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IRISHINDIGO's Photo IRISHINDIGO Posts: 42
11/12/14 9:48 P

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Recently dx'ed at 49 with Hashi's. My TSH, T3 and T4 are normal but my TgAb (thyroglobulin antibodies are off the charts). My doc suspects mercury toxicity so I'm trying a few gentle chelators. I only do natural medicine so I've never been on synthroid or the like, but my numbers show it wouldn't do me any good if I took it.

Happy to meet others in the same boat. I think it's interesting that some people are finding ways to lose weight even with Hashi's......................

"For one human being to love another; that is perhaps the most difficult of all our tasks, the ultimate, the last test and proof, the work for which all other work is but preparation." ~Rainer Marie Rilke


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GOLDENAGE1's Photo GOLDENAGE1 SparkPoints: (33)
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10/14/14 6:05 P

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My mom age (61) has Hypo too and she doesn't take meds and eats like crap but has perfect blood pressure & cholesterol they told her she is healthy. She doens't have any symptoms. I have hypo & hashis and took Levo & have tried Naturthroid meds and I have been left with permanent damage, dizziness, heart palps, heart racing, hand & feet numbness, more anxiety, etc...... so I don't get what is the point of taking the meds if it will cause more harm then good? Levo causes lung cancer, heart problems and more it also makes adrenal glands worse so i am frustrated that I ever even took them. my uncle also has been on the meds for years & had lots of heart attacks & ended up with thyroid cancer had it removed. :( Does anyone's symptoms actually go away or do they get worse or do some get worse with some other added issues?

PT.JEFFGIRL's Photo PT.JEFFGIRL SparkPoints: (127,520)
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10/14/14 6:03 P

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I am and have been as long as I remember.

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10/14/14 5:53 P

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Hi just want to ask to make sure if i understand correctly...you have been on synthroid this whole time and still got thyroid cancer?

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9/22/14 10:31 A

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Been taking meds for almost 30 yrs, and it's hard to regulate the right dosage. Also, I don't think doctors get it. Twice a year I would hear the "Did you try to loose weight" sermon at my
checkups.


Housework can't kill you, but why take a chance?.....Phyllis Diller
PT.JEFFGIRL's Photo PT.JEFFGIRL SparkPoints: (127,520)
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9/22/14 10:12 A

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I have it and have for years. Take medication.

MIAMI_LILLY's Photo MIAMI_LILLY SparkPoints: (107,105)
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9/22/14 6:23 A

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I am so frustrated. My TSH numbers are all over the place lately. I've gained back 23 pounds and no matter what I do, I can't seem to drop a single pound. I refuse to give up, but when you have made that lifestyle change, exercise regularly, and try to do everything right, and the scale doesn't budge, you just want to throw in the towel.



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TRYINGHARD54's Photo TRYINGHARD54 Posts: 3,627
9/22/14 6:04 A

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I been taking thyroid med's for almost 30 years.. mine went crazy also. I lost a lot of weight.
But of course that had to be fixed. So, I know where your coming from...

I CAN DO THIS
STEELER71's Photo STEELER71 Posts: 6,090
9/22/14 5:48 A

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I was diagnosed with Hypothyroidism when I was 30 and I'm now 75 and you're right. It's a struggle to lose every pound. For a while there my thyroid went crazy and I was able to lose 114 lbs . in a very short time. Now it's back to it's sluggish self and I have to fight for every lb.



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JO88BAKO's Photo JO88BAKO SparkPoints: (178,271)
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9/21/14 8:52 P

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Yes for a couple months now. Anyone else have bad leg cramps?

Nancy from Iowa and
North Carolina

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MACARONI1960 SparkPoints: (84)
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9/21/14 7:49 P

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Hello Everyone,
I'm really new to this but after reading some posts I think I want to chime in. I'm a thyroid cancer survivor since 2005 and have been on Synthroid the whole time. The doctors keep me on a low level so if my TSH levels spike they will know the cancer may have returned.(that's what I've been told anyway) I'm also in the throes of menopause with all the fun it brings including weight gain and short, tropical, private vacations. I'm 80 pounds heavier than I was while I had my thyroid and before all the fun. I've struggled with my weight all my life and feel very frustrated. I want to tell you all I'm not feeling so alone anymore after reading your posts.
Thanks to you all!


JUST_BREATHE08's Photo JUST_BREATHE08 SparkPoints: (326,416)
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8/9/14 10:07 P

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Thanks for the info. I had no idea. I am going to talk to my Endoc. doctor.

