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DEB2448's Blogs

8/25/16 update on infection
Thursday, August 25, 2016      8 comments

They identified the bacteria causing the infection as Stenotrophomonas Maltophilia. Apparently it is kind of a surprising bug for Drew to have. They are saying it is common in patients that are on ventilators in hospital settings, so suspect h... Read more
Tuesday, August 23, 2016      8 comments

Drew was running a fever yesterday and the protocol with this is to take cultures to be tested. By 3:00 AM his was growing which means he has an infection. They have him on a broadband antibiotic at this time they have narrowed it down to a ... Read more
Transplant Day # 2
Monday, August 22, 2016      15 comments

This morning was transplant day #2. After they thawed out the stem cells and blessed them they started putting them back in Drew. This took about an hour but went well. Now we just sit and wait for the engraftment to start again. This should ha... Read more
Last day of chemo
Thursday, August 18, 2016      11 comments

Today they hung the last bag of chemo for Drew ,hopefully forever! Monday they will do the stem cell transplant, where they will give him back his own stem cells. Then it will be just waiting for him to engraf again. We know from the last time ... Read more
Tests Done - Getting Ready For Transplant 2
Saturday, August 13, 2016      12 comments

Josh, Heidi, Molly and Drew have had a great month at home , with only a couple trips to the emergency room to have his feeding tube replaced. This wonderful home time will be coming to an end again though as they prepare for Transplant number ... Read more
5 generations
Monday, August 01, 2016      6 comments

While Drew is home we decided it was time to get some more 5 generation pictures. We took these when Molly was a baby but had not taken any since Drew was born. Here are a few pictures of us enjoying that day visiting my grandmother that is 96 ... Read more
Six Months In
Saturday, July 23, 2016      11 comments

Six months ago I got a phone call from Josh saying the three words that has changed all of our lives, Drew has cancer.At that time Drew was only 21 months old In the last six months Drew has had 6 rounds of chemo therapy, 7 surgeries, 2 infect... Read more
Sunday, July 10, 2016      10 comments

Molly stayed with us this last week, It was a lot of fun to have her around for a few days. Drew also has rebounded far better than anyone thought and was released from the hospital yesterday and other than a few check ups will not have to chec... Read more
Engraftment Begins for Drew
Friday, July 08, 2016      11 comments

Well, we are excited to have some good news! Drew is starting to have some counts! The team came in on rounds and confirmed that engraftment is beginning, or the stem cells are starting to grow in his bone marrow! His first counts after engraf... Read more
More Pictures (Transplant day)
Wednesday, June 29, 2016      5 comments

Here are a few more pictures from transplant day and today . Drew's counts have now bottomed out. He is still getting sick 4 or 5 times a day. After a blood transfusion today he is feeling a little better. Since he is running a fever now he is... Read more
Transplant day is here
Monday, June 27, 2016      10 comments

It's transplant day!! They thawed out the stem cells in a hot water bath, then had a blessing over the stem cells, before they hung the bag and in just under 30 min, an episode of Paw Patrol worth of time, 9.5 million of Drew's stem cells drippe... Read more
Day T -7 (video blog)
Tuesday, June 21, 2016      5 comments

Drew the first day of chemo (what the Doctors call Day T-7) Yesterday, Day -7 as they call it (Day 0 being the actual stem cell transplant following all the chemo), was the start of the high dose chemo. They got it going around 11 a.m. An... Read more
Test Results -Getting Ready for the 1st Transplant
Sunday, June 19, 2016      13 comments

Surprise! They do not actually have to check in until Sunday night at 6 p.m., with the chemo drip starting at 10 a.m. on Monday morning. There was a little miscommunication....but they are excited for a bonus Father's Day weekend at home!! The... Read more
Drew after all the tests are done (video blog)
Saturday, June 18, 2016      3 comments

Drew having some fun after all his tests are done, guessing sounds from the road above them.... Read more
Preparation for Stem Cell Transplant
Tuesday, June 14, 2016      11 comments

Tomorrow will be the day that Drew will have to be at the hospital to start 10 or so tests before they can start the next phase of his treatment the bone marrow transplant and then the stem cell replacement. They did hear from insurance today th... Read more

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