jul 2012 10:34:47 EST THANK YOU I AM ECSTATIC TO FIND THIS FORUM AND TO FIND PEOPLE LIKE MYSELF IF I COULD ONLY FIND A HUSBAND NOW! <em>304</em> Thu, 28 Jun 2012 11:13:26 EST taste in mouth For a month or so I have had this sweeting sick taste in my mouth! I can't eat anything too spicey, anything with salt or anything too sweet! Then my mouth is very dry all the time!! I drink water all day! At least I have lost weight!!!! Thanks for your help!!! <em>20</em> Tue, 29 May 2012 13:46:08 EST Nasty sweet taste in mouth I have a very nasty sweet taste in my mouth and I can't taste things or they taste bitter! My mouth is always dry and so I just sit and drink water all day! Any suggestions on how to make it go away??? Fri, 25 May 2012 18:39:47 EST Is this a MS symptom? I feel good this morning, but I am noticing that I am having great difficulty getting my brain to function. I had a patient come in that I was registering and I kept forgetting what I was doing. <BR> Also, I am trying to make some schedule changes for me and the other lady who does my job, but I just can't seem to make it make sense. In addition, I looked at the schedule I made last week and I made silly mistakes on that too (like scheduling myself off on a Monday....I work every single Mond... Thu, 24 May 2012 12:55:14 EST Just wanted to say "Hello" Hi Everyone, <BR> I was recently diagnosed with Multiple Sclerosis (last week) and wanted to introduce myself. I am scared. I am sad. I feel like I have no control over anything anymore! Any help or advice would be greatly appreciated it. I have decided to move forward with Rebif which I will self-inject 3 times a week. If any one has had any experience with Rebif I would love to hear it! <BR> Thanks, H. Thu, 24 May 2012 12:44:50 EST Sparkgoodie Thank you for the sparkgoodie from the team Victoria. Wed, 23 May 2012 20:11:15 EST Hi! I'm back. Been gone a long time but now I'm back and so happy to be here. Rec'd MS diagnosis 9/6/2011, RRMS. Is anyone in Sonoma County going to the MS shindig sponspored by Copaxone on May 22? Sat, 19 May 2012 17:34:59 EST first appointment Hi everyone-- <BR> I have been following this forum for about 3 months since my primary care physician first said--well this might be the issue but we need an expert to consult with...Now I have my first appointment with a neurologist and don't know what to expect--or what to say. Several of your posts have helped, but I thought a direct question might give me more to think about. What was your first appointment like? Sat, 19 May 2012 09:45:33 EST What's New In M.S. Research? NEW TREATMENT AWAITING APPROVAL <BR> Biogen Idec Applies to FDA for Approval of BG-12 to Treat MS <BR> <BR> View My Saved Content <BR> <BR> Feb 29, 2012 <BR> Biogen Idec announced that the company has submitted a New Drug Application to the U.S. Food and Drug Administration for approval to market oral BG-12 (dimethyl fumarate) for the treatment of MS, based on positive results from several clinical trials involving people with relapsing-remitting MS. <BR> <BR> Multiple sclerosis involves ... Thu, 26 Apr 2012 16:10:03 EST NUEDEXTA FOR PSEUDO BULBAR AFFECT I do not know if it was brought up on this team or on "Doing It With Multiple Sclerosis". but some one brought up Dextromathorphan, which is a cough supressan, as a control medicine for MS....not quite, but here is the scoop <BR> <BR> NUEDEXTA which is a combination of Dextromethorphan & Quinidine can be used for PBA or as its full name Pseudo Bulbar Affect... This symptom is also seen in stroke, dementia, or traumatic brain injury.... <BR> <link>inked </link> <BR> so there yo... Sun, 15 Apr 2012 15:03:01 EST How to improve eyesight naturally? How to improve eyesight naturally? without any eye surgery or corrective lenses... <BR> <link> </link> Wed, 4 Apr 2012 04:42:24 EST MS Society's "sister site" theme. I hate it. MS kills connection, connection kills MS. <em>28</em> <BR> <link> </link> Sat, 31 Mar 2012 14:30:43 EST Sparkgoodie Thank you for the team sparkgoodie Victoria! Thu, 29 Mar 2012 18:15:59 EST Pain in feet and legs!! Just within the last few weeks my feet hurt so bad all over and it hurts to sleep on my one side because the pain is so bad in my knee and calf!! Any suggestions!! I was dx in 1997 and I have never had this much pain! Thanks!! <em>46</em> Thu, 29 Mar 2012 00:25:10 EST When you can't work out... I've had a migraine all day and I've been making such great progress lately that it's driving me insane that I can't exercise right now. In the past this is when I've given up. This is when I've said, "I can't do this!" I know in my heart that missing one day is not the detriment of the lifestyle change, but it really gets me down when I know I have to take a break - even for just one day. I'm scheduled for toning and aerobics today and I just cannot do it... I feel like my head's going to ex... Fri, 23 Mar 2012 13:48:07 EST MS awareness ribbons <link><BR>ia/beading_resources.asp?docid=AWARENE<BR>SSRIBBONS </link> <BR> <BR> <BR> we have two colors! pearl & orange! Tue, 28 Feb 2012 14:22:50 EST Question for Neurontin users For those of you who take Neurontin, have you had any side effects? I first started taking it to combat the numbness and burning in my toes, especially at night, it also seems to help with the twitching somewhat. However, I have gained quite a bit of weight. Also, I noticed that I was severely depressed and my thoughts were suicidal or just not wanting to live anymore. I told my neurologist that and he prescribed Celexa. I also take a beta blocker and am hypothyroid from being treated wi... Sat, 11 Feb 2012 18:05:49 EST Gluten Free Diet Does anyone here eat gluten free? I have had luck with it in the past and am trying it again. I am not a big fan of vegetables, so I haven't been eating a lot, because I don't know what to eat half the time. I would love to hear from anyone who is trying it or has any suggestions. <BR> Tue, 7 Feb 2012 14:21:23 EST Hello! I'm Marcia. <BR> <BR> I was recently diagnosed with MS. I am starting on Copaxone in 2 days. I'm nervous about it, but hopefully that it will calm down my exacerbations. <BR> <BR> I'm a nurse practitioner here in PA. I'm 36 years old and I have 2 boys, ages 10 and 7. I've been on SparkPeople for awhile and was just told about this team by another member. <BR> <BR> I look forward to interacting with all of you. <BR> <BR> Thu, 12 Jan 2012 16:56:13 EST MS wih Insulin Resistance I need to know what foods I can eat! This is all new to me! I was dx with MS thirtenn years ago and I can handle that but now this is thrown at me and I don't know what t do???? Thanks for your help!! Thu, 5 Jan 2012 00:52:57 EST I Tried IT !!! I tried out the New Bioness L300 plus for the quadriceps. The rep was kind enough to come out to my house. I already owned the bioness L300 for foot drop for several years. It still works great. It has been a very good investment for me. <BR> <BR> The bioness L300 Plus is a muscle stimulator for the quads. It can be set to stimulate the quads or the hamstrings - where ever the muscles are weak. However it can't do both at the same time. I did try the hamstring mode, but I it made me... Sat, 12 Nov 2011 20:46:01 EST My little trip the the ER adn MS Hug I thought I was having a heart attack. Chest pains that ran around under one arm and into my back. I've had them before but not this high up. The TeleHealth Nurse (Ontario) wanted to call an ambulance for me then. <BR> So off I go to learn the hard way about the MS Hug. It seems (lucky us) that the interstitial muscles between our ribs can go into spasm, replicating a heart attack. <BR> Oh, and just when I thought I had my MS all figured out. Mon, 10 Oct 2011 10:49:41 EST starting new meds soon I went to the neurologist for the first time since having my daughter in June. I wasn't on any medication since I learned that I was pregnant but before that I was on Extavia that I had to inject every other day but when I went to the dr. he asked if I wanted to try Gylenia , the pill , instead. I agreed and after some tests to make sure I'm okay I will , hopefully , be starting my first dose soon. The first dose has to be done in the drs office and I will be there for 6 hours so they can mo... Sat, 1 Oct 2011 17:33:51 EST What's the challenging issues in having MS??