I am so sorry to hear that you are dealing with this. My husband has/had trigeminal neuralgia. He dealt with the pain for 10 years before having surgery. He had the type of surgery where they went in by his brain stem and placed a balloon/pillow type of thing in there, thus stopping the nerve's capacity to inflict any more pain.
At times, he will feel a tightening, like he is going to have the pain again, but he doesn't.
Can you switch doctors to a more sympathetic one that takes you much more seriously?
Also, please private reply me if you would like my or his email or text information.
I didn't go through it myself, but being married to my husband going through it was pretty horrible.
You are in my thoughts.
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