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ER Visit yesterday, and an overnight hospital stay
This weekend was pretty rough with the fatigue and the usual symptoms that I have when I am severely anemic. I had hopes that the Halotestin injection I had just had the previous Monday would be kicking in at least keep the hemoglobin from falli... Read more
Book Review: Dying Well; Peace and Possiblities at the End of Life by Ira Byock M.D.
The author of this book, Dr. Ira Byock, has dedicated his life as a hospice director to make sure that no one should have to die in pain, or die alone. He is prominent spokesperson for the hospice movement. In this book, he shares the true stori... Read more
Frustration with Fatigue and Blood Counts
I was disappointed, but not surprised, by the results of the CBC I had done on Monday. My hemoglobin went from 10 when it was checked January 12 (which was a week after my last blood transfusion), down to 8.8 this week. I knew just from the leve... Read more
Started another cancer drug today
I went to my oncologist appointment today feeling very anxious after the news I got last week, not knowing what to expect today. I was fully expecting being told that since the drug he talked about trying before was not available, that I would t... Read more
Won't be starting that drug for the cancer after all
First, the good news; my CBC that I had done today shows that my hemoglobin is at 10; this is the first time that it was checked since I had the transfusion last Tuesday. I was relieved to find that out. A friend took me grocery shopping today a... Read more
Transfusion went well, feeling so much better!
The transfusion went well yesterday, and I am feeling so much better now, but the day started off kind of rough.
My friend Von picked me up at 6:45am; God Bless her for being willing to go out into the bitter cold so early! Lack of sleep wa... Read more
Another setback, severely anemic again
I've had a setback again with my health because of severe anemia. This past week has been especially hard, with extreme fatigue, a rapid heart rate, and some episodes of shortness of breath. We've been very cold here over the past couple of week... Read more
Exercise and Terminal Illness; 2015 Goals
I haven't had anyone come right out and ask me this yet, but I'm sure there are people (and I don't mean just here on Spark) that wonder, "Why bother to exercise if you have a terminal illness?"
Just because you know your life is going to p... Read more
First Christmas without my mom
I made it through my first Christmas without my mom, but no matter how old you are, Christmas is just never the same once both of your parents are gone.
The last few years, after my dad passed away, I always went to church on Christmas Eve ... Read more
Trying another drug for the cancer
I went to my appointment today with my oncologist feeling so sure that he was going to tell me I had no options left, but he decided to try something that is actually a very old treatment for metastatic breast cancer. It's a male hormone called ... Read more
Pain patch did not work for me, bad side effects
Rite Aid finally got the pain patch in stock that my PA at the pain clinic wanted me to try, and I picked it up Thursday morning while I was out shopping. My biggest concern was that it would make me feel sleepy, so I thought if I put it on at b... Read more
Just checking in, I'm doing ok
Just checking in to let everyone know I am doing ok, after the news I received on Monday from my oncologist.
I slept surprisingly well Monday night; I think I was just plain exhausted, from the time I had to get up so early Friday morning t... Read more
CT scan results; not good news
My CT scan that I had on Friday shows that 3 lesions that were on my liver in July have grown a little bit; they are growing slower, but they have grown, and there a few new ones too. The cancer has also now spread to my lungs; those spots are v... Read more
Another "strike out" with the chemo
Once again, chemo has to be postponed because of my platelet count. I was not surprised though; I really did not think that the counts would get up to 100 which is the minimum at which my doctor will allow chemo, since last Wednesday they were a... Read more
Pain Clinic Appointment Today
I had my followup appointment this morning with my PA at the pain clinic, it was scheduled on a day when my doctor was also there, in case anything on the x-rays of my left hip that were done several weeks indicated any problems that could possi... Read more
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