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kidneys failing, ugh, never thought what started as hormones would end up like this.
Friday, February 01, 2013      3 comments

Well, I have dropped from a stage 3 to a 4 in less than 3 weeks. My docs feel this is terminal. I have had many opinions and as a well educated nurse, I have to agree with them. I am ok with this. Called the attorney handling the ssdi appeals co... Read more
still losing but coping
Friday, January 25, 2013      2 comments

Well, my endocrine has become very aggressive and that is ok with me. I am so short of breath. I have drastically cut my carbs trying to control these sugars. Man am I ever carb sensitive. When did that happen?? Probably at the same time my pa... Read more
losing this game
Monday, January 21, 2013      4 comments

Well, the renal guy has decided to put me on comfort care only now. I can't fight the anasarca without the endo finding a way to balance the hormones enough to help me keep my salt levels up. I have heard two birthdays in a row that I would not... Read more
Steroid problem can get worse, who knew??
Tuesday, January 15, 2013      1 comments

Well, the other half of my adrenals crashed so now I am on both steroids, I had to start T3 for my thyroid which is making none and converting none of the T4, started on several insulins because I am now considered a type 1. Apparently my pancre... Read more
steroids making renal worse??
Monday, November 26, 2012      0 comments

Well, I am almost to stage 4 now on my renal failure scale. UGH. It doesn't matter what we do. I will not do dialysis as I am not a candidate for transplant due to my disease, so if I hit stage 5 it wil be bye bye. This is starting to scare my h... Read more
steroids, weight loss and ears.
Wednesday, November 21, 2012      2 comments

Well, the steroids have me looking like the marshmallow monster, but I noticed as I sloooowly drop down, some facial lines are returning and not just the wrinkles. LOL! My ears have been plugged for about 10 years now and I finally found a grea... Read more
A little less miserable.
Thursday, November 15, 2012      0 comments

Well, my sugars are finally responding. I am down to 9.0mg on my prednisone making my way down to 7.5mg. I seem to be leveling out and my weight is definitely going down. Still badly short of breath but decided to start using the incentive spi... Read more
I am miserable
Saturday, November 10, 2012      4 comments

Well, I had to switch the diet to the type 1 diabetic diet. My diabetes is very atypical because it is due to the adrenal failure and the need for prednisone for life. It is a little easier to control sugars on this setup than the regular type... Read more
diabetic diet doesn't work if you are severly insulin resistant
Tuesday, October 30, 2012      0 comments

Well, I found out the carbs in teh diabetic diet which I followed a long time are way too high for me now that my adrenals and steroids have made me so insulin resistant, so I am following the Zones 40-30-30 breakdown. I have found it made almos... Read more
You can survive life on prednisone and still lose weight.
Thursday, October 25, 2012      1 comments

Wow. What a difference 2 weeks makes. I feel better for the first time in 35 years. I hope this is the last step to achieving even a partial balance. I want to be allowed to start working out again. All I want is to be able to start riding my r... Read more
panhypopituitary, adrenal failure and prednisone for weightloss?
Friday, October 19, 2012      1 comments

Well, Since adding the insulin my hormones are becoming more and more balanced. I think this was the last piece of the puzzle. I am still on 9.5mg of prednisone doing a slow taper to my maintenance dose of 7.5mg. But, I have really started drop... Read more
multiple hormone imbalance and weight loss
Tuesday, October 16, 2012      0 comments

Well, I noticed that once they got my sugars controlled, everything changed. My cortisol, growth hormone, thyroid and parathyroid are all as balanced as they can be, but once the sugars became balanced, the weight started dropping. I gained 21 p... Read more
insulin or death, lovely choice
Wednesday, October 10, 2012      2 comments

Well, I knew this disease was progressive and have always been proud of the fact that I could easily control my sugars with my diet despite the steroids, but that has changed. My pancrease is crapping out and now I am so insulin resistant meds a... Read more
fluid imbalance and sky high sugars from steroids
Tuesday, October 09, 2012      0 comments

Well, ,the fluids are coming off and the sugars are way too high. My endo is finally decreasing me , very, very slowly to my maintenance dose of prednisone, 7.5mg. We also increased one med to compensate for the high sugars. Can't take too much... Read more
adrenal fluid imbalances suck eggs.
Saturday, October 06, 2012      2 comments

Well, my experiment is going well and not well. I decreased all the diuretics and went up 12 pounds overnight. But, I have blood pressure again. So, I am slowly adding back enough to reduce the fluid, but stay balanced. I hate feeling like the s... Read more

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