Today was one of those days when you pretty much come home, throw yourself in bed, and collapse, totally exhausted. It was a chemo day, slightly complicated by the fact that Henry was still in town for the long weekend, and he wanted to come to... Read more
Low white cells
Today Danny had a regular clinic visit for blood counts. I wasn't expecting anything too bad, since his counts had been fine on Sunday. In particular, his neutrophils (infection-fighting white blood cells) were relatively high.
Well, I wa... Read more
Alexander has nothing on Danny
That would be Alexander, he of the terrible, horrible, no good, very bad day. I actually thought we had had terrible, horrible, etc., days before, but I was wrong. They paled in comparison to the past three days. One day isn't enough to encom... Read more
I don't think I mentioned in earlier blogs that I had an appointment with my own doctor (how bizarre to go to any doctor other than my kids') last week. I really like this guy. He does a whole lot of blood work and then sees areas that might b... Read more
I was quite nervous about Danny's MRI results. Dr. Whiteway had put the request for a scan in the system, but when I went in to schedule it a week ago, the first available opening was June 21st. I knew Dr. W wouldn't think that was soon enough... Read more
Rocky start to the week
After coming in for counts last Tuesday, and being started on Megace, Danny still had kind of a tough rest of the week. He was eating a bit more, but not enough more. We had to come in on Friday as well, since we had intended to go camping Fri... Read more
We have a plan
Danny has been having quite a few nose bleeds the past several days. Having once been embarrassed by bringing him in to check platelets, only to find out that his platelets were fine and the nosebleed was caused by digital trauma, I wasn't goin... Read more
Last Day of Chemo...
...for the week, at least. Friday was another horrible day. Poor Danny was just so exhausted and sick, and he wouldn't eat (sending me just about around the bend with worry). I had him on a schedule for anti-nausea meds, which actually worked... Read more
Second two days of chemo
Unfortunately, the second two days of chemo were not good ones. No two ways about it, the past two days have been horrific.
The hospital was having a blood drive on Wednesday, and as soon as I saw the signs, I decided to donate. I used ... Read more
First two days of chemo
Yesterday Danny and I got up early for a looooong day of chemo. I gave him all the anti-nausea drugs that have been prescribed and are compatible with each other: Kytril, Marinol, and two Benadryl. I might not normally give him all four pills... Read more
Week of Respite
This has been a pretty good week overall. Monday we found out Danny wouldn't have chemo, and he and I have both been resting and recovering since. Well, sort of. I had mailed my taxes to my accountant last week, and this week I had to get my ... Read more
Quite a Week
After Danny had a fever caused by one of his chemo drugs last week (Wednesday night) and got checked out as OK on Thursday morning, I was asked to bring him in on Monday, March 30th for counts.
His platelets had been fine on Thursday. Th... Read more
Last Monday, the 23rd, Danny was scheduled for a neuropsych evaluation at the hospital. This is a very thorough exam, usually taking all day, which includes, among other things, IQ testing. Kids with Danny's type of cancer are supposed to have... Read more
Fevers and lawn mowers
Danny had gotten his chemo on Tuesday. Wednesday we spent the day at Randolph AFB, where Danny was "Pilot for a Day." We brought two of his friends with us, and I must say that it was fabulous. They left no stone unturned when it came to fun ... Read more
Allergic Reaction to Platelets
After Danny's panic attacks, which were a week ago, and after he recovered so completely, I wasn't expecting to come back to the clinic until Tuesday of this week, for regular mid-cycle chemo. However, about 6:30 Thursday morning, Danny woke me... Read more
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