***Cindi*** / Namaste

" Jesus Is the Reason for the Season "


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PSCHIAVONE2's Photo PSCHIAVONE2 SparkPoints: (18,903)
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8/9/14 1:35 P

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Yes and getting into shape and loosing weight is such a joy. The first time I successfully lost weight, about 25 pounds, I was treated to night sweats and muscle cramps. The kind where no one can hear you scream. Went to the doctor, not knowing that the dose was now too high. After a blood test the dosage was changed. Now I call the doctor at every 20 pounds of weight loss and it works out.

Weight is the result of what you have been doing for the past week.


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KENAMORA SparkPoints: (89,103)
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7/16/14 3:50 P

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Yes, in treatment.

STEELER71's Photo STEELER71 Posts: 6,090
7/16/14 5:30 A

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I too am Hypothyroid. I was diagnosed when I was 35 and I'm now 75 so it's a life long thing we have to live with. The doses change from time to time but popping one little pill in the morning isn't so bad. You get used to it..



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PEACEFULONE's Photo PEACEFULONE SparkPoints: (73,063)
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7/16/14 2:27 A

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This book has some good information: "Hypothyroidism Type 2: The Epidemic" by Dr. Mark Starr.

"For I know the plans I have for you," declares the Lord, "Plans to prosper you and
not to harm you, plans to give you hope and a future." Jeremiah 29:11
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7/16/14 12:00 A

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Yes just found out

Nancy from Iowa and
North Carolina

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Proud member of Onyx Outlaws BLC15, BLC 16, BLC 17
Proud co-captain of Onyx Outlaws BLC 18, BLC 19
BLC 20, BLC 21, BLC 22
, BLC23 BLC 24




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SIOL55 SparkPoints: (56,253)
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7/15/14 6:56 P

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yes



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PSALMSTRESS Posts: 1
7/15/14 6:14 P

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Was just diagnosed myself less than a month ago and am also more than a little freaked out. The more I read about the thyroid the more sleep I lose in that it appears to affect every bodily function. It sounds like you have a doctor a bit more informed than my own. I can already tell I will be working to find an endocronologist in time to work with as mine just prescribed 1 thing and told me to come back in 3 months for another blood test and my levels were over 24. Keep educating yourself we are obviously not alone

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7/4/14 6:18 A

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no

CYNTHIAHOSEPH SparkPoints: (9)
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7/4/14 1:49 A

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I was diagnosis with Hypothyroidism about 3 yrs ago and I've gained a total of 30 lbs. I have all the regular symptoms however this weight gain is the worse. I've decided to get serious with my life and lose the weight. It isn't easy but now I am at the gym at least 4x a week and watching what I eat. It's been about 3 weeks and I've gained 2 lbs. WHAT THE H---.??? I went crazy. After that the Dr. increase my dose .Don't want another scene like that again. Also taking Thyroid Helper.

KELLEYBOO50 SparkPoints: (16,171)
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5/11/14 4:05 P

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I have been taking levothyroxin for about 7 or 8 years and I also will have to take it for life.

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5/11/14 3:51 P

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I have been taking Levothyroxine for around 20 years. Hypothyroidism runs in the
females in my family. Never had any of the associated symptoms. A routine blood test showed my levels were off. As for me, I will need to take the meds for life.


Housework can't kill you, but why take a chance?.....Phyllis Diller
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5/11/14 2:35 P

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I just learned 5/5/2014 that I have Hypothyroid. I am a little freaked out. Overwhelmed. AM I right/wrong/crazy to be so overwhelmed? I know it is manageable and am only on day6 of meds. Levothyroxine, a very low dose for 14 days and then to the next level plus she started me on Prednisone which I am on the last day of. I am honestly freaked out because there is so much that went downhill with my health and I thought I was crazy. Now adjusting to the meds I feel better on some levels but out of my mind on others. Am I right that this is serious enough to be concerned about? I mean, it is life long, right? Once they find it and you have to change things to get better. Am I overreacting? I just want to know it is OK that I am so freaked out now? My doc told me what she could but where to I go for the most detailed info to know that what I am experiencing emotionally, physically, etc., is OK? I think my husband might think I am overreacting but it is life changing.

Jane aka Mamaford2




"If worry were an effective weight-loss program, women would be invisible." — Nancy Drew.



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BSIMMS99's Photo BSIMMS99 SparkPoints: (212)
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4/24/14 12:47 P

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Just joined Spark People today and have been eagerly reading posts. Can someone re-post the link to the article about hypothyroidism? I have seen thus mentioned in a few posts, but can not find a link. I did read the only article I found on Spark People about the condition, but it was not as specific regarding diet as I would like. Thanks!



