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Blogs by Members of Ehlers-Danlos (EDS) and Hypermobility Syndrome

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  • The Affordable Care Act isn't very affordable

    11/12/2014 5:48:16 PM, by ANDILH

    I believe everyone should be able to go to doctor. Everyone should have health care. I've always believed that. Every person deserves to be tr... Read more

  • Sometimes people annoy me

    11/7/2014 9:21:59 PM, by ANDILH

    Several weeks ago my sister broke her foot during a seizure while I was transferring her from her wheelchair to my car. She broke the same foot ... Read more

  • Sorry For My Absence

    10/26/2014 4:53:05 PM, by LADYJEZEBEL

    I have been going through a lot lately. I have been having troubles with my heart racing for a few years now, and it keeps progressing as time go... Read more

  • 365 ~ 10/14/14 ~ 359 ~ 1 Week to go!

    10/14/2014 6:14:09 PM, by ALMYEARTHLYBEST

    365 ~ 10/14/14 ~ 359 52 days since my last blog! I am wrapping up 365 days of "something" in the next week. What a disappointment! ... Read more

  • A frustrating end to a bad week

    10/10/2014 10:04:01 PM, by ANDILH

    Several times a year I get a flare up in my back that Pilates just can't get rid of. This is one of those times. I haven't had an awful flare u... Read more

  • Lessons in Surprising Places

    9/19/2014 11:29:35 AM, by ANDILH

    Sometimes the lessons we have in life don't appear to us immediately. It's happened to me recently. I realized that the time I spent with sever... Read more

  • Progress

    9/9/2014 2:30:38 PM, by VEG954

    I finally got clearance from my doctor for surgery! Will have the minor surgery Thursday morning. Just drinking liquids today and tomorrow... Read more

  • High Energy

    9/8/2014 6:25:49 PM, by VEG954

    Thought I would be kind of tired after such a busy day yesterday. Not! Had left over coffee from last night's get together. Heated it up and... Read more

  • Weight

    9/7/2014 3:48:07 PM, by VEG954

    Got on the scale as usual this morning and was in for a big surprise. Started this journey... Read more

  • Allergy attack

    9/6/2014 6:42:13 PM, by VEG954

    Woke up this morning in a great mood. That lasted for about an hour and then started itching. Tried the topical stuff with no success. The ... Read more

  • Survived a Busy Day

    9/5/2014 10:28:37 PM, by VEG954

    Yesterday I was complaining about today being a busy day. What did I learn? It doesn't pay to obsess about a to do list. Accomplished most ... Read more

  • Just Another Day

    9/4/2014 11:02:45 PM, by VEG954

    Had a friend over for tea this morning. we had a nice visit. Decided to dig into the paperwork. Started to resolve insurance problem and got... Read more

  • Waiting Game

    9/3/2014 10:47:15 PM, by VEG954

    Went for lab work today. 8 vials! Should know the kidney disease results by Monday. That means I am playing the waiting game. Don't pla... Read more

  • Reality (maybe)

    9/2/2014 10:38:13 PM, by VEG954

    Worked this morning and, as always, enjoyed it tons! Saw the Nephrologist this afternoon. He spent over 2 hours with me and asked tons of ... Read more

  • Walked at the mall!

    9/1/2014 7:31:52 PM, by VEG954

    Way too warm to walk outside today so I went to the mall to walk. All I wanted to do is simply walk in the mall... Not spend any $$$. That d... Read more

  • Nice Time

    8/31/2014 9:01:23 PM, by VEG954

    I have a lot of friends who love to celebrate birthdays/anniversaries by getting together and eating. We met for breakfast today at a greasy ... Read more

  • Not Everything Is Worthy of a GoFundMe

    8/31/2014 2:44:24 PM, by ANDILH

    Maybe this is me being judgmental, but I don't care. I belong to several message broad groups and email groups that revolve around the disease m... Read more

  • Love!

    8/30/2014 9:19:26 PM, by VEG954

    Spoke to my family in Germany today. I see them two or three times a year. That just isn't enough for me. My Granddaughters are growing ... Read more

  • Great day today

    8/29/2014 8:35:05 PM, by VEG954

    There was nothing special happening today and that is what made it a great day. Woke up at 3 am and didn't go back to sleep. I had enough slee... Read more

  • Oh No

    8/28/2014 10:55:53 PM, by VEG954

    My doctor called and wanted me in for more labs again. Looks like I have Hyponatremia again. That means there isn't enough sodium in my blood... Read more

  • Lazy Day

    8/27/2014 11:01:29 PM, by VEG954

    Today was one of those days I was glad to be retired and not much to do. This has been a tired day for me. No energy for anything. I have... Read more

  • Oh! The Tummy!