&#5837 Hello everyone <BR> Having a disaboty can be a challenge sometimes like this morning I had some dizzy embloralim balance spells &#57433; especially when family members Do't ugh understand how BAD it is. <BR> Don't know if allergies or new glasses ugh........ Bugging HELL outta me <BR> Other times my conercation on hearing is off people have to repat the words Without gestures....... Visual sense to see the world they forget yesshhhhhhh <BR> <BR> Anybody with MS has UGH days wanna Scrammmm... Tue, 13 Sep 2011 12:17:48 EST Greetings to spark ms team I'm new&#58370; Hello everyone <BR> I knew someone who has MS in college and I have a disability also. The person who has MS motivates me everyday because she is a Go getter even on challenging days!! <em>104</em> <BR> I hope to learn more from a movationval positive lessons of life from others cause I KNOW not easy having a disabtiy&#58370; <BR> Here is a quote I use from a favorite teacher --- Love is the Light that Shines from Heart to Heart <em>36</em> Tue, 13 Sep 2011 11:47:39 EST Stomach Problems? A Flair-Up? I started out with small areas of uncontrolled itching for no reason...I was lucky that Bactine has lidocaine in it and that helps...Now I'm carrying that with me...But I have been having such stomach problems with constant nausea. I was going to the bathroom just fine and I take certain meds for this. I made an appointment with my GI doctor and he told me to stop all the meds I was taking for my bowels...No Magnesium - could have electrolyte problems, No pericolace - stimulant laxatives can ... Fri, 9 Sep 2011 18:09:55 EST How long do YOUR episodes last? My current episode began late June/early July. So how do I know when the attack is over? My right hand is still very weak. Today my neuro said she thinks that my symptoms will persist (the weakness in my hand is permanent, she says) and that actual attack is over. She didn't seem to know anything about how long an attack can last. When I told her I read in an MS book that attacks can last anywhere from a couple of weeks to 12 weeks or more, she said they generally last about 3 weeks. HUH?? Ca... Tue, 6 Sep 2011 23:52:40 EST Having my second MS attack........ .................which is characterized by weakness in my right hand and numbness in my left leg since about the end of June. I'm new to all this! I''ve been reading a lot about MS and I've learned that an individual can have an attack/episode/exacerbation and still have the same symptoms when the attack is over. So how do I know when the attack is over? And how should I take care of myself during an attack? Is it ok to exercise, go to concerts, go out with friends, etc? I got no idea! <BR> ... Tue, 16 Aug 2011 17:56:08 EST Feeling spacey from Oral Solumdrol? Finished a 3 day course of Solumedrol on Monday. Still feeling very fatigued and extremely spaced out. Is it from the meds? Doc didn't tell me anything except that it would help me regain some of my regular functioning and it could make me feel wired. Anyone else experiencing this? Thu, 11 Aug 2011 15:00:16 EST Newbie Needing Advice: Choosing a Doctor Hey all, I hope this is the appropriate place to ask this question. My neurologist told me on Friday that I have lesions on my brain and spinal chord that are indicative of MS. I'm having a lumbar puncture on 8/22 the many of you have already given me encouragement and support around that, and for that I am truly grateful. <BR> <BR> The thing I'm struggling with is knowing if I should stay with my current neurologist, or try to flnd one that specializes in MS? What kinds of things should I ... Tue, 9 Aug 2011 15:02:09 EST New to the Team Hello everyone.....I've been Sparking since Dec 2010 but am new to the team. I had an episode of optic neuritis about 7 years ago and it cleared up. Doc said we may never know the cause, or I might come down with MS later in life. It was always in the back of my mind but I tried to forget about it. Then recently my right hand became very weak and my left leg went and stayed numb. Visited my GP who referred me to a neuro who did MRIs of my brain and entire spine. Today she showed me what she b... Sat, 6 Aug 2011 03:43:50 EST Don't Let The Grumps Take You Down I am creating this thread for those discussions regarding some person or thing that is dragging you down. that leaves the other threads for lighter conversation. Thu, 21 Jul 2011 20:55:57 EST newbie Just wanted to introduce myself. I have a lot of weight to lose. I've been at Spark for almost 5 weeks now. I was dx wit MS 8 years ago. I've learned to lived with the cruelty and shocking surprises the disease brings. I don't like it but I've accepted it and do my best to work around it. Easier said than done! Exercise is challenging for sure! Fear vs pushing myself further, fatigue.... Sat, 25 Jun 2011 19:49:49 EST Attention Copaxone Users Apparently last week a copayment assistant plan was put into use between shared solutions and certain pharmacies. My pharmacy (Curascript) was one of them. Now, as opposed to spending $100/month for this prescription it will only be $35/month. <BR> <BR> I don't know about you, but that is a HUGE savings to me. I'd call them and check it out :) My pharmacy just told me about this today. Thank goodness, i'm about tapped out between medical and prescription costs. <BR> <BR> They said the reas... Wed, 15 Jun 2011 20:05:42 EST Free Subscription to Ability Hi - <BR> <BR> I just got my newsletter from Can Do MS and in it it discusses a free subscription to Ability Magazine. I signed up for the magazine, what's to lose? <BR> <BR><BR>ple-sclerosis/useful-links/ <BR> <BR> have a great weekend! Fri, 10 Jun 2011 19:22:38 EST Rogue Enzyme Implicated in MS <link><BR>/CMSC/26888?utm_content=&utm_medium=em<BR>ail&utm_campaign=DailyHeadlines&utm_so<BR>urce=WC&userid=222218 </link> <BR> <BR> Love, Chelsea Wed, 8 Jun 2011 15:12:01 EST crazy week Crazy Busy Week on Our Team: *SPARKING* with multiple sclerosis! <BR> We sure have had a crazy week. Started out on Tuesday when our own dear Melly lost her grandmother. I hope you will read her blogs especially: <BR> <BR><BR>_journal_individual.asp?blog_id=4223437 and<BR>ournal_individual.asp?blog_id=4226991. She sure could use our support! <BR> <BR> On Friday the 13, our member 2finsih had a great... Sun, 15 May 2011 21:05:44 EST Gilenya Hi Team - <BR> <BR> I was wondering if anyone else did any research about this new pill form for MS. I will be speaking with my neurologist about it this month. Anything to get away from injections (okay not anything). The only side effect that appears to be different from the Copaxone is the liver issues. That gives me a little concern. Has anyone spoke about this with their medical team? <BR> <BR> http://www.europeanpharmaceuticalreview.<BR>com/news/industry-news/novartis-gains-<BR>approv... Sat, 7 May 2011 18:47:56 EST Live Chat - Exercises that People w/MS<BR>at-barbara-giesser-20110502,0,4398994.