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4/24/14 12:41 P

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I started Hyman's Blood Sugar Solution in mid-January. Lost 14 pound in 10 weeks. Decided to try his 10-Day Detox in hopes that weight loss might be quicker. However I only list 4 pounds, despite continuing with the Detox an additional 20 days. I suspect that my body needs some of the whole grains, legumes that the Detox does not allow. The problem I have now is that I am hesitant to go back to the Blood Sugar Solution plan because I FEEL so much better on the Detox diet! Sleeping great for the first time in years, for example.



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JUST_BREATHE08's Photo JUST_BREATHE08 SparkPoints: (326,416)
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4/15/14 11:33 P

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emoticon info & advice everyone! emoticon

***Cindi*** / Namaste

" Jesus Is the Reason for the Season "


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IKAUFMAN SparkPoints: (1,139)
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4/15/14 10:58 P

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You should be OK eating foods with calcium and iron while on Synthroid - just move those foods to lunch time, so your body has a chance to absorb the medication. I find having a lunch type meal for breakfast makes it easier to create a meal plan that works and does not leave me searching for what I can eat. So while I may have a vegetable omelet, I may also have soup with rice noodles or brown rice and lentils with mushrooms for example

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4/15/14 10:53 P

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Being gluten-free can help reduce fatigue, joint aches and feeling 'fuzzy-headed' as well. It's work, but worth it. Luckily, there are more and more gluten-free products becoming available; just be sure to check sugar content on them, as it can sometimes be high.

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3/30/14 2:43 P

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Hi! New hear. Diagnosed as hypothyroid 3 wks ago. TSH gradually was increasing over the last 4-5 years and latest result was 5.7. Am starting with low dose levothyroxine and would like to get this weight off and feel better. I used to weigh 130's after my kids but now up to 180 and feeling terrible-tired, hunger cravings, bloated. Also have had weird menstrual cycles for the last 3 months with heavy bleeding, so was put on Junel (low dose BCP). Was taking thyroid med at night but it makes me extremely sleepy during afternoon. I am going to change it to afternoon to see if this makes a difference.



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EXOTEC's Photo EXOTEC Posts: 3,327
3/30/14 10:30 A

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Thanks for the recommendation to the vitiligo site. I'll definitely check it.

TCM is getting better support in this country these days. I wish I could find a practitioner locally. Of course, we have a great *veterinary* practitioner who hosts classes and things, but he can't touch humans (officially). I've got an appointment with a Functional Medicine practitioner next week, which is about as close as I'm likely to get to TCM here. I'm hoping, anyway.

I'd love to ask what therapy your doctor recommended for you - but TCM isn't like our medicine, in which you can give the same thing to several people and expect similar results. Your medicine is formulated specifically for each individual. I'm curious, but I know I can't just apply that to my case, unfortunately!

...the problem with people these days is
they've forgotten we're really just animals ...
(attributation forgotten)

We did not create the web of life; we are but a strand in it.
~attributed to Chief Seattle

We don't have souls. We ARE souls. We have bodies.
~C.S. Lewis


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SUZIPAM1's Photo SUZIPAM1 Posts: 1,464
3/30/14 9:25 A

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Has anyone had any luck with a gluten free diet - I am doing the hypothydroidism eating plan now and this says no gluten which makes me much less bloated then i have been. Id like to know how you all eat and if you feel this helps



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JESSICA608's Photo JESSICA608 Posts: 10
3/20/14 8:07 A

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I was diagnosed with hashimotos 5 years ago. My weight and aches have been on a steady rise since then. I am currently on 88 macs of levothyroxine. I have aweful digestive issues. Any suggestions would be greatly appreciated.
I am self pay so I have avoided the endocrinologist and am working with my family physician.





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2/20/14 2:57 A

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I suffer from vitligo when I was very young ,my parents went to doctors in many places with the hope of curing me of the disease. However, my conditions did not get any better despite the expense of a lot of money. They decided to have a try and took me to a Chinese hospital. The affected sites on my body had improved significantly in less than a month. After reinforcement treatment of experts, I have completely recuperated my health and I have become cheerful. I would like to share this with you, hope it will help your son,you can talk to their doctors on the website of vitiligotcm.

BATTLEFIRE SparkPoints: (10,927)
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2/19/14 12:11 A

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I happen to have absurdly high levels of antibodies against my thyroid (anti-TPO I believe it is called). My doctors believe those antibodies are really detrimental, and I've tried various things to get them down. (A medical study found that gluten free worked well to bring antibodies down for some significant percentage of folks with Hashi; as does taking selenium. Neither has worked for me.) I stay away from Armour out of concern that it will increase the antibodies. The notion is that if the pig thyroid is close enough to the human thyroid (it must be somewhat close since it works as a replacement), my body will create even more antibodies to fight that thyroid. I haven't been able to find any studies on this particular aspect of Armour. Just thought I would mention it in case anyone else is focusing on getting their antibodies down.

