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    MARYJEANSL   105,419
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My Daughter's Dance

Sunday, February 07, 2016      1 comments

My lovely daughter asked me to post a link to a dance she choreographed and performed. She has cerebral palsy as a result of bleeding in her brain because of her premature birth (28 weeks). Nonetheless, she has accomplished a great deal - she ... Read more

More on surgery

Tuesday, February 02, 2016      3 comments

Henry and I saw Dr. Townley today for the real pre-surgery appointment. I'm not really sure what the other one was, when we spent most of a day going from pillar to post and having a bunch of eye measurements made, plus seeing an ophthalmologis... Read more

Eye Surgery

Sunday, January 31, 2016      1 comments

Now that I have a brief break from dealing with Danny's medical issues, I get to start dealing with Henry's. Now, Henry, unlike Danny, is of age (heck, he's 25!), so technically I have no say unless he allows me one. However, he has always let m... Read more

THE Call

Thursday, January 21, 2016      3 comments

Well, the pediatric urologist, Dr. Novak, surprised me, after I had decided that he wasn't going to call me after all. Yesterday (Wednesday), I made the mistake of answering the phone ;-) and there he was. I know he thought I was a ... Read more


Monday, January 18, 2016      3 comments

I think it was on Saturday that I first noticed some odd lumps (pimples? At my age?) on my arm and back, but it wasn't anything I paid much attention to. Then yesterday I realised that I had developed not just a few, but lots and lots of v... Read more

Transition time

Sunday, January 17, 2016      1 comments

It seems as though the pediatric urologist either changed his mind about calling us, or got too busy, or something. Someone was home most of last week, Wednesday to Friday. He said he would call Wednesday. He didn't call. Cecily said she did... Read more

Urodynamic Testing

Tuesday, January 12, 2016      1 comments

After Danny had thrown a fit about the testing last Wednesday, and refused to have it done unless he could first take pain medication, it was re-scheduled for 8 A.M. yesterday. In hindsight, I wish I had told them that that time just wouldn't w... Read more

Another tough two days, but also some good news

Wednesday, January 06, 2016      1 comments

Danny and I have had far too many horrible days lately, and we spend far too much time running from pillar to post dealing with far too many side effects. I know I do too much whining about my bad days, but it is cathartic for me, and i... Read more

Another Very Long Day

Monday, January 04, 2016      3 comments

Danny had an appointment at the clinic for December 29th, ostensibly just for counts, at 9. In addition, his sister Cecily had an important appointment at 9:45 with her orthopedic surgeon. (She has cerebral palsy.) The idea was that I w... Read more

Christmas Eve

Friday, January 01, 2016      3 comments

Again I am behind in blogging, mostly because of my computer problems. No sooner do I get online, generally speaking, than my computer freezes up, and the only way to solve the problem it to turn it off at the switch and start over. That only ... Read more

Not my favorite place to spend Christmas Eve

Wednesday, December 23, 2015      1 comments

So Danny had gotten a platelet transfusion on Monday, and Dr. Gidvani, who is turning out to be one of those irritating individuals who is always right, thought that I needed to bring him back today, just in case. His platelets hadn't been ... Read more

Last chemo

Monday, December 21, 2015      3 comments

I am so behind in my writing about Danny's journey. I was without my computer for literally weeks while a friend's husband had it. He fixed it, but made some changes which have led to some problems for me. Every time I get online, it freezes ... Read more

Some amusing incidents

Sunday, December 06, 2015      5 comments

Last Monday, when we went in for counts, there were a couple of amusing (to me, anyway) incidents that I wanted to record, just for myself. And because I always need to smile. The psychologist who did the most recent neuropsych exam ... Read more

Thanksgiving and beyond

Wednesday, December 02, 2015      4 comments

Wow! It has been a very long time since I have posted anything. As far as myself, I can say that I ate too much on Thanksgiving, and have since been trying to get back where I was on November 25th, with reasonable success. Danny...well.... Read more

A Scare at Work

Saturday, November 21, 2015      5 comments

What a day! In the interest of earning a bit more money for Christmas, I applied for another job watching children at another church, the one affiliated with my son's scout troop. The people there are just lovely, and I have to say that ... Read more

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