I'm glad that you are going to see a neuro, it sounds like you need a fresh evaluation. It really can take as long as two years to fully recover from brain surgery--it certainly took that long for me, and of course your life is never really the same again after going through something like that, even if you do not have deficits. Especially for the first year, I really only worked and slept--I didn't have the energy for anything else.
Sometimes people with neuro issues have trouble with NutriSweet/aspartame. It can cause brain swelling and it is a common headache trigger. If you are using that, you might want to switch to another sweetener. Even though your headaches might not be migraines per se, google migraine triggers and watch to see if any of those things might be associated with your headaches. I find that a low-tyramine diet helps me. There are certain trigger foods that don't bother me if I have them in small amounts occasionally (raisins, peanuts, soy sauce), but if I eat too much I will have a headache.
I'm 17 months from surgery, so it was quite awhile ago. I also had these headaches for 1 1/2 years BEFORE the surgery, so I'm not too sure what's going on lol
I have an appointment with a neurologist, I just don't have a date yet, so I'm not sure when that's going to happen. Hopefully he will have some pain management options, but I really don't want to have to go on some sort of prescription painkiller, if I don't have to. I know that stress of any sort-physical or emotional-makes the headaches worse, so I try to make sure I get enough sleep. I do try to stay hydrated, although that's a bit of a struggle in the winter. I've drastically reduced my caffeine intake, hoping that would help, but it hasn't really changed anything. I just need to take things one day at a time, and do what I can. :)
current weight: 156.5
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Hi Disco! I've had brain surgery too (craniotomy/clipping after a burst aneurysm) and I know that neurologists don't always have answers or cures for these things. Still, I think that since your situation has changed markedly, you should at least mention it to your doctor.
Have you thought about different pain management approaches?
How far out are you from surgery?
Do you stay well hydrated? Consistent hydration has made a huge difference for me in how many headaches I get.
I'm having a hard time being motivated to exercise. I used to be. I used to workout 5-6 days a week, running, biking, swimming, P90X, Jillian Michaels. I felt great, besides the chronic headaches I have as a result of brain surgery. A few months ago, however, the headaches started getting worse and I've been battling fatigue and digestion issues I'm getting discouraged, losing muscle mass, and my eating is slipping a bit too. I want to break out of this cycle but I don't know how. I'm only 22, by the way, and I don't think I should be physically feeling this way at my age. Any suggestions?
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