STEELER71's Photo STEELER71 Posts: 6,090
2/11/14 4:44 A

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I was diagnosed in 1975 and losing weight has been a struggle for me too. I'm at goal weight now but without exercise and strict dieting I would never have made it. Don't give up. You can do it inspite of a lazy thyroid.



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2/11/14 3:33 A

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I suffered from same problem too, but I was cured now. It was bad, and makes me very unhappy. I live in China. Here we use Traditional Chinese Medicine to treat skin problems, I went to many hospitals like this and tried many different treatments, but the effect is not very good until I went to a hospital in the North of China. It works, and now I am a happy person again, I am glad to share this with you, you may not able to go there, but you can talk to their doctors for advice. you can find more information on the website of vitiligotcm com

EXOTEC's Photo EXOTEC Posts: 3,327
12/4/13 2:13 P

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I have an autoimmune condition which has been associated with hypothyroid.
I see a houseful of specialists... one of which is an endocrinologist. He's put us on his standard diet and I'm also on levothyroxine (5 mcg once a day).
My T4s and TSH have been within my lab's reference ranges, but my Total T3 is only in the 0.3 range. I have many of the symptoms of hypothyroidism, but those overlap with my other autoimmune symptoms, so it's hard to know the true source.
When I queried him about iodine supplementation, he very quickly said, "no! that will mess you up!" So now I'm at a loss. He does his labs in-house, so it might behoove me to request a more comprehensive panel from a commercial/reference lab to assay thyroid function. My PCP is pretty good about ordering whatever tests I ask for. We'll see.

Endocrinology is one of those topics which strikes fear and special caution in my heart! I was raised in a medical family, and spent my career in an allied health field, so I've had the usual training in the subject... but that was just enough for me to know how very fouled up we can make ourselves by fiddling about with hormones. The endocrine system is replete with feedback loops and metabolic interactions - if you get one thing out of balance, everything else goes right to h*ll in the same handbasket.

I would strongly encourage anyone with confusion or questions about thyroid and any other endocrine matters to rely on your endocrinologist! If you need a second opinion, don't hesitate to get it.
My rheumatologist is my primary proponent in my autoimmune disease, and I intend to bring my concerns about thyroid to him as well, since thyroid disease is also considered autoimmune - a rheumatologist's specialty.

To comment on some other members' remarks here...

Someone said not to take Synthroid™ with calcium or iron... my first thought wasn't in what not to eat so you can take the med, but when to change the scheduling of that med. I see someone else addressed that later in the comments here, though.

Thank you to whoever posted that nice link to the thyroid article! In there it mentioned that *fermented* soy is okay - it's just the (so-called) "healthy" soy that we're continually being pressed toward that's the problem. I use soy - Kikkoman™, which is fermented... and you can also use a product called "coconut aminos" which taste just like soy. You don't have to give up your soy! I love mine, too.

Any autoimmune condition is exacerbated by inflammation. Some people don't recognize this as a health issue - they feel that so long as they have no digestive disturbances, everything is fine. Inflammatory processes (such as leaky gut) manifest in many ways - and most of them *not* digestive. We, in the autoimmune community, know this. In that light, carbs can be very contributory to inflammation.
Our endocrinologist's "special diet" is restricted carb... he uses it for all his patients - most of whom are diabetic, but many who are simply "metabolically deranged" (his term, but I love it! haha). We're admonished strongly toward real, whole foods; nothing processed. Referencing the article posted again, some veggies are notably inflammatory: I can't touch cruciferous (cabbage-family) veggies. Just try to do low-carb without broccoli and cauliflower! sheesh And, when you're reducing your carbs, you ABSOLUTELY MUST NOT reduce fats! Healthy fats (and yes, I do mean saturated and animal fats) are *not* evil or unhealthy. If you're hungry, don't load up on protein (which simply gets converted to glucose when eaten in excess anyway). Add fats. Real butter, whole dairy, real whole eggs (and get rid of those whites and cartonized things!). Eat the chicken skin! Enjoy marbled meats; if you can get them grass-finished you're better off due to the omega ratio, but unless you're eating nothing *but* those meats, it shouldn't be too bad (so long as you ditch all the other processed junk).

To the OP - yes, I think you need a second opinion, since you have questions. It would probably be beneficial to do all the online research (of reliable and reputable sites) that you can so that you will be able to ask the right questions and understand the answers you're given.
Healthcare is different now from what it once was. We have to be partners with our healthcare teams to achieve good health. But while it's a bit more difficult, I prefer to have some responsibility, rather than to just abandon myself to fate.