<BR>htmlstory <BR> <BR> I don't know if everyone was aware of this, but they announced it on my facebook page. I am new to MS (just diagnosed in Feb) and can't stand yoga. I got some of my questions answered reading through this. hopefully it can help others as well. <BR> <BR> Have a great night! Tue, 3 May 2011 22:56:02 EST The Banana Some Interesting Facts --- professor at CCNY for a physiological psych class told his class about bananas. He said the expression "going bananas" is from the effects of bananas on the brain.. Read on: <BR> <BR> <BR> Never, put your banana in the refrigerator!!! <BR> This is interesting.. <BR> <BR> After reading this, you'll never look at a banana in the same way again. <BR> <BR> <BR> Bananas contain three natural sugars - sucrose, fructose and glucose combined with fiber. A banana gives an instant, sustai... Wed, 20 Apr 2011 12:10:34 EST Hello Well I joined another MS team, but that team leader has been inactive. I was diagnosed Feb 7th and am learning to live with this loveliness. I rejoined Sparkpeople to get into a healthy lifestyle, because the way I have been living just hasn't cut it for me. I enjoy reading, crafting, and my kitties. Anything else you need to know feel free to ask me. Have a great day! Thu, 7 Apr 2011 12:12:06 EST Team Leader I got a request to help out with leading this team, so glad to do it! M.S. is near and dear to my heart and I will be doing the walk in April 2011. Anyone else walking from Irvine, here on Spark? Mon, 21 Mar 2011 12:08:03 EST Hi everyone, I'm new... and Im not very good at being active in groups - by the time I do my tracking and try to post on the MBs, my attention is gone. I want to try to do better, Im hoping this is the team I can do better with. <BR> I was diagnosed with MS in 2007 and have been on Copaxone for almost 4 years now. I have had relapses while on Copaxone, but I really am doing better than I was the summer before I began. <BR> My goal right now is to complete the virtual 5k through spark, but after the second week o... Sun, 13 Mar 2011 13:33:34 EST MS Eye Twitch after Exercising???? In 2007 I got a horrendous eye twitch right before my first and only relapse. I've gotten the eye twitch since when I'm very stressed out and overtired, and usually just relax and/or nap. Well, now it seems when I do my biggest loser workout it causes the eye twitch to start acting up. I'm not sure what it means, or if I should do something different. Does anyone else have MS symptoms aggravated by exercise? Tue, 8 Mar 2011 14:40:16 EST Avonex - Pre-measured vs mix it yourself Hi ladies (and gentlemen of course), <BR> Has anyone noticed the difference between the two Avonex's. We used to get the kind that you mix yourself into the powder, but now it all pre-measured and you only have to insert the needle. Some folks here have been experiencing more than usual leg cramps and I was wondering if anyone has had experience with the two. Personally, I think I prefer the pre-measured and I just stock up on the Advil, Bayers or whatever tablets are in the cupboard to he... Mon, 28 Feb 2011 15:55:13 EST Had an exacerbation and fell off the SP wagon I'm so angry with myself. I had an exacerbation this week, my first in 3.5 years. I started out feeling like I couldn't take a deep breath and eventually went numb on my left side. Thankfully I'm gaining all my feeling back quickly. However, I did fall off the wagon a bit. I wasn't tracking, I wasn't exercising. I didn't gorge myself but I didn't eat as healthfully as I should or could have. I'm so angry with myself which is only upping my stress which is only making recovery slower. Ugh. Onl... Tue, 22 Feb 2011 00:17:32 EST Weight loss and more pain when injecting.... Since I've been losing weight I've noticed my injections are growing more painful. I'm on Copaxone and have been for 3.5 years. Injections used to be easy, maybe a sting. Today when I injected in my stomach it was horrible. I know that my divets are getting more and more noticeable. So, perhaps it's the weight loss that's making it hurt more? Ouch! Sun, 13 Feb 2011 14:45:34 EST Kinda new? Hi all! I’m Natalie. I’ve been a spark member for several years (weight loss is an ongoing struggle for me) and was officially diagnosed with MS last week. This has all happened so fast. Just last month I had my first symptom (pins and needles feeling on the entire left side of my body) and one MRI and spinal tap later, I have my answer. Now I’m just trying to figure out what medication I should take. <BR> <BR> As soon as my dr saw the MRI he told me it might be MS so I did a little resea... Sun, 13 Feb 2011 00:05:43 EST MS and sweets Do the taste buds go crazy or is it just me? The only foods that really taste good anymore are sweet things. The thought of real food sounds great,but the moment it hits the tongue,the flavor is gone. Anyone else/ Mon, 7 Feb 2011 17:00:22 EST Hi there, new here 3rd time back to Spark.Would really like to make it this time. Waiting on my lumbar puncture for my doctor to give a final DX.He seems sure it is MS,all the test and symptoms point that way. I'll be sooooooo glad to just have it done!! I'm 62,so it's less common to show up late. I guess though"Better Late Than Never"ha,ha. It's this dogone fog I seem to stay in,and walking around like a drunk. I'm a hairdresser,and I shake more hair off the roller, than I get wrapped around it. Anyway,I'm so... Mon, 7 Feb 2011 16:55:23 EST Positives & blessings brought on by having MS. So, here it is. I thought since we have been able to share with each other about the struggles of MS, and get feedback and support, here is a different angle - positives or blessings brought on by having MS. <BR> <BR> I thought about this a long time today and I wanted to share. I am also curious to see what others' answers are. <BR> <BR> 1. An "excuse" to rest without guilt. In modern America, if a person isn't doing something all the time and being productive, they feel guilt. Not me! <em... Tue, 1 Feb 2011 09:21:07 EST It says here in small print "I don't have MS" I live in Nashua, NH and though doctors have withheld the typical MS Diagnosis, I have all the symptoms affecting most functions below the waist. At age 72, I am leaning a pretty sedentary lifestyle especially since the VA gave me a scooter to provide me some mobility. <BR> I am retired and spend a lot of time at the computer running my website That, plus my newsletter keep me pretty busy as does my own scale modeling building structures for dioramas. <BR> Rec... Sun, 30 Jan 2011 00:05:36 EST I miss... DANCING! I used to do line dancing and LOVED it. I even won 1st place in a regional competition. <BR> <BR> What do YOU miss? Sat, 29 Jan 2011 20:07:33 EST pregnant with MS I recently found out that I am pregnant with our first child. I didn't find out until I was 15 weeks but at the time the nurse practitioner thought I was only 9 or 10 weeks so it was a shock the following week when , during the ultrasound, I was told that I was 16 weeks pregnant. Around Christmas time I took several home tests which all came back positive so after I called the ob-gyn for an appointment I called my neurologist who told me to stop taking my medication ( I had stopped taking it ... Wed, 26 Jan 2011 18:32:15 EST Link to new meds available plus new MS research Check this out! It is very exciting. I got it via email this morning: <link><BR>Leads-Way-in-2010-in-Cutting-Edge-Rese<BR>arch-to-Stop-and-End-MS-Forever.html </link> Wed, 26 Jan 2011 10:17:23 EST Clip of 3-yr. old conducting Beethoven's Fifth! I read the following blog this morning which has the clip that I think you will really enjoy. Here it is: <link><BR>urnal_individual.asp?blog_id=3954623 </link> Mon, 24 Jan 2011 07:50:58 EST Medication causes weight gain? Ugh! So, I've been on Copaxone for over three years and I've been very happy with it. At the same time I've been battling losing weight and every ounce lost is a struggle. Come to find out that Copaxone can cause weight gain and difficulty losing weight. Not that this changes my resolved, I'll just have to push even harder, but it sure is frustrating to learn. It explains why I eat so well, exercise six days a week and don't lose much though. Ha ha. Sat, 22 Jan 2011 12:26:30 EST FOOD! What do we do when we just aren't hungry? I think it's the MS, because I really love my food! Thu, 20 Jan 2011 08:07:16 EST A New Aid For Those With Mobility Problems I saw this on the Disabilities team page this morning. It looks very intriguing. <BR> <BR> <link> </link> <BR> <BR> I'm going to show this to my physical therapist next time I see her. And I'm incredibly interested in finding out if it would benefit me, as a tool to regain the muscle strength I have lost. Tue, 18 Jan 2011 11:14:55 EST NEWS: New treatment for severe MS flares I receive medical news online daily from a website that has no ads. They are a reputable website. It is for medical people but I discovered it when I worked