    8/26/2014 5:36:44 PM, by VEG954

    Didn't blog yesterday because of tummy pain. Hate to be a constant complainer. Just really want to suffer in silence. That, for me, is isol... Read more

  • What can I say?

    8/24/2014 11:18:00 PM, by VEG954

    Awakened to go meat shopping early. Bought lot of chicken leg quarters and wings. Went to a great meeting this morning and then to the mon... Read more

  • Easy day

    8/23/2014 8:25:15 PM, by VEG954

    Did a lot of things today and enjoyed the whole day. Trimmed the hedges in the front sprayed outside plants for bugs Did a massage str... Read more

  • Don't believe me!

    8/23/2014 10:48:36 AM, by ALMYEARTHLYBEST

    365 ~ 08/23/14 ~ 308 Almost 200 days since my last SP blog! Yes, I'm bummed about that! My struggle with being consistent at ... Read more

  • Had a busy day

    8/22/2014 8:21:25 PM, by VEG954

    Today was a rewarding day for me. I did two massages and earned some much needed money. Met a friend at a cabinet shop and helped her pi... Read more

  • Did better today with KETOing

    8/21/2014 8:42:42 PM, by VEG954

    I am still at a loss as to how to balance the carbs, protein and fats. Can do well with carbs as long as I eat no produce. Protein count is s... Read more

  • Not KETOing!

    8/20/2014 5:30:25 PM, by VEG954

    I was living under the illusion that I was in Ketosis. Was way, way off! Still a little confused about how to eat high fat, low carb/protein ... Read more

  • The day is over

    8/19/2014 10:25:17 PM, by VEG954

    Almost bedtime! Had a test at the Gastro docs office today. Not fun and glad it is over. The results weren't good nor devastatin... Read more

  • Busy Day

    8/18/2014 9:13:09 PM, by VEG954

    My to do list is done! I loaded the car with boxes to be donated. Made several trips and between packing, loading, unloading a few calories w... Read more

  • Great Day

    8/17/2014 9:52:46 PM, by VEG954

    Something must be wrong! Have been having one great day after another! Please pinch me! I must be dreaming. I did nothing special. Just e... Read more

  • Beached Whale Syndrome

    8/16/2014 7:05:25 PM, by VEG954

    Hi Sparkers I went to a friend's 75th birthday party today. Decided before going I was going to go off KETO diet and enjoy some of the foo... Read more

  • Half the coffee

    8/15/2014 8:20:19 PM, by VEG954

    Didn't want to be the energizer bunny on steroids today! I made a regular size coffee with whipping cream (KETOing) this morning. Not a doubl... Read more

  • Planned a rest day

    8/14/2014 7:28:58 PM, by VEG954

    Didn't happen! Have gained a few pounds lately and decided to have some Keto coffee this morning. Really make a STRONG, double coffee. ... Read more

  • Not Much

    8/13/2014 10:49:36 PM, by VEG954

    Not really much to blog about. Spent the day making up for a sleepless night. My foot was on fire last night and couldn't sleep. Even took ... Read more

  • Nutrition Tracker

    8/12/2014 9:48:08 PM, by VEG954

    I was logging in my foods for the day and got frustrated. For dinner I had 2 cups of vegetable stew made with all low carb vegetables. When I... Read more

  • Stuck in a rut

    8/12/2014 7:38:23 PM, by APPALOOSAS4ME

    Still quite a while between blog entries, but I hope to improve. I know that the more I check in, the more I participate, the more I will get out... Read more

  • Wow! What a great day!

    8/11/2014 6:46:05 PM, by VEG954

    I planned to re-pot my house plants. Had to get some supplies like Perlite and seaweed fertilizer at Home Depot. Of course I was on the looko... Read more

  • Another lazy day

    8/9/2014 5:24:38 PM, by VEG954

    It is after 5 pm and am still in PJ's. Laptop is still acting up and has temper tantrums frequently. Have been busy most of the day trying to... Read more

  • Interesting Day

    8/8/2014 8:48:39 PM, by VEG954

    My friend has a Mom with Dementia and lives in a memory care facility. Spent the day with them. What an experience! We went to Miami Beac... Read more

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