Good luck to you - I hope you'll post again when you get some answers. We'll all benefit from that!


...the problem with people these days is
they've forgotten we're really just animals ...
(attributation forgotten)

We did not create the web of life; we are but a strand in it.
~attributed to Chief Seattle

We don't have souls. We ARE souls. We have bodies.
~C.S. Lewis


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SWS4618 SparkPoints: (20)
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12/3/13 10:08 P

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Not sure if any of you have experienced this, but I went in to see a new doctor the other week due to an extreme amount of fatigue I was experiencing (among quite a few other things). She ran quite a few tests on me, including a few to check my thyroid. When my test results came in, she said everything was normal. The problem is that she told me my T3 level was 31, and when I went online to check normal T3 levels it said they are between 80-200. Is my T3 level something I should get checked out by another doctor? It just seems odd to me that she would say everything was normal, when that level seems so low compared to what is considered an acceptable level. Thanks in advance for all of your help!!

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7/12/13 12:52 P

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I just noticed there is a note on my prescription bottle of Synthroid warning not to take antacids or products containing calcium or iron within 4 hours of taking this medication. What is a good breakfast choice? Everything I eat in the morning has calcium and iron :(

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6/25/13 9:53 P

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I'm not sure if this is the right group topic, but I am on 45 mg of armour for about 3 months now, I was on levothyroxine for over 5 yrs 50mcg. The problem I'm having is hunger I have gained 4 pounds in 3 months I have hunger pains and wan carbs, which I normally do not eat. My doctor said my labs were good six weeks into it. Also my hair started to fall out again in the past few weeks. I'm feel tired agin. In the beginning I felt great now not so much. How do you know if you are on a dose that is to low or to high. Help


SINAED SparkPoints: (14,583)
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6/4/13 12:34 A

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i have hashimotoes hypothyroidism......and yes i did gain alot of weight for me. however i have lost the weight now. for me it was the case of giving up bread and pasta. i have learned some carbohydrate foods are good for u whilst others u should avoid like the plague. i have a low fat diet however i supplement it by taking krill oil tablets once a day. i steam my fish and chicken and grill lean meat to minimise excess fat plus eat lots of veggies and fruit. seafood is a great way of getting iodine in your diet. as iodine helps the thyroid produce the hormones u need for your body. i don't take an iodine supplement because too much iodine can cause medical problems in your body. the most important thing is to exercise even if its only walking for an hour every day

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5/28/13 1:34 A

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I have Hashimotos/hypothyroid.

We have Great Pyrenees twins who are aged 6 now. About 3 years ago, one of them began to gain a lot of weight and would hardly move. You could tell moving was hard for him. He got so heavy that fat folds were making it hard for him to see. Both dogs live on 5 acres with our horses. We monitor their food carefully.

We had his thyroid tested and he was hypothyroid. He was put on meds and he quickly lost weight, gained energy, and now he's as active and fit as his brother. Amazing!


***Marilyn***
in far west Texas (MST)
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5/27/13 9:24 P

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I'm not, but our almost 6 year old cocker spaniel is. I have to give her .2 mg thyroxine 2 x a day. Easy to get a dog to take her medicine with a dolop of peanut butter in a small piece of whole wheat bread folded over it. emoticon

BARB12321's Photo BARB12321 Posts: 376
5/27/13 6:07 P

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Yep, me too. All the females in my mother's family have it. Though I've been prescribed Synthroid, I don't use it. I use Standard Process's Thytrophin PMG.



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LASTDANCE89143's Photo LASTDANCE89143 Posts: 67
5/27/13 1:16 P

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Took years for doctors to determine I had hypothyroidism and now on medication. Even with the medication it was a constant struggle to lose weight. I just recently started the Virgin diet and lost 7 pounds the first week and was thrilled. I did cheat over the holiday weekend and paid the price, gained 3 pounds back. Basically inflammation, but holiday over and I'm right back at it to finish the program. Don't know how much it will work for anyone else but may be worth your time to see if you have an intolerance to these 7 foods or GMO's. I'm excited to get back on track and see where it leads.

Everyone have a great 1st day to the rest of your life. Everyday is a new beginning, Believe In Yourself!