for the State of Florida Health Department in 2006. Here is the link to this article: <link><BR>pleSclerosis/24383 </link> ("AAN Backs Limited Use Plasma Exchange for MS Relapses") Tue, 18 Jan 2011 07:24:28 EST Debbie Friedman I haven't seen a post for this, so I thought I would let everyone know. <BR> <BR> Debbie Friedman, a Jewish folk singer, died on Sunday in Mission Viejo, California at the age of 59. The cause was complications of pneumonia, according to Jerry Kaye, a family spokesman. Friedman's versions of traditional Jewish prayers, set to contemporary melodies with lyrics in both Hebrew and English, became standards in Reform, Conservative and Reconstructionist synagogues around the world. <BR> <BR> May... Sun, 16 Jan 2011 16:42:53 EST Hello from CA Hi, I'm Alexis. I'm 30 years old and have had MS for over 3 years. I am currently doing very well. I take Copaxone by choice and have since my initial onset at age 26. I am here to lose weight and gain muscle and work towards a 10K and possibly a half marathon. I enjoy hiking and outdoor activities as well as photography. I hope to get to know you all and am happy to answer questions if anyone has any. You can PM me any time. Sat, 15 Jan 2011 11:33:01 EST The pity pot Hi, <BR> Nov. 30th I was diagnosed with *shingles*. The outer manifestations are gone, thank goodness, but I'm now in the pain stage. <BR> <BR> The itching and pain combined are almost too much to handle. I'm on major pain meds, but they leave me with dry mouth. <BR> <BR> In case you're wondering, it's on the right side of my head. Face, eye, and scalp are all involved. <BR> <BR> Any ideas on how to get off the *Pity Pot*? <BR> <BR> Thanks Fri, 7 Jan 2011 02:48:28 EST Montel and medical marijuana The talk show host and decorated U.S. Navy officer was ticketed for possession of drug paraphernalia after airport officials found a marijuana pipe in his belongings. Though Williams, who has multiple sclerosis, explained he was using it for medicinal purposes, Transportation Security Agency officials fined him $484. <BR> <BR> I don't see what's the big deal using marijuana for medical purposes, I would certainly like the chance to be able to use it if I need to. On the other hand, it's dumb... Thu, 6 Jan 2011 20:20:42 EST **JANUARY 2011 GOALS** This is going to be a great forum since we are starting a new year full of excitement and newness. <em>437</em> <BR> <BR> My general goals are: <BR> 1. CURVES (women's gym) Mon., Wed., Fri. <BR> 2. 30 minute walk on Tues. and Thurs. <BR> 3. Yoga or Tai Chi (new for me) on Sat. and Sun. <BR> <BR> I have special goals in every team I am a member of here in SP and I will do my best for them. <BR> <BR> I also have private goals that are spiritual in nature and important to me as well (scriptu... Sat, 1 Jan 2011 08:48:38 EST Hi, I am Nicole Hello, <BR> <BR> My name is Nicole. I have been a member of SP for a while. I recently changed to a brand new profile though to get a fresh start. <BR> I was finally diagnosed the day after Thanksgiving with MS after 20 years of symptoms and being told it was a million other things. I am relieved to finally have an answer but still run the range of emotions. <BR> I am a single mother of a 7 year old almost 8 year old daughter. I am still working FT and before this all happened I had lost 77 ... Wed, 29 Dec 2010 21:40:15 EST Hi my name is Katie... I myself to not have ms. I have three family members, two cousins and one uncle that have all been diagnosed with MS. I also have a life time family friend with the illness. I would like to be a part of this team to get ideas and help my loved ones who battle with there health everyday. Tue, 28 Dec 2010 14:32:48 EST Found hubby a new doc Well Troy came home last night and asked that I find him a new doctor. We were supposed to be going to his appointment which has been rescheduled 3xs now.. tomorrow. They called to reschedule again. Enough..sighs <BR> <BR> So I started researching online today and we decided to give a new care center a call and schedule him for his evaluation. <BR> <BR> I am feeling so strange right now.. What a positive place this seems to be. They include holistic treatments with conventional medicati... Wed, 8 Dec 2010 13:12:52 EST DECEMBER 2010 GOALS New month, new hope! November didn't go well for me and now I can re-do some goals and feel like I am starting over. I am presently re-doing my goals and when I am ready, I will post them here. I wanted to start this thread to encourage all of you to share your goals for December AND to come back and report throughout the month to get kudos and support. <BR> Good luck everyone! <em>306</em> Wed, 1 Dec 2010 08:28:49 EST Sam the Seagull's got the munchies This is cute. Hope the link works: <BR> <BR> <link><BR>ypets/archive/2010/11/30/sam-the-seagu<BR>ll-stealing-doritos.aspx </link> Tue, 30 Nov 2010 08:23:10 EST Sweet Gorilla video Hope this link works for you. This shows the reunion between a gorilla in the wild and the man who raised him. I thought this was very sweet and wanted to share it. <BR> <BR> <link><BR>ypets/archive/2010/11/24/gorilla-reuni<BR>on-damian-aspinalls-extraordinary-gori<BR>lla-encounter.aspx </link> Wed, 24 Nov 2010 06:39:38 EST hi My name is Dannielle. Jumped on today looking for my fellow MSers & look! Found you guys! Wed, 17 Nov 2010 10:13:13 EST Revenge against a honking horn Hopefully, this link will work. It made me laugh. <BR> <BR> <link><BR>archive/2010/11/17/revenge-against-the<BR>-honking-horn.aspx </link> Wed, 17 Nov 2010 08:38:39 EST A Word Twister See if you can figure this out. I could not figure it out. My first thought was wrong and I had to look at the answer. <BR> See if you can figure out what these seven words all have in common? <BR> <BR> 1. Banana <BR> 2. Dresser <BR> 3. Grammar <BR> 4. Potato <BR> 5. Revive <BR> 6. Uneven <BR> 7. Assess <BR> Are you peeking or have you already given up? Give it another try.... Look at each word carefully. You'll kick yourself when you discover the answer. This is so cool..... No, it... Tue, 16 Nov 2010 15:45:09 EST Cute video I saw this and thought I'd share it. Hope the link works for you. <BR> <BR> <link><BR>ypets/archive/2010/11/09/otter-pups-sw<BR>im-lesson.aspx </link> Mon, 15 Nov 2010 13:28:50 EST Tips on coping with fatigue I was diagnosed about a year ago. For a few months, I took low dose naltrexone to help with the fatigue. It helped with the fatigue but made my head feel like I was constantly in a fog. I stopped taking the naltrexone and I feel more like myself, but I get tired so quickly. Does anyone have any tips/suggestions for feeling less fatigued (or at least coping with it)? Tue, 2 Nov 2010 18:49:44 EST DRUGS!!! Found this on another team. When I saw the word DRUGS, I thought it was about DRUGS. In a way it is. What do you think? <BR> <BR> <link><BR>ip.jpg </link> Tue, 2 Nov 2010 01:37:13 EST NOVEMBER 2010 GOALS Hi everyone! A new month starts with our new goals for a healthier and balanced YOU! Our team did GREAT in the month of October (sent you a team email with the stats) and now, we have another chance to excel again! Here is the new forum where you can share your goals for November. <BR> <BR> As for me, my goals are: <BR> <BR> 1. I joined 5 new teams (and got out of a couple) to encourage me to set new goals, new challenges and make new friends. <BR> 2. Join Curves (hope my budget permits it)... Mon, 1 Nov 2010 10:40:41 EST Depression and mood swings with MS... Touchy subject I know. Things are not going well right now as I am trying to address with my husband the fact that he is depressed and that he is in a very negative place. Everything about him is anger. I've been reading a lot lately on MS and have read where studies are inconclusive that stress causes ms flares. Hub will spend time making us all feel guilty for the stress we bring into his life. I read today that family members should not be trapped into feeling this guilt as it is clea... Mon, 25 Oct 2010 12:09:12 EST Women w/chronic illnesses & the medical profession I was reading about "Pain" in "Health