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DEB2448's Blogs

Gearing up for radiation
Monday, September 19, 2016      9 comments

Drew has fully recovered from transplant. All of his counts are up and not being checked anymore.He is off all anti-nausea and pain medications. All of his fingernails have fallen off, ( a side effect from the chemo) Thursday he had his centr... Read more
Weekend Visit
Sunday, September 18, 2016      8 comments

Since Drew is doing good at this time and between chemo and radiation, they decided to visit us this weekend. It was the first time Josh , Heidi or Drew had been here to visit since December 2015. It was so great to have them all here and we all... Read more
Home after 25 days (video blog)
Tuesday, September 13, 2016      9 comments

This video blog is of Drew and Molly having a little fun at home. He has now been home for about a week. He will go back in on Thursday and they will put the central line back in (this had to come out with his last infection) and then do an MRI ... Read more
Tuesday, September 06, 2016      8 comments

Since January 21st our family has had so much sadness with Drew being diagnosed with stage 4 cancer BUT today I am going to take some time to celebrate with Molly. Today was her first day of PreK! She's such a big girl, Couldn't be prouder, lo... Read more
Drew is beginning to engraft.
Thursday, September 01, 2016      6 comments

Today is a GREAT day. Drew's counts are coming back up!! There was some movement yesterday in the numbers, and they waited anxiously to see if today there would be more movement in the right direction, and there was!! His neutrophils, the n... Read more
September Is Childhood Cancer Awareness Month
Wednesday, August 31, 2016      6 comments

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8/25/16 update on infection
Thursday, August 25, 2016      9 comments

They identified the bacteria causing the infection as Stenotrophomonas Maltophilia. Apparently it is kind of a surprising bug for Drew to have. They are saying it is common in patients that are on ventilators in hospital settings, so suspect h... Read more
Tuesday, August 23, 2016      8 comments

Drew was running a fever yesterday and the protocol with this is to take cultures to be tested. By 3:00 AM his was growing which means he has an infection. They have him on a broadband antibiotic at this time they have narrowed it down to a ... Read more
Transplant Day # 2
Monday, August 22, 2016      15 comments

This morning was transplant day #2. After they thawed out the stem cells and blessed them they started putting them back in Drew. This took about an hour but went well. Now we just sit and wait for the engraftment to start again. This should ha... Read more
Last day of chemo
Thursday, August 18, 2016      11 comments

Today they hung the last bag of chemo for Drew ,hopefully forever! Monday they will do the stem cell transplant, where they will give him back his own stem cells. Then it will be just waiting for him to engraf again. We know from the last time ... Read more
Tests Done - Getting Ready For Transplant 2
Saturday, August 13, 2016      12 comments

Josh, Heidi, Molly and Drew have had a great month at home , with only a couple trips to the emergency room to have his feeding tube replaced. This wonderful home time will be coming to an end again though as they prepare for Transplant number ... Read more
5 generations
Monday, August 01, 2016      6 comments

While Drew is home we decided it was time to get some more 5 generation pictures. We took these when Molly was a baby but had not taken any since Drew was born. Here are a few pictures of us enjoying that day visiting my grandmother that is 96 ... Read more
Six Months In
Saturday, July 23, 2016      11 comments

Six months ago I got a phone call from Josh saying the three words that has changed all of our lives, Drew has cancer.At that time Drew was only 21 months old In the last six months Drew has had 6 rounds of chemo therapy, 7 surgeries, 2 infect... Read more
Sunday, July 10, 2016      10 comments

Molly stayed with us this last week, It was a lot of fun to have her around for a few days. Drew also has rebounded far better than anyone thought and was released from the hospital yesterday and other than a few check ups will not have to chec... Read more
Engraftment Begins for Drew
Friday, July 08, 2016      11 comments

Well, we are excited to have some good news! Drew is starting to have some counts! The team came in on rounds and confirmed that engraftment is beginning, or the stem cells are starting to grow in his bone marrow! His first counts after engraf... Read more

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