Sheryl
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CITYGIRL811 Posts: 12
5/9/13 6:49 P

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I've been in the club for over 10 years. Found out by accident after getting chronic hives. My TSH at the onset was fine. It wasn't until the allergist did deeper testing for the hives that she found I had Hashimoto's. After being on prednisone and other meds for many years and gaining lots of weight, not being able to go to the gym because it would bring on hives when I overheated I can say I am now stabilized. I also read everything I can get my hands on about Hashimoto's & hypothyroidism. Because of the hives I stay away from tomatoes, nuts, chocolate and alcohol. They are all triggers, not actual allergens. I'm careful about what I eat and I go to the gym 3 days a week. I too as someone posted find that it is the strength training that really does the trick for me. It adds muscle that not only burns calories but it helps to reshape your body.

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5/9/13 5:26 P

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I have this for a long, long time. I do take medication.

VELVETMERLIN's Photo VELVETMERLIN Posts: 229
5/9/13 5:21 P

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FLORIDALAURA-no problem! I hope you do see the results that you are looking for :)

Sometimes the way I write can come across the wrong way. I apologize if I offend anyone. I also have a habit of writing LOOOOOOOONG posts. Again, my apologies.


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FLORIDALAURA's Photo FLORIDALAURA Posts: 6
5/9/13 3:07 P

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velvetmerlin...thank you for the tip on strength training. I do tend to do more cardio and have not seen the results I was hoping for. I will give it a shot and add more time on the strength machines and free weights.
I also read about the fiber being so beneficial.. I added psyllium husk supplements to my list of daily vitamins. I also get lots of fiber in fresh veggies and some fruits!




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VELVETMERLIN's Photo VELVETMERLIN Posts: 229
5/9/13 2:55 P

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I haven't read all the posts since there are so many, so please forgive me if this has been said.

I have had it for at least 25 years, maybe longer. I am not currently on any medication for a variety of reasons, but experts recommend getting 35-40 grams of fiber per day and focus more on strength training than aerobic exercise. You can walk until you are blue in the face, but strength training actually helps the weight loss a lot more for people with hypothyroidism (I'm not dissing walking, BTW-I love to walk!). I have definitely noticed this. If I don't do any strength straining and get low fiber, nothing; it's almost immediate (it shows the next day on the scale, usually) when I actually do it and get a lot of fiber. It does come off slower than normal, but it does come off. Right now I am managing about 1 pound every 11 days; part of that is because I have been slacking a little bit. When I was right on it, eating nothing but healthy food and strength training every one to two days, I can average 8 pounds per month.

I was reading Mary Shomon's Thyroid Diet and although informative, I find the diet to be too restrictive. Everything I like to eat is not supposed to be eaten with a low thyroid, and I'm still experimenting with alternative foods to replace the ones you shouldn't eat (radishes, potatoes, chocolate, caffeine, just to name a few).

Our new boarder is trying to convince me that if I try the Raw Diet, the weight should come off easily-supposedly she lost 100 pounds in 2 months (gained it back and then some though)-and it should help the thyroid (she doesn't really get it). One, I REFUSE to try anything that drastic and two, um....just...no. I can't do restrictive diets-after 3 days I will eat everything in the house.

Sorry to ramble. Anyway, that's what I heard! I think it was in Mary Shomon's book, too; can't remember.

Sometimes the way I write can come across the wrong way. I apologize if I offend anyone. I also have a habit of writing LOOOOOOOONG posts. Again, my apologies.


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SHRIMPY55's Photo SHRIMPY55 Posts: 69
5/9/13 2:52 P

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I am getting increasingly frustrated as the scale lingers in the same spot, week after week after week.
I am doing something wrong that others are doing right. I follow a low fat, lower carb, not low carb eating plan. I eat the balance suggested on this site, and everyday, my numbers of calories protein fat etc are good.
I get exercise every single day. I drink enough. My meds are great and have me in a good spot. It isn't any of that. But somewhere I am missing a piece of this puzzle.
What kind of plan are you all following and losing weight. Because I need help here.
Chris






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BSCHWARTZ's Photo BSCHWARTZ Posts: 1,195
5/9/13 11:49 A

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Yeah, I'm reading the same book! That is where I got my info.....re receptor sites that receive the Thyroid hormones not functioning properly.
Iam always trying to read and understand so that I may better help myself. It is v confusing.

Whatever you can do or dream you can, begin it.
Boldness has genius,power and magic in it. Begin it now!
Goethe


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FLORIDALAURA's Photo FLORIDALAURA Posts: 6
5/8/13 1:30 P

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Thank you!



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5/7/13 8:41 P

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Sometimes the usual test is not thorough enough, need to ask doctor for more extensive tests or go to a specialist, like if you might have Hashimotos, that doesn't come out in standard tests.

Plan for tomorrow, but enjoy the heck out of today.