A-Z" to get my 3 points for today and at the end where they list resources, I went to the first website listed. While looking there, I found out about this book: "Lost Voices, Women, Chronic Pain and Abuse" by Nellie <BR> <BR> <link><BR>.aspx </link> <BR> <BR> The website describes the book this way: "In the process of treating women for chronic pain, the author realized that their personal lives effected their l... Wed, 20 Oct 2010 14:09:24 EST Massage? Anyone here use massage as a form of therapy? I know you have to be very careful with it as it can dump your lymph system and that's not something to play around with re MS. <BR> <BR> I don't think I've mentioned before that Hub is a diesel mechanic who runs and works a shop on his own.. Which means he does all the heavy lifting on his own. Hub comes home at night in agony some days. We bought an older hot tub which he put back together and we use in short bursts to help release the musc... Tue, 19 Oct 2010 06:57:47 EST MS and essential oils webinar 10/27 Hear directly from people who have Multiple Sclerosis as they share their story how Essential Oils have eliminated their MS symptoms and drastically improved their lives. <BR> <BR> Guest speaker Dr. Jed Adamson explains why certain essential oils are so effective in helping people with MS. <BR> <BR> <link><BR>r/593671387 </link> Thu, 14 Oct 2010 23:33:01 EST Anyone with MS husbands? I know MS is predominantly a women's disease, but I am wondering if anyone on here is in the same situation as I am.. <BR> <BR> I have a wonderful husband with MS. <BR> <BR> I find all you ladies beyond helpful and simply fantastic in giving me insights into his illness.. Men with MS seem to be different creatures than you ladies. I'm guessing it's simply the old male vs female thing.. mars and venus if you will. <BR> <BR> Inject testosterone into the equation and it all changes.. <BR>... Wed, 13 Oct 2010 06:25:07 EST COLD feet Do you have cold feet? Mine feel like they are freezing all the time, no matter the temperature. The only relief I get is soaking in a tub of hot water. Sometimes wearing thick socks helps for awhile, but not long. Thanks for any suggestions. Tue, 12 Oct 2010 19:18:44 EST Try LUMOSITY. A member of our team, can't remember who, mentioned this website. Right now it is being advertised in SparkPeople and if you click it, SparkPeople gets credit. Some of the games are free but if you pay a small fee, you get them all. <BR> <BR> I searched for a promotion code and got it 1/2 price! Go to <link> </link> (RetailMeNot) and you get your code there. <BR> <BR> I signed up and it is GREAT! It is great for us with MS and the games are also fun. If you have grandk... Mon, 11 Oct 2010 08:43:03 EST Book Club Anyone interested starting a book club or just sharing their favorite authors and books? I'm a very avid reader, especially since being diagnosed, as I enjoy the escape. I'm huge into Diana Galbadon and her Outlander series. Also Jody Piccout, Anita Shreve, Maeve Binchy, and Diane Chamberlain. Thu, 7 Oct 2010 10:44:52 EST JOKES, JOKES, JOKES PLEASE READ THIS FIRST: <BR> <BR> I have learned to know a lot about you wonderful team members and many of you have this wonderful sense of humor! I want to start a forum not just for jokes that other people have told you BUT also "jokes" about your own life! As our MS progresses, things happen with memory loss, getting lost, loosing things, confusion, etc. Let's share it! <em>100</em> <BR> <BR> One thing I would ask is if you have a dirty joke and want to share it and you know a member ... Thu, 7 Oct 2010 08:24:56 EST a sensitive topic Good morning everyone. I have a sensitive personal question to ask of you and I sincerely hope it does not offend anyone. Hubby has MS was dx'd at 38, but was told he had it since his early 20's undiagnosed. He is now 44 yrs old. We have been together 3 yrs total. Hubby has far too much stress that is not easily eliminated from his life. He also does not take care of himself both physically, food wise and medically . It's almost a semi reversion into denial stage. <BR> <BR> Enough bac... Wed, 6 Oct 2010 08:57:43 EST GOALS for OCTOBER 2010 This is the forum where you can share you goals for the month of October for nutrition, exercise, personal SP goals and team goals. <BR> <BR> You can share not just a list of them but as time goes on, share your successes, when things don't work out, what you are learning along the way, to announce awards received during the month and if you have written a blog that you want to share. ANYTHING that will motivate you to continue doing your goals is welcomed here. <BR> <BR> This is your team ... Sat, 2 Oct 2010 08:46:56 EST FREE exercise DVD specifically for MS This is not the yoga one. This one has 3 routines: sitting in a chair, standing and using a chair for balance, standing and some yoga moves on the floor. Brought to you by the Tysabri people (who SHOULD be giving out free stuff since the med is so $$$). Fri, 24 Sep 2010 22:46:45 EST WORD GAME just for fun The purpose of this game is to write the first word that comes to your mind after you read the last word written by the last member of the team. For example, if the word is "sunshine" you could write anything that comes to mind (sun, happy, shinny....). <BR> <BR> This is just for fun and you can get your point for posting too! <BR> <BR> Let me start: <BR> <BR> EXERCISE <BR> <BR> Chelsea <BR> Leader of "Sparking with Multiple Sclerosis" <em>306</em> Fri, 17 Sep 2010 15:11:04 EST DAILY CHECK IN THREAD This is where you can tell us your wheel check in points with pictures, your plans for the day, your goals for the day, your present struggles with MS. <BR> <BR> If you are a support person for someone with MS, here you can also tell us your wheel check in points, your goals for the day and what support you need to be of support to your loved one. <BR> <BR> This is for all of us to check in every day, any time of the day (not just the morning). I will make it a team goal so you can get spa... Wed, 15 Sep 2010 09:00:45 EST For partners, family and friends of people with MS This forum is for you! You also need support and ideas when living with or helping someone with multiple sclerosis. <BR> <BR> Here you can share your feelings, ideas for coping, ideas for relaxation and fun - anything that you feel will help and support you. <BR> <BR> Welcome to "Sparking with Multiple Sclerosis" <em>306</em> <BR> <BR> Chelsea, leader Mon, 13 Sep 2010 11:26:22 EST GOOD DAY EVERYONE! Just stopping by to say hello. My morning went okay and I hope you all are making progress for your goals today. <BR> <BR> Please have an enjoyable day. If it is a hard day because of MS (or something else), give yourself a break and have a peaceful day. <BR> <BR> Take care everyone! <BR> <BR> Chelsea <em>67</em> Fri, 10 Sep 2010 12:09:15 EST New leader/c o-leader for our group Hi everyone! I sent you all an email introducing myself and I hope it worked. <BR> <BR> I just wanted to say that I am looking forward to getting to know you all and making our group great! <BR> <BR> Any questions or concerns, let me know. I will do my best to help out and answer your questions. <BR> <BR> Have a nice weekend! <BR> <BR> Chelsea <em>515</em> <em>345</em> Thu, 9 Sep 2010 21:29:25 EST Wishing you all a wonderful week! I hope your weekend went well. I wish you all a wonderful week ahead. <BR> <BR> Chelsea <em>250</em> Sun, 15 Aug 2010 20:54:54 EST Fingolimod / FTY720 / Gilenia news! Hi all! <BR> <BR> I am currently of drugs waiting for the pill to be released.. my Nuero (who has been doing studies for the past 3 years on this drug) says it should be approved and signed off on on Sept. 21st (my b-day!!) <BR> <BR> I tried Rebif and Tysabri... either it wasn't working for me or I was allergic and I am now waiting on the next best thing... <BR> <BR> Just thought ya'll might wanna know Tue, 3 Aug 2010 01:16:05 EST Hello! Hi everyone, <BR> My name is Amanda and I have been a part of Sparkpeople for a couple years now, but have not been very active on it until