kidneys failing, ugh, never thought what started as hormones would end up like this.
Well, I have dropped from a stage 3 to a 4 in less than 3 weeks. My docs feel this is terminal. I have had many opinions and as a well educated nurse, I have to agree with them. I am ok with this. Called the attorney handling the ssdi appeals co... Read more
still losing but coping
Well, my endocrine has become very aggressive and that is ok with me. I am so short of breath. I have drastically cut my carbs trying to control these sugars. Man am I ever carb sensitive. When did that happen?? Probably at the same time my pa... Read more
losing this game
Well, the renal guy has decided to put me on comfort care only now. I can't fight the anasarca without the endo finding a way to balance the hormones enough to help me keep my salt levels up. I have heard two birthdays in a row that I would not... Read more
Steroid problem can get worse, who knew??
Well, the other half of my adrenals crashed so now I am on both steroids, I had to start T3 for my thyroid which is making none and converting none of the T4, started on several insulins because I am now considered a type 1. Apparently my pancre... Read more
steroids making renal worse??
Well, I am almost to stage 4 now on my renal failure scale. UGH. It doesn't matter what we do. I will not do dialysis as I am not a candidate for transplant due to my disease, so if I hit stage 5 it wil be bye bye. This is starting to scare my h... Read more
steroids, weight loss and ears.
Well, the steroids have me looking like the marshmallow monster, but I noticed as I sloooowly drop down, some facial lines are returning and not just the wrinkles. LOL! My ears have been plugged for about 10 years now and I finally found a grea... Read more
A little less miserable.
Well, my sugars are finally responding. I am down to 9.0mg on my prednisone making my way down to 7.5mg. I seem to be leveling out and my weight is definitely going down. Still badly short of breath but decided to start using the incentive spi... Read more
I am miserable
Well, I had to switch the diet to the type 1 diabetic diet. My diabetes is very atypical because it is due to the adrenal failure and the need for prednisone for life. It is a little easier to control sugars on this setup than the regular type... Read more
diabetic diet doesn't work if you are severly insulin resistant
Well, I found out the carbs in teh diabetic diet which I followed a long time are way too high for me now that my adrenals and steroids have made me so insulin resistant, so I am following the Zones 40-30-30 breakdown. I have found it made almos... Read more
You can survive life on prednisone and still lose weight.
Wow. What a difference 2 weeks makes. I feel better for the first time in 35 years. I hope this is the last step to achieving even a partial balance. I want to be allowed to start working out again. All I want is to be able to start riding my r... Read more
panhypopituitary, adrenal failure and prednisone for weightloss?
Well, Since adding the insulin my hormones are becoming more and more balanced. I think this was the last piece of the puzzle. I am still on 9.5mg of prednisone doing a slow taper to my maintenance dose of 7.5mg. But, I have really started drop... Read more
multiple hormone imbalance and weight loss
Well, I noticed that once they got my sugars controlled, everything changed. My cortisol, growth hormone, thyroid and parathyroid are all as balanced as they can be, but once the sugars became balanced, the weight started dropping. I gained 21 p... Read more
insulin or death, lovely choice
Well, I knew this disease was progressive and have always been proud of the fact that I could easily control my sugars with my diet despite the steroids, but that has changed. My pancrease is crapping out and now I am so insulin resistant meds a... Read more
fluid imbalance and sky high sugars from steroids
Well, ,the fluids are coming off and the sugars are way too high. My endo is finally decreasing me , very, very slowly to my maintenance dose of prednisone, 7.5mg. We also increased one med to compensate for the high sugars. Can't take too much... Read more
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adrenal fluid imbalances suck eggs.
Well, my experiment is going well and not well. I decreased all the diuretics and went up 12 pounds overnight. But, I have blood pressure again. So, I am slowly adding back enough to reduce the fluid, but stay balanced. I hate feeling like the s... Read more