STARTINGOVER62 Posts: 8
5/7/13 7:18 P

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I am not sure if anyone is on this, but I did notice (along with myself) how all of our readings fall into the normal range, but yet we still have some or all of the symptoms. I recently purchased a book for my android called, "Why Do I Still Have Thyroid Symptoms? When My Tests Are Normal." I have been doing a lot of research and am realizing that the thyroid is just one of many symptoms of an auto immune disease. I hope this added information helps.




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5/6/13 6:10 P

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nope!

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5/6/13 4:49 P

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I just found out less than 2 weeks I am have hypothyroid. I was told mine was probably caused by being on chemo for so long. (I have on chemo since April 2010 for stage IV breast cancer.)
My oncologist checked my thyroid because I have been more fatigued than usual. I was already tired from anemia, but it felt like the fatigue was getting worse.

I just started on Synthroid, I haven't been on it for even 2 weeks yet, so it's too early to tell if it will make me start feeling better.

I've also live with chronic pain, and I have noticed in the past few months, my pain seems to be worse, I am wondering if a hypothyroid can make joint pain worse?


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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BSCHWARTZ's Photo BSCHWARTZ Posts: 1,195
5/6/13 4:41 P

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I have not yet joined this group but I have Hashimoto's. I am not yet on any meds because my TSH and free T3 & T4 results were in the normal range around 6 months ago. The endo group at my local hospital would not take me. From reading, i decided to become Gluten free, and from another member's suggestion i take .5 brazil nut for selenium and chlorella powder.
I am starting to feel supremely discouraged as my wgt has not shifted.
I have been reading about the need to check TH1 and TH2.....I don't know if this helps Laura but here is one DR's explanation about still experiencing symptoms while on synthroid.

Your immune system
communicates through little proteins called cytokines. Well, the
cytokines that cause your immune system to attack and chew up your
thyroid gland also block thyroid receptor sites.

In order for the thyroid hormone to work it must bind to a cell and
cause a metabolic change inside the cell. Because of the autoimmune
attack, your cells can't respond to thyroid hormones, real or
synthetic. This means that even though your labs can show that you
have a normal level of hormones circulating in your blood, you still
won't get the effect of the thyroid hormones.
Hope that this helps to explain.
BethLynn

Whatever you can do or dream you can, begin it.
Boldness has genius,power and magic in it. Begin it now!
Goethe


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FLORIDALAURA's Photo FLORIDALAURA Posts: 6
4/22/13 8:29 A

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You're welcome!



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ROOTIHAUSMAN's Photo ROOTIHAUSMAN SparkPoints: (126,605)
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4/19/13 5:32 P

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yep



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THEMEOF79's Photo THEMEOF79 SparkPoints: (16,469)
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4/19/13 2:25 P

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Thank You FLORIDALAURA!!

FLORIDALAURA's Photo FLORIDALAURA Posts: 6
4/19/13 12:19 P

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If this thread is still active, I found a great website with tons of info I found helpful...thought I would share
www.cncahealth.com/health-info/general/thy
roid-health-nutrition.htm




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4/18/13 3:08 P

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I don't have that but I sometimes think they misdiagnosis me when I did test for it. I have a lot of the symptoms. I am glad I don't, it's hard.

SPARKERS ROCK!!!!


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FLORIDALAURA's Photo FLORIDALAURA Posts: 6
4/18/13 3:04 P

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I wanted to introduce myself after reading many of the previous pages, going back to 2006 I believe on this thread.
My name is Laura and I was diagnosed with Hashimotos disease in 2011 I gained about 20 pounds before being put on 88mcg of synthroid after my "hyperthyroid" symptoms stopped. (heart palpitations, etc) Once my meds were started I was able to lose 10 pounds but I have not lost any more since.
Last month I joined a gym and have been going 4-5 times a week for 1.5 hours each time, mixing treadmill with strength training. I have also changed my diet to max 1500 calories a day, all from veggies, fruits, occasional whole grains and lean proteins. I have upped my water intake to 125-175 oz a day. With all of that said I have not lost a pound, I actually gained a few, which I know when building muscle you may gain, and I am ok with that, but I look so bloated and feel miserable. In the last 2 weeks I have noticed my hair was beginning to fall out again and I am exhausted. Almost like before I was given synthroid. I just had my endo appt in Feb and all my numbers looked great, but here it is not even 8 weeks later and I feel terrible.
I was proactive today and called the endo office, hoping they might just put me on the next higher dosage and see how I do, if not I will request new blood work and appt.

Has this happened to anyone before....going along all great and wham it starts again, the hair loss, the extreme fatigue the weight gain and the bloated feeling?

Hope I didnt rattle on too much...thanks in advance for any suggestions or help!!!