recently. Like the others on this team, I have MS and was diagnosed in 2003 at the age of 23 with RRMS. For the most part it's been a pretty quiet disease for me, but I have definitely had my moments. Recently I found out my meds (Rebif) aren't really doing their job anymore and the MS is progressing internally. This freaked me out since it has been so q... Thu, 29 Jul 2010 16:00:15 EST MS from A-Z ... video series University of WA has this series. I've just started watching it on Comcast, but it's also available online. The first one is a bit dry, but quite informative. <BR> <BR> Shall we watch it together? Say, one a week? If yes, or interested, e-mail me! In fact, I think I'll start weekly discussions anyway (so there! <em>334</em> ). Hope you join me! This is the first one <link><BR>spx?rID=30840&fID=6644 </link> . This is the main website: <link> Mon, 10 May 2010 14:01:48 EST newlybourne I am a 71 year old female with secondary progressive MS. I have dealt w/MS since age 9. Wasn't DX'ed until I was 22. At present I am on steroids by IV every 3 weeks. This has caused me to gain weight and I desire to lose 50 lbs. <BR> Not an easy thing to do beings my physical activety is limited because of my MS. I really know the ins& outs of MS after all these years. I am an upbeat person and have a lot of joy in my heart. Have remained active in my community and now join this one. Sun, 25 Apr 2010 16:59:32 EST Memory problems I'm looking for some input. I'm having trouble with my memory lately. Transposing numbers, can only focus on one task at a time, totalling forgeting to pay some of my bills, and for a scary few minutes, did not recognize the road I was driving on (I drive it every day). I finally recognized a landmark and everything clicked in fine. I'm good in the morning, but by late morning, I start making mistakes and feeling overwhelmed. I talked to my neuro's office and they thought that perhaps I'm hav... Wed, 21 Apr 2010 22:53:49 EST THE NETHERLANDS <em>213</em> <BR> HI, I M KITTY FROM THE NETHERLANDS AND I M NEW TO THIS SITE, I VE RR MS SINCE 4 YEARS NOW AND I USE COPAXONE INJECTIONS TO PREFEND THE ATTACKS. i HARDLY WALK AND I WANT TO LOOSE WEIGHT. I M A NURSE, BUT DON T WORK ANYMORE. YOU SEE WHEN I GET IN THE MORNING I M VERY STIFF AND I CANT DO MUCH. IN THE EVENING IT S BETTER AND WHEN I M COMPLETELY RELAXED IS CAN WALK BETTER EN SOME TIMES I HAVE THE FEELING OHHHHHHHHHHHHH I M WALKING RIGHT AND THAT S NICE. <BR> BU I STAY POSITIV... Tue, 13 Apr 2010 04:02:16 EST Tysabre I was on TY for about two years and had great results. I would still be on it if it were not for some insurance problems. I had great results and swear by it. The one problem (I guess you could call it a problem) is that I lost about 70 lbs (needed to anyway) while I was on it. The doc said "not possible with TY" but I have no other way to explain it and the loss start shortly after I started TY. Even the "OMG side effects" does not list weight loss as being a side effect. Since i have been ... Thu, 1 Apr 2010 21:40:54 EST Daily Water Finally found a way to get those daily 8 hard to drink glasses of water. We buy the flavor packets from Kroger, Great Value Drink Mix or Crystal Light. One pack flavors 16 oz of water and they taste great. Although they add about 2.5 calories per 8oz, I think it's worth it. I am going on 24 oz of water for today. For anyone who has a hard time with their water intake, i would give this a try and sice water consumption is one of our team goals, this might help us reach it. Having a small MS bl... Thu, 1 Apr 2010 21:05:56 EST Confused I weigh daily and my weight can go up or down 3 - 4 lbs within the same week. It's been doing that for months.... why? <BR> <BR> On another note... anybody else with MS have problems sweating at night? We drop our night temp. to 65 during the winter and I still have this problem. I was told from someone else with MS that they has the same problem. Is it an MS thing I wonder? Wed, 31 Mar 2010 21:16:26 EST Changing to a new team Hello Everyone, <BR> My name is Mike.I am 50 years old and was OFFICIALLY diagnosed with MS in '01.UNOFFICIALLY I had it sincee '96 but was told I probably had a reaction to some medication I was taking and it most likely damaged the "BASE OF MY BRAIN"...go figure. Anyway, it was not until '01 when I had my second attack. By then I had moved from Ohio to Michigan. A friend I worked with knew I was having some problems. I was seeing double and would close one eye when I looked which would make... Fri, 26 Mar 2010 20:32:11 EST Exercising in Florida heat Hey, everyone! <BR> I'm new to SP and am enjoying the encouragement it provides. I am motivated (finally) to do more than lose the weight. My question is I live in Florida, it gets a little hot. <em>198</em> Although my MS symptoms have always been relatively mild, I am extremely sensitive to the heat. Any suggestions for keeping up my walking goal other than the mall? Tue, 23 Mar 2010 14:43:56 EST 2010 MS Awareness Week National MS Awareness Week March 8-14, what will you do? Mon, 8 Mar 2010 23:55:19 EST New to Sparks and the team Hello everyone. I just wanted to introduce myself, I am new to Sparks and I am 42 and have had MS for over 20 years. Now I have found out I also have Hypothyroidism. I could use some friends who understand. I know MS is different for everyone but we all have one thing in common - the unknown from day to day. I would love to chat with others about weight loss,MS,Kids,family,dogs,cats.books,campin<BR>g,you name it Mon, 8 Mar 2010 19:21:08 EST new I've had MS for 22 yrs. I need to lose about 50 lbs. I'm kind of discouraged because it's such an effort to get up from WH and just do daily things let alone exercise. <BR> <BR> However, I'm ready to get started. Can I count points for getting out of WC and walking (slowly) to another room? Tue, 2 Mar 2010 16:07:52 EST New to the team. First off. I just want to clarify. I do not have MS. I am a caregiver for a woman with MS. <BR> <BR> I didn't see any other teams with caregivers in the description. So i thought i'd join this one. <BR> <BR> I'm 19. Working as a caregiver and going to school full time. <BR> <BR> I am also Team Captain of "The Wild Bunch". April 10th, 2010 will be my 8th year as team captain. I love my job as team captain and will be team captain until I die. (and even then from above I will be team captain... Tue, 8 Sep 2009 01:30:55 EST Anyone in Portland Oregon Metro area? I am wanting to find out if anyone on the MS teams are in Portland Oregon. If so please let me know. I am the co-facilitator for an MS support group and need feedback on the idea of having a Water Therapy class through the college. <BR> <BR> Thanks, <BR> KBeery Sat, 8 Aug 2009 14:17:07 EST Mobility problems and exercise Hi, <BR> <BR> I'm relatively new to SP. I was wondering if anyone knows of a good place to find cardio workouts for people with mobility problems. I have trouble walking, although I am not confined to a wheel chair, I have really bad balance and stability when standing with out something to lean on. I do some yoga, and I have a pilates machine, but I miss the days when I could just go out side and run, or play soccer. Does anyone have ideas or suggestions for some good cardio I could do?... Wed, 17 Jun 2009 22:36:14 EST MS Trial Hi Everyone, <BR> I found out about a trial involving Cladribine, along with my injectable (Avonex). With permission from my Dr., I applied, went through the initial testing, and was excepted. <em>224</em> I'll start the med. tomorrow, after EKG's and an MRI. <BR> <BR> It's a double blind trial now in phase II. <BR> <BR> This phase will last about two years, and at the end, I'll receive the medicine long term, at little or no out of pocket cost. <BR> <BR> By the way, my Avonex will b... Wed, 3 Jun 2009 14:08:56 EST Working and exercise. I work a full-time job and along with the MS, I have recently been diagnosed with fibromyalgia. When I get home from work I am just whipped! How do you motivate yourself to exercise? I'm thinking of joining the YMCA but I swear I just get tired looking at the building! <em>40</em> Any suggestions to give myself a boot in the butt? Sun, 31 May 2009 16:40:13 EST WHERE IS EVERYONE How come there's rarely new posts? Sun, 31 May 2009 10:58:34 EST OOPS FORGOT Oh, and is weight gain or water retention a side effect of <BR> copaxone? Thanks. Tue, 19 May 2009 09:35:44 EST EXERCISE AND M.S. (AGAIN . . . ) Here again with the same question or problem. HI ALL <BR> I have now been exercising, alot of walking (the dogs, treadmill, hiking). I kept thinking my feet hurt and my legs hurt pretty consistently because I just wasn't use to it, and it would go away. (I have been walking for quite awhile now). Yet, my legs and feet hurt ALL THE TIME still. Do you guys think it is the MS or something else? Tue, 19 May 2009 09:34:02 EST Teenagers! Anyone out there with MS also have teenagers? Maybe it is just my kids (teenage boys 14 and 16) and maybe it just comes with the "all about me" mindset of teenage boys - or maybe it is just mine! But I have a hard time convincing them when I feel really bad that it really is MS. To them it is just Mom passed out on the couch again. I guess the problem is I don't physically show any signs of MS. Even if on the inside I feel like a nightmare. But, they just don't get it. How do you make your ... Wed, 13 May 2009 17:43:28 EST Working out seems to aggravate symptoms Does anyone else have the same problem? I played tennis yesterday , the first time in many years, and today my already numb right hand is sluggish and hand hurts. Also, woke up barely able to walk and lower back is killing me (I have lesions on brain as well as cervical and thoracic spine). Have noticed the same or similar issues after I do the treadmill, walk longer with the dogs, etc. It's a little depressing, as I know we have to get exercise to lose weight, and much of it i now really ... Tue, 12 May 2009 11:00:14 EST Beautiful People I just joined. I saw all the pictures of other team members. Look at all of these beautiful people with this ugly disease . . . Fri, 8 May 2009 09:20:09 EST MS Walk Our Pittsburgh MS walk is this Sunday. I'm walking with my husband, mother and sister. Normally my three kids walk with us, but they'll all be in North Carolina for the week. <BR> <BR> Just wondering if you guys walk in your MS walk? Wed, 22 Apr 2009 14:06:24 EST MS 150 Bike Ride The MS 150 Bike Ride from Houston to Austin is this coming weekend April 17-19. Anyone plan to attend? <BR> <BR> My husband's company is participating and one of his co-worker's is riding in honor of our daughter. She decorated a bandana for him to wear. Wed, 15 Apr 2009 22:48:31 EST Introduce Yourelf to Team Hi, my name is Tammy and I was diagnosed about 3 1/2 years ago with Primary Progressive MS. I exercise a lot still, as exercise and nutrition are the only know treatments for the type of MS I have. It is more difficult and I truly believe that joining in with others that understand and share this disease will help. I had to go on full disability in July of last year which I fought for a couple years. I use to be a successful executive and worked and enjoyed it for many many years. I am i... Mon, 6 Apr 2009 14:44:41 EST Hi all! Hello everyone! I hope you are all doing well! My name is Mike and one of my main purposes for joining this website was to support my wonderful girlfriend, Jennifer, in achieving her weight loss goals, but there are other challenges that she faces on a daily basis where she can use as much support as possible! <BR> <BR> For those who may not know on Saturday, April 18, 2009 there is going to be a walk in Nashua to support those who are afflicted with MS, or Multiple Sclerosis. MS is a disea... Mon, 6 Apr 2009 11:39:23 EST Topsy Turvy Fall Today was a rough day and boy did I give in to stress eating. My daughter fell down the stairs at home on Tues evening. I took her to the urgent care clinic and they said they couldnt treat her because she had head trauma and she'd have to go to ER. Then another DR looked at her and said no major problem, mild concussion, no swelling behind eyes, she had bruises, cerebral strain, etc gave us RX and sent her home. <BR> (She is 17 & has MS)This am she comes and says her vision is blurry so we c... Thu, 2 Apr 2009 00:53:19 EST MeMyselfNMs. Hi! My name is Shawna. I have been on spark for almost 3 years! I joined when I quit smoking in June 06. I lead a great team called Time To Shine in Oh-9. <BR> This Tuesday I celebrate 19 years of marriage and we have 3 GREAT kids, Tony 18.5, Drew 17 and Hailey 14. <BR> Here is my Blog from 3-12 on my diagnosis with MS. <BR> so... ThaZ ..what's wrong with ME. <BR> Thursday, March 12, 2009 <BR> <BR> I found out last week I have MS (Multiple Sclerosis ). <BR> I had a dr apt & some blood ... Fri, 20 Mar 2009 06:48:36 EST Let's Play A Game Let's play a game. Look at the post before you and the word put before. Look at the last letter of the word, and make a new one. <BR> <BR> So, let me start, <BR> FUN, so the next person puts a word beginning with N and so on! Mon, 9 Mar 2009 21:54:12 EST A sparker might be on TV for MS Awareness week! Hey Fellow Sparkers! <BR> <BR> Tomorrow morning I am participating in CBS' MS Awareness week and biking on TV. If any of you watch the morning show, you might see me biking away on a trainer with Phil from the Amazing Race (don't tell Bob and Jillian - different network) I'm 5'3, brown hair, 150 lbs and my name is Susan Quigley. <BR> <BR> I did MS Bike tour and was one of the Top 200 fundraisers, so they asked us to ride trainers on TV. See you in TV land! <BR> <BR> Squigs Wed, 4 Mar 2009 15:40:29 EST MS Awareness Week Ok, gals/guys! I'm just putting this out there. This week is MS awareness week. I have marked the occasion on my blog and signed up for a short fund raiser walk here in Nashville. When I signed up I got my own "page" on the MS Society's page for fund raising and I mass emailed everyone in my address book. I already has some responses. <BR> I'm pretty jazzed. I feel strongly about educating others about MS and just thought I'd drop in to see what everyone else is doing to mark MS Aware... Tue, 3 Mar 2009 09:53:27 EST Small Motivational Items TEAMS ARE A GREAT WAY TO STAY MOTOTIVATED. <BR> Thu, 29 Jan 2009 00:27:03 EST Hello hey, not sure if I belong here or not. have had symptoms of MS for about 3 years, two years ago I had the MRI, spinal tap etc to check for the disease, had no lesions. I am wondering how many of you had symptoms before you actually showed anything on tests? I have had parathesis in my face and arms which resolved itself after 12 mos. Eye pain in my left eye, uvitus in both eyes for a year, at torn retina and vitrial bleeding. I also have frequent dizzy "swirl" spells, "lead arms" difficult... Wed, 28 Jan 2009 16:00:19 EST New to sparks, have had MS for 16 years Hi My name is Linda Fontecchio and I live in Las Vegas NV. I am 41 years old and am married to a wonderful man and have two great kids. My daughter, Danielle is a freshman in college on a soccer scholarship in California. My son Matthew is a Junior in high school and is in a drafting program which I am hoping will spark an interest for him other than video games. As for me, I work at Home Depot which I have for almost 20 years. I also go to school full time to become a teacher which I will g... Thu, 8 Jan 2009 23:43:01 EST WOW! First of all, thanks to Donna (Angel713) for picking up my dropped ball in administering this group. No excuses, I know... but now, I've finished all my coursework for a BA in Communications (only 24 years after I started!) <BR> <BR> Secondly, I lost track of Spark and lost track of my goals. My weight is the same (or more; I have to check and redo all my numbers). My MS is annoying, but not terribly bothersome. <BR> <BR> Hope you all are well and I hope ... I WILL ... make healthy lifestyl... Sun, 4 Jan 2009 16:53:00 EST Advice needed - new DX but NO symptoms Hi folks - just found out last week that an MRI says I have MS (my Mom had it very bad and my brother has Relapsing). The MRI went from 1 spot to 