Edited by: FLORIDALAURA at: 4/18/2013 (15:06)

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4/16/13 10:57 P

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yes



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4/16/13 10:11 P

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Just started taking Levothyroxine over a week ago, and will check back with the doctor in 2 weeks. Used to take Levoxl or something like that 8 yrs. ago, but I quit taking it after I lost weight and it was making me cold and nervous.

Plan for tomorrow, but enjoy the heck out of today.


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4/16/13 9:34 P

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I was diagnosed over 10yrs ago with Graves Disease. Its been a roller coaster! I have had my medication up'd quite a few times I'm now on the 3rd or 4th highest dose from the top of the list and for two yrs this has finally been under control. Although dieting is not an easy task when you have this. It takes twice as long and twice as much work just to lose a lb. in a week but I continue to push. I've gone through the radioactive iodine therapy as well...every day is a struggle from pushing to lose weight, to hair falling out to finally having to get my eyebrows tattoo b/c my eyebrow hair fell out! but with the right meds and a great dr. I finally have it under control!

Our greatest weakness lies in giving up. The most certain way to succeed is always to try just one more time.


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4/15/13 3:15 P

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See your Dr., and explain your circumstances. There will be a way to get the meds you need. I don't think you can mess around with thyroid. It affects so many aspects and one by one, you're going to feel like you're falling apart. I've been on thyroid meds for hypo for probably 18 years. My Dr. said it's a for life medication.

Edited by: 16TREES at: 4/15/2013 (15:26)
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4/15/13 2:46 P

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I joined (involuntarily) the Hashimoto's club many years ago and this team a few weeks ago and thought I'd stop by to introduce myself. Howdy everybody!


***Marilyn***
in far west Texas (MST)
SHRIMPY55's Photo SHRIMPY55 Posts: 69
4/15/13 2:41 P

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Hello everyone, so happy to have found this group and others who are struggling along. I have had thyroid issues for too many years to count, having Hashimoto's as well as several nodules that were biopsied and measured more times than I can count. I know I am struggling with weight loss and wish everyone else here success, and hope I can be successful too.
Chris



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CLEASHEFSK Posts: 1
3/30/13 10:45 A

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Hello, I just wanted to clarify that you aren't taking any thyroid medication?

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2/14/13 7:57 A

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I wondered if I had Hypothyroidism b/c of my symptoms (sore feet first thing in the a.m., sore neck, sore/burning tongue)- although my symptoms have improved SLOWLY, but my doc says no (after testing me). I am border-line anemic and tested low for vitamin D also. I am taking supplements now and my doc wants to do blood work again in 3 months. Hate feeling sore and fatigued! It can be so debilitating.



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2/14/13 3:32 A

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Hi I just stumbled along Sparkpeople whilst researching Hypothyroidism meal plans. About a week ago I found out that I had it. It explains a lot of why I am the way I am today. I have been taking my meds for a week now so I know I won't really see any results for about a month I am told. I am sort of at a lost as I really have to rethink what I put into my mouth. I began the year with a combination of Reboot and Clean Eating and when I struggle to stay vertical for more then five minutes to complete the dishes or collapse when I made the kids lunches I thought I was being punished for eating so healthily. So I took myself to the doctor and he did a blood test for me and it confirmed my thyroid was under active so he did another one to confirm it was actually hypothyroidism and not something else.
This weekend I plan on taking a harden up pill and clean out my fridge and pantry while the kids are at their fathers house. I will miss my soy sauce and rye bread and pretty much everything with gluten in it. Won't miss Broccoli will miss strawberries as they are a core ingredient in my protein shakes. Lucky my protein powder is whey based and has no soy in it or gluten. I don't want to look up if Raspberries are goitrogens because they are my most favoured fruit I love love love.
Enough of what I will miss, and a bit more about me. I live with my three children a boy and two girls 7, 5, and 3 in April in Western Australia. I run a doTERRA essential oil business called Oils of Nature and believe in healing naturally. No pill is really going to have any long term effect. Struggling right now with stress, fatigue and muscle pain in my legs but will attempt to walk my kids to school as exercise apparently takes away fatigue....(I say this trying to make myself believe it) I think keeping busy is a key there so you don't notice it so much until your head hits the pillow at night. Okay so that is the end of my ramblings any points would be great as I have know idea where to start. Thanks and merry meet all :)

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Hi Erin! It is good to here from you. Happy that things are okay with you. Thank you for the birthday wishes. It was a good one!

Hope you have a very Merry Christmas and a Blessed New Year!!

emoticon emoticon emoticon emoticon

Edited by: JUST_BREATHE08 at: 12/21/2012 (01:05)
***Cindi*** / Namaste

" Jesus Is the Reason for the Season "


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