3 in a year but Doc doesn't know whether I should do shots or not. I'm seeing specialist next week but I would love some advice from people already in the trenches. Any advice would be much appreciated - <BR> <BR> Squigley Sat, 27 Dec 2008 11:37:39 EST New to MS, new to SparkPeople I was just diagnosed in March with RMMS after my second bout of optic neuritis. Fortunately, I don't have a lot of physical problems right now, although I'm recovering from an ankle fracture last year and am just getting back on track. I take Copaxone injections every day (joy, joy) and am trying to stay as healthy as possible! I look forward to meeting y'all! Amy Mon, 22 Dec 2008 22:41:58 EST Hi from New Zealand I'm new to the group and want to introduce myself. <BR> <BR> I'm Lorna, been diagnosed about 5-6 years. I have fluctuated over that time, but I'm not too bad health-wise at the moment. Right now I'm really tired and need to sleep so I'll be back a little later. Hope all is well in your worlds. Mon, 8 Dec 2008 18:40:52 EST Has anyone tried any alternative treatments? I know I'm one of the lucky ones when it comes to MS. My neurologist has told me that I have such a mild case that he is reluctant to even give me a positive diagnosis. He is still sticking with the "probable MS" diagnosis. My main symptoms are optic neuritis with vertigo and muscle spasms in my legs but I am fully ambulatory (yea!) I've been on Avonex for 3 years and I am completely needle-phobic. The last time I went for an Optic Evoked Potential, he told me that my vision has actually... Sun, 7 Dec 2008 20:33:04 EST Aches and pains! The past month or so I've been having trouble with rather painful aching in my joints (shoulders, fingers, upper back, even my feet)! I've never had this before and I'm trying to determine if it's an MS thing or not. Everything feels kind of bruised and I haven't been doing any strenuous activity. It's kind of depressing because I don't feel like doing anything. I've been taking Ibuprofen and it lessens the aching some. Has anyone had this symptom before? Thu, 4 Dec 2008 22:58:05 EST My Mom has MS as well! Hey everyone! <BR> <BR> I don't have MS, but my mom does. She does get worried about putting on weight. It's difficult for her because the extra weight makes balance and mobility that much harder. However, due to her balance and mobility issues, she has a hard time moving around. She doesn't really eat very much, because she can't move enough to burn the calories off. <BR> <BR> My mom has had primary progressive MS for 14 years now. She can still walk, but she needs either a walker, 2 can... Tue, 2 Dec 2008 15:31:21 EST Depression and MS <em>40</em> <BR> Hey there everyone, it's me "Circling Girl" I changed my user name. <BR> I've been going through a spell of depression/anxiety and such. It is directly related to some terrible news I've received. To keep it short, my mother is dying. She has a terminal form of cancer and has less than 6 months to live. <BR> I'm doing all I can to cope. Including a strong faith, lots of support from friends and family and most importantly my husband. <BR> <BR> The problem I'm having is wit... Mon, 17 Nov 2008 12:07:08 EST Hi, I am New and Diag. in 2005 Hi my name is Debbie. I was diagnosed May 2, 2005. I live in North Texas. Time before last my Neurologist mentioned that it might be Primary Progressive. That was ever the only mention of this! I was using a walker before even being diagnosed with MS. I am now in a wheelchair. I am using Spark Exercise for Strength training and seated exercises and have come across some that I can hold onto the back of a chair. <em>244</em> Sat, 15 Nov 2008 21:28:46 EST My mom has MS Hi everyone, I hope you don't mind me joining the group even though I don't have MS, myself. My mom was diagnosed in 2004 and hasn't had any major symptoms. With that said she has A LOT of little syptoms, numbness, pain fatigue, etc. <BR> I'm very worried about her though, she's constantly tired and stressed (more like angry/bitter) out about her job, she doesn't eat right or take care of herself. Her doctor is really great but he seems to just precribe one thing after another and doesn't gi... Thu, 25 Sep 2008 18:02:44 EST I have ms, it doesn't have me. I am a divorced mother of two adult children. I am also a member of my local volunteer fire dept. I do fire police for them. I was diagnosed with ms in 2004. I was told it was very aggressive and it wouldn't be long before I would be in a wheelchair. But I have been fighting it with meds( currently on Tysabri), and pt and staying active with the fire dept. I'm hoping to make friends and get support in getting healthier(even if I don't lose weight, just dont want to gain) and continue w... Sun, 21 Sep 2008 23:23:54 EST Another New Member Hi there! I'm not really new to Sparkpeople, but I've just received a preliminary diagnosis of MS, and I'm a little lost about how to stay healthy at this point. Of course I want to do all the obvious things (drink my water, exercise, eat right), but what about all these steroids? And will my body get back to normal? <BR> <BR> I hope I'll find some useful discussion or encouragement from people who have gone before me! <BR> <BR> Thanks! <BR> <BR> HQ Fri, 19 Sep 2008 21:17:44 EST New to the group Hello all, I was diagnosed in May of 2005 with MS. I am new to this group and just wanted to introduce myself. I'm 30, the mother of two who are now 13 and 10 and I am finding that they don't need me so much anymore so I am learning to take care of me for the first time. Can't wait to meet and greet. Looking forward to achieving my goals and helping others achieve theirs. Fri, 12 Sep 2008 17:27:51 EST I need your help, to help others! Hi everybody, My name is Mathiese and I am a Personal Trainer. I live In Ireland, and last Friday (September 5th) I began a 10 week study on behalf of MS Ireland called "Getting the balance right", in which I will take a small group of 6 people of varying stages and ages with MS, and endeavour to give these individuals a better quality of life through exercise. <BR> <BR> The aim is to improve mobility and flexibility, and hopefully improve the execution of day to day tasks that can be so ar... Mon, 8 Sep 2008 08:42:09 EST Hi, I'm a newbie :0) Hi everyone, <BR> <BR> I was diagnosed with MS in 2006, but I did nothing about it again until 2008 after I had my daughter. In July of this past year, I went through the diagnosis steps again this time with a different neurologist and after a Lumbard Puncture, it was determined that I have MS. <BR> <BR> So, not to give you my life story, but I basically joined Spark People to help me live a healthier lifestyle, so that I can be healthy for my daughter. Fri, 22 Aug 2008 14:09:41 EST Ringtones... opinions plz SHORT STORY: I need a ringtone for injection time. Would like any and all input from rock to jazz to classical to country (not rap, sorry). <BR> <BR> LONG STORY: My phone and my PDA are my brain these days. Ye olde MS has really affected my short term memory (so says ye old spouse and so say I). Therefore, my phone is set for an alarm at 9 p.m. every night. I don't turn it off until I have taken my injection (Copaxone). I would like something more interesting than 'brrrring, brrrring' <BR> ... Mon, 11 Aug 2008 15:09:07 EST Hello everyone! This is the first time I've ever posted. I'm excited to get involved with this team! <em>213</em> Sun, 10 Aug 2008 00:41:45 EST site for Multiple Sclerosis I just received a post card for a Multiple Sclerosis site...I thought I would post it... <BR> <BR> I didn't know that the color of our "ribbon" was orange (now who picked that?) and they have some cute items for sale and the money goes to support MS <link>www, </link> Mon, 4 Aug 2008 16:11:54 EST How do you excercise with MS? What do you do for excersise? I'm having trouble getting motovated, I've done yoga in the past and plan on getting back to that, but it's the aerobic part that I'm putting off. How do you work up the energy, when energy is in such a small supply? Tue, 22 Jul 2008